CUREPSP INC: Form 990, tax year 2016
View the entire original 990 at ProPublica ↗
- Organization
- CUREPSP INC (EIN 52-1704978)
- Tax period
- 2016-07-01 to 2017-06-30
- Filed
- 2018-05-11
- IRS object ID
- 201811319349301521
- Schema version
- 2016v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2018-05-11T09:33:11-04:00 | ReturnTs |
| Tax Period End | 2017-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521798441 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | WOLFE & FIEDLER PA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 634 FREDERICK RD STE 1 | AddressLine1Txt |
| City | CATONSVILLE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21228 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2016-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521704978 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CUREPSP INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 3472942893 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1206 YORK ROAD STE L-4 | AddressLine1Txt |
| City | LUTHERVILLE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21093 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DAVID KEMP | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 3472942893 | PhoneNum |
| Signature | 2018-05-10 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JOHN R FIEDLER | PreparerPersonNm |
| PTIN | P00147612 | PTIN |
| Phone | 4107470789 | PhoneNum |
| Preparation | 2018-05-11 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2016 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | DAVID KEMP | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1206 YORK ROAD | AddressLine1Txt |
| City | LUTHERVILLE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21093 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,797,290 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREPSP.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1990 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | CUREPSP IS A NONPROFIT ADVOCACY ORGANIZATION FOCUSED ON PRIME OF LIFE NEURODEGENERATIVE DISEASES, A SPECTRUM OF FATAL BRAIN DISORDERS THAT OFTEN STRIKE DURING MIDDLE AGE. SINCE IT WAS FOUNDED IN 1990, CURE PSP HAS PROVIDED SIGNFICANT SUPPORT FOR SCIENTISTS, PATIENTS AND FAMILIES, AND HEALTHCARE PROFESSIONALS. BECAUSE OF ITS FOCUS ON TAU PROTEIN-RELATED DISEASES LIKE PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CUREPSP OCCUPIES A CENTRAL POSITION IN CURRENT NEURODEGENERATION RESEARCH THROUGH ITS FUNDING OF TALENTED EARLY CAREER INVESTIGATORS AND ITS ABIILITY TO RECRUIT FOR AND MARKET CLINCAL TRIALS IN PSP NOW BEING UNDERTAKEN BY MAJOR PHARMACEUTICAL MANUFACTURERS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 13 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 13 | VotingMembersIndependentCnt |
| Total Employee | 17 | TotalEmployeeCnt |
| Total Volunteers | 180 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $3,119,335 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,577,806 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $101,521 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $106,430 | CYProgramServiceRevenueAmt |
| PY Investment Income | $5,459 | PYInvestmentIncomeAmt |
| CY Investment Income | $9,566 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$2,494 | PYOtherRevenueAmt |
| CY Other Revenue | $10,980 | CYOtherRevenueAmt |
| PY Total Revenue | $3,223,821 | PYTotalRevenueAmt |
| CY Total Revenue | $2,704,782 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $477,501 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $329,500 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,165,951 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $930,159 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $466,301 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,508,769 | PYOtherExpensesAmt |
| CY Other Expenses | $1,097,564 | CYOtherExpensesAmt |
| PY Total Expenses | $3,152,221 | PYTotalExpensesAmt |
| CY Total Expenses | $2,357,223 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $71,600 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $347,559 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $3,162,762 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,074,588 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $936,756 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $466,427 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,226,006 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $2,608,161 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | CUREPSP IS A NONPROFIT ADVOCACY ORGANIZATION FOCUSED ON PRIME OF LIFE NEURODEGENERATIVE DISEASES, A SPECTRUM OF FATAL BRAIN DISORDERS THAT OFTEN STRIKE DURING MIDDLE AGE. SINCE IT WAS FOUNDED IN 1990, CURE PSP HAS PROVIDED SIGNFICANT SUPPORT FOR SCIENTISTS, PATIENTS AND FAMILIES, AND HEALTHCARE PROFESSIONALS. BECAUSE OF ITS FOCUS ON TAU PROTEIN-RELATED DISEASES LIKE PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CUREPSP OCCUPIES A CENTRAL POSITION IN CURRENT NEURODEGENERATION RESEARCH THROUGH ITS FUNDING OF TALENTED EARLY CAREER INVESTIGATORS AND ITS ABIILITY TO RECRUIT FOR AND MARKET CLINCAL TRIALS IN PSP NOW BEING UNDERTAKEN BY MAJOR PHARMACEUTICAL MANUFACTURERS. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $741,950 | ExpenseAmt |
| Grant | $329,500 | GrantAmt |
| Desc | CUREPSP ADVANCES THE UNDERSTANDING AND SEEKS TREATMENT AND CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND RELATED "PRIME OF LIFE" NEURODEGENERATIVE DISEASES BY FUNDING RESEARCH THAT FOCUSES ON (A) THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, (B) BIOMARKERS AND CLINICAL TESTS THAT AID IN DIAGNOSIS, (C) GENETIC VARIANTS THAT ARE ASSOCIATED WITH THE DISEASES, (D) THERAPIES THAT WOULD PREVENT, STOP, OR REVERSE BRAIN DAMAGE ASSOCIATED WITH PATHOLOGICAL PROTEIN ACCUMULATION IN THE BRAIN, AND (E) AIDING PHARMACEUTICAL COMPANIES AND RESEARCH INSTITUTIONS IN RECRUITMENT OF COHORTS FOR CLINICAL TRIALS AND MARKETING OF THOSE TRIALS. CUREPSP PROVIDES CRITICAL BRAIN-TISSUE SAMPLES TO RESEARCHERS THROUGH ITS SUPPORT OF THE MAYO CLINIC'S BRAIN BANK. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $527,273 | ExpenseAmt |
| Revenue | $88,800 | RevenueAmt |
| Desc | CUREPSP ADVOCATES FOR PATIENTS, FAMILIES, AND CAREGIVERS MANAGING PRIME OF LIFE NEURODEGENERATION TO IMPROVE QUALITY OF LIFE AND PATIENT OUTCOMES. CUREPSP DOES THIS THROUGH FAMILY CONFERENCES, CAREGIVER RETREATS, VOLUNTEER DEVELOPMENT, PROFESSIONAL EDUCATION, ONLINE AND PRINTED RESOURCES, AND SOCIAL MEDIA. CUREPSP SUPPORTS SOME 50 SUPPORT GROUPS AND AROUND 200 VOLUNTEERS PROVIDING ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT WORLDWIDE. CUREPSP'S CHERIE LEVIEN QUALITY OF LIFE FUND PROVIDES PROFESSIONAL IN-HOME CARE TO FAMILIES IN NEED. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $273,786 | ExpenseAmt |
| Desc | CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, AND PHYISICIANS AND OTHER HEALTHCARE PROFESSIONALS. THE FOUNDATION SPONSORS PROFESSIONAL EDUCATION CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE OF THE DISEASE THAT WILL LEAD TO EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY SUPPORTED BY CUREPSP FURTHER EDUCATE THE GENERAL PUBLIC. THE FOUNDATION MAINTAINS AN ONGOING RELATIONSHIP WITH A GLOBAL PR FIRM TO CREATE AWARENESS WITIH PROFESSIONALS AND THE GENERAL PUBLIC. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $17,040 | ExpenseAmt |
| Revenue | $17,630 | RevenueAmt |
| Desc | GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $17,040 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $17,630 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $1,560,049 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (true) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (true) | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (true) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | Yes (true) | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | Yes (true) | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 28 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 17 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 13 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 13 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | Yes (true) | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | false | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DAVID KEMP | PersonNm |
| Phone | 3472942893 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1206 YORK ROAD STE L-4 | AddressLine1Txt |
| City | LUTHERVILLE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21093 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| EVERETT COOK | ||||||
| VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ADAM MURPHY | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ILEEN MCFARLAND | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN BURHOE | ||||||
| CHAIR EMERIT | 2.00 | Yes (X) | $0 | $0 | $0 | |
| LAWRENCE GOLBE | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| AMY BRANCH | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| BRENDAN DIXON | ||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| GEORGE JANKIEWICZ | ||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| STEPHEN GOLDMAN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| WILLIAM MCFARLAND | ||||||
| CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| JEFFREY FRIEDMAN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JIM MCCLELLAN | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JAMES SHEA | ||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DAVID KEMP | ||||||
| PRESIDENT | 45.00 | Yes (X) | $200,000 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $200,000 | TotalReportableCompFromOrgAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $183,016 | FundraisingAmt |
| All Other Contributions | $2,394,790 | AllOtherContributionsAmt |
| Total Contributions | $2,577,806 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|
| SPONSORSHIPS | $88,800 | $88,800 |
| PATIENT ENGAGEMENT PROGRAM | $17,630 | $17,630 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $106,430 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $10,394 | TotalRevenueColumnAmt |
| Exclusion | $10,394 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $73,153 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $73,340 | SecuritiesAmt |
| Other | $641 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$187 | SecuritiesAmt |
| Other | -$641 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$828 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$828 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $23,024 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $183,016 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $16,640 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,384 | TotalRevenueColumnAmt |
| Exclusion | $6,384 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $5,993 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $1,887 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,106 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $4,106 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER | Desc |
| Total Revenue Column | $490 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $490 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $490 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,704,782 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $110,198 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $16,778 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $329,500 | TotalAmt |
| Program Services | $329,500 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $200,000 | TotalAmt |
| Program Services | $135,260 | ProgramServicesAmt |
| Management And General | $35,860 | ManagementAndGeneralAmt |
| Fundraising | $28,880 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $621,904 | TotalAmt |
| Program Services | $431,479 | ProgramServicesAmt |
| Management And General | $97,203 | ManagementAndGeneralAmt |
| Fundraising | $93,222 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,754 | TotalAmt |
| Program Services | $9,343 | ProgramServicesAmt |
| Management And General | $2,443 | ManagementAndGeneralAmt |
| Fundraising | $1,968 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,375 | TotalAmt |
| Program Services | $22,672 | ProgramServicesAmt |
| Management And General | $5,930 | ManagementAndGeneralAmt |
| Fundraising | $4,773 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,126 | TotalAmt |
| Program Services | $41,523 | ProgramServicesAmt |
| Management And General | $10,856 | ManagementAndGeneralAmt |
| Fundraising | $8,747 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,153 | TotalAmt |
| Program Services | $13,226 | ProgramServicesAmt |
| Management And General | $35,927 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $37,974 | TotalAmt |
| Management And General | $37,974 | ManagementAndGeneralAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,270 | TotalAmt |
| Program Services | $3,270 | ProgramServicesAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,993 | TotalAmt |
| Program Services | $4,993 | ProgramServicesAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,026 | TotalAmt |
| Program Services | $11,957 | ProgramServicesAmt |
| Management And General | $69 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $329,010 | TotalAmt |
| Program Services | $108,327 | ProgramServicesAmt |
| Management And General | $2,332 | ManagementAndGeneralAmt |
| Fundraising | $218,351 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,788 | TotalAmt |
| Program Services | $36,523 | ProgramServicesAmt |
| Management And General | $2,720 | ManagementAndGeneralAmt |
| Fundraising | $28,545 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $145,318 | TotalAmt |
| Program Services | $84,489 | ProgramServicesAmt |
| Management And General | $34,772 | ManagementAndGeneralAmt |
| Fundraising | $26,057 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,411 | TotalAmt |
| Program Services | $235 | ProgramServicesAmt |
| Management And General | $6,176 | ManagementAndGeneralAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $168,896 | TotalAmt |
| Program Services | $168,896 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,390 | TotalAmt |
| Program Services | $35,157 | ProgramServicesAmt |
| Management And General | $8,991 | ManagementAndGeneralAmt |
| Fundraising | $7,242 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,217 | TotalAmt |
| Program Services | $9,157 | ProgramServicesAmt |
| Management And General | $1,695 | ManagementAndGeneralAmt |
| Fundraising | $1,365 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| MEETINGS & BOARD EXPENSES | $25,491 | $3,648 | $21,843 | |
| BANK & PAYROLL FEES | $23,783 | $15 | $7,198 | $16,570 |
| BRAIN BANK TISSUE HARVEST | $21,989 | $21,989 | ||
| SUPPORT GROUPS | $20,866 | $20,866 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $116,989 | TotalAmt |
| Program Services | $67,524 | ProgramServicesAmt |
| Management And General | $18,884 | ManagementAndGeneralAmt |
| Fundraising | $30,581 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,357,223 | TotalAmt |
| Program Services | $1,560,049 | ProgramServicesAmt |
| Management And General | $330,873 | ManagementAndGeneralAmt |
| Fundraising | $466,301 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,064,908 | BOYAmt |
| EOY | $895,681 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,475,532 | BOYAmt |
| EOY | $1,478,278 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,850 | BOYAmt |
| EOY | $4,650 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,104 | BOYAmt |
| EOY | $22,920 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $20,382 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,854 | BOYAmt |
| EOY | $50,959 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $293,244 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $134,457 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $36,859 | BOYAmt |
| EOY | $158,787 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $388,290 | BOYAmt |
| EOY | $427,158 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $145,365 | BOYAmt |
| EOY | $15,773 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,162,762 | BOYAmt |
| EOY | $3,074,588 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $169,646 | BOYAmt |
| EOY | $112,387 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $767,110 | BOYAmt |
| EOY | $354,040 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $936,756 | BOYAmt |
| EOY | $466,427 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,311,405 | BOYAmt |
| EOY | $1,749,321 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $542,483 | BOYAmt |
| EOY | $455,396 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $372,118 | BOYAmt |
| EOY | $403,444 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,226,006 | BOYAmt |
| EOY | $2,608,161 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,162,762 | BOYAmt |
| EOY | $3,074,588 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $347,559 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $34,596 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,583,318 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,115,827 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,521,513 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,119,335 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,577,806 | CurrentTaxYearAmt |
| Total | $12,917,799 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $141,364 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $210,083 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $212,132 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $105,518 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $112,913 | CurrentTaxYearAmt |
| Total | $782,010 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,724,682 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,325,910 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,733,645 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,224,853 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,690,719 | CurrentTaxYearAmt |
| Total | $13,699,809 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $167,351 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,495,316 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $956,514 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $50,696 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $138,765 | CurrentTaxYearAmt |
| Total | $2,808,642 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $167,351 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,495,316 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $956,514 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $50,696 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $138,765 | CurrentTaxYearAmt |
| Total | $2,808,642 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $10,891,167 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,418 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,945 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,746 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $15,298 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,394 | CurrentTaxYearAmt |
| Total | $57,801 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,418 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,945 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,746 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $15,298 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,394 | CurrentTaxYearAmt |
| Total | $57,801 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,733,100 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,336,855 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,746,391 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,240,151 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,701,113 | CurrentTaxYearAmt |
| Total | $13,757,610 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.79160 | PublicSupportCY509Pct |
| Public Support PY509 | 0.79530 | PublicSupportPY509Pct |
| Investment Income CY | 0.00000 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00000 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $372,118 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $34,596 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,270 | AdministrativeExpensesAmt |
| End Year Balance | $403,444 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $380,827 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$5,591 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,118 | AdministrativeExpensesAmt |
| End Year Balance | $372,118 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $383,411 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $529 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,113 | AdministrativeExpensesAmt |
| End Year Balance | $380,827 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $351,169 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $35,179 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $2,937 | AdministrativeExpensesAmt |
| End Year Balance | $383,411 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $325,369 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $29,537 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,737 | AdministrativeExpensesAmt |
| End Year Balance | $351,169 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $293,244 | OtherCostOrOtherBasisAmt |
| Depreciation | $134,457 | DepreciationAmt |
| Book Value | $158,787 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $158,787 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $2,739,378 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $34,596 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $34,596 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,704,782 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $2,704,782 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,357,223 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $2,357,223 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $2,357,223 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE D, PAGE 2, PART V, LINE 4 | FormAndLineReferenceDesc |
| Explanation | INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| All States | All States | AllStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | HILL COUNTRY WI | Event1Nm |
| Gross Receipts Event1 | $36,148 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $28,918 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $7,230 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $1,400 | OtherDirectExpensesEvent1Amt |
| Event2 | MARCO ISLAND WA | Event2Nm |
| Gross Receipts Event2 | $35,730 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $26,798 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $8,932 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $6,589 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 5 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $51,551 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $44,689 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $6,862 | GrossRevenueOtherEventsAmt |
| Non Cash Prizes Other Events | $942 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $4,005 | RentFcltyCostsOtherEventsAmt |
| Oth Direct Expnss Other Events | $2,820 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $123,429 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $100,405 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $23,024 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $942 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $4,005 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $10,809 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $15,756 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $7,268 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (6 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| COLUMBIA UNIVERSITY | |||||||
| 630 WEST 68TH STREET | NEW YORK | NY | 10032 | 135598093 | 501C3 | $44,000 | PRECLINICAL RESEARCH |
| REGENERATIVE RESEARCH FOUNDATION | |||||||
| ONE DISCOVERY DRIVE | RENSELAER | NY | 12144 | 203654626 | 501C3 | $40,000 | PRECLINICAL RESEARCH |
| NYU SCHOOL OF MEDICINE | |||||||
| PO BOX 415026 | BOSTON | MA | 022415026 | 135562308 | 501C3 | $83,500 | PRECLINICAL RESEARCH |
| HUMBOLDT STATE UNIVERSITY | |||||||
| 1 HARPST STREET | ARCATA | CA | 955218299 | 946050071 | 501C3 | $100,000 | PRECLINICAL RESEARCH |
| MOUNT SINAI SCHOOL OF MEDICINE | |||||||
| 1425 MADISON AVENUE | NEW YORK | NY | 10029 | 136171197 | 501C3 | $12,000 | PRECLINICAL RESEARCH |
| TEACHERS COLL COLUMBIA UNIVERSITY | |||||||
| 525 WEST 120TH STREET | NEW YORK | NY | 100276696 | 131624202 | 501C3 | $50,000 | PRECLINICAL RESEARCH |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DAVID KEMP | PersonNm |
| Title | PRESIDENT | TitleTxt |
| Base Compensation Filing Org | $200,000 | BaseCompensationFilingOrgAmt |
| Total Compensation Filing Org | $200,000 | TotalCompensationFilingOrgAmt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | WOLFE FIEDLER PA | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | CPA | RelationshipDescriptionTxt |
| Transaction | $28,800 | TransactionAmt |
| Transaction | ACCOUNTING & CONSULT | TransactionDesc |
| Sharing Of Revenues | false | SharingOfRevenuesInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (11 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990 - ORGANIZATION'S MISSION | CUREPSP IS A NONPROFIT ADVOCACY ORGANIZATION FOCUSED ON PRIME OF LIFE NEURODEGENERATIVE DISEASES, A SPECTRUM OF FATAL BRAIN DISORDERS THAT OFTEN STRIKE DURING MIDDLE AGE. SINCE IT WAS FOUNDED IN 1990, CURE PSP HAS PROVIDED SIGNFICANT SUPPORT FOR SCIENTISTS, PATIENTS AND FAMILIES, AND HEALTHCARE PROFESSIONALS. BECAUSE OF ITS FOCUS ON TAU PROTEIN-RELATED DISEASES LIKE PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CUREPSP OCCUPIES A CENTRAL POSITION IN CURRENT NEURODEGENERATION RESEARCH THROUGH ITS FUNDING OF TALENTED EARLY CAREER INVESTIGATORS AND ITS ABIILITY TO RECRUIT FOR AND MARKET CLINCAL TRIALS IN PSP NOW BEING UNDERTAKEN BY MAJOR PHARMACEUTICAL MANUFACTURERS. |
| FORM 990, PART III | ORGANIZATION'S SIGNIFICANT ACCOMPLISHMENTS 1. FUNDED MORE THAN 180 RESEARCH STUDIES. PROVIDES SEED FUNDING ("VENTURE GRANTS") TO EARLY CAREER INVESTIGATORS. 2. PUT ON AN ANNUAL GLOBAL RESEARCH SYMPOSIUM. 3.REIMBURSED FAMILIES FOR THE COST OF BRAIN DONATION TO THE MAYO CLINIC, WHICH PROVIDES TISSUE SAMPLES TO SCIENTISTS FOR THEIR RESEARCH. 4.PROVIDED PATIENT AND FAMILY SUPPORT THROUGH SOME 50 IN-PERSON SUPPORT GROUPS AND AROUND 200 VOLUNTEERS WHO PROVIDE TELEPHONE AND ONLINE SUPPORT. THE CUREPSP FORUM ALLOWS PEOPLE AFFECTED BY THE DISEASES TO SHARE INFORMATION AND SUPPORT. 5. HELD TWO FAMILY CONFERENCES A YEAR ATTRACTING MORE THAN 100 PATIENTS AND FAMILIES TO EACH. 6. PUT ON CAREGIVER CONFERENCES AND PROFESSIONAL EDUCATION MEETINGS. 7. PROVIDED GRANTS TO FAMILIES FOR PROFESSIONAL IN-HOME CARE. 8. RECRUITED PATIENTS FOR CLINICAL TRIALS AND MARKETS THE TRIALS. 9. PUBLISHED A LIBRARY OF PRINTED AND ONLINE INFORMATION AND PROVIDED TELEPHONE SUPPORT. |
| FORM 990, PAGE 2, PART III, LINE 4D | GOALS OF THE PATIENT ENGAGEMENT PROGRAM: ACCELERATING CLINICAL TRIALS TO DEVELOP TREATMENTS AND DISCOVER CURES FOR RARE DISEASES. |
| FORM 990, PAGE 6, PART VI, LINE 2 | WILLIAM MCFARLAND ILEEN MCFARLAND CHAIR DIRECTOR SPOUSAL |
| FORM 990, PAGE 6, PART VI, LINE 3 | ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO |
| FORM 990, PAGE 6, PART VI, LINE 11B | 990 IS PROVIDED TO THE FINANCE COMMITTEE FOR REVIEW AND COMMENTS BEFORE FILING |
| FORM 990, PAGE 6, PART VI, LINE 12C | EXECUTIVE DIRECTOR REVIEWS FORMS |
| FORM 990, PAGE 6, PART VI, LINE 15A | BOARD DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICAL LY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE S ALARY LEVELS. |
| FORM 990, PAGE 6, PART VI, LINE 15B | PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITH IN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS S ALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE W ITHIN A COMPETITIVE RANGE. |
| FORM 990, PAGE 6, PART VI, LINE 17 | LOUISIANA, MARYLAND, MAINE, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSISSIPPI, MISSOURI, NEVADA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, NORTH CAROLINA, NORTH DAKOTA, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, TEXAS, UTAH, VIRGINIA, WASHINGTON, WEST VIRGINIA, WISCONSIN |
| FORM 990, PAGE 6, PART VI, LINE 19 | UPON REQUEST |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PATIENT ENGAGEMENT PROGRAM LLC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 404 5TH AVENUE 3RD FLOOR | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 474679085 | EIN |
| Primary Activities | RESEARCH | PrimaryActivitiesTxt |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Total Income | $17,630 | TotalIncomeAmt |
| End Of Year Assets | $19,092 | EndOfYearAssetsAmt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE PSP | BusinessNameLine1Txt |
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