ALPORT SYNDROME FOUNDATION INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: ALPORT SYNDROME FOUNDATION INC (EIN 20-8237159)
Tax period: 2012-01-01 to 2012-12-31
Filed: 2013-04-15
IRS object ID: 201331059349300343
Schema version: 2012v2.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule G
Schedule I
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-04-15T05:22:46-00:00	Timestamp
Tax Period End Date	2012-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	SECHLER CPA PC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	921 E ORANGE DRIVE	AddressLine1
City	PHOENIX	City
State	AZ	State
ZIP Code	85014	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	208237159	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	ALPORT SYNDROME FOUNDATION INC	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	ALPO	NameControl
Phone	4804600621	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1608 E BRIARWOOD TERRACE	AddressLine1
City	PHOENIX	City
State	AZ	State
ZIP Code	85048	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	STANLEY SILVER	Name
Title	TREASURER	Title
Date Signed	2013-04-15	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	CAROLYN SECHLER	Name
Phone	6022302700	Phone
Date Prepared	2013-04-15	DatePrepared

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-03-07 17:11:31Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	STAN SILVER	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	1608 E BRIARWOOD TERRACE	AddressLine1
City	PHOENIX	City
State	AZ	State
ZIP Code	85048	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	282582	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	WWW.ALPORTSYNDROME.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	2007	YearFormation
State Legal Domicile	AZ	StateLegalDomicile
Activity Or Mission Description	THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	7	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	7	NbrIndependentVotingMembers
Total Nbr Employees	0	TotalNbrEmployees
Total Nbr Volunteers	53	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	150049	ContributionsGrantsPriorYear
Contributions Grants Current Year	216610	ContributionsGrantsCurrentYear
Program Service Revenue CY	54129	ProgramServiceRevenueCY
Investment Income Prior Year	313	InvestmentIncomePriorYear
Investment Income Current Year	327	InvestmentIncomeCurrentYear
Other Revenue Prior Year	40659	OtherRevenuePriorYear
Other Revenue Current Year	3576	OtherRevenueCurrentYear
Total Revenue Prior Year	191021	TotalRevenuePriorYear
Total Revenue Current Year	274642	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	103800	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	77000	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Current Year	0	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	4247	TotalFundrsngExpCurrentYear
Other Expense Prior Year	28347	OtherExpensePriorYear
Other Expenses Current Year	92002	OtherExpensesCurrentYear
Total Expenses Prior Year	132147	TotalExpensesPriorYear
Total Expenses Current Year	169002	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	58874	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	105640	RevenuesLessExpensesCY
Total Assets BOY	261856	TotalAssetsBOY
Total Assets EOY	365879	TotalAssetsEOY
Total Liabilities BOY	715	TotalLiabilitiesBOY
Total Liabilities EOY	0	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	261141	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	365879	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	75000	Expense
Grants	75000	Grants
Description	AWARDED RESEARCH FUNDING TO DR. JEFFREY MINER, PROFESSOR OF MEDICINE, WASHINGTON UNIVERSITY, ST. LOUIS, MO FOR HIS STUDY DEFINING EFFICACY OF COMBINATION DRUG THERAPY IN ALPORT MICE AND DR. CLIFFORD KASHTAN, UNIVERSITY OF MINNESOTA MEDICAL FOUNDATION FOR CONTINURED SUPPORT OF THE ALPORT SYNDROME TREATMENTS AND OUTCOMES REGISTRY.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	53293	Expense
Description	CONDUCTED A 2 DAY ALPORT SYNDROME FAMILY CONFERENCE AT THE UNIVERISTY OF MINNESOTA FOR PATIENTS AND FAMILIES ATTENDED BY OVER 200 PARTICIPANTS. DEVELOPED SEPARATE SPECIFIC PROGRAMS FOR TEENS, YOUNG ADULTS AND PARENTS. ALL CONFERENCE MATERIALS ARE AVAILABLE ON THE WEBSITE.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	9912	Expense
Description	ATTENDED AND EXHIBITED AT THE AMERICAN SOCIETY OF NEPHROLOGY KIDNEY WEEK IN SAN DIEGO, CA IN NOVEMBER, 2012 INCREASING AWARENESS AND DISTRIBUTING EDUCATIONAL INFORMATION TO THE MEDICAL AND RESEARCH COMMUNITY. THIS MEETING IS ATTENDED BY OVER 12,000 PROFESSIONALS IN THE NEPHROLOGY COMMUNITY. MET WITH MEMBERS OF THE FOUNDATION MEDICAL ADVISORY COMMITTEE TO DISCUSS 2012 PERFOMANCE AND PLANS FOR 2013. MEETINGS WITH MEMBERS OF BOTH THE NATIONAL AND INTERNATIONAL RESEARCH COMMUNITY TO DISCUSS TRENDS AND NEW POSSIBLE OPPORTUNITES FOR ALPORT SYNDROME RESEARCH. IN ADDITION, HELD A REGIONAL FAMILY MEETING FOR OVER 75 PARTICIPANTS WITH MEDICAL EXPERTS FROM THE US, AUSTRALIA, AND GERMANY.	Description

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	18460	TotalOfOtherProgramServiceExp
Total Of Other Program Service Grnt	2000	TotalOfOtherProgramServiceGrnt
Total Program Service Expense	156665	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	false	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	false	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	false	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	true	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	11	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	0	NumberOfEmployees
Unrelated Business Income	false	UnrelatedBusinessIncome
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	7	NbrVotingGoverningBodyMembers
Number Independent Voting Members	7	NumberIndependentVotingMembers
Family Or Business Relationship	true	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	STANLEY SILVER	NamePerson
Telephone Number	4804600621	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	30042 N 77TH PLACE	AddressLine1
City	SCOTTSDALE	City
State	AZ	State
ZIP Code	85266	ZIPCode

Field	Value	IRS element (for citing)
No Listed Persons Compensated	X	NoListedPersonsCompensated

Form990 Part VII Section A Form990PartVIISectionA (7 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation
SHARON LAGAS
PRESIDENT	025.00	X	X	0	0	0
VINT DEGRAW
VICE PRES	005.00	X	X	0	0	0
MARGARET BLUE
SECRETARY	003.00	X	X	0	0	0
STANLEY SILVER
TREASURER	030.00	X	X	0	0	0
JEFFERY ROSS
DIRECTOR	010.00	X		0	0	0
MICHAEL PANELLA
DIRECTOR	010.00	X		0	0	0
CYNTHIA ARNOLD
DIRECTOR	003.00	X		0	0	0

Field	Value	IRS element (for citing)
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources
Fundraising Events	43233	FundraisingEvents
All Other Contributions	173377	AllOtherContributions
Total Contributions	216610	TotalContributions

Program Service Revenue ProgramServiceRevenue (2 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome
CONFERENCE AND EVENTS	900099	51129	51129
TRIBUTE AWARD	900099	3000	3000

Field	Value	IRS element (for citing)
Total Program Service Revenue	54129	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	327	TotalRevenueColumn
Exclusion	$327	ExclusionAmount

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	11472	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	43233	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	7940	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	3532	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	REFUND	Description
Business Code	900099	BusinessCode
Total Revenue Column	44	TotalRevenueColumn
Related Or Exempt Function Income	44	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Other Revenue	44	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	274642	TotalRevenueColumn
Related Or Exempt Function Income	54173	RelatedOrExemptFunctionIncome
Exclusion	$327	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	75000	Total
Program Services	75000	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	2000	Total
Program Services	2000	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	0	Total

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	0	Total

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	0	Total

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	0	Total

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	0	Total

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	4420	Total
Program Services	2820	ProgramServices
Management And General	1600	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Fees For Services Prof Fundraising		FeesForServicesProfFundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	5315	Total
Program Services	5315	ProgramServices

Advertising Advertising

Field	Value	IRS element (for citing)
Total	465	Total
Fundraising	465	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	12042	Total
Program Services	6695	ProgramServices
Management And General	4513	ManagementAndGeneral
Fundraising	834	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	3062	Total
Program Services	3062	ProgramServices

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	0	Total

Travel Travel

Field	Value	IRS element (for citing)
Total	2136	Total
Program Services	222	ProgramServices
Management And General	1471	ManagementAndGeneral
Fundraising	443	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	59890	Total
Program Services	59890	ProgramServices

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	0	Total

Insurance Insurance

Field	Value	IRS element (for citing)
Total	193	Total
Program Services	89	ProgramServices
Management And General	104	ManagementAndGeneral

Other Expenses OtherExpenses (2 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
BANK AND CREDIT CARD FEED	2271	1572	347	352
REGISTRATION FEES	2208		55	2153

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	169002	Total
Program Services	156665	ProgramServices
Management And General	8090	ManagementAndGeneral
Fundraising	4247	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	159825	BOY
EOY	239120	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	100528	BOY
EOY	125856	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	1503	BOY
EOY	903	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	261856	BOY
EOY	365879	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	715	BOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	715	BOY
EOY	0	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	261141	BOY
EOY	365879	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	261141	BOY
EOY	365879	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	261856	BOY
EOY	365879	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	105640	ReconcilationRevenueExpenses
Reconcilation Prior Adjustment	-902	ReconcilationPriorAdjustment
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	true	AccountantCompileOrReview

Accountant Compile Or Review Basis AccountantCompileOrReviewBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
FS Audited	false	FSAudited
Audit Committee	true	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	68826	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	67467	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	221482	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	197405	CurrentTaxYearMinus1Year
Current Tax Year	216610	CurrentTaxYear
Total	771790	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	68826	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	67467	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	221482	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	197405	CurrentTaxYearMinus1Year
Current Tax Year	216610	CurrentTaxYear
Total	771790	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	27779	AmountsSubstContributorsTotal
Public Support Total170	744011	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus3 Years	351	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	216	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	313	CurrentTaxYearMinus1Year
Current Tax Year	327	CurrentTaxYear
Total	1207	Total

Field	Value	IRS element (for citing)
Total Support	772997	TotalSupport
Public Support Pertcentage170	0.96250	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.94220	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170
Public Support Percentage509	0.00000	PublicSupportPercentage509
Investment Income Percentage	0.00000	InvestmentIncomePercentage

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule G IRS990ScheduleG

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	5 K	NameOfEvent1
Gross Receipts Event1	54705	GrossReceiptsEvent1
Charitable Contributions Event1	43233	CharitableContributionsEvent1
Gross Revenue Event1	11472	GrossRevenueEvent1
Other Direct Expenses Event1	7940	OtherDirectExpensesEvent1
Gross Receipts Total	54705	GrossReceiptsTotal
Charitable Contributions Total	43233	CharitableContributionsTotal
Gross Revenue Total Events	11472	GrossRevenueTotalEvents
Other Direct Expenses Total Events	7940	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	7940	DirectExpenseSummaryEvents
Net Income Summary	3532	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant
WASHINGTON UNIVERSITY
700 ROSEDALE AVE BOX 1000	ST LOUIS	MO	63112	430653611	501C3	50000	RESEARCH
UNIVERSITY OF MN FND
200 OAK ST SE STE 200	MINNEAPOLIS	MN	55455	416042488	501C3	25000	RESEARCH

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	2	TotalNbrOf501C3AndGovtGrants

Form990 Schedule I Part III Form990ScheduleIPartIII

Field	Value	IRS element (for citing)
Type Of Grant	EDUCATION	TypeOfGrant
Number Of Recipients	2	NumberOfRecipients
Amount Of Cash Grant	2000	AmountOfCashGrant

Form990 Schedule I Part IV Form990ScheduleIPartIV (4 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
II	1	FOR RESEARCH FUNDING, ASF USES AN APPLICATION PROCESS ALONG WITH A PANEL OF OUTSIDE REVIEWERS WHICH EVALUATE GRANT APPLICATIONS ON THE SPECIFIC AIMS OF THE PROJECT, THE PROJECTS BACKGROUND AND SIGNIFICANCE, AND THE PROJECTS RESEARCH DESIGN AND METHODS.
III	1	EACH YEAR ASF SPONSORS THE PAUL SILVER TRIBUTE AWARD FOR STUDENTS AND YOUNG ADULTS WITH ALPORT SYNDROME. APPLICANTS ARE EVALUATED BASED ON AN ESSAY AND OUTSIDE RECOMMENDATIONS AND ON THE POTENTIAL IMPACT OF THE AWARD. THE AWARD CAN BE USED FOR EDUCATION, TO COMPLETE A PROJECT, OR PURSUE AN ACTIVITY THAT WILL ENHANCE THE APPLICANTS LIFE.
I	2	REPORTING REQUIREMENTS - WITHIN 60 DAYS OF THE END OF THE FUNDING PERIOD, IT IS REQUIRED THAT A TYPE-WRITTEN REPORT BY THE PRINCIPAL INVESTIGATOR ON THE RESEARCH THAT RESULTED FROM THE ASF FUNDING SUMMARY WHICH CAN BE PUBLISHED BY ASF AS IS OR IN EDITED FORM MUST BE SUBMITTED. IF THE FUNDING IS FOR MORE THAN A ONE-YEAR PERIOD, THEN A TYPE-WRITTEN PROGRESS REPORT MUST BE ISSUED BY THE PRINCIPAL INVESTIGATOR AT THE END OF EACH YEAR ON THE FUNDING COMMENCEMENT DATE ANNIVERSARY AND SENT TO ASF.
I	2	ACCOUNTING REQUIREMENTS - A FINAL DETAILED ACCOUNTING OF THE FUNDS SPENT IS REQUIRED TO BE SENT TO ASF WITHIN 60 DAYS OF THE END OF THE FUNDING PERIOD. IF THE FUNDING PERIOD IS LONGER THAN ONE YEAR, THEN ANNUAL FINANCIAL REPORTS MUST BE FILED WITH ASF ON THE FUNDING COMMENCEMENT DATE ANNIVERSARY. AT THE END OF THE FUNDING PERIOD, ANY UNUSED FUNDS MUST BE RETURNED TO ASF, UNLESS A LETTER EXPLAINING THE SITUATION AND REQUESTING AN EXTENSION OF THE FUNDING PERIOD WITHOUT ADDITIONAL FUNDS IS SUBMITTED AT LEAST 90 DAYS PRIOR TO THE END OF THE FUNDING PERIOD AND APPROVED BY ASF.

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (5 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990 Part VI	A 11b	THE TREASURER OF THE ORGANIZATION DISTRIBUTES A PDF COPY OF THE 990 TO ALL BOARD MEMBERS FOR REVIEW AND COMMENT PRIOR TO THE RETURN BEING FILED.
Form 990 Part VI	A 12c	AT EACH BOARD AND COMMITTEE MEETING, IF THERE IS A DISCUSSION OF SELECTING OR ENGAGING A VENDOR OR SERVICE PROVIDER, ALL IN ATTENDANCE ARE ASKED TO RECUSE THEMSELVES FROM THIS DISCUSSION IF THERE COULD BE A PERCEIVED CONFLICT. ANNUALLY, THE ORGANIZATION REVIEWS AND DISCUSSES THE CONFLICT OF INTEREST POLICY AND REQUESTS THAT EACH BOARD MEMBER LIST AND ACKNOWLEDGE ANY KNOWN CONFLICTS.
Form 990 Part VI	B 15	THE EXECUTIVE COMMITEE REVIEWS THE COMPENSATION FOR ALL OFFICERS AND KEY EMPLOYEES BY COMPARING THEIR COMPENSATION TO THE COMPENSATION OF INDIVIDUALS IN LIKE POSITIONS IN COMPARABLE ORGANIZATIONS USING FORMS 990, COMPENSATION STUDIES, AND OTHER AVAILABLE DATA. THE COMMITTEE THEN APPROVES ANY CHANGES IN COMPENSATION BASED ON THIS INFORMATION.
Form 990 Part VI	C 19	THE ORGANIZATION WILL PROVIDE IN A TIMELY MANNER, COPIES OF ALL GOVERNING DOCUMENTS INCLUDING ITS CONFLICT OF INTEREST POLICIES AND FINANCIAL STATEMENTS WHEN REQUESTED IN WRITING OR IN PERSON.
Form 990 Part VI	A 2	SHARON LAGAS, PRESIDENT IS DAUGHTER OF STANLEY SILVER, TREASURER.