ALS SOUTHWEST ASSOCIATION

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Cite this

Plain text ALS SOUTHWEST ASSOCIATION. furp.org, nonprofit organization profile, tax years 2023–2024. https://furp.org/org/als-southwest-association-330282720. Retrieved 2026-11-04.

APA furp.org. (n.d.). ALS SOUTHWEST ASSOCIATION [Nonprofit organization profile; tax years 2023–2024]. Retrieved November 4, 2026, from https://furp.org/org/als-southwest-association-330282720

MLA “ALS SOUTHWEST ASSOCIATION.” furp.org, tax years 2023–2024, https://furp.org/org/als-southwest-association-330282720. Accessed 4 Nov. 2026.

Retrieved 2026-11-04; covers tax years 2023–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $852K · expenses $744K · assets $1.1M

EIN
33-0282720
Address
14471 CHAMBERS RD STE 111, TUSTIN, CA 92780-6969
Website
HTTP//WWW.ALSUOC.ORG
NTEE code
E60
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
April 2024 (when the IRS recognized its exemption)
IRS status
Exempt: reinstated September 15, 2023 after an automatic revocation on June 15, 2023 IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

THE ALS ASSOCIATION IS THE ONLY NATIONAL NON-PROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS, OR AMYOTROPHIC LATERAL SCLEROSIS (OFTEN CALLED LOU GEHRIG'S DISEASE). THE ASSOCIATION'S MISSION IS TO FIND A CURE FOR AND IMPROVE THE LIVING CONDITIONS OF THOSE SUFFERING FROM ALS.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Natalie Villegas EXECUTIVE DIRECTOR2023-2024 $147,557$293,937 1

Officers and directors, no compensation reported

14 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Bill Collins PAST PRESIDENT2023-2024 3 $0 reported 1
Jeanne Fendel DIRECTOR2023-2024 1 $0 reported 1
Sue Bassett TREASURER2023-2024 3 $0 reported 1
Tom Motherway VICE PRESIDENT2023-2024 2 $0 reported 1
Mark Hershey PRESIDENT2023-2024 2 $0 reported 1
Scott Mcginley DIRECTOR2023-2024 1 $0 reported 1
Austin Nieto DIRECTOR2023-2024 1 $0 reported 1
Naomi Saucedo-Tanouye DIRECTOR2023-2024 1 $0 reported 1
Namita Goyal DIRECTOR2023-2024 1 $0 reported 1
John Porello DIRECTOR2023-2024 1 $0 reported 1
Rick Hoffpauer DIRECTOR2023-2024 1 $0 reported 1
Kelley Haghighi SECRETARY2023-2024 3 $0 reported 1
Alex Young DIRECTOR2023-2024 1 $0 reported 1
Mary Ann Eaton DIRECTOR2023-2024 1 $0 reported 1

People by year

2024 · 15 people listed · 1 paid, $148K · 0 employees · 100 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
NATALIE VILLEGAS EXECUTIVE DIRECTOR45 $147,557$0$0 $147,5571
BILL COLLINS PAST PRESIDENT3 $0$0$0 $01
JEANNE FENDEL DIRECTOR1 $0$0$0 $01
SUE BASSETT TREASURER3 $0$0$0 $01
TOM MOTHERWAY VICE PRESIDENT2 $0$0$0 $01
MARK HERSHEY PRESIDENT2 $0$0$0 $01
SCOTT MCGINLEY DIRECTOR1 $0$0$0 $01
AUSTIN NIETO DIRECTOR1 $0$0$0 $01
NAOMI SAUCEDO-TANOUYE DIRECTOR1 $0$0$0 $01
NAMITA GOYAL DIRECTOR1 $0$0$0 $01
JOHN PORELLO DIRECTOR1 $0$0$0 $01
RICK HOFFPAUER DIRECTOR1 $0$0$0 $01
KELLEY HAGHIGHI SECRETARY3 $0$0$0 $01
ALEX YOUNG DIRECTOR1 $0$0$0 $01
MARY ANN EATON DIRECTOR1 $0$0$0 $01
2023 · 15 people listed · 1 paid, $146K · 0 employees · 75 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
NATALIE VILLEGAS EXECUTIVE DIRECTOR45 $146,380$0$0 $146,3801
BILL COLLINS PAST PRESIDENT3 $0$0$0 $01
JEANNE FENDEL DIRECTOR1 $0$0$0 $01
SUE BASSETT TREASURER3 $0$0$0 $01
TOM MOTHERWAY VICE PRESIDENT2 $0$0$0 $01
MARK HERSHEY PRESIDENT2 $0$0$0 $01
SCOTT MCGINLEY DIRECTOR1 $0$0$0 $01
AUSTIN NIETO DIRECTOR1 $0$0$0 $01
NAOMI SAUCEDO-TANOUYE DIRECTOR1 $0$0$0 $01
NAMITA GOYAL DIRECTOR1 $0$0$0 $01
JOHN PORELLO DIRECTOR1 $0$0$0 $01
RICK HOFFPAUER DIRECTOR1 $0$0$0 $01
KELLEY HAGHIGHI SECRETARY3 $0$0$0 $01
ALEX YOUNG DIRECTOR1 $0$0$0 $01
MARY ANN EATON DIRECTOR1 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2023 · 1 grant to organizations · $41K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$852,070$744,303 $1,124,628$1,108,618 $638,001$0 $147,5570100
2023 · Form 990 period ending 2024-01-31 · view filing · original 990 ↗
$885,784$748,758 $1,017,281$1,000,851 $590,039$0 $146,380075

Funders of this organization

11 grantors reported grants to this organization, $1,900,477 in all, tax years 2012 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
ALS NETWORK Public charity Exact 2018-2024 7$1,182,236 2024$173,934
show
FORGOOD INC DAF sponsor Exact 2013-2019, 2021, 2024 9$437,812 2024$7,000
show
ORANGE COUNTY COMMUNITY FOUNDATION DAF sponsor Exact 2012-2019, 2021-2022, 2024 12$111,346 2024$6,000
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2019-2022, 2024-2025 6$52,574 2025$6,432
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2014, 2016, 2021-2022 4$44,000 2022$6,280
show
AMYOTROPHIC LATERAL SCLEROSIS ASSN Public charity Exact 2015, 2018 2$22,034 2018$7,000
show
SOBOBA BAND OF LUISENO INDIANS Public charity Exact 2016 1$15,000 2016$15,000
show
THE SAN DIEGO FOUNDATION DAF sponsor Exact 2016, 2022 2$10,725 2022$5,725
show
CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION Public charity Exact 2017 1$9,750 2017$9,750
show
NATIONAL PHILANTHROPIC TR DAF sponsor Exact 2024 1$7,500 2024$7,500
show
ANGELS BASEBALL FOUNDATION INC Public charity Exact 2014 1$7,500 2014$7,500
show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
SOUTHERN HUMBOLDT COMMUNITY HEALTHCARE FOUNDATIONCAE60 $497,122$166,926 Chairman$0 Same NTEE code E60, revenue within 2x, same state
NOROOZ CLINIC FOUNDATIONCAE60 $921,947$872,061 EXECUTIVE DIRECTOR$81,799 Same NTEE code E60, revenue within 2x, same state
MIRAGLO FOUNDATIONCAE60 $863,265$748,966 PRES & EXEC DIR$0 Same NTEE code E60, revenue within 2x, same state
DESERT CANCER FOUNDATIONCAE60 $1,285,723$808,218 EXECUTIVE DIRECTOR$149,887 Same NTEE code E60, revenue within 2x, same state
NIWELL CORPORATIONCAE60 $1,499,670$13,122 President$0 Same NTEE code E60, revenue within 2x, same state
WOMENS HEALTH INSTITUTIONCAE60 $676,911$666,594 CEO$0 Same NTEE code E60, revenue within 2x, same state
CALIFORNIA REHABILITATION FOUNDATIONCAE60 $440,258$260,053 DIRECTOR, BOARD CHAIR$0 Same NTEE code E60, revenue within 2x, same state
RIVERSIDE MEDICAL CLINIC CHARITABLE FOUNDATIONCAE60 $492,869$509,886 EXECUTIVE DIRECTOR$120,960 Same NTEE code E60, revenue within 2x, same state
ANNS ELITE CARE FOUNDATIONCAE60 $450,000$84,986 Executive Director$0 Same NTEE code E60, revenue within 2x, same state
COALITION FOR COMPASSIONATE CARE OF CALIFORNIACAE60 $702,543$715,830 CEO$184,338 Same NTEE code E60, revenue within 2x, same state
CALIFORNIA COVERAGE AND HEALTH INITIATIVESCAE60 $1,118,763$1,086,464 CEO$192,139 Same NTEE code E60, revenue within 2x, same state
SAFER ALTERNATIVES THROUGH NETWORKING AND EDUCATIONCAE60 $1,498,589$1,576,983 Executive Dir.$107,636 Same NTEE code E60, revenue within 2x, same state
LD OROURKE FOUNDATION INCCAE60 $582,823$978,256 DIRECTOR$0 Same NTEE code E60, revenue within 2x, same state
SPIRIT OAK WELLNESS RETREATCAE60 $664,066$11,702 CEO$0 Same NTEE code E60, revenue within 2x, same state
US HEALTH FAIRS - ORGCAE60 $560,659$807,054 Chairman$0 Same NTEE code E60, revenue within 2x, same state
INTERNATIONAL PEMPHIGUS PEMPHIGOID FOUNDATIONCAE60 $451,216$480,593 President$0 Same NTEE code E60, revenue within 2x, same state
MENTORING IN MEDICINE & SCIENCE INCCAE60 $987,467$819,811 Executive Director$102,240 Same NTEE code E60, revenue within 2x, same state
COVERED COMMUNITYCAE60 $1,074,151$898,510 Program Director$130,183 Same NTEE code E60, revenue within 2x, same state
SANTA YNEZ VALLEY THERAPEUTIC RIDING PROGRAMCAE60 $481,042$382,228 Director$0 Same NTEE code E60, revenue within 2x, same state
ACUPUNCTURE FOR AMERICA AND BEYONDCAE60 $760,359$748,347 C.E.O.$0 Same NTEE code E60, revenue within 2x, same state
MANES FOR MOVEMENT INCCAE60 $433,696$427,092 Treasurer$99,903 Same NTEE code E60, revenue within 2x, same state
MERCY HEALTHCAE60 $454,649$480,660 CEO$0 Same NTEE code E60, revenue within 2x, same state
STREET RACING KILLSCAE60 $602,378$465,654 Director$0 Same NTEE code E60, revenue within 2x, same state
CONNECTING TO CARECAE60 $585,967$574,249 Executive Dir.$126,930 Same NTEE code E60, revenue within 2x, same state
REACH OUT MORONGO BASINCAE60 $712,261$665,737 Executive Dir.$68,940 Same NTEE code E60, revenue within 2x, same state

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
JOHNNY CARSON FOUNDATION Private foundation$4,800,0008 12017–2024 FAITH REGIONAL HEALTH SERVICES FOUNDATION
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$3,265,54199 282016–2024 INTERNATIONAL PEMPHIGUS PEMPHIGOID FOUNDATION; MULTIPLE SCLEROSIS CENTER OF SOUTHWEST FLORIDA INC; MADISON HOUSE AUTISM FOUNDATION INC; COMMUNITY HEALTH SERVICES OF ADDISON COUNTY and 24 more
RANCHO SANTA FE FOUNDATION DAF sponsor$3,118,65812 12014–2025 MIRAGLO FOUNDATION
THE CALIFORNIA ENDOWMENT Private foundation$2,368,25917 12015–2024 CALIFORNIA COVERAGE AND HEALTH INITIATIVES
THE CALIFORNIA WELLNESS FOUNDATION Private foundation$2,150,00012 22016–2024 CALIFORNIA COVERAGE AND HEALTH INITIATIVES; MENTORING IN MEDICINE & SCIENCE INC
RIVERSIDE MEDICAL CLINIC FOUNDATION Private foundation$1,860,42410 12014–2024 RIVERSIDE MEDICAL CLINIC CHARITABLE FOUNDATION
PETER DEGEORGE CHARITABLE TR Private foundation$1,714,5745 12021–2025 WARRIOR HEALTH FOUNDATION
KING FAMILY CHARITABLE TRUST Private foundation$1,447,5286 12012–2018 MEDICAL MISSION INTERNATIONAL INC
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$1,158,33564 212014–2024 MIRAGLO FOUNDATION; HEALING KADI FOUNDATION; MULTIPLE SCLEROSIS CENTER OF SOUTHWEST FLORIDA INC; P L A N OF SOUTHWEST OHIO INC and 17 more
HUMBOLDT AREA FOUNDATION DAF sponsor$956,4453 12012–2023 SOUTHERN HUMBOLDT COMMUNITY HEALTHCARE FOUNDATION
PETER@DEGEORGE FAMILY FOUNDATION INC Private foundation$955,7353 12019–2021 WARRIOR HEALTH FOUNDATION
COLORADO GIVES FOUNDATION DAF sponsor$842,72829 22010–2024 ALS UNITED ROCKY MOUNTAIN; INTERNATIONAL MIDWIFE ASSISTANCE INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$724,70848 172019–2025 CARL MCCAIN MEMORIAL FOUNDATION; ALS UNITED ROCKY MOUNTAIN; TRANSPLANT LIFE FOUNDATION; TUALITY HEALTHCARE FOUNDATION and 13 more
THE BATCHELOR FOUNDATION INC Private foundation$685,00013 12011–2024 KIDS CANCER FOUNDATION INC
DOGWOOD HEALTH TRUST Private foundation$677,5006 12020–2024 NANTAHALA HEALTH FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $744,303 spent · pay $324,944 · grants $0 · events $129,163
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $324,944$218,568$89,949$16,427 43.7%
All other expenses $90,569$76,909$13,660- 12.2%
Other (as described)PROGRAM EXPENSES $88,974$88,974-- 12.0%
Other (as described)COMPUTER ACCESSORIES $51,300$51,300-- 6.9%
Other (as described)RESEARCH $50,000$50,000-- 6.7%
Other (as described)CLINIC SUPPORT $49,000$49,000-- 6.6%
Occupancy $35,930$22,165$10,490$3,275 4.8%
Depreciation and depletion $21,668$21,668-- 2.9%
Office expenses $17,058$16,858-$200 2.3%
Fees: accounting $9,070-$9,070- 1.2%
Insurance $5,790-$5,790- 0.8%
Fundraising events Eventdirect expenses; gross income $306,504$129,163reported apart
Total$744,303100%

View the filing

2023 · Form 990 · $748,758 spent · pay $311,121 · grants $0 · events $94,347
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $311,121$164,074$131,424$15,623 41.6%
Other (as described)COMPUTER ACCESSORIES $95,687$95,687-- 12.8%
Other (as described)PROFESSIONAL SERVICES $79,487$79,487-- 10.6%
Other (as described)PATIENT SERVICES PROGRA $69,668$69,668-- 9.3%
All other expenses $68,828$34,967$28,158$5,703 9.2%
Other (as described)ALS REVENUE SHARING $40,715$40,715-- 5.4%
Occupancy $34,789$21,238$9,869$3,682 4.6%
Depreciation and depletion $26,723$26,723-- 3.6%
Office expenses $17,540$14,180$1,680$1,680 2.3%
Fees: accounting $4,200-$4,200- 0.6%
Fundraising events Eventdirect expenses; gross income $369,809$94,347reported apart
Total$748,758100%

View the filing

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