CYSTIC FIBROSIS RESEARCH FUND
Cite this
Plain text CYSTIC FIBROSIS RESEARCH FUND. furp.org, nonprofit organization profile, tax years 2015–2025. https://furp.org/org/cystic-fibrosis-research-fund-453768161. Retrieved 2026-11-01.
APA furp.org. (n.d.). CYSTIC FIBROSIS RESEARCH FUND [Nonprofit organization profile; tax years 2015–2025]. Retrieved November 1, 2026, from https://furp.org/org/cystic-fibrosis-research-fund-453768161
MLA “CYSTIC FIBROSIS RESEARCH FUND.” furp.org, tax years 2015–2025, https://furp.org/org/cystic-fibrosis-research-fund-453768161. Accessed 1 Nov. 2026.
Retrieved 2026-11-01; covers tax years 2015–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $3.0M · expenses $2.8M · assets $5.6M
- Also known as
- Emily's Entourage
- EIN
- 45-3768161
- Address
- 100 SAINT GEORGES RD UNIT G1, ARDMORE, PA 19003-2531
- Website
- www.emilysentourage.org
- NTEE code
- G20
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- July 2012 (when the IRS recognized its exemption)
- IRS status
- Exempt: reinstated May 15, 2010 after an automatic revocation on May 15, 2010 IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
The organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
None of the 23 people listed on these returns reported compensation from the organization. They are listed below.
Officers and directors, no compensation reported
23 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Greg Reh | Director | 2015-2025 | 0 | $0 reported | 1 |
| Jessica Rutstein Lazarus | Director | 2015-2025 | 0 | $0 reported | 1 |
| Beth Shapiro Lavin | Director | 2015-2025 | 2 | $0 reported | 1 |
| Julie Wertheimer | Director | 2015-2025 | 0 | $0 reported | 1 |
| Coby Kramer Golinkoff | Director | 2021-2025 | 5 | $0 reported | 1 |
| Danielle Selber | Director | 2018-2025 | 0 | $0 reported | 1 |
| Doug Young | Director | 2015-2025 | 0 | $0 reported | 1 |
| Nickie Boston | Director | 2015-2025 | 1 | $0 reported | 1 |
| Emily Kramer Golinkoff | Director | 2023-2025 | 10 | $0 reported | 1 |
| Nick Dinges | Director | 2018-2025 | 1 | $0 reported | 1 |
| Joan Denenberg | Director | 2015-2025 | 2 | $0 reported | 1 |
| Michael Golinkoff | President | 2015-2025 | 10 | $0 reported | 1 |
| Elizabeth Kramer | Secretary | 2015-2025 | 20 | $0 reported | 1 |
| Nancy Astor Fox | Director | 2015-2025 | 0 | $0 reported | 1 |
| Emily K Kramer-Golinkoff (former) | DIRECTOR | 2015-2022 | 10 | $0 reported | 1 |
| Ted Bernstein (former) | DIRECTOR | 2015-2020 | 0 | $0 reported | 1 |
| Jessica Kurtz Erlbaum Retd 720 (former) | DIRECTOR | 2020 | 0 | $0 reported | 1 |
| Juliet Spitzer Retd 720 (former) | DIRECTOR | 2020 | 0 | $0 reported | 1 |
| Jacob Kramer-Golinkoff (former) | DIRECTOR | 2019-2020 | 4 | $0 reported | 1 |
| Jessica Kurtz Erlbaum (former) | DIRECTOR | 2015-2019 | 0 | $0 reported | 1 |
| Juliet Spitzer (former) | DIRECTOR | 2015-2019 | 0 | $0 reported | 1 |
| Rachael Packer (former) | DIRECTOR | 2015-2018 | 1 | $0 reported | 1 |
| Heather Kahn Braver (former) | DIRECTOR | 2015-2017 | 0 | $0 reported | 1 |
People by year
2025 · 14 people listed · none paid · 11 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Greg Reh | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Jessica Rutstein Lazarus | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Beth Shapiro Lavin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Julie Wertheimer | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Coby Kramer Golinkoff | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Danielle Selber | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Doug Young | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Nickie Boston | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Emily Kramer Golinkoff | Director | 10 | $0 | $0 | $0 | $0 | 1 |
| Nick Dinges | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Joan Denenberg | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Michael Golinkoff | President | 10 | $0 | $0 | $0 | $0 | 1 |
| Elizabeth Kramer | Secretary | 20 | $0 | $0 | $0 | $0 | 1 |
| Nancy Astor Fox | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2024 · 14 people listed · none paid · 9 employees · 80 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Greg Reh | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Jessica Rutstein Lazarus | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Beth Shapiro Lavin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Julie Wertheimer | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Coby Kramer Golinkoff | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Danielle Selber | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Doug Young | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Nickie Boston | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Emily Kramer Golinkoff | Director | 10 | $0 | $0 | $0 | $0 | 1 |
| Nick Dinges | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Joan Denenberg | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Michael Golinkoff | President | 10 | $0 | $0 | $0 | $0 | 1 |
| Elizabeth Kramer | Secretary | 20 | $0 | $0 | $0 | $0 | 1 |
| Nancy Astor Fox | Director | 0 | $0 | $0 | $0 | $0 | 1 |
2023 · 14 people listed · none paid · 6 employees · 100 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Greg Reh | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Jessica Rutstein Lazarus | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Beth Shapiro Lavin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Julie Wertheimer | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Coby Kramer Golinkoff | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Danielle Selber | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Doug Young | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Nickie Boston | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Emily Kramer Golinkoff | Director | 10 | $0 | $0 | $0 | $0 | 1 |
| Nick Dinges | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Nancy Astor Fox | Director | 0 | $0 | $0 | $0 | $0 | 1 |
| Joan Denenberg | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Michael Golinkoff | President | 10 | $0 | $0 | $0 | $0 | 1 |
| Elizabeth Kramer | Secretary | 20 | $0 | $0 | $0 | $0 | 1 |
2022 · 14 people listed · none paid · 5 employees · 106 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| COBY KRAMER-GOLINKOFF | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE SELBER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| NICK DINGES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL GOLINKOFF | PRESIDENT | 10 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 20 | $0 | $0 | $0 | $0 | 1 |
2021 · 14 people listed · none paid · 5 employees · 106 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| COBY KRAMER-GOLINKOFF | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE SELBER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| NICK DINGES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL GOLINKOFF | PRESIDENT | 10 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 20 | $0 | $0 | $0 | $0 | 1 |
2020 · 17 people listed · none paid · 3 employees · 106 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 20 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NICK DINGES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM RETD 720 | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER RETD 720 | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE SELBER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JACOB KRAMER-GOLINKOFF | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
2019 · 17 people listed · none paid · 2 employees · 170 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NICK DINGES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE SELBER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JACOB KRAMER-GOLINKOFF | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
2018 · 17 people listed · none paid · 3 employees · 200 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NICK DINGES | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| RACHAEL PACKER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE SELBER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2017 · 16 people listed · none paid · 2 employees · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HEATHER KAHN BRAVER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| RACHAEL PACKER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2016 · 16 people listed · none paid · 1 employee · 30 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HEATHER KAHN BRAVER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| RACHAEL PACKER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2015 · 16 people listed · none paid · 0 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL GOLINKOFF | PRESIDENT | 4 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH P KRAMER | SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| EMILY K KRAMER-GOLINKOFF | DIRECTOR | 10 | $0 | $0 | $0 | $0 | 1 |
| TED BERNSTEIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NICKIE BOSTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HEATHER KAHN BRAVER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JOAN DENENBERG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KURTZ ERLBAUM | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| NANCY ASTOR FOX | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| BETH SHAPIRO LAVIN | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JESSICA RUTSTEIN LAZARUS | DIRECTOR | 4 | $0 | $0 | $0 | $0 | 1 |
| RACHAEL PACKER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG REH | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIET SPITZER | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| JULIE WERTHEIMER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DOUG YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 10 grants to organizations · $1.3M
2024 · 8 grants to organizations · $1.2M
Listed grants add up to $1,232,874; the return's “grants paid” expense line says $1,656,187. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 5 grants to organizations · $440K
Listed grants add up to $440,000; the return's “grants paid” expense line says $959,956. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 6 grants to organizations · $811K
Listed grants add up to $811,182; the return's “grants paid” expense line says $1,031,182. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 6 grants to organizations · $510K
2020 · 9 grants to organizations · $625K
Listed grants add up to $624,835; the return's “grants paid” expense line says $679,835. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 8 grants to organizations · $629K
Listed grants add up to $629,484; the return's “grants paid” expense line says $821,984. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 4 grants to organizations · $686K
Listed grants add up to $686,250; the return's “grants paid” expense line says $1,031,347. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 4 grants to organizations · $667K
Listed grants add up to $666,707; the return's “grants paid” expense line says $735,457. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 2 grants to organizations · $542K
2015 · 2 grants to organizations · $52K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $3,033,288 | $2,762,609 | $5,622,025 | $5,596,776 | $2,953,840 | $0 | $0 | 11 | - |
| 2024 · Form 990 | ||||||||
| $3,451,167 | $2,959,423 | $5,958,828 | $5,326,097 | $3,250,951 | $0 | $0 | 9 | 80 |
| 2023 · Form 990 | ||||||||
| $2,799,957 | $2,119,809 | $5,004,389 | $4,834,353 | $2,632,221 | $0 | $0 | 6 | 100 |
| 2022 · Form 990 | ||||||||
| $1,789,652 | $1,954,560 | $4,247,786 | $4,154,205 | $1,845,067 | $0 | $0 | 5 | 106 |
| 2021 · Form 990 | ||||||||
| $2,091,732 | $943,930 | $4,381,158 | $4,319,113 | $2,148,299 | $0 | $0 | 5 | 106 |
| 2020 · Form 990 | ||||||||
| $2,042,398 | $1,169,291 | $3,196,742 | $3,171,311 | $1,781,373 | $0 | $0 | 3 | 106 |
| 2019 · Form 990 | ||||||||
| $2,089,368 | $1,071,094 | $2,308,993 | $2,298,204 | $1,843,829 | $0 | $0 | 2 | 170 |
| 2018 · Form 990 | ||||||||
| $1,448,059 | $1,282,787 | $1,279,930 | $1,279,930 | $1,109,066 | $0 | $0 | 3 | 200 |
| 2017 · Form 990 | ||||||||
| $1,006,201 | $895,627 | $1,114,658 | $1,114,658 | $756,370 | $0 | $0 | 2 | 60 |
| 2016 · Form 990 | ||||||||
| $681,932 | $656,321 | $1,004,084 | $1,004,084 | $484,834 | $0 | $0 | 1 | 30 |
| 2015 · Form 990 | ||||||||
| $774,976 | $142,955 | $978,473 | $978,473 | $831,724 | $0 | $0 | 0 | 50 |
Funders of this organization
29 grantors reported grants to this organization, $2,189,654 in all, tax years 2014 to 2025; the 25 largest shown (all 29). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| JEWISH COMMUNITY FOUNDATION OF SAN DIEGO | DAF sponsor | Exact | 2017-2024 | 8 | $456,107 | 2024 | $85,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $387,545 | 2024 | $49,080 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2017, 2019-2024 | 9 | $309,400 | 2024 | $54,300 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2014-2024 | 11 | $295,278 | 2024 | $17,810 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2020-2024 | 5 | $130,000 | 2024 | $10,000 | show |
| PLEDGELING FOUNDATION | DAF sponsor | Exact | 2023-2024 | 2 | $118,747 | 2024 | $65,239 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $87,600 | 2024 | $12,000 | show |
| WAWA FOUNDATION INC | Public charity | Exact | 2017-2018, 2021, 2023-2024 | 5 | $77,500 | 2024 | $27,500 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $71,617 | 2025 | $8,334 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2022-2024 | 3 | $44,000 | 2024 | $19,000 | show |
| JEWISH COMMUNITY FOUNDATION OF ORANGE COUNTY | DAF sponsor | Exact | 2021, 2023-2025 | 4 | $40,000 | 2025 | $10,000 | show |
| BOOMER ESIASON FOUNDATION | Public charity | Exact | 2018, 2023-2024 | 3 | $35,500 | 2024 | $10,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2021, 2024 | 2 | $32,258 | 2024 | $11,566 | show |
| JILL AND MARK FISHMAN FOUNDATION | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS RESEARCH FUND” | 2016 | 1 | $25,000 | 2016 | $25,000 | show |
| JEWISH FEDERATION OF GREATER PHILADELPHIA | DAF sponsor | Exact | 2017, 2023 | 2 | $16,400 | 2023 | $5,750 | show |
| JEWISH COMMUNAL FUND | DAF sponsor | Exact | 2018-2019 | 2 | $15,896 | 2019 | $9,860 | show |
| GREATER GREEN BAY COMMUNITY FOUNDATION INC | DAF sponsor | Exact | 2021 | 1 | $10,000 | 2021 | $10,000 | show |
| BIOTECHNOLOGY INNOVATION ORGANIZATION | Public charity | Exact | 2021 | 1 | $10,000 | 2021 | $10,000 | show |
| TULSA COMMUNITY FOUNDATION | DAF sponsor | Exact | 2015 | 1 | $9,700 | 2015 | $9,700 | show |
| RAYMOND JAMES CHARITABLE ENDOWMENT FUND | DAF sponsor | Exact | 2023 | 1 | $7,500 | 2023 | $7,500 | show |
| MARSHA AND JEFFREY PERELMAN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS RESEARCH FUND” | 2021 | 1 | $3,500 | 2021 | $3,500 | show |
| AMERICAN EXPRESS FOUNDATION | Private foundation | Fuzzy filed as “Cystic Fibrosis Research Fund”, “CYSTIC FIBROSIS RESEARCH FUND” | 2020-2024 | 15 | $1,541 | 2024 | $20 | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | DAF sponsor | Exact | 2017 | 1 | $1,500 | 2017 | $1,500 | show |
| DAVID AND LUCILE PACKARD FOUNDATION | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS RESEARCH FUND” | 2020-2021 | 2 | $1,254 | 2021 | $450 | show |
| CIGNA FOUNDATION | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS RESEARCH FUND” | 2019, 2021-2024 | 5 | $1,175 | 2024 | $130 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| LANCASTER CLEFT PALATE CLINIC | PA | G20 | $3,563,451 | $3,723,761 | EXECUTIVE DI | $286,965 | Same NTEE code G20, revenue within 2x, same state |
| MUCOLIPIDOSIS TYPE IV FOUNDATION INC | GA | G20 | $3,776,356 | $3,084,160 | EXECUTIVE DIRECTOR | $213,815 | Same NTEE code G20, revenue within 2x |
| POLG FOUNDATION | NY | G20 | $3,364,753 | $2,107,901 | Director / CSO | $315,983 | Same NTEE code G20, revenue within 2x |
| MYHRE SYNDROME FOUNDATION | TX | G20 | $1,722,681 | $567,231 | Chief Scientific Officer | $120,000 | Same NTEE code G20, revenue within 2x |
| PROJECT 8P FOUNDATION | NY | G20 | $1,888,508 | $1,387,442 | Executive Director | $102,083 | Same NTEE code G20, revenue within 2x |
| NEW YORK CITY FOUNDATION FOR CEREBRAL PALSY INC | NY | G20 | $5,500,958 | $5,756,893 | CEO, ADAPT COMMUNITY NETWORK (THRU 11/24) | $943,636 | Same NTEE code G20, revenue within 2x |
| JACKS CORNER FOUNDATION INC | CT | G20 | $1,547,111 | $2,259,826 | SECRETARY | $0 | Same NTEE code G20, revenue within 2x |
| ZACK S PLACE ENRICHMENT CENTER INC | VT | G20 | $1,621,478 | $469,539 | Director | $0 | Same NTEE code G20, revenue within 2x |
| THE FAMILIESCN2A FOUNDATION INC | MA | G20 | $2,240,971 | $2,232,098 | EXECUTIVE DI | $124,778 | Same NTEE code G20, revenue within 2x |
| INCLUSION CONNECTIONS | KS | G20 | $4,059,989 | $1,594,497 | EXECUTIVE DI | $118,891 | Same NTEE code G20, revenue within 2x |
| HEMOPHILIA FOUNDATION OF MICHIGAN | MI | G20 | $4,413,608 | $4,695,502 | Executive Director | $207,481 | Same NTEE code G20, revenue within 2x |
| MIDWEST ASIAN HEALTH ASSOCIATION - MAHA | IL | G20 | $6,004,483 | $4,648,371 | EXECUTIVE DI | $170,156 | Same NTEE code G20, revenue within 2x |
| ORGANIZATION OF TERATOLOGY INFORMATION SPECIALISTS NFP | TN | G20 | $2,346,081 | $2,333,531 | BOARD MEMBER | $46,647 | Same NTEE code G20, revenue within 2x |
| HUNTINGTON STUDY GROUP LTD | NY | G20 | $5,041,772 | $4,916,902 | CEO/SECRETARY (UNTIL 7/3/24) | $282,263 | Same NTEE code G20, revenue within 2x |
| JSCREENORG INC | GA | G20 | $4,219,298 | $1,056,618 | CEO & PRESIDENT | $202,508 | Same NTEE code G20, revenue within 2x |
| WILLIAMS SYNDROME ASSOCIATION INC | NJ | G20 | $2,016,743 | $2,143,132 | EXECUTIVE DIRECTOR AS OF JUL'24 | $161,534 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY ASSOCIATION OF THE TRI-COUNTIES INC | NY | G20 | $2,031,706 | $2,068,830 | PRESIDENT/CE | $509,275 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY ASSOCIATION OF SAN DIEGO COUNTY | CA | G20 | $3,392,257 | $3,264,062 | Executive Direc | $131,805 | Same NTEE code G20, revenue within 2x |
| ST FRANCOIS CO BOARD FOR THE DEVELOPMENTALLY DISABLED | MO | G20 | $5,254,109 | $4,799,348 | MEMBER | $0 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY ASSOCIATION INC OF STANISLAUS COUNTY | CA | G20 | $3,014,270 | $2,784,386 | EXECUTIVE DIRECTOR | $97,641 | Same NTEE code G20, revenue within 2x |
| ELMHURST INC | ME | G20 | $4,911,543 | $4,231,908 | EXECUTIVE DI | $150,002 | Same NTEE code G20, revenue within 2x |
| LOU BERTEOTTI FOUNDATION | PA | G20 | $1,013,781 | $0 | PRESIDENT | $0 | Same NTEE code G20, revenue within 5x, same state |
| COMMUNITY CHOICES PROPERTIES | PA | G20 | $800,004 | $331,437 | PRESIDENT | $0 | Same NTEE code G20, revenue within 5x, same state |
| COMMUNITY LIVING AND SUPPORT SERVICES INC | PA | G20 | $14,236,188 | $14,103,195 | CEO | $176,155 | Same NTEE code G20, revenue within 5x, same state |
| PARKINSON FOUNDATION OF WESTERN PENNSYLVANIA | PA | G20 | $769,639 | $727,480 | EXECUTIVE DIRECTOR | $118,918 | Same NTEE code G20, revenue within 5x, same state |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $2,762,609 spent · pay $823,516 · grants $1,270,594 · events $175,067
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,270,594 | $1,270,594 | - | - | 46.0% | |
| Other salaries and wages | $799,335 | $554,578 | $94,904 | $149,853 | 28.9% | |
| Other (as described) | Contract Services | $139,580 | $37,049 | $46,690 | $55,841 | 5.1% |
| Other (as described) | Recruitment | $109,661 | $72,440 | $17,363 | $19,858 | 4.0% |
| Other (as described) | Scientific Conferences | $98,338 | $98,338 | - | - | 3.6% |
| Other (as described) | Science Subcontracting | $84,978 | $84,978 | - | - | 3.1% |
| Advertising and promotion | $76,156 | $56,361 | - | $19,795 | 2.8% | |
| Travel | $57,051 | $54,306 | - | $2,745 | 2.1% | |
| Fees: other services | $37,690 | $31,644 | $2,706 | $3,340 | 1.4% | |
| Information technology | $31,646 | $20,471 | $1,103 | $10,072 | 1.1% | |
| Other employee benefits | $24,181 | $9,037 | $14,622 | $522 | 0.9% | |
| All other expenses | $19,143 | $7,805 | $5,467 | $5,871 | 0.7% | |
| Office expenses | $9,231 | $1,872 | $6,622 | $737 | 0.3% | |
| Insurance | $4,784 | $2,976 | $1,509 | $299 | 0.2% | |
| Depreciation and depletion | $241 | - | $241 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $175,067 | reported apart | |||
| Total | $2,762,609 | 100% |
2024 · Form 990 · $2,959,423 spent · pay $895,352 · grants $1,656,187 · events $210,135
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,271,187 | $1,271,187 | - | - | 43.0% | |
| Other salaries and wages | $862,112 | $578,999 | $120,601 | $162,512 | 29.1% | |
| Grants outside the US | $385,000 | $385,000 | - | - | 13.0% | |
| Other (as described) | Science Subcontracting | $116,989 | $115,589 | $1,400 | - | 4.0% |
| Other (as described) | Contract Services | $90,852 | $40,680 | $4,072 | $46,100 | 3.1% |
| Fees: other services | $43,450 | $35,681 | $4,109 | $3,660 | 1.5% | |
| Other (as described) | Recruitment | $41,438 | $36,539 | $1,350 | $3,549 | 1.4% |
| Advertising and promotion | $34,651 | $25,980 | $236 | $8,435 | 1.2% | |
| Other employee benefits | $33,240 | $15,796 | $8,316 | $9,128 | 1.1% | |
| All other expenses | $28,385 | $17,479 | $820 | $10,086 | 1.0% | |
| Office expenses | $26,102 | $6,935 | $10,006 | $9,161 | 0.9% | |
| Other (as described) | Scientific Conferences | $14,342 | $14,342 | - | - | 0.5% |
| Travel | $8,725 | $7,419 | - | $1,306 | 0.3% | |
| Insurance | $2,950 | $2,160 | $325 | $465 | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $210,135 | reported apart | |||
| Total | $2,959,423 | 100% |
2023 · Form 990 · $2,119,809 spent · pay $541,342 · grants $959,956 · events $139,108
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $959,956 | $959,956 | - | - | 45.3% | |
| Other salaries and wages | $517,236 | $403,769 | $48,850 | $64,617 | 24.4% | |
| Other (as described) | Contract Services | $199,131 | $120,279 | $20,266 | $58,586 | 9.4% |
| Other (as described) | Fundraising | $79,311 | $60,491 | $248 | $18,572 | 3.7% |
| All other expenses | $77,781 | $77,781 | - | - | 3.7% | |
| Other (as described) | Scientific Conferences | $64,867 | $61,617 | - | $3,250 | 3.1% |
| Office expenses | $64,697 | $25,556 | $6,986 | $32,155 | 3.1% | |
| Travel | $46,569 | $43,774 | - | $2,795 | 2.2% | |
| Fees: other services | $42,094 | $32,998 | $4,522 | $4,574 | 2.0% | |
| Other (as described) | Recruitment | $41,602 | $34,842 | $3,010 | $3,750 | 2.0% |
| Other employee benefits | $24,106 | $12,824 | $4,918 | $6,364 | 1.1% | |
| Insurance | $2,459 | $1,475 | $492 | $492 | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $139,108 | reported apart | |||
| Total | $2,119,809 | 100% |
2022 · Form 990 · $1,954,560 spent · pay $555,433 · grants $1,031,182 · events $130,649
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,031,182 | $1,031,182 | - | - | 52.8% | |
| Other salaries and wages | $545,314 | $361,287 | $63,126 | $120,901 | 27.9% | |
| Other (as described) | CONTRACTS SERVICES | $141,355 | $55,811 | $53,059 | $32,485 | 7.2% |
| Other (as described) | SUBCONTRACTORS | $56,354 | $56,354 | - | - | 2.9% |
| Other (as described) | FUNDRAISING | $53,042 | $34,610 | - | $18,432 | 2.7% |
| Fees: other services | $47,995 | $38,701 | $2,788 | $6,506 | 2.5% | |
| All other expenses | $35,932 | $22,024 | $892 | $13,016 | 1.8% | |
| Information technology | $19,116 | $5,929 | $790 | $12,397 | 1.0% | |
| Other employee benefits | $10,119 | $2,518 | $3,461 | $4,140 | 0.5% | |
| Office expenses | $9,816 | $4,400 | $1,138 | $4,278 | 0.5% | |
| Other (as described) | LICENSES | $2,290 | $43 | $2,220 | $27 | 0.1% |
| Insurance | $1,596 | $958 | $319 | $319 | 0.1% | |
| Advertising and promotion | $449 | $315 | $134 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $130,649 | reported apart | |||
| Total | $1,954,560 | 100% |
2021 · Form 990 · $943,930 spent · pay $197,792 · grants $510,175 · events $86,435
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $510,175 | $510,175 | - | - | 54.0% | |
| Other salaries and wages | $192,141 | $74,560 | $68,154 | $49,427 | 20.4% | |
| Other (as described) | SUBCONTRACTORS | $89,774 | $89,774 | - | - | 9.5% |
| Other (as described) | CONTRACTS SERVICES | $55,846 | $21,652 | $13,290 | $20,904 | 5.9% |
| Other (as described) | FUNDRAISING | $44,393 | $30,932 | - | $13,461 | 4.7% |
| Information technology | $16,796 | $4,213 | $387 | $12,196 | 1.8% | |
| Fees: other services | $11,269 | $3,506 | $4,257 | $3,506 | 1.2% | |
| Advertising and promotion | $5,741 | $5,504 | $62 | $175 | 0.6% | |
| Other employee benefits | $5,651 | $3,686 | $1,418 | $547 | 0.6% | |
| All other expenses | $5,480 | - | $226 | $5,254 | 0.6% | |
| Office expenses | $3,686 | $699 | $1,381 | $1,606 | 0.4% | |
| Other (as described) | LICENSES | $1,938 | - | $1,938 | - | 0.2% |
| Insurance | $1,040 | - | $1,040 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $86,435 | reported apart | |||
| Total | $943,930 | 100% |
2020 · Form 990 · $1,169,291 spent · pay $197,024 · grants $679,835 · events $18,678
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $624,835 | $624,835 | - | - | 53.4% | |
| Other salaries and wages | $169,811 | $33,963 | $84,905 | $50,943 | 14.5% | |
| Other (as described) | SUBCONTRACTORS | $102,335 | $102,335 | - | - | 8.8% |
| Other (as described) | FUNDRAISING | $71,171 | - | - | $71,171 | 6.1% |
| Other (as described) | CONSULTING | $56,533 | $5,653 | $16,960 | $33,920 | 4.8% |
| Grants outside the US | $55,000 | $55,000 | - | - | 4.7% | |
| Other (as described) | ADVOCACY & EDUCATION | $30,000 | $30,000 | - | - | 2.6% |
| Payroll taxes | $14,864 | $2,973 | $7,432 | $4,459 | 1.3% | |
| All other expenses | $13,499 | - | $13,499 | - | 1.2% | |
| Other employee benefits | $12,349 | $2,470 | $6,174 | $3,705 | 1.1% | |
| Fees: accounting | $10,420 | $2,293 | $8,127 | - | 0.9% | |
| Office expenses | $6,001 | $420 | $5,401 | $180 | 0.5% | |
| Fees: other services | $1,433 | $222 | $877 | $334 | 0.1% | |
| Insurance | $1,040 | - | $1,040 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $720 | $18,678 | reported apart | |||
| Total | $1,169,291 | 100% |
2019 · Form 990 · $1,071,094 spent · pay $118,663 · grants $821,984 · events $250,601
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $629,484 | $629,484 | - | - | 58.8% | |
| Grants outside the US | $192,500 | $192,500 | - | - | 18.0% | |
| Other salaries and wages | $99,471 | $42,596 | $46,928 | $9,947 | 9.3% | |
| Other (as described) | SUBCONTRACTORS | $52,713 | $52,713 | - | - | 4.9% |
| Other (as described) | FUNDRAISING | $37,297 | - | - | $37,297 | 3.5% |
| Fees: accounting | $13,750 | - | $13,750 | - | 1.3% | |
| Travel | $9,851 | $9,851 | - | - | 0.9% | |
| Other employee benefits | $9,609 | $4,115 | $4,533 | $961 | 0.9% | |
| Payroll taxes | $9,583 | $4,104 | $4,522 | $957 | 0.9% | |
| Other (as described) | CONSULTING AND OTHER PR | $6,138 | - | - | $6,138 | 0.6% |
| Office expenses | $3,780 | $286 | $3,427 | $67 | 0.4% | |
| Other (as described) | BANK FEES | $3,267 | - | $3,267 | - | 0.3% |
| All other expenses | $1,941 | - | $1,941 | - | 0.2% | |
| Insurance | $1,042 | - | $1,042 | - | 0.1% | |
| Fees: other services | $668 | $286 | $314 | $68 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $50,416 | $250,601 | reported apart | |||
| Total | $1,071,094 | 100% |
2018 · Form 990 · $1,282,787 spent · pay $73,250 · grants $1,031,347 · events $104,837
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $686,250 | $686,250 | - | - | 53.5% | |
| Grants outside the US | $345,097 | $345,097 | - | - | 26.9% | |
| Other salaries and wages | $65,048 | $16,262 | $4,878 | $43,908 | 5.1% | |
| Other (as described) | SUBCONTRACTORS | $49,502 | $46,650 | - | $2,852 | 3.9% |
| Travel | $40,752 | $40,752 | - | - | 3.2% | |
| Other (as described) | FUNDRAISING | $32,853 | - | - | $32,853 | 2.6% |
| Other (as described) | CONSULTING AND OTHER PR | $27,009 | $26,520 | $489 | - | 2.1% |
| Other (as described) | COMPUTER & SOFTWARE | $11,365 | - | $11,365 | - | 0.9% |
| Payroll taxes | $6,083 | $1,521 | $456 | $4,106 | 0.5% | |
| Fees: accounting | $5,500 | $2,750 | $2,750 | - | 0.4% | |
| Office expenses | $4,855 | - | $4,855 | - | 0.4% | |
| All other expenses | $4,474 | - | $4,474 | - | 0.3% | |
| Other employee benefits | $2,119 | $530 | $159 | $1,430 | 0.2% | |
| Insurance | $1,012 | - | $1,012 | - | 0.1% | |
| Fees: other services | $868 | $217 | $65 | $586 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $437,956 | $104,837 | reported apart | |||
| Total | $1,282,787 | 100% |
2017 · Form 990 · $895,627 spent · pay $39,076 · grants $735,457 · events $104,837
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $666,707 | $666,707 | - | - | 74.4% | |
| Other (as described) | CONSULTING AND OTHER PR | $78,306 | $78,306 | - | - | 8.7% |
| Grants outside the US | $68,750 | $68,750 | - | - | 7.7% | |
| Other salaries and wages | $35,962 | $17,981 | $17,981 | - | 4.0% | |
| Travel | $14,515 | $14,515 | - | - | 1.6% | |
| Other (as described) | CREDIT CARD & BANK FEES | $9,064 | - | $9,064 | - | 1.0% |
| Office expenses | $6,065 | - | $6,065 | - | 0.7% | |
| Fees: accounting | $5,000 | - | $5,000 | - | 0.6% | |
| Other (as described) | COMPUTER & SOFTWARE | $4,479 | - | $4,479 | - | 0.5% |
| Payroll taxes | $3,114 | $1,557 | $1,557 | - | 0.3% | |
| Other (as described) | FUNDRAISING | $1,551 | - | - | $1,551 | 0.2% |
| Advertising and promotion | $1,150 | - | $1,150 | - | 0.1% | |
| All other expenses | $500 | - | $500 | - | 0.1% | |
| Insurance | $464 | - | $464 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $348,077 | $104,837 | reported apart | |||
| Total | $895,627 | 100% |
2016 · Form 990 · $656,321 spent · pay $18,218 · grants $541,543 · events $60,889
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $541,543 | $541,543 | - | - | 82.5% | |
| Other (as described) | CONSULTING SERVICES | $49,500 | $49,500 | - | - | 7.5% |
| Other salaries and wages | $16,924 | $8,462 | $8,462 | - | 2.6% | |
| Travel | $9,723 | $9,723 | - | - | 1.5% | |
| Office expenses | $9,676 | - | $9,676 | - | 1.5% | |
| Fees: accounting | $8,304 | - | $8,304 | - | 1.3% | |
| Other (as described) | FUNDRAISING | $7,562 | - | - | $7,562 | 1.2% |
| Other (as described) | CREDIT CARD & BANK FEES | $6,143 | - | $6,143 | - | 0.9% |
| Other (as described) | COMPUTER & SOFTWARE | $3,449 | - | $3,449 | - | 0.5% |
| Fees: legal | $1,456 | - | $1,456 | - | 0.2% | |
| Payroll taxes | $1,294 | $647 | $647 | - | 0.2% | |
| Insurance | $421 | - | $421 | - | 0.1% | |
| All other expenses | $326 | - | $326 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $250,925 | $60,889 | reported apart | |||
| Total | $656,321 | 100% |
2015 · Form 990 · $142,955 spent · pay $0 · grants $51,800 · events $109,851
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | CONSULTING SERVICES | $60,978 | $60,978 | - | - | 42.7% |
| Grants to US organizations and governments | $51,800 | $51,800 | - | - | 36.2% | |
| All other expenses | $9,708 | $5,361 | $943 | $3,404 | 6.8% | |
| Other (as described) | PROMOTIONS | $6,585 | $6,585 | - | - | 4.6% |
| Other (as described) | CONTRACT SERVICES | $5,250 | - | - | $5,250 | 3.7% |
| Other (as described) | DONOR MANAGEMENT SYSTEM | $4,423 | - | - | $4,423 | 3.1% |
| Travel | $3,777 | $3,777 | - | - | 2.6% | |
| Office expenses | $409 | - | $409 | - | 0.3% | |
| Advertising and promotion | $25 | - | - | $25 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $48,324 | $109,851 | reported apart | |||
| Total | $142,955 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2021 | $0 | $0 | 1 |
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
State business registration
- Cystic Fibrosis Research Fund, Inc. PA, Domestic Nonprofit Corporation, Current, formed 1987-11-16
The same business name in the same state, from the state’s official registry data.
Trademarks
4 US trademarks, 3 live.
- Cystic Fibrosis Research Fund, Inc. 4 marks, PA FUZZY medium confidence: same name (governing-board words and legal endings aside) and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| FAST BREAKTHROUGHS FOR CF | 90808365 | 2021-07-02 | Registered | TRCFECO2, file of 2024-03-27 |
| EMILY'S ENTOURAGE | 86530052 | 2015-02-10 | Registration cancelled | TRCFECO2, file of 2024-03-27 |
| EMILY'S ENTOURAGE | 86530029 | 2015-02-10 | Registered and renewed | TRTDXFAP, file of 2026-05-13 |
| EMILY'S ENTOURAGE | 86529990 | 2015-02-10 | Registered and renewed | TRTDXFAP, file of 2026-05-20 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments