2023-05-11T16:57:09-04:00 2022-12-31 273840548 LUDWIG BUSINESS CONSULTANTS 1120 WELSH ROAD SUITE 200 North Wales PA 19454 990 2022-01-01 453768161 CYSTIC FIBROSIS RESEARCH FUND INC CYST 100 ST GEORGES ROAD STE G1 ARDMORE PA 19003 MICHAEL GOLINKOFF PRESIDENT 2153416720 2023-04-27 true MICHAEL GOLINKOFF Phyllis A Ludwig P00916318 2158390985 2023-05-11 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z EMILYS ENTOURAGE 1920301 false X WWW.EMILYSENTOURAGE.ORG X 1987 PA THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. 14 14 5 106 0 0 2148299 1845067 0 28868 21442 -85435 -76857 2091732 1789652 510175 1031182 0 197792 555433 0 212501 235963 367945 943930 1954560 1147802 -164908 4381158 4247786 62045 93581 4319113 4154205 THE CYSTIC FIBROSIS RESEARCH FUND (EMILYS ENTOURAGE) ACCELERATES RESEARCH AND DRUG DEVELOPMENT FOR NONSENSE MUTATIONS OF CYSTIC FIBROSIS. false false 1614132 1031182 THE ORGANIZATION RAISES MONEY FOR CYSTIC FIBROSIS RESEARCH THROUGH DIRECT SOLICITATION ACTIVITIES. 1614132 true true false false false false false false false false false false false false false false true false false false true true false false true false false true false false false false false false false false false false false false false false false false false false false true 19 0 true 5 true false false false false false false false false false false X 14 14 true false false false false false false true true false false true false false true false false false NY PA X MICHAEL GOLINKOFF 2153416720 100 ST GEORGES ROAD ARDMORE PA 19003 X GREG REH DIRECTOR 0.50 0.00 X 0 0 0 JESSICA RUTSTEIN LAZARUS DIRECTOR 0.50 0.00 X 0 0 0 BETH SHAPIRO LAVIN DIRECTOR 2.00 0.00 X 0 0 0 JULIE WERTHEIMER DIRECTOR 0.20 0.00 X 0 0 0 COBY KRAMER-GOLINKOFF DIRECTOR 5.00 0.00 X 0 0 0 DANIELLE SELBER DIRECTOR 0.50 0.00 X 0 0 0 DOUG YOUNG DIRECTOR 0.20 0.00 X 0 0 0 NICKIE BOSTON DIRECTOR 1.00 0.00 X 0 0 0 EMILY K KRAMER-GOLINKOFF DIRECTOR 10.00 0.00 X 0 0 0 NICK DINGES DIRECTOR 1.00 0.00 X 0 0 0 NANCY ASTOR FOX DIRECTOR 0.20 0.00 X 0 0 0 JOAN DENENBERG DIRECTOR 2.00 0.00 X 0 0 0 MICHAEL GOLINKOFF PRESIDENT 10.00 0.00 X X 0 0 0 ELIZABETH P KRAMER SECRETARY 20.00 0.00 X X 0 0 0 0 0 0 0 false false false 1189043 656024 1845067 21442 21442 1189043 130649 -130649 -130649 OTHER 900099 53792 53792 53792 1789652 0 0 -55415 1031182 1031182 545314 361287 63126 120901 10119 2518 3461 4140 47995 38701 2788 6506 449 315 134 9816 4400 1138 4278 19116 5929 790 12397 1596 958 319 319 SUBCONTRACTORS 56354 56354 LICENSES 2290 43 2220 27 CONTRACTS SERVICES 141355 55811 53059 32485 FUNDRAISING 53042 34610 18432 35932 22024 892 13016 1954560 1614132 127927 212501 492528 414112 3888630 3833674 4381158 4247786 62045 93581 62045 93581 X 4184113 4029205 135000 125000 4319113 4154205 4381158 4247786 -164908 0 X false true X false false X 1775304 1843829 1781373 2094534 1898859 9393899 1775304 1843829 1781373 2094534 1898859 9393899 691522 8702377 5874 445724 276983 28868 21442 778891 10172790 0.85550 0.85040 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1789652 1789652 1789652 1954560 1954560 1954560 true Europe including Iceland and Greenland Grant making Medical Research 55000 Europe including Iceland and Greenland Grant making Medical Research 55000 Europe including Iceland and Greenland Grant making Medical Research 55000 Europe including Iceland and Greenland Grant making Medical Research 55000 220000 220000 Europe including Iceland and Greenland Medical research for Cystic Fibrosis 55000 CheckACH Europe including Iceland and Greenland Medical Research for Cystic Fibrosis 55000 CheckACH Europe including Iceland and Greenland Medical Research for Cystic Fibrosis 55000 CheckACH Europe including Iceland and Greenland Medical Research 55000 CheckACH 3 false false false false false false ANNUAL GALAS 1189043 1189043 130649 1189043 1189043 130649 130649 -130649 true THE ROCKEFELLER UNIVERSITY 1230 YORK AVENUE New York NY 10065 131624158 55000 CASH REGENTS OF THE UNIVERSITY OF CALIFO 9500 GILMAN DRIVE La Jolla CA 920930967 956006144 82500 CASH STATE UNIVERSITY OF IOWA -MITOCHON 105 JESSUP HALL Iowa City IA 52242 426004813 398682 CASH UNIVERSITY OF PITTSBURG 116 ATWOOD STREET SUITE 201 Pittsburgh PA 15260 250965591 55000 Cash THE WISTAR INSTITUTE 3601 SPRUCE STREET Philadelphia PA 19104 236434390 55000 CASH THE UNIVERSITY OF TEXAS AT AUSTIN 110 Inner Campus Dr Stop K5300 Austin TX 78712 746000203 165000 CASH Officer directors etc family relationship Part VI line 2 FORM 990, PART VI, SECTION A, LINE 2;FOUR BOARD MEMBERS ARE RELATED (PARENTS AND CHILDREN). Form 990 governing body review Part VI line 11 FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE INTERNAL REVENUE SERVICE Governing documents etc available to public Part VI line 19 ISSUED UPON REQUEST General explanation attachment Schedule A - Part II - Section A Public Support Test - Line 1Gifts, grants, contributions and membership fees received were adjusted for 2018. Certain contributions received in 2018 were omitted in error from prior years Public Support Test calculations.