THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (EIN 31-1405490)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-04-10
- IRS object ID
- 201311009349300441
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-04-10T15:52:09-05:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 310800053 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLARK SCHAEFER HACKETT & CO | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10100 INNOVATION DRIVE SUITE 400 | AddressLine1 |
| City | DAYTON | City |
| State | OH | State |
| ZIP Code | 45342 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 311405490 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE PARENT PROJECT FOR MUSCULAR | BusinessNameLine1 |
| Business Name Line2 | DYSTROPHY RESEARCH INC | BusinessNameLine2 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | PARE | NameControl |
| Phone | 2019449985 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1 |
| City | HACKENSACK | City |
| State | NJ | State |
| ZIP Code | 07601 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | NANCY L GROSS | Name |
| Title | CFO | Title |
| Phone | 5134246035 | Phone |
| Date Signed | 2013-04-10 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | ROBIN M DENNIS | Name |
| PTIN | P00999809 | PTIN |
| Phone | 9372260070 | Phone |
| Date Prepared | 2013-04-10 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-02-25 16:41:14Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | PATRICIA A FURLONG | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1 |
| City | HACKENSACK | City |
| State | NJ | State |
| ZIP Code | 07601 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 7518044 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.PARENTPROJECTMD.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1997 | YearFormation |
| State Legal Domicile | OH | StateLegalDomicile |
| Activity Or Mission Description | PARENT PROJECT MUSCULAR DYSTROPHY'S MISSION IS TO IMPROVE THE TREATMENT, QUALITY OF LIFE AND LONG-TERM OUTLOOK FOR ALL INDIVIDUALS AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY (DUCHENNE) THROUGH RESEARCH, ADVOCACY, EDUCATION AND COMPASSION. OBJECTIVES- TO IDENTIFY, SUPPORT, AND SHARE PROMISING DUCHENNE-RELATED RESEARCH.- TO MAKE STATE-OF-THE-ART INFORMATION ABOUT TREATMENT AND CARE OPTIONS AVAILABLE TO ALL MEMBERS OF THE DUCHENNE COMMUNITY.- TO PURSUE STRATEGIES THAT WILL IMPACT THIS GENERATION OF YOUNG MEN AFFECTED BY DUCHENNE AS WELL AS FUTURE GENERATIONS.- TO ENCOURAGE POLICYMAKERS TO AFFORD THE SAME PRIORITY TO DUCHENNE AS THEY WOULD TO OTHER DISORDERS OF SIMILIAR INCIDENCE AND PREVALENCE.- TO CREATE A SUPPORTIVE COMMUNITY FOR PEOPLE AFFECTED BY DUCHENNE. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 16 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 16 | NbrIndependentVotingMembers |
| Total Nbr Employees | 16 | TotalNbrEmployees |
| Total Nbr Volunteers | 515 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 6588002 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 6099492 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 77571 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 52208 | ProgramServiceRevenueCY |
| Investment Income Prior Year | -490 | InvestmentIncomePriorYear |
| Investment Income Current Year | -6081 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | -333208 | OtherRevenuePriorYear |
| Other Revenue Current Year | -365921 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 6331875 | TotalRevenuePriorYear |
| Total Revenue Current Year | 5779698 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 2664243 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 2779190 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 1316491 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 1131278 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 672392 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 2238325 | OtherExpensePriorYear |
| Other Expenses Current Year | 2311660 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 6219059 | TotalExpensesPriorYear |
| Total Expenses Current Year | 6222128 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | 112816 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | -442430 | RevenuesLessExpensesCY |
| Total Assets BOY | 3191220 | TotalAssetsBOY |
| Total Assets EOY | 2885159 | TotalAssetsEOY |
| Total Liabilities BOY | 342883 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 479253 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 2848337 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 2405906 | NetAssetsOrFundBalancesEOY |
| Mission Description | THE PARENT PROJECT FOR MUSCULAR DYSTROPHY'S MISSION IS TO END DUCHENNE. WE ACCELERATE RESEARCH, RAISE OUR VOICES IN WASHINGTON, DEMAND OPTIMAL CARE FOR ALL YOUNG MEN, AND EDUCATE THE GLOBAL COMMUNITY. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 4071085 | Expense |
| Grants | 2779190 | Grants |
| Description | SUPPORT FOR RESEARCH TO ACCELERATE TREATMENTS AND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY INCLUDING STUDIES IN THE FOLLOWING AREAS: RECOMBINANT BIGLYCAN, COMBINED THERAPEUTICS, CEDARS-SINAI CLINICAL TRIALS, FAILED REGENERATION IN DMD, FOLLISTATIN GENE THERAPY, CHRONIC SORROW THERAPEUTICS, CARDIAC USE OF SILDENAFIL, TAMOXIFEN, AND UTROPHIN PROMOTER HTS. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 819373 | Expense |
| Revenue | 52208 | Revenue |
| Description | EDUCATIONAL INITIATIVES INCLUDING ONLINE RESOURCES AND TWO CONFERENCES HELD IN SAN DIEGO AND FORT LAUDERDALE THAT BROUGHT SCIENTISTS AND FAMILIES IN THE DUCHENNE COMMUNITY TOGETHER TO DISCUSS AND EXPEDITE TREATMENTS, PATIENT CARE, AND RESEARCH FOR A CURE FOR THE DISEASE. OTHER EDUCATIONAL EFFORTS WERE PROMOTED THROUGH F.A.C.E.S. PROGRAM, ALONG WITH AN INITIATIVE TO ORGANIZE THE WORLDWIDE COMMUNITY IN A PROGRAM CALLED DUCHENNE CONNECT. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 166213 | Expense |
| Description | ADVOCACY IS PROMOTED ON AN ANNUAL BASIS THROUGH A LEGISLATIVE CONFERENCE HELD IN WASHINGTON, D.C. UNDER THE LEADERSHIP OF A CONSULTING FIRM BASED IN THE AREA. PARENTS TAKE A HANDS-ON ROLE IN COMMUNICATING WITH LEGISLATORS DURING THIS PROCESS, FOR THE PURPOSE OF PROMOTING AWARENESS AND ENCOURAGING GOVERNMENT FUNDING FOR RESEARCH AND PATIENT CARE. IN ADDITION, COMMUNICATIONS ARE ROUTINELY HELD WITH NIH, THE FDA, AND THE CDC. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 5056671 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 1 | LobbyingActivities |
| Subject To Proxy Tax | 0 | SubjectToProxyTax |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 1 | ReportOtherAssets |
| Report Other Liabilities | 0 | ReportOtherLiabilities |
| Report Fin48 Footnote | 1 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 1 | ForeignActivities |
| More Than5000 K To Organizations | 1 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 0 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 1 | GrantsToOrganizations |
| Grants To Individuals | 1 | GrantsToIndividuals |
| Schedule J Required | 1 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 1 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 1 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 56 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Compliance With Backup Witholding | 1 | ComplianceWithBackupWitholding |
| Number Of Employees | 16 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 16 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 16 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 0 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 1 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 0 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 0 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 1 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | AZ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | FL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | GA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | LA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MD | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NJ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | PA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | SC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TX | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | UT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | VA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NC | StatesWhereCopyOfReturnIsFiled |
| Own Website | X | OwnWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NANCY L GROSS CPA | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 5134246035 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1208 SUNSET STREET | AddressLine1 |
| City | MIDDLETOWN | City |
| State | OH | State |
| ZIP Code | 45042 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (19 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation | OfficerOfficer |
|---|---|---|---|---|---|---|
| DOUGLAS BIGGAR | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| NEIL BRANDOM | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| JOHN HIATT | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| JOHN KILLIAN | ||||||
| TREASURER | 10.00 | X | 0 | 0 | 0 | X |
| DANIEL GAROFALO | ||||||
| SECRETARY | 5.00 | X | 0 | 0 | 0 | X |
| MARTY KARLIN | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| HEINRICH MEERMANN | ||||||
| TRUSTEE | 0.50 | X | 0 | 0 | 0 | |
| ROBERT MCDONALD MD | ||||||
| CHAIRMAN | 10.00 | X | 0 | 0 | 0 | X |
| JAMES POYSKY | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| JASBHIR SEEHRA | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| CATHERINE COLLINS | ||||||
| TRUSTEE | 10.00 | X | 0 | 0 | 0 | |
| ANESSA FEHSENFELD | ||||||
| TRUSTEE | 10.00 | X | 0 | 0 | 0 | |
| ROBERT GETLER | ||||||
| TRUSTEE | 5.00 | X | 0 | 0 | 0 | |
| LANCE HESTER | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| ROBERT NUTT | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| ELLEN WAGNER | ||||||
| TRUSTEE | 3.00 | X | 0 | 0 | 0 | |
| PATRICIA FURLONG | ||||||
| FOUNDING PRESIDENT/CEO | 65.00 | 168000 | 0 | 14466 | X | |
| KIMBERLY GALBERAITH | ||||||
| COO | 50.00 | 152200 | 0 | 19674 | X | |
| NANCY GROSS | ||||||
| CFO | 32.00 | 106414 | 0 | 0 | X | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 426614 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 34140 | TotalOtherCompensation |
| Number Individuals GT100 K | 3 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 1 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
Contractor Compensation ContractorCompensation (5 entries)
| Address Line1AddressOfContractor/AddressUS/AddressLine1 | CityAddressOfContractor/AddressUS/City | StateAddressOfContractor/AddressUS/State | ZIP CodeAddressOfContractor/AddressUS/ZIPCode | Description Of ServicesDescriptionOfServices | CompensationCompensation |
|---|---|---|---|---|---|
| MARRIOTT BUSINESS SERVICES | |||||
| PO BOX 402745 | ATLANTA | GA | 30384 | TRAVEL SERVICES | 240825 |
| FAEGREBD CONSULTING | |||||
| PO BOX 664091 | INDIANAPOLIS | IN | 46266 | CONSULTING | 198342 |
| KATHY KINNETT | |||||
| 1570 HOLLYWOOD AVENUE | CINCINNATI | OH | 45224 | CONSULTING | 133120 |
| LEE SWEENEY CONSULTING LLC | |||||
| 2100 LOCUST STREET | PHILADELPHIA | PA | 19103 | CONSULTING | 132000 |
| GROSS & COMPANY INC CPA'S | |||||
| 1208 SUNSET STREET | MIDDLETOWN | OH | 45042 | CFO SERVICES | 106414 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number Of Contractors GT100 K | 5 | NumberOfContractorsGT100K |
| Federated Campaigns | 21070 | FederatedCampaigns |
| Fundraising Events | 1588661 | FundraisingEvents |
| Government Grants | 55593 | GovernmentGrants |
| All Other Contributions | 4434168 | AllOtherContributions |
| Noncash Contributions | 1499845 | NoncashContributions |
| Total Contributions | 6099492 | TotalContributions |
Program Service Revenue ProgramServiceRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | CONFERENCE FEES | Description |
| Business Code | 900099 | BusinessCode |
| Total Revenue Column | 52208 | TotalRevenueColumn |
| Related Or Exempt Function Income | 52208 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 52208 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 2310 | TotalRevenueColumn |
| Exclusion | $2,310 | ExclusionAmount |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 1364034 | Securities |
Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 1372332 | Securities |
| Other | 93 | Other |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -8298 | Securities |
| Other | -93 | Other |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -8391 | TotalRevenueColumn |
| Exclusion | -$8,391 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 0 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 1588661 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 365921 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -365921 | TotalRevenueColumn |
| Exclusion | -$365,921 | ExclusionAmount |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 5779698 | TotalRevenueColumn |
| Related Or Exempt Function Income | 52208 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | -$372,002 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2527046 | Total |
| Program Services | 2527046 | ProgramServices |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 101733 | Total |
| Program Services | 101733 | ProgramServices |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 150411 | Total |
| Program Services | 150411 | ProgramServices |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 460754 | Total |
| Program Services | 307482 | ProgramServices |
| Management And General | 153272 | ManagementAndGeneral |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 561685 | Total |
| Program Services | 457146 | ProgramServices |
| Fundraising | 104539 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 18310 | Total |
| Management And General | 18310 | ManagementAndGeneral |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 90529 | Total |
| Program Services | 74280 | ProgramServices |
| Management And General | 6244 | ManagementAndGeneral |
| Fundraising | 10005 | Fundraising |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 3910 | Total |
| Management And General | 3910 | ManagementAndGeneral |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 115873 | Total |
| Program Services | 6002 | ProgramServices |
| Management And General | 92371 | ManagementAndGeneral |
| Fundraising | 17500 | Fundraising |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 359937 | Total |
| Program Services | 319697 | ProgramServices |
| Management And General | 4000 | ManagementAndGeneral |
| Fundraising | 36240 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 48896 | Total |
| Program Services | 16077 | ProgramServices |
| Management And General | 20840 | ManagementAndGeneral |
| Fundraising | 11979 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25100 | Total |
| Program Services | 3506 | ProgramServices |
| Management And General | 21594 | ManagementAndGeneral |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 126662 | Total |
| Program Services | 104821 | ProgramServices |
| Management And General | 8393 | ManagementAndGeneral |
| Fundraising | 13448 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 299139 | Total |
| Program Services | 227279 | ProgramServices |
| Management And General | 22085 | ManagementAndGeneral |
| Fundraising | 49775 | Fundraising |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 389068 | Total |
| Program Services | 389068 | ProgramServices |
Interest Interest
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2780 | Total |
| Management And General | 2780 | ManagementAndGeneral |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25345 | Total |
| Program Services | 9611 | ProgramServices |
| Management And General | 7867 | ManagementAndGeneral |
| Fundraising | 7867 | Fundraising |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 77425 | Total |
| Program Services | 1557 | ProgramServices |
| Management And General | 75868 | ManagementAndGeneral |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | FundraisingFundraising | Management And GeneralManagementAndGeneral |
|---|---|---|---|---|
| OUTSIDE SERVICES | 239452 | 190975 | 48477 | |
| BANK CHARGES | 153482 | 136268 | 17214 | |
| FEES & PERMITS | 119716 | 9126 | 110590 | |
| MEALS & ENTERTAINMENT | 82874 | 22363 | 51168 | 9343 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 242001 | Total |
| Program Services | 138491 | ProgramServices |
| Management And General | 28974 | ManagementAndGeneral |
| Fundraising | 74536 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6222128 | Total |
| Program Services | 5056671 | ProgramServices |
| Management And General | 493065 | ManagementAndGeneral |
| Fundraising | 672392 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 364489 | BOY |
| EOY | 312217 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1731171 | BOY |
| EOY | 1612152 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 186316 | BOY |
| EOY | 398061 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 50784 | BOY |
| EOY | 34523 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 176897 | BOY |
| EOY | 105615 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 91740 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 60206 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 31154 | BOY |
| EOY | 31534 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 650409 | BOY |
| EOY | 391057 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3191220 | BOY |
| EOY | 2885159 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 173677 | BOY |
| EOY | 146856 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 169206 | BOY |
| EOY | 332397 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 342883 | BOY |
| EOY | 479253 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2848337 | BOY |
| EOY | 1168421 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 1237485 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2848337 | BOY |
| EOY | 2405906 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3191220 | BOY |
| EOY | 2885159 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | X | InfoInScheduleOPartXI |
| Reconcilation Revenue Expenses | -442430 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | -1 | ReconcilationOtherChanges |
| Info In Schedule O Part XII | X | InfoInScheduleOPartXII |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Separate | X | FinancialStatementSeparate |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 1 | AuditCommittee |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 4512487 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 4538702 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 7093016 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 6588002 | CurrentTaxYearMinus1Year |
| Current Tax Year | 6099492 | CurrentTaxYear |
| Total | 28831699 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 4512487 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 4538702 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 7093016 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 6588002 | CurrentTaxYearMinus1Year |
| Current Tax Year | 6099492 | CurrentTaxYear |
| Total | 28831699 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 5211411 | AmountsSubstContributorsTotal |
| Public Support Total170 | 23620288 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 3136 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 156 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 3773 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 9589 | CurrentTaxYearMinus1Year |
| Current Tax Year | 2310 | CurrentTaxYear |
| Total | 18964 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 28850663 | TotalSupport |
| Gross Receipts From Admissions Etc | 311768 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.81870 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.85220 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 166266 | FilingOrganizationsTotals |
Total Lobbying Expenditures TotalLobbyingExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 166266 | FilingOrganizationsTotals |
Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 6055862 | FilingOrganizationsTotals |
Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 6222128 | FilingOrganizationsTotals |
Lobbying Nontaxable LobbyingNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 461106 | FilingOrganizationsTotals |
Grassroots Nontaxable GrassrootsNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 115277 | FilingOrganizationsTotals |
Tot Lobbying Grassroot Minus Non Tx TotLobbyingGrassrootMinusNonTx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Tot Lobby Expend Mns Lobbying Nontx TotLobbyExpendMnsLobbyingNontx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 326849 | CurrentYearMinus3 |
| Current Year Minus2 | 379296 | CurrentYearMinus2 |
| Current Year Minus1 | 461002 | CurrentYearMinus1 |
| Current Year | 461106 | CurrentYear |
| Total | 1628253 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,442,380 | LobbyingCeilingAmount |
Total Lobbying Expenditures2 TotalLobbyingExpenditures2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 189679 | CurrentYearMinus3 |
| Current Year Minus2 | 190870 | CurrentYearMinus2 |
| Current Year Minus1 | 193286 | CurrentYearMinus1 |
| Current Year | 166266 | CurrentYear |
| Total | 740101 | Total |
Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 81712 | CurrentYearMinus3 |
| Current Year Minus2 | 94824 | CurrentYearMinus2 |
| Current Year Minus1 | 115251 | CurrentYearMinus1 |
| Current Year | 115277 | CurrentYear |
| Total | 407064 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $610,596 | GrassrootsCeilingAmount |
Schedule D IRS990ScheduleD
Buildings Buildings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 4480 | OtherCostOrOtherBasis |
| Depreciation | 254 | Depreciation |
| Book Value | 4226 | BookValue |
Other Land Buildings OtherLandBuildings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 87260 | OtherCostOrOtherBasis |
| Depreciation | 59952 | Depreciation |
| Book Value | 27308 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 31534 | TotalOfBookValueLandBuildings |
Other Assets OtherAssets (3 entries)
| DescriptionDescription | Book ValueBookValue |
|---|---|
| DEPOSITS | 3966 |
| PREPAID GRANT EXPENSE | 386348 |
| EMPLOYEE ADVANCES | 743 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | 391057 | TotalBookValueOtherAssets |
| Footnote In Part XIII | X | FootnoteInPartXIII |
| Tot Revenue Etc Audited Fincl Stmt | 5780769 | TotRevenueEtcAuditedFinclStmt |
| Revenue Not Rptd F990 | 0 | RevenueNotRptdF990 |
| Revenue Subtotal | 5780769 | RevenueSubtotal |
| Other Revenues Not Included | -1071 | OtherRevenuesNotIncluded |
| Revenue Not Rptd On Fin Stmt | -1071 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 5779698 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 6223199 | TotExpensesEtcAuditedFinclStmt |
| Other Expenses Included | 1071 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 1071 | ExpensesNotRptdF990 |
| Expenses Subtotal | 6222128 | ExpensesSubtotal |
| Expenses Not Rptd On Fin Stmt | 0 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 6222128 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIII Form990ScheduleDPartXIII (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: | PART X, LINE 2: | THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE ORGANIZATION DOES NOT CURRENTLY CONDUCT ANY ACTIVITIES, WHICH WOULD RESULT IN THE IMPOSITION OF THE UNRELATED BUSINESS INCOME TAX AND BELIEVES IT HAS NOT EARNED ANY UNRELATED BUSINESS INCOME AND HAS ESTIMATED NO TAX IS DUE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THUS, THE ORGANIZATION HAS DETERMINED THAT AN ACCRUAL FOR TAXES IS NOT NEEDED FOR THE YEAR ENDED DECEMBER 31, 2012. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | LOSS ON DISPOSITION OF FIXED ASSETS = (93) IN-KIND DONATIONS OF PROFESSIONAL FEES = (978) | |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | LOSS ON DISPOSITION OF FIXED ASSETS = 93 IN-KIND DONATIONS OF PROFESSIONAL FEES = 978 |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 1 | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable (3 entries)
| RegionRegion | Number Of OfficesNumberOfOffices | Number Of EmployeesNumberOfEmployees | Type Of Activities ConductedTypeOfActivitiesConducted | Total ExpendituresTotalExpenditures |
|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | 129849 |
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | 16667 |
| EAST ASIA / PACIFIC | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | 54700 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Offices | 0 | SubtotalNumberOfOffices |
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Cont Number Of Offices | 0 | ContNumberOfOffices |
| Cont Number Of Employees | 0 | ContNumberOfEmployees |
| Total Number Of Offices | 0 | TotalNumberOfOffices |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 201216 | SubtotalAmountSpent |
| Cont Amount Spent | 0 | ContAmountSpent |
| Total Amount Spent | 201216 | TotalAmountSpent |
Grants To Orgs Outside US GrantsToOrgsOutsideUS (6 entries)
| RegionRegion | Purpose Of GrantPurposeOfGrant | Amount Of Cash GrantAmountOfCashGrant | Manner Of Cash DisbursementMannerOfCashDisbursement | Method Of ValuationMethodOfValuation |
|---|---|---|---|---|
| EUROPE | DEVELOPMENT OF MEMRI | 16607 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | TACT MEETING SUPPORT | 48542 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | ERICE ISBMR 11TH COURSE | 10000 | WIRE TRANSFER | FMV - US DOLLARS |
| NORTH AMERICA | EXONS 45-55 SKIPPING | 16667 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | TAMOXIFEN PROJECT | 54700 | WIRE TRANSFER | FMV - US DOLLARS |
| EAST ASIA / PACIFIC | WMS INTERNATIONAL CONGRESS | 6367 | WIRE TRANSFER | FMV - US DOLLARS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of501c3 Orgs | 1 | TotalNumberOf501c3Orgs |
| Total Number Of Other Orgs | 4 | TotalNumberOfOtherOrgs |
| Transfer To Foreign Corp | 1 | TransferToForeignCorp |
| Interest In Foreign Trust | 0 | InterestInForeignTrust |
| Own Foreign Corp | 0 | OwnForeignCorp |
| Passive Foreign Invest Co | 0 | PassiveForeignInvestCo |
| Foreign Partnership | 0 | ForeignPartnership |
| Boycott Countries | 0 | BoycottCountries |
Form990 Schedule F Part V Form990ScheduleFPartV (3 entries)
| IdentifierIdentifier | ExplanationExplanation |
|---|---|
| PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: | SCHEDULE F, PART I, LINE 2: A REPORT OF EXPENDITURES AND MEDICAL RESULTS OF THE GRANT ACTIVITY IS REQUIRED FROM THE GRANTEE. |
| METHOD USED TO ACCCOUNT FOR EXPENDITURES: | SCHEDULE F, PART I, LINE 3: ACCRUAL METHOD |
| SCHEUDLE F, PART II, LINE 1: ACCRUAL METHOD |
Schedule G IRS990ScheduleG
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | END DUCHENNE GALA | NameOfEvent1 |
| Gross Receipts Event1 | 481728 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 481728 | CharitableContributionsEvent1 |
| Other Direct Expenses Event1 | 170497 | OtherDirectExpensesEvent1 |
| Name Of Event2 | SAM'S DAY | NameOfEvent2 |
| Gross Receipts Event2 | 112835 | GrossReceiptsEvent2 |
| Charitable Contributions Event2 | 112835 | CharitableContributionsEvent2 |
| Other Direct Expenses Event2 | 734 | OtherDirectExpensesEvent2 |
| Total Number Of Other Events | 32 | TotalNumberOfOtherEvents |
| Gross Receipts Other Events | 955588 | GrossReceiptsOtherEvents |
| Charitable Contrib Other Events | 955588 | CharitableContribOtherEvents |
| Other Direct Expenses Other Events | 108439 | OtherDirectExpensesOtherEvents |
| Gross Receipts Total | 1550151 | GrossReceiptsTotal |
| Charitable Contributions Total | 1550151 | CharitableContributionsTotal |
| Other Direct Expenses Total Events | 279670 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 279670 | DirectExpenseSummaryEvents |
| Net Income Summary | -279670 | NetIncomeSummary |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | 1 | RecordsMaintained |
Recipient Table RecipientTable (18 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Method Of ValuationMethodOfValuation | Purpose Of GrantPurposeOfGrant | Address Line2AddressUS/AddressLine2 |
|---|---|---|---|---|---|---|---|---|---|
| CEDARS-SINAI MEDICAL CENTER | |||||||||
| 8700 BEVERLY BOULEVARD | LOS ANGELES | CA | 90048 | 951644600 | 501(C)(3) | 376813 | N/A | CEDARS-SINAI CLINICAL TRIALS | |
| CHILDREN'S RESEARCH INSTITUTE | |||||||||
| 111 MICHIGAN AVENUE | WASHINGTON | DC | 20010 | 521654453 | 501(C)(3) | 57759 | N/A | WEISMAN FELLOWSHIP | |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | |||||||||
| 3333 BURNET AVENUE | CINCINNATI | OH | 45229 | 310833936 | 501(C)(3) | 29670 | N/A | AAA CARDIOMYOPATHY TREATMENT, BIOLOGICAL SAMPLES | |
| HALO THERAPEUTICS LLC | |||||||||
| 275 GROVE STREET | NEWTON | MA | 02466 | 275336394 | 54167 | N/A | PHASE II STUDY HT-100 | ||
| LEE SWEENEY CONSULTING LLC | |||||||||
| 2100 LOCUST STREET | PHILADELPHIA | PA | 19103 | 262195280 | 132000 | N/A | PROJECT CATALYST | ||
| MARK KREUGER & ASSOCIATES INC | |||||||||
| 521 FIFTH AVENUE 27TH FLOOR | NEW YORK | NY | 10175 | 133866890 | 27618 | N/A | FDA COMMISSIONED PAPER | ||
| OHIO STATE UNIVERSITY | |||||||||
| 1960 KENNY ROAD | COLUMBUS | OH | 43210 | 316025986 | 501(C)(3) | 8333 | N/A | RENIN INHIBITORS | |
| POSITIVE EXPOSURE | |||||||||
| 43 EAST 20TH STREET | NEW YORK | NY | 10003 | 020536768 | 501(C)(3) | 25000 | N/A | PEARLS PROJECT | |
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | |||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | 501(C)(3) | 287372 | N/A | NCH/WELLSTONE/OSU MYOLOGY, CARDIAC INITIATIVE, FOLLASTINE GENE THERAPY | |
| SOMALOGIC INC | |||||||||
| 2945 WILDERNESS PLACE | BOULDER | CO | 80301 | 522195896 | 6750 | N/A | SOMALOGIC DATA ANALYSIS | ||
| TIVORSAN PHARMACEUTICALS INC | |||||||||
| 3 DAVOL SQUARE | PROVIDENCE | RI | 02903 | 770702642 | 490000 | N/A | RECOMBINANT BIGLYCAN | ||
| UNIVERSITY OF WASHINGTON | |||||||||
| 1705 NE PACIFIC STREET H-418 HSB | SEATTLE | WA | 09195 | 916001537 | 501(C)(3) | 68174 | N/A | CARDIAC USE OF SILDENAFIL | BOX 357290 |
| UNIVERSITY OF PENNSYLVANIA | |||||||||
| 3900 DELANCEY STREET | PHILADELPHIA | PA | 19104 | 231352685 | 501(C)(3) | 794375 | N/A | SLEEPER DOG COLONY, UTROPHIN PROMOTER HTS, NEW DIRECTIONS CONFERENCE, COMBINED THERAPEUTICS, FAILED REGENERATION IN MD | |
| UNIVERSITY OF CALIFORNIA | |||||||||
| 405 HILGARD AVE 1125 MURPHY HALL | LOS ANGELES | CA | 90095 | 956006143 | 501(C)(3) | 52500 | N/A | RNA-SEQ ANALYSIS - FIBROSIS | |
| UNIVERSITY OF CALIFORNIA DAVIS | |||||||||
| PO BOX 989062 | WEST SACRAMENTO | CA | 95798 | 946036494 | 501(C)(3) | 23952 | N/A | OUTCOMES FOR TRIALS | |
| UNIVERSITY OF FLORIDA | |||||||||
| 123 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)(3) | 20086 | N/A | MAGNETIC RESONANCE IMAGING | |
| UNIVERSITY OF MISSOURI | |||||||||
| PO BOX 807012 | KANSAS CITY | MO | 64180 | 436003859 | 501(C)(3) | 47127 | N/A | SERCA2 GENE THERAPY | |
| UNIVERSITY OF IOWA | |||||||||
| B5 JESSUP HALL | IOWA CITY | IA | 52242 | 426004813 | 501(C)(3) | 22225 | N/A | AUTISM EXPLORATORY AWARD | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 13 | TotalNbrOf501C3AndGovtGrants |
| Total Nbr Of Other Organizations | 5 | TotalNbrOfOtherOrganizations |
Form990 Schedule I Part III Form990ScheduleIPartIII
| Field | Value | IRS element (for citing) |
|---|---|---|
| Type Of Grant | CHRONIC SORROW THERAPEUTICS | TypeOfGrant |
| Number Of Recipients | 1 | NumberOfRecipients |
| Amount Of Cash Grant | 101733 | AmountOfCashGrant |
| Method Of Valuation | FMV | MethodOfValuation |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS IN THE U.S.: | Identifier |
| Return Reference | PART I, LINE 2: | ReturnReference |
| Explanation | SCHEDULE I, PART I, LINE 2: THE ORGANIZATION HAS A STANDARDIZED GRANT TEMPLATE THAT REQUIRES REGULAR PERIODIC REPORTING OF THE USE OF GRANT FUNDS AND A PROGRESS REPORT OF THE GRANT ACTIVITIES. | Explanation |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | X | CompensationCommittee |
| Independent Consultant | X | IndependentConsultant |
| Compensation Survey | X | CompensationSurvey |
| Board Or Committee Approval | X | BoardOrCommitteeApproval |
| Severance Payment | 0 | SeverancePayment |
| Supplemental Nonqual Retire Plan | 0 | SupplementalNonqualRetirePlan |
| Equity Based Comp Arrangement | 0 | EquityBasedCompArrangement |
| Comp Based On Revenue Of Filing Org | 0 | CompBasedOnRevenueOfFilingOrg |
| Comp Based On Revenue Related Orgs | 0 | CompBasedOnRevenueRelatedOrgs |
| Comp Based Net Earnings Filing Org | 0 | CompBasedNetEarningsFilingOrg |
| Comp Based Net Earnings Relate Orgs | 0 | CompBasedNetEarningsRelateOrgs |
| Any Non Fixed Payments | 0 | AnyNonFixedPayments |
| Initial Contract Exception | 0 | InitialContractException |
Form990 Schedule J Part II Form990ScheduleJPartII (2 entries)
| TitleTitle | Base Compensation Filing OrgBaseCompensationFilingOrg | Comp Based On Related OrgsCompBasedOnRelatedOrgs | Bonus Filing OrgBonusFilingOrg | Bonus Related OrgsBonusRelatedOrgs | Other Compensation Filing OrgOtherCompensationFilingOrg | Other Compensation Related OrgsOtherCompensationRelatedOrgs | Deferred Comp Filing OrgDeferredCompFilingOrg | Deferred Comp Related OrgsDeferredCompRelatedOrgs | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg | Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs | Total Compensation Filing OrgTotalCompensationFilingOrg | Total Compensation Related OrgsTotalCompensationRelatedOrgs | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg | Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | ||||||||||||||
| FOUNDING PRESIDENT/CEO | 168000 | 0 | 0 | 0 | 0 | 0 | 5040 | 0 | 9426 | 0 | 182466 | 0 | 0 | 0 |
| KIMBERLY GALBERAITH | ||||||||||||||
| COO | 152200 | 0 | 0 | 0 | 0 | 0 | 4566 | 0 | 15108 | 0 | 171874 | 0 | 0 | 0 |
Schedule L IRS990ScheduleL
Form990 Schedule L Part IV Form990ScheduleLPartIV
Name Of Interested Person NameOfInterestedPerson
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GROSS & COMPANY INC CPA'S AND BUSINESS ADVISORS | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship | CFO, NANCY GROSS, OWNS COMPANY | Relationship |
| Amount Of Transaction | 106414 | AmountOfTransaction |
| Description Of Transaction | THE ORGANIZATION HAS HIRED NANCY GROSS TO ACT AS CFO. | DescriptionOfTransaction |
| Sharing Of Revenues | 0 | SharingOfRevenues |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTraded
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Number Of Contributions | 7 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 1372332 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | FMV AT DATE OF GIFT | MethodOfDeterminingRevenues |
Other Non Cash Contributions Table OtherNonCashContributionsTable
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Description | FOOD/ENTERTAINMENT DONATED FOR RAFFLES | Description |
| Number Of Contributions | 304 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 127513 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenues |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeld |
| Review Process Unusual NC Gifts | 1 | ReviewProcessUnusualNCGifts |
| Third Parties Used | 1 | ThirdPartiesUsed |
Form990 Schedule M Part II Form990ScheduleMPartII
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | THIRD PARTY USE: | Identifier |
| Return Reference | PART I, LINE 32B: | ReturnReference |
| Explanation | THE ORGANIZATION USES CARS FOR CAUSES, ANOTHER TAX-EXEMPT ORGANIZATION, WHEN A VEHICLE IS DONATED. THE DONOR DONATES THE VEHICLE TO CARS FOR CAUSES AND THE PROCEEDS OF THE SALE ARE FORWARDED TO THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. | Explanation |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (8 entries)
| Return ReferenceReturnReference | ExplanationExplanation | IdentifierIdentifier |
|---|---|---|
| FORM 990, PART VI, SECTION A, LINE 3 | THE ORGANIZATION HAS HIRED AN INDEPENDENT CONTRACTOR TO ACT AS THEIR CFO. | |
| FORM 990, PART VI, SECTION A, LINE 8B | THE ORGANIZATION DID NOT DOCUMENT ALL OF ITS COMMITTEE MEETINGS | |
| FORM 990, PART VI, SECTION B, LINE 11 | THE 990 IS COMPLETED BY AN INDEPENDENT CPA FIRM AND A DRAFT IS PRESENTED TO THE BOARD MEMBERS FOR REVIEW. THE BOARD WILL THEN VOTE TO APPROVE THE 990 BEFORE IT IS SIGNED AND MAILED. IF THERE ARE ANY COMMENTS OR QUESTIONS THE ISSUE IS RESOLVED PRIOR TO FILING THE 990 WITH THE IRS. | |
| FORM 990, PART VI, SECTION B, LINE 12C | THE SECRETARY IS RESPONSIBLE TO ENSURE EACH BOARD MEMBER HAS COMPLETED THEIR WRITTEN STATEMENT ANNUALLY. | |
| FORM 990, PART VI, SECTION B, LINE 15 | AN INDEPENDENT COMPANY WAS RETAINED TO CONDUCT AN EXECUTIVE COMPENSATION REASONABLENESS AUDIT, AS OUTLINED BY SECTION 4958 OF THE INTERNAL REVENUE CODE AND TREASURY REGULATION SECTION 53.4958-6, FOR THE EXECUTIVE DIRECTOR AND EXECUTIVE VICE PRESIDENT. THEY DETERMINED THAT THE COMPENSATION LEVELS IN THE 2011 AND 2012 BUDGET COMPLIED WITH INDUSTRY STANDARDS. KIMBERLY GALBERAITH, EXECUTIVE VICE PRESIDENT, WAS INCLUDED IN THEIR EXECUTIVE COMPENSATION AUDIT. THE CONSIDERATION AND APPROVAL OF THE BUDGET WAS SUBJECT TO THE RESULTS OF THE AUDIT. | |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PREPARES AN ANNUAL REPORT WHICH INCLUDES THIS INFORMATION. THE REPORT IS MADE AVAILABLE TO THE PUBLIC UPON REQUEST. | |
| FORM 990, PART XI, LINE 9: | ROUNDING -1. | CHANGES IN NET ASSETS OR FUND BALANCES: |
| FORM 990, PART XI, LINE 2C | THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |
Comments