CHILDRENS TUMOR FOUNDATION: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization: CHILDRENS TUMOR FOUNDATION (EIN 13-2298956)
Tax period: 2011-01-01 to 2011-12-31
Filed: 2012-05-15
IRS object ID: 201211369349306081
Schema version: 2011v1.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule L
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2012-05-15T13:17:27-07:00	Timestamp
Tax Period End Date	2011-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	NE KELLY AND ASSOCIATES LLC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	59 TEMPLE PLACE SUITE 556	AddressLine1
City	BOSTON	City
State	MA	State
ZIP Code	021111307	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2011-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	132298956	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	The Childrens Tumor Foundation	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	CHIL	NameControl
Phone	2123446633	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	95 PINE STREET	AddressLine1
City	NEW YORK	City
State	NY	State
ZIP Code	10005	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	Stuart Match Suna	Name
Title	Chairperson	Title
Date Signed	2012-05-15	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	Nancy Kelly	Name
Phone	8573839363	Phone

Field	Value	IRS element (for citing)
Tax Year	2011	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	John McCarthy	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	c/o Organization	AddressLine1
City	New York	City
State	NY	State
ZIP Code	10005	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	10820786	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	www.ctf.org	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1978	YearFormation
State Legal Domicile	NY	StateLegalDomicile
Activity Or Mission Description	THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A) FUND RESEARCH B) INCREASE PUBLIC AWARENESS C) SUPPORT PATIENTS AND FAMILIES D) ENCOURAGE ESTABLISHMENT OF NF CLINICS.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	22	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	22	NbrIndependentVotingMembers
Total Nbr Employees	47	TotalNbrEmployees
Total Nbr Volunteers	1000	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	7508599	ContributionsGrantsPriorYear
Contributions Grants Current Year	9337715	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	81555	InvestmentIncomePriorYear
Investment Income Current Year	67827	InvestmentIncomeCurrentYear
Other Revenue Prior Year	63447	OtherRevenuePriorYear
Other Revenue Current Year	54072	OtherRevenueCurrentYear
Total Revenue Prior Year	7653601	TotalRevenuePriorYear
Total Revenue Current Year	9459614	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	2679813	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	3401857	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	1996951	SalariesEtcPriorYear
Salaries Etc Current Year	2169561	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	928667	TotalFundrsngExpCurrentYear
Other Expense Prior Year	2399365	OtherExpensePriorYear
Other Expenses Current Year	2577169	OtherExpensesCurrentYear
Total Expenses Prior Year	7076129	TotalExpensesPriorYear
Total Expenses Current Year	8148587	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	577472	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	1311027	RevenuesLessExpensesCY
Total Assets BOY	6597888	TotalAssetsBOY
Total Assets EOY	9102033	TotalAssetsEOY
Total Liabilities BOY	1690300	TotalLiabilitiesBOY
Total Liabilities EOY	2872603	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	4907588	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	6229430	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A) FUND RESEARCH B) INCREASE PUBLIC AWARENESS C) SUPPORT PATIENTS AND FAMILIES D) ENCOURAGE ESTABLISHMENT OF NF CLINICS.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	4369070	Expense
Grants	3223857	Grants
Description	OUR RESEARCH PROGRAM CONTINUES TO GROW IN BOTH TOTAL GRANTS AWARDED AND TYPES OF RESEARCH BEING FUNDED. CTF'S PRIMARY GRANT MECHANISMS INCLUDE: A) YOUNG INVESTIGATOR AWARDS WHICH PROVIDE UP TO 100K OF FUNDING OVER TWO YEARS TO STUDY IDEAS IN BASIC AND TRANSLATIONAL RESEARCH; B) DRUG DISCOVERY INITIATIVE TO PROVIDE SEED FUNDING (12-50K) TO TEST BOTH APPROVED DRUGS AND NOVEL COMPOUNDS IN VARIOUS NF MODELS- TO DATE, THIS PROGRAM HAS SEEDED APPROXIMATELY $700K OF PROJECTS WHICH HAS RESULTED IN OVER $4 MILLION OF FOLLOW-ON FUNDING; C) NF PRECLINICAL CONSORTIUM WAS EXPANDED FOR ANOTHER TWO YEARS TO SCREEN COMPOUNDS IN BOTH NF1 AND NF2 MOUSE MODELS FOR POTENTIAL USE IN CLINICAL TRIALS; D) CLINICAL RESEARCH AWARD PROGRAM TO FUND ANCILLARY STUDIES ASSOCIATED WITH CLINICAL TRIALS; E) SCHWANNOMATOSIS AWARD PROGRAM WHICH CTF IS THE LARGEST FUNDER IN THE WORLD FOR THIS THIRD TYPE OF NF.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	1756167	Expense
Description	PUBLIC EDUCATION AND PATIENT SUPPORT- MAJOR AREAS OF FOCUS INCLUDE: CONTINUED INVESTMENT IN UPDATING OUR FULL SERIES OF NF BROCHURES, INCLUDING VARIOUS TRANSLATIONS B) WEB SITE DESIGN AND UPDATES C) INCREASE USE OF BLOG AND SOCIAL MEDIA FOR OUTREACH AND SUPPORT D) QUARTERLY PRINT NEWSLETTER (30K DISTRIBUTION); E) REGIONAL SYMPOSIA AND PATIENT SUPPORT MEETINGS. F) INCREASED MEDIA COVERAGE OF NF, BOTH HUMAN INTEREST STORIES AND RESEARCH ADVANCES. G) HOSTED 15TH ANNUAL NF SUMMER CAMP FOR TEENS WITH NF. H) HOSTED 3rd ANNUAL NF FORUM IN MINNEAPOLIS.OVER 200 PATIENTS, FAMILIES AND CLINICIANS ATTENDED THIS NATIONAL MEETING TO PARTICIPATE IN RESEARCH PRESENTATIONS, PATIENT SUPPORT AND FOLLOWSHIP.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	178000	Expense
Grants	178000	Grants
Description	NF CLINIC PROGRAM- AS OF DECEMBER 31, 2011, 44 CLINICS WERE APPROVED BY OUR CLINICAL CARE ADVISORY BOARD AS NETWORK AFFILIATES. UPON ADMISSION, HOSPITALS MAY APPLY FOR GRANT FUNDING TO SUPPORT THE NEEDS AND ENHANCE THE SERVICES TO THE LOCAL NF COMMUNITY. IN 2011 WE MADE GRANTS TO 34 CLINICS AS PART OF THIS PROGRAM.	Description

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	144000	TotalOfOtherProgramServiceExp
Total Program Service Expense	6447237	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	true	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	true	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	true	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	true	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	8	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	47	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Form8886 T Filed	false	Form8886TFiled
Non Deductible Contributions	false	NonDeductibleContributions
Non Deductible Disclosure	false	NonDeductibleDisclosure
Quid Pro Quo Contributions	true	QuidProQuoContributions
Quid Pro Quo Disclosure	true	QuidProQuoDisclosure
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Form720 Filed	false	Form720Filed
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	22	NbrVotingGoverningBodyMembers
Number Independent Voting Members	22	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	false	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
Written Policy Or Procedure	false	WrittenPolicyOrProcedure
States Where Copy Of Return Is Filed	WY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TX	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ND	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ME	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	LA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ID	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	THE CORPORATION	NamePerson
Telephone Number	2123446633	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	95 PINE STREET	AddressLine1
City	NEW YORK	City
State	NY	State
ZIP Code	100053904	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (25 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer
JoAnne Pastel
Director	1.00	X	0	0	0
John Golfinos
Director	1.00	X	0	0	0
Daniel Graeff
Director	1.00	X	0	0	0
Tracy Galloway
Director	1.00	X	0	0	0
Aram Fuchs
Director	1.00	X	0	0	0
Rachel Tiven
Director	1.00	X	0	0	0
Tara Skirzenski
Director	1.00	X	0	0	0
Robert Schaffer
Director	1.00	X	0	0	0
Jason Pontin
Director	1.00	X	0	0	0
Steven McKenzie
Director	1.00	X	0	0	0
Dan Gilbert
Director	1.00	X	0	0	0
Mark Ebel
Director	1.00	X	0	0	0
Suzanne Earle
Director	1.00	X	0	0	0
John Catsimatidis
Director	1.00	X	0	0	0
Colin Bryar
Director	1.00	X	0	0	0
Nate Walker
Director	1.00	X	0	0	0
Bill Brooks
Director	1.00	X	0	0	0
Laura Bona Ganio
Director	1.00	X	0	0	0
Linda Martin
Secretary	1.00	X	0	0	0	X
John McCarthy
Treasurer	1.00	X	0	0	0	X
Daniel Altman
Vice Chair	1.00	X	0	0	0	X
Stuart Match Suna
Chairperson	1.00	X	0	0	0	X
Kim Hunter-Schaedle
Chief Science	40.00		190000	0	0	X
Thomas Malone
CFO	40.00		135000	0	0	X
George Orfanakos
Exec. Director	40.00		195000	0	0	X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	520000	TotalReportableCompFromOrg
Number Individuals GT100 K	3	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation

Name Of Contractor NameOfContractor

Name Business NameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	Patton Boggs LLP	BusinessNameLine1

Address Of Contractor AddressOfContractor

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	2550 M Street NW	AddressLine1
City	Washington	City
State	DC	State
ZIP Code	20037	ZIPCode

Field	Value	IRS element (for citing)
Description Of Services	Lobbying/ Advocacy	DescriptionOfServices
Compensation	144000	Compensation

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	1	NumberOfContractorsGT100K
Federated Campaigns	99454	FederatedCampaigns
Membership Dues	2930	MembershipDues
Fundraising Events	2958177	FundraisingEvents
Government Grants	40000	GovernmentGrants
All Other Contributions	6237154	AllOtherContributions
Noncash Contributions	90562	NoncashContributions
Total Contributions	9337715	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	90339	TotalRevenueColumn
Exclusion	$90,339	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	528929	Securities
Other	536963	Other

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	518755	Securities
Other	569649	Other

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	10174	Securities
Other	-32686	Other

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	-22512	TotalRevenueColumn
Exclusion	-$22,512	ExclusionAmount

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	272768	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	2958177	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	272768	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	Misc. Income	Description
Total Revenue Column	54072	TotalRevenueColumn
Exclusion	$54,072	ExclusionAmount

Field	Value	IRS element (for citing)
Total Other Revenue	54072	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	9459614	TotalRevenueColumn
Exclusion	$121,899	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	3329346	Total
Program Services	3329346	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	72511	Total
Program Services	72511	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	605104	Total
Program Services	321771	ProgramServices
Management And General	175010	ManagementAndGeneral
Fundraising	108323	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	1186856	Total
Program Services	783765	ProgramServices
Management And General	98971	ManagementAndGeneral
Fundraising	304120	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	38467	Total
Program Services	24747	ProgramServices
Management And General	5601	ManagementAndGeneral
Fundraising	8119	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	215138	Total
Program Services	137904	ProgramServices
Management And General	27705	ManagementAndGeneral
Fundraising	49529	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	123996	Total
Program Services	75624	ProgramServices
Management And General	18829	ManagementAndGeneral
Fundraising	29543	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	33732	Total
Management And General	33732	ManagementAndGeneral

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	17500	Total
Program Services	13510	ProgramServices
Management And General	3155	ManagementAndGeneral
Fundraising	835	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	144000	Total
Program Services	144000	ProgramServices

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	106389	Total
Program Services	58854	ProgramServices
Management And General	15689	ManagementAndGeneral
Fundraising	31846	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	217346	Total
Program Services	191240	ProgramServices
Management And General	24560	ManagementAndGeneral
Fundraising	1546	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	132204	Total
Program Services	104400	ProgramServices
Management And General	20585	ManagementAndGeneral
Fundraising	7219	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	241209	Total
Program Services	144799	ProgramServices
Management And General	38107	ManagementAndGeneral
Fundraising	58303	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	239473	Total
Program Services	175116	ProgramServices
Management And General	23759	ManagementAndGeneral
Fundraising	40598	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	491761	Total
Program Services	319403	ProgramServices
Management And General	50493	ManagementAndGeneral
Fundraising	121865	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	7809	Total
Program Services	6029	ProgramServices
Management And General	1390	ManagementAndGeneral
Fundraising	390	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	22596	Total
Program Services	17444	ProgramServices
Management And General	4022	ManagementAndGeneral
Fundraising	1130	Fundraising

Other Expenses OtherExpenses (5 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
Printing and Publications	96344	63242	3795	29307
Postage and Shipping	124685	56291	5207	63187
FOOD AND BEVERAGE	211476	173099	12814	25563
DUES AND OTHER FEES	123866	3842	117491	2533
APPAREL	88156	81996		6160

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	278623	Total
Program Services	148304	ProgramServices
Management And General	91768	ManagementAndGeneral
Fundraising	38551	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	8148587	Total
Program Services	6447237	ProgramServices
Management And General	772683	ManagementAndGeneral
Fundraising	928667	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	2632346	BOY
EOY	4709474	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
EOY	0	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	16915	BOY
EOY	11649	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
BOY	25315	BOY
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	209198	BOY
EOY	217136	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	182762	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	103564	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	84960	BOY
EOY	79198	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	3588531	BOY
EOY	4063953	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	40623	BOY
EOY	20623	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	6597888	BOY
EOY	9102033	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	72248	BOY
EOY	81570	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	1598052	BOY
EOY	2791033	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	20000	BOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	1690300	BOY
EOY	2872603	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	4365515	BOY
EOY	4786444	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	356197	BOY
EOY	1253060	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	185876	BOY
EOY	189926	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	4907588	BOY
EOY	6229430	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	6597888	BOY
EOY	9102033	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	1311027	ReconcilationRevenueExpenses
Reconcilation Other Changes	10815	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited
Audit Committee	true	AuditCommittee
Financial Statement Separate	X	FinancialStatementSeparate
Federal Grant Audit Required	false	FederalGrantAuditRequired
Federal Grant Audit Performed	false	FederalGrantAuditPerformed

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5309458	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	7002673	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	6289335	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	7508599	CurrentTaxYearMinus1Year
Current Tax Year	9337715	CurrentTaxYear
Total	35447780	Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

Field	Value	IRS element (for citing)
Total	0	Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5309458	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	7002673	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	6289335	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	7508599	CurrentTaxYearMinus1Year
Current Tax Year	9337715	CurrentTaxYear
Total	35447780	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	0	AmountsSubstContributorsTotal
Public Support Total170	35447780	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	127328	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	-597817	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	79312	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	81555	CurrentTaxYearMinus1Year
Current Tax Year	67827	CurrentTaxYear
Total	-241795	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	13922	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	10932	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	10735	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	63447	CurrentTaxYearMinus1Year
Current Tax Year	54072	CurrentTaxYear
Total	153108	Total

Field	Value	IRS element (for citing)
Total Support	35359093	TotalSupport
Public Support Pertcentage170	1.00000	PublicSupportPertcentage170
Public Support Pertcent Prior Year	1.00000	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Form4720 Filed4955 Tax	false	Form4720Filed4955Tax
Correction Made	false	CorrectionMade
Volunteers	true	Volunteers
Paid Staff Or Management	true	PaidStaffOrManagement
Media Advertisements	false	MediaAdvertisements
Mailings Members	true	MailingsMembers
Publications Or Broadcast	false	PublicationsOrBroadcast
Grants Other Organizations	false	GrantsOtherOrganizations
Direct Contact Legislators	true	DirectContactLegislators
Direct Contact Legislators	$144,000	DirectContactLegislatorsAmount
Rallies Demonstrations	false	RalliesDemonstrations
Other Activities	false	OtherActivities
Total Lobbying Expenditures IIB	144000	TotalLobbyingExpendituresIIB
Not Described In501c3	false	NotDescribedIn501c3
Form4720 Filed4912 Tax	false	Form4720Filed4912Tax

Schedule D IRS990ScheduleD

Current Year CurrentYear

Field	Value	IRS element (for citing)
Beginning Of Year Balance	185876	BeginningOfYearBalance
Investment Earnings Or Losses	4050	InvestmentEarningsOrLosses
End Of Year Balance	189926	EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

Field	Value	IRS element (for citing)
Beginning Of Year Balance	182534	BeginningOfYearBalance
Investment Earnings Or Losses	3342	InvestmentEarningsOrLosses
End Of Year Balance	185876	EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	179809	BeginningOfYearBalance
Investment Earnings Or Losses	2725	InvestmentEarningsOrLosses
End Of Year Balance	182534	EndOfYearBalance

Field	Value	IRS element (for citing)
Endowments Held By Unrelated Orgs	false	EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs	false	EndowmentsHeldByRelatedOrgs
Are Related Orgs Listed Schedule R	false	AreRelatedOrgsListedScheduleR

Land Land

Field	Value	IRS element (for citing)
Investment Cost Or Other Basis	62500	InvestmentCostOrOtherBasis
Book Value	62500	BookValue

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	71264	OtherCostOrOtherBasis
Depreciation	68741	Depreciation
Book Value	2523	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	42498	OtherCostOrOtherBasis
Depreciation	32502	Depreciation
Book Value	9996	BookValue

Other Land Buildings OtherLandBuildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	6500	OtherCostOrOtherBasis
Depreciation	2321	Depreciation
Book Value	4179	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	79198	TotalOfBookValueLandBuildings
Total Revenue	9459614	TotalRevenue
Total Expenses	8148587	TotalExpenses
Excess Or Deficit For Year	1311027	ExcessOrDeficitForYear
Net Unrealized GL On Investments	10815	NetUnrealizedGLOnInvestments
Total Adjustments	10815	TotalAdjustments
Excess Or Deficit Per FS	1321842	ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt	9470429	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	10815	NetUnrealizedGainsInvestments
Revenue Not Rptd F990	10815	RevenueNotRptdF990
Revenue Subtotal	9459614	RevenueSubtotal
Total Revenue Per Form990	9459614	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	8148587	TotExpensesEtcAuditedFinclStmt
Expenses Subtotal	8148587	ExpensesSubtotal
Total Expenses Per Form990	8148587	TotalExpensesPerForm990

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Grants To Orgs Outside US GrantsToOrgsOutsideUS (3 entries)

RegionRegion	Purpose Of GrantPurposeOfGrant	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement	Description Of Non Cash AssistanceDescriptionOfNonCashAssistance	Method Of ValuationMethodOfValuation
England	YIA	25000	Wire	n/a	n/a
Canada	DDI	15000	Wire	n/a	n/a
Australia	YIA	25000	Wire	n/a	n/a

Field	Value	IRS element (for citing)
Total Number Of Other Orgs	3	TotalNumberOfOtherOrgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Agreement Ref Fundraising	false	AgreementRefFundraising

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	Various Events	NameOfEvent1
Gross Receipts Event1	3230945	GrossReceiptsEvent1
Charitable Contributions Event1	2958177	CharitableContributionsEvent1
Gross Revenue Event1	272768	GrossRevenueEvent1
Other Direct Expenses Event1	272768	OtherDirectExpensesEvent1
Gross Receipts Total	3230945	GrossReceiptsTotal
Charitable Contributions Total	2958177	CharitableContributionsTotal
Gross Revenue Total Events	272768	GrossRevenueTotalEvents
Other Direct Expenses Total Events	272768	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	272768	DirectExpenseSummaryEvents

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (29 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant
Washington University
700 Rosedale Ave Box 1034	St Louis	MO	63112	061043412	63000	0	Clinic Network
University of Utah
2C 412 Som	Salt Lake City	UT	84132	876000525	23500	0	Clinic Network
University of Minnesota
450 McNamara Alumni Center	Minneapolis	MN	55455	416007513	50600	0	Drug Discovery
University of Central Florida
6900 Lake Nona Boulevard	Orlando	FL	32827	592924021	29000	0	Young Investigator
University of Alabama
1530 3rd Ave South AB 990	Birmingham	AL	35294	636005396	69226	0	Young Investigator
Trustees of Indiana Uni
PO Box 66057	Indianapolis	IN	46266	356001673	100000	0	Clinic Network
The Wistar Institute
3601 Spruce Street	Philadelphia	PA	19104	236434390	39146	0	Young Investigator
The University of Iowa
B5 Jessup Hall	Iowa City	IA	52242	426004833	53500	0	Drug Discovery
Regents of Uni of Minnesota
PO Box 1450 NW 5957	Minneapolis	MN	55485	416007513	14000	0	Young Investigator
Regents of the University of CA
1855 Folsom St	San Francisco	CA	94103	946036493	159500	0	Preclinical Consortium
NYU Medical Ctr
530 1st Ave	New York	NY	10016	135562308	99487	0	Clinic Research
Mount Sinai School
One Gustave L Levey Pl	New York	NY	10029	136171197	35000	0	Young Investigator
Memorial Sloan-Kettering Cancer
1275 York Avenue	New York	NY	10065	131924236	36164	0	Young Investigator
Mayo Clinic Rochester
200 First St SW	Rochester	NY	55905	416011702	27000	0	Clinic Network
MA General Hospital
101 Huntington Ave	Boston	MA	02114	041564655	59600	0	Drug Discovery
Johns Hopkins University
725 N Wolfe StMeyer 5-181	Baltimore	MD	21287	237424444	51264	0	Clinic Network
Indiana University
PO Box 66057	Indianapolis	IN	46266	356001673	148958	0	Clinical Research
House Ear Institute
2100 West Third Street	Los Angeles	CA	90057	952127707	104889	0	Preclinical Consortium
Genetic Alliance
4301 Connecticut Ave NW	Washington	DC	20008	680573511	10000	0	Biobank
General Hospital Corporation
PO Box 414876	Boston	MA	02241	426979833	105750	0	YIA
Fox Chase Cancer Center
333 Cottman Avenue	Philadelphia	PA	19111	232003072	37500	0	Preclinical Consortium
Duke University
2200 W Main Street	Durham	NC	27705	560532129	26193	0	Young Investigator
Childrens Hospital of Phila
34th St Civic Center Blvd	Philadelphia	PA	19104	231352166	6000	0	Clinic Network
Childrens Hospital LA
4650 Sunset Blvd Mailstop	Los Angeles	CA	90027	951690977	23500	0	Clinic Network, Biobank
Childrens Hospital
1 Autumn Street 731	Boston	MA	02115	042774441	100000	0	Clinical Research
Children National Ctr
111 Michigan Ave	Washington	DC	20010	521640403	95823	0	Clinic Network
CCHMC
3333 Burnet Avenue ML7013	Cincinnati	OH	45229	310833936	163000	0	Preclinical Consortium
BWH
77 Avenue Louis Pasteur	Boston	MA	02115	042312909	290728	0	Meeting, Preclinical consortium
Beckman Research Institute
1500 E Duarte Road	Duarte	CA	91010	953432210	15000	0	Drug Discovery

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	27	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	2	TotalNbrOfOtherOrganizations

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	X	CompensationCommittee
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	false	SeverancePayment
Supplemental Nonqual Retire Plan	false	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	false	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException
Rebuttable Presumption Procedure	false	RebuttablePresumptionProcedure

Form990 Schedule J Part II Form990ScheduleJPartII (2 entries)

Base Compensation Filing OrgBaseCompensationFilingOrg	Total Compensation Filing OrgTotalCompensationFilingOrg
Kim Hunter-Schaedle
190000	190000
George Orfanakos
195000	195000

Schedule L IRS990ScheduleL

Form990 Schedule L Part IV Form990ScheduleLPartIV

Name Of Interested Person NameOfInterestedPerson

Field	Value	IRS element (for citing)
Name Person	Steve Kendra	NamePerson

Field	Value	IRS element (for citing)
Relationship	Former EE.	Relationship
Amount Of Transaction	14172	AmountOfTransaction
Description Of Transaction	Use of office & storage	DescriptionOfTransaction
Sharing Of Revenues	false	SharingOfRevenues

Schedule M IRS990ScheduleM

Other Non Cash Contributions Table OtherNonCashContributionsTable

Field	Value	IRS element (for citing)
Description	Fundraising	Description
Number Of Contributions	227	NumberOfContributions
Noncash Contribs Rptd F990	90562	NoncashContribsRptdF990
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenues

Field	Value	IRS element (for citing)
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts	true	ReviewProcessUnusualNCGifts
Third Parties Used	false	ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (4 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	All document are available upon request within the prescribed time frames as required.
Form 990, Part VI, Line 15b	Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees	The Organization's key employees are reviewed for performance on an annual basis. Compensation for these positions are reviewed and approved by the Board's Personnel Committee. Compensation is determined using currently available salary data for non-profits of similar size and mission in the New York City area.
Form 990, Part VI, Line 11	Form 990, Part VI, Line 11: Form 990 Review Process	The 990 along with the audited financial statements are reviewed in a formal meeting by the Organization's Fiscal Affairs Committee. This Committee makes a formal vote and acceptance of the 990 prior to submission.
Form 990, Part III, Line 4d	Form 990, Part III, Line 4d : Other Program Services Description	OTHER PROGRAM SERVICES 4: ADVOCACY: WE ARE THE LARGEST NON-GOVERNMENT FUNDING SOURCE OF NF RESEARCH. OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. WE ENGAGE A LAW FIRM TO ASSIST US IN OUR LOBBYING FOR CONTINUED FEDERAL FUNDING OF NF RESEARCH, AND WORK WITH OUR VOLUNTEERS ON AN ACTIVE ADVOCACY CAMPAIGN THAT INCLUDES LETTER WRITING, PHONE CALLS AND VISITS TO LEGISLATORS DISTRICT AND WASHINGTON DC OFFICES.