2012-12-21T05:51:25-08:00 2012-06-30 WOLFE AND FIEDLER PA 634 Frederick Road Baltimore MD 212284625 990 2011-07-01 521704978 Foundation For PSP CBD and Related Brain Diseases FOUN 4107857004 30 East Padonia Road Timonium MD 21093 RICHARD ZYNE 2012-12-21 true John R Fiedler 4107470789 2011 2016-02-24 21:20:13Z RICHARD ZYNE 30 East Padonia Road Lutherville MD 21093 2421164 false false X WWW.CUREPSP.ORG X 1990 MD INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROFESSIONALS; AND PROVIDE SUPPORT, INFORMATION AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. 19 19 12 140 0 1224161 2265656 0 15469 11443 140410 132546 1380040 2409645 554296 623172 0 628446 601528 0 200137 471407 498639 1654149 1723339 -274109 686306 2613728 2926706 1265206 904358 1348522 2022348 INCREASE AWARENESS OF PROGRESSIVE SUPRANUCLEAR PALSY, CORTICOBASAL DEGENERATION, AND OTHER ATYPICAL PARKINSONIAN DISORDERS; FUND RESEARCH TOWARD TREATMENT, CURE AND PREVENTION; EDUCATE HEALTHCARE PROFESSIONALS; AND PROVIDE SUPPORT, INFORMATION AND HOPE FOR AFFECTED PERSONS AND THEIR FAMILIES. false false 845683 557172 GOALS OF THE RESEARCH PROGRAM: CUREPSP ADVANCES THE UNDERSTANDING OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP), CORTICOBASAL DEGENERATION (CBD) AND CLOSELY RELATED BRAIN DISEASES BY FUNDING RESEARCH FOCUSING ON: A) IDENTIFYING THE CAUSES AND RISK FACTORS FOR THESE DISORDERS, B) DEVELOPING EARLY STAGE DIAGNOSTIC TESTS, AND D) DEVELOPING TREATMENTS OR INTERVENTIONS TO AMELIORATE SYMPTOMS AND TO PREVENT, SLOW, HALT OR REVERSE DISEASE PROGRESSION. 397258 Goals of Programs and Education: 1. CurePSP serves the needs of patients and caregivers managing with PSP, CBD, and other atypical Parkinsonian disorders in order to maintain wellbeing and quality of life; serves as the core and link to a network of support, ensuring accessibility of information, education and counsel for each patient and caregiver confronted by PSP and CBD; provides support services through patient/caregiver educational resources, support networks, volunteer development, professional collaborations, on-line resources, webinars, social media, national conferences, and international leadership. 2. CurePSP provides scientific and clinical resources regarding the specific nature of the PSP, CBD, and other atypical Parkinsonian disorders-including their diagnoses, symptoms, and treatments-to neurologists, physical therapists, occupational therapists, speech-language pathologists and nurses. 3. CurePSP serves as a unified voice and advocate on various public policy issues for individuals affected with PSP, CBD and other atypical Parkinsonian disorders. 132903 Goals of the Communications and Public Awareness Program: CurePSP expands the general public's awareness of PSP, CBD, and related brain diseases through use of various print and web-based media, providing education and general information. CurePSP educates the public and governmental leaders about research and an improved quality of life for people living with PSP, CBD and other atypical Parkinsonian disorders. 1375844 true true false false false false false false false true true false false false false false true false false false false true false false true false false true false false false false false false false false false false false false true false false false false false false false false false false true 0 0 false 12 true false false false false false false false false false false false 0 false false false false false false false false false false false X 19 19 false true false false false false false true true false false false true true true true true true true true false false WV WI WA VA UT TX TN SC RI PA OR OK OH NY NM NJ NH ND NC MS MO MN ME MD KY KS IL HI GA FL DC CT CO CA AZ AL AL AK X X RICHARD ZYNE 4107857004 30 East Padonia Road Timonium MD 21093 JUSTIN SHEA 2.00 X 0 0 0 JIM MCCLELLAN 2.00 X 0 0 0 ROBERT LIVERNOIS 2.00 X 0 0 0 TED ZERWIN 2.00 X 0 0 0 PATRICIA RICHARDSON 2.00 X 0 0 0 JOHN PORTER 2.00 X 0 0 0 DAVID PEEBLER 2.00 X 0 0 0 SUSAN MCLAUGHLIN 2.00 X 0 0 0 RICHARD ALLEN JANNEY 2.00 X 0 0 0 LAURIE HUFFMAN 2.00 X 0 0 0 MURRAY GOLDSTEIN 2.00 X 0 0 0 LAWRENCE GOLBE 4.00 X 0 0 0 HEATHER CIANCI 2.00 X 0 0 0 YVETTE BORDELON 2.00 X 0 0 0 EVERETT COOK 2.00 X 0 0 0 JOHN BURHOE 4.00 X 0 0 0 PAUL H FREEMAN 4.00 X 0 0 0 DAN JOHNSON 4.00 X 0 0 0 JANET EDMUNSON 4.00 X 0 0 0 RICHARD ZYNE 40.00 X 108410 0 0 108410 1 false false false 0 27298 2238358 2265656 0 11443 11443 0 0 0 0 142536 27298 11519 131017 131017 0 0 GRANT ADJUSTMENT 1529 1529 1529 2409645 1529 142460 561172 561172 0 62000 62000 0 108410 76790 8237 23383 0 404292 279467 53295 71530 0 88826 61423 27403 0 0 0 26305 26305 0 0 0 0 0 5048 4051 231 766 22846 16441 574 5831 0 65627 52502 3281 9844 0 0 107853 107815 6 32 0 0 16273 10986 2101 3186 7434 7434 Printing and Publications 41096 40723 85 288 Postage and Shipping 87887 24723 540 62624 MEETINGS/BOARD EXPENSES 15836 15836 BRAIN BANK TISSUE HARVESTING 16789 16789 BANK AND PAYROLL FEES 21271 9715 373 11183 64374 51247 1657 11470 1723339 1375844 147358 200137 655848 867614 1475583 1624487 66900 42550 17542 0 0 0 0 27687 22931 223253 196963 42563 26290 332080 321309 0 0 0 13067 3983 2613728 2926706 80662 101847 1184544 802511 1265206 904358 X 649919 862129 357439 834850 341164 325369 1348522 2022348 2613728 2926706 X 686306 -12480 X true true true X false false X 1716229 4503914 1407590 1213491 2265656 11106880 90209 65112 16732 11830 142536 326419 0 0 0 1806438 4569026 1424322 1225321 2408192 11433299 3150000 16750 30422 30500 3227672 0 3150000 16750 30422 30500 3227672 8205627 66379 57673 27466 15453 11443 178414 0 66379 57673 27466 15453 11443 178414 0 4973 159071 1529 165573 1872817 4626699 1456761 1399845 2421164 11777286 0.69670 0.68650 0.01510 0.02210 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 341164 -12480 3315 325369 285520 55644 341164 262817 29241 292058 0.17000 0.83000 false false false 223253 196963 26290 26290 2409645 1723339 686306 -12480 -12480 673826 2397165 -12480 -12480 2409645 2409645 1723339 1723339 1723339 Part V, Line 4 Part V, Line 4: Intended uses of the endowment fund. INCOME IS USED TO SUPPORT PSP RESEARCH BY STUDENTS true ITALY GENETICS 62000 CHECK 1 false false false false false false Grantmaker's Description of How Grants are Used in Foreign Country INVESTIGATORS ARE REQUIRED TO PROVIDE TWO PROGRESS REPORTS DURING THE TERM OF THE GRANT. THE PROGRESS REPORT IS SENT FOR REVIEW AND APPROVAL TO THE SCIENTIFIC ADVISORY BOARD AND PAYMENT MAY BE RELEASED ONLY AFTER APPROVAL HAS BEEN GIVEN. IF PROGRESS REPORTS ARE NOT DETERMINED TO BE SATISFACTORY THEN PAYMENT WILL BE HELD UNTIL THE INVESTIGATOR CAN PROVIDE A SATISFACTORY REPORT. Additional Supplemental Information FINANCIAL STATEMENT WAS PREPARED ON ACCRUAL METHOD X false MARCO ISLE WALK 20608 15608 5000 3265 PITTSBURGH WINE 11900 6000 5900 1750 1706 6 42034 5690 36344 3171 12 74542 27298 47244 3171 1750 4983 9904 37340 UNIVERSITY OF PA SCHOOL OF ME 3451 WALNUT STREET STE P221-A PHILADELPHIA PA 19104 231352685 20172 0 GENE ANALYSIS FOLLOW UP AND REPLICA UNIVERSITY OF PA 3620 HAMILTON WALK PHILADELPHIA PA 19104 231352685 250000 0 GENETICS STUDY UNIV OF SOUTH FLORIDA 3650 SPECTRUM BLVD TAMPA FL 33612 593102112 75000 0 MECHANISMS OF TAU AND ER STRESS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 75000 0 GENE EXPRESSION AND NEUROPATHOLOGY MAYO CLINIC JACKSONVIL 4500 SAN PABLO RD JACKSONVILLE FL 32224 593337028 75000 0 IDENTIFY FUNC GENETIC RISK FACTORS BIRDSALL MEDICAL CLINIC 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501 (c)(3) 66000 0 BRAIN BANK 6 0 WOLFE & FIEDLER PA CPA 31000 ACCOUNTING AND CONSULTING false Form 990, Part VI, Line 19 Form 990, Part VI, Line 19: Other Organization Documents Publicly Available UPON REQUEST Form 990, Part VI, Line 15b Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees PRESIDENT-CEO PERFORMS ANNUAL EMPLOYEE REVIEWS AND APPROVES INCREASES WITHIN THE SCOPE OF AN ANNUAL BUDGET. THE ORGANIZATION PERIODICALLY OBTAINS SALARY REVIEWS FROM AN OUTSIDE CONSULTANT TO VERIFY THAT THE SALARIES ARE WITHIN A COMPETITIVE RANGE. Form 990, Part VI, Line 11 Form 990, Part VI, Line 11: Form 990 Review Process 990 IS PROVIDED TO BOARD FOR REVIEW AND COMMENTS BEFORE FILING Form 990, Part VI, Line 3 Form 990, Part VI, Line 3: Description of Delegated Duties to Management Company ORGANIZATION CONTRACTED CPA TO SERVE AS OUTSOURCE CFO