CYSTIC FIBROSIS RESEARCH FUND: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
CYSTIC FIBROSIS RESEARCH FUND (EIN 45-3768161)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-11-08
IRS object ID
201833129349300623
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-11-08T08:57:08-06:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN473556755PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1JACOB COHEN CPA LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11420 WALNUT STREET SUITE 1008AddressLine1Txt
CityPHILADELPHIACityNm
State AbbreviationPAStateAbbreviationCd
ZIP19102ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN453768161EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CYSTIC FIBROSIS RESEARCH FUND INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCYSTBusinessNameControlTxt
Phone6106643252PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 ST GEORGES ROAD NO G1AddressLine1Txt
CityARDMORECityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMICHAEL GOLINKOFFPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone6106643252PhoneNum
Signature2018-11-07SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJACOB COHEN CPAPreparerPersonNm
PTINP01083745PTIN
Phone2158702131PhoneNum
Self EmployedYes (X)SelfEmployedInd

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address18.208.29.111IPv4AddressTxt
FieldValueIRS element (for citing)
IP2018-11-07IPDt
IP Tm16:59:51IPTm
IP TimezoneESIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdDCDD570C457BAD867DCE1B35002D5CBB09608A53AtSubmissionCreationDeviceId
At Submission Filing Device IdDCDD570C457BAD867DCE1B35002D5CBB09608A53AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1EMILY'S ENTOURAGEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerMICHAEL GOLINKOFFPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 ST GEORGES ROAD UNIT G1AddressLine1Txt
CityARDMORECityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,111,038GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.EMILYSENTOURAGE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1987FormationYr
Legal Domicile StatePALegalDomicileStateCd
Activity Or MissionTHE ORGANIZATION WAS ORGANIZED TO RAISE MONEY IN SUPPORT OF CYSTIC FIBROSIS RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body16VotingMembersGoverningBodyCnt
Voting Members Independent16VotingMembersIndependentCnt
Total Employee2TotalEmployeeCnt
Total Volunteers60TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$484,834PYContributionsGrantsAmt
CY Contributions Grants$756,370CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$7,062PYInvestmentIncomeAmt
CY Investment Income$6,591CYInvestmentIncomeAmt
PY Other Revenue$190,036PYOtherRevenueAmt
CY Other Revenue$243,240CYOtherRevenueAmt
PY Total Revenue$681,932PYTotalRevenueAmt
CY Total Revenue$1,006,201CYTotalRevenueAmt
PY Grants And Similar Paid$541,543PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$735,457CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$18,218PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$39,076CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,551CYTotalFundraisingExpenseAmt
PY Other Expenses$96,560PYOtherExpensesAmt
CY Other Expenses$121,094CYOtherExpensesAmt
PY Total Expenses$656,321PYTotalExpensesAmt
CY Total Expenses$895,627CYTotalExpensesAmt
PY Revenues Less Expenses$25,611PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$110,574CYRevenuesLessExpensesAmt
Total Assets BOY$1,004,084TotalAssetsBOYAmt
Total Assets EOY$1,114,658TotalAssetsEOYAmt
Total Liabilities BOY$0TotalLiabilitiesBOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,004,084NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,114,658NetAssetsOrFundBalancesEOYAmt
MissionTHE ORGANIZATION WAS ORGANIZED FOR CHARITABLE, SCIENTIFIC, AND EDUCATIONAL PURPOSES, MORE SPECIFICALLY TO RAISE MONEY IN SUPPORT OF CYSTIC FIBROSIS RESEARCH.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$847,816ExpenseAmt
Grant$735,457GrantAmt
Revenue$1,006,201RevenueAmt
DescTHE ORGANIZATION RAISES MONEY FOR CYSTIC FIBROSIS RESEARCH THROUGH DIRECT SOLICITATION ACTIVITIES.Desc
Total Program Service Expenses$847,816TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee2EmployeeCnt
Employment Tax Returns Filed0EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members16GoverningBodyVotingMembersCnt
Independent Voting Member16IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy0ConflictOfInterestPolicyInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MICHAEL GOLINKOFFBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2153416720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 ST GEORGES ROAD G1AddressLine1Txt
CityARDMORECityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
MICHAEL GOLINKOFF
PRESIDENT4.00Yes (X)Yes (X)$0$0$0
ELIZABETH P KRAMER
SECRETARY8.00Yes (X)Yes (X)$0$0$0
EMILY K KRAMER-GOLINKOFF
DIRECTOR10.00Yes (X)$0$0$0
TED BERNSTEIN
DIRECTOR0.50Yes (X)$0$0$0
NICKIE BOSTON
DIRECTOR1.00Yes (X)$0$0$0
HEATHER KAHN BRAVER
DIRECTOR0.20Yes (X)$0$0$0
JOAN DENENBERG
DIRECTOR1.00Yes (X)$0$0$0
JESSICA KURTZ ERLBAUM
DIRECTOR0.20Yes (X)$0$0$0
NANCY ASTOR FOX
DIRECTOR0.50Yes (X)$0$0$0
BETH SHAPIRO LAVIN
DIRECTOR0.20Yes (X)$0$0$0
JESSICA RUTSTEIN LAZARUS
DIRECTOR4.00Yes (X)$0$0$0
RACHAEL PACKER
DIRECTOR1.00Yes (X)$0$0$0
GREG REH
DIRECTOR0.50Yes (X)$0$0$0
JULIET SPITZER
DIRECTOR0.20Yes (X)$0$0$0
JULIE WERTHEIMER
DIRECTOR1.00Yes (X)$0$0$0
DOUG YOUNG
DIRECTOR1.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$312,731FundraisingAmt
All Other Contributions$443,639AllOtherContributionsAmt
Noncash Contributions$33,221NoncashContributionsAmt
Total Contributions$756,370TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,591TotalRevenueColumnAmt
Exclusion$6,591ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$348,077FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$312,731ContriRptFundraisingEventAmt
Fundraising Direct Expenses$104,837FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$243,240TotalRevenueColumnAmt
Exclusion$243,240ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,006,201TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$249,831ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$666,707TotalAmt
Program Services$666,707ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$68,750TotalAmt
Program Services$68,750ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$35,962TotalAmt
Program Services$17,981ProgramServicesAmt
Management And General$17,981ManagementAndGeneralAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,114TotalAmt
Program Services$1,557ProgramServicesAmt
Management And General$1,557ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$5,000TotalAmt
Management And General$5,000ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$1,150TotalAmt
Management And General$1,150ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$6,065TotalAmt
Management And General$6,065ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$14,515TotalAmt
Program Services$14,515ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$464TotalAmt
Management And General$464ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
CONSULTING AND OTHER PR$78,306$78,306
CREDIT CARD & BANK FEES$9,064$9,064
COMPUTER & SOFTWARE$4,479$4,479
FUNDRAISING$1,551$1,551

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$500TotalAmt
Management And General$500ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$895,627TotalAmt
Program Services$847,816ProgramServicesAmt
Management And General$46,260ManagementAndGeneralAmt
Fundraising$1,551FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$388,376BOYAmt
EOY$296,492EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$615,708BOYAmt
EOY$818,166EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,004,084BOYAmt
EOY$1,114,658EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,004,084BOYAmt
EOY$1,114,658EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,004,084BOYAmt
EOY$1,114,658EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,004,084BOYAmt
EOY$1,114,658EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$110,574ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$215,792CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$267,551CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$831,724CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$238,001CurrentTaxYearMinus1YearAmt
Current Tax Year$443,639CurrentTaxYearAmt
Total$1,996,707TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$215,792CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$267,551CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$831,724CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$238,001CurrentTaxYearMinus1YearAmt
Current Tax Year$443,639CurrentTaxYearAmt
Total$1,996,707TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$10,017SubstantialContributorsTotAmt
Public Support Total170$1,986,690PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$4,779CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,062CurrentTaxYearMinus1YearAmt
Current Tax Year$6,591CurrentTaxYearAmt
Total$18,432TotalAmt
FieldValueIRS element (for citing)
Total Support$2,015,139TotalSupportAmt
Public Support CY1700.98590PublicSupportCY170Pct
Public Support PY1700.98040PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$1,006,201TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported$0RevenueNotReportedAmt
Revenue Subtotal$1,006,201RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,006,201TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$895,627TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$895,627ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$895,627TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICARegionTxt
Purpose Of GrantCYSTIC FIBROSIS RESEARCHPurposeOfGrantTxt
Cash Grant$68,750CashGrantAmt
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1ANNUAL GALAEvent1Nm
Gross Receipts Event1$660,808GrossReceiptsEvent1Amt
Charitable Contri Event1$312,731CharitableContriEvent1Amt
Gross Revenue Event1$348,077GrossRevenueEvent1Amt
Non Cash Prizes Event1$33,221NonCashPrizesEvent1Amt
Rent Facility Costs Event1$23,644RentFacilityCostsEvent1Amt
Food And Beverage Event1$42,899FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$5,073OtherDirectExpensesEvent1Amt
Gross Receipts Total$660,808GrossReceiptsTotalAmt
Charitable Contributions Tot$312,731CharitableContributionsTotAmt
Gross Revenue Total Events$348,077GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$33,221NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$23,644RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$42,899FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$5,073OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$104,837DirectExpenseSummaryEventsAmt
Net Income Summary$243,240NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
TALEE BIO
3001 MARKET STREET SUITE 140PHILADELPHIAPA19104812792302$385,457CYSTIC FIBROSIS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
220 MONTGOMERY STREETSAN FRANCISCOCA94104946036493$75,000CYSTIC FIBROSIS RESEARCH
UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242426004813$68,750CYSTIC FIBROSIS RESEARCH
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200CHAPEL HILLNC27599566001393$137,500CYSTIC FIBROSIS RESEARCH

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMISCELLANEOUS AUCTION ITEMSDesc
Contribution100ContributionCnt
Noncash Contributions Rpt F990$33,221NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (1)ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 32B:FormAndLineReferenceDesc
ExplanationSOME AUCTION ITEMS WERE AUCTIONED BY CHARITYBUZZ, A FOR-PROFIT INTERNET COMPANYExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2THREE BOARD MEMBERS ARE RELATED (PARENTS AND CHILD).
FORM 990, PART VI, SECTION B, LINE 11BFORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE IRS.
FORM 990, PART VI, SECTION C, LINE 18FORM 990 IS DISTRIBUTED TO BOARD MEMBERS PRIOR TO ITS FILING WITH THE IRS.
FORM 990, PART VI, SECTION C, LINE 19ISSUED UPON REQUEST.

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