AMYOTROPHIC LATERAL SCLEROSIS MN: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- AMYOTROPHIC LATERAL SCLEROSIS MN (EIN 41-1756085)
- Tax period
- 2012-02-01 to 2013-01-31
- Filed
- 2013-08-09
- IRS object ID
- 201342219349300449
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-08-09T11:27:42-05:00 | Timestamp |
| Tax Period End Date | 2013-01-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 410887288 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BOULAY HEUTMAKER ZIBELL & CO PLLP | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7500 FLYING CLOUD DRIVE 800 | AddressLine1 |
| City | MINNEAPOLIS | City |
| State | MN | State |
| ZIP Code | 55344 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-02-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 411756085 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ALS ASSOCIATION MINNESOTA | BusinessNameLine1 |
| Business Name Line2 | NORTH DAKOTA SOUTH DAKOTA CHAPTER | BusinessNameLine2 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | AMYO | NameControl |
| Phone | 6126720484 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 NORTH WASHINGTON AVE NO 105 | AddressLine1 |
| City | MINNEAPOLIS | City |
| State | MN | State |
| ZIP Code | 55401 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | JENNIFER HJELLE | Name |
| Title | EXECUTIVE DIRECTOR | Title |
| Phone | 6126720484 | Phone |
| Date Signed | 2013-08-08 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | MARK J DENUCCI | Name |
| PTIN | P00185624 | PTIN |
| Phone | 9528939320 | Phone |
| Date Prepared | 2013-08-08 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
Doing Business As DoingBusinessAs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALS ASSOCIATION MNNDSD CHAPTER | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | JENNIFER HJELLE | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 NORTH WASHINGTON AVE NO 105 | AddressLine1 |
| City | MINNEAPOLIS | City |
| State | MN | State |
| ZIP Code | 55401 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 3968515 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Group Exemption Number | 4119 | GroupExemptionNumber |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.ALSMN.ORG | WebSite |
| Type Of Organization Association | X | TypeOfOrganizationAssociation |
| Year Formation | 1993 | YearFormation |
| State Legal Domicile | MN | StateLegalDomicile |
| Activity Or Mission Description | TO PROVIDE INFORMATION AND ASSISTANCE TO ALS PATIENTS AND THEIR FAMILIES. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 18 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 18 | NbrIndependentVotingMembers |
| Total Nbr Employees | 19 | TotalNbrEmployees |
| Total Nbr Volunteers | 1054 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 2768735 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 3541596 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 0 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 0 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 5492 | InvestmentIncomePriorYear |
| Investment Income Current Year | 2288 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 39804 | OtherRevenuePriorYear |
| Other Revenue Current Year | 113967 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 2814031 | TotalRevenuePriorYear |
| Total Revenue Current Year | 3657851 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 0 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 0 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 983068 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 1051942 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 9019 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 414175 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 2027807 | OtherExpensePriorYear |
| Other Expenses Current Year | 2039183 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 3010875 | TotalExpensesPriorYear |
| Total Expenses Current Year | 3100144 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -196844 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 557707 | RevenuesLessExpensesCY |
| Total Assets BOY | 1868438 | TotalAssetsBOY |
| Total Assets EOY | 2046345 | TotalAssetsEOY |
| Total Liabilities BOY | 711553 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 331753 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 1156885 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 1714592 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part III | X | InfoInScheduleOPartIII |
| Mission Description | UNTIL THERE IS A CURE, EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT, WHILE CONTRIBUTING TO THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND ADVOCACY. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 2111940 | Expense |
| Description | PATIENT AND COMMUNITY SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PATIENT PROGRAMS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 253998 | Expense |
| Revenue | 0 | Revenue |
| Description | PUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH VARIOUS MAILINGS THROUGHOUT THE YEAR. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 83638 | Expense |
| Revenue | 0 | Revenue |
| Description | RESEARCH: THE ALS ASSOCIATION, MINNESOTA, NORTH DAKOTA, SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. THE ALS ASSOCIATION HAS INVESTED $76 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 20 YEARS THE MINNESOTA, NORTH DAKOTA, SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $2.5 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. THE ASSOCIATION IS CURRENTLY OVERSEEING APPROXIMATELY 90 DIFFERENT RESEARCH PROJECTS COVERING EVERY HYPOTHESIS THAT NOW EXISTS ABOUT THE PATHOGENESIS OF THIS DISEASE. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 2449576 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 0 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 1 | LobbyingActivities |
| Subject To Proxy Tax | 0 | SubjectToProxyTax |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 1 | ReportOtherLiabilities |
| Report Fin48 Footnote | 1 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 0 | ForeignActivities |
| More Than5000 K To Organizations | 0 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 1 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 1 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 0 | GrantsToOrganizations |
| Grants To Individuals | 0 | GrantsToIndividuals |
| Schedule J Required | 0 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 0 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 1 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 14 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 19 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 1 | NonDeductibleContributions |
| Non Deductible Disclosure | 1 | NonDeductibleDisclosure |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 18 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 18 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 0 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 0 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 0 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 1 | LocalChapters |
| Policies Reference Chapters | 1 | PoliciesReferenceChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 1 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | MN | StatesWhereCopyOfReturnIsFiled |
| Other Website | X | OtherWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | JENNIFER HJELLE | NamePerson |
| Telephone Number | 6126720484 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 WASHINGTON AVE N STE 105 | AddressLine1 |
| City | MINNEAPOLIS | City |
| State | MN | State |
| ZIP Code | 55401 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | X | NoListedPersonsCompensated |
Form990 Part VII Section A Form990PartVIISectionA (19 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| AMY BRACHIO | ||||||
| PRESIDENT | 2.00 | X | X | 0 | 0 | 0 |
| JOE DRISCOLL | ||||||
| VICE PRESIDENT | 2.00 | X | X | 0 | 0 | 0 |
| PHILIP ALBERT | ||||||
| TREASURER | 2.00 | X | X | 0 | 0 | 0 |
| AUSTIN CAVES | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| KAREN DAHLEN | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| MICHELLE DOVE | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| ROCCO DRAGONETTI | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| DALE FREKING | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| SCOTT KIRKLAND | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| DAVID KOLQUIST NON-VOTING | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| DAVID LAMM | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| BILL MCCARTHY | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| MARY SUE OHLHAUSER | ||||||
| SECRETARY | 2.00 | X | X | 0 | 0 | 0 |
| BRENDA OLSON | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| MOJDEH POUL | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| KIRK PUMPHREY | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| MIKE RALSTON | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| GAYLE SIT | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| HOWARD ZACK | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 0 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 0 | TotalOtherCompensation |
| Number Individuals GT100 K | 0 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 0 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
| Number Of Contractors GT100 K | 0 | NumberOfContractorsGT100K |
| Fundraising Events | 2132915 | FundraisingEvents |
| All Other Contributions | 1408681 | AllOtherContributions |
| Noncash Contributions | 745425 | NoncashContributions |
| Total Contributions | 3541596 | TotalContributions |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 2288 | TotalRevenueColumn |
| Exclusion | $2,288 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 290579 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 2132915 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 306320 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -15741 | TotalRevenueColumn |
| Exclusion | -$15,741 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Gaming | 134052 | GrossIncomeGaming |
| Gaming Direct Expenses | 4344 | GamingDirectExpenses |
Net Income From Gaming NetIncomeFromGaming
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 129708 | TotalRevenueColumn |
| Exclusion | $129,708 | ExclusionAmount |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 3657851 | TotalRevenueColumn |
| Related Or Exempt Function Income | 0 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | $116,255 | ExclusionAmount |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 871369 | Total |
| Program Services | 519466 | ProgramServices |
| Management And General | 105549 | ManagementAndGeneral |
| Fundraising | 246354 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25995 | Total |
| Program Services | 15497 | ProgramServices |
| Management And General | 3149 | ManagementAndGeneral |
| Fundraising | 7349 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 75167 | Total |
| Program Services | 44811 | ProgramServices |
| Management And General | 9105 | ManagementAndGeneral |
| Fundraising | 21251 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 79411 | Total |
| Program Services | 47341 | ProgramServices |
| Management And General | 9619 | ManagementAndGeneral |
| Fundraising | 22451 | Fundraising |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25881 | Total |
| Program Services | 9679 | ProgramServices |
| Management And General | 16202 | ManagementAndGeneral |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 9019 | Total |
| Fundraising | 9019 | Fundraising |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 19792 | Total |
| Program Services | 7193 | ProgramServices |
| Management And General | 12599 | ManagementAndGeneral |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2652 | Total |
| Fundraising | 2652 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6153 | Total |
| Program Services | 4480 | ProgramServices |
| Management And General | 910 | ManagementAndGeneral |
| Fundraising | 763 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 97323 | Total |
| Program Services | 58019 | ProgramServices |
| Management And General | 11789 | ManagementAndGeneral |
| Fundraising | 27515 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 41223 | Total |
| Program Services | 19965 | ProgramServices |
| Management And General | 1669 | ManagementAndGeneral |
| Fundraising | 19589 | Fundraising |
Payments To Affiliates PaymentsToAffiliates
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 325440 | Total |
| Program Services | 259701 | ProgramServices |
| Management And General | 27662 | ManagementAndGeneral |
| Fundraising | 38077 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 630042 | Total |
| Program Services | 621030 | ProgramServices |
| Management And General | 4506 | ManagementAndGeneral |
| Fundraising | 4506 | Fundraising |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral |
|---|---|---|---|
| HRBEK SING PROGRAM | 305514 | 305514 | |
| RESPITE CARE | 258602 | 258602 | |
| LOAN CLOSET EQUIPMENT | 217286 | 217286 | |
| BANK CHARGES | 27073 | 27073 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 82202 | Total |
| Program Services | 60992 | ProgramServices |
| Management And General | 6561 | ManagementAndGeneral |
| Fundraising | 14649 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 3100144 | Total |
| Program Services | 2449576 | ProgramServices |
| Management And General | 236393 | ManagementAndGeneral |
| Fundraising | 414175 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 83151 | BOY |
| EOY | 181836 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 738144 | BOY |
| EOY | 806789 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 73512 | BOY |
| EOY | 49289 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2837 | BOY |
| EOY | 15325 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 2778620 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 1789531 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 965660 | BOY |
| EOY | 989089 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5134 | BOY |
| EOY | 4017 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1868438 | BOY |
| EOY | 2046345 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 94052 | BOY |
| EOY | 131235 | EOY |
Deferred Revenue DeferredRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 472210 | BOY |
| EOY | 28390 | EOY |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 145291 | BOY |
| EOY | 172128 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 711553 | BOY |
| EOY | 331753 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1060003 | BOY |
| EOY | 1665303 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 96882 | BOY |
| EOY | 49289 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1156885 | BOY |
| EOY | 1714592 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1868438 | BOY |
| EOY | 2046345 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 557707 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Separate | X | FinancialStatementSeparate |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 1 | AuditCommittee |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 2549551 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2593332 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 2520005 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2768735 | CurrentTaxYearMinus1Year |
| Current Tax Year | 3541596 | CurrentTaxYear |
| Total | 13973219 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 2549551 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2593332 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 2520005 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2768735 | CurrentTaxYearMinus1Year |
| Current Tax Year | 3541596 | CurrentTaxYear |
| Total | 13973219 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 19713 | AmountsSubstContributorsTotal |
| Public Support Total170 | 13953506 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 12260 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 9979 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 11133 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 5492 | CurrentTaxYearMinus1Year |
| Current Tax Year | 2288 | CurrentTaxYear |
| Total | 41152 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 14014371 | TotalSupport |
| Gross Receipts From Admissions Etc | 1289411 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.99570 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.99160 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 4257 | FilingOrganizationsTotals |
Total Lobbying Expenditures TotalLobbyingExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 4257 | FilingOrganizationsTotals |
Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 2770447 | FilingOrganizationsTotals |
Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 2774704 | FilingOrganizationsTotals |
Lobbying Nontaxable LobbyingNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 288735 | FilingOrganizationsTotals |
Grassroots Nontaxable GrassrootsNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 72184 | FilingOrganizationsTotals |
Tot Lobbying Grassroot Minus Non Tx TotLobbyingGrassrootMinusNonTx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Tot Lobby Expend Mns Lobbying Nontx TotLobbyExpendMnsLobbyingNontx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 268370 | CurrentYearMinus3 |
| Current Year Minus2 | 275856 | CurrentYearMinus2 |
| Current Year Minus1 | 286548 | CurrentYearMinus1 |
| Current Year | 288735 | CurrentYear |
| Total | 1119509 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $1,679,264 | LobbyingCeilingAmount |
Total Lobbying Expenditures2 TotalLobbyingExpenditures2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 2298 | CurrentYearMinus3 |
| Current Year Minus2 | 3432 | CurrentYearMinus2 |
| Current Year Minus1 | 5089 | CurrentYearMinus1 |
| Current Year | 4257 | CurrentYear |
| Total | 15076 | Total |
Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 67093 | CurrentYearMinus3 |
| Current Year Minus2 | 68964 | CurrentYearMinus2 |
| Current Year Minus1 | 71637 | CurrentYearMinus1 |
| Current Year | 72184 | CurrentYear |
| Total | 279878 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $419,817 | GrassrootsCeilingAmount |
Schedule D IRS990ScheduleD
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 2778620 | OtherCostOrOtherBasis |
| Depreciation | 1789531 | Depreciation |
| Book Value | 989089 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 989089 | TotalOfBookValueLandBuildings |
Other Liabilities OtherLiabilities (3 entries)
| DescriptionDescription | AmountAmount |
|---|---|
| DUE TO NATIONAL ASSOCIATION | $150,988 |
| DEFERRED RENT | $2,893 |
| CAPITAL LEASE OBLIGATION | $18,247 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Amounts | 172128 | TotalOfAmounts |
| Footnote In Part XIII | X | FootnoteInPartXIII |
| Tot Revenue Etc Audited Fincl Stmt | 3851641 | TotRevenueEtcAuditedFinclStmt |
| Other Revenues | 193790 | OtherRevenues |
| Revenue Not Rptd F990 | 193790 | RevenueNotRptdF990 |
| Revenue Subtotal | 3657851 | RevenueSubtotal |
| Revenue Not Rptd On Fin Stmt | 0 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 3657851 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 3293934 | TotExpensesEtcAuditedFinclStmt |
| Other Expenses Included | 193790 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 193790 | ExpensesNotRptdF990 |
| Expenses Subtotal | 3100144 | ExpensesSubtotal |
| Expenses Not Rptd On Fin Stmt | 0 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 3100144 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIII Form990ScheduleDPartXIII (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: | PART X, LINE 2: | THE ORGANIZATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ORGANIZATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENTS EXPENSES 193,790. | |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENTS EXPENSES 193,790. |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | X | MailSolicitations |
| Email Solicitations | X | EmailSolicitations |
| In Person Solicitations | X | InPersonSolicitations |
| Solicitation Of Non Govt Grants | X | SolicitationOfNonGovtGrants |
| Solicitation Of Govt Grants | X | SolicitationOfGovtGrants |
| Special Fundraising Events | X | SpecialFundraisingEvents |
| Agreement Ref Fundraising | 1 | AgreementRefFundraising |
Fundraiser Activity Information FundraiserActivityInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Individual | DAVID TELSCHOW | NameOfIndividual |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8515 153RD BAY | AddressLine1 |
| City | SAVAGE | City |
| State | MN | State |
| ZIP Code | 55378 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | SEE SCHEDULE O | Activity |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFunds |
| Gross Receipts | 108090 | GrossReceipts |
| Amount Retained By Contractor | 21618 | AmountRetainedByContractor |
| Net To Organization | 86472 | NetToOrganization |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | 108090 | TotalGrossReceipts |
| Total Retained By Contractors | 21618 | TotalRetainedByContractors |
| Total Net To Organization | 86472 | TotalNetToOrganization |
| Licensed States | MN | LicensedStates |
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | BLACK WOODS BLIZZARD | NameOfEvent1 |
| Gross Receipts Event1 | 1274124 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 1136866 | CharitableContributionsEvent1 |
| Gross Revenue Event1 | 137258 | GrossRevenueEvent1 |
| Other Direct Expenses Event1 | 140206 | OtherDirectExpensesEvent1 |
| Name Of Event2 | WALK TO DEFEAT ALS | NameOfEvent2 |
| Gross Receipts Event2 | 744305 | GrossReceiptsEvent2 |
| Charitable Contributions Event2 | 744305 | CharitableContributionsEvent2 |
| Other Direct Expenses Event2 | 75687 | OtherDirectExpensesEvent2 |
| Total Number Of Other Events | 6 | TotalNumberOfOtherEvents |
| Gross Receipts Other Events | 405065 | GrossReceiptsOtherEvents |
| Charitable Contrib Other Events | 251744 | CharitableContribOtherEvents |
| Gross Revenue Other Events | 153321 | GrossRevenueOtherEvents |
| Other Direct Expenses Other Events | 90427 | OtherDirectExpensesOtherEvents |
| Gross Receipts Total | 2423494 | GrossReceiptsTotal |
| Charitable Contributions Total | 2132915 | CharitableContributionsTotal |
| Gross Revenue Total Events | 290579 | GrossRevenueTotalEvents |
| Other Direct Expenses Total Events | 306320 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 306320 | DirectExpenseSummaryEvents |
| Net Income Summary | -15741 | NetIncomeSummary |
Gaming Information GamingInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | 134052 | GrossRevenueOtherGaming |
| Other Direct Expenses Other Gaming | 4344 | OtherDirectExpensesOtherGaming |
| Volunteer Labor Other Gaming | 0 | VolunteerLaborOtherGaming |
| Gross Revenue Total Gaming | 134052 | GrossRevenueTotalGaming |
| Other Direct Expenses Total Gaming | 4344 | OtherDirectExpensesTotalGaming |
| Direct Expense Summary Gaming | 4344 | DirectExpenseSummaryGaming |
| Net Gaming Income Summary | 129708 | NetGamingIncomeSummary |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | MN | StatesWhereGamingConducted |
| Licensed | 1 | Licensed |
| License Suspended Etc | 0 | LicenseSuspendedEtc |
| Gaming With Nonmembers | 0 | GamingWithNonmembers |
| Member Of Other Entity | 0 | MemberOfOtherEntity |
| Percentage Of Gaming Othr Facility | 1.00000 | PercentageOfGamingOthrFacility |
| Name Of Gaming Rec Keeper Person | JENNIFER HJELLE | NameOfGamingRecKeeperPerson |
Address Of Gaming Rec Keeper US AddressOfGamingRecKeeperUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 NORTH WASHINGTON AVENUE SUITE 1 | AddressLine1 |
| City | MINNEAPOLIS | City |
| State | MN | State |
| ZIP Code | 55401 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contract With3rd Party For Gam Rev | 0 | ContractWith3rdPartyForGamRev |
| Gaming Manager Name Person | JENNIFER HJELLE | GamingManagerNamePerson |
| Gaming Manager Services Provided | RECORD KEEPING, MONEY COUNTING, AND BANK DEPOSITS FOR RAFFLES USED FOR FUNDRAISING PURPOSES | GamingManagerServicesProvided |
| Charitable Distrib Required | 0 | CharitableDistribRequired |
Schedule M IRS990ScheduleM
Other Non Cash Contributions Table OtherNonCashContributionsTable
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Description | MEDICAL EQUIPMENT | Description |
| Number Of Contributions | 121 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 745425 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | VALUATION | MethodOfDeterminingRevenues |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeld |
| Review Process Unusual NC Gifts | 1 | ReviewProcessUnusualNCGifts |
| Third Parties Used | 0 | ThirdPartiesUsed |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (7 entries)
| ExplanationExplanation | IdentifierIdentifier | Return ReferenceReturnReference |
|---|---|---|
| DURING THE FISCAL YEAR, THE ORGANIZATION CANCELLED SUPPORT GROUPS IN MONTEVIDEO, MINNESOTA AND IN BEREAVEMENT AND BISMARCK, NORTH DAKOTA. | ||
| ALS AND THE ALS ASSOCIATION, MINNESOTA, NORTH DAKOTA, SOUTH DAKOTA CHAPTER AMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIGS DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS IS USUALLY TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PATIENTS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT 20 PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. ALS CAN STRIKE ANYONE. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS ARE DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. THERE ARE APPROXIMATELY 400 PEOPLE LIVING WITH ALS IN MINNESOTA AT ANY ONE TIME. IN NORTH DAKOTA THERE ARE APPROXIMATELY 47 PEOPLE LIVING WITH ALS AT ANY ONE TIME. ON AVERAGE EACH MONTH, ONE PERSON IS DIAGNOSED WITH ALS AND ONE PERSON DIES FROM THE DISEASE. IN SOUTH DAKOTA THERE ARE APPROXIMATELY 56 PEOPLE LIVING WITH ALS AT ANY ONE TIME. ON AVERAGE EACH MONTH, 1.5 PEOPLE ARE DIAGNOSED WITH ALS AND THAT SAME NUMBER DIE FROM THE DISEASE. CHAPTER PROGRAMS INCLUDE: 1. HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ALLOWS INDIVIDUALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE DUE TO ALS, TO BORROW COMMUNICATION DEVICES THAT ARE NOT COVERED BY MEDICAL INSURANCE. THE PROGRAM ALSO PROVIDES ELECTRONIC AIDS TO DAILY LIVING AND COMPUTER ACCESS TECHNOLOGIES TO THESE INDIVIDUALS SO THEY CAN MAINTAIN THEIR INDEPENDENCE AS THEIR DISEASE PROGRESSES. LAST FISCAL YEAR 210 PEOPLE USED THIS PROGRAM AND OVER 1,200 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2. JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES SHORT PERIODS OF RESPITE FROM THE STRESSFUL RESPONSIBILITY OF PROVIDING AROUND-THE-CLOCK CARE FOR A LOVED ONE LIVING WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS, THEREBY ALLOWING THE FULL-TIME PRIMARY FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE CARE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR OVER 9,508 RESPITE HOURS FOR 100 FAMILIES. 3. DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY PATIENTS AND THEIR FAMILIES, AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER SERVICE AREA. EXAMPLES OF EQUIPMENT ARE: HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 336 PEOPLE UTILIZED THIS PROGRAM. AN AVERAGE OF 250 TO 300 ITEMS ROTATED THROUGH THE POOL EACH MONTH, WITH MORE THAN 2500 ITEMS GOING IN AND OUT OF 9 DIFFERENT DURABLE MEDICAL EQUIPMENT LOAN POOL LOCATIONS. 4. OCCUPATIONAL THERAPY(OT)/PHYSICAL THERAPY (PT) PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PTS FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, MOBILITY, ACTIVITIES OF DAILY LIVING, TRAINING IN RANGE-OF-MOTION, STRETCHING EXERCISES AND THE TEACHING OF THERAPEUTIC PROCEDURES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 43 PEOPLE RECEIVED HOME VISITS, NOT PAID FOR BY INSURANCE, THROUGH THIS PROGRAM. 5. SUPPORT GROUPS: THERE ARE SEVERAL MONTHLY OR QUARTERLY ALS SUPPORT GROUPS LOCATED THROUGHOUT THE CHAPTER SERVICE AREA. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, SO THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. MORE THAN 525 DIFFERENT PEOPLE PARTICIPATED IN EIGHT DIFFERENT SUPPORT GROUPS LOCATED THROUGHOUT THE SERVICE AREA. THE CHAPTER ALSO HOSTS A BEREAVEMENT GROUP FOR THOSE WHO HAVE LOST A LOVED ONE TO ALS. 6. VOLUNTEER PROGRAM: THE PURPOSE OF THE VOLUNTEER PROGRAM IS TO INCREASE THE QUALITY OF LIFE FOR THOSE WITH ALS BY FREEING UP THEIR TIME AND ENERGY FOR MORE ENJOYABLE THINGS. VOLUNTEERS HUMBLY PERFORM DAILY TASKS OF LIVING LIKE CLEANING, RUNNING ERRANDS, MAKING MEALS, AND MUCH MORE. LAST YEAR, VOLUNTEERS LIFTED BURDENS IN THE LIVES OF 97 PEOPLE WITH ALS AND THEIR FAMILIES. 7. ADVOCACY: THE CHAPTER WORKS TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH ALS. THESE INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8. OTHER SERVICES: THE CHAPTER ALSO EMPLOYS A NURSE, SOCIAL WORKER, OCCUPATIONAL THERAPISTS AND A CHAPLAIN TO HELP EACH FAMILY THROUGH THE PROGRESSION OF ALS. THEY ARE AVAILABLE FOR PATIENT AND FAMILY CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER HOUSES A LENDING LIBRARY, PUBLISHES A BI-MONTHLY NEWSLETTER, AND OFFERS A VARIETY OF INFORMATION ON THE WEBSITE: WWW.ALSMN.ORG. | DIRECT PATIENT PROGRAMS | FORM 990, PART III, LINE 4A |
| THE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL. | FORM 990, PART VI, SECTION B, LINE 11 | |
| ALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS. | FORM 990, PART VI, SECTION B, LINE 12C | |
| A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME. FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEWS THE VP OF CARE SERVICES, VP OF DEVELOPMENT AND VP OF FINANCE AND GETS INPUT FROM THE STAFF AND BOARD OF DIRECTORS AS PART OF THIS PROCESS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END. | FORM 990, PART VI, SECTION B, LINE 15 | |
| GOVERNING DOCUMENTS INCLUDING CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST. | FORM 990, PART VI, SECTION C, LINE 19 | |
| TO COORDINATE THE SOLICITATION AND COMMUNICATION WITH MAJOR SPONSORS AND DONORS AS WELL AS MAINTAING RELATIONSHIPS WITH SUCH DONORS. IN ADDITION, TO DEVELOP AND IMPLEMENT NEW FUNDRAISING IDEAS AND ASSIST WITH THE MARKETING OF MATERIALS RELATED TO FUNDRAISING. | ACTIVITY OF PROFESSIONAL FUNDRAISER | SCHEDULE G, PART I, LINE 2(B)(II) |
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