AMYOTROPHIC LATERAL SCLEROSIS: Form 990, tax year 2010
View the entire original 990 at ProPublica ↗
- Organization
- AMYOTROPHIC LATERAL SCLEROSIS (EIN 35-2029321)
- Tax period
- 2010-02-01 to 2011-01-31
- Filed
- 2011-08-24
- IRS object ID
- 201142369349300109
- Schema version
- 2010v3.4
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule I
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2011-08-24T09:50:55-05:00 | Timestamp |
| Tax Period End Date | 2011-01-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DEHMEL & ASSOCIATES PC | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2222 CUNNINGHAM RD | AddressLine1 |
| City | INDIANAPOLIS | City |
| State | IN | State |
| ZIP Code | 462243701 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2010-02-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 352029321 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE INDIANA CHAPTER OF THE ALS | BusinessNameLine1 |
| Business Name Line2 | ASSOCIATION INC | BusinessNameLine2 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | INDI | NameControl |
| Phone | 3179159888 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6525 E 82ND STREET | AddressLine1 |
| Address Line2 | ROOM/SUITE 115 | AddressLine2 |
| City | INDIANAPOLIS | City |
| State | IN | State |
| ZIP Code | 46250 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | MELISSA PERSHING | Name |
| Title | EXECUTIVE DIRECTOR | Title |
| Phone | 3179159888 | Phone |
| Date Signed | 2011-08-18 | DateSigned |
| Authorize Third Party | true | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | ROBERT GODFREYCPA | Name |
| Phone | 3172482202 | Phone |
| Date Prepared | 2011-08-24 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2010 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | MELISSA PERSHING EXEC DIRECTOR | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6525 E 82ND STREET SUITE 115 | AddressLine1 |
| City | INDIANAPOLIS | City |
| State | IN | State |
| ZIP Code | 46250 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 430055 | GrossReceipts |
| Group Return For Affiliates | false | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | HTTP:\\WEBIN.ALSA.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1997 | YearFormation |
| State Legal Domicile | IN | StateLegalDomicile |
| Activity Or Mission Description | MOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 7 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 7 | NbrIndependentVotingMembers |
| Total Nbr Employees | 12 | TotalNbrEmployees |
| Total Nbr Volunteers | 180 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Contributions Grants Prior Year | 454761 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 429301 | ContributionsGrantsCurrentYear |
| Program Service Revenue CY | 0 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 476 | InvestmentIncomePriorYear |
| Investment Income Current Year | 1280 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | -44405 | OtherRevenuePriorYear |
| Other Revenue Current Year | -27759 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 410832 | TotalRevenuePriorYear |
| Total Revenue Current Year | 402822 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 10500 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 10500 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 209791 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 189585 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 82208 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 231579 | OtherExpensePriorYear |
| Other Expenses Current Year | 212884 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 451870 | TotalExpensesPriorYear |
| Total Expenses Current Year | 412969 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -41038 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | -10147 | RevenuesLessExpensesCY |
| Total Assets BOY | 310141 | TotalAssetsBOY |
| Total Assets EOY | 305518 | TotalAssetsEOY |
| Total Liabilities BOY | 50833 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 56357 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 259308 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 249161 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part III | X | InfoInScheduleOPartIII |
| Mission Description | MOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH. | MissionDescription |
| Significant New Program Services | false | SignificantNewProgramServices |
| Significant Change | false | SignificantChange |
| Expense | 67525 | Expense |
| Grants | 10500 | Grants |
| Description | CLINIC - MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE ALS MULTI-DISCIPLINARY CLINIC SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE REGENSTRIEF CENTER OF WISHARD HOSPITAL. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIAL WORK/CASE MANAGER AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN 2010. WHILE SOME OF THOSE VISITS MAY BE A REPEAT VISIT BY THE SAME PATIENT WITHIN THE SAME CALENDAR YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIAL STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 75763 | Expense |
| Revenue | 28951 | Revenue |
| Description | RESEARCH & AWARENESS - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS AND A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS. RESEARCH FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ALS ASSOCIATION IN ORDER TO TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS (SUCH AS THOSE INVOLVING CELL TARGETS, GENE THERAPY, RNA THERAPY, STEM CELLS, TROPHIC FACTORS AND BIOMARKERS). RESEARCH DOLLARS ARE ALSO USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 63293 | Expense |
| Description | SUPPORT GROUPS - THE INDIANA CHAPTER'S SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER OPERATED NINE (9) SUPPORT GROUPS IN 2010. THE NINE GEOGRAPHICALLY-BASED GROUPS MEET MONTHLY: W. LAFAYETTE, WARSAW, MUNCIE, INDIANAPOLIS (2), EVANSVILLE (2) AND BLOOMINGTON. THE GEOGRAPHICALLY-BASED SUPPORT GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND (PATIENTS, CAREGIVERS, FAMILY MEMBERS, FRIENDS, NEIGHBORS, COLLEAGUES, ETC.). GENERALLY SPEAKING, THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND (HOUSING RETROFITTING, EQUIPMENT, NUTRITION, HOSPICE, ETC.) AT HALF OF THE GROUP'S MEETINGS AND AT THE OTHER HALF OF THE MEETINGS, GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. WHILE ATTENDANCE AT INDIVIDUAL SUPPORT GROUPS VARIES FROM MONTH TO MONTH, STATEWIDE AN AVERAGE OF 80 PATIENTS AND CAREGIVERS ATTEND A SUPPORT GROUP MEETING EACH MONTH. AVERAGE ATTENDANCE PER SUPPORT GROUP: INDIANAPOLIS 14 INDIANAPOLIS YOUNG CAREGIVERS 4 EVANSVILLE 11 EVANSVILLE SURVIVORS 8 WARSAW 12 MUNCIE 6 RICHMOND 6 BLOOMINGTON 12 W. LAFAYETTE 7 | Description |
Activity Other ActivityOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 65386 | Expense |
| Description | OTHER PROGRAMS INCLUDE: CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE APPROXIMATELY 110 CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. LOAN CLOSETS, WHICH ARE TWO EQUIPMENT AND SUPPLY RESOURCES FOR PATIENTS AND CAREGIVERS. AND A VARIETY MISCELLANEOUS PROGRAMS AS NEEDED FROM TIME TO TIME. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Other Program Service Exp | 65386 | TotalOfOtherProgramServiceExp |
| Total Program Service Expense | 271967 | TotalProgramServiceExpense |
| Described In501 C3 | true | DescribedIn501C3 |
| Schedule B Required | true | ScheduleBRequired |
| Political Activities | false | PoliticalActivities |
| Lobbying Activities | true | LobbyingActivities |
| Subject To Proxy Tax | false | SubjectToProxyTax |
| Donor Advised Funds | false | DonorAdvisedFunds |
| Conservation Easements | false | ConservationEasements |
| Collections Of Art | false | CollectionsOfArt |
| Credit Counseling | false | CreditCounseling |
| Term Or Permanent Endowments | false | TermOrPermanentEndowments |
| Report Land Bldg Equip | true | ReportLandBldgEquip |
| Report Invest Oth Securities | false | ReportInvestOthSecurities |
| Report Prog Rel Invest | false | ReportProgRelInvest |
| Report Other Assets | false | ReportOtherAssets |
| Report Other Liabilities | true | ReportOtherLiabilities |
| Report Fin48 Footnote | false | ReportFin48Footnote |
| Independent Audit Financial Stmt | true | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | false | ConsolidatedAuditFinancialStmt |
| School | false | School |
| Foreign Office | false | ForeignOffice |
| Foreign Activities | false | ForeignActivities |
| More Than5000 K To Organizations | false | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividuals |
| Professional Fundraising | false | ProfessionalFundraising |
| Fundraising Activities | true | FundraisingActivities |
| Gaming | false | Gaming |
| Hospital | false | Hospital |
| Grants To Organizations | true | GrantsToOrganizations |
| Grants To Individuals | false | GrantsToIndividuals |
| Schedule J Required | false | ScheduleJRequired |
| Tax Exempt Bonds | false | TaxExemptBonds |
| Excess Benefit Transaction | false | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | false | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | false | LoanToOfficerOrDQP |
| Grant To Related Person | false | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | false | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | false | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | false | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | true | DeductibleNonCashContributions |
| Deductible Contributions Of Art | false | DeductibleContributionsOfArt |
| Terminated | false | Terminated |
| Partial Liquidation | false | PartialLiquidation |
| Disregarded Entity | false | DisregardedEntity |
| Related Entity | false | RelatedEntity |
| Related Org Controlled Entity | false | RelatedOrgControlledEntity |
| Transaction Related Entity | false | TransactionRelatedEntity |
| Transfers To Exempt Non Chrtbl Org | false | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | false | ActivitiesConductedPartnership |
| Schedule O Required | true | ScheduleORequired |
| Number Forms Transmitted With1096 | 6 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 12 | NumberOfEmployees |
| Employment Tax Returns Filed | true | EmploymentTaxReturnsFiled |
| Unrelated Business Income | false | UnrelatedBusinessIncome |
| Foreign Financial Account | false | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTrans |
| Taxable Party Notification | false | TaxablePartyNotification |
| Non Deductible Contributions | false | NonDeductibleContributions |
| Quid Pro Quo Contributions | false | QuidProQuoContributions |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | false | FundsToPayPremiums |
| Premiums Paid | false | PremiumsPaid |
| Form8899 Filed | false | Form8899Filed |
| Form1098 C Filed | false | Form1098CFiled |
| Indoor Tanning Services | false | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 7 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 7 | NumberIndependentVotingMembers |
| Family Or Business Relationship | false | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | false | DelegationOfManagementDuties |
| Changes To Organizing Docs | true | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuse |
| Members Or Stockholders | false | MembersOrStockholders |
| Election Of Board Members | false | ElectionOfBoardMembers |
| Decisions Subject To Approval | false | DecisionsSubjectToApproval |
| Minutes Of Governing Body | true | MinutesOfGoverningBody |
| Minutes Of Committees | true | MinutesOfCommittees |
| Officer Mailing Address | false | OfficerMailingAddress |
| Local Chapters | false | LocalChapters |
| Form990 Provided To Governing Body | true | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | true | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | true | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | true | RegularMonitoringEnforcement |
| Whistleblower Policy | true | WhistleblowerPolicy |
| Document Retention Policy | true | DocumentRetentionPolicy |
| Compensation Process CEO | false | CompensationProcessCEO |
| Compensation Process Other | false | CompensationProcessOther |
| Investment In Joint Venture | false | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | IN | StatesWhereCopyOfReturnIsFiled |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | MELISSA PERSHING EXEC DIRECTOR | NamePerson |
| Telephone Number | 3179159888 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6525 EAST 82ND STREET 115 | AddressLine1 |
| City | INDIANAPOLIS | City |
| State | IN | State |
| ZIP Code | 46250 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (8 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| MICHAEL E MILLIKAN JD | ||||||
| IMMED PAST P | 1.00 | X | X | 0 | 0 | 0 |
| ADAM TERNET | ||||||
| SECRETARY | 1.75 | X | X | 0 | 0 | 0 |
| THOMAS J CARROLL | ||||||
| TRUSTEE | 0.50 | X | 0 | 0 | 0 | |
| DEBRA JOHNSON MBA CPA | ||||||
| TRUSTEE | 0.50 | X | 0 | 0 | 0 | |
| CARRIE M KING CPA | ||||||
| TRUSTEE | 0.50 | X | 0 | 0 | 0 | |
| EDWARD ZDOBYLAK MD | ||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | |
| JEANNE MANNELLA PMP | ||||||
| TRUSTEE | 1.50 | X | 0 | 0 | 0 | |
| MELISSA A PERSHING JD | ||||||
| EXECUTIVE DI | 50.00 | X | 49616 | 0 | 0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 49616 | TotalReportableCompFromOrg |
| Formers Listed | false | FormersListed |
| Total Comp GT150 K | false | TotalCompGT150K |
| Compensation From Other Sources | false | CompensationFromOtherSources |
| Fundraising Events | 232642 | FundraisingEvents |
| All Other Contributions | 196659 | AllOtherContributions |
| Noncash Contributions | 57651 | NoncashContributions |
| Total Contributions | 429301 | TotalContributions |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 280 | TotalRevenueColumn |
| Exclusion | $280 | ExclusionAmount |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other | 1000 | Other |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other | 1000 | Other |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 1000 | TotalRevenueColumn |
| Related Or Exempt Function Income | 1000 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrbtns Rprtd Fundraising Events | 232642 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 27233 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -27233 | TotalRevenueColumn |
Other Revenue Misc OtherRevenueMisc (2 entries)
| DescriptionDescription | Business CodeBusinessCode | Total Revenue ColumnTotalRevenueColumn | Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome |
|---|---|---|---|
| OTHER INCOME | 900099 | 269 | 269 |
| INVENTORY WRITE-OFF | 900099 | -795 | -795 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | -526 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 402822 | TotalRevenueColumn |
| Related Or Exempt Function Income | 474 | RelatedOrExemptFunctionIncome |
| Exclusion | $280 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 10500 | Total |
| Program Services | 10500 | ProgramServices |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 55407 | Total |
| Program Services | 22163 | ProgramServices |
| Management And General | 16622 | ManagementAndGeneral |
| Fundraising | 16622 | Fundraising |
Comp Disqual Persons CompDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5753 | Total |
| Program Services | 2301 | ProgramServices |
| Management And General | 1726 | ManagementAndGeneral |
| Fundraising | 1726 | Fundraising |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 110013 | Total |
| Program Services | 72608 | ProgramServices |
| Management And General | 14302 | ManagementAndGeneral |
| Fundraising | 23103 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 3175 | Total |
| Program Services | 1905 | ProgramServices |
| Management And General | 476 | ManagementAndGeneral |
| Fundraising | 794 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 15237 | Total |
| Program Services | 9142 | ProgramServices |
| Management And General | 2286 | ManagementAndGeneral |
| Fundraising | 3809 | Fundraising |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7 | Total |
| Management And General | 7 | ManagementAndGeneral |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 8145 | Total |
| Management And General | 8145 | ManagementAndGeneral |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 1246 | Total |
| Program Services | 1246 | ProgramServices |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6565 | Total |
| Program Services | 5339 | ProgramServices |
| Management And General | 460 | ManagementAndGeneral |
| Fundraising | 766 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 37661 | Total |
| Program Services | 14870 | ProgramServices |
| Management And General | 4655 | ManagementAndGeneral |
| Fundraising | 18136 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 16036 | Total |
| Program Services | 9621 | ProgramServices |
| Management And General | 2404 | ManagementAndGeneral |
| Fundraising | 4011 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 35889 | Total |
| Program Services | 21534 | ProgramServices |
| Management And General | 5383 | ManagementAndGeneral |
| Fundraising | 8972 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 9281 | Total |
| Program Services | 5344 | ProgramServices |
| Management And General | 161 | ManagementAndGeneral |
| Fundraising | 3776 | Fundraising |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7048 | Total |
| Program Services | 7048 | ProgramServices |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2464 | Total |
| Program Services | 1478 | ProgramServices |
| Management And General | 493 | ManagementAndGeneral |
| Fundraising | 493 | Fundraising |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 1674 | Total |
| Management And General | 1674 | ManagementAndGeneral |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices |
|---|---|---|
| REVENUE SHARING - PROGRAM | 60118 | 60118 |
| LOAN CLOSET EXPENSE | 25590 | 25590 |
| MISCELLANEOUS - PROGRAM | 662 | 662 |
| CLINIC - PROGRAM | 498 | 498 |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 412969 | Total |
| Program Services | 271967 | ProgramServices |
| Management And General | 58794 | ManagementAndGeneral |
| Fundraising | 82208 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 110040 | BOY |
| EOY | 75927 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 138606 | BOY |
| EOY | 139788 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5117 | BOY |
| EOY | 4346 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 45580 | BOY |
| EOY | 72781 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 4196 | BOY |
| EOY | 825 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 26831 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 17435 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 4147 | BOY |
| EOY | 9396 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2455 | BOY |
| EOY | 2455 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 310141 | BOY |
| EOY | 305518 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 50833 | BOY |
| EOY | 51856 | EOY |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 4501 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 50833 | BOY |
| EOY | 56357 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 233085 | BOY |
| EOY | 227561 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 26223 | BOY |
| EOY | 21600 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 259308 | BOY |
| EOY | 249161 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 310141 | BOY |
| EOY | 305518 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | -10147 | ReconcilationRevenueExpenses |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | false | AccountantCompileOrReview |
| FS Audited | true | FSAudited |
| Audit Committee | true | AuditCommittee |
| Financial Statement Consolidated | X | FinancialStatementConsolidated |
| Federal Grant Audit Required | false | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 384622 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 311419 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 474300 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 454761 | CurrentTaxYearMinus1Year |
| Current Tax Year | 429301 | CurrentTaxYear |
| Total | 2054403 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 384622 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 311419 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 474300 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 454761 | CurrentTaxYearMinus1Year |
| Current Tax Year | 429301 | CurrentTaxYear |
| Total | 2054403 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | 2054403 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 15935 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 18283 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 20447 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 476 | CurrentTaxYearMinus1Year |
| Current Tax Year | 280 | CurrentTaxYear |
| Total | 55421 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | 575 | CurrentTaxYearMinus1Year |
| Current Tax Year | 269 | CurrentTaxYear |
| Total | 844 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 2110668 | TotalSupport |
| Public Support Pertcentage170 | 0.97330 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.96840 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form4720 Filed4955 Tax | false | Form4720Filed4955Tax |
| Correction Made | false | CorrectionMade |
| Form1120 Pol Filed | false | Form1120PolFiled |
| Form4720 Filed | false | Form4720Filed |
| Volunteers | true | Volunteers |
| Paid Staff Or Management | true | PaidStaffOrManagement |
| Media Advertisements | false | MediaAdvertisements |
| Mailings Members | false | MailingsMembers |
| Publications Or Broadcast | false | PublicationsOrBroadcast |
| Grants Other Organizations | false | GrantsOtherOrganizations |
| Direct Contact Legislators | true | DirectContactLegislators |
| Direct Contact Legislators | $1,246 | DirectContactLegislatorsAmount |
| Rallies Demonstrations | false | RalliesDemonstrations |
| Other Activities | false | OtherActivities |
| Total Lobbying Expenditures IIB | 1246 | TotalLobbyingExpendituresIIB |
| Not Described In501c3 | false | NotDescribedIn501c3 |
| Form4720 Filed4912 Tax | false | Form4720Filed4912Tax |
| Substantially All Dues Nondeduct | false | SubstantiallyAllDuesNondeduct |
| Only In House Lobbying | false | OnlyInHouseLobbying |
| Agree To Carryover Prior Year | false | AgreeToCarryoverPriorYear |
Form990 Schedule C Part IV Form990ScheduleCPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Reference | SCHEDULE C, PART II-B, LINE 1I | ReturnReference |
| Explanation | THE EXECUTIVE DIRECTOR ATTENDED AN ADVOCACY DAY IN WASHINGTON DC EDUCATING MEMBERS OF CONGRESS ABOUT ALS AND ENCOURAGING CONGRESSIONAL APPROPRIATIONS TO FUND RESEARCH AND FOR SUPPORT OF THE ALS REGISTRY. HAND DELIVERY OF INFORMATION AND DIRECT CONTACT MEETINGS. EXPENSES WERE FOR TRAVEL, ACCOMODATIONS, MEALS, AND CONFERENCE REGISTRATION. TWO VOLUNTEERS ACCOMPANIED THE EXECUTIVE DIRECTOR ON HER LEGISLATIVE VISITS AT THEIR OWN EXPENSE. | Explanation |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Disclosed Orgs Legal Control | false | DisclosedOrgsLegalControl |
| Disclosed For Charitable Purposes | false | DisclosedForCharitablePurposes |
| Written Policy Monitoring | false | WrittenPolicyMonitoring |
| Sect170h Requirements Satisfied | false | Sect170hRequirementsSatisfied |
| Solicited Assets For Sale | false | SolicitedAssetsForSale |
| Agent Trustee Etc | false | AgentTrusteeEtc |
| Included On FS | false | IncludedOnFS |
| Endowments Held By Unrelated Orgs | false | EndowmentsHeldByUnrelatedOrgs |
| Endowments Held By Related Orgs | false | EndowmentsHeldByRelatedOrgs |
| Are Related Orgs Listed Schedule R | false | AreRelatedOrgsListedScheduleR |
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 26831 | OtherCostOrOtherBasis |
| Depreciation | 17435 | Depreciation |
| Book Value | 9396 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 9396 | TotalOfBookValueLandBuildings |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | CAPITAL LEASE - COPIER | Description |
| Amount | $4,501 | Amount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Amounts | 4501 | TotalOfAmounts |
| Total Revenue | 402822 | TotalRevenue |
| Total Expenses | 412969 | TotalExpenses |
| Excess Or Deficit For Year | -10147 | ExcessOrDeficitForYear |
| Excess Or Deficit Per FS | -10147 | ExcessOrDeficitPerFS |
| Tot Revenue Etc Audited Fincl Stmt | 430055 | TotRevenueEtcAuditedFinclStmt |
| Revenue Subtotal | 430055 | RevenueSubtotal |
| Other Revenues Not Included | -27233 | OtherRevenuesNotIncluded |
| Revenue Not Rptd On Fin Stmt | -27233 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 402822 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 440202 | TotExpensesEtcAuditedFinclStmt |
| Other Expenses Included | 27233 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 27233 | ExpensesNotRptdF990 |
| Expenses Subtotal | 412969 | ExpensesSubtotal |
| Total Expenses Per Form990 | 412969 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIV Form990ScheduleDPartXIV (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| RECONCILIATION OF CHANGES - OTHER | SCHEDULE D, PAGE 4, PART XI, LINE 8 | DIRECT FUNDRAISING EXPENSES FROM SCHEDULE G 27,233 DIRECT FUNDRAISING EXPENSES FROM SCHEDULE G -27,233 |
| REVENUE AMOUNTS INCLUDED ON RETURN - OTHER | SCHEDULE D, PAGE 4, PART XII, LINE 4B | DIRECT FUNDRAISING EXPENSES FROM SCHEDULE G -27,233 |
| EXPENSE AMOUNTS INCLUDED IN FINANCIALS - OTHER | SCHEDULE D, PAGE 4, PART XIII, LINE 2D | DIRECT FUNDRAISING EXPENSES FROM SCHEDULE G 27,233 |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Licensed States | IN | LicensedStates |
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | WALKATHONS | NameOfEvent1 |
| Gross Receipts Event1 | 194798 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 194798 | CharitableContributionsEvent1 |
| Rent Facility Costs Event1 | 4191 | RentFacilityCostsEvent1 |
| Food And Beverage Event1 | 3276 | FoodAndBeverageEvent1 |
| Other Direct Expenses Event1 | 12800 | OtherDirectExpensesEvent1 |
| Name Of Event2 | DIRECT MAIL | NameOfEvent2 |
| Gross Receipts Event2 | 28630 | GrossReceiptsEvent2 |
| Charitable Contributions Event2 | 28630 | CharitableContributionsEvent2 |
| Total Number Of Other Events | 1 | TotalNumberOfOtherEvents |
| Gross Receipts Other Events | 9214 | GrossReceiptsOtherEvents |
| Charitable Contrib Other Events | 9214 | CharitableContribOtherEvents |
| Other Direct Expenses Other Events | 6966 | OtherDirectExpensesOtherEvents |
| Gross Receipts Total | 232642 | GrossReceiptsTotal |
| Charitable Contributions Total | 232642 | CharitableContributionsTotal |
| Rent Facility Costs Total Events | 4191 | RentFacilityCostsTotalEvents |
| Food And Beverage Total Events | 3276 | FoodAndBeverageTotalEvents |
| Other Direct Expenses Total Events | 19766 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 27233 | DirectExpenseSummaryEvents |
| Net Income Summary | -27233 | NetIncomeSummary |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | true | RecordsMaintained |
Recipient Table RecipientTable
Recipient Name Business RecipientNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | INDIANA UNIVERSITY ALS CENTER AT | BusinessNameLine1 |
| Business Name Line2 | WISHARD HEALTH SERVICES | BusinessNameLine2 |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | WISHARD HEALTH 1050 WISHARD BLVD | AddressLine1 |
| Address Line2 | NEUROLOGY DEPT 6TH FLOOR | AddressLine2 |
| City | INDIANAPOLIS | City |
| State | IN | State |
| ZIP Code | 46202 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN Of Recipient | 264529479 | EINOfRecipient |
| IRC Section | 3 | IRCSection |
| Amount Of Cash Grant | 10500 | AmountOfCashGrant |
| Purpose Of Grant | SUPPORT ALS CLINIC | PurposeOfGrant |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 1 | TotalNbrOf501C3AndGovtGrants |
Schedule M IRS990ScheduleM
Food Inventory FoodInventory
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Number Of Contributions | 7 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 1380 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | PURCHASE COST | MethodOfDeterminingRevenues |
Other Non Cash Contributions Table OtherNonCashContributionsTable (3 entries)
| Non Cash CheckboxNonCashCheckbox | DescriptionDescription | Number Of ContributionsNumberOfContributions | Noncash Contribs Rptd F990NoncashContribsRptdF990 | Method Of Determining RevenuesMethodOfDeterminingRevenues |
|---|---|---|---|---|
| X | LOAN EQUIPMENT | 151 | 52131 | 25% OF PURCHASE COST |
| X | EVENT RENTALS | 5 | 3370 | PURCHASE COST |
| X | MISC EVENT SUPL | 9 | 770 | CASH VALUE/PURCHASE COST |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeld |
| Review Process Unusual NC Gifts | true | ReviewProcessUnusualNCGifts |
| Third Parties Used | false | ThirdPartiesUsed |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (10 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| EXPLANATION ON VOLUNTEERS AND TYPES OF SERVICES OR BENEFITS | FORM 990, PAGE 1, PART I, LINE 6 | ELEVEN (11) MEMBERS OF THE BOARD OF TRUSTEES ARE UNPAID VOLUNTEERS WHO MEET EVERY OTHER MONTH, SERVE ON AT LEAST ONE BOARD COMMITTEE, ATTEND CHAPTER EVENTS, SUPPORT THE ORGANIZATION BY MAKING DONATIONS AND CULTIVATING DONORS AND RECRUIT/LEAD THEIR OWN WALK TO DEFEAT ALS (TM) TEAMS. TWENTY (20) WALK COMMITTEE VOLUNTEERS HANDLE ALL PLANNING AND LOGISTICS FOR THE CHAPTER'S THREE MAJOR FUNDRAISING EVENTS, THE NORTHERN, CENTRAL, AND SOUTHERN INDIANA WALKS TO DEFEAT ALS. WALK SUBCOMMITTEES INCLUDE FOOD AND BEVERAGE, ACCOUNTING, WALK DAY VOLUNTEERS, TEAM MENTORS, AND MEDIA/PR. VOLUNTEERS ALSO ASSIST IN OBTAINING INDIVIDUAL AND CORPORATE IN-KIND DONATIONS OF FOOD, BEVERAGES, SERVICES, PRODUCTS AND EQUIPMENT FOR USE ON WALK DAY. ONE-HUNDRED-SIXTEEN (116) WALK DAY VOLUNTEERS SET UP AND TEAR DOWN ALL THE TENTS, SIGNAGE, TABLES, CHAIRS STAGE AND OTHER EQUIPMENT AND ACTIVITY AREAS AS WELL AS ASSIST WALKERS IN THE REGISTRATION, ENTERTAINMENT, FOOD & BEVERAGE, CHILDREN'S AREA, ADVOCACY, TEAM PHOTOS, TEAM TENTS AND VOLUNTEER TENT. POST WALK DAY VOLUNTEERS ENSURE THANK YOU LETTERS ARE SENT OUT, ENTER DATA ABOUT WALKERS AND DONATIONS IN THE CHAPTER DATABASE AND ASSIST WITH THE WALK AWARDS AND YEAR-END RECOGNITION EVENT. TWENTY-SEVEN (27) PATIENT SERVICES VOLUNTEERS ARE AN INTEGRAL PART OF PROGRAMMING AND PROVIDE CRITICAL ASSISTANCE WITH THE CHAPTER'S NINE (9) SUPPORT GROUPS FOR PATIENTS AND CAREGIVERS, QUARTERLY CAREGIVER RETREATS IN EACH OF THE THREE REGIONS AND WITH THE CHAPTER'S TWO EQUIPMENT LOAN CLOSETS. A HALF DOZEN (6) ADMINISTRATIVE/OTHER SUPPORT VOLUNTEERS HANDLE A WIDE VARIETY OF CLERICAL, ADMINISTRATIVE, DATABASE MANAGEMENT, MAILING ASSEMBLY AND OTHER TASKS EITHER IN THE OFFICE OR AT HOME. |
| FIRST ACHIEVEMENT DESCRIPTION | FORM 990, PAGE 2, PART III, LINE 4A | SCHEDULED IN 2010. WHILE SOME OF THOSE VISITS MAY BE A REPEAT VISIT BY THE SAME PATIENT WITHIN THE SAME CALENDAR YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIAL STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM. |
| SECOND ACHIEVEMENT DESCRIPTION | FORM 990, PAGE 2, PART III, LINE 4B | MODELS OF ALS. |
| THIRD ACHIEVEMENT DESCRIPTION | FORM 990, PAGE 2, PART III, LINE 4C | THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. WHILE ATTENDANCE AT INDIVIDUAL SUPPORT GROUPS VARIES FROM MONTH TO MONTH, STATEWIDE AN AVERAGE OF 80 PATIENTS AND CAREGIVERS ATTEND A SUPPORT GROUP MEETING EACH MONTH. AVERAGE ATTENDANCE PER SUPPORT GROUP: INDIANAPOLIS 14 INDIANAPOLIS YOUNG CAREGIVERS 4 EVANSVILLE 11 EVANSVILLE SURVIVORS 8 WARSAW 12 MUNCIE 6 RICHMOND 6 BLOOMINGTON 12 W. LAFAYETTE 7 |
| ALL OTHER ACHIEVEMENTS DESCRIPTION | FORM 990, PAGE 2, PART III, LINE 4D | OTHER PROGRAMS INCLUDE: CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE APPROXIMATELY 110 CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. LOAN CLOSETS, WHICH ARE TWO EQUIPMENT AND SUPPLY RESOURCES FOR PATIENTS AND CAREGIVERS. AND A VARIETY MISCELLANEOUS PROGRAMS AS NEEDED FROM TIME TO TIME. |
| ADDITIONAL INFORMATION | FORM 990, PART VI | SECTION B, 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF TRUSTEES DETERMINES THE COMPENSATION FOR THE EXECUTIVE DIRECTOR. THE EXECUTIVE DIRECTOR'S PAY WAS LAST DETERMINED IN 2009. NO MEMBER OF THE EXECUTIVE COMMITTEE HAD A CONFLICT OF INTEREST WITH RESPECT TO THE COMPENSATION ARRANGEMENT. THE EXECUTIVE COMMITTEE USED DATA AS TO COMPARABLE COMPENSATION FOR SIMILARLY QUALIFIED PERSONS IN FUNCTIONALLY COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS IN ORDER TO DETERMINE COMPENSATION. HOWEVER, THERE WAS NO CONTEMPORANEOUS DOCUMENTATION AND RECORDKEEPING OF THE DELIBERATIONS AND DECISIONS REGARDING THE COMPENSATION ARRANGEMENT. THE EXECUTIVE DIRECTOR'S PAY WAS NOT ADJUSTED DURING 2010. |
| SIGNIFICANT CHANGES TO ORGANIZATIONAL DOCUMENTS | FORM 990, PAGE 6, PART VI, LINE 4 | THE BOARD VOTED TO UPDATE THE BYLAWS IN NOVEMBER 2010. THE NEW BYLAWS DIFFER FROM THE OLD BYLAWS AS FOLLOWS: ARTICLE 1 - CHANGES NAME AND PRINCIPAL OFFICE: THE ALS ASSOCIATION INDIANA CHAPTER, 6525 E 82ND STREET, STE 115, INDIANAPOLIS, IN 46220 ARTICLE 2 - ORGANIZATION-INCORPORATES THE CHAPTER CHARTER WHICH CONTROLS IF THERE IS A CONFLICT WITH THE BYLAWS. THE CHAPTER SHALL HAVE NO MEMBERS ARTICLE 3 - TERRITORY-REQUIRES PRIOR CONSENT OF THE ASSOCIATION TO SOLICIT CONTRIBUTIONS FROM NEIGHBORING AREAS NOT CURRENTLY SERVICED BY ANOTHER CHAPTER ARTICLE 4 - PURPOSE-ADDS LANGUAGE THAT FORBIDS ENGAGEMENT IN "ANY ACTIVITY NOT PERMISSIBLE FOR AN ENTITY RECOGNIZED AS TAX EXEMPT BY THE IRS UNDER SECTION 501(C)(3)" OF THE IRS CODE. DELETES THE PART WHICH FORBIDS THE CHAPTER TO "CARRY ON PROPAGANDA OR OTHERWISE ATTEMPT TO INFLUENCE LEGISLATION" ARTICLE 5 - BOARD OF DIRECTORS-DELETES ENTIRE MEMBERSHIP SECTION. PROSCRIBES NUMBER OF BOARD MEMBERS (NO LESS THAN 7) AND REDEFINES HONORARY DIRECTORS. INCLUDES SECTIONS ON ELECTIONS, TERMS OF SERVICE BY CLASS A, B AND C DIRECTORS, REMOVAL OF BOARD MEMBER BY 75% VOTE OF THOSE PRESENT. QUORUM EQUALS THE MAJORITY OF MEMBERS PRESENT AT THE MEETING. QUORUM HOLDS THROUGHOUT MEETING. IN THE ABSENCE OF QUORUM MEETING SHALL BE ADJOURNED AND RESCHEDULED. TELECONFERENCE COUNTS TOWARD QUORUM. LACK OF ADEQUATE EXCUSE FOR MISSING 3 CONSECUTIVE MEETINGS EQUALS AUTOMATIC DISMISSAL. ARTICLE 6 - ADVISORY BOARD-MEMBERS ARE ELECTED BY BOARD OF DIRECTORS AND SERVE AT THEIR PLEASURE. NO VOTING RIGHTS AND NOT COUNTED AS "DIRECTORS" ARTICLE 7 - OFFICERS-LISTS AS: PRESIDENT, PRESIDENT-ELECT, VICE PRESIDENT, EXECUTIVE DIRECTOR, SECRETARY, TREASURER. SECRETARY/TREASURER MAY BE COMBINED. VICE PRESIDENT OR ANY OTHER OFFICER EXCEPT EXECUTIVE DIRECTOR MAY BE PRESIDENT-ELECT. TWO YEAR TERMS EXCEPT FOR PRESIDENT-ELECT'S ONE YEAR TERM. IMMEDIATE PAST PRESIDENT REMAINS EX-OFFICIO ON EXECUTIVE COMMITTEE FOR ONE YEAR. TERM EXTENSION FOR THOSE WHOSE TERM EXPIRES BEFORE TERM AS OFFICER DOES. OFFICERS SERVE WITHOUT COMPENSATION EXCEPT FOR THE EXECUTIVE DIRECTOR. WHEN VACANCIES OCCUR, BOARD OR EXECUTIVE COMMITTEE SHALL FILL THEM FOR THE REMAINDER OF THE TERM. OFFICERS MAY BE REMOVED BY MAJORITY VOTE OF THE BOARD WHENEVER IT SERVES THE BEST INTERESTS OF THE CHAPTER. ARTICLE 8 - STANDING COMMITTEES-REQUIRED: EXECUTIVE, BOARD DEVELOPMENT & NOMINATING (GOVERNANCE), BUDGET/FINANCE. RECOMMENDED: PUBLIC AWARENESS, PATIENT & FAMILY SERVICES, ADVOCACY AND DEVELOPMENT (FUNDRAISING) ARTICLE 9 - REPRESENTATIVES TO THE ASSOCIATION-BOARD SHALL ELECT VOTING AND NON-VOTING REPRESENTATIVES FOR ASSOCIATION BOARD OF REPRESENTATIVES. THE CHAPTER, THROUGH IT'S BOARD, SHALL COMPLY WITH BYLAWS OF THE ASSOCIATION AS A "MEMBER" ARTICLE 10 - FISCAL MANAGEMENT-MUST RECEIVE WRITTEN AUTHORIZATION FROM THE ASSOCIATION TO ACQUIRE REAL PROPERTY WHETHER BY PURCHASE, GRANT, GIFT, BEQUEST OR OTHERWISE ARTICLE 11 - POLICY OF NON-DISCRIMINATION (NEW) ARTICLE 12 - INDEMNIFICATION-REQUIRES CHAPTER TO INDEMNIFY DIRECTORS, OFFICERS, EMPLOYEES, ETC. ARTICLE 13 - CONFLICT OF INTEREST-DEFINES CONFLICT AND CONDUCT REQUIRED (NEW) ARTICLE 14 - AMENDMENTS-TWO THIRDS VOTE REQUIRED TO ALTER, AMEND OR REPEAL CHAPTER BYLAWS |
| ORGANIZATION'S PROCESS USED TO REVIEW FORM 990 | FORM 990, PAGE 6, PART VI, LINE 11B | A DRAFT COPY OF FORM 990 WILL BE PROVIDED TO ALL BOARD MEMBERS FOR REVIEW PRIOR TO FILING IT WITH THE INTERNAL REVENUE SERVICE. |
| ENFORCEMENT OF CONFLICTS POLICY | FORM 990, PAGE 6, PART VI, LINE 12C | ENFORCEMENT OF THE CONFLICT OF INTEREST POLICY IS MONITORED REGULARLY. ALL EXEMPT AND NON-EXEMPT EMPLOYEES ARE COVERED AS ARE MEMBERS OF THE BOARD OF TRUSTEES. ALL NEW EMPLOYEES AND BOARD MEMBERS MUST SIGN A CONFLICT OF INTEREST POLICY. BOARD MEMBERS ARE REQUIRED TO SIGN A NEW CONFLICT OF INTEREST POLICY EVERY YEAR. THE EXECUTIVE DIRECTOR DETERMINES AND REVIEWS ANY CONFLICTS WITH STAFF THAT HAVE THE POTENTIAL TO NEGATIVELY AFFECT PERFORMANCE OR DECISION MAKING. THE BOARD PRESIDENT DETERMINES AND REVIEWS ANY CONFLICTS WITH BOARD MEMBERS. BOARD MEMBERS MUST RECUSE THEMSELVES FROM ANY DISCUSSION OR VOTE THAT INVOLVES A CONFLICT OF INTEREST. |
| GOVERNING DOCUMENTS DISCLOSURE EXPLANATION | FORM 990, PAGE 6, PART VI, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC IN THE CHAPTER OFFICE UPON REQUEST. |
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