CYSTIC FIBROSIS RESEARCH FUND: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- CYSTIC FIBROSIS RESEARCH FUND (EIN 45-3768161)
- Tax period
- 2022-01-01 to 2022-12-31
- Filed
- 2023-05-11
- IRS object ID
- 202301319349306605
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2023-05-11T16:57:09-04:00 | ReturnTs |
| Tax Period End | 2022-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 273840548 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LUDWIG BUSINESS CONSULTANTS | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1120 WELSH ROAD SUITE 200 | AddressLine1Txt |
| City | North Wales | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19454 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 453768161 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CYSTIC FIBROSIS RESEARCH FUND INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CYST | BusinessNameControlTxt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 ST GEORGES ROAD STE G1 | AddressLine1Txt |
| City | ARDMORE | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19003 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MICHAEL GOLINKOFF | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 2153416720 | PhoneNum |
| Signature | 2023-04-27 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | MICHAEL | PersonFirstNm |
| Person Last | GOLINKOFF | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Phyllis A Ludwig | PreparerPersonNm |
| PTIN | P00916318 | PTIN |
| Phone | 2158390985 | PhoneNum |
| Preparation | 2023-05-11 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 0 | TrustedCustomerCd |
| OOB Security Verification | 00 | OOBSecurityVerificationCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EMILYS ENTOURAGE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,920,301 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.EMILYSENTOURAGE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1987 | FormationYr |
| Legal Domicile State | PA | LegalDomicileStateCd |
| Activity Or Mission | THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Volunteers | 106 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,148,299 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,845,067 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $28,868 | PYInvestmentIncomeAmt |
| CY Investment Income | $21,442 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$85,435 | PYOtherRevenueAmt |
| CY Other Revenue | -$76,857 | CYOtherRevenueAmt |
| PY Total Revenue | $2,091,732 | PYTotalRevenueAmt |
| CY Total Revenue | $1,789,652 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $510,175 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,031,182 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $197,792 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $555,433 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $212,501 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $235,963 | PYOtherExpensesAmt |
| CY Other Expenses | $367,945 | CYOtherExpensesAmt |
| PY Total Expenses | $943,930 | PYTotalExpensesAmt |
| CY Total Expenses | $1,954,560 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,147,802 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$164,908 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,381,158 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,247,786 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $62,045 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $93,581 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,319,113 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,154,205 | NetAssetsOrFundBalancesEOYAmt |
| Mission | THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $1,614,132 | ExpenseAmt |
| Grant | $1,031,182 | GrantAmt |
| Desc | THE ORGANIZATION RAISES MONEY FOR CYSTIC FIBROSIS RESEARCH THROUGH DIRECT SOLICITATION ACTIVITIES. | Desc |
| Total Program Service Expenses | $1,614,132 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 19 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | MICHAEL GOLINKOFF | PersonNm |
| Phone | 2153416720 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 ST GEORGES ROAD | AddressLine1Txt |
| City | ARDMORE | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 19003 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|---|
| GREG REH | |||||||
| DIRECTOR | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| JESSICA RUTSTEIN LAZARUS | |||||||
| DIRECTOR | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| BETH SHAPIRO LAVIN | |||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| JULIE WERTHEIMER | |||||||
| DIRECTOR | 0.20 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| COBY KRAMER-GOLINKOFF | |||||||
| DIRECTOR | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| DANIELLE SELBER | |||||||
| DIRECTOR | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| DOUG YOUNG | |||||||
| DIRECTOR | 0.20 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| NICKIE BOSTON | |||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| EMILY K KRAMER-GOLINKOFF | |||||||
| DIRECTOR | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| NICK DINGES | |||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| NANCY ASTOR FOX | |||||||
| DIRECTOR | 0.20 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| JOAN DENENBERG | |||||||
| DIRECTOR | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL GOLINKOFF | |||||||
| PRESIDENT | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| ELIZABETH P KRAMER | |||||||
| SECRETARY | 20.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $0 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $1,189,043 | FundraisingAmt |
| All Other Contributions | $656,024 | AllOtherContributionsAmt |
| Total Contributions | $1,845,067 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $21,442 | TotalRevenueColumnAmt |
| Exclusion | $21,442 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contri Rpt Fundraising Event | $1,189,043 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $130,649 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$130,649 | TotalRevenueColumnAmt |
| Exclusion | -$130,649 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $53,792 | TotalRevenueColumnAmt |
| Exclusion | $53,792 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $53,792 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,789,652 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$55,415 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,031,182 | TotalAmt |
| Program Services | $1,031,182 | ProgramServicesAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $545,314 | TotalAmt |
| Program Services | $361,287 | ProgramServicesAmt |
| Management And General | $63,126 | ManagementAndGeneralAmt |
| Fundraising | $120,901 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,119 | TotalAmt |
| Program Services | $2,518 | ProgramServicesAmt |
| Management And General | $3,461 | ManagementAndGeneralAmt |
| Fundraising | $4,140 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,995 | TotalAmt |
| Program Services | $38,701 | ProgramServicesAmt |
| Management And General | $2,788 | ManagementAndGeneralAmt |
| Fundraising | $6,506 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $449 | TotalAmt |
| Program Services | $315 | ProgramServicesAmt |
| Management And General | $134 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,816 | TotalAmt |
| Program Services | $4,400 | ProgramServicesAmt |
| Management And General | $1,138 | ManagementAndGeneralAmt |
| Fundraising | $4,278 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,116 | TotalAmt |
| Program Services | $5,929 | ProgramServicesAmt |
| Management And General | $790 | ManagementAndGeneralAmt |
| Fundraising | $12,397 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,596 | TotalAmt |
| Program Services | $958 | ProgramServicesAmt |
| Management And General | $319 | ManagementAndGeneralAmt |
| Fundraising | $319 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| SUBCONTRACTORS | $56,354 | $56,354 | ||
| LICENSES | $2,290 | $43 | $2,220 | $27 |
| CONTRACTS SERVICES | $141,355 | $55,811 | $53,059 | $32,485 |
| FUNDRAISING | $53,042 | $34,610 | $18,432 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,932 | TotalAmt |
| Program Services | $22,024 | ProgramServicesAmt |
| Management And General | $892 | ManagementAndGeneralAmt |
| Fundraising | $13,016 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,954,560 | TotalAmt |
| Program Services | $1,614,132 | ProgramServicesAmt |
| Management And General | $127,927 | ManagementAndGeneralAmt |
| Fundraising | $212,501 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $492,528 | BOYAmt |
| EOY | $414,112 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,888,630 | BOYAmt |
| EOY | $3,833,674 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,381,158 | BOYAmt |
| EOY | $4,247,786 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $62,045 | BOYAmt |
| EOY | $93,581 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $62,045 | BOYAmt |
| EOY | $93,581 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,184,113 | BOYAmt |
| EOY | $4,029,205 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $135,000 | BOYAmt |
| EOY | $125,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,319,113 | BOYAmt |
| EOY | $4,154,205 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,381,158 | BOYAmt |
| EOY | $4,247,786 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$164,908 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | false | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,775,304 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,843,829 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,781,373 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,094,534 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,898,859 | CurrentTaxYearAmt |
| Total | $9,393,899 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,775,304 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,843,829 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,781,373 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,094,534 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,898,859 | CurrentTaxYearAmt |
| Total | $9,393,899 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $691,522 | SubstantialContributorsTotAmt |
| Public Support Total170 | $8,702,377 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,874 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $445,724 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $276,983 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $28,868 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $21,442 | CurrentTaxYearAmt |
| Total | $778,891 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $10,172,790 | TotalSupportAmt |
| Public Support CY170 | 0.85550 | PublicSupportCY170Pct |
| Public Support PY170 | 0.85040 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $1,789,652 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Subtotal | $1,789,652 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $1,789,652 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,954,560 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $1,954,560 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $1,954,560 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| Europe including Iceland and Greenland | Grant making | Medical Research | $55,000 |
| Europe including Iceland and Greenland | Grant making | Medical Research | $55,000 |
| Europe including Iceland and Greenland | Grant making | Medical Research | $55,000 |
| Europe including Iceland and Greenland | Grant making | Medical Research | $55,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $220,000 | SubtotalSpentAmt |
| Total Spent | $220,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe including Iceland and Greenland | Medical research for Cystic Fibrosis | $55,000 | CheckACH |
| Europe including Iceland and Greenland | Medical Research for Cystic Fibrosis | $55,000 | CheckACH |
| Europe including Iceland and Greenland | Medical Research for Cystic Fibrosis | $55,000 | CheckACH |
| Europe including Iceland and Greenland | Medical Research | $55,000 | CheckACH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 3 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | ANNUAL GALAS | Event1Nm |
| Gross Receipts Event1 | $1,189,043 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,189,043 | CharitableContriEvent1Amt |
| Food And Beverage Event1 | $130,649 | FoodAndBeverageEvent1Amt |
| Gross Receipts Total | $1,189,043 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,189,043 | CharitableContributionsTotAmt |
| Food And Beverage Total Events | $130,649 | FoodAndBeverageTotalEventsAmt |
| Direct Expense Summary Events | $130,649 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$130,649 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (6 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|---|
| THE ROCKEFELLER UNIVERSITY | ||||||
| 1230 YORK AVENUE | New York | NY | 10065 | 131624158 | $55,000 | CASH |
| REGENTS OF THE UNIVERSITY OF CALIFO | ||||||
| 9500 GILMAN DRIVE | La Jolla | CA | 920930967 | 956006144 | $82,500 | CASH |
| STATE UNIVERSITY OF IOWA -MITOCHON | ||||||
| 105 JESSUP HALL | Iowa City | IA | 52242 | 426004813 | $398,682 | CASH |
| UNIVERSITY OF PITTSBURG | ||||||
| 116 ATWOOD STREET SUITE 201 | Pittsburgh | PA | 15260 | 250965591 | $55,000 | Cash |
| THE WISTAR INSTITUTE | ||||||
| 3601 SPRUCE STREET | Philadelphia | PA | 19104 | 236434390 | $55,000 | CASH |
| THE UNIVERSITY OF TEXAS AT AUSTIN | ||||||
| 110 Inner Campus Dr Stop K5300 | Austin | TX | 78712 | 746000203 | $165,000 | CASH |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Officer directors etc family relationship Part VI line 2 | FORM 990, PART VI, SECTION A, LINE 2;FOUR BOARD MEMBERS ARE RELATED (PARENTS AND CHILDREN). |
| Form 990 governing body review Part VI line 11 | FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE INTERNAL REVENUE SERVICE |
| Governing documents etc available to public Part VI line 19 | ISSUED UPON REQUEST |
| General explanation attachment | Schedule A - Part II - Section A Public Support Test - Line 1Gifts, grants, contributions and membership fees received were adjusted for 2018. Certain contributions received in 2018 were omitted in error from prior years Public Support Test calculations. |
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