CYSTIC FIBROSIS RESEARCH FUND: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
CYSTIC FIBROSIS RESEARCH FUND (EIN 45-3768161)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-05-13
IRS object ID
202441349349302984
Schema version
2023v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-05-13T11:33:35-00:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN232808145PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Michael Rosen & CompanyBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1261 Old York Road Suite 511AddressLine1Txt
CityJenkintownCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19046ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN453768161EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Cystic Fibrosis Research Fund IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCYSTBusinessNameControlTxt
Phone2153416720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 St Georges Road STE G1AddressLine1Txt
CityArdmoreCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMichael GolinkoffPersonNm
Person TitleExecutive DirectorPersonTitleTxt
Phone2153416720PhoneNum
Signature2024-05-13SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstMichaelPersonFirstNm
Person LastGolinkoffPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMichael RosenPreparerPersonNm
PTINP00793659PTIN
Phone2158866060PhoneNum
Preparation2024-05-13PreparationDt
Self EmployedYes (X)SelfEmployedInd

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1Emily's EntourageBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerMichael GolinkoffPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 St Georges Road STE G1AddressLine1Txt
CityArdmoreCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,939,065GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.emilysentourage.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1987FormationYr
Legal Domicile StatePALegalDomicileStateCd
Activity Or MissionResearch and drug development for the 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee6TotalEmployeeCnt
Total Volunteers100TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,845,067PYContributionsGrantsAmt
CY Contributions Grants$2,632,221CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$21,442PYInvestmentIncomeAmt
CY Investment Income$162,753CYInvestmentIncomeAmt
PY Other Revenue-$76,857PYOtherRevenueAmt
CY Other Revenue$4,983CYOtherRevenueAmt
PY Total Revenue$1,789,652PYTotalRevenueAmt
CY Total Revenue$2,799,957CYTotalRevenueAmt
PY Grants And Similar Paid$1,031,182PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$959,956CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$555,433PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$541,342CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$195,155CYTotalFundraisingExpenseAmt
PY Other Expenses$367,945PYOtherExpensesAmt
CY Other Expenses$618,511CYOtherExpensesAmt
PY Total Expenses$1,954,560PYTotalExpensesAmt
CY Total Expenses$2,119,809CYTotalExpensesAmt
PY Revenues Less Expenses-$164,908PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$680,148CYRevenuesLessExpensesAmt
Total Assets BOY$4,247,786TotalAssetsBOYAmt
Total Assets EOY$5,004,389TotalAssetsEOYAmt
Total Liabilities BOY$93,581TotalLiabilitiesBOYAmt
Total Liabilities EOY$170,036TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,154,205NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,834,353NetAssetsOrFundBalancesEOYAmt
MissionThe organization accelerates research and drug development for the final 10 of the cystic fibrosis community that do not benefit from the currently available mutation-targeted therapies.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,835,362ExpenseAmt
Grant$1,324,905GrantAmt
DescThe organization raises money for cystic fibrosis research throigh direct solicitation activities.Desc
Total Program Service Expenses$1,835,362TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document20IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee6EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Excs Tax Sect4951 Or4952 Or4953falseExcsTaxSect4951Or4952Or4953Ind
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyfalseConflictOfInterestPolicyInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMichael GolinkoffPersonNm
Phone2153416720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 St Georges RoadAddressLine1Txt
CityArdmoreCityNm
State AbbreviationPAStateAbbreviationCd
ZIP19003ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
Greg Reh
Director000.50Yes (X)$0$0$0
Jessica Rutstein Lazarus
Director000.50Yes (X)$0$0$0
Beth Shapiro Lavin
Director002.00Yes (X)$0$0$0
Julie Wertheimer
Director000.20Yes (X)$0$0$0
Coby Kramer Golinkoff
Director005.00Yes (X)$0$0$0
Danielle Selber
Director000.50Yes (X)$0$0$0
Doug Young
Director000.20Yes (X)$0$0$0
Nickie Boston
Director001.00Yes (X)$0$0$0
Emily Kramer Golinkoff
Director010.00Yes (X)$0$0$0
Nick Dinges
Director001.00Yes (X)$0$0$0
Nancy Astor Fox
Director000.20Yes (X)$0$0$0
Joan Denenberg
Director002.00Yes (X)$0$0$0
Michael Golinkoff
President010.00Yes (X)$0$0$0Yes (X)
Elizabeth Kramer
Secretary020.00Yes (X)$0$0$0Yes (X)
FieldValueIRS element (for citing)
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Fundraising$1,307,316FundraisingAmt
All Other Contributions$1,324,905AllOtherContributionsAmt
Total Contributions$2,632,221TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$162,753TotalRevenueColumnAmt
Exclusion$162,753ExclusionAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$1,307,316ContriRptFundraisingEventAmt
Fundraising Direct Expenses$139,108FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$139,108TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOtherDesc
Business900099BusinessCd
Total Revenue Column$144,091TotalRevenueColumnAmt
Exclusion$144,091ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$144,091OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,799,957TotalRevenueColumnAmt
Exclusion$306,844ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$959,956TotalAmt
Program Services$959,956ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$517,236TotalAmt
Program Services$403,769ProgramServicesAmt
Management And General$48,850ManagementAndGeneralAmt
Fundraising$64,617FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$24,106TotalAmt
Program Services$12,824ProgramServicesAmt
Management And General$4,918ManagementAndGeneralAmt
Fundraising$6,364FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Fees For Services Prof FundraisingFeesForServicesProfFundraising

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$42,094TotalAmt
Program Services$32,998ProgramServicesAmt
Management And General$4,522ManagementAndGeneralAmt
Fundraising$4,574FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$64,697TotalAmt
Program Services$25,556ProgramServicesAmt
Management And General$6,986ManagementAndGeneralAmt
Fundraising$32,155FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$46,569TotalAmt
Program Services$43,774ProgramServicesAmt
Fundraising$2,795FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$2,459TotalAmt
Program Services$1,475ProgramServicesAmt
Management And General$492ManagementAndGeneralAmt
Fundraising$492FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Contract Services$199,131$120,279$20,266$58,586
Fundraising$79,311$60,491$248$18,572
Recruitment$41,602$34,842$3,010$3,750
Scientific Conferences$64,867$61,617$3,250

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$77,781TotalAmt
Program Services$77,781ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,119,809TotalAmt
Program Services$1,835,362ProgramServicesAmt
Management And General$89,292ManagementAndGeneralAmt
Fundraising$195,155FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$414,112BOYAmt
EOY$65,163EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,833,674BOYAmt
EOY$4,928,051EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$11,175EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$4,247,786BOYAmt
EOY$5,004,389EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$93,581BOYAmt
EOY$170,036EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$93,581BOYAmt
EOY$170,036EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,029,205BOYAmt
EOY$4,734,353EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$125,000BOYAmt
EOY$100,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,154,205BOYAmt
EOY$4,834,353EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,247,786BOYAmt
EOY$5,004,389EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$680,148ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteefalseAuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,843,829CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,781,373CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,094,534CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,898,859CurrentTaxYearMinus1YearAmt
Current Tax Year$1,324,905CurrentTaxYearAmt
Total$8,943,500TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,843,829CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,781,373CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,094,534CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,898,859CurrentTaxYearMinus1YearAmt
Current Tax Year$1,324,905CurrentTaxYearAmt
Total$8,943,500TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$8,943,500PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$445,724CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$276,983CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$28,868CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$21,442CurrentTaxYearMinus1YearAmt
Current Tax Year$162,753CurrentTaxYearAmt
Total$935,770TotalAmt
FieldValueIRS element (for citing)
Total Support$9,879,270TotalSupportAmt
Public Support CY1700.90530PublicSupportCY170Pct
Public Support PY1700.85550PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd

Other Securities OtherSecuritiesGrp (2 entries)

DescDesc
Financial derivatives and other financial products
Closely-held equity interests

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescFederal income taxesDesc
FieldValueIRS element (for citing)
Total Rev Etc Audited Fincl Stmt$2,799,957TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$2,799,957RevenueSubtotalAmt
Total Revenue Per Form990$2,799,957TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,119,809TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,119,809ExpensesSubtotalAmt
Total Expenses Per Form990$2,119,809TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Europe Including Iceland and GreenlandGrant makingMedical Research$110,000
Europe Including Iceland and GreenlandGrant makingMedical Research$110,000
Europe Including Iceland and GreenlandGrant makingMedical Research$148,500
Europe Including Iceland and GreenlandGrant makingMedical Research$151,456
FieldValueIRS element (for citing)
Subtotal Spent$519,956SubtotalSpentAmt
Total Spent$519,956TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe Including Iceland and GreenlandMedical Research$110,000Check / Ach
Europe Including Iceland and GreenlandMedical Research$110,000Check / Ach
Europe Including Iceland and GreenlandMedical Research$148,500Check / Ach
Europe Including Iceland and GreenlandMedical Research$151,456Check / Ach
FieldValueIRS element (for citing)
Total Other Org4TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Annual GalaEvent1Nm
Gross Receipts Event1$1,307,316GrossReceiptsEvent1Amt
Charitable Contri Event1$1,307,316CharitableContriEvent1Amt
Rent Facility Costs Event1$32,700RentFacilityCostsEvent1Amt
Food And Beverage Event1$40,559FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$65,849OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,307,316GrossReceiptsTotalAmt
Charitable Contributions Tot$1,307,316CharitableContributionsTotAmt
Rent Fclty Costs Total Events$32,700RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$40,559FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$65,849OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$139,108DirectExpenseSummaryEventsAmt
Net Income Summary-$139,108NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmt
Case Western Reserve University
10900 Euclid AvenueClevelandOH44106341018992501c3$55,000
Regents of the University of Michigan
500 S State StreetAnn ArborMI48109386006309501c3$55,000
The University of Texas at Austin
110 Inner Campus Drive Stop KAustinTX78712746000203501c3$55,000
University of IA
105 Jessup HallIowa CityIA52242426004813501c3$165,000
University of Pittsburgh
116 Atwood Street Suite 201PittsburghPA15260250965591501c3$110,000
FieldValueIRS element (for citing)
Total Other Org5TotalOtherOrgCnt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section A, Line 2Four Board Members are related, 2 Parents and 2 Children.
Form 990, Part VI, Line 11Form 990 is distributed to Board Members prior to its filing with the Internal Revenue Service
Form 990, Part VI, Line 19Documents are issued to the public upon request.

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