THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC: Form 990, tax year 2016
View the entire original 990 at ProPublica ↗
- Organization
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (EIN 31-1405490)
- Tax period
- 2016-01-01 to 2016-12-31
- Filed
- 2017-10-05
- IRS object ID
- 201712789349300006
- Schema version
- 2016v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2017-10-05T07:42:11-05:00 | ReturnTs |
| Tax Period End | 2016-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 223604710 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JAMES M WOOD CPA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 603B OMNI DRIVE | AddressLine1Txt |
| City | HILLSBOROUGH | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 08844 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2016-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 311405490 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE PARENT PROJECT FOR MUSCULAR | BusinessNameLine1Txt |
| Business Name Line2 | DYSTROPHY RESEARCH INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PARE | BusinessNameControlTxt |
| Phone | 2012508440 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE NO 9TH FL | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | PATRICIA A FURLONG | PersonNm |
| Person Title | FOUNDING PRESIDENT/CEO | PersonTitleTxt |
| Phone | 2012508440 | PhoneNum |
| Signature | 2017-10-05 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JAMES M WOOD | PreparerPersonNm |
| PTIN | P00310420 | PTIN |
| Phone | 9084311700 | PhoneNum |
| Preparation | 2017-09-13 | PreparationDt |
| Self Employed | Yes (X) | SelfEmployedInd |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 173.161.221.185 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2017-10-05 | IPDt |
| IP Tm | 08:39:46 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 11A0CE5EAC0736E3E1D3BC6816C475E194C3DA12 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 11A0CE5EAC0736E3E1D3BC6816C475E194C3DA12 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2016 | TaxYr |
| Build TS | 2021-01-29 14:40:06Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | PATRICIA A FURLONG | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE NO 9TH FL | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,455,293 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PARENTPROJECTMD.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1997 | FormationYr |
| Legal Domicile State | OH | LegalDomicileStateCd |
| Activity Or Mission | END DUCHENNE MUSCULAR DYSTROPHY THROUGH RESEARCH, ADVOCACY, EDUCATION, & OPTIMAL MEDICAL CARE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 10 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 10 | VotingMembersIndependentCnt |
| Total Employee | 22 | TotalEmployeeCnt |
| Total Volunteers | 1038 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $8,725,485 | PYContributionsGrantsAmt |
| CY Contributions Grants | $8,218,916 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $161,900 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $364,129 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$14,278 | PYInvestmentIncomeAmt |
| CY Investment Income | -$874 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$197,600 | PYOtherRevenueAmt |
| CY Other Revenue | -$363,279 | CYOtherRevenueAmt |
| PY Total Revenue | $8,675,507 | PYTotalRevenueAmt |
| CY Total Revenue | $8,218,892 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,023,969 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,682,986 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,194,247 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,269,409 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $480,472 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,486,578 | PYOtherExpensesAmt |
| CY Other Expenses | $2,608,269 | CYOtherExpensesAmt |
| PY Total Expenses | $7,704,794 | PYTotalExpensesAmt |
| CY Total Expenses | $7,560,664 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $970,713 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $658,228 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,735,082 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,507,799 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $236,923 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,351,412 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,498,159 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,156,387 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE PARENT PROJECT FOR MUSCULAR DYSTROPHY'S MISSION IS TO END DUCHENNE MUSCULAR DYSTROPHY. WE ACCELERATE RESEARCH, RAISE OUR VOICES IN WASHINGTON, DEMAND OPTIMAL CARE FOR ALL YOUNG MEN, AND EDUCATE THE GLOBAL COMMUNITY. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $4,630,512 | ExpenseAmt |
| Grant | $2,479,536 | GrantAmt |
| Revenue | $364,129 | RevenueAmt |
| Desc | RESEARCH - PPMD'S RESEARCH INITIATIVE IDENTIFIES AND AGGRESSIVELY FUNDS THE MOST PROMISING NEAR AND LONG-TERM DUCHENNE RESEARCH AND CUTTING-EDGE THERAPIES; STIMULATES NEW RESEARCH TO ENSURE THAT THE THERAPEUTIC PIPELINE IS RICH WITH OPPORTUNITY; ENCOURAGES AND SUPPORTS THE PHARMACEUTICAL INDUSTRY TO MAXIMIZE THEIR INVESTMENT IN DUCHENNE. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,472,310 | ExpenseAmt |
| Grant | $203,450 | GrantAmt |
| Desc | EDUCATION -PPMD'S EDUCATION INITIATIVE INCREASES RECOGNITION OF MUSCLE WEAKNESS AMONG HEALTHCARE PROFESSIONALS AND PROMOTES EARLY DIAGNOSIS; SHARES UP-TO-DATE INFORMATION ABOUT TREATMENT AND CARE OPTIONS WITH ALL MEMBERS OF THE DUCHENNE COMMUNITY; AND RAISES AWARENESS ABOUT DUCHENNE AND PROVIDES EDUCATIONAL MATERIALS TO THE GLOBAL COMMUNITY.CARE-PPMD'S CARE INITIATIVE IDENTIFIES GAPS IN CARE FOR YOUNG MEN WITH DUCHENNE AND WORKS WITH CLINICIANS AND OTHER HEALTH CARE PROFESSIONALS ACCROSS THE GLOBE TO ENSURE ALL DUCHENNE PATIENTS HAVE ACCESS TO OPTIMAL CARE.DUCHENNE CONNECT-PPMD'S DUCHENNE CONNECT INITIATIVE PROVIDES A SUPPORTIVE ENVIRONMENT IN WHICH PEOPLE AFFECTED BY DUCHENNE CAN SHARE NEEDS, CONCERNS, AND COMMON EXPERIENCES. DUCHENNE CONNECT WORKS COLLABORATIVELY WITH STAKEHOLDERS WHO MAKE UP THE DUCHENNE POPULATION AND PARTICIPATES ACTIVELY AND EFFECTIVELY IN THE INTERNATIONAL DUCHENNE COMMUNITY. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $450,046 | ExpenseAmt |
| Desc | ADVOCACY - PPMD'S ADVOCACY EFFORTS ARE DESIGNED TO ENSURE THE PATIENT'S VOICE IS HEARD IN WASHINGTON, DC, SO POLICIES LEAD TO IMPROVEMENTS IN THE LIVES OF FAMILIES AFFECTED BY DUCHENNE AND REFLECT THE NEEDS OF THE WHOLE COMMUNITY. PPMD WORKS TO ENSURE THAT DUCHENNE RESEARCH AND CLINICAL TRIALS REMAIN A HIGH PRIORITY WITH FEDERAL REGULATORY AGENCIES SO THEY ADDRESS DUCHENNE-SPECIFIC CONCERNS IN THEIR DECISION-MAKING. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $6,552,868 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 57 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 22 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 10 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 10 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | 0 | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | 0 | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ORGANIZATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2012508440 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE NO 9TH FL | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| ANESSA GAYDOU FEHSENFELD | ||||||||
| BOARD CHAIRMAN | 15.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| JOHN KILLIAN | ||||||||
| BOARD TREASURER | 15.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| CHRISTINE L PIACENTINO | ||||||||
| BOARD SECRETARY | 8.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| LAWRENCE CHARNAS | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CATHERINE JONES COLLINS | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| LINDA CRIPE | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JONATHAN FINDER | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| LANCE HESTER | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JOANNA JOHNSON | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| ELLEN WAGNER | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| PATRICIA A FURLONG | ||||||||
| FOUNDING PRESIDENT & CEO | 40.00 | Yes (X) | $198,150 | $0 | $7,419 | |||
| KIMBERLY GALBERAITH | ||||||||
| CHIEF OPERATING OFFICER | 40.00 | Yes (X) | $155,363 | $0 | $26,494 | |||
| ABBY H BRONSON | ||||||||
| SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40.00 | $167,949 | $0 | $15,641 | Yes (X) | |||
| ANNE M KENNEDY | ||||||||
| SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 40.00 | $141,930 | $0 | $15,410 | Yes (X) | |||
| KAYLAN M MOITOSO | ||||||||
| SENIOR VICE PRESIDENT, DEVELOPMENT | 40.00 | $137,796 | $0 | $5,816 | Yes (X) | |||
| KATHLEEN J KINNETT | ||||||||
| SENIOR VICE PRESIDENT, CLINICAL CARE | 40.00 | $137,708 | $0 | $4,608 | Yes (X) | |||
| RYAN K FISCHER | ||||||||
| SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40.00 | $108,039 | $0 | $9,095 | Yes (X) | |||
| WILLIAM P NOLAN JR | ||||||||
| SENIOR VICE PRESIDENT, COMMUNICATIONS | 40.00 | $109,690 | $0 | $4,488 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,156,625 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $88,971 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 8 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FAEGRE BAKER DANIELS LLP | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 75 REMITTANCE DRIVE DEPT 6952 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60675 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | RESEARCH AND EDUCATION SERVICES | ServicesDesc |
| Compensation | $172,682 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $858,699 | FundraisingAmt |
| All Other Contributions | $7,360,217 | AllOtherContributionsAmt |
| Noncash Contributions | $886,384 | NoncashContributionsAmt |
| Total Contributions | $8,218,916 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $364,129 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $364,129 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $364,129 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,220 | TotalRevenueColumnAmt |
| Exclusion | $3,220 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $869,028 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $873,122 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$4,094 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$4,094 | TotalRevenueColumnAmt |
| Exclusion | -$4,094 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $858,699 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $363,279 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$363,279 | TotalRevenueColumnAmt |
| Exclusion | -$363,279 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,218,892 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $364,129 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$364,153 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,647,986 | TotalAmt |
| Program Services | $2,647,986 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,000 | TotalAmt |
| Program Services | $35,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $521,462 | TotalAmt |
| Program Services | $417,391 | ProgramServicesAmt |
| Management And General | $41,137 | ManagementAndGeneralAmt |
| Fundraising | $62,934 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,527,655 | TotalAmt |
| Program Services | $1,354,954 | ProgramServicesAmt |
| Management And General | $112,909 | ManagementAndGeneralAmt |
| Fundraising | $59,792 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $71,758 | TotalAmt |
| Program Services | $62,756 | ProgramServicesAmt |
| Management And General | $5,001 | ManagementAndGeneralAmt |
| Fundraising | $4,001 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $148,534 | TotalAmt |
| Program Services | $129,923 | ProgramServicesAmt |
| Management And General | $10,368 | ManagementAndGeneralAmt |
| Fundraising | $8,243 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,919 | TotalAmt |
| Program Services | $20,075 | ProgramServicesAmt |
| Management And General | $1,844 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,224 | TotalAmt |
| Program Services | $66,269 | ProgramServicesAmt |
| Management And General | $6,097 | ManagementAndGeneralAmt |
| Fundraising | $4,858 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $118,282 | TotalAmt |
| Program Services | $103,537 | ProgramServicesAmt |
| Management And General | $8,207 | ManagementAndGeneralAmt |
| Fundraising | $6,538 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $357,434 | TotalAmt |
| Program Services | $315,894 | ProgramServicesAmt |
| Management And General | $16,255 | ManagementAndGeneralAmt |
| Fundraising | $25,285 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $665,316 | TotalAmt |
| Program Services | $665,185 | ProgramServicesAmt |
| Management And General | $131 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $28,381 | TotalAmt |
| Program Services | $11,409 | ProgramServicesAmt |
| Management And General | $8,431 | ManagementAndGeneralAmt |
| Fundraising | $8,541 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $115,271 | TotalAmt |
| Program Services | $25,279 | ProgramServicesAmt |
| Management And General | $89,992 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CONSULTING EXPENSE | $376,770 | $280,242 | $62,778 | $33,750 |
| OUTSIDE SERVICES | $253,633 | $248,708 | $4,125 | $800 |
| BANK CHARGES | $162,533 | $0 | $14,834 | $147,699 |
| OFFICE EXPENSES & SUPPL | $63,981 | $23,164 | $32,371 | $8,446 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $367,525 | TotalAmt |
| Program Services | $145,096 | ProgramServicesAmt |
| Management And General | $112,844 | ManagementAndGeneralAmt |
| Fundraising | $109,585 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,560,664 | TotalAmt |
| Program Services | $6,552,868 | ProgramServicesAmt |
| Management And General | $527,324 | ManagementAndGeneralAmt |
| Fundraising | $480,472 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $546,987 | BOYAmt |
| EOY | $643,461 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,504,956 | BOYAmt |
| EOY | $2,804,101 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $347,742 | BOYAmt |
| EOY | $742,208 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $37,803 | BOYAmt |
| EOY | $13,393 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $165,379 | BOYAmt |
| EOY | $84,683 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $138,388 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $86,746 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $69,511 | BOYAmt |
| EOY | $51,642 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $62,704 | BOYAmt |
| EOY | $168,311 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,735,082 | BOYAmt |
| EOY | $4,507,799 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $130,531 | BOYAmt |
| EOY | $82,402 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $106,392 | BOYAmt |
| EOY | $500,000 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $769,010 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $236,923 | BOYAmt |
| EOY | $1,351,412 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,208,424 | BOYAmt |
| EOY | $1,822,424 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $289,735 | BOYAmt |
| EOY | $1,333,963 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,498,159 | BOYAmt |
| EOY | $3,156,387 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,735,082 | BOYAmt |
| EOY | $4,507,799 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $658,228 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,099,492 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,904,768 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,992,822 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,725,485 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,583,045 | CurrentTaxYearAmt |
| Total | $35,305,612 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,099,492 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,904,768 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,992,822 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,725,485 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,583,045 | CurrentTaxYearAmt |
| Total | $35,305,612 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $5,687,260 | SubstantialContributorsTotAmt |
| Public Support Total170 | $29,618,352 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,310 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,984 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $904 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $377 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,220 | CurrentTaxYearAmt |
| Total | $8,795 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $35,314,407 | TotalSupportAmt |
| Public Support CY170 | 0.83870 | PublicSupportCY170Pct |
| Public Support PY170 | 0.84440 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $214,000 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $214,000 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,338,868 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,552,868 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $477,643 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $119,411 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $454,363 | CurrentYearMinus3Amt |
| Current Year Minus2 | $467,950 | CurrentYearMinus2Amt |
| Current Year Minus1 | $535,240 | CurrentYearMinus1Amt |
| Current Year | $477,643 | CurrentYearAmt |
| Total | $1,935,196 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,902,794 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $320,912 | CurrentYearMinus3Amt |
| Current Year Minus2 | $284,296 | CurrentYearMinus2Amt |
| Current Year Minus1 | $264,216 | CurrentYearMinus1Amt |
| Current Year | $214,000 | CurrentYearAmt |
| Total | $1,083,424 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $113,591 | CurrentYearMinus3Amt |
| Current Year Minus2 | $116,988 | CurrentYearMinus2Amt |
| Current Year Minus1 | $133,810 | CurrentYearMinus1Amt |
| Current Year | $119,411 | CurrentYearAmt |
| Total | $483,800 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $725,700 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,180 | OtherCostOrOtherBasisAmt |
| Depreciation | $773 | DepreciationAmt |
| Book Value | $5,407 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $97,987 | OtherCostOrOtherBasisAmt |
| Depreciation | $56,501 | DepreciationAmt |
| Book Value | $41,486 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $34,221 | OtherCostOrOtherBasisAmt |
| Depreciation | $29,472 | DepreciationAmt |
| Book Value | $4,749 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $51,642 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $8,218,892 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $8,218,892 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $8,218,892 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $7,560,664 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $7,560,664 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $7,560,664 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | GRANTS TO RECIPIENTS LOCATED IN REGION | TypeOfActivitiesConductedTxt |
| Region Total Expenditures | $35,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $35,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $35,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| EUROPE | ISBMR 14TH COURSE | $10,000 |
| EUROPE | AON-INDUCED EXON SKIPPING | $25,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | SAM'S NIGHT | Event1Nm |
| Gross Receipts Event1 | $201,726 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $201,726 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $4,690 | OtherDirectExpensesEvent1Amt |
| Event2 | MITCHELL'S RUN THRU ROCKFORD | Event2Nm |
| Gross Receipts Event2 | $72,840 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $72,840 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $8,438 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 54 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $584,133 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $584,133 | CharitableContriOtherEventsAmt |
| Oth Direct Expnss Other Events | $350,151 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $858,699 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $858,699 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $363,279 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $363,279 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$363,279 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (27 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | IRC SectionIRCSectionDesc | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| CATABASIS PHARMACEUTICALS INC | ||||||||
| ONE KENDALL SQUARE | CAMBRIDGE | MA | 02139 | 263687168 | $8,333 | CLINICAL TRIAL SUPPORT | ||
| LEIDOS INC | ||||||||
| PO BOX 223058 | PITTSBURGH | PA | 15251 | 953630868 | $2,768 | ON PAR TRAJECTORY ANALYSIS PROJECT | ||
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $355,329 | DETERMINE INCIDENCE & PROGNOSIS OF CLINICALLY SIGNIFICANT CARDIAC, SKELETAL MUSCLE & COGNITIVE IMPAIRMENT IN CARRIERS OF DMD & BMD | 501(C)(3) | |
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $30,000 | NCH/WELLSTONE/OSU MYOLOGY | 501(C)(3) | |
| UNIVERSITY OF WASHINGTON GRANT AND CONTRACT ACCOUNTING | ||||||||
| 12455 COLLECTIONS DRIVE | CHICAGO | IL | 60693 | 916001537 | $35,408 | IN SILICO RE-ENGINEERED MICRO-DYSTROPHIN: EXPANDING A NOVEL APPROACH TO EVADE T-CELL IMMUNE RESPONSES IN DMD PATIENTS. | 501(C)(3) | |
| IOWA STATE UNIVERSITY OF SCIENCE SPONSORED PROGRAMS ACCOUNTING | ||||||||
| 3609 ADMINISTRATIVE SERVICES | AMES | IA | 50011 | 426004224 | $58,333 | QUERCETIN-BASED THERAPIES WITH IMMEDIATE APPLICATION FOR DYSTROPHIC MUSCLE | 501(C)(3) | |
| UNIVERSITY OF ARIZONA | ||||||||
| 1303 E UNIVERSITY BLVD BOX 3 | TUCSON | AZ | 85719 | 742652689 | $77,986 | EUREKA CERTIFICATE COURSE | 501(C)(3) | |
| UNIVERSITY OF FLORIDA | ||||||||
| PO BOX 100267 | GAINESVILLE | FL | 32610 | 596002052 | $219,996 | FLORIDA COMBINED THERAPEUTICS | 501(C)(3) | |
| TALEM TECHNOLOGIES LLC | ||||||||
| 400 RENAISSANCE CENTER SUITE 2900 | DETROIT | MI | 48243 | 800915218 | $19,227 | WHEELCHAIR METHODS AND METRICS | ||
| LEE SWEENEY CONSULTING LLC | ||||||||
| 9210 NW 59TH ST | GAINESVILLE | FL | 32653 | 262195280 | $36,000 | PROJECT CATALYST | ||
| MACHINA CARNIS CONSULTING LLC | ||||||||
| 9210 NW 59TH ST | GAINESVILLE | FL | 32653 | 472577237 | $96,000 | PROJECT CATALYST | ||
| UNIVERSITY OF FLORIDA | ||||||||
| 219 GRINTER HALL PO BOX 115500 | GAINESVILLE | FL | 32611 | 596002052 | $10,000 | NEW DIRECTIONS CONFERENCE | 501(C)(3) | |
| EGL GENETIC DIAGNOSTICS LLC | ||||||||
| DEPT 2612 POBOX 11407 | BIRMINGHAM | AL | 35246 | 474383500 | $203,360 | EMORY GENETICS LAB TESTING | ||
| CRITICAL PATH INSTITUTE | ||||||||
| 1730 E RIVER ROAD SUITE 200 | TUCSON | AZ | 85718 | 201991334 | $325,000 | C-PATH SPONSORED RESEARCH | 501(C)(3) | |
| NORTHWESTERN UNIVERSITY | ||||||||
| 633 CLARK ROOM G-547 | EVANSTON | IL | 60208 | 362167817 | $50,600 | WELLSTONE SUPPLEMENT | 501(C)(3) | |
| UNIVERSITY OF CALIFORNIA - LOS ANGELES UC REGENTS | ||||||||
| 1125 MURPHY HALL BOX 957089 405 | LOS ANGELES | CA | 90095 | 956006143 | $109,754 | WELLSTONE SUPPLEMENT | 501(C)(3) | HILGARD AVE |
| UNIVERSITY OF FLORIDA | ||||||||
| 219 GRINTER HALL PO BOX 115500 | GAINESVILLE | FL | 32611 | 596002052 | $96,250 | WELLSTONE SUPPLEMENT | 501(C)(3) | |
| SOMALOGIC INC | ||||||||
| 2945 WILDERNESS PLACE | BOULDER | CO | 80301 | 522195896 | $15,060 | SOMALOGIC DATA ANALYSIS | ||
| THE OHIO STATE UNIVERSITY | ||||||||
| 1960 KENNY ROAD | COLUMBUS | OH | 43210 | 316025986 | $11,267 | NF-KB FUNCTION IN DMD CARDIOMYOPATHY | 501(C)(3) | |
| CARDERO THERAPEUTICS INC | ||||||||
| 12774 LEANDER DRIVE | LOS ALTOS HILLS | CA | 94022 | $70,000 | MANUFACTURE OF EPICATECHIN CAPSULES | |||
| UNIVERSITY OF CALIFORNIA DAVIS REGENTS UC DAVIS | ||||||||
| BOX 989062 | WEST SACRAMENTO | CA | 95798 | 946036494 | $104,421 | A SINGLE-CENTER DOSE-RAGING PILOT STUDY OF (+)-EPICATECHIN (CARDERO THERAPEUTICS, INC.) IN NON-AMBULATORY CHILDREN & ADOLESCENTS WITH DUCHENNE MUSCULAR DYSTROPHY & PRE-SYMPTOMATIC CARDIAC DYSFUNCTION. | 501(C)(3) | |
| NEW JERSEY INSTITUTE FOR TECHNOLOGY - GRANTS AND CONTRACTS ACCT | ||||||||
| UNIVERSITY HEIGHTS | NEWARK | NJ | 07102 | 226000910 | $150,000 | TRANSLATION OF AN UPPER EXTREMITY EXOSKELETON TO COMMUNITY USE FOR INDIVIDUALS WITH DUCHENNE MUSCULAR DYSTROPHY | 501(C)(3) | |
| HOPE FOR GABE FOUNDATION | ||||||||
| 1036 BALDWIN LANE | BIRMINGHAM | AL | 35242 | 271240341 | $10,000 | GENERAL SUPPORT | 501(C)(3) | |
| LELAND STANFORD JUNIOR UNIVERSITY | ||||||||
| 3160 PORTER DRIVE SUITE 100 | PALO ALTO | CA | 94304 | 941156365 | $6,100 | COLLECTION OF CONFIRMED DMD POSITIVE & PRESUMPTIVE NEGATIVE NEWBORN SCREENING DBS SPECIMENS | 501(C)(3) | |
| CHILDREN'S RESEARCH INSTITUTE | ||||||||
| 801 ROEDER ROAD SUITE 511 | SILVER SPRING | MD | 20910 | 521654463 | $55,179 | INVESTIGATION OF THE EFFICIENCY FOR EXON SKIPPING & MODE OF ENTRY INTO MUSCLE BY ANTISENSE CONSTRUCTS OF DIFFERENT CHEMISTRIES | 501(C)(3) | |
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $500,000 | SYSTEMIC DELIVERY OF AAVRH.74.MHCK7. MICRODYSTROPHIN FOR DMD | 501(C)(3) | |
| UNIVERSITY OF PENNSYLVANIA | ||||||||
| 415 CURIE BLVD | PHILADELPHIA | PA | 19104 | 231352685 | -$11,420 | RETURN OR UNUSED PRIOR YEAR AWARDREFUND FROM PRIOR YEAR) | 501(C)(3) | |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION HAS A STANDARDIZED GRANT TEMPLATE THAT REQUIRES REGULAR PERIODIC REPORTING OF THE USE OF GRANT FUNDS AND A PROGRESS REPORT OF THE GRANT ACTIVITIES. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | ||||||||||||||
| FOUNDING PRESIDENT & CEO | $198,150 | $0 | $0 | $0 | $0 | $0 | $6,655 | $0 | $764 | $0 | $205,569 | $0 | $0 | $0 |
| KIMBERLY GALBERAITH | ||||||||||||||
| CHIEF OPERATING OFFICER | $155,363 | $0 | $0 | $0 | $0 | $0 | $6,553 | $0 | $19,941 | $0 | $181,857 | $0 | $0 | $0 |
| ABBY H BRONSON | ||||||||||||||
| SENIOR VICE PRESIDENT, RESEARCH STRA | $167,949 | $0 | $0 | $0 | $0 | $0 | $4,785 | $0 | $10,856 | $0 | $183,590 | $0 | $0 | $0 |
| ANNE M KENNEDY | ||||||||||||||
| SENIOR VICE PRESIDENT, LEGISLATION & | $141,930 | $0 | $0 | $0 | $0 | $0 | $5,752 | $0 | $9,658 | $0 | $157,340 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 7 | ContributionCnt |
| Noncash Contributions Rpt F990 | $886,384 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV ON DATE OF GIFT | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION USES CARS FOR CAUSES, ANOTHER TAX-EXEMPT ORGANIZATION, WHEN A VEHICLE IS DONATED. THE DONOR DONATES THE VEHICLE TO CARS FOR CAUSES AND THE PROCEEDS OF THE SALE ARE FORWARDED TO THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 8B | NO COMMITTEE HAS AUTHORITY TO ACT ON BEHALF OF THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS COMPLETED BY AN INDEPENDENT CPA FIRM AND A DRAFT IS PRESENTED TO THE BOARD MEMBERS FOR REVIEW. THE BOARD THEN VOTES TO APPROVE THE 990 BEFORE IT IS SIGNED AND MAILED. IF THERE ARE ANY COMMENTS OR QUESTIONS THE ISSUE IS RESOLVED PRIOR TO FILING THE 990 WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE SECRETARY IS RESPONSIBLE TO ENSURE EACH BOARD MEMBER HAS COMPLETED THEIR WRITTEN STATEMENT ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |
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