THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (EIN 31-1405490)
- Tax period
- 2018-01-01 to 2018-12-31
- Filed
- 2019-07-01
- IRS object ID
- 201901829349300400
- Schema version
- 2018v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2019-07-01T06:49:31-05:00 | ReturnTs |
| Tax Period End | 2018-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 223604710 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JAMES M WOOD CPA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 603B OMNI DRIVE | AddressLine1Txt |
| City | HILLSBOROUGH | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 08844 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 311405490 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE PARENT PROJECT FOR MUSCULAR | BusinessNameLine1Txt |
| Business Name Line2 | DYSTROPHY RESEARCH INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PARE | BusinessNameControlTxt |
| Phone | 2012508440 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | PATRICIA A FURLONG | PersonNm |
| Person Title | FOUNDING PRESIDENT/CEO | PersonTitleTxt |
| Phone | 2012508440 | PhoneNum |
| Signature | 2019-07-01 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JAMES M WOOD | PreparerPersonNm |
| PTIN | P00310420 | PTIN |
| Phone | 9084311700 | PhoneNum |
| Preparation | 2019-07-01 | PreparationDt |
| Self Employed | Yes (X) | SelfEmployedInd |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 173.161.221.185 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2019-07-01 | IPDt |
| IP Tm | 07:42:52 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 2D72A1720A40BAF8C6E91116F587AF915797A6E6 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 2D72A1720A40BAF8C6E91116F587AF915797A6E6 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2019-02-21 02:37:17Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | PATRICIA A FURLONG | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,653,104 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PARENTPROJECTMD.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1997 | FormationYr |
| Legal Domicile State | OH | LegalDomicileStateCd |
| Activity Or Mission | END DUCHENNE MUSCULAR DYSTROPHY THROUGH RESEARCH, ADVOCACY, EDUCATION, & OPTIMAL MEDICAL CARE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 24 | TotalEmployeeCnt |
| Total Volunteers | 1104 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $9,136,279 | PYContributionsGrantsAmt |
| CY Contributions Grants | $9,010,932 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $466,431 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $443,499 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,246 | PYInvestmentIncomeAmt |
| CY Investment Income | $353 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$271,515 | PYOtherRevenueAmt |
| CY Other Revenue | -$383,625 | CYOtherRevenueAmt |
| PY Total Revenue | $9,332,441 | PYTotalRevenueAmt |
| CY Total Revenue | $9,071,159 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $4,162,350 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,393,393 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,368,206 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,712,295 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $691,616 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,572,203 | PYOtherExpensesAmt |
| CY Other Expenses | $3,582,547 | CYOtherExpensesAmt |
| PY Total Expenses | $9,102,759 | PYTotalExpensesAmt |
| CY Total Expenses | $8,688,235 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $229,682 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $382,924 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,788,793 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,732,769 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,402,724 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,963,776 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,386,069 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,768,993 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE PARENT PROJECT FOR MUSCULAR DYSTROPHY'S MISSION IS TO END DUCHENNE MUSCULAR DYSTROPHY. WE ACCELERATE RESEARCH, RAISE OUR VOICES IN WASHINGTON, DEMAND OPTIMAL CARE FOR ALL YOUNG MEN, AND EDUCATE THE GLOBAL COMMUNITY. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $5,567,449 | ExpenseAmt |
| Grant | $2,393,393 | GrantAmt |
| Revenue | $443,499 | RevenueAmt |
| Desc | RESEARCH - PPMD'S RESEARCH INITIATIVE IDENTIFIES AND AGGRESSIVELY FUNDS THE MOST PROMISING NEAR AND LONG-TERM DUCHENNE RESEARCH AND CUTTING-EDGE THERAPIES; STIMULATES NEW RESEARCH TO ENSURE THAT THE THERAPEUTIC PIPELINE IS RICH WITH OPPORTUNITY; ENCOURAGES AND SUPPORTS THE PHARMACEUTICAL INDUSTRY. CARE-PPMD'S CARE INITIATIVE IDENTIFIES GAPS IN CARE FOR YOUNG MEN WITH DUCHENNE AND WORKS WITH CLINICIANS AND OTHER HEALTH CARE PROFESSIONALS ACROSS THE GLOBE TO ENSURE ALL DUCHENNE PATIENTS HAVE ACCESS TO OPTIMAL CARE. MAXIMIZE THEIR INVESTMENT IN DUCHENNE.THE DUCHENNE REGISTRY-PPMD'S DUCHENNE REGISTRY INITIATIVE PROVIDES A SUPPORTIVE ENVIRONMENT IN WHICH PEOPLE AFFECTED BY DUCHENNE CAN SHARE NEEDS, CONCERNS, AND COMMON EXPERIENCES. THE DUCHENNE REGISTRY WORKS COLLABORATIVELY WITH STAKEHOLDERS WHO MAKE UP THE DUCHENNE POPULATION AND PARTICIPATES ACTIVELY AND EFFECTIVELY IN THE INTERNATIONAL DUCHENNE COMMUNITY. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,453,468 | ExpenseAmt |
| Desc | EDUCATION -PPMD'S EDUCATION INITIATIVE INCREASES RECOGNITION OF MUSCLE WEAKNESS AMONG HEALTHCARE PROFESSIONALS AND PROMOTES EARLY DIAGNOSIS; SHARES UP-TO-DATE INFORMATION ABOUT TREATMENT AND CARE OPTIONS WITH ALL MEMBERS OF THE DUCHENNE COMMUNITY; AND RAISES AWARENESS ABOUT DUCHENNE AND PROVIDES EDUCATIONAL MATERIALS TO THE GLOBAL COMMUNITY. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $512,130 | ExpenseAmt |
| Desc | ADVOCACY - PPMD'S ADVOCACY EFFORTS ARE DESIGNED TO ENSURE THE PATIENT'S VOICE IS HEARD IN WASHINGTON, DC, SO POLICIES LEAD TO IMPROVEMENTS IN THE LIVES OF FAMILIES AFFECTED BY DUCHENNE AND REFLECT THE NEEDS OF THE WHOLE COMMUNITY. PPMD WORKS TO ENSURE THAT DUCHENNE RESEARCH AND CLINICAL TRIALS REMAIN A HIGH PRIORITY WITH FEDERAL REGULATORY AGENCIES SO THEY ADDRESS DUCHENNE-SPECIFIC CONCERNS IN THEIR DECISION-MAKING. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $7,533,047 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 47 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 24 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | 0 | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | 0 | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ORGANIZATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2012508440 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1Txt |
| City | HACKENSACK | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 07601 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| JOHN KILLIAN | ||||||||
| BOARD CHAIRMAN | 15.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| ELLEN WAGNER | ||||||||
| BOARD TREASURER | 15.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| CHRISTINE L PIACENTINO | ||||||||
| BOARD SECRETARY | 8.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| JONATHAN FINDER MD | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JOANNA JOHNSON | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| LINDA CRIPE MD | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRISTOPHER B CURRAN | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRIS JONES | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| RASHA ALNAIBARI | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| DAVID HOFSTEIN | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| RICHARD KLEIN | ||||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| PATRICIA A FURLONG | ||||||||
| FOUNDING CEO & PRESIDENT | 40.00 | Yes (X) | $216,650 | $0 | $9,871 | |||
| KIMBERLY GALBERAITH | ||||||||
| CHIEF OPERATING OFFICER | 40.00 | Yes (X) | $171,891 | $0 | $33,698 | |||
| ABBY H BRONSON | ||||||||
| SENIOR VICE PRESIDENT, RESEARCH STRATEGY | 40.00 | $184,208 | $0 | $22,035 | Yes (X) | |||
| ANNE M KENNEDY | ||||||||
| SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY | 40.00 | $167,724 | $0 | $19,513 | Yes (X) | |||
| KELLY DOUGHERTY | ||||||||
| SENIOR VICE PRESIDENT, FINANCE & ADMINISTRATION | 40.00 | $162,100 | $0 | $8,348 | Yes (X) | |||
| KAYLAN M MOITOSO | ||||||||
| SENIOR VICE PRESIDENT, DEVELOPMENT | 40.00 | $155,852 | $0 | $6,882 | Yes (X) | |||
| KATHLEEN J KINNETT | ||||||||
| SENIOR VICE PRESIDENT, CLINICAL CARE | 40.00 | $155,722 | $0 | $6,677 | Yes (X) | |||
| RYAN K FISCHER | ||||||||
| SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT | 40.00 | $129,948 | $0 | $12,159 | Yes (X) | |||
| WILLIAM P NOLAN JR | ||||||||
| SENIOR VICE PRESIDENT, COMMUNICATIONS | 40.00 | $132,560 | $0 | $5,750 | Yes (X) | |||
| ANN MARTIN | ||||||||
| DIRECTOR, THE DUCHENNE REGISTRY | 40.00 | $106,831 | $0 | $4,827 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,583,486 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $129,760 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 10 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (4 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| THE PHOENICIAN SCOTTSDALE | |||||
| 6000 E CAMELBACK ROAD | SCOTTSDALE | AZ | 85251 | CONFERENCE VENUE | $453,164 |
| PROMETHEUS RESEARCH LLC | |||||
| 1 AUDUBON STREET 4TH FLOOR | NEW HAVEN | CT | 65111 | DATABASE/INFORMATION TECHNOLOGY SERVICES | $265,924 |
| FAEGRE BAKER DANIELS LLP | |||||
| 1050 K STREET NW SUITE 400 | WASHINGTON | DC | 20001 | RESEARCH AND EDUCATION SERVICES | $158,512 |
| SCHANER & LUBITZ PLLC | |||||
| 4550 MONTGOMERY AVENUE SUITE 1100N | BETHESDA | MD | 20814 | LEGAL SERVICES | $106,231 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 4 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,400,568 | FundraisingAmt |
| All Other Contributions | $7,610,364 | AllOtherContributionsAmt |
| Total Contributions | $9,010,932 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| CONFERENCE INCOME | 900099 | $319,960 | $319,960 |
| FEES FOR SERVICE | 900099 | $123,539 | $123,539 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $443,499 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,654 | TotalRevenueColumnAmt |
| Exclusion | $1,654 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $197,019 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $198,320 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$1,301 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,301 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$1,301 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,400,568 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $383,625 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$383,625 | TotalRevenueColumnAmt |
| Exclusion | -$383,625 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $9,071,159 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $442,198 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$381,971 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,370,643 | TotalAmt |
| Program Services | $2,370,643 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,750 | TotalAmt |
| Program Services | $22,750 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $572,349 | TotalAmt |
| Program Services | $466,718 | ProgramServicesAmt |
| Management And General | $36,597 | ManagementAndGeneralAmt |
| Fundraising | $69,034 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,759,202 | TotalAmt |
| Program Services | $1,330,353 | ProgramServicesAmt |
| Management And General | $142,555 | ManagementAndGeneralAmt |
| Fundraising | $286,294 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $218,767 | TotalAmt |
| Program Services | $174,118 | ProgramServicesAmt |
| Management And General | $10,871 | ManagementAndGeneralAmt |
| Fundraising | $33,778 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $161,977 | TotalAmt |
| Program Services | $128,918 | ProgramServicesAmt |
| Management And General | $8,050 | ManagementAndGeneralAmt |
| Fundraising | $25,009 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $121,845 | TotalAmt |
| Program Services | $113,973 | ProgramServicesAmt |
| Management And General | $4,779 | ManagementAndGeneralAmt |
| Fundraising | $3,093 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,713 | TotalAmt |
| Management And General | $18,713 | ManagementAndGeneralAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $293,392 | TotalAmt |
| Program Services | $137,016 | ProgramServicesAmt |
| Management And General | $47,237 | ManagementAndGeneralAmt |
| Fundraising | $109,139 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $153,144 | TotalAmt |
| Program Services | $112,955 | ProgramServicesAmt |
| Management And General | $7,195 | ManagementAndGeneralAmt |
| Fundraising | $32,994 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $394,959 | TotalAmt |
| Program Services | $351,492 | ProgramServicesAmt |
| Management And General | $10,390 | ManagementAndGeneralAmt |
| Fundraising | $33,077 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $701,950 | TotalAmt |
| Program Services | $696,834 | ProgramServicesAmt |
| Management And General | $3,757 | ManagementAndGeneralAmt |
| Fundraising | $1,359 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,509 | TotalAmt |
| Program Services | $11,184 | ProgramServicesAmt |
| Management And General | $1,114 | ManagementAndGeneralAmt |
| Fundraising | $2,211 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,689 | TotalAmt |
| Program Services | $13,424 | ProgramServicesAmt |
| Management And General | $6,030 | ManagementAndGeneralAmt |
| Fundraising | $3,235 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CONSULTING EXPENSE | $1,430,147 | $1,381,851 | $33,396 | $14,900 |
| OFFICE EXPENSES & SUPPL | $69,245 | $40,181 | $21,953 | $7,111 |
| BANK CHARGES | $69,040 | $0 | $50,907 | $18,133 |
| PRINTING & PUBLICATIONS | $66,794 | $36,008 | $13,912 | $16,874 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $226,120 | TotalAmt |
| Program Services | $144,629 | ProgramServicesAmt |
| Management And General | $46,116 | ManagementAndGeneralAmt |
| Fundraising | $35,375 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,688,235 | TotalAmt |
| Program Services | $7,533,047 | ProgramServicesAmt |
| Management And General | $463,572 | ManagementAndGeneralAmt |
| Fundraising | $691,616 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,399,797 | BOYAmt |
| EOY | $3,365,764 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,080,533 | BOYAmt |
| EOY | $1,382,306 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,025,590 | BOYAmt |
| EOY | $788,259 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,378 | BOYAmt |
| EOY | $12,452 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $147,612 | BOYAmt |
| EOY | $124,003 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $155,221 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $121,011 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $38,803 | BOYAmt |
| EOY | $34,210 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $71,080 | BOYAmt |
| EOY | $25,775 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,788,793 | BOYAmt |
| EOY | $5,732,769 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $69,507 | BOYAmt |
| EOY | $150,381 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $524,866 | BOYAmt |
| EOY | $265,421 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $808,351 | BOYAmt |
| EOY | $1,547,974 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,402,724 | BOYAmt |
| EOY | $1,963,776 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,386,069 | BOYAmt |
| EOY | $3,768,993 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,386,069 | BOYAmt |
| EOY | $3,768,993 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,788,793 | BOYAmt |
| EOY | $5,732,769 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $382,924 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,992,822 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $8,725,485 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,583,045 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,602,710 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9,454,431 | CurrentTaxYearAmt |
| Total | $42,358,493 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,992,822 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $8,725,485 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,583,045 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,602,710 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9,454,431 | CurrentTaxYearAmt |
| Total | $42,358,493 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $7,966,547 | SubstantialContributorsTotAmt |
| Public Support Total170 | $34,391,946 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $904 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $377 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,220 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,560 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,654 | CurrentTaxYearAmt |
| Total | $7,715 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $42,366,208 | TotalSupportAmt |
| Public Support CY170 | 0.81180 | PublicSupportCY170Pct |
| Public Support PY170 | 0.86830 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $14,710 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $215,290 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $230,000 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $8,458,235 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $8,688,235 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $584,412 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $146,103 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $535,240 | CurrentYearMinus3Amt |
| Current Year Minus2 | $477,643 | CurrentYearMinus2Amt |
| Current Year Minus1 | $605,138 | CurrentYearMinus1Amt |
| Current Year | $584,412 | CurrentYearAmt |
| Total | $2,202,433 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $3,303,650 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $264,216 | CurrentYearMinus3Amt |
| Current Year Minus2 | $214,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $170,000 | CurrentYearMinus1Amt |
| Current Year | $230,000 | CurrentYearAmt |
| Total | $878,216 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $133,810 | CurrentYearMinus3Amt |
| Current Year Minus2 | $119,411 | CurrentYearMinus2Amt |
| Current Year Minus1 | $151,285 | CurrentYearMinus1Amt |
| Current Year | $146,103 | CurrentYearAmt |
| Total | $550,609 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $825,914 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year | $14,710 | CurrentYearAmt |
| Total | $14,710 | TotalAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,180 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,090 | DepreciationAmt |
| Book Value | $5,090 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $111,231 | OtherCostOrOtherBasisAmt |
| Depreciation | $87,214 | DepreciationAmt |
| Book Value | $24,017 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $37,810 | OtherCostOrOtherBasisAmt |
| Depreciation | $32,707 | DepreciationAmt |
| Book Value | $5,103 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $34,210 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $9,071,159 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $9,071,159 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $9,071,159 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $8,688,235 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $8,688,235 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $8,688,235 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | GRANTS TO RECIPIENTS LOCATED IN REGION | TypeOfActivitiesConductedTxt |
| Region Total Expenditures | $22,750 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $22,750 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $22,750 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| EUROPE | ENMC WORKSHOP TRAVEL SUPPORT | $2,750 |
| EUROPE | 17TH TACT MEETING | $20,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | SAM'S NIGHT | Event1Nm |
| Gross Receipts Event1 | $314,293 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $314,293 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $2,226 | OtherDirectExpensesEvent1Amt |
| Event2 | HAYES MECHANICAL GOLF OUTING | Event2Nm |
| Gross Receipts Event2 | $216,272 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $216,272 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $87,688 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 101 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $870,003 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $870,003 | CharitableContriOtherEventsAmt |
| Oth Direct Expnss Other Events | $293,711 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,400,568 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,400,568 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $383,625 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $383,625 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$383,625 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (45 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | IRC SectionIRCSectionDesc | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| ANALYSIS GROUP INC | ||||||||
| 111 HUNTINGTON AVENUE 14TH FLOOR | BOSTON | MA | 02199 | 042727260 | $37,500 | SERVICES IN SUPPORT OF THE CTAP COLLABORATION | ||
| BEAUHAWKS FOUNDATION | ||||||||
| 5 MAIN STREET EXETENTION UNIT 301 | PLYMOUTH | MA | 02360 | 820678852 | $300,000 | CLINICAL DEVELOPMENT OF U7SNRNA VECTOR FOR EXON 2 SKIPPING | 501(C)(3) | |
| BERRY CONSULTANTS LLC | ||||||||
| 3345 BEE CAVES ROAD SUITE 201 | AUSTIN | TX | 78746 | 760644163 | $40,919 | CREATION OF A PLATFORM TRIAL IN DUCHENNE MUSCULAR DYSTROPHY | ||
| CHILDREN'S COLORADO DEPT OF REHAB | ||||||||
| 13123 EAST 16TH STREET BOX 285 | AURORA | CO | 80045 | 742161737 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| CHILDREN'S HOSPITAL OF LOS ANGELES | ||||||||
| 4650 SUNSET BLVD MS82 | LOS ANGELES | CA | 90027 | 951690977 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| CHILDREN'S MERCY KANSAS CITY | ||||||||
| RESEARCH ADMINISTRATION PO BOX | KANSAS CITY | MO | 64108 | 440605373 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | 803852 |
| CHILDREN'S NATIONAL MEDICAL CENTER CHILDREN'S RESEARCH INSTITUTE | ||||||||
| 801 ROEDER ROAD SUITE 500 | SILVER SPRING | MD | 20910 | 521654453 | $59,777 | INVESTIGATION OF THE EFFICIENCY FOR EXON SKIPPING AND MODE OF ENTRY INTO MUSCLE BY ANTISENSE CONSTRUCTS OF DIFFERENT CHEMISTRIES. | 501(C)(3) | |
| CRITICAL PATH INSTITUTE | ||||||||
| 1730 E RIVER ROAD SUITE 200 | TUCSON | AZ | 85718 | 201991334 | $200,000 | DUCHENNE REGULATORY SCIENCE CONSORTIUM (D-RSC) | 501(C)(3) | |
| CURATORS OF THE UNIVERSITY OF MISSOURI | ||||||||
| PO BOX 807012 | KANSAS CITY | MO | 64180 | 436003859 | $50,000 | CARDIAC AND SKELETAL MUSCLE FUNCTION EVALUATION | ||
| CURATORS OF THE UNIVERSITY OF MISSOURI | ||||||||
| PO BOX 807012 | KANSAS CITY | MO | 64180 | 436003859 | $75,000 | DYSTROPHIN STRUCTURE AND HEART FUNCTION | ||
| DUKE UNIVERSITY | ||||||||
| PO BOX 602651 | CHARLOTTE | NC | 28260 | 560532129 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| GORDON RESEARCH CONFERENCES | ||||||||
| 512 LIBERTY LANE | WEST KINGSTON | RI | 02892 | 260150662 | $25,000 | 2019 GORDON MYOGENESIS CONFERENCE AND GORDON RESEARCH SEMINAR | 501(C)(3) | |
| HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC | ||||||||
| 707 NORTH BROADWAY | BALTIMORE | MD | 21205 | 521524967 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH | ||||||||
| 400 HAMILTON AVENUE SUITE 340 | PALO ALTO | CA | 94306 | 770440090 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO | ||||||||
| DIVISION OF NEUROLOGY 225 E CHICAGO | CHICAGO | IL | 60611 | 362170833 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | AVENUE |
| MASSACHUSETTS GENERAL HOSPITAL- RESEARCH | ||||||||
| 55 FRUIT STREET | BOSTON | MA | 02144 | 042697983 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 314379441 | $30,000 | 2018 NCH/OSU MYOLOGY COURSE (7TH ANNUAL) | 501(C)(3) | |
| NORTHWESTERN UNIVERSITY | ||||||||
| 633 CLARK ROOM G-547 | EVANSTON | IL | 60208 | 362167817 | $55,200 | WELLSTONE SUPPLEMENT | 501(C)(3) | |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA-LA | ||||||||
| PO BOX 957089 1125 MURPHY HALL 405 | LOS ANGELES | CA | 90095 | 956006143 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | HILGARD AVENUE |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA-LA | ||||||||
| PO BOX 957089 1125 MURPHY HALL 405 | LOS ANGELES | CA | 90095 | 956006143 | $89,799 | WELLSTONE SUPPLEMENT | 501(C)(3) | HILGARD AVENUE |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA-LA | ||||||||
| PO BOX 957089 1125 MURPHY HALL 405 | LOS ANGELES | CA | 90095 | 956006143 | $75,000 | IDENTIFICATION OF IMMUNE SUBPOPULATIONS | 501(C)(3) | HILGARD AVENUE |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA-LA | ||||||||
| PO BOX 957089 1125 MURPHY HALL 405 | LOS ANGELES | CA | 90095 | 956006143 | $75,000 | DEVELOPMENT OF NANOPARTICLE ENABLED | 501(C)(3) | HILGARD AVENUE |
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | ||
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $140,000 | SYSTEMATIC DELIVERY OF AAVRH.74.MHCK7. MICRODYSTROPHIN FOR DMD | ||
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $25,000 | CARDIAC MAGNETIC RESONANCE IMAGING NATURAL HISTORY STUDY | ||
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | ||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | $100,000 | AAVRH74.MCK.GALGT2 GENE THERAPY FOR BRIDGING STUDY | ||
| SEATTLE CHILDREN'S HOSPITAL FOUNDATION | ||||||||
| 4800 SAND POINT WAY NE | SEATTLE | WA | 98145 | 911156519 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| ALFRED I DUMONT HOSPITAL FOR CHILDREN OF THE NEMOURS FOUNDATION | ||||||||
| 10140 CENTURION PWY NORTH | JACKSONVILLE | FL | 32256 | 590634433 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| UNIVERSITY OF CALIFORNIA DAVIS | ||||||||
| PO BOX 989062 | WEST SACRAMENTO | CA | 95798 | 946036494 | $104,421 | PAYMENT 2 SINGLE CENTER DOSE RANGING PILOT(+) EPICATECHIN | 501(C)(3) | |
| UNIVERSITY OF CALIFORNIA ON BEHALF OF DEVID GEFFEN SCHOOL OF MEDICINE | ||||||||
| PO BOX 989062 | WEST SACRAMENTO | CA | 95798 | 956006143 | $5,375 | DMD NEWBORN SCREENING TEST | 503(C)(3) | |
| UNIVERSITY OF CALIFORNIA DAVIS | ||||||||
| PO BOX 989062 | WEST SACRAMENTO | CA | 95798 | 946036494 | $11,000 | CERTIFIED DUCHENNE CARE CENTER | 501(C)(3) | |
| UNIVERSITY OF FLORIDA | ||||||||
| 219 GRINTER HAL PO BOX 115500 | GAINESVILLE | FL | 32611 | 596002052 | $105,000 | WELLSTONE SUPPLEMENT | 501(C)(3) | |
| UNIVERSITY OF FLORIDA | ||||||||
| 219 GRINTER HAL PO BOX 115500 | GAINESVILLE | FL | 32611 | 596002052 | $18,535 | VIRUS PRODUCTION | 501(C)(3) | |
| UNIVERSITY OF FLORIDA FOUNDATION | ||||||||
| 1200 NEWELL DRIVE ARB R5-234 PO BOX | GAINESVILLE | FL | 32610 | 590974739 | $15,000 | NEW DIRECTIONS MEETING | 501(C)(3) | 100267 |
| UNIVERSITY OF FLORIDA FOUNDATION | ||||||||
| 1200 NEWELL DRIVE ARB R5-234 PO BOX | GAINESVILLE | FL | 32610 | 590974739 | $169,654 | AAV VIRUS PREP- SWEENEY LAB | 501(C)(3) | 100267 |
| UNIVERSITY OF FLORIDA FOUNDATION | ||||||||
| 1200 NEWELL DRIVE ARB R5-234 PO BOX | GAINESVILLE | FL | 32610 | 590974739 | $7,216 | BIOREPOSITORY RECEIPT AND STORAGE | 501(C)(3) | 100267 |
| UNIVERSITY OF FLORIDA FOUNDATION | ||||||||
| 1200 NEWELL DRIVE ARB R5-234 PO BOX | GAINESVILLE | FL | 32610 | 590974739 | $275,000 | PRECLINICAL ASSESSMENT OF THERAPEUTICS LAB | 501(C)(3) | 100267 |
| UNIVERSITY OF IOWA GRANT ACCOUNTING | ||||||||
| 118 SOUTH CLINTON STREET | IOWA CITY | IA | 52242 | 426004813 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | ||
| UNIVERSITY OF WASHINGTON | ||||||||
| 1959 NE PACIFIC STREET | SEATTLE | WA | 98195 | 916001537 | $7,758 | IN SILICO RE-ENGINEERED MICRO-DYSTROPHIN: EXPANDING A NOVEL APPROACH TO EVADE T-CELL IMMUNE RESPONSES IN DMD PATIENTS | ||
| UNIVERSITY OF WASHINGTON | ||||||||
| 1959 NE PACIFIC STREET | SEATTLE | WA | 98195 | 916001537 | $5,000 | LAB INTERN SUPPORT | ||
| UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER | ||||||||
| 5323 HARRY HINES BLVD | DALLAS | TX | 75390 | 756002868 | $52,066 | CORRECTION OF DMD MUTATIONS BY MYOEDITING | ||
| YALE UNIVERSITY | ||||||||
| 333 CEDAR STREET LMP 3088 | NEW HAVEN | CT | 06510 | 060646973 | $22,000 | CERTIFIED DUCHENNE CARE CENTER | ||
| IOWA STATE UNIVERSITY | ||||||||
| 2356 KILDEE HALL | AMES | IA | 50011 | 426004224 | $41,667 | QUERCETIN-BASED THERAPIES WITH IMMEDIATE APPLICATION FOR DYSTROPHIC MUSCLE | ||
| JOHNS HOPKINS UNIVERSITY | ||||||||
| 2529 COLLECTIONS DRIVE | CHICAGO | IL | 60693 | 520595110 | -$33,338 | BENEFIT RISK PATIENT PREFERENCE STUDY | 501(C)(3) | |
| NEW JERSEY INSTITUTE FOR TECHNOLOGY | ||||||||
| GRANTS AND CONTRACTS ACCT UNIVERSIT | NEWARK | NJ | 07102 | 226000910 | -$102,504 | TRANSLATION OF AN UPPER EXTREMITY EXOSKELETON TO COMMUNITY USE | HEIGHTS | |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION HAS A STANDARDIZED GRANT TEMPLATE THAT REQUIRES REGULAR PERIODIC REPORTING OF THE USE OF GRANT FUNDS AND A PROGRESS REPORT OF THE GRANT ACTIVITIES. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (7 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PATRICIA A FURLONG | ||||||||||||||
| FOUNDING CEO & PRESIDENT | $216,650 | $0 | $0 | $0 | $0 | $0 | $8,772 | $0 | $1,099 | $0 | $226,521 | $0 | $0 | $0 |
| KIMBERLY GALBERAITH | ||||||||||||||
| CHIEF OPERATING OFFICER | $171,891 | $0 | $0 | $0 | $0 | $0 | $7,292 | $0 | $26,406 | $0 | $205,589 | $0 | $0 | $0 |
| ABBY H BRONSON | ||||||||||||||
| SENIOR VICE PRESIDENT, RESEARCH STRA | $184,208 | $0 | $0 | $0 | $0 | $0 | $6,601 | $0 | $15,434 | $0 | $206,243 | $0 | $0 | $0 |
| ANNE M KENNEDY | ||||||||||||||
| SENIOR VICE PRESIDENT, LEGISLATION & | $167,724 | $0 | $0 | $0 | $0 | $0 | $7,025 | $0 | $12,488 | $0 | $187,237 | $0 | $0 | $0 |
| KELLY DOUGHERTY | ||||||||||||||
| SENIOR VICE PRESIDENT, FINANCE & ADM | $162,100 | $0 | $0 | $0 | $0 | $0 | $6,524 | $0 | $1,824 | $0 | $170,448 | $0 | $0 | $0 |
| KAYLAN M MOITOSO | ||||||||||||||
| SENIOR VICE PRESIDENT, DEVELOPMENT | $155,852 | $0 | $0 | $0 | $0 | $0 | $6,434 | $0 | $448 | $0 | $162,734 | $0 | $0 | $0 |
| KATHLEEN J KINNETT | ||||||||||||||
| SENIOR VICE PRESIDENT, CLINICAL CARE | $155,722 | $0 | $0 | $0 | $0 | $0 | $6,229 | $0 | $448 | $0 | $162,399 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 8 | ContributionCnt |
| Noncash Contributions Rpt F990 | $198,371 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV ON DATE OF GIFT | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION USES CARS FOR CAUSES, ANOTHER TAX-EXEMPT ORGANIZATION, WHEN A VEHICLE IS DONATED. THE DONOR DONATES THE VEHICLE TO CARS FOR CAUSES AND THE PROCEEDS OF THE SALE ARE FORWARDED TO THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 8B | NO COMMITTEE HAS AUTHORITY TO ACT ON BEHALF OF THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS COMPLETED BY AN INDEPENDENT CPA FIRM AND A DRAFT IS PRESENTED TO THE BOARD MEMBERS FOR REVIEW. THE BOARD THEN VOTES TO APPROVE THE 990 BEFORE IT IS SIGNED AND MAILED. IF THERE ARE ANY COMMENTS OR QUESTIONS THE ISSUE IS RESOLVED PRIOR TO FILING THE 990 WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE SECRETARY IS RESPONSIBLE TO ENSURE EACH BOARD MEMBER HAS COMPLETED THEIR WRITTEN STATEMENT ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |
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