NATIONAL FABRY DISEASE FOUNDATION: Form 990EZ, tax year 2009

View the entire original 990 at ProPublica ↗

Organization
NATIONAL FABRY DISEASE FOUNDATION (EIN 20-2944028)
Tax period
2009-06-01 to 2010-05-31
Filed
2011-04-11
IRS object ID
201131019349200503
Schema version
2009v1.4
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2011-04-11T09:45:48-05:00Timestamp
Tax Period End Date2010-05-31TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1BISH & HAFFEY PCBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line18027 LEESBURG PIKE SUITE 302AddressLine1
CityVIENNACity
StateVAState
ZIP Code22182ZIPCode
FieldValueIRS element (for citing)
Return Type990EZReturnType
Tax Period Begin Date2009-06-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN202944028EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1NATIONAL FABRY DISEASE FOUNDATIONBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlNATINameControl
Phone8006519131Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line14301 CONNECTICUT AVE NW No 404AddressLine1
CityWASHINGTONCity
StateDCState
ZIP Code200082369ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameGERALD WALTERName
TitleCHAIRMANTitle
Phone8006519131Phone
Date Signed2011-04-07DateSigned
Authorize Third Party1AuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameCHARLES A BISHName
Phone7038913800Phone
FieldValueIRS element (for citing)
Tax Year2009TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashXMethodOfAccountingCash
Web SiteWWW.THENFDF.ORGWebSite
Organization501cXOrganization501c
Gross Receipts164579GrossReceipts
Contributions Gifts Grants Etc164579ContributionsGiftsGrantsEtc
Total Revenue164579TotalRevenue
Grants And Similar Amounts Paid25000GrantsAndSimilarAmountsPaid
Salaries Other Comp Empl Benefits66330SalariesOtherCompEmplBenefits
Fees And Oth Pymt To Ind Contractors12316FeesAndOthPymtToIndContractors
Occupancy Rent Utilities And Maint679OccupancyRentUtilitiesAndMaint
Printing Publications Postage2331PrintingPublicationsPostage
Other Expenses Total38681OtherExpensesTotal
Total Expenses145337TotalExpenses
Excess Or Deficit For Year19242ExcessOrDeficitForYear
Net Assets Or Fund Balances BOY17596NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY36838NetAssetsOrFundBalancesEOY

Cash Savings And Investments CashSavingsAndInvestments

FieldValueIRS element (for citing)
BOY16473BOY
EOY35814EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY1123BOY
EOY1024EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY17596BOY
EOY36838EOY

Sum Of Total Liabilities SumOfTotalLiabilities

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Net Assets Or Fund Balances NetAssetsOrFundBalances

FieldValueIRS element (for citing)
BOY17596BOY
EOY36838EOY
FieldValueIRS element (for citing)
Primary Exempt PurposeENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED & TREATED IN TIME TO AVOID DIMINISHED QUALITY OF LIFE OR LIFE THREATENING CONSEQUENCES. PROVIDE ASSISTANCE TO INDIVIDUALS & THEIR FAMILIES WITH THE DISEASE, PROVIDE EDUCATION & AWARENESS & PROMOTE RESEARCH & IMPROVE TREATMENTPrimaryExemptPurpose

Program Service Accomplishment ProgramServiceAccomplishment

FieldValueIRS element (for citing)
Description Program Service AccomEDUCATION OF INDIVIDUALS WITH FABRY DISEASE. PROVIDE & PROMOTE EDUCATION OF PHYSICIANS, HEALTH CARE ADVOCATES AND OTHER PROVIDERS SO THAT SYMPTOMS OF THE DISEASE WILL BE PROPERLY RECOGNIZED.DescriptionProgramServiceAccom
Grants And Allocations0GrantsAndAllocations
Program Service Expenses128497ProgramServiceExpenses
FieldValueIRS element (for citing)
Total Program Service Expenses128497TotalProgramServiceExpenses

Officer Director Trustee Key Empl OfficerDirectorTrusteeKeyEmpl (6 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeTitleTitleAvg Hours Per Wk Devoted To PositionAvgHoursPerWkDevotedToPositionCompensationCompensationContri To Empl Benefit Plans EtcContriToEmplBenefitPlansEtcExpense Account Other AllowancesExpenseAccountOtherAllowances
GERALD WALTER
4301 CONNECTICUT AVE NWWASHINGTONDC200082369CHAIR24.005961000
DEREK HALBERG
4301 CONNECTICUT AVE NWWASHINGTONDC200082369VICE CHAIR0.00000
SUE BROWN
4301 CONNECTICUT AVE NWWASHINGTONDC200082369TREASURER0.00000
ELIZABETH GAFFIN
4301 CONNECTICUT AVE NWWASHINGTONDC200082369SECRETARY0.00000
TRACEY KRASNOW
4301 CONNECTICUT AVE NWWASHINGTONDC200082369DIRECTOR0.00000
DOUGLAS WARNOCK
4301 CONNECTICUT AVE NWWASHINGTONDC200082369DIRECTOR0.00000
FieldValueIRS element (for citing)
Activities Not Previously Rpt0ActivitiesNotPreviouslyRpt
Made Changes To Orgnzng Etc Doc0MadeChangesToOrgnzngEtcDoc
Organization Had UBI0OrganizationHadUBI
Organization Dissolved Etc0OrganizationDissolvedEtc
Direct Indirect Political Expend0DirectIndirectPoliticalExpend
Made Loans To From Officers0MadeLoansToFromOfficers
Tax Imposed Under IRC49110TaxImposedUnderIRC4911
Tax Imposed Under IRC49120TaxImposedUnderIRC4912
Tax Imposed Under IRC49550TaxImposedUnderIRC4955
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTrans
Amount Of Tax Imposed On Org Mgr0AmountOfTaxImposedOnOrgMgr
Amount Of Tax Reimbursed By Org0AmountOfTaxReimbursedByOrg
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTrans
States Where Copy Of Return Is FiledDCStatesWhereCopyOfReturnIsFiled

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

FieldValueIRS element (for citing)
Business Name Line1NATIONAL FABRY DISEASE FOUNDATIONBusinessNameLine1

Address US AddressUS

FieldValueIRS element (for citing)
Address Line14301 CONNECTICUT AVE NW STE 404AddressLine1
CityWASHINGTONCity
StateDCState
ZIP Code200087369ZIPCode
FieldValueIRS element (for citing)
Telephone Number8006519131TelephoneNumber
FieldValueIRS element (for citing)
Foreign Financial Account0ForeignFinancialAccount
Foreign Office0ForeignOffice
Maintain Any Donor Advised Funds0MaintainAnyDonorAdvisedFunds
Related Org Controlled Entity0RelatedOrgControlledEntity
Engage Political Cmpgn Activities0EngagePoliticalCmpgnActivities
Engage In Lobbying Activities0EngageInLobbyingActivities
Operating School0OperatingSchool
Trnsfrs Exempt Non Char Related Org0TrnsfrsExemptNonCharRelatedOrg
Part VI Of Comp Of Highest Paid EmplNONEPartVIOfCompOfHighestPaidEmpl
Part VIA Hghst Paid Cntrct Prof SerNONEPartVIAHghstPaidCntrctProfSer

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years50250CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years99000CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years39030CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year87314CurrentTaxYearMinus1Year
Current Tax Year164579CurrentTaxYear
Total440173Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years50250CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years99000CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years39030CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year87314CurrentTaxYearMinus1Year
Current Tax Year164579CurrentTaxYear
Total440173Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total394688AmountsSubstContributorsTotal
Public Support Total17045485PublicSupportTotal170
Total Support440173TotalSupport
First5 Years170XFirst5Years170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Transfer Prsnl Bnft Contracts Decl TransferPrsnlBnftContractsDecl

FieldValueIRS element (for citing)
DeclarationThe organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.Declaration

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