2019-07-01T06:49:31-05:00 2018-12-31 223604710 JAMES M WOOD CPA 603B OMNI DRIVE HILLSBOROUGH NJ 08844 990 2018-01-01 311405490 THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC PARE 2012508440 401 HACKENSACK AVENUE 9TH FLOOR HACKENSACK NJ 07601 PATRICIA A FURLONG FOUNDING PRESIDENT/CEO 2012508440 2019-07-01 1 JAMES M WOOD P00310420 9084311700 2019-07-01 X 173.161.221.185 2019-07-01 07:42:52 ED P 2D72A1720A40BAF8C6E91116F587AF915797A6E6 2D72A1720A40BAF8C6E91116F587AF915797A6E6 2018 2019-02-21 02:37:17Z PATRICIA A FURLONG 401 HACKENSACK AVENUE 9TH FLOOR HACKENSACK NJ 07601 9653104 0 X WWW.PARENTPROJECTMD.ORG X 1997 OH END DUCHENNE MUSCULAR DYSTROPHY THROUGH RESEARCH, ADVOCACY, EDUCATION, & OPTIMAL MEDICAL CARE. 11 11 24 1104 0 0 9136279 9010932 466431 443499 1246 353 -271515 -383625 9332441 9071159 4162350 2393393 0 0 2368206 2712295 0 0 691616 2572203 3582547 9102759 8688235 229682 382924 4788793 5732769 1402724 1963776 3386069 3768993 X THE PARENT PROJECT FOR MUSCULAR DYSTROPHY'S MISSION IS TO END DUCHENNE MUSCULAR DYSTROPHY. WE ACCELERATE RESEARCH, RAISE OUR VOICES IN WASHINGTON, DEMAND OPTIMAL CARE FOR ALL YOUNG MEN, AND EDUCATE THE GLOBAL COMMUNITY. 0 0 5567449 2393393 443499 RESEARCH - PPMD'S RESEARCH INITIATIVE IDENTIFIES AND AGGRESSIVELY FUNDS THE MOST PROMISING NEAR AND LONG-TERM DUCHENNE RESEARCH AND CUTTING-EDGE THERAPIES; STIMULATES NEW RESEARCH TO ENSURE THAT THE THERAPEUTIC PIPELINE IS RICH WITH OPPORTUNITY; ENCOURAGES AND SUPPORTS THE PHARMACEUTICAL INDUSTRY. CARE-PPMD'S CARE INITIATIVE IDENTIFIES GAPS IN CARE FOR YOUNG MEN WITH DUCHENNE AND WORKS WITH CLINICIANS AND OTHER HEALTH CARE PROFESSIONALS ACROSS THE GLOBE TO ENSURE ALL DUCHENNE PATIENTS HAVE ACCESS TO OPTIMAL CARE. MAXIMIZE THEIR INVESTMENT IN DUCHENNE.THE DUCHENNE REGISTRY-PPMD'S DUCHENNE REGISTRY INITIATIVE PROVIDES A SUPPORTIVE ENVIRONMENT IN WHICH PEOPLE AFFECTED BY DUCHENNE CAN SHARE NEEDS, CONCERNS, AND COMMON EXPERIENCES. THE DUCHENNE REGISTRY WORKS COLLABORATIVELY WITH STAKEHOLDERS WHO MAKE UP THE DUCHENNE POPULATION AND PARTICIPATES ACTIVELY AND EFFECTIVELY IN THE INTERNATIONAL DUCHENNE COMMUNITY. 1453468 EDUCATION -PPMD'S EDUCATION INITIATIVE INCREASES RECOGNITION OF MUSCLE WEAKNESS AMONG HEALTHCARE PROFESSIONALS AND PROMOTES EARLY DIAGNOSIS; SHARES UP-TO-DATE INFORMATION ABOUT TREATMENT AND CARE OPTIONS WITH ALL MEMBERS OF THE DUCHENNE COMMUNITY; AND RAISES AWARENESS ABOUT DUCHENNE AND PROVIDES EDUCATIONAL MATERIALS TO THE GLOBAL COMMUNITY. 512130 ADVOCACY - PPMD'S ADVOCACY EFFORTS ARE DESIGNED TO ENSURE THE PATIENT'S VOICE IS HEARD IN WASHINGTON, DC, SO POLICIES LEAD TO IMPROVEMENTS IN THE LIVES OF FAMILIES AFFECTED BY DUCHENNE AND REFLECT THE NEEDS OF THE WHOLE COMMUNITY. PPMD WORKS TO ENSURE THAT DUCHENNE RESEARCH AND CLINICAL TRIALS REMAIN A HIGH PRIORITY WITH FEDERAL REGULATORY AGENCIES SO THEY ADDRESS DUCHENNE-SPECIFIC CONCERNS IN THEIR DECISION-MAKING. 7533047 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 47 0 1 24 1 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 0 0 0 AL AR CA CO CT FL GA IL IN IA KS KY LA ME MA MI MN MS MO NE NH NJ NM NY NC OH PA SC TN TX UT VA MD WA WV WI WY AZ X X THE ORGANIZATION 2012508440 401 HACKENSACK AVENUE 9TH FLOOR HACKENSACK NJ 07601 JOHN KILLIAN BOARD CHAIRMAN 15.00 X X 0 0 0 ELLEN WAGNER BOARD TREASURER 15.00 X X 0 0 0 CHRISTINE L PIACENTINO BOARD SECRETARY 8.00 X X 0 0 0 JONATHAN FINDER MD BOARD MEMBER 2.00 X 0 0 0 JOANNA JOHNSON BOARD MEMBER 2.00 X 0 0 0 LINDA CRIPE MD BOARD MEMBER 2.00 X 0 0 0 CHRISTOPHER B CURRAN BOARD MEMBER 2.00 X 0 0 0 CHRIS JONES BOARD MEMBER 2.00 X 0 0 0 RASHA ALNAIBARI BOARD MEMBER 2.00 X 0 0 0 DAVID HOFSTEIN BOARD MEMBER 2.00 X 0 0 0 RICHARD KLEIN BOARD MEMBER 2.00 X 0 0 0 PATRICIA A FURLONG FOUNDING CEO & PRESIDENT 40.00 X 216650 0 9871 KIMBERLY GALBERAITH CHIEF OPERATING OFFICER 40.00 X 171891 0 33698 ABBY H BRONSON SENIOR VICE PRESIDENT, RESEARCH STRATEGY 40.00 X 184208 0 22035 ANNE M KENNEDY SENIOR VICE PRESIDENT, LEGISLATION & PUBLIC POLICY 40.00 X 167724 0 19513 KELLY DOUGHERTY SENIOR VICE PRESIDENT, FINANCE & ADMINISTRATION 40.00 X 162100 0 8348 KAYLAN M MOITOSO SENIOR VICE PRESIDENT, DEVELOPMENT 40.00 X 155852 0 6882 KATHLEEN J KINNETT SENIOR VICE PRESIDENT, CLINICAL CARE 40.00 X 155722 0 6677 RYAN K FISCHER SENIOR VICE PRESIDENT, COMMUNITY ENGAGEMENT 40.00 X 129948 0 12159 WILLIAM P NOLAN JR SENIOR VICE PRESIDENT, COMMUNICATIONS 40.00 X 132560 0 5750 ANN MARTIN DIRECTOR, THE DUCHENNE REGISTRY 40.00 X 106831 0 4827 1583486 0 129760 10 0 1 0 THE PHOENICIAN SCOTTSDALE 6000 E CAMELBACK ROAD SCOTTSDALE AZ 85251 CONFERENCE VENUE 453164 PROMETHEUS RESEARCH LLC 1 AUDUBON STREET 4TH FLOOR NEW HAVEN CT 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X X 0 0 0 0 0 0 0 0 0 PATRICIA A FURLONG FOUNDING CEO & PRESIDENT 216650 0 0 0 0 0 8772 0 1099 0 226521 0 0 0 KIMBERLY GALBERAITH CHIEF OPERATING OFFICER 171891 0 0 0 0 0 7292 0 26406 0 205589 0 0 0 ABBY H BRONSON SENIOR VICE PRESIDENT, RESEARCH STRA 184208 0 0 0 0 0 6601 0 15434 0 206243 0 0 0 ANNE M KENNEDY SENIOR VICE PRESIDENT, LEGISLATION & 167724 0 0 0 0 0 7025 0 12488 0 187237 0 0 0 KELLY DOUGHERTY SENIOR VICE PRESIDENT, FINANCE & ADM 162100 0 0 0 0 0 6524 0 1824 0 170448 0 0 0 KAYLAN M MOITOSO SENIOR VICE PRESIDENT, DEVELOPMENT 155852 0 0 0 0 0 6434 0 448 0 162734 0 0 0 KATHLEEN J KINNETT SENIOR VICE PRESIDENT, CLINICAL CARE 155722 0 0 0 0 0 6229 0 448 0 162399 0 0 0 X 8 198371 FMV ON DATE OF GIFT 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES CARS FOR CAUSES, ANOTHER TAX-EXEMPT ORGANIZATION, WHEN A VEHICLE IS DONATED. THE DONOR DONATES THE VEHICLE TO CARS FOR CAUSES AND THE PROCEEDS OF THE SALE ARE FORWARDED TO THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. FORM 990, PART VI, SECTION A, LINE 8B NO COMMITTEE HAS AUTHORITY TO ACT ON BEHALF OF THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 11B THE 990 IS COMPLETED BY AN INDEPENDENT CPA FIRM AND A DRAFT IS PRESENTED TO THE BOARD MEMBERS FOR REVIEW. THE BOARD THEN VOTES TO APPROVE THE 990 BEFORE IT IS SIGNED AND MAILED. IF THERE ARE ANY COMMENTS OR QUESTIONS THE ISSUE IS RESOLVED PRIOR TO FILING THE 990 WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE SECRETARY IS RESPONSIBLE TO ENSURE EACH BOARD MEMBER HAS COMPLETED THEIR WRITTEN STATEMENT ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR.