SAVING TINY HEARTS SOCIETY: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization
SAVING TINY HEARTS SOCIETY (EIN 20-5505536)
Tax period
2011-01-01 to 2011-12-31
Filed
2012-06-21
IRS object ID
201201739349300400
Schema version
2011v1.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2012-06-21T05:56:06-07:00Timestamp
Tax Period End Date2011-12-31TaxPeriodEndDate
Return Type990ReturnType
Tax Period Begin Date2011-01-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN205505536EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1SAVING TINY HEARTS SOCIETYBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlSAVINameControl
Phone7733739007Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 1058AddressLine1
CityDEERFIELDCity
StateILState
ZIP Code60015ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameFRANCIE PAULName
TitlePresidentTitle
Date Signed2012-06-21DateSigned
FieldValueIRS element (for citing)
Tax Year2011TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Gross Receipts389377GrossReceipts
Group Return For AffiliatesfalseGroupReturnForAffiliates
All Affiliates IncludedfalseAllAffiliatesIncluded
Organization501c3XOrganization501c3
Web SiteSAVINGTINYHEARTS.ORGWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation2007YearFormation
State Legal DomicileILStateLegalDomicile
Activity Or Mission DescriptionTo raise money for grossly under-funded, lifesaving grass roots research of congenital heart defects (CHD's). This seed funding acts as a bridge for this research to millions of dollars of extramural funding from the National Institute of Health (NIH) or other outside funding. CHD's are Americas #1 birth defect affecting over 40,000 babies every year!ActivityOrMissionDescription
Nbr Voting Members Governing Body10NbrVotingMembersGoverningBody
Nbr Independent Voting Members10NbrIndependentVotingMembers
Total Nbr Employees0TotalNbrEmployees
Total Gross UBI0TotalGrossUBI
Contributions Grants Prior Year190507ContributionsGrantsPriorYear
Contributions Grants Current Year266750ContributionsGrantsCurrentYear
Program Service Revenue CY0ProgramServiceRevenueCY
Investment Income Current Year830InvestmentIncomeCurrentYear
Other Revenue Prior Year53395OtherRevenuePriorYear
Other Revenue Current Year72925OtherRevenueCurrentYear
Total Revenue Prior Year243902TotalRevenuePriorYear
Total Revenue Current Year340505TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year70000GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY508156GrantsAndSimilarAmntsCY
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Current Year0SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year17205TotalFundrsngExpCurrentYear
Other Expense Prior Year12913OtherExpensePriorYear
Other Expenses Current Year22436OtherExpensesCurrentYear
Total Expenses Prior Year82913TotalExpensesPriorYear
Total Expenses Current Year530592TotalExpensesCurrentYear
Revenues Less Expenses Prior Year160989RevenuesLessExpensesPriorYear
Revenues Less Expenses CY-190087RevenuesLessExpensesCY
Total Assets BOY343879TotalAssetsBOY
Total Assets EOY153792TotalAssetsEOY
Total Liabilities EOY0TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY343879NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY153792NetAssetsOrFundBalancesEOY
Info In Schedule O Part IIIXInfoInScheduleOPartIII
Mission DescriptionTo raise money for grossly under-funded, lifesaving grass roots research of congenital heart defects (CHD's). This seed funding acts as a bridge for this research to millions of dollars of extramural funding from the National Institute of Health (NIH) or other outside funding. CHD's are Americas #1 birth defect affecting over 40,000 babies every year!MissionDescription
Significant New Program ServicesfalseSignificantNewProgramServices
Significant ChangefalseSignificantChange
Expense100293Expense
Grants100000Grants
DescriptionTHE STUDY OF UNBALANCE ATRIOVENTRICULAR SEPTAL DEFECT: A CHSS INCEPTION COHORT STUDY-We hypothesize that diagnostic criteria used to identify uAVSD (Unbalanced atrioventricular septal defect) are varied and inconsistent, and that this inconsistency results in inappropriate treatment decisions, which incurs suboptimal outcomes for patients with uAVSD. We further hypothesize that atrioventricular valve index (AVVI) will consistently delineate uAVSD from balanced forms of AVSD and that are other echocardiographic features that are important determinants of outcome as well. The principle aim of the study, therefore, is to define anatomic criteria which, when applied, result in optimal treatment outcomes for each patient with uAVSD resulting in improved survival and diminished need for reintervention. Additional study aims include defining other important clinical factors, such as patient demographics, coexisting conditions, and chromosomal abnormalities, which impact outcomes and thus may affect treatment strategy. MORE STUDY INFORMATION IS AVAILABLE AT WWW.SAVINGTINYHEARTS.ORG/RESEARCH/AWARDS/SEPTALDEFECT.HTMLDescription

Activity2 Activity2

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Expense99382Expense
Grants99090Grants
DescriptionFETAL & POSTNATAL EFFECTS OF HYPOXIA: This research will determine if there are factors which put infants with complex CHD at increased risk for brain injury due to abnormalities in blood flow to the brain that occur in the womb as a result of congenital heart disease (CHD). This study will show whether brain abnormalities identified at birth by magnetic resonance imaging (MRI) are related to blood flow alterations in the womb, and whether brain abnormalities found at birth are worsened by low brain oxygen levels that occur before, during, and after heart surgery.The specific aims of this study will be to show that abnormalities in blood flow in the brain assessed by ultrasound in fetuses with complex CHD are associated with abnormal brain findings on MRI obtained in the newborn period prior to surgery, and that sustained low oxygen levels in the brain measured in newborns using near infra-red spectroscopy (NIRS) monitoring before, during, and after repair of CHD, are associated with new or worsened findings on brain MRI obtained after surgery. A secondary aim will be to show that blood flow in the brain assessed by ultrasound in fetuses with complex CHD and preoperative brain abnormalities suggestive of delayed brain maturity will be associated with an increased frequency and/or severity of postoperative brain abnormalities shown to be associated with decreased brain oxygen levels. ADDITIONAL STUDY INFORMATION IS AVAILABLE AT WWW.SAVINGTINYHEARTS.ORG/AWARDS/HYPOXIA.HTMLDescription

Activity3 Activity3

FieldValueIRS element (for citing)
Expense96293Expense
Grants96000Grants
DescriptionDEFINING NEW PARADIGMS FOR ARRHYTHMIA AND SUDDEN CARDIAC DEATH IN CHILDREN: Human ANK2 mutations result in severe cardiac electrical and structural abnormalities (e.g. potentially fatal ventricular arrhythmias) in children and young adults. Despite the clear link between human ANK2 mutations and potentially fatal cardiac phenotypes in children, essentially nothing is known regarding 1) how human ANK2 mutations affecting ankyrin-B function cause severe structural and electrical dysfunction in the developing heart, or 2) how ankyrin-B expression is regulated in humans. The proposed research will combine a host of synergistic approaches and a newly generated animal model of ankyrin-B (ANK2) deficiency to define the cause of fatal congenital cardiac phenotypes in children with ankyrin-B mutations. We anticipate that the new information gained through the Saving Tiny Hearts Foundation will deliver critical new insight into our understanding of potentially fatal cardiac arrhythmia in children, as well as provide a necessary first step for developing improved diagnostics, as well as therapies for regulating cardiac function in common forms of pediatric heart disease.Description
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Total Of Other Program Service Grnt133359TotalOfOtherProgramServiceGrnt
Total Program Service Expense509913TotalProgramServiceExpense
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Number Forms Transmitted With10960NumberFormsTransmittedWith1096
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Name PersonBRIDGET ZOCHERNamePerson
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Form990 Part VII Section A Form990PartVIISectionA (10 entries)

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STEVEN EISEN
Director1.00X000
JAMES CONZEMIUS
Director1.00X000
TEGWEN CONZEMIUS
Director1.00X000
PATRICK BROPHY
Director1.00X000
LAWRENCE KLUGE
Director0.00X000
LEE GUTHMAN
Director1.00X000
AMY BROPHY
Secretary0.00X000
BRIDGET ZOCHER
Treasurer2.00X000
BRIAN PAUL
Secretary2.00X000
FRANCIE PAUL
President1.50X000
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Schedule A IRS990ScheduleA

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Current Tax Year Minus3 Years70053CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years67055CurrentTaxYearMinus2Years
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Schedule B IRS990ScheduleB

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Schedule F IRS990ScheduleF

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Accts Actvs Out US Table AcctsActvsOutUSTable

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FieldValueIRS element (for citing)
Total Number Of501c3 Orgs1TotalNumberOf501c3Orgs
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Interest In Foreign TrustfalseInterestInForeignTrust
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Form990 Schedule F Part V Form990ScheduleFPartV

FieldValueIRS element (for citing)
IdentifierGrantmaker's Description of How Grants are Used in Foreign CountryIdentifier
ExplanationALL GRANTS ARE AWARDED BY THE MEDICAL ADVISORY BOARD. THE MEDICAL ADVISORY BOARD IS COMPRISED OF AN ELITE GROUP OF WORLD RENOWNED CARDOTHORACIC SURGEONS AND CARDIOLOGISTS. THE GROUP'S MEMBERS COME FROM NEW YORK, WASHINGTON, CHICAGO, OHIO, MASSACHUSETTES, UTAH, CANADA...PROGRESS REPORTS ARE A REQUIREMENT OF ANY GRANT ACCEPTANCE. THE MEDICAL ADVISORY BOARD REVIEWS THESE REPORTS BIANNUALLY. A LIST OF the medical BOARD MEMBERS is available ON THE SOCIETY'S WEB SITE.Explanation

Schedule G IRS990ScheduleG

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Events Information EventsInformation

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Gross Receipts Event1140500GrossReceiptsEvent1
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Name Of Event2ANNUAL GALA EVENTNameOfEvent2
Gross Receipts Event2121797GrossReceiptsEvent2
Gross Revenue Event2121797GrossRevenueEvent2
Food And Beverage Event232480FoodAndBeverageEvent2
Other Direct Expenses Event216392OtherDirectExpensesEvent2
Gross Receipts Total262297GrossReceiptsTotal
Charitable Contributions Total140500CharitableContributionsTotal
Gross Revenue Total Events121797GrossRevenueTotalEvents
Food And Beverage Total Events32480FoodAndBeverageTotalEvents
Other Direct Expenses Total Events16392OtherDirectExpensesTotalEvents
Direct Expense Summary Events48872DirectExpenseSummaryEvents
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Schedule I IRS990ScheduleI

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Records MaintainedtrueRecordsMaintained

Recipient Table RecipientTable (5 entries)

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WASHINGTON UNIVERSITY
660 S EUCLID AVEST LOUISMO63110430653611650660PATHOGENESIS OF HLHS
THE OHIO STATE UNIVERSITY
370 WEST 9TH AVECOLUMBUSOH43201316025986960000PARADIGMS INFANT CARDIAC DEATHS115
CHILDS HOSP & CLINICS OF MN
2525 CHICAGO AVE SMINNEAPOLISMN554044117542761000000UN ATRIOVENTRICULAR SEPTAL DEFECT
CHILDRENS NATNL MEDICAL CNTR
111 MICHIGAN AVE NORTHWESTWASHINGTONDC20010530196580990900EFFECTS OF HYPOXIA ON NEURO OUTCOME
CHILDRENS HOSP OF PHILADELPH
37TH ST AND CIVIC CENTER BLVDPHILADELPHIAPA19104231352166680000BRAIN ATLAS CREATION FOR CRH INFANT
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants4TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations1TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierGrantmaker's Description of How Grants are UsedIdentifier
ExplanationALL GRANTS ARE AWARDED BY THE MEDICAL ADVISORY BOARD. THE MEDICAL ADVISORY BOARD IS COMPRISED OF AN ELITE GROUP OF WORLD RENOWNED CARDOTHORACIC SURGEONS AND CARDIOLOGISTS. THE GROUP'S MEMBERS COME FROM NEW YORK, WASHINGTON, CHICAGO, OHIO, MASSACHUSETTES, UTAH, CANADA...PROGRESS REPORTS ARE A REQUIREMENT OF ANY GRANT ACCEPTANCE. THE MEDICAL ADVISORY BOARD REVIEWS THESE REPORTS BIANNUALLY. A LIST OF the medical BOARD MEMBERS is available ON THE SOCIETY'S WEB SITE.Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (4 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Form 990, Part VI, Line 19Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableNOTIFICATION VIA EMAIL TO SOCIETY. EMAIL ADDRESS PROMINANTLY DISPLAYED ON SAVING TINY HEARTS SOCIETY WEBSITE UNDER EITHER GET INVOLVED LINK OR ABOUT US LINK VIA EMAIL TO ANY OF THE BOARD OF DIRECTOR'S MEMBERS.
Form 990, Part VI, Line 11Form 990, Part VI, Line 11: Form 990 Review ProcessCPA invited to a board meeting to review form 990.
Form 990, Part VI, Line 2Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, EtSEVERAL MARRIED COUPLES SERVE AS DIRECTORS. ALL MARRIED COUPLES SHARE A LAST NAME AND ARE EASILY IDENTIFIABLE.
Form 990, Part III, Line 4dForm 990, Part III, Line 4d : Other Program Services DescriptionOTHER PROGRAM SERVICES 4: OTHER PROGRAM SERVICES 5: OTHER PROGRAM SERVICES 6: AN INTERNATIONAL COLLABORATION TO CREATE A BRAIN MRI ATLAS FOR INFANTS WITH CONGENITAL HEART DEFECTS: 10,000 INFANTS ANNUALLY REQUIRE IMMEDIATE SURGICAL INTERVENTION. 50% of survivors suffer significant learning disability and behavior disorders. Brain injury both before and after infant heart surgery is common and is the subject of investigation at several institutions worldwide. Unfortunately the generalization of study findings from each center is hampered by a lack of a consensus injury classification system and the lack of a common framework to effectively compare data on brain maturation and injury prevalence. Now, through a large multicenter collaboration, a number of leading investigators have committed to contributing all of their existing pre-operative infant brain MRIs that were acquired as part of a study protocol. the investigators plan to develop a pre-operative brain MRI template that is specific to this population of infants with CHD. Such a template would provide the scaffolding upon which consensus definitions of pre-operative injury could be reached. Further, this atlas would allow further study on regional brain volumes, brain maturation and injury localization/severity. FOR MORE INFORMATION GO TO WWW.SAVINGTINYHEARTS.ORG/RESEARCH/AWARDS/BRAINMRI.HTML.

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