THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Cite this
Plain text THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC. furp.org, nonprofit organization profile, tax years 2010–2025. https://furp.org/org/the-parent-project-for-muscular-dystrophy-research-inc-311405490. Retrieved 2026-10-29.
APA furp.org. (n.d.). THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC [Nonprofit organization profile; tax years 2010–2025]. Retrieved October 29, 2026, from https://furp.org/org/the-parent-project-for-muscular-dystrophy-research-inc-311405490
MLA “THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC.” furp.org, tax years 2010–2025, https://furp.org/org/the-parent-project-for-muscular-dystrophy-research-inc-311405490. Accessed 29 Oct. 2026.
Retrieved 2026-10-29; covers tax years 2010–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $12.0M · expenses $11.9M · assets $12.7M
- Also known as
- DYSTROPHY RESEARCH INC
- EIN
- 31-1405490
- Address
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- Website
- WWW.PARENTPROJECTMD.ORG
- NTEE code
- P20Z
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- June 1994 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE PARENT PROJECT MUSCULAR DYSTROPHY (PPMD) FIGHTS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES TO IMPACT POLICY, DEMAND OPTIMAL CARE FOR EVERY SINGLE FAMILY, AND STRIVE TO ENSURE ACCESS TO APPROVED THERAPIES.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
24 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Patricia A Furlong | PRESIDENT AND CEO | 2010-2025 | $405,865 | $3,952,329 | 1 |
| Kimberly Galberaith | PRINCIPAL CREATIVE DIRECTOR | 2010-2025 | $213,212 | $2,401,685 | 1 |
| Kaylan Moitoso | CHIEF BUSINESS OFFICER | 2015-2025 | $327,436 | $2,246,654 | 1 |
| Ann Martin | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SVCS. | 2018-2025 | $208,715 | $1,269,826 | 1 |
| Rachel Schrader | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 2020-2025 | $186,658 | $870,581 | 1 |
| Megan Freed | CHIEF OF STRATEGIC INITIATIVES | 2025 | $227,604 | $227,604 | 1 |
| Ryan Fischer (former) | CHIEF ADVOCACY OFFICER | 2015-2022 | $201,706 | $1,234,760 | 1 |
| Anne Kennedy (former) | SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 2015-2019 | $160,018 | $843,156 | 2 |
| Abby H Bronson (former) | SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 2016-2019 | $223,666 | $808,633 | 1 |
| Kelly J Dougherty (former) | FORMER SR. VP-FINANCE AND ADMINISTRATION | 2017-2020 | $157,957 | $661,240 | 1 |
| Kathleen Kinnett (former) | SENIOR VICE PRESIDENT, CLINICAL CARE | 2016-2019 | $127,799 | $583,193 | 1 |
| Nancy Gross (former) | CFO THROUGH DEC 15 | 2010-2015 | $104,087 | $563,038 | 1 |
| Eric Camino (former) | VICE PRESIDENT, RESEARCH AND CLINICAL INNOVATION | 2020-2023 | $182,118 | $461,434 | 1 |
| William P Nolan Jr (former) | SENIOR VICE PRESIDENT, COMMUNICATIONS | 2016-2018 | $138,310 | $383,185 | 1 |
| Erin Dresnick (former) | DIRECTOR, DEVELOPMENT | 2019-2021 | $123,446 | $374,606 | 1 |
| Nicole Herring (former) | VICE PRESIDENT, DEVELOPMENT & COMMUNITY ENGAGEMENT | 2021-2023 | $192,556 | $345,764 | 1 |
| Sharon Hesterlee (former) | VP OF RESEARCH | 2013-2014 | $166,729 | $327,433 | 1 |
| William P Nolan (former) | SR. VP- COMMUNICATIONS | 2019-2020 | $112,263 | $271,871 | 1 |
| Holly Peay (former) | VP OF OUTREACH AND EDUCATI | 2013-2014 | $119,465 | $232,085 | 1 |
| Kathi Kinnett (former) | SR VP OF CLINICAL CARE | 2014-2015 | $116,099 | $229,193 | 1 |
| Jodi Wolff (former) | CHIEF PROGRAM OFFICER | 2024 | $206,964 | $206,964 | 1 |
| John Porter (former) | FORMER CEO | 2015 | $190,000 | $190,000 | 1 |
| Nicole Armstrong (former) | SR. DIRECTOR, COMM RESEARCH AND GENETIC SERVICES | 2021 | $121,815 | $121,815 | 1 |
| Amanda Wilkison (former) | SR. DIRECTOR, CLINICAL CARE AND EDUCATION | 2021 | $119,206 | $119,206 | 1 |
Officers and directors, no compensation reported
52 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Alpa Khushalani | VICE CHAIR | 2023-2025 | 6 | $0 reported | 1 |
| Dawn Rezkalla | TREASURER | 2023-2025 | 6 | $0 reported | 1 |
| Deanne Friar | SECRETARY | 2021-2025 | 6 | $0 reported | 1 |
| David Hofstein Jd | EMERITUS | 2018-2025 | 2 | $0 reported | 1 |
| Maru Chapur | DIRECTOR | 2024-2025 | 2 | $0 reported | 1 |
| Michelle Furlong | DIRECTOR | 2023-2025 | 2 | $0 reported | 1 |
| Susan Huang | DIRECTOR | 2024-2025 | 2 | $0 reported | 1 |
| John Killian | CHAIR | 2010-2025 | 8 | $0 reported | 1 |
| Scott Perrin Phd | DIRECTOR | 2024-2025 | 2 | $0 reported | 1 |
| Colin Rensch | DIRECTOR | 2019-2025 | 2 | $0 reported | 1 |
| Linda Cripe Md | EMERITUS | 2016-2025 | 2 | $0 reported | 1 |
| Susan Apkon | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Tim Cripe Md Phd | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Gretchen Egner (former) | BOARD CHAIRMAN | 2021-2024 | 8 | $0 reported | 1 |
| Sue Apkon (former) | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Jeffrey Bigelow (former) | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Timothy Cripe (former) | DIRECTOR | 2023-2024 | 2 | $0 reported | 1 |
| Lance Hester (former) | DIRECTOR | 2012-2024 | 2 | $0 reported | 1 |
| Richard Klein (former) | DIRECTOR | 2018-2024 | 2 | $0 reported | 1 |
| Rasha Alnaibari (former) | DIRECTOR | 2018-2023 | 2 | $0 reported | 1 |
| Anessa Fehsenfeld (former) | DIRECTOR | 2011-2023 | 2 | $0 reported | 1 |
| Beth White (former) | DIRECTOR | 2020-2023 | 2 | $0 reported | 1 |
| Jeff Bigelow (former) | BOARD MEMBER | 2021-2022 | 2 | $0 reported | 1 |
| Christopher Jones (former) | BOARD MEMBER | 2019-2022 | 2 | $0 reported | 1 |
| Joanna Johnson (former) | SECRETARY | 2015-2020 | 6 | $0 reported | 1 |
| Jonathan Finder (former) | BOARD MEMBER | 2015-2020 | 2 | $0 reported | 1 |
| Donna Saccamanno (former) | BOARD MEMBER | 2019-2020 | 2 | $0 reported | 1 |
| Christine L Piacentino (former) | BOARD SECRETARY | 2010-2019 | 6 | $0 reported | 1 |
| Christopher B Curran (former) | BOARD MEMBER | 2017-2019 | 2 | $0 reported | 1 |
| Elizabeth White (former) | BOARD MEMBER | 2019 | 2 | $0 reported | 1 |
| Howard Kaplan (former) | BOARD MEMBER | 2019 | 2 | $0 reported | 1 |
| Ellen Wagner (former) | BOARD TREASURER | 2012-2018 | 15 | $0 reported | 1 |
| Chris Jones (former) | BOARD MEMBER | 2017-2018 | 2 | $0 reported | 1 |
| Lawrence Charnas (former) | BOARD MEMBER | 2016-2017 | 2 | $0 reported | 1 |
| Catherine Jones Collins (former) | BOARD MEMBER | 2011-2016 | 2 | $0 reported | 1 |
| Daniel P Garofalo (former) | BOARD SECRETARY | 2010-2014 | 10 | $0 reported | 1 |
| Robert Getler (former) | BOARD MEMBER | 2012-2014 | 10 | $0 reported | 1 |
| Martin Karlin (former) | BOARD MEMBER | 2013-2014 | 3 | $0 reported | 1 |
| Robert Mcdonald Md (former) | BOARD MEMBER | 2010-2014 | 10 | $0 reported | 1 |
| Heinrich Meermann (former) | BOARD MEMBER | 2010-2014 | 3 | $0 reported | 1 |
| James Poysky (former) | BOARD MEMBER | 2011-2014 | 3 | $0 reported | 1 |
| Douglas Biggar (former) | BOARD MEMBER | 2012-2014 | 3 | $0 reported | 1 |
| Neil Brandom (former) | BOARD MEMBER | 2010-2013 | 3 | $0 reported | 1 |
| John Hiatt (former) | BOARD MEMBER | 2010-2013 | 3 | $0 reported | 1 |
| Robert Nutt (former) | TRUSTEE | 2010-2013 | 3 | $0 reported | 1 |
| Jasbir Seehra (former) | TRUSTEE | 2013 | 3 | $0 reported | 1 |
| Marty Karlin (former) | TRUSTEE | 2010-2012 | 3 | $0 reported | 1 |
| Jasbhir Seehra (former) | TRUSTEE | 2011-2012 | 3 | $0 reported | 1 |
| David Drohan (former) | TRUSTEE | 2010-2011 | 3 | $0 reported | 1 |
| Michael Lee (former) | TRUSTEE | 2010 | 1 | $0 reported | 1 |
| Trent Spear (former) | FORMER TRUSTEE | 2010 | 0 | $0 reported | 1 |
| John Keast (former) | FORMER TRUSTEE | 2010 | 0 | $0 reported | 1 |
People by year
2025 · 19 people listed · 6 paid, $1.6M · 28 employees · 550 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $391,500 | $0 | $14,365 | $405,865 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $316,440 | $0 | $10,996 | $327,436 | 1 |
| MEGAN FREED | CHIEF OF STRATEGIC INITIATIVES | 40 | $209,234 | $0 | $18,370 | $227,604 | 1 |
| KIMBERLY GALBERAITH | PRINCIPAL CREATIVE DIRECTOR | 40 | $190,487 | $0 | $22,725 | $213,212 | 1 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SVCS. | 40 | $186,369 | $0 | $22,346 | $208,715 | 1 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 40 | $177,589 | $0 | $9,069 | $186,658 | 1 |
| JOHN KILLIAN | CHAIR | 8 | $0 | $0 | $0 | $0 | 1 |
| ALPA KHUSHALANI | VICE CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| DAWN REZKALLA | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DEANNE FRIAR | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHELLE FURLONG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PERRIN PHD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARU CHAPUR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUSAN HUANG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUSAN APKON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM CRIPE MD PHD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE MD | EMERITUS | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HOFSTEIN JD | EMERITUS | 2 | $0 | $0 | $0 | $0 | 1 |
2024 · 21 people listed · 5 paid, $1.3M · 27 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $370,075 | $0 | $13,694 | $383,769 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $293,650 | $0 | $9,025 | $302,675 | 1 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 40 | $174,800 | $0 | $33,557 | $208,357 | 1 |
| JODI WOLFF | CHIEF PROGRAM OFFICER | 40 | $194,569 | $0 | $12,395 | $206,964 | 1 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. | 40 | $176,600 | $0 | $16,829 | $193,429 | 1 |
| GRETCHEN EGNER | BOARD CHAIRMAN | 8 | $0 | $0 | $0 | $0 | 1 |
| ALPA KHUSHALANI | VICE CHAIR | 8 | $0 | $0 | $0 | $0 | 1 |
| DAWN REZKALLA | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DEANNE FRIAR | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE | 6 | $0 | $0 | $0 | $0 | 1 |
| SUE APKON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY BIGELOW | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARU CHAPUR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TIMOTHY CRIPE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHELLE FURLONG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUSAN HUANG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PERRIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 21 people listed · 5 paid, $1.2M · 26 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $371,400 | $0 | $15,379 | $386,779 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $256,267 | $0 | $10,431 | $266,698 | 1 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERVI | 40 | $172,800 | $0 | $22,640 | $195,440 | 1 |
| NICOLE HERRING | VICE PRESIDENT, DEVELOPMENT & COMMUNITY ENGAGEMENT | 40 | $157,850 | $0 | $34,706 | $192,556 | 1 |
| ERIC CAMINO | VICE PRESIDENT, RESEARCH AND CLINICAL INNOVATION | 40 | $159,938 | $0 | $22,180 | $182,118 | 1 |
| GRETCHEN EGNER | BOARD CHAIRMAN | 8 | $0 | $0 | $0 | $0 | 1 |
| ALPA KHUSHALANI | VICE CHAIR | 8 | $0 | $0 | $0 | $0 | 1 |
| DAWN REZKALLA | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DEANNE FRIAR | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE | 6 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | EXECUTIVE COMMITTEE | 6 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SUE APKON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY BIGELOW | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TIMOTHY CRIPE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHELLE FURLONG | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WHITE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 17 people listed · 5 paid, $1.0M · 25 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $292,250 | $0 | $12,648 | $304,898 | 1 |
| RYAN FISCHER | CHIEF ADVOCACY OFFICER | 40 | $187,206 | $0 | $14,500 | $201,706 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $184,600 | $0 | $9,443 | $194,043 | 1 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE AND EDUCATION | 40 | $153,280 | $0 | $15,124 | $168,404 | 1 |
| ANN MARTIN | VP, COMM RESEARCH AND GENETIC SERVICES | 40 | $151,910 | $0 | $7,088 | $158,998 | 1 |
| ANESSA FEHSENFELD | BOARD CHAIRMAN | 8 | $0 | $0 | $0 | $0 | 1 |
| GRETCHEN EGNER | VICE CHAIR | 8 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DEANNE FRIAR | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| DAVID N HOFSTEIN | EXECUTIVE OVERSIGHT CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFF BIGELOW | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WHITE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 23 people listed · 11 paid, $1.8M · 19 employees · 500 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING CEO & PRESIDENT | 40 | $223,857 | $0 | $9,869 | $233,726 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $190,161 | $0 | $9,654 | $199,815 | 1 |
| RYAN FISCHER | CHIEF ADVOCACY OFFICER | 40 | $172,041 | $0 | $13,639 | $185,680 | 1 |
| KIMBERLY GALBERAITH | CREATIVE DIRECTOR | 40 | $129,280 | $0 | $35,865 | $165,145 | 1 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE AND EDUCATION | 40 | $147,903 | $0 | $13,494 | $161,397 | 1 |
| NICOLE HERRING | VP, DEV AND COMM ENGAGEMENT | 40 | $122,995 | $0 | $30,213 | $153,208 | 1 |
| ANN MARTIN | VP, COMM RESEARCH AND GENETIC SERVICES | 40 | $141,300 | $0 | $6,729 | $148,029 | 1 |
| ERIC CAMINO | VICE PRESIDENT, RESEARCH & CLINICAL INNOVATION | 40 | $125,950 | $0 | $21,713 | $147,663 | 1 |
| ERIN DRESNICK | DIRECTOR, DEVELOPMENT | 40 | $115,000 | $0 | $8,446 | $123,446 | 1 |
| NICOLE ARMSTRONG | SR. DIRECTOR, COMM RESEARCH AND GENETIC SERVICES | 40 | $114,000 | $0 | $7,815 | $121,815 | 1 |
| AMANDA WILKISON | SR. DIRECTOR, CLINICAL CARE AND EDUCATION | 40 | $107,562 | $0 | $11,644 | $119,206 | 1 |
| ANESSA FEHSENFELD | BOARD CHAIRMAN | 8 | $0 | $0 | $0 | $0 | 1 |
| GRETCHEN EGNER | VICE CHAIR | 8 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | TREASURER | 6 | $0 | $0 | $0 | $0 | 1 |
| DEANNE FRIAR | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| DAVID N HOFSTEIN | EXECUTIVE OVERSIGHT CHAIR | 6 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFF BIGELOW | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WHITE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 24 people listed · 10 paid, $1.6M · 24 employees · 988 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING CEO & PRESIDENT | 40 | $230,950 | $0 | $10,484 | $241,434 | 1 |
| KIMBERLY GALBERAITH | CREATIVE DIRECTOR, PROJECTS AND EVENTS | 40 | $173,400 | $0 | $37,780 | $211,180 | 1 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $172,658 | $0 | $9,358 | $182,016 | 1 |
| RYAN FISCHER | CHIEF ADVOCACY OFFICER | 40 | $165,823 | $0 | $13,679 | $179,502 | 1 |
| KELLY J DOUGHERTY | FORMER SR. VP-FINANCE AND ADMINISTRATION | 40 | $148,604 | $0 | $9,353 | $157,957 | 1 |
| RACHEL SCHRADER | VP, CLINICAL CARE AND ED | 40 | $132,942 | $0 | $12,823 | $145,765 | 1 |
| ANN MARTIN | VP, COMM RES AND GEN, DUCHENNE REG | 40 | $126,064 | $0 | $7,127 | $133,191 | 1 |
| ERIC CAMINO | VP, RESEARCH AND CLINICAL INNOVATION | 40 | $111,415 | $0 | $20,238 | $131,653 | 1 |
| ERIN DRESNICK | DIRECTOR, DEVELOPMENT | 40 | $110,308 | $0 | $8,541 | $118,849 | 1 |
| WILLIAM P NOLAN | SR. VP- COMMUNICATIONS | 40 | $106,667 | $0 | $5,596 | $112,263 | 1 |
| ANESSA FEHSENFELD | PRESIDENT | 8 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | TREASURER | 8 | $0 | $0 | $0 | $0 | 1 |
| JOANNA JOHNSON | SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY BIGELOW | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HOFSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA SACCAMANNO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BETH WHITE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2019 · 28 people listed · 11 paid, $1.9M · 26 employees · 1,103 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING CEO & PRESIDENT | 40 | $236,487 | $0 | $10,701 | $247,188 | 1 |
| ABBY H BRONSON | SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40 | $200,496 | $0 | $23,170 | $223,666 | 1 |
| KIMBERLY GALBERAITH | CHIEF OPERATING OFFICER | 40 | $175,694 | $0 | $36,309 | $212,003 | 1 |
| KELLY J DOUGHERTY | SENIOR VICE PRESIDENT, FINANCE & ADMINISTRATION | 40 | $167,100 | $0 | $9,916 | $177,016 | 1 |
| KAYLAN MOITOSO | SENIOR VICE PRESIDENT, DEVELOPMENT | 40 | $158,908 | $0 | $8,633 | $167,541 | 1 |
| RYAN K FISCHER | SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40 | $148,833 | $0 | $12,516 | $161,349 | 1 |
| ANNE KENNEDY | SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 20 | $140,566 | $0 | $19,452 | $160,018 | 2 |
| WILLIAM P NOLAN | SENIOR VICE PRESIDENT, COMMUNICATIONS | 40 | $151,560 | $0 | $8,048 | $159,608 | 1 |
| ERIN DRESNICK | DIRECTOR, DEVELOPMENT | 40 | $104,863 | $0 | $27,448 | $132,311 | 1 |
| KATHLEEN KINNETT | SENIOR VICE PRESIDENT, CLINICAL CARE | 20 | $121,471 | $0 | $6,328 | $127,799 | 1 |
| ANN MARTIN | DIRECTOR, THE DUCHENNE REGISTRY | 40 | $114,064 | $0 | $6,302 | $120,366 | 1 |
| ANESSA FEHSENFELD | BOARD CHAIRMAN | 8 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | BOARD TREASURER | 8 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE L PIACENTINO | BOARD SECRETARY | 6 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY BIGELOW MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER B CURRAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID N HOFSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOANNA BECKER JOHNSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COLIN RENSCH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH WHITE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DONNA SACCAMANNO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HOWARD KAPLAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2018 · 21 people listed · 10 paid, $1.7M · 24 employees · 1,104 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING CEO & PRESIDENT | 40 | $216,650 | $0 | $9,871 | $226,521 | 1 |
| ABBY H BRONSON | SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40 | $184,208 | $0 | $22,035 | $206,243 | 1 |
| KIMBERLY GALBERAITH | CHIEF OPERATING OFFICER | 40 | $171,891 | $0 | $33,698 | $205,589 | 1 |
| ANNE M KENNEDY | SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 40 | $167,724 | $0 | $19,513 | $187,237 | 2 |
| KELLY DOUGHERTY | SENIOR VICE PRESIDENT, FINANCE & ADMINISTRATION | 40 | $162,100 | $0 | $8,348 | $170,448 | 1 |
| KAYLAN M MOITOSO | SENIOR VICE PRESIDENT, DEVELOPMENT | 40 | $155,852 | $0 | $6,882 | $162,734 | 1 |
| KATHLEEN J KINNETT | SENIOR VICE PRESIDENT, CLINICAL CARE | 40 | $155,722 | $0 | $6,677 | $162,399 | 1 |
| RYAN K FISCHER | SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40 | $129,948 | $0 | $12,159 | $142,107 | 1 |
| WILLIAM P NOLAN JR | SENIOR VICE PRESIDENT, COMMUNICATIONS | 40 | $132,560 | $0 | $5,750 | $138,310 | 1 |
| ANN MARTIN | DIRECTOR, THE DUCHENNE REGISTRY | 40 | $106,831 | $0 | $4,827 | $111,658 | 1 |
| JOHN KILLIAN | BOARD CHAIRMAN | 15 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE L PIACENTINO | BOARD SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOANNA JOHNSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER B CURRAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRIS JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RASHA ALNAIBARI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HOFSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RICHARD KLEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2017 · 20 people listed · 9 paid, $1.5M · 25 employees · 1,033 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING CEO & PRESIDENT | 40 | $191,050 | $0 | $8,838 | $199,888 | 1 |
| ABBY H BRONSON | SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40 | $176,238 | $0 | $18,896 | $195,134 | 1 |
| KIMBERLY GALBERAITH | CHIEF OPERATING OFFICER | 40 | $158,280 | $0 | $29,688 | $187,968 | 1 |
| ANNE M KENNEDY | SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 40 | $151,043 | $0 | $17,454 | $168,497 | 2 |
| KELLY DOUGHERTY | SENIOR VICE PRESIDENT, FINANCE & ADMINISTRATION | 40 | $148,047 | $0 | $7,772 | $155,819 | 1 |
| KATHLEEN J KINNETT | SENIOR VICE PRESIDENT, CLINICAL CARE | 40 | $144,458 | $0 | $6,221 | $150,679 | 1 |
| KAYLAN M MOITOSO | SENIOR VICE PRESIDENT, DEVELOPMENT | 40 | $141,546 | $0 | $6,304 | $147,850 | 1 |
| RYAN K FISCHER | SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40 | $122,325 | $0 | $11,047 | $133,372 | 1 |
| WILLIAM P NOLAN JR | SENIOR VICE PRESIDENT, COMMUNICATIONS | 40 | $125,285 | $0 | $5,412 | $130,697 | 1 |
| JOHN KILLIAN | BOARD CHAIRMAN | 15 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE L PIACENTINO | BOARD SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOANNA JOHNSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAWRENCE CHARNAS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRISTOPHER B CURRAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRIS JONES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 18 people listed · 8 paid, $1.2M · 22 employees · 1,038 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | FOUNDING PRESIDENT & CEO | 40 | $198,150 | $0 | $7,419 | $205,569 | 1 |
| ABBY H BRONSON | SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40 | $167,949 | $0 | $15,641 | $183,590 | 1 |
| KIMBERLY GALBERAITH | CHIEF OPERATING OFFICER | 40 | $155,363 | $0 | $26,494 | $181,857 | 1 |
| ANNE M KENNEDY | SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 40 | $141,930 | $0 | $15,410 | $157,340 | 2 |
| KAYLAN M MOITOSO | SENIOR VICE PRESIDENT, DEVELOPMENT | 40 | $137,796 | $0 | $5,816 | $143,612 | 1 |
| KATHLEEN J KINNETT | SENIOR VICE PRESIDENT, CLINICAL CARE | 40 | $137,708 | $0 | $4,608 | $142,316 | 1 |
| RYAN K FISCHER | SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40 | $108,039 | $0 | $9,095 | $117,134 | 1 |
| WILLIAM P NOLAN JR | SENIOR VICE PRESIDENT, COMMUNICATIONS | 40 | $109,690 | $0 | $4,488 | $114,178 | 1 |
| ANESSA GAYDOU FEHSENFELD | BOARD CHAIRMAN | 15 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | BOARD TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE L PIACENTINO | BOARD SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| LAWRENCE CHARNAS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE JONES COLLINS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA CRIPE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOANNA JOHNSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 16 people listed · 8 paid, $1.2M · 21 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $197,346 | $0 | $5,233 | $202,579 | 1 |
| KIMBERLY GALBERAITH | COO | 50 | $155,475 | $0 | $35,334 | $190,809 | 1 |
| JOHN PORTER | FORMER CEO | 40 | $190,000 | $0 | $0 | $190,000 | 1 |
| ANNE KENNEDY | SVP OF PUBLIC POLICY | 40 | $136,482 | $0 | $33,582 | $170,064 | 2 |
| KAYLAN MOITOSO | SR DIRECTOR OF DEVELOPMENT | 40 | $114,811 | $0 | $37,423 | $152,234 | 1 |
| KATHI KINNETT | SR VP OF CLINICAL CARE | 40 | $113,250 | $0 | $2,849 | $116,099 | 1 |
| RYAN FISCHER | DIRECTOR OF COMMUNITY OUTREACH & ADVOCACY | 40 | $103,591 | $0 | $10,319 | $113,910 | 1 |
| NANCY GROSS | CFO THROUGH DEC 15 | 32 | $104,087 | $0 | $0 | $104,087 | 1 |
| CATHERINE J COLLINS | BOARD MEMBER | 5 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD MEMBER | 8 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | BOARD CHAIRMAN | 15 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE PIACENTINO | BOARD SECRETARY | 8 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN FINDER | MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOANNA JOHNSON | MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 17 people listed · 6 paid, $825K · 21 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $168,000 | $0 | $5,440 | $173,440 | 1 |
| SHARON HESTERLEE | VP OF RESEARCH | 40 | $150,000 | $0 | $16,729 | $166,729 | 1 |
| KIMBERLY GALBERAITH | COO | 50 | $144,200 | $0 | $19,325 | $163,525 | 1 |
| HOLLY PEAY | VP OF OUTREACH AND EDUCATI | 40 | $115,985 | $0 | $3,480 | $119,465 | 1 |
| KATHI KINNETT | SR VP OF CLINICAL CARE | 40 | $109,800 | $0 | $3,294 | $113,094 | 1 |
| NANCY GROSS | CFO | 32 | $88,456 | $0 | $0 | $88,456 | 1 |
| CATHERINE J COLLINS | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | BOARD CHAIRMAN | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL P GAROFALO | BOARD SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GETLER | BOARD MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| MARTIN KARLIN | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT MCDONALD MD | BOARD MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
| HEINRICH MEERMANN | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| JAMES POYSKY | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS BIGGAR | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
2013 · 21 people listed · 5 paid, $707K · 18 employees · 538 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $171,081 | $0 | $12,758 | $183,839 | 1 |
| KIMBERLY GALBERAITH | COO | 50 | $147,132 | $0 | $19,062 | $166,194 | 1 |
| SHARON HESTERLEE | VP OF RESEARCH | 40 | $153,565 | $0 | $7,139 | $160,704 | 1 |
| HOLLY PEAY | VP OF OUTREACH AND EDUCATION | 40 | $109,340 | $0 | $3,280 | $112,620 | 1 |
| NANCY GROSS | CFO | 32 | $83,820 | $0 | $0 | $83,820 | 1 |
| NEIL BRANDOM | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE J COLLINS | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | BOARD MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL P GAROFALO | BOARD SECRETARY | 10 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GETLER | BOARD MEMBER | 10 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN HIATT | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| MARTIN KARLIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | BOARD TREASURER | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT MCDONALD MD | BOARD CHAIRMAN | 10 | $0 | $0 | $0 | $0 | 1 |
| HEINRICH MEERMANN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT NUTT | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JAMES POYSKY | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JASBIR SEEHRA | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| DOUGLAS BIGGAR | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2012 · 19 people listed · 3 paid, $461K · 16 employees · 515 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $168,000 | $0 | $14,466 | $182,466 | 1 |
| KIMBERLY GALBERAITH | COO | 50 | $152,200 | $0 | $19,674 | $171,874 | 1 |
| NANCY GROSS | CFO | 32 | $106,414 | $0 | $0 | $106,414 | 1 |
| DOUGLAS BIGGAR | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| NEIL BRANDOM | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN HIATT | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL GAROFALO | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTY KARLIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| HEINRICH MEERMANN | TRUSTEE | 0 | $0 | $0 | $0 | $0 | 1 |
| ROBERT MCDONALD MD | CHAIRMAN | 10 | $0 | $0 | $0 | $0 | 1 |
| JAMES POYSKY | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JASBHIR SEEHRA | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE COLLINS | TRUSTEE | 10 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | TRUSTEE | 10 | $0 | $0 | $0 | $0 | 1 |
| ROBERT GETLER | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 1 |
| LANCE HESTER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT NUTT | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ELLEN WAGNER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2011 · 15 people listed · 3 paid, $460K · 15 employees · 485 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $168,000 | $0 | $18,689 | $186,689 | 1 |
| KIMBERLY GALBERAITH | EXECUTIVE VICE PRESIDENT | 50 | $146,700 | $0 | $21,365 | $168,065 | 1 |
| NANCY GROSS | CFO | 32 | $105,097 | $0 | $0 | $105,097 | 1 |
| DAVID DROHAN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| NEIL BRANDOM | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN HIATT | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL GAROFALO | SECRETARY-ELECT | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTY KARLIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| HEINRICH MEERMANN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT MCDONALD MD | CHAIRMAN | 10 | $0 | $0 | $0 | $0 | 1 |
| JAMES POYSKY | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 1 |
| JASBHIR SEEHRA | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ANESSA FEHSENFELD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE COLLINS | TRUSTEE | 4 | $0 | $0 | $0 | $0 | 1 |
2010 · 16 people listed · 3 paid, $427K · 13 employees · 420 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | FOUNDING PRESIDENT/CEO | 65 | $170,001 | $0 | $17,678 | $187,679 | 1 |
| KIMBERLY GALBERAITH | EXECUTIVE VICE PRESIDENT | 50 | $145,000 | $0 | $19,264 | $164,264 | 1 |
| NANCY GROSS | CFO | 32 | $75,164 | $0 | $0 | $75,164 | 1 |
| ROBERT NUTT | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID DROHAN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| NEIL BRANDOM | TRUSTEE | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN HIATT | TRUSTEE | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN KILLIAN | CHAIRMAN | 10 | $0 | $0 | $0 | $0 | 1 |
| DANIEL GAROFALO | TRUSTEE | 4 | $0 | $0 | $0 | $0 | 1 |
| MARTY KARLIN | TRUSTEE | 1 | $0 | $0 | $0 | $0 | 1 |
| HEINRICH MEERMANN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT MCDONALD MD | TRUSTEE | 4 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL LEE | TRUSTEE | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRISTINE PIACENTINO | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| TRENT SPEAR | FORMER TRUSTEE | 0 | $0 | $0 | $0 | $0 | 1 |
| JOHN KEAST | FORMER TRUSTEE | 0 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 4 contractors · $872K
| Name | Location | Service | Paid |
|---|---|---|---|
| FAEGRE DRINKER BIDDLE & REATH LLP | CHICAGO, IL | LEGAL AND REGULATORY CONSULTING | $361,007 |
| PROMETHEUS RESEARCH | DURHAM, NC | DATA TECHNOLOGY | $247,145 |
| YOUR PART TIME CONTROLLER | PHILADELPHIA, PA | ACCOUNTING | $138,635 |
| EZE CASTLE | BOSTON, MA | IT SERVICES | $125,590 |
2024 · 5 contractors · $2.4M
| Name | Location | Service | Paid |
|---|---|---|---|
| OMNI HOTELS | DAVENPORT, FL | MEETING AND CONFERENCE SERVICES | $978,891 |
| SANIBEL HARBOUR MARRIOTT RESORT AND SPA | FT MYERS, FL | MEETING AND CONFERENCE SERVICES | $413,775 |
| FAEGRE DRINKER BIDDLE & REATH LLP | CHICAGO, IL | LEGAL AND REGULATORY CONSULTING | $372,956 |
| UHS PREMIUM BILLING | PALATINE, IL | HEALTH INSURANCE | $311,634 |
| ALL COLORS | HIGHLAND PARK, NJ | MATERIALS SUPPLIER, SHIPPING, AND STORAG | $277,424 |
2023 · 5 contractors · $2.2M
| Name | Location | Service | Paid |
|---|---|---|---|
| SHERATON DALLAS | DALLAS, TX | MEETING SERVICES/ AV & PRODUCTION | $749,842 |
| INTERCONTINENTAL NEW YORK TIMES SQUARE | NEW YORK, NY | MEETING SERVICES/ AV & PRODUCTION | $580,595 |
| FAEGRE DRINKER BIDDIE & REATH LLP | CHICAGO, IL | CONSULTING SERVICES | $297,984 |
| UNITED HEALTHCARE | PALATINE, IL | HEALTH INSURANCE | $296,295 |
| PORTER WRIGHT MORRIS & ARTHUR LLP | COLUMBUS, OH | LEGAL FEES | $288,073 |
2022 · 5 contractors · $2.2M
| Name | Location | Service | Paid |
|---|---|---|---|
| THE PHOENICIAN RESORT | SCOTTSDALE, AZ | ANNUAL CONFERENCE VENUE | $968,428 |
| SOMALOGIC INC | BOULDER, CO | BIOMARKER INITIATIVE | $472,550 |
| FAEGRE DRINKER BIDDIE & REATH LLP | CHICAGO, IL | REGULATORY CONSULTING FEES | $260,564 |
| ALL COLORS LLC | HIGHLAND PARK, NJ | SUPPLIES, PRINTING & STORAGE | $242,611 |
| PROMETHEUS RESEARCH LLC | DURHAM, NC | DATABASE/INFORMATION TECHNOLOGY SERVICES | $220,409 |
2021 · 5 contractors · $909K
| Name | Location | Service | Paid |
|---|---|---|---|
| JOHN R DUDLEY PRODUCTIONS LLC | VIENNA, VA | A/V AND PRODUCTION SERVICES | $206,116 |
| PROMETHEUS RESEARCH LLC | SAN JOSE, CA | DATABASE/ INFORMATION TECHNOLOGY SERVICE | $204,428 |
| YOUR PART-TIME CONTROLLER | PHILADELPHIA, PA | FINANCIAL CONSULTING SERVICES | $186,960 |
| FAEGRE DRINKER BIDDIE & REATH LLP | MINNEAPOLIS, MN | LEGAL AND REGULATORY CONSULTING | $185,068 |
| UNITED HEALTH CARE | SHELTON, CT | HEALTH INSURANCE | $126,145 |
2020 · 2 contractors · $214K
| Name | Location | Service | Paid |
|---|---|---|---|
| PROMETHEUS RESEARCH LLC | SAN JOSE, CA | DATABASE/INFORMATION TECHNOLOGY SERVICES | $107,700 |
| OXFORD HEALTH PLANS | NEWARK, NJ | HEALTH INSURANCE | $106,146 |
2019 · 3 contractors · $516K
| Name | Location | Service | Paid |
|---|---|---|---|
| PROMETHEUS RESEARCH LLC | NEW HAVEN, CT | DATABASE/INFORMATION TECHNOLOGY SERVICES | $290,650 |
| CONTINENTAL PLAZA ASSOCIATES | PITTSBURGH, PA | RENT | $118,788 |
| FAEGRE BAKER DANIELS LLP | WASHINGTON, DC | RESEARCH AND EDUCATION SERVICES | $106,502 |
2018 · 4 contractors · $984K
| Name | Location | Service | Paid |
|---|---|---|---|
| THE PHOENICIAN SCOTTSDALE | SCOTTSDALE, AZ | CONFERENCE VENUE | $453,164 |
| PROMETHEUS RESEARCH LLC | NEW HAVEN, CT | DATABASE/INFORMATION TECHNOLOGY SERVICES | $265,924 |
| FAEGRE BAKER DANIELS LLP | WASHINGTON, DC | RESEARCH AND EDUCATION SERVICES | $158,512 |
| SCHANER & LUBITZ PLLC | BETHESDA, MD | LEGAL SERVICES | $106,231 |
2017 · 3 contractors · $545K
| Name | Location | Service | Paid |
|---|---|---|---|
| EGL GENETIC DIAGNOSTICS LLC | BIRMINGHAM, AL | GENETIC TESTING SERVICES | $289,450 |
| FAEGRE BAKER DANIELS LLP | CHICAGO, IL | RESEARCH AND EDUCATION SERVICES | $152,798 |
| CONTINENTAL PLAZA ASSOCIATES JV | PITTSBURGH, PA | OFFICE RENTAL | $102,449 |
2016 · 1 contractor · $173K
| Name | Location | Service | Paid |
|---|---|---|---|
| FAEGRE BAKER DANIELS LLP | CHICAGO, IL | RESEARCH AND EDUCATION SERVICES | $172,682 |
2015 · 5 contractors · $1.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| REVERAGEN BIOPHARMA INC | SILVER SPRING, MD | RESEARCH | $750,000 |
| HALO THERAPEUTICS LLC | NEWTON, MA | RESEARCH | $400,000 |
| MARRIOTT HOTEL SERVICES INC | ATLANTA, GA | HOTEL | $287,212 |
| UNIVERSITY OF FLORIDA FOUNDATION | GAINESVILLE, FL | RESEARCH | $225,576 |
| FAEGREBD CONSULTING | CHICAGO, IL | RESEARCH & EDUCATIONAL SVCS | $196,082 |
2014 · 5 contractors · $1.4M
| Name | Location | Service | Paid |
|---|---|---|---|
| UNIVERSITY OF PENNSLYVANIA | PHILADELPHIA, PA | RESEARCH | $506,432 |
| UNIVERSITY OF FLORIDA FOUNDATION | GAINESVILLE, FL | RESEARCH | $291,353 |
| FAEGREBD CONSULTING | CHICAGO, IL | CONSULTING | $258,898 |
| MARK KRUEGER & ASSOCIATES INC | NEW YORK, NY | CONSULTING | $211,560 |
| CURRATORS OF THE UNIV OF MISSOURI | KANSAS CITY, MO | RESEARCH | $140,213 |
2013 · 5 contractors · $1.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| UNIVERSITY OF PENNSLYVANIA | RESEARCH | $527,281 | |
| FAEGREBD CONSULTING | CONSULTING | $306,697 | |
| MARRIOTT BUSINESS SERVICES | TRAVEL | $235,394 | |
| MARK KRUEGER & ASSOCIATES INC | CONSULTING | $141,325 | |
| KATHI KINNETT | CONSULTING | $136,357 |
2012 · 5 contractors · $811K
| Name | Location | Service | Paid |
|---|---|---|---|
| MARRIOTT BUSINESS SERVICES | ATLANTA, GA | TRAVEL SERVICES | $240,825 |
| FAEGREBD CONSULTING | INDIANAPOLIS, IN | CONSULTING | $198,342 |
| KATHY KINNETT | CINCINNATI, OH | CONSULTING | $133,120 |
| LEE SWEENEY CONSULTING LLC | PHILADELPHIA, PA | CONSULTING | $132,000 |
| GROSS & COMPANY INC CPA'S | MIDDLETOWN, OH | CFO SERVICES | $106,414 |
2011 · 3 contractors · $464K
| Name | Location | Service | Paid |
|---|---|---|---|
| B & D GROUP | INDIANAPOLIS, IN | CONSULTING | $208,135 |
| LEE SWEENEY CONSULTING LLC | PHILADELPHIA, PA | CONSULTING | $151,200 |
| GROSS & COMPANY INC CPA'S | MIDDLETOWN, OH | CFO SERVICES | $105,097 |
2010 · 5 contractors · $892K
| Name | Location | Service | Paid |
|---|---|---|---|
| CORNERSTONE GOVERNMENT AFFAIRS | WASHINGTON, DC | PUBLIC RELATIONS FIRM | $308,505 |
| MARRIOTT INTERNATIONAL | ATLANTA, GA | HOTEL SERVICES | $163,637 |
| BIG DUCK STUDIO | BROOKLYN, NY | CONSULTING | $151,847 |
| DR H LEE SWEENEY | PHILADELPHIA, PA | PROJECT CATALYST RESEARCH CONSULTING | $151,200 |
| INNOLYST INC | SAN MATEO, CA | TECHNOLOGY | $116,624 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 22 grants to organizations · $1.4M
Listed grants add up to $1,352,873; the return's “grants paid” expense line says $1,500,817. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 29 grants to organizations · $2.5M
Listed grants add up to $2,450,828; the return's “grants paid” expense line says $2,650,583. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 21 grants to organizations · $2.5M
Listed grants add up to $2,462,304; the return's “grants paid” expense line says $2,560,127. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 23 grants to organizations · $2.4M
Listed grants add up to $2,403,418; the return's “grants paid” expense line says $2,629,658. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 22 grants to organizations · $2.2M
Listed grants add up to $2,239,078; the return's “grants paid” expense line says $2,509,187. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 43 grants to organizations · $2.7M · 4 returned · -$21K
2019 · 57 grants to organizations · $4.5M · 1 returned · -$3K
2018 · 43 grants to organizations · $2.5M · 2 returned · -$136K
Listed grants add up to $2,368,045; the return's “grants paid” expense line says $2,393,393. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 36 grants to organizations · $3.9M
Listed grants add up to $3,864,792; the return's “grants paid” expense line says $4,162,350. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 26 grants to organizations · $2.7M · 1 returned · -$11K
Listed grants add up to $2,644,951; the return's “grants paid” expense line says $2,682,986. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 22 grants to organizations · $2.9M
Listed grants add up to $2,907,379; the return's “grants paid” expense line says $3,023,969. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 24 grants to organizations · $1.7M
Listed grants add up to $1,736,269; the return's “grants paid” expense line says $2,062,225. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 21 grants to organizations · $2.0M · 1 returned · -$7K
Listed grants add up to $2,015,161; the return's “grants paid” expense line says $2,227,380. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 18 grants to organizations · $2.5M
Listed grants add up to $2,523,921; the return's “grants paid” expense line says $2,779,190. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 23 grants to organizations · $2.1M
Listed grants add up to $2,052,074; the return's “grants paid” expense line says $2,664,243. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 12 grants to organizations · $1.2M
Listed grants add up to $1,182,660; the return's “grants paid” expense line says $1,229,504. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $12,049,446 | $11,895,953 | $12,713,304 | $11,526,812 | $8,061,163 | $2,310,082 | $391,500 | 28 | 550 |
| 2024 · Form 990 | ||||||||
| $14,311,761 | $12,881,402 | $12,567,424 | $11,458,110 | $10,008,956 | $2,234,268 | $370,075 | 27 | 500 |
| 2023 · Form 990 | ||||||||
| $13,881,085 | $12,112,486 | $10,440,900 | $9,806,185 | $12,660,929 | $1,210,969 | $371,400 | 26 | 500 |
| 2022 · Form 990 | ||||||||
| $10,753,014 | $11,037,641 | $8,648,654 | $7,880,238 | $9,959,415 | $798,475 | $296,765 | 25 | 500 |
| 2021 · Form 990 | ||||||||
| $10,856,558 | $7,843,364 | $10,203,860 | $8,699,472 | $10,454,728 | $485,989 | $226,837 | 19 | 500 |
| 2020 · Form 990 | ||||||||
| $9,559,090 | $7,865,638 | $7,136,426 | $6,055,433 | $8,889,998 | $403,270 | $233,600 | 24 | 988 |
| 2019 · Form 990 | ||||||||
| $11,435,667 | $10,852,988 | $4,713,542 | $4,351,672 | $11,218,006 | $536,156 | $612,677 | 26 | 1,103 |
| 2018 · Form 990 | ||||||||
| $9,071,159 | $8,688,235 | $5,732,769 | $3,768,993 | $9,010,932 | $443,499 | $572,349 | 24 | 1,104 |
| 2017 · Form 990 | ||||||||
| $9,332,441 | $9,102,759 | $4,788,793 | $3,386,069 | $9,136,279 | $466,431 | $525,568 | 25 | 1,033 |
| 2016 · Form 990 | ||||||||
| $8,218,892 | $7,560,664 | $4,507,799 | $3,156,387 | $8,218,916 | $364,129 | $521,462 | 22 | 1,038 |
| 2015 · Form 990 | ||||||||
| $8,675,507 | $7,704,794 | $2,735,082 | $2,498,159 | $8,725,485 | $161,900 | $1,279,965 | 21 | 0 |
| 2014 · Form 990 | ||||||||
| $5,937,014 | $6,359,008 | $1,881,140 | $1,527,446 | $5,992,822 | $99,920 | $425,421 | 21 | 0 |
| 2013 · Form 990 | ||||||||
| $5,629,849 | $6,086,315 | $2,962,539 | $1,949,440 | $5,904,768 | $65,455 | $433,853 | 18 | 538 |
| 2012 · Form 990 | ||||||||
| $5,779,698 | $6,222,128 | $2,885,159 | $2,405,906 | $6,099,492 | $52,208 | $460,754 | 16 | 515 |
| 2011 · Form 990 | ||||||||
| $6,331,875 | $6,219,059 | $3,191,220 | $2,848,337 | $6,588,002 | $77,571 | $459,851 | 15 | 485 |
| 2010 · Form 990 | ||||||||
| $6,669,603 | $4,585,913 | $2,985,828 | $2,735,521 | $7,093,016 | $58,075 | $423,647 | 13 | 420 |
Funders of this organization
59 grantors reported grants to this organization, $11,644,711 in all, tax years 2009 to 2025; the 25 largest shown (all 59). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2014-2024 | 11 | $4,719,159 | 2024 | $1,750,125 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $1,392,477 | 2024 | $206,287 | show |
| RAYMOND JAMES CHARITABLE ENDOWMENT FUND | DAF sponsor | Exact | 2022-2024 | 3 | $1,288,000 | 2024 | $280,000 | show |
| FOUNDATION TO ERADICATE DUCHENNE INC | Public charity | Exact | 2013-2025 | 13 | $868,500 | 2025 | $50,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $708,786 | 2025 | $159,838 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016, 2018-2020, 2022-2023 | 6 | $601,477 | 2023 | $101,000 | show |
| FAIRFIELD COUNTYS COMMUNITY FOUNDATION INC | DAF sponsor | Exact | 2010, 2012, 2015-2017, 2019 | 7 | $395,996 | 2019 | $45,996 | show |
| COLUMBUS FOUNDATION | DAF sponsor | Exact | 2010, 2014-2015, 2017-2022 | 12 | $185,300 | 2022 | $36,000 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2016-2018, 2022, 2024 | 5 | $140,526 | 2024 | $79,776 | show |
| RYANS QUEST INC | Public charity | Exact | 2020, 2023 | 2 | $125,000 | 2023 | $100,000 | show |
| COMMUNITY FOUNDATION OF SARASOTA COUNTY INC | DAF sponsor | Exact | 2015-2021 | 7 | $116,000 | 2021 | $10,000 | show |
| MONUMENTAL SPORTS & ENTERTAINMENT FOUNDATION | Public charity | Exact | 2023-2024 | 2 | $82,610 | 2024 | $54,578 | show |
| BRIGHT FUNDS FOUNDATION | Public charity | Exact | 2017-2019, 2021 | 4 | $81,243 | 2021 | $6,284 | show |
| DEFEAT DUCHENNE LNC | Public charity | Exact | 2016, 2018 | 2 | $79,750 | 2018 | $50,250 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2018, 2021, 2023-2024 | 4 | $70,728 | 2024 | $31,080 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2017, 2022-2023, 2025 | 4 | $67,117 | 2025 | $13,890 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2020-2024 | 6 | $60,000 | 2024 | $20,000 | show |
| PRO PLAYER FOUNDATION | Public charity | Exact | 2012-2014 | 3 | $60,000 | 2014 | $20,000 | show |
| HOPE FOR JAVIER | Public charity | Exact | 2011-2015 | 5 | $59,280 | 2015 | $3,880 | show |
| CBRE FOUNDATION INC | Public charity | Exact | 2020-2021 | 2 | $49,425 | 2021 | $22,050 | show |
| CHARITY BRIDGE FUND | DAF sponsor | Exact | 2015-2016 | 2 | $43,723 | 2016 | $18,173 | show |
| SERVANT FOUNDATION | DAF sponsor | Exact | 2018, 2020, 2022-2023 | 4 | $33,620 | 2023 | $9,000 | show |
| LITTLE HERCULES FOUNDATION | Public charity | Exact | 2018, 2022 | 2 | $31,000 | 2022 | $30,000 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2021-2022, 2024 | 3 | $28,534 | 2024 | $16,021 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2021 | 2 | $28,500 | 2021 | $12,000 | show |
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| PROJECT NOW INC | IL | P20 | $17,491,004 | $17,425,706 | PRESIDENT/CEO | $154,165 | Same NTEE code P20, revenue within 2x |
| DETROIT RECOVERY PROJECT | MI | P20 | $8,686,376 | $8,425,943 | President/CEO | $497,444 | Same NTEE code P20, revenue within 2x |
| CENTER FOR HUMAN DEVELOPMENT INC | OR | P20 | $14,926,691 | $13,909,851 | NURSE PRACTITIONER | $164,645 | Same NTEE code P20, revenue within 2x |
| CARING FOR OTHERS INC | GA | P20 | $9,038,023 | $8,445,360 | PRESIDENT CEO | $109,090 | Same NTEE code P20, revenue within 2x |
| INTERNATIONAL REFUGEE ASSISTANCE PROJECT INC | NY | P20 | $15,230,045 | $31,210,283 | PRESIDENT | $422,448 | Same NTEE code P20, revenue within 2x |
| CATHOLIC CHARITIES OF THE DIOCESE OF PALM BEACH INC | FL | P20 | $7,616,663 | $8,769,672 | TREASURER | $211,825 | Same NTEE code P20, revenue within 2x |
| CIRCLE OF CARE FOR FAMILIES AND CHILDREN OF PASSAIC COUNTY INC | NJ | P20 | $13,520,697 | $14,760,080 | EXECUTIVE DIRECTOR OF BUSINESS ADMIN | $245,312 | Same NTEE code P20, revenue within 2x |
| CATHOLIC CHARITIES OF THE DIOCESE OF FORT WAYNE-SOUTH BEND INC | IN | P20 | $8,328,770 | $7,916,089 | CEO | $142,750 | Same NTEE code P20, revenue within 2x |
| UNITED COMMUNITY ACTION PROGRAM INC | OK | P20 | $22,963,985 | $20,627,331 | EXECUTIVE DIRECTOR | $181,226 | Same NTEE code P20, revenue within 2x |
| DIVERSIFIED CARE MANAGEMENT INC | PA | P20 | $23,921,055 | $23,620,831 | SECRETARY AND TREASURER | $158,824 | Same NTEE code P20, revenue within 2x |
| DOCTORS OF THE WORLD-USA INC | NY | P20 | $17,671,630 | $17,573,818 | EXECUTIVE DIRECTOR | $244,278 | Same NTEE code P20, revenue within 2x |
| PORTFOLIO RESIDENT SERVICES INC | TX | P20 | $7,898,998 | $7,813,613 | BOARD MEMBER | $0 | Same NTEE code P20, revenue within 2x |
| CENTER FOR URBAN FAMILIES INC | MD | P20 | $9,904,735 | $8,287,861 | PRESIDENT/FOUNDER | $312,743 | Same NTEE code P20, revenue within 2x |
| CATHOLIC CHARITIES OF THE DIOCESE OF PITTSBURGH INC | PA | P20 | $15,315,157 | $12,227,188 | CHIEF EXECUTIVE OFFICER | $228,256 | Same NTEE code P20, revenue within 2x |
| CATHOLIC CHARITIES OF THE ARCHDIOCESE OF ATLANTA INC | GA | P20 | $11,703,394 | $11,804,854 | CEO | $140,710 | Same NTEE code P20, revenue within 2x |
| MIDTOWN PARTNERS INC | MS | P20 | $8,071,321 | $7,806,141 | EXECUTIVE DIRECTOR | $165,236 | Same NTEE code P20, revenue within 2x |
| GRACE PLACE FOR CHILDREN AND FAMILIES INC | FL | P20 | $10,306,458 | $7,654,892 | CHIEF EXECUTIVE OFFICER | $209,805 | Same NTEE code P20, revenue within 2x |
| WRCH INC | CT | P20 | $7,757,150 | $236,529 | PRESIDENTCEO | $141,580 | Same NTEE code P20, revenue within 2x |
| SIOUXLAND HUMAN INVESTMENT PARTNERSHIP INC | IA | P20 | $7,645,218 | $7,827,602 | EXECUTIVE DIRECTOR | $126,219 | Same NTEE code P20, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $11,895,953 spent · pay $4,341,780 · grants $1,500,817 · events $525,458
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,237,043 | $2,764,416 | $212,177 | $260,450 | 27.2% | |
| Other (as described) | ANNUAL CONFERENCE | $1,390,799 | $1,390,799 | $0 | $0 | 11.7% |
| Grants to US organizations and governments | $1,344,321 | $1,344,321 | - | - | 11.3% | |
| Fees: other services | $1,254,470 | $968,076 | $260,681 | $25,713 | 10.5% | |
| All other expenses | $1,166,772 | $781,949 | $181,327 | $203,496 | 9.8% | |
| Other (as described) | PROGRAM SUPPLIES | $662,753 | $662,753 | $0 | $0 | 5.6% |
| Other (as described) | MEALS | $592,219 | $586,150 | $5,199 | $870 | 5.0% |
| Other (as described) | TRAVEL | $515,250 | $458,173 | $26,210 | $30,867 | 4.3% |
| Pay: officers, directors, trustees, key employees | $391,500 | $332,775 | $19,575 | $39,150 | 3.3% | |
| Other employee benefits | $308,187 | $250,560 | $32,669 | $24,958 | 2.6% | |
| Payroll taxes | $253,124 | $205,816 | $26,856 | $20,452 | 2.1% | |
| Conferences, conventions and meetings | $183,107 | $183,107 | - | - | 1.5% | |
| Grants outside the US | $156,496 | $156,496 | - | - | 1.3% | |
| Pension plan contributions | $151,926 | $123,531 | $16,119 | $12,276 | 1.3% | |
| Fees: legal | $120,808 | $104,738 | $10,335 | $5,735 | 1.0% | |
| Occupancy | $67,586 | $59,886 | $7,700 | - | 0.6% | |
| Advertising and promotion | $38,539 | $38,422 | - | $117 | 0.3% | |
| Fees: accounting | $24,000 | - | $24,000 | - | 0.2% | |
| Insurance | $21,032 | $15,194 | $4,449 | $1,389 | 0.2% | |
| Depreciation and depletion | $8,117 | $7,116 | $575 | $426 | 0.1% | |
| Office expenses | $7,904 | $1,110 | $6,317 | $477 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $222,561 | $342,351 | reported apart | |||
| Total | $11,895,953 | 100% |
2024 · Form 990 · $12,881,402 spent · pay $4,089,108 · grants $2,650,583 · events $631,463
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $3,045,805 | $2,582,039 | $192,317 | $271,449 | 23.6% | |
| Grants to US organizations and governments | $2,464,612 | $2,464,612 | - | - | 19.1% | |
| Other (as described) | ANNUAL CONFERENCE | $1,432,211 | $1,432,211 | $0 | $0 | 11.1% |
| Fees: other services | $1,369,143 | $1,146,523 | $174,370 | $48,250 | 10.6% | |
| Other (as described) | PROGRAM SUPPLIES | $754,944 | $754,944 | $0 | $0 | 5.9% |
| Other (as described) | MEALS | $562,431 | $557,779 | $3,313 | $1,339 | 4.4% |
| Travel | $535,207 | $512,763 | $5,755 | $16,689 | 4.2% | |
| All other expenses | $517,831 | $268,961 | $80,609 | $168,261 | 4.0% | |
| Pay: officers, directors, trustees, key employees | $370,075 | $314,564 | $18,504 | $37,007 | 2.9% | |
| Other (as described) | TECHNOLOGY | $329,031 | $103,013 | $173,839 | $52,179 | 2.6% |
| Other employee benefits | $287,801 | $241,342 | $20,755 | $25,704 | 2.2% | |
| Conferences, conventions and meetings | $244,273 | $238,835 | $5,438 | - | 1.9% | |
| Payroll taxes | $239,561 | $200,920 | $17,248 | $21,393 | 1.9% | |
| Grants outside the US | $185,971 | $185,971 | - | - | 1.4% | |
| Fees: legal | $153,709 | $86,114 | $67,177 | $418 | 1.2% | |
| Pension plan contributions | $145,866 | $122,338 | $10,502 | $13,026 | 1.1% | |
| Occupancy | $82,826 | $78,170 | $2,570 | $2,086 | 0.6% | |
| Advertising and promotion | $51,895 | $49,892 | - | $2,003 | 0.4% | |
| Office expenses | $49,199 | $6,065 | $42,943 | $191 | 0.4% | |
| Fees: accounting | $22,000 | - | $22,000 | - | 0.2% | |
| Insurance | $21,538 | $14,644 | $5,335 | $1,559 | 0.2% | |
| Depreciation and depletion | $15,473 | $13,121 | $955 | $1,397 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $106,864 | $387,190 | reported apart | |||
| Total | $12,881,402 | 100% |
2023 · Form 990 · $12,112,486 spent · pay $3,699,580 · grants $2,560,127 · events $370,657
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $2,703,536 | $2,276,227 | $161,057 | $266,252 | 22.3% | |
| Grants to US organizations and governments | $2,506,357 | $2,506,357 | - | - | 20.7% | |
| Fees: other services | $1,134,369 | $819,004 | $294,365 | $21,000 | 9.4% | |
| Other (as described) | ANNUAL CONFERENCE | $959,687 | $959,687 | $0 | $0 | 7.9% |
| Other (as described) | PROGRAM SUPPLIES | $696,790 | $682,761 | $13,509 | $520 | 5.8% |
| Other (as described) | MEALS | $575,908 | $565,886 | $7,758 | $2,264 | 4.8% |
| All other expenses | $552,586 | $390,208 | $86,832 | $75,546 | 4.6% | |
| Travel | $526,739 | $501,932 | $4,464 | $20,343 | 4.3% | |
| Fees: legal | $491,921 | $42,187 | $449,734 | - | 4.1% | |
| Pay: officers, directors, trustees, key employees | $371,400 | $315,690 | $18,570 | $37,140 | 3.1% | |
| Information technology | $359,665 | $82,598 | $215,204 | $61,863 | 3.0% | |
| Other employee benefits | $272,736 | $229,900 | $15,938 | $26,898 | 2.3% | |
| Payroll taxes | $216,967 | $182,881 | $12,671 | $21,415 | 1.8% | |
| Other (as described) | CONTRIBUTIONS & SPONSOR | $214,346 | $213,241 | $1,105 | $0 | 1.8% |
| Pension plan contributions | $134,941 | $113,742 | $7,881 | $13,318 | 1.1% | |
| Conferences, conventions and meetings | $98,359 | $98,209 | $100 | $50 | 0.8% | |
| Occupancy | $86,706 | $67,999 | $16,429 | $2,278 | 0.7% | |
| Grants outside the US | $53,770 | $53,770 | - | - | 0.4% | |
| Advertising and promotion | $52,412 | $52,370 | - | $42 | 0.4% | |
| Office expenses | $47,179 | $5,577 | $41,198 | $404 | 0.4% | |
| Insurance | $21,538 | $15,875 | $3,808 | $1,855 | 0.2% | |
| Fees: accounting | $20,800 | - | $20,800 | - | 0.2% | |
| Depreciation and depletion | $13,774 | $11,611 | $804 | $1,359 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $141,751 | $272,298 | reported apart | |||
| Total | $12,112,486 | 100% |
2022 · Form 990 · $11,037,641 spent · pay $3,241,316 · grants $2,629,658 · events $655,034
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,538,809 | $2,538,809 | - | - | 23.0% | |
| Other salaries and wages | $2,434,480 | $2,097,673 | $106,536 | $230,271 | 22.1% | |
| Other (as described) | PROGRAM SUPPLIES | $1,254,124 | $1,254,124 | $0 | $0 | 11.4% |
| Fees: other services | $926,644 | $685,306 | $213,076 | $28,262 | 8.4% | |
| Other (as described) | MEALS | $579,008 | $571,545 | $4,145 | $3,318 | 5.2% |
| Travel | $531,479 | $499,967 | $10,063 | $21,449 | 4.8% | |
| Conferences, conventions and meetings | $432,862 | $417,650 | $15,212 | - | 3.9% | |
| Other (as described) | TECHNOLOGY | $398,103 | $130,647 | $150,840 | $116,616 | 3.6% |
| Other (as described) | A/V AND PRODUCTION | $341,320 | $341,320 | $0 | $0 | 3.1% |
| Pay: officers, directors, trustees, key employees | $296,765 | $252,250 | $14,838 | $29,677 | 2.7% | |
| All other expenses | $264,056 | $93,743 | $115,703 | $54,610 | 2.4% | |
| Fees: legal | $229,806 | $47,210 | $182,596 | - | 2.1% | |
| Other employee benefits | $195,298 | $168,027 | $8,690 | $18,581 | 1.8% | |
| Payroll taxes | $194,289 | $167,166 | $8,627 | $18,496 | 1.8% | |
| Pension plan contributions | $120,484 | $103,664 | $5,350 | $11,470 | 1.1% | |
| Grants outside the US | $90,849 | $90,849 | - | - | 0.8% | |
| Occupancy | $88,893 | $77,760 | $8,402 | $2,731 | 0.8% | |
| Office expenses | $54,155 | $35,280 | $11,028 | $7,847 | 0.5% | |
| Fees: accounting | $19,009 | - | $19,009 | - | 0.2% | |
| Advertising and promotion | $17,363 | $16,807 | - | $556 | 0.2% | |
| Insurance | $16,147 | $10,295 | $4,412 | $1,440 | 0.1% | |
| Depreciation and depletion | $13,698 | $11,785 | $609 | $1,304 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $0 | $222,172 | reported apart | |||
| Total | $11,037,641 | 100% |
2021 · Form 990 · $7,843,364 spent · pay $2,350,713 · grants $2,509,187 · events $293,113
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,388,081 | $2,388,081 | - | - | 30.4% | |
| Other salaries and wages | $1,755,419 | $1,423,887 | $71,841 | $259,691 | 22.4% | |
| Fees: other services | $1,198,694 | $899,710 | $260,320 | $38,664 | 15.3% | |
| Information technology | $873,281 | $564,953 | $91,195 | $217,133 | 11.1% | |
| Pay: officers, directors, trustees, key employees | $226,837 | $192,811 | $11,342 | $22,684 | 2.9% | |
| Conferences, conventions and meetings | $154,938 | $154,693 | - | $245 | 2.0% | |
| Payroll taxes | $145,990 | $119,069 | $6,132 | $20,789 | 1.9% | |
| Other employee benefits | $133,724 | $109,060 | $5,603 | $19,061 | 1.7% | |
| Occupancy | $127,211 | $27,278 | $90,782 | $9,151 | 1.6% | |
| Office expenses | $126,360 | $37,870 | $83,490 | $5,000 | 1.6% | |
| Grants outside the US | $121,106 | $121,106 | - | - | 1.5% | |
| Other (as described) | PROGRAM SUPPLIES | $108,185 | $89,050 | $7,120 | $12,015 | 1.4% |
| Travel | $104,093 | $97,824 | $3,460 | $2,809 | 1.3% | |
| Pension plan contributions | $88,743 | $72,379 | $3,727 | $12,637 | 1.1% | |
| Other (as described) | FEES & PERMITS | $67,520 | $40,912 | $23,734 | $2,874 | 0.9% |
| Other (as described) | BANK CHARGES | $60,511 | $2 | $15,666 | $44,843 | 0.8% |
| All other expenses | $46,222 | $21,792 | $20,058 | $4,372 | 0.6% | |
| Fees: legal | $40,109 | $4,300 | $35,809 | - | 0.5% | |
| Insurance | $24,095 | $11,789 | $8,801 | $3,505 | 0.3% | |
| Other (as described) | TELEPHONE | $23,405 | $8,325 | $12,758 | $2,322 | 0.3% |
| Fees: accounting | $17,595 | - | $17,595 | - | 0.2% | |
| Depreciation and depletion | $11,245 | $7,896 | $1,537 | $1,812 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $0 | $138,175 | reported apart | |||
| Total | $7,843,364 | 100% |
2020 · Form 990 · $7,865,638 spent · pay $2,739,629 · grants $2,689,159 · events $285,708
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,689,159 | $2,689,159 | - | - | 34.2% | |
| Other salaries and wages | $2,121,589 | $1,485,095 | $263,737 | $372,757 | 27.0% | |
| Fees: other services | $815,867 | $744,635 | $32,775 | $38,457 | 10.4% | |
| Information technology | $523,842 | $399,987 | $34,155 | $89,700 | 6.7% | |
| Pay: officers, directors, trustees, key employees | $233,600 | $175,200 | $23,360 | $35,040 | 3.0% | |
| Other (as described) | MEALS | $189,819 | $181,675 | $5,387 | $2,757 | 2.4% |
| Payroll taxes | $169,789 | $119,701 | $20,697 | $29,391 | 2.2% | |
| Conferences, conventions and meetings | $151,951 | $151,451 | $242 | $258 | 1.9% | |
| Occupancy | $147,543 | $87,809 | $27,259 | $32,475 | 1.9% | |
| Travel | $134,258 | $126,783 | $1,874 | $5,601 | 1.7% | |
| All other expenses | $127,131 | $64,190 | $46,423 | $16,518 | 1.6% | |
| Pension plan contributions | $107,343 | $75,677 | $13,085 | $18,581 | 1.4% | |
| Other employee benefits | $107,308 | $75,634 | $13,081 | $18,593 | 1.4% | |
| Fees: legal | $81,870 | $51,020 | $30,850 | - | 1.0% | |
| Office expenses | $57,760 | $40,329 | $11,315 | $6,116 | 0.7% | |
| Other (as described) | BANK CHARGES | $54,180 | $269 | $15,214 | $38,697 | 0.7% |
| Other (as described) | PRINTING & PUBLICATIONS | $53,325 | $49,790 | $1,015 | $2,520 | 0.7% |
| Other (as described) | FEES & PERMITS | $44,919 | $34,579 | $3,288 | $7,052 | 0.6% |
| Insurance | $21,713 | $15,016 | $2,986 | $3,711 | 0.3% | |
| Fees: accounting | $17,225 | - | $17,225 | - | 0.2% | |
| Depreciation and depletion | $15,447 | $10,848 | $2,112 | $2,487 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $0 | $133,757 | reported apart | |||
| Total | $7,865,638 | 100% |
2019 · Form 990 · $10,852,988 spent · pay $3,127,518 · grants $4,455,275 · events $761,108
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $4,448,275 | $4,448,275 | - | - | 41.0% | |
| Other salaries and wages | $2,026,451 | $1,418,930 | $244,570 | $362,951 | 18.7% | |
| Information technology | $768,832 | $605,105 | $38,085 | $125,642 | 7.1% | |
| Pay: officers, directors, trustees, key employees | $612,677 | $448,139 | $102,711 | $61,827 | 5.6% | |
| Fees: other services | $603,601 | $582,232 | $20,115 | $1,254 | 5.6% | |
| Conferences, conventions and meetings | $440,381 | $438,869 | $1,298 | $214 | 4.1% | |
| Travel | $421,842 | $388,136 | $10,802 | $22,904 | 3.9% | |
| Other (as described) | MEALS | $373,001 | $364,372 | $6,462 | $2,167 | 3.4% |
| Other employee benefits | $302,572 | $216,409 | $37,299 | $48,864 | 2.8% | |
| Payroll taxes | $185,818 | $132,916 | $22,911 | $29,991 | 1.7% | |
| Occupancy | $167,126 | $113,424 | $18,350 | $35,352 | 1.5% | |
| Fees: legal | $85,284 | $77,579 | $7,705 | - | 0.8% | |
| Office expenses | $84,330 | $54,873 | $20,603 | $8,854 | 0.8% | |
| All other expenses | $82,241 | $52,176 | $13,342 | $16,723 | 0.8% | |
| Other (as described) | PRINTING & PUBLICATIONS | $81,065 | $49,506 | $12,965 | $18,594 | 0.7% |
| Other (as described) | FEES & PERMITS | $66,816 | $55,628 | $1,892 | $9,296 | 0.6% |
| Other (as described) | BANK CHARGES | $52,496 | $0 | $21,545 | $30,951 | 0.5% |
| Insurance | $16,764 | $9,920 | $4,456 | $2,388 | 0.2% | |
| Depreciation and depletion | $15,910 | $11,924 | $1,516 | $2,470 | 0.1% | |
| Fees: accounting | $10,506 | - | $10,506 | - | 0.1% | |
| Grants outside the US | $7,000 | $7,000 | - | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $0 | $320,727 | reported apart | |||
| Total | $10,852,988 | 100% |
2018 · Form 990 · $8,688,235 spent · pay $2,712,295 · grants $2,393,393 · events $1,085,575
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,370,643 | $2,370,643 | - | - | 27.3% | |
| Other salaries and wages | $1,759,202 | $1,330,353 | $142,555 | $286,294 | 20.2% | |
| Other (as described) | CONSULTING EXPENSE | $1,430,147 | $1,381,851 | $33,396 | $14,900 | 16.5% |
| Conferences, conventions and meetings | $701,950 | $696,834 | $3,757 | $1,359 | 8.1% | |
| Pay: officers, directors, trustees, key employees | $572,349 | $466,718 | $36,597 | $69,034 | 6.6% | |
| Travel | $394,959 | $351,492 | $10,390 | $33,077 | 4.5% | |
| Information technology | $293,392 | $137,016 | $47,237 | $109,139 | 3.4% | |
| All other expenses | $226,120 | $144,629 | $46,116 | $35,375 | 2.6% | |
| Other employee benefits | $218,767 | $174,118 | $10,871 | $33,778 | 2.5% | |
| Payroll taxes | $161,977 | $128,918 | $8,050 | $25,009 | 1.9% | |
| Occupancy | $153,144 | $112,955 | $7,195 | $32,994 | 1.8% | |
| Fees: legal | $121,845 | $113,973 | $4,779 | $3,093 | 1.4% | |
| Other (as described) | OFFICE EXPENSES & SUPPL | $69,245 | $40,181 | $21,953 | $7,111 | 0.8% |
| Other (as described) | BANK CHARGES | $69,040 | $0 | $50,907 | $18,133 | 0.8% |
| Other (as described) | PRINTING & PUBLICATIONS | $66,794 | $36,008 | $13,912 | $16,874 | 0.8% |
| Grants outside the US | $22,750 | $22,750 | - | - | 0.3% | |
| Insurance | $22,689 | $13,424 | $6,030 | $3,235 | 0.3% | |
| Fees: accounting | $18,713 | - | $18,713 | - | 0.2% | |
| Depreciation and depletion | $14,509 | $11,184 | $1,114 | $2,211 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $0 | $383,625 | reported apart | |||
| Total | $8,688,235 | 100% |
2017 · Form 990 · $9,102,759 spent · pay $2,368,206 · grants $4,162,350 · events $879,358
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $4,155,207 | $4,155,207 | - | - | 45.6% | |
| Other salaries and wages | $1,606,425 | $1,211,504 | $116,166 | $278,755 | 17.6% | |
| Conferences, conventions and meetings | $607,843 | $603,362 | $4,481 | - | 6.7% | |
| Pay: officers, directors, trustees, key employees | $525,568 | $422,679 | $40,937 | $61,952 | 5.8% | |
| Other (as described) | CONSULTING EXPENSE | $371,534 | $228,624 | $75,410 | $67,500 | 4.1% |
| Other (as described) | OUTSIDE SERVICES | $323,094 | $301,128 | $15,485 | $6,481 | 3.5% |
| Travel | $273,643 | $257,153 | $4,714 | $11,776 | 3.0% | |
| All other expenses | $254,113 | $121,695 | $66,855 | $65,563 | 2.8% | |
| Other (as described) | BANK CHARGES | $167,464 | $0 | $6,667 | $160,797 | 1.8% |
| Information technology | $164,288 | $50,353 | $113,935 | - | 1.8% | |
| Payroll taxes | $154,348 | $136,058 | $11,422 | $6,868 | 1.7% | |
| Occupancy | $148,065 | $129,293 | $11,520 | $7,252 | 1.6% | |
| Insurance | $131,372 | $83,174 | $30,915 | $17,283 | 1.4% | |
| Other employee benefits | $81,865 | $72,170 | $6,049 | $3,646 | 0.9% | |
| Fees: legal | $57,501 | $50,263 | $7,238 | - | 0.6% | |
| Other (as described) | OFFICE EXPENSES & SUPPL | $53,530 | $33,172 | $18,740 | $1,618 | 0.6% |
| Depreciation and depletion | $19,756 | $15,212 | $1,383 | $3,161 | 0.2% | |
| Grants outside the US | $7,143 | $7,143 | - | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $0 | $271,515 | reported apart | |||
| Total | $9,102,759 | 100% |
2016 · Form 990 · $7,560,664 spent · pay $2,269,409 · grants $2,682,986 · events $1,028,595
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,647,986 | $2,647,986 | - | - | 35.0% | |
| Other salaries and wages | $1,527,655 | $1,354,954 | $112,909 | $59,792 | 20.2% | |
| Conferences, conventions and meetings | $665,316 | $665,185 | $131 | - | 8.8% | |
| Pay: officers, directors, trustees, key employees | $521,462 | $417,391 | $41,137 | $62,934 | 6.9% | |
| Other (as described) | CONSULTING EXPENSE | $376,770 | $280,242 | $62,778 | $33,750 | 5.0% |
| All other expenses | $367,525 | $145,096 | $112,844 | $109,585 | 4.9% | |
| Travel | $357,434 | $315,894 | $16,255 | $25,285 | 4.7% | |
| Other (as described) | OUTSIDE SERVICES | $253,633 | $248,708 | $4,125 | $800 | 3.4% |
| Other (as described) | BANK CHARGES | $162,533 | $0 | $14,834 | $147,699 | 2.1% |
| Payroll taxes | $148,534 | $129,923 | $10,368 | $8,243 | 2.0% | |
| Occupancy | $118,282 | $103,537 | $8,207 | $6,538 | 1.6% | |
| Insurance | $115,271 | $25,279 | $89,992 | - | 1.5% | |
| Fees: accounting | $77,224 | $66,269 | $6,097 | $4,858 | 1.0% | |
| Other employee benefits | $71,758 | $62,756 | $5,001 | $4,001 | 0.9% | |
| Other (as described) | OFFICE EXPENSES & SUPPL | $63,981 | $23,164 | $32,371 | $8,446 | 0.8% |
| Grants outside the US | $35,000 | $35,000 | - | - | 0.5% | |
| Depreciation and depletion | $28,381 | $11,409 | $8,431 | $8,541 | 0.4% | |
| Fees: legal | $21,919 | $20,075 | $1,844 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $0 | $363,279 | reported apart | |||
| Total | $7,560,664 | 100% |
2015 · Form 990 · $7,704,794 spent · pay $2,194,247 · grants $3,023,969 · events $682,083
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,912,636 | $2,912,636 | - | - | 37.8% | |
| Pay: officers, directors, trustees, key employees | $1,279,965 | $998,953 | $151,676 | $129,336 | 16.6% | |
| Other salaries and wages | $750,386 | $625,211 | $42,979 | $82,196 | 9.7% | |
| Fees: other services | $565,956 | $495,956 | $17,000 | $53,000 | 7.3% | |
| Conferences, conventions and meetings | $484,483 | $484,483 | - | - | 6.3% | |
| Travel | $409,236 | $303,356 | $29,611 | $76,269 | 5.3% | |
| Other (as described) | BANK CHARGES | $172,898 | - | $11,630 | $161,268 | 2.2% |
| Other (as described) | OUTSIDE SERVICES | $169,223 | $166,794 | $1,335 | $1,094 | 2.2% |
| Occupancy | $156,124 | $110,873 | $29,527 | $15,724 | 2.0% | |
| All other expenses | $143,906 | $58,387 | $23,405 | $62,114 | 1.9% | |
| Payroll taxes | $128,363 | $108,750 | $6,734 | $12,879 | 1.7% | |
| Other (as described) | FEES & PERMITS | $122,824 | $18,470 | $14,377 | $89,977 | 1.6% |
| Grants outside the US | $111,333 | $111,333 | - | - | 1.4% | |
| Other (as described) | MEALS & ENTERTAINMENT | $100,139 | $35,391 | $11,630 | $53,118 | 1.3% |
| Office expenses | $66,322 | $19,174 | $32,985 | $14,163 | 0.9% | |
| Pension plan contributions | $35,533 | $29,533 | $2,060 | $3,940 | 0.5% | |
| Fees: legal | $33,842 | $22,275 | $11,567 | - | 0.4% | |
| Information technology | $32,438 | $6,000 | $26,438 | - | 0.4% | |
| Depreciation and depletion | $19,887 | $8,225 | $5,831 | $5,831 | 0.3% | |
| Fees: accounting | $7,407 | $6,108 | $446 | $853 | 0.1% | |
| Interest | $1,893 | - | $1,893 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $0 | $197,600 | reported apart | |||
| Total | $7,704,794 | 100% |
2014 · Form 990 · $6,359,008 spent · pay $1,607,461 · grants $2,062,225 · events $613,277
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,828,572 | $1,828,572 | - | - | 28.8% | |
| Other salaries and wages | $1,029,525 | $800,688 | $51,360 | $177,477 | 16.2% | |
| Fees: other services | $516,122 | $462,711 | $20,906 | $32,505 | 8.1% | |
| Pay: officers, directors, trustees, key employees | $425,421 | $330,861 | $21,223 | $73,337 | 6.7% | |
| Travel | $424,655 | $304,608 | $29,857 | $90,190 | 6.7% | |
| Conferences, conventions and meetings | $420,582 | $420,582 | - | - | 6.6% | |
| Other (as described) | OUTSIDE SERVICES | $316,186 | $154,825 | $1,416 | $159,945 | 5.0% |
| Grants outside the US | $233,653 | $233,653 | - | - | 3.7% | |
| Other (as described) | FEES & PERMITS | $166,613 | $20,483 | $3,117 | $143,013 | 2.6% |
| Occupancy | $155,639 | $106,593 | $29,610 | $19,436 | 2.4% | |
| Other (as described) | BANK CHARGES | $149,568 | $392 | $9,536 | $139,640 | 2.4% |
| All other expenses | $143,440 | $73,620 | $9,414 | $60,406 | 2.3% | |
| Fees: accounting | $121,173 | $90,573 | $6,868 | $23,732 | 1.9% | |
| Payroll taxes | $112,992 | $87,950 | $5,620 | $19,422 | 1.8% | |
| Insurance | $85,170 | - | $85,170 | - | 1.3% | |
| Other (as described) | MEALS & ENTERTAINMENT | $82,987 | $30,473 | $10,526 | $41,988 | 1.3% |
| Office expenses | $51,730 | $13,733 | $23,009 | $14,988 | 0.8% | |
| Other employee benefits | $39,523 | $29,896 | $2,161 | $7,466 | 0.6% | |
| Information technology | $30,808 | $6,000 | $24,808 | - | 0.5% | |
| Depreciation and depletion | $11,849 | $6,517 | $2,666 | $2,666 | 0.2% | |
| Fees: legal | $10,700 | $6,660 | $4,040 | - | 0.2% | |
| Interest | $2,100 | - | $2,100 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $0 | $192,695 | reported apart | |||
| Total | $6,359,008 | 100% |
2013 · Form 990 · $6,086,315 spent · pay $1,347,166 · grants $2,227,380 · events $730,960
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,016,261 | $2,016,261 | - | - | 33.1% | |
| Other salaries and wages | $790,130 | $647,098 | - | $143,032 | 13.0% | |
| Pay: officers, directors, trustees, key employees | $433,853 | $303,072 | $130,781 | - | 7.1% | |
| Fees: other services | $421,371 | $387,323 | $10,000 | $24,048 | 6.9% | |
| Conferences, conventions and meetings | $387,750 | $387,750 | - | - | 6.4% | |
| Travel | $371,599 | $284,945 | $40,269 | $46,385 | 6.1% | |
| Other (as described) | OUTSIDE SERVICES | $318,438 | $278,406 | $6,115 | $33,917 | 5.2% |
| Grants outside the US | $206,280 | $206,280 | - | - | 3.4% | |
| Other (as described) | FEES & PERMITS | $182,015 | $16,471 | $3,866 | $161,678 | 3.0% |
| Other (as described) | BANK CHARGES | $165,710 | - | $11,762 | $153,948 | 2.7% |
| All other expenses | $156,869 | $52,500 | $32,192 | $72,177 | 2.6% | |
| Occupancy | $122,458 | $97,892 | $10,167 | $14,399 | 2.0% | |
| Fees: accounting | $113,425 | $1,232 | $93,953 | $18,240 | 1.9% | |
| Payroll taxes | $100,328 | $75,966 | $13,172 | $11,190 | 1.6% | |
| Insurance | $82,659 | $6,300 | $76,359 | - | 1.4% | |
| Other (as described) | MEALS & ENTERTAINMENT | $78,739 | $41,525 | $9,318 | $27,896 | 1.3% |
| Office expenses | $61,695 | $15,204 | $33,967 | $12,524 | 1.0% | |
| Information technology | $26,188 | $6,929 | $19,259 | - | 0.4% | |
| Pension plan contributions | $22,855 | - | $22,855 | - | 0.4% | |
| Depreciation and depletion | $15,716 | $5,444 | $5,136 | $5,136 | 0.3% | |
| Fees: legal | $6,660 | $3,605 | $3,055 | - | 0.1% | |
| Grants to US individuals | $4,839 | $4,839 | - | - | 0.1% | |
| Interest | $477 | - | $477 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $0 | $343,210 | reported apart | |||
| Total | $6,086,315 | 100% |
2012 · Form 990 · $6,222,128 spent · pay $1,131,278 · grants $2,779,190 · events $754,989
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,527,046 | $2,527,046 | - | - | 40.6% | |
| Other salaries and wages | $561,685 | $457,146 | - | $104,539 | 9.0% | |
| Pay: officers, directors, trustees, key employees | $460,754 | $307,482 | $153,272 | - | 7.4% | |
| Conferences, conventions and meetings | $389,068 | $389,068 | - | - | 6.3% | |
| Fees: other services | $359,937 | $319,697 | $4,000 | $36,240 | 5.8% | |
| Travel | $299,139 | $227,279 | $22,085 | $49,775 | 4.8% | |
| All other expenses | $242,001 | $138,491 | $28,974 | $74,536 | 3.9% | |
| Other (as described) | OUTSIDE SERVICES | $239,452 | $190,975 | - | $48,477 | 3.8% |
| Other (as described) | BANK CHARGES | $153,482 | - | $17,214 | $136,268 | 2.5% |
| Grants outside the US | $150,411 | $150,411 | - | - | 2.4% | |
| Occupancy | $126,662 | $104,821 | $8,393 | $13,448 | 2.0% | |
| Other (as described) | FEES & PERMITS | $119,716 | $9,126 | - | $110,590 | 1.9% |
| Fees: accounting | $115,873 | $6,002 | $92,371 | $17,500 | 1.9% | |
| Grants to US individuals | $101,733 | $101,733 | - | - | 1.6% | |
| Payroll taxes | $90,529 | $74,280 | $6,244 | $10,005 | 1.5% | |
| Other (as described) | MEALS & ENTERTAINMENT | $82,874 | $22,363 | $9,343 | $51,168 | 1.3% |
| Insurance | $77,425 | $1,557 | $75,868 | - | 1.2% | |
| Office expenses | $48,896 | $16,077 | $20,840 | $11,979 | 0.8% | |
| Depreciation and depletion | $25,345 | $9,611 | $7,867 | $7,867 | 0.4% | |
| Information technology | $25,100 | $3,506 | $21,594 | - | 0.4% | |
| Pension plan contributions | $18,310 | - | $18,310 | - | 0.3% | |
| Fees: legal | $3,910 | - | $3,910 | - | 0.1% | |
| Interest | $2,780 | - | $2,780 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $365,921 | reported apart | |||
| Total | $6,222,128 | 100% |
2011 · Form 990 · $6,219,059 spent · pay $1,316,491 · grants $2,664,243 · events $679,525
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,052,074 | $2,052,074 | - | - | 33.0% | |
| Other salaries and wages | $708,523 | $596,378 | $20,343 | $91,802 | 11.4% | |
| Grants outside the US | $517,144 | $517,144 | - | - | 8.3% | |
| Other (as described) | CDC ACTIVITY | $461,035 | $461,035 | - | - | 7.4% |
| Pay: officers, directors, trustees, key employees | $459,851 | $307,677 | $152,174 | - | 7.4% | |
| Fees: other services | $347,313 | $288,256 | - | $59,057 | 5.6% | |
| Conferences, conventions and meetings | $346,317 | $346,317 | - | - | 5.6% | |
| Travel | $217,785 | $177,394 | $19,561 | $20,830 | 3.5% | |
| All other expenses | $174,382 | $110,651 | $16,543 | $47,188 | 2.8% | |
| Other (as described) | BANK CHARGES | $161,009 | - | $6,554 | $154,455 | 2.6% |
| Other (as described) | FEES & PERMITS | $146,557 | $5,802 | - | $140,755 | 2.4% |
| Occupancy | $137,872 | $99,251 | $24,684 | $13,937 | 2.2% | |
| Grants to US individuals | $95,025 | $95,025 | - | - | 1.5% | |
| Payroll taxes | $89,388 | $74,778 | $6,077 | $8,533 | 1.4% | |
| Information technology | $85,862 | $62,093 | $23,769 | - | 1.4% | |
| Other (as described) | MEALS & ENTERTAINMENT | $67,052 | $36,811 | $13,697 | $16,544 | 1.1% |
| Office expenses | $44,124 | $4,997 | $25,273 | $13,854 | 0.7% | |
| Other employee benefits | $43,090 | - | $43,090 | - | 0.7% | |
| Insurance | $19,326 | - | $19,326 | - | 0.3% | |
| Pension plan contributions | $15,639 | - | $15,639 | - | 0.3% | |
| Fees: accounting | $12,694 | - | - | $12,694 | 0.2% | |
| Fees: legal | $9,447 | $7,675 | $1,772 | - | 0.2% | |
| Depreciation and depletion | $7,548 | $2,566 | $2,491 | $2,491 | 0.1% | |
| Interest | $2 | - | $2 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $333,208 | reported apart | |||
| Total | $6,219,059 | 100% |
2010 · Form 990 · $4,585,913 spent · pay $1,241,018 · grants $1,229,504 · events $702,363
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,204,660 | $1,204,660 | - | - | 26.3% | |
| Other salaries and wages | $661,971 | $519,055 | $37,174 | $105,742 | 14.4% | |
| Pay: officers, directors, trustees, key employees | $423,647 | $294,534 | $129,113 | - | 9.2% | |
| Fees: other services | $364,006 | $340,006 | - | $24,000 | 7.9% | |
| Other (as described) | TRANSLATION | $317,757 | $317,757 | $0 | $0 | 6.9% |
| Conferences, conventions and meetings | $279,588 | $279,588 | - | - | 6.1% | |
| Other (as described) | CDC ACTIVITY | $228,791 | $228,791 | $0 | $0 | 5.0% |
| Travel | $216,590 | $155,005 | $20,436 | $41,149 | 4.7% | |
| All other expenses | $142,497 | $79,218 | $19,666 | $43,613 | 3.1% | |
| Occupancy | $123,270 | $83,920 | $22,834 | $16,516 | 2.7% | |
| Other (as described) | BANK CHARGES | $99,390 | $0 | $12,362 | $87,028 | 2.2% |
| Other (as described) | FEES & PERMITS | $94,467 | $14,350 | $0 | $80,117 | 2.1% |
| Other (as described) | MEALS & ENTERTAINMENT | $83,035 | $30,641 | $12,630 | $39,764 | 1.8% |
| Payroll taxes | $75,391 | $59,042 | $7,447 | $8,902 | 1.6% | |
| Information technology | $70,364 | $50,434 | $19,930 | - | 1.5% | |
| Other employee benefits | $66,261 | - | $66,261 | - | 1.4% | |
| Office expenses | $63,534 | $10,431 | $35,140 | $17,963 | 1.4% | |
| Grants outside the US | $24,844 | $24,844 | - | - | 0.5% | |
| Fees: accounting | $15,000 | - | - | $15,000 | 0.3% | |
| Pension plan contributions | $13,748 | - | $13,748 | - | 0.3% | |
| Depreciation and depletion | $12,797 | $4,351 | $4,223 | $4,223 | 0.3% | |
| Fees: legal | $4,291 | - | $4,291 | - | 0.1% | |
| Interest | $14 | - | $14 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $422,775 | reported apart | |||
| Total | $4,585,913 | 100% |
State business registration
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. FL, Foreign nonprofit corporation (FORNP), Active, formed 2014-02-28
The same business name in the same state, from the state’s official registry data.
Trademarks
3 US trademarks, 3 live.
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. 3 marks, DC EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| THE DUCHENNE REGISTRY | 88093836 | 2018-08-27 | Registered | TRTDXFAP, file of 2026-02-13 |
| END DUCHENNE .1K | 87054441 | 2016-05-31 | Registered | TRTDXFAP, file of 2026-08-09 |
| CERTIFIED DUCHENNE CARE CENTER | 87054438 | 2016-05-31 | Registered | TRTYRAP, file of 2026-04-03 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments