CUREPSP INC: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization
CUREPSP INC (EIN 52-1704978)
Tax period
2011-07-01 to 2012-06-30
Filed
2012-12-21
IRS object ID
201213569349300401
Schema version
2011v1.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2012-12-21T05:51:25-08:00Timestamp
Tax Period End Date2012-06-30TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1WOLFE AND FIEDLER PABusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line1634 Frederick RoadAddressLine1
CityBaltimoreCity
StateMDState
ZIP Code212284625ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2011-07-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN521704978EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1Foundation For PSP CBDBusinessNameLine1
Business Name Line2and Related Brain DiseasesBusinessNameLine2
FieldValueIRS element (for citing)
Name ControlFOUNNameControl
Phone4107857004Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line130 East Padonia RoadAddressLine1
CityTimoniumCity
StateMDState
ZIP Code21093ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameRICHARD ZYNEName
TitlePresident & CEOTitle
Date Signed2012-12-21DateSigned
Authorize Third PartytrueAuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameJohn R FiedlerName
Phone4107470789Phone
FieldValueIRS element (for citing)
Tax Year2011TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name Of Principal Officer PersonRICHARD ZYNENameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line130 East Padonia RoadAddressLine1
CityLuthervilleCity
StateMDState
ZIP Code21093ZIPCode
FieldValueIRS element (for citing)
Gross Receipts2421164GrossReceipts
Group Return For AffiliatesfalseGroupReturnForAffiliates
All Affiliates IncludedfalseAllAffiliatesIncluded
Organization501c3XOrganization501c3
Web SiteWWW.CUREPSP.ORGWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1990YearFormation
State Legal DomicileMDStateLegalDomicile
Activity Or Mission DescriptionINCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROFESSIONALS; AND PROVIDE SUPPORT, INFORMATION AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.ActivityOrMissionDescription
Nbr Voting Members Governing Body19NbrVotingMembersGoverningBody
Nbr Independent Voting Members19NbrIndependentVotingMembers
Total Nbr Employees12TotalNbrEmployees
Total Nbr Volunteers140TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Contributions Grants Prior Year1224161ContributionsGrantsPriorYear
Contributions Grants Current Year2265656ContributionsGrantsCurrentYear
Program Service Revenue CY0ProgramServiceRevenueCY
Investment Income Prior Year15469InvestmentIncomePriorYear
Investment Income Current Year11443InvestmentIncomeCurrentYear
Other Revenue Prior Year140410OtherRevenuePriorYear
Other Revenue Current Year132546OtherRevenueCurrentYear
Total Revenue Prior Year1380040TotalRevenuePriorYear
Total Revenue Current Year2409645TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year554296GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY623172GrantsAndSimilarAmntsCY
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year628446SalariesEtcPriorYear
Salaries Etc Current Year601528SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year200137TotalFundrsngExpCurrentYear
Other Expense Prior Year471407OtherExpensePriorYear
Other Expenses Current Year498639OtherExpensesCurrentYear
Total Expenses Prior Year1654149TotalExpensesPriorYear
Total Expenses Current Year1723339TotalExpensesCurrentYear
Revenues Less Expenses Prior Year-274109RevenuesLessExpensesPriorYear
Revenues Less Expenses CY686306RevenuesLessExpensesCY
Total Assets BOY2613728TotalAssetsBOY
Total Assets EOY2926706TotalAssetsEOY
Total Liabilities BOY1265206TotalLiabilitiesBOY
Total Liabilities EOY904358TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY1348522NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY2022348NetAssetsOrFundBalancesEOY
Mission DescriptionINCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROFESSIONALS; AND PROVIDE SUPPORT, INFORMATION AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES.MissionDescription
Significant New Program ServicesfalseSignificantNewProgramServices
Significant ChangefalseSignificantChange
Expense845683Expense
Grants557172Grants
DescriptionGOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD) AND CLOSELY RELATED BRAIN DISEASES BY FUNDING RESEARCH FOCUSING ON: A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, B) DEVELOPING EARLY STAGE DIAGNOSTIC TESTS, AND D) DEVELOPING TREATMENTS OR INTERVENTIONS TO AMELIORATE SYMPTOMS AND TO PREVENT, SLOW, HALT OR REVERSE DISEASE PROGRESSION.Description

Activity2 Activity2

FieldValueIRS element (for citing)
Expense397258Expense
DescriptionGoals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders.Description

Activity3 Activity3

FieldValueIRS element (for citing)
Expense132903Expense
DescriptionGoals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders.Description
FieldValueIRS element (for citing)
Total Program Service Expense1375844TotalProgramServiceExpense
Described In501 C3trueDescribedIn501C3
Schedule B RequiredtrueScheduleBRequired
Political ActivitiesfalsePoliticalActivities
Lobbying ActivitiesfalseLobbyingActivities
Subject To Proxy TaxfalseSubjectToProxyTax
Donor Advised FundsfalseDonorAdvisedFunds
Conservation EasementsfalseConservationEasements
Collections Of ArtfalseCollectionsOfArt
Credit CounselingfalseCreditCounseling
Term Or Permanent EndowmentstrueTermOrPermanentEndowments
Report Land Bldg EquiptrueReportLandBldgEquip
Report Invest Oth SecuritiesfalseReportInvestOthSecurities
Report Prog Rel InvestfalseReportProgRelInvest
Report Other AssetsfalseReportOtherAssets
Report Other LiabilitiesfalseReportOtherLiabilities
Report Fin48 FootnotefalseReportFin48Footnote
Independent Audit Financial StmttrueIndependentAuditFinancialStmt
Consolidated Audit Financial StmtfalseConsolidatedAuditFinancialStmt
SchoolfalseSchool
Foreign OfficefalseForeignOffice
Foreign ActivitiesfalseForeignActivities
More Than5000 K To OrganizationstrueMoreThan5000KToOrganizations
More Than5000 K To IndividualsfalseMoreThan5000KToIndividuals
Professional FundraisingfalseProfessionalFundraising
Fundraising ActivitiestrueFundraisingActivities
GamingfalseGaming
HospitalfalseHospital
Grants To OrganizationstrueGrantsToOrganizations
Grants To IndividualsfalseGrantsToIndividuals
Schedule J RequiredfalseScheduleJRequired
Tax Exempt BondsfalseTaxExemptBonds
Invest Tax Exempt BondsfalseInvestTaxExemptBonds
Escrow AccountfalseEscrowAccount
On Behalf Of IssuerfalseOnBehalfOfIssuer
Excess Benefit TransactionfalseExcessBenefitTransaction
Prior Excess Benefit TransactionfalsePriorExcessBenefitTransaction
Loan To Officer Or DQPfalseLoanToOfficerOrDQP
Grant To Related PersonfalseGrantToRelatedPerson
Bsnss Rltnshp With OrganizationfalseBsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family MemberfalseBsnssRltnshpThruFamilyMember
Officer Entity With Bsnss RltnshptrueOfficerEntityWithBsnssRltnshp
Deductible Non Cash ContributionsfalseDeductibleNonCashContributions
Deductible Contributions Of ArtfalseDeductibleContributionsOfArt
TerminatedfalseTerminated
Partial LiquidationfalsePartialLiquidation
Disregarded EntityfalseDisregardedEntity
Related EntityfalseRelatedEntity
Related Org Controlled EntityfalseRelatedOrgControlledEntity
Transaction Related EntityfalseTransactionRelatedEntity
Transfers To Exempt Non Chrtbl OrgfalseTransfersToExemptNonChrtblOrg
Activities Conducted PartnershipfalseActivitiesConductedPartnership
Schedule O RequiredtrueScheduleORequired
Number Forms Transmitted With10960NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup WitholdingfalseComplianceWithBackupWitholding
Number Of Employees12NumberOfEmployees
Employment Tax Returns FiledtrueEmploymentTaxReturnsFiled
Unrelated Business IncomefalseUnrelatedBusinessIncome
Form990-T FiledfalseForm990-TFiled
Foreign Financial AccountfalseForeignFinancialAccount
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTrans
Taxable Party NotificationfalseTaxablePartyNotification
Form8886 T FiledfalseForm8886TFiled
Non Deductible ContributionsfalseNonDeductibleContributions
Non Deductible DisclosurefalseNonDeductibleDisclosure
Quid Pro Quo ContributionsfalseQuidProQuoContributions
Quid Pro Quo DisclosurefalseQuidProQuoDisclosure
Form8282 Property Disposed OffalseForm8282PropertyDisposedOf
Number Of8282 Filed0NumberOf8282Filed
Funds To Pay PremiumsfalseFundsToPayPremiums
Premiums PaidfalsePremiumsPaid
Form8899 FiledfalseForm8899Filed
Form1098 C FiledfalseForm1098CFiled
Excess Business HoldingsfalseExcessBusinessHoldings
Taxable DistributionsfalseTaxableDistributions
Distribution To DonorfalseDistributionToDonor
Filed Lieu1041falseFiledLieu1041
Licensed More Than One StatefalseLicensedMoreThanOneState
Indoor Tanning ServicesfalseIndoorTanningServices
Form720 FiledfalseForm720Filed
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members19NbrVotingGoverningBodyMembers
Number Independent Voting Members19NumberIndependentVotingMembers
Family Or Business RelationshipfalseFamilyOrBusinessRelationship
Delegation Of Management DutiestrueDelegationOfManagementDuties
Changes To Organizing DocsfalseChangesToOrganizingDocs
Material Diversion Or MisusefalseMaterialDiversionOrMisuse
Members Or StockholdersfalseMembersOrStockholders
Election Of Board MembersfalseElectionOfBoardMembers
Decisions Subject To ApprovalfalseDecisionsSubjectToApproval
Minutes Of Governing BodytrueMinutesOfGoverningBody
Minutes Of CommitteestrueMinutesOfCommittees
Officer Mailing AddressfalseOfficerMailingAddress
Local ChaptersfalseLocalChapters
Policies Reference ChaptersfalsePoliciesReferenceChapters
Form990 Provided To Governing BodytrueForm990ProvidedToGoverningBody
Conflict Of Interest PolicytrueConflictOfInterestPolicy
Annual Disclosure Covered PersonstrueAnnualDisclosureCoveredPersons
Regular Monitoring EnforcementtrueRegularMonitoringEnforcement
Whistleblower PolicytrueWhistleblowerPolicy
Document Retention PolicytrueDocumentRetentionPolicy
Compensation Process CEOtrueCompensationProcessCEO
Compensation Process OthertrueCompensationProcessOther
Investment In Joint VenturefalseInvestmentInJointVenture
Written Policy Or ProcedurefalseWrittenPolicyOrProcedure
States Where Copy Of Return Is FiledWVStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledWIStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledWAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledVAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledUTStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledTNStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledRIStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledPAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledORStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledOKStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledOHStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNYStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNMStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNJStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNHStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNDStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNCStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMSStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMOStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMNStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMEStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledMDStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledKYStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledILStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledFLStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledDCStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledCTStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledCOStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledCAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledAZStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledAKStatesWhereCopyOfReturnIsFiled
Own WebsiteXOwnWebsite
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

FieldValueIRS element (for citing)
Name PersonRICHARD ZYNENamePerson
Telephone Number4107857004TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line130 East Padonia RoadAddressLine1
CityTimoniumCity
StateMDState
ZIP Code21093ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (20 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationOfficerOfficer
JUSTIN SHEA
Director2.00X000
JIM MCCLELLAN
Director2.00X000
ROBERT LIVERNOIS
Director2.00X000
TED ZERWIN
Director2.00X000
PATRICIA RICHARDSON
Director2.00X000
JOHN PORTER
Director2.00X000
DAVID PEEBLER
Director2.00X000
SUSAN MCLAUGHLIN
Director2.00X000
RICHARD ALLEN JANNEY
Director2.00X000
LAURIE HUFFMAN
Director2.00X000
MURRAY GOLDSTEIN
Director2.00X000
LAWRENCE GOLBE
Director4.00X000
HEATHER CIANCI
Director2.00X000
YVETTE BORDELON
Director2.00X000
EVERETT COOK
Director2.00X000
JOHN BURHOE
Secretary4.00000X
PAUL H FREEMAN
Treasurer4.00000X
DAN JOHNSON
Vice Chair4.00000X
JANET EDMUNSON
Chairman4.00000X
RICHARD ZYNE
President & CEO40.0010841000X
FieldValueIRS element (for citing)
Total Reportable Comp From Org108410TotalReportableCompFromOrg
Number Individuals GT100 K1NumberIndividualsGT100K
Formers ListedfalseFormersListed
Total Comp GT150 KfalseTotalCompGT150K
Compensation From Other SourcesfalseCompensationFromOtherSources
Number Of Contractors GT100 K0NumberOfContractorsGT100K
Fundraising Events27298FundraisingEvents
All Other Contributions2238358AllOtherContributions
Total Contributions2265656TotalContributions
Total Program Service Revenue0TotalProgramServiceRevenue

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column11443TotalRevenueColumn
Exclusion$11,443ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

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Total Revenue Column0TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Gain Or Loss Investments NetGainOrLossInvestments

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn
FieldValueIRS element (for citing)
Gross Income Fundraising Events142536GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events27298CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses11519FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

FieldValueIRS element (for citing)
Total Revenue Column131017TotalRevenueColumn
Exclusion$131,017ExclusionAmount

Net Income From Gaming NetIncomeFromGaming

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

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Total Revenue Column0TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

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DescriptionGRANT ADJUSTMENTDescription
Total Revenue Column1529TotalRevenueColumn
Related Or Exempt Function Income1529RelatedOrExemptFunctionIncome
FieldValueIRS element (for citing)
Total Other Revenue1529TotalOtherRevenue

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column2409645TotalRevenueColumn
Related Or Exempt Function Income1529RelatedOrExemptFunctionIncome
Exclusion$142,460ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

FieldValueIRS element (for citing)
Total561172Total
Program Services561172ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

FieldValueIRS element (for citing)
Total0Total

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total62000Total
Program Services62000ProgramServices

Benefits To Members BenefitsToMembers

FieldValueIRS element (for citing)
Total0Total

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total108410Total
Program Services76790ProgramServices
Management And General8237ManagementAndGeneral
Fundraising23383Fundraising

Comp Disqual Persons CompDisqualPersons

FieldValueIRS element (for citing)
Total0Total

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total404292Total
Program Services279467ProgramServices
Management And General53295ManagementAndGeneral
Fundraising71530Fundraising

Pension Plan Contributions PensionPlanContributions

FieldValueIRS element (for citing)
Total0Total

Other Employee Benefits OtherEmployeeBenefits

FieldValueIRS element (for citing)
Total88826Total
Program Services61423ProgramServices
Management And General27403ManagementAndGeneral

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total0Total

Fees For Services Management FeesForServicesManagement

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Total0Total

Fees For Services Legal FeesForServicesLegal

FieldValueIRS element (for citing)
Total0Total

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total26305Total
Management And General26305ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

FieldValueIRS element (for citing)
Total0Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total0Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

FieldValueIRS element (for citing)
Total0Total

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total0Total

Advertising Advertising

FieldValueIRS element (for citing)
Total0Total

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total5048Total
Program Services4051ProgramServices
Management And General231ManagementAndGeneral
Fundraising766Fundraising

Information Technology InformationTechnology

FieldValueIRS element (for citing)
Total22846Total
Program Services16441ProgramServices
Management And General574ManagementAndGeneral
Fundraising5831Fundraising

Royalties Royalties

FieldValueIRS element (for citing)
Total0Total

Occupancy Occupancy

FieldValueIRS element (for citing)
Total65627Total
Program Services52502ProgramServices
Management And General3281ManagementAndGeneral
Fundraising9844Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total0Total

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

FieldValueIRS element (for citing)
Total0Total

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total107853Total
Program Services107815ProgramServices
Management And General6ManagementAndGeneral
Fundraising32Fundraising

Interest Interest

FieldValueIRS element (for citing)
Total0Total

Payments To Affiliates PaymentsToAffiliates

FieldValueIRS element (for citing)
Total0Total

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total16273Total
Program Services10986ProgramServices
Management And General2101ManagementAndGeneral
Fundraising3186Fundraising

Insurance Insurance

FieldValueIRS element (for citing)
Total7434Total
Management And General7434ManagementAndGeneral

Other Expenses OtherExpenses (5 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneralFundraisingFundraising
Printing and Publications410964072385288
Postage and Shipping878872472354062624
MEETINGS/BOARD EXPENSES1583615836
BRAIN BANK TISSUE HARVESTING1678916789
BANK AND PAYROLL FEES21271971537311183

All Other Expenses AllOtherExpenses

FieldValueIRS element (for citing)
Total64374Total
Program Services51247ProgramServices
Management And General1657ManagementAndGeneral
Fundraising11470Fundraising

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total1723339Total
Program Services1375844ProgramServices
Management And General147358ManagementAndGeneral
Fundraising200137Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY655848BOY
EOY867614EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY1475583BOY
EOY1624487EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

FieldValueIRS element (for citing)
BOY66900BOY
EOY42550EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
EOY17542EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

FieldValueIRS element (for citing)
EOY0EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

FieldValueIRS element (for citing)
EOY0EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

FieldValueIRS element (for citing)
EOY0EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

FieldValueIRS element (for citing)
EOY0EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
BOY27687BOY
EOY22931EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis223253LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec196963LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
BOY42563BOY
EOY26290EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY332080BOY
EOY321309EOY

Investments Other Securities InvestmentsOtherSecurities

FieldValueIRS element (for citing)
EOY0EOY

Investments Program Related InvestmentsProgramRelated

FieldValueIRS element (for citing)
EOY0EOY

Intangible Assets IntangibleAssets

FieldValueIRS element (for citing)
EOY0EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY13067BOY
EOY3983EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY2613728BOY
EOY2926706EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY80662BOY
EOY101847EOY

Grants Payable GrantsPayable

FieldValueIRS element (for citing)
BOY1184544BOY
EOY802511EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY1265206BOY
EOY904358EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY649919BOY
EOY862129EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY357439BOY
EOY834850EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY341164BOY
EOY325369EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY1348522BOY
EOY2022348EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY2613728BOY
EOY2926706EOY
FieldValueIRS element (for citing)
Info In Schedule O Part XIXInfoInScheduleOPartXI
Reconcilation Revenue Expenses686306ReconcilationRevenueExpenses
Reconcilation Other Changes-12480ReconcilationOtherChanges
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or ReviewtrueAccountantCompileOrReview
FS AuditedtrueFSAudited
Audit CommitteetrueAuditCommittee
Financial Statement SeparateXFinancialStatementSeparate
Federal Grant Audit RequiredfalseFederalGrantAuditRequired
Federal Grant Audit PerformedfalseFederalGrantAuditPerformed

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2XPubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1716229CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years4503914CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years1407590CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year1213491CurrentTaxYearMinus1Year
Current Tax Year2265656CurrentTaxYear
Total11106880Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years90209CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years65112CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years16732CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year11830CurrentTaxYearMinus1Year
Current Tax Year142536CurrentTaxYear
Total326419Total

Gross Receipts From Non UBI GrossReceiptsFromNonUBI

FieldValueIRS element (for citing)
Total0Total

Tax Rev Levied For Org Benefit509 TaxRevLeviedForOrgBenefit509

FieldValueIRS element (for citing)
Total0Total

Value Of Svcs Fclts Furnishd By Govt ValueOfSvcsFcltsFurnishdByGovt

FieldValueIRS element (for citing)
Total0Total

Total509 Total509

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1806438CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years4569026CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years1424322CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year1225321CurrentTaxYearMinus1Year
Current Tax Year2408192CurrentTaxYear
Total11433299Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years3150000CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years16750CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year30422CurrentTaxYearMinus1Year
Current Tax Year30500CurrentTaxYear
Total3227672Total

Amts From Subst Contributors AmtsFromSubstContributors

FieldValueIRS element (for citing)
Total0Total

Support From DQ Ps Etc SupportFromDQPsEtc

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years3150000CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years16750CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year30422CurrentTaxYearMinus1Year
Current Tax Year30500CurrentTaxYear
Total3227672Total
FieldValueIRS element (for citing)
Public Support Total5098205627PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years66379CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years57673CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years27466CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year15453CurrentTaxYearMinus1Year
Current Tax Year11443CurrentTaxYear
Total178414Total

Post1975 UBTI Post1975UBTI

FieldValueIRS element (for citing)
Total0Total

Investment Income And UBTI InvestmentIncomeAndUBTI

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years66379CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years57673CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years27466CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year15453CurrentTaxYearMinus1Year
Current Tax Year11443CurrentTaxYear
Total178414Total

Net Income From Other UBI NetIncomeFromOtherUBI

FieldValueIRS element (for citing)
Total0Total

Other Income509 OtherIncome509

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years4973CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year159071CurrentTaxYearMinus1Year
Current Tax Year1529CurrentTaxYear
Total165573Total

Total Support Total TotalSupportTotal

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1872817CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years4626699CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years1456761CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year1399845CurrentTaxYearMinus1Year
Current Tax Year2421164CurrentTaxYear
Total11777286Total
FieldValueIRS element (for citing)
Public Support Percentage5090.69670PublicSupportPercentage509
Prior Year Support Percentage0.68650PriorYearSupportPercentage
Investment Income Percentage0.01510InvestmentIncomePercentage
Prior Yr Invest Income Percentage0.02210PriorYrInvestIncomePercentage
Thirty Three Percnt Tests CY509XThirtyThreePercntTestsCY509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule D IRS990ScheduleD

Current Year CurrentYear

FieldValueIRS element (for citing)
Beginning Of Year Balance341164BeginningOfYearBalance
Investment Earnings Or Losses-12480InvestmentEarningsOrLosses
Administrative Expenses3315AdministrativeExpenses
End Of Year Balance325369EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

FieldValueIRS element (for citing)
Beginning Of Year Balance285520BeginningOfYearBalance
Investment Earnings Or Losses55644InvestmentEarningsOrLosses
End Of Year Balance341164EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

FieldValueIRS element (for citing)
Beginning Of Year Balance262817BeginningOfYearBalance
Investment Earnings Or Losses29241InvestmentEarningsOrLosses
End Of Year Balance292058EndOfYearBalance
FieldValueIRS element (for citing)
Board Designated EOY Balance0.17000BoardDesignatedEOYBalance
Permanent Endowment EOY Balance0.83000PermanentEndowmentEOYBalance
Endowments Held By Unrelated OrgsfalseEndowmentsHeldByUnrelatedOrgs
Endowments Held By Related OrgsfalseEndowmentsHeldByRelatedOrgs
Are Related Orgs Listed Schedule RfalseAreRelatedOrgsListedScheduleR

Equipment Equipment

FieldValueIRS element (for citing)
Other Cost Or Other Basis223253OtherCostOrOtherBasis
Depreciation196963Depreciation
Book Value26290BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings26290TotalOfBookValueLandBuildings
Total Revenue2409645TotalRevenue
Total Expenses1723339TotalExpenses
Excess Or Deficit For Year686306ExcessOrDeficitForYear
Net Unrealized GL On Investments-12480NetUnrealizedGLOnInvestments
Total Adjustments-12480TotalAdjustments
Excess Or Deficit Per FS673826ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt2397165TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments-12480NetUnrealizedGainsInvestments
Revenue Not Rptd F990-12480RevenueNotRptdF990
Revenue Subtotal2409645RevenueSubtotal
Total Revenue Per Form9902409645TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt1723339TotExpensesEtcAuditedFinclStmt
Expenses Subtotal1723339ExpensesSubtotal
Total Expenses Per Form9901723339TotalExpensesPerForm990

Form990 Schedule D Part XIV Form990ScheduleDPartXIV

FieldValueIRS element (for citing)
IdentifierPart V, Line 4Identifier
Return ReferencePart V, Line 4: Intended uses of the endowment fund.ReturnReference
ExplanationINCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTSExplanation

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedtrueGrantRecordsMaintained

Grants To Orgs Outside US GrantsToOrgsOutsideUS

FieldValueIRS element (for citing)
RegionITALYRegion
Purpose Of GrantGENETICSPurposeOfGrant
Amount Of Cash Grant62000AmountOfCashGrant
Manner Of Cash DisbursementCHECKMannerOfCashDisbursement
FieldValueIRS element (for citing)
Total Number Of Other Orgs1TotalNumberOfOtherOrgs
Transfer To Foreign CorpfalseTransferToForeignCorp
Interest In Foreign TrustfalseInterestInForeignTrust
Own Foreign CorpfalseOwnForeignCorp
Passive Foreign Invest CofalsePassiveForeignInvestCo
Foreign PartnershipfalseForeignPartnership
Boycott CountriesfalseBoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV (2 entries)

IdentifierIdentifierExplanationExplanation
Grantmaker's Description of How Grants are Used in Foreign CountryINVESTIGATORS ARE REQUIRED TO PROVIDE TWO PROGRESS REPORTS DURING THE TERM OF THE GRANT. THE PROGRESS REPORT IS SENT FOR REVIEW AND APPROVAL TO THE SCIENTIFIC ADVISORY BOARD AND PAYMENT MAY BE RELEASED ONLY AFTER APPROVAL HAS BEEN GIVEN. IF PROGRESS REPORTS ARE NOT DETERMINED TO BE SATISFACTORY THEN PAYMENT WILL BE HELD UNTIL THE INVESTIGATOR CAN PROVIDE A SATISFACTORY REPORT.
Additional Supplemental InformationFINANCIAL STATEMENT WAS PREPARED ON ACCRUAL METHOD

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Special Fundraising EventsXSpecialFundraisingEvents
Agreement Ref FundraisingfalseAgreementRefFundraising

Events Information EventsInformation

FieldValueIRS element (for citing)
Name Of Event1MARCO ISLE WALKNameOfEvent1
Gross Receipts Event120608GrossReceiptsEvent1
Charitable Contributions Event115608CharitableContributionsEvent1
Gross Revenue Event15000GrossRevenueEvent1
Other Direct Expenses Event13265OtherDirectExpensesEvent1
Name Of Event2PITTSBURGH WINENameOfEvent2
Gross Receipts Event211900GrossReceiptsEvent2
Charitable Contributions Event26000CharitableContributionsEvent2
Gross Revenue Event25900GrossRevenueEvent2
Food And Beverage Event21750FoodAndBeverageEvent2
Other Direct Expenses Event21706OtherDirectExpensesEvent2
Total Number Of Other Events6TotalNumberOfOtherEvents
Gross Receipts Other Events42034GrossReceiptsOtherEvents
Charitable Contrib Other Events5690CharitableContribOtherEvents
Gross Revenue Other Events36344GrossRevenueOtherEvents
Rent Facility Costs Other Events3171RentFacilityCostsOtherEvents
Other Direct Expenses Other Events12OtherDirectExpensesOtherEvents
Gross Receipts Total74542GrossReceiptsTotal
Charitable Contributions Total27298CharitableContributionsTotal
Gross Revenue Total Events47244GrossRevenueTotalEvents
Rent Facility Costs Total Events3171RentFacilityCostsTotalEvents
Food And Beverage Total Events1750FoodAndBeverageTotalEvents
Other Direct Expenses Total Events4983OtherDirectExpensesTotalEvents
Direct Expense Summary Events9904DirectExpenseSummaryEvents
Net Income Summary37340NetIncomeSummary

Schedule I IRS990ScheduleI

Recipient Table RecipientTable (6 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeEIN Of RecipientEINOfRecipientAmount Of Cash GrantAmountOfCashGrantAmount Of Non Cash AssistanceAmountOfNonCashAssistancePurpose Of GrantPurposeOfGrantIRC SectionIRCSection
UNIVERSITY OF PA SCHOOL OF ME
3451 WALNUT STREET STE P221-APHILADELPHIAPA19104231352685201720GENE ANALYSIS FOLLOW UP AND REPLICA
UNIVERSITY OF PA
3620 HAMILTON WALKPHILADELPHIAPA191042313526852500000GENETICS STUDY
UNIV OF SOUTH FLORIDA
3650 SPECTRUM BLVDTAMPAFL33612593102112750000MECHANISMS OF TAU AND ER STRESS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028750000GENE EXPRESSION AND NEUROPATHOLOGY
MAYO CLINIC JACKSONVIL
4500 SAN PABLO RDJACKSONVILLEFL32224593337028750000IDENTIFY FUNC GENETIC RISK FACTORS
BIRDSALL MEDICAL CLINIC
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028660000BRAIN BANK501 (c)(3)
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants6TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations0TotalNbrOfOtherOrganizations

Schedule L IRS990ScheduleL

Form990 Schedule L Part IV Form990ScheduleLPartIV

Name Of Interested Person NameOfInterestedPerson

Name Business NameBusiness

FieldValueIRS element (for citing)
Business Name Line1WOLFE & FIEDLER PABusinessNameLine1
FieldValueIRS element (for citing)
RelationshipCPARelationship
Amount Of Transaction31000AmountOfTransaction
Description Of TransactionACCOUNTING AND CONSULTINGDescriptionOfTransaction
Sharing Of RevenuesfalseSharingOfRevenues

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (4 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Form 990, Part VI, Line 19Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableUPON REQUEST
Form 990, Part VI, Line 15bForm 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key EmployeesPRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITHIN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS SALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE WITHIN A COMPETITIVE RANGE.
Form 990, Part VI, Line 11Form 990, Part VI, Line 11: Form 990 Review Process990 IS PROVIDED TO BOARD FOR REVIEW AND COMMENTS BEFORE FILING
Form 990, Part VI, Line 3Form 990, Part VI, Line 3: Description of Delegated Duties to Management CompanyORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO

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