ALS SOUTHWEST ASSOCIATION
Reduce your risk when donating: see where the money actually goes.
Cite this
Plain text ALS SOUTHWEST ASSOCIATION. furp.org, nonprofit organization profile, tax years 2023–2024. https://furp.org/org/als-southwest-association-330282720. Retrieved 2026-11-04.
APA furp.org. (n.d.). ALS SOUTHWEST ASSOCIATION [Nonprofit organization profile; tax years 2023–2024]. Retrieved November 4, 2026, from https://furp.org/org/als-southwest-association-330282720
MLA “ALS SOUTHWEST ASSOCIATION.” furp.org, tax years 2023–2024, https://furp.org/org/als-southwest-association-330282720. Accessed 4 Nov. 2026.
Retrieved 2026-11-04; covers tax years 2023–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $852K · expenses $744K · assets $1.1M
- EIN
- 33-0282720
- Address
- 14471 CHAMBERS RD STE 111, TUSTIN, CA 92780-6969
- Website
- HTTP//WWW.ALSUOC.ORG
- NTEE code
- E60
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- April 2024 (when the IRS recognized its exemption)
- IRS status
- Exempt: reinstated September 15, 2023 after an automatic revocation on June 15, 2023 IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE ALS ASSOCIATION IS THE ONLY NATIONAL NON-PROFIT VOLUNTARY HEALTH ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS, OR AMYOTROPHIC LATERAL SCLEROSIS (OFTEN CALLED LOU GEHRIG'S DISEASE). THE ASSOCIATION'S MISSION IS TO FIND A CURE FOR AND IMPROVE THE LIVING CONDITIONS OF THOSE SUFFERING FROM ALS.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Natalie Villegas | EXECUTIVE DIRECTOR | 2023-2024 | $147,557 | $293,937 | 1 |
Officers and directors, no compensation reported
14 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Bill Collins | PAST PRESIDENT | 2023-2024 | 3 | $0 reported | 1 |
| Jeanne Fendel | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Sue Bassett | TREASURER | 2023-2024 | 3 | $0 reported | 1 |
| Tom Motherway | VICE PRESIDENT | 2023-2024 | 2 | $0 reported | 1 |
| Mark Hershey | PRESIDENT | 2023-2024 | 2 | $0 reported | 1 |
| Scott Mcginley | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Austin Nieto | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Naomi Saucedo-Tanouye | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Namita Goyal | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| John Porello | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Rick Hoffpauer | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Kelley Haghighi | SECRETARY | 2023-2024 | 3 | $0 reported | 1 |
| Alex Young | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
| Mary Ann Eaton | DIRECTOR | 2023-2024 | 1 | $0 reported | 1 |
People by year
2024 · 15 people listed · 1 paid, $148K · 0 employees · 100 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| NATALIE VILLEGAS | EXECUTIVE DIRECTOR | 45 | $147,557 | $0 | $0 | $147,557 | 1 |
| BILL COLLINS | PAST PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JEANNE FENDEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SUE BASSETT | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| TOM MOTHERWAY | VICE PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK HERSHEY | PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT MCGINLEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AUSTIN NIETO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NAOMI SAUCEDO-TANOUYE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NAMITA GOYAL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN PORELLO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RICK HOFFPAUER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLEY HAGHIGHI | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| ALEX YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN EATON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 15 people listed · 1 paid, $146K · 0 employees · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| NATALIE VILLEGAS | EXECUTIVE DIRECTOR | 45 | $146,380 | $0 | $0 | $146,380 | 1 |
| BILL COLLINS | PAST PRESIDENT | 3 | $0 | $0 | $0 | $0 | 1 |
| JEANNE FENDEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SUE BASSETT | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| TOM MOTHERWAY | VICE PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK HERSHEY | PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT MCGINLEY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| AUSTIN NIETO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NAOMI SAUCEDO-TANOUYE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| NAMITA GOYAL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN PORELLO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RICK HOFFPAUER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLEY HAGHIGHI | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| ALEX YOUNG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN EATON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2023 · 1 grant to organizations · $41K
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $852,070 | $744,303 | $1,124,628 | $1,108,618 | $638,001 | $0 | $147,557 | 0 | 100 |
| 2023 · Form 990 | ||||||||
| $885,784 | $748,758 | $1,017,281 | $1,000,851 | $590,039 | $0 | $146,380 | 0 | 75 |
Funders of this organization
11 grantors reported grants to this organization, $1,900,477 in all, tax years 2012 to 2025. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| ALS NETWORK | Public charity | Exact | 2018-2024 | 7 | $1,182,236 | 2024 | $173,934 | show |
| FORGOOD INC | DAF sponsor | Exact | 2013-2019, 2021, 2024 | 9 | $437,812 | 2024 | $7,000 | show |
| ORANGE COUNTY COMMUNITY FOUNDATION | DAF sponsor | Exact | 2012-2019, 2021-2022, 2024 | 12 | $111,346 | 2024 | $6,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2022, 2024-2025 | 6 | $52,574 | 2025 | $6,432 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2014, 2016, 2021-2022 | 4 | $44,000 | 2022 | $6,280 | show |
| AMYOTROPHIC LATERAL SCLEROSIS ASSN | Public charity | Exact | 2015, 2018 | 2 | $22,034 | 2018 | $7,000 | show |
| SOBOBA BAND OF LUISENO INDIANS | Public charity | Exact | 2016 | 1 | $15,000 | 2016 | $15,000 | show |
| THE SAN DIEGO FOUNDATION | DAF sponsor | Exact | 2016, 2022 | 2 | $10,725 | 2022 | $5,725 | show |
| CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION | Public charity | Exact | 2017 | 1 | $9,750 | 2017 | $9,750 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2024 | 1 | $7,500 | 2024 | $7,500 | show |
| ANGELS BASEBALL FOUNDATION INC | Public charity | Exact | 2014 | 1 | $7,500 | 2014 | $7,500 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| SOUTHERN HUMBOLDT COMMUNITY HEALTHCARE FOUNDATION | CA | E60 | $497,122 | $166,926 | Chairman | $0 | Same NTEE code E60, revenue within 2x, same state |
| NOROOZ CLINIC FOUNDATION | CA | E60 | $921,947 | $872,061 | EXECUTIVE DIRECTOR | $81,799 | Same NTEE code E60, revenue within 2x, same state |
| MIRAGLO FOUNDATION | CA | E60 | $863,265 | $748,966 | PRES & EXEC DIR | $0 | Same NTEE code E60, revenue within 2x, same state |
| DESERT CANCER FOUNDATION | CA | E60 | $1,285,723 | $808,218 | EXECUTIVE DIRECTOR | $149,887 | Same NTEE code E60, revenue within 2x, same state |
| NIWELL CORPORATION | CA | E60 | $1,499,670 | $13,122 | President | $0 | Same NTEE code E60, revenue within 2x, same state |
| WOMENS HEALTH INSTITUTION | CA | E60 | $676,911 | $666,594 | CEO | $0 | Same NTEE code E60, revenue within 2x, same state |
| CALIFORNIA REHABILITATION FOUNDATION | CA | E60 | $440,258 | $260,053 | DIRECTOR, BOARD CHAIR | $0 | Same NTEE code E60, revenue within 2x, same state |
| RIVERSIDE MEDICAL CLINIC CHARITABLE FOUNDATION | CA | E60 | $492,869 | $509,886 | EXECUTIVE DIRECTOR | $120,960 | Same NTEE code E60, revenue within 2x, same state |
| ANNS ELITE CARE FOUNDATION | CA | E60 | $450,000 | $84,986 | Executive Director | $0 | Same NTEE code E60, revenue within 2x, same state |
| COALITION FOR COMPASSIONATE CARE OF CALIFORNIA | CA | E60 | $702,543 | $715,830 | CEO | $184,338 | Same NTEE code E60, revenue within 2x, same state |
| CALIFORNIA COVERAGE AND HEALTH INITIATIVES | CA | E60 | $1,118,763 | $1,086,464 | CEO | $192,139 | Same NTEE code E60, revenue within 2x, same state |
| SAFER ALTERNATIVES THROUGH NETWORKING AND EDUCATION | CA | E60 | $1,498,589 | $1,576,983 | Executive Dir. | $107,636 | Same NTEE code E60, revenue within 2x, same state |
| LD OROURKE FOUNDATION INC | CA | E60 | $582,823 | $978,256 | DIRECTOR | $0 | Same NTEE code E60, revenue within 2x, same state |
| SPIRIT OAK WELLNESS RETREAT | CA | E60 | $664,066 | $11,702 | CEO | $0 | Same NTEE code E60, revenue within 2x, same state |
| US HEALTH FAIRS - ORG | CA | E60 | $560,659 | $807,054 | Chairman | $0 | Same NTEE code E60, revenue within 2x, same state |
| INTERNATIONAL PEMPHIGUS PEMPHIGOID FOUNDATION | CA | E60 | $451,216 | $480,593 | President | $0 | Same NTEE code E60, revenue within 2x, same state |
| MENTORING IN MEDICINE & SCIENCE INC | CA | E60 | $987,467 | $819,811 | Executive Director | $102,240 | Same NTEE code E60, revenue within 2x, same state |
| COVERED COMMUNITY | CA | E60 | $1,074,151 | $898,510 | Program Director | $130,183 | Same NTEE code E60, revenue within 2x, same state |
| SANTA YNEZ VALLEY THERAPEUTIC RIDING PROGRAM | CA | E60 | $481,042 | $382,228 | Director | $0 | Same NTEE code E60, revenue within 2x, same state |
| ACUPUNCTURE FOR AMERICA AND BEYOND | CA | E60 | $760,359 | $748,347 | C.E.O. | $0 | Same NTEE code E60, revenue within 2x, same state |
| MANES FOR MOVEMENT INC | CA | E60 | $433,696 | $427,092 | Treasurer | $99,903 | Same NTEE code E60, revenue within 2x, same state |
| MERCY HEALTH | CA | E60 | $454,649 | $480,660 | CEO | $0 | Same NTEE code E60, revenue within 2x, same state |
| STREET RACING KILLS | CA | E60 | $602,378 | $465,654 | Director | $0 | Same NTEE code E60, revenue within 2x, same state |
| CONNECTING TO CARE | CA | E60 | $585,967 | $574,249 | Executive Dir. | $126,930 | Same NTEE code E60, revenue within 2x, same state |
| REACH OUT MORONGO BASIN | CA | E60 | $712,261 | $665,737 | Executive Dir. | $68,940 | Same NTEE code E60, revenue within 2x, same state |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $744,303 spent · pay $324,944 · grants $0 · events $129,163
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $324,944 | $218,568 | $89,949 | $16,427 | 43.7% | |
| All other expenses | $90,569 | $76,909 | $13,660 | - | 12.2% | |
| Other (as described) | PROGRAM EXPENSES | $88,974 | $88,974 | - | - | 12.0% |
| Other (as described) | COMPUTER ACCESSORIES | $51,300 | $51,300 | - | - | 6.9% |
| Other (as described) | RESEARCH | $50,000 | $50,000 | - | - | 6.7% |
| Other (as described) | CLINIC SUPPORT | $49,000 | $49,000 | - | - | 6.6% |
| Occupancy | $35,930 | $22,165 | $10,490 | $3,275 | 4.8% | |
| Depreciation and depletion | $21,668 | $21,668 | - | - | 2.9% | |
| Office expenses | $17,058 | $16,858 | - | $200 | 2.3% | |
| Fees: accounting | $9,070 | - | $9,070 | - | 1.2% | |
| Insurance | $5,790 | - | $5,790 | - | 0.8% | |
| Fundraising events Event | direct expenses; gross income $306,504 | $129,163 | reported apart | |||
| Total | $744,303 | 100% |
2023 · Form 990 · $748,758 spent · pay $311,121 · grants $0 · events $94,347
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $311,121 | $164,074 | $131,424 | $15,623 | 41.6% | |
| Other (as described) | COMPUTER ACCESSORIES | $95,687 | $95,687 | - | - | 12.8% |
| Other (as described) | PROFESSIONAL SERVICES | $79,487 | $79,487 | - | - | 10.6% |
| Other (as described) | PATIENT SERVICES PROGRA | $69,668 | $69,668 | - | - | 9.3% |
| All other expenses | $68,828 | $34,967 | $28,158 | $5,703 | 9.2% | |
| Other (as described) | ALS REVENUE SHARING | $40,715 | $40,715 | - | - | 5.4% |
| Occupancy | $34,789 | $21,238 | $9,869 | $3,682 | 4.6% | |
| Depreciation and depletion | $26,723 | $26,723 | - | - | 3.6% | |
| Office expenses | $17,540 | $14,180 | $1,680 | $1,680 | 2.3% | |
| Fees: accounting | $4,200 | - | $4,200 | - | 0.6% | |
| Fundraising events Event | direct expenses; gross income $369,809 | $94,347 | reported apart | |||
| Total | $748,758 | 100% |
Comments