AMYOTROPHIC LATERAL SCLEROSIS: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization
AMYOTROPHIC LATERAL SCLEROSIS (EIN 35-2029321)
Tax period
2013-02-01 to 2014-01-31
Filed
2014-06-12
IRS object ID
201431639349300123
Schema version
2013v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2014-06-12T10:55:29-05:00ReturnTs
Tax Period End2014-01-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN350905983PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1K B PARRISH & CO LLPBusinessNameLine1

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line16840 EAGLE HIGHLANDS WAYAddressLine1
CityINDIANAPOLISCity
StateINState
ZIP Code46254ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2013-02-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN352029321EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE INDIANA CHAPTER OF THE ALS ASSOCIATION INCBusinessNameLine1
FieldValueIRS element (for citing)
Business Name ControlINDIBusinessNameControlTxt
Phone3179159888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16525 E 82ND STREET NO 115AddressLine1
CityINDIANAPOLISCity
StateINState
ZIP Code46250ZIPCode

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCYNTHIA WISEPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone3179159888PhoneNum
Signature2014-06-09SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonRYAN KEITH CPAPreparerPersonNm
PTINP00846149PTIN
Phone3173475200PhoneNum
FieldValueIRS element (for citing)
Tax2013TaxYr
Build TS2015-11-30 17:44:51ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerCYNTHIA WISEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line16525 E 82ND STREET NO 115AddressLine1
CityINDIANAPOLISCity
StateINState
ZIP Code46250ZIPCode
FieldValueIRS element (for citing)
Gross Receipts$902,037GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Group Exemption4119GroupExemptionNum
Organization501c3Yes (X)Organization501c3Ind
Website AddressWEBIN.ALSA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1997FormationYr
Legal Domicile StateINLegalDomicileStateCd
Activity Or MissionMOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee8TotalEmployeeCnt
Total Volunteers305TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$663,849PYContributionsGrantsAmt
CY Contributions Grants$772,102CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income-$2,768PYInvestmentIncomeAmt
CY Investment Income$10,035CYInvestmentIncomeAmt
PY Other Revenue-$37,396PYOtherRevenueAmt
CY Other Revenue-$61,607CYOtherRevenueAmt
PY Total Revenue$623,685PYTotalRevenueAmt
CY Total Revenue$720,530CYTotalRevenueAmt
PY Grants And Similar Paid$90,619PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$23,650CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$247,166PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$259,779CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$109,808CYTotalFundraisingExpenseAmt
PY Other Expenses$200,711PYOtherExpensesAmt
CY Other Expenses$316,509CYOtherExpensesAmt
PY Total Expenses$538,496PYTotalExpensesAmt
CY Total Expenses$599,938CYTotalExpensesAmt
PY Revenues Less Expenses$85,189PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$120,592CYRevenuesLessExpensesAmt
Total Assets BOY$389,031TotalAssetsBOYAmt
Total Assets EOY$489,821TotalAssetsEOYAmt
Total Liabilities BOY$37,561TotalLiabilitiesBOYAmt
Total Liabilities EOY$18,982TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$351,470NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$470,839NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionMOST COMPREHENSIVE PROVIDER OF CARE, SUPPORT SERVICES, AND EDUCATIONAL RESOURCES FOR ALS PATIENTS AND FAMILIES IN INDIANA. LEADING ADVOCATE AND VOICE FOR ALS COMMUNITY. FUNDS AND PROMOTES ALS RESEARCH.MissionDesc
Significant New Program SrvcYes (1)SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$288,189ExpenseAmt
Grant$13,100GrantAmt
DescPATIENT AND CAREGIVER SERVICES - THE INDIANA CHAPTER'S PATIENT SERVICES INCLUDES SUPPORT GROUPS, NUTRITION ASSISTANCE, LENDING OF MEDICAL EQUIPMENT AND SUPPLIES, AND PROVIDING MULTI-DISCIPLINARY CLINICS.SUPPORT GROUPS PROVIDE SOCIAL AND EMOTIONAL SUPPORT AS WELL AS INFORMATION ABOUT MANAGING THE DISEASE TO PATIENTS AND THEIR FAMILIES. THE CHAPTER HAS OPERATED SEVERAL SUPPORT GROUPS IN THE PAST. THE GROUPS ARE GEOGRAPHICALLY-BASED AND MEET MONTHLY. THE GROUPS ARE ATTENDED BY THOSE IMPACTED IN SOME WAY BY ALS AND ALL ARE WELCOME TO ATTEND. THERE IS A SPEAKER PROVIDING TECHNICAL EXPERTISE OF SOME KIND AT SOME OF THE GROUP MEETINGS AND AT OTHERS GROUP MEMBERS SHARE THOUGHTS, FEELINGS, ISSUES, CONCERNS AND QUESTIONS. ON AN AVERAGE MONTHLY ATTENDANCE IS 80 PATIENTS AND CAREGIVERS STATEWIDE.THE INDIANA CHAPTER ACCEPTS DONATIONS OF MEDICAL EQUIPMENT AND SUPPLIES THAT THEY MAKE AVAILABLE TO ALS PATIENTS AT NO CHARGE THROUGH A LOAN CLOSET.MULTI-DISCIPLINARY CLINICS EXIST TO HELP PEOPLE WITH ALS GET THE BEST POSSIBLE CARE FOR THEIR CONDITION BY PROVIDING A MULTITUDE OF SERVICES AND A BROAD RANGE OF EXPERTISE IN A SINGLE LOCATION. THE ALSA-CERTIFIED CENTER OF EXCELLENCE, ALS MULTI-DISCIPLINARY CLINIC, SCHEDULES PATIENTS EVERY TUESDAY AND THE LAST THURSDAY OF EACH MONTH IN THE REGENSTRIEF CENTER OF WISHARD HOSPITAL. WHILE THERE, PATIENTS SEE THEIR NEUROLOGIST, PHYSICAL THERAPIST, SPEECH THERAPIST, RESPIRATORY THERAPIST, NUTRITIONIST, CLINICAL TRIALS NURSE, SOCIALWORKER/CASE MANAGER, AND, IF APPROPRIATE, A HOSPICE REPRESENTATIVE. AFTER PATIENT VISITS ARE OVER THE TEAM DEBRIEFS ON EACH PATIENT'S ISSUES AND CONCERNS. SIX TO EIGHT PATIENTS ARE SEEN DURING THE AVERAGE CLINIC DAY AND MORE THAN 300 PATIENT VISITS TO THE CLINIC WERE SCHEDULED IN THE PAST YEAR. WHILE SOME OF THOSE VISITS MAY BE REPEAT VISITS BY THE SAME PATIENT WITHIN THE SAME YEAR, USUALLY 200 OR MORE INDIVIDUAL PATIENTS ARE SEEN IN THE CLINIC OVER THE COURSE OF THE YEAR. THE CHAPTER PROVIDES FINANCIAL SUPPORT TO THE CLINIC WHICH IS USED FOR MULTI-DISCIPLINARY AND RESEARCH CLINICAL TRIALS, STAFF AND GENERAL SUPPORT AND MAINTENANCE OF THE CLINIC. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULTI-DISCIPLINARY TEAM.OTHER PROGRAMS INCLUDE CAREGIVER DAY, WHICH IS AN ANNUAL EVENT WHERE CAREGIVERS AND CAREGIVER/VOLUNTEERS COME TOGETHER FOR SUPPORT, ENCOURAGEMENT, EDUCATION AND FUN. A VARIETY OF OTHER MISCELLANEOUS PROGRAMS ARE OFFERED AS NEEDED FROM TIME TO TIME.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$55,148ExpenseAmt
DescPUBLIC AND PROFESSIONAL EDUCATION - THE ALS ASSOCIATION INDIANA CHAPTER RAISES FUNDS TO SUPPORT RESEARCH INTO CAUSES, TREATMENTS, AND A CURE FOR ALS. RESEARCH DOLLARS ARE USED TO UNDERSTAND THE DISEASE PROCESS OF ALS AND HOW AXON STRUCTURE AND DYNAMICS, CELL DEATH, COGNITIVE CHANGES, GLUTAMATES, INFLAMMATION, MITOCHONDRIA AND SOD 1 ARE INVOLVED. MONIES RAISED FUND CLINICAL TRIALS, THE INVESTIGATION AND LINKAGE OF POSSIBLE ENVIRONMENTAL FACTORS, TO BETTER UNDERSTAND THE GENETICS OF ALS AND TO CREATE LABORATORY MODELS OF ALS. THE CHAPTER ADVOCATES AND EDUCATES THE PUBLIC THROUGH NEWSLETTERS AND OUTREACH PROGRAMS.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$102,321ExpenseAmt
Grant$10,550GrantAmt
DescREVENUE SHARE - AS AN OFFICIAL CHARTER CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE INDIANA CHAPTER PROVIDES 17 PERCENT OF ITS REVENUES RAISED WITH THE NATIONAL ASSOCIATION. FUNDS ARE FORWARDED FROM LOCAL CHAPTERS TO THE NATIONAL ASSOCIATION IN ORDER TO POOL RESOURCES TO RESEARCH ALS AND TEST NEW TREATMENTS TO BATTLE THE PROGRESSION OF ALS IN PATIENTS. FUNDS ARE ALSO USED BY THE NATIONAL ASSOCIATION TO RAISE AWARENESS OF THE DISEASE AT A NATIONAL LEVEL AND SUPPORT THE OPERATIONS AND EFFORTS OF OTHER LOCAL CHAPTERS AND NATIONAL PROGRAMS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$445,658TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document16IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee8EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CYNTHIA WISEBusinessNameLine1
FieldValueIRS element (for citing)
Phone3179159888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16525 EAST 82ND STREET SUITE 115AddressLine1
CityINDIANAPOLISCity
StateINState
ZIP Code46250ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
MICHAEL E MILLIKAN
PAST PRESIDENT1.00Yes (X)$0$0$0
JEANNE MANNELLA
VICE PRESIDENT2.00Yes (X)$0$0$0Yes (X)
ADAM TERNET
SECRETARY2.00Yes (X)$0$0$0Yes (X)
STEVEN CHMIELEWSKI
PRESIDENT2.00Yes (X)$0$0$0Yes (X)
SARAH HELGESON
TRUSTEE1.00Yes (X)$0$0$0
KRISTIN WROBLESKI
TRUSTEE1.00Yes (X)$0$0$0
TIM ELSON
FORMER TRUSTEE1.00Yes (X)$0$0$0
LINDA STURGES
TRUSTEE1.00Yes (X)$0$0$0
CHERYL WHITE
TRUSTEE1.00Yes (X)$0$0$0
DEREK FRENCH
TREASURER3.00Yes (X)$0$0$0Yes (X)
MONA EULER
TRUSTEE1.00Yes (X)$0$0$0
ANDY WILSON
FORMER TRUSTEE1.00Yes (X)$0$0$0
GEOFFREY DAVIS
TRUSTEE1.00Yes (X)$0$0$0
CELINA ANNABLE
TRUSTEE1.00Yes (X)$0$0$0
CHRISTOPHER DILWORTH
TRUSTEE1.00Yes (X)$0$0$0
CYNTHIA WISE
EXECUTIVE DIRECTOR40.00$64,552$0$2,671Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$64,552TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$2,671TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$574,794FundraisingAmt
All Other Contributions$197,308AllOtherContributionsAmt
Noncash Contributions$57,324NoncashContributionsAmt
Total Contributions$772,102TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,394TotalRevenueColumnAmt
Exclusion$5,394ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$121,758SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$117,117SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$4,641SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,641TotalRevenueColumnAmt
Exclusion$4,641ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$574,794ContriRptFundraisingEventAmt
Fundraising Direct Expenses$64,390FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$64,390TotalRevenueColumnAmt
Exclusion-$64,390ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescMISCELLANEOUSDesc
Business900099BusinessCd
Total Revenue Column$2,783TotalRevenueColumnAmt
Related Or Exempt Func Income$2,783RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$2,783OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$720,530TotalRevenueColumnAmt
Related Or Exempt Func Income$2,783RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$54,355ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$23,650TotalAmt
Program Services$23,650ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$67,223TotalAmt
Program Services$47,056ProgramServicesAmt
Management And General$6,722ManagementAndGeneralAmt
Fundraising$13,445FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$168,391TotalAmt
Program Services$121,653ProgramServicesAmt
Management And General$15,540ManagementAndGeneralAmt
Fundraising$31,198FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$4,474TotalAmt
Program Services$3,116ProgramServicesAmt
Management And General$446ManagementAndGeneralAmt
Fundraising$912FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$19,691TotalAmt
Program Services$13,808ProgramServicesAmt
Management And General$1,954ManagementAndGeneralAmt
Fundraising$3,929FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$9,117TotalAmt
Management And General$9,117ManagementAndGeneralAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$1,179TotalAmt
Management And General$1,179ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$4,531TotalAmt
Program Services$3,919ProgramServicesAmt
Management And General$192ManagementAndGeneralAmt
Fundraising$420FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$31,429TotalAmt
Program Services$30,032ProgramServicesAmt
Fundraising$1,397FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$34,767TotalAmt
Program Services$12,544ProgramServicesAmt
Management And General$3,126ManagementAndGeneralAmt
Fundraising$19,097FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$19,918TotalAmt
Program Services$4,027ProgramServicesAmt
Management And General$728ManagementAndGeneralAmt
Fundraising$15,163FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$32,940TotalAmt
Program Services$23,755ProgramServicesAmt
Management And General$3,238ManagementAndGeneralAmt
Fundraising$5,947FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$16,172TotalAmt
Program Services$8,902ProgramServicesAmt
Management And General$17ManagementAndGeneralAmt
Fundraising$7,253FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,379TotalAmt
Program Services$427ProgramServicesAmt
Management And General$69ManagementAndGeneralAmt
Fundraising$883FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$91,771TotalAmt
Program Services$91,771ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$3,758TotalAmt
Program Services$1,654ProgramServicesAmt
Management And General$225ManagementAndGeneralAmt
Fundraising$1,879FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,413TotalAmt
Program Services$989ProgramServicesAmt
Management And General$141ManagementAndGeneralAmt
Fundraising$283FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
LOAN CLOSET EXPENSE$54,795$54,795
BANK FEES$4,852$4$532$4,316
PROFESSIONAL DEVELOPMEN$2,703$305$199$2,199
OTHER MISCELLANEOUS$2,453$1,681$472$300

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$3,332TotalAmt
Program Services$1,570ProgramServicesAmt
Management And General$575ManagementAndGeneralAmt
Fundraising$1,187FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$599,938TotalAmt
Program Services$445,658ProgramServicesAmt
Management And General$44,472ManagementAndGeneralAmt
Fundraising$109,808FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$118,063BOYAmt
EOY$116,502EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$16,652BOYAmt
EOY$133,992EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$17,985BOYAmt
EOY$6,743EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$2,613BOYAmt
EOY$1,727EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$4,827BOYAmt
EOY$580EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$22,233LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$11,316LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$14,675BOYAmt
EOY$10,917EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$114,637BOYAmt
EOY$124,952EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$99,579BOYAmt
EOY$94,408EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$389,031BOYAmt
EOY$489,821EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$28,401BOYAmt
EOY$13,406EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$9,160BOYAmt
EOY$5,576EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$37,561BOYAmt
EOY$18,982EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$341,668BOYAmt
EOY$457,284EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$9,802BOYAmt
EOY$13,555EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$351,470BOYAmt
EOY$470,839EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$389,031BOYAmt
EOY$489,821EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$120,592ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$1,223NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$454,761CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$429,301CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$602,068CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$663,849CurrentTaxYearMinus1YearAmt
Current Tax Year$772,102CurrentTaxYearAmt
Total$2,922,081TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$454,761CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$429,301CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$602,068CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$663,849CurrentTaxYearMinus1YearAmt
Current Tax Year$772,102CurrentTaxYearAmt
Total$2,922,081TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$26,262SubstantialContributorsTotAmt
Public Support Total170$2,895,819PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$476CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$280CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$826CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,544CurrentTaxYearMinus1YearAmt
Current Tax Year$5,394CurrentTaxYearAmt
Total$10,520TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$575CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$269CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$310CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$356CurrentTaxYearMinus1YearAmt
Current Tax Year$2,783CurrentTaxYearAmt
Total$4,293TotalAmt
FieldValueIRS element (for citing)
Total Support$2,936,894TotalSupportAmt
Public Support CY1700.98600PublicSupportCY170Pct
Public Support PY1700.98980PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings Members0MailingsMembersInd
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$2,592DirectContactLegislatorsAmt
Rallies Demonstrations0RalliesDemonstrationsInd
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$2,592TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationREGISTRATION COSTS, MATERIALS PRINTING, TRAVEL, LODGING, AND MEALS FOR THE EXECUTIVE DIRECTOR TO ADVOCATE TO CONGRESS ABOUT ALS AND ENCOURAGE CONGRESSIONAL APPROPRIATIONS TO FUND RESEARCH AND SUPPORT OF THE ALS REGISTRY. COMPENSATION IS NOT INCLUDED AS ALLOCATED PORTION OF EMPLOYEE SALARIES WOULD NOT BE MATERIAL FOR THIS EVENT (LESS THAN $1,000).ExplanationTxt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$22,233OtherCostOrOtherBasisAmt
Depreciation$11,316DepreciationAmt
Book Value$10,917BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$10,917TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
DEPOSITS$2,455
LOAN CLOSET$91,953
FieldValueIRS element (for citing)
Total Book Value Other Assets$94,408TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CAPITAL LEASE$643
DEFERRED RENT$4,933
FieldValueIRS element (for citing)
Total Liability$5,576TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$782,518TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$1,223NetUnrealizedGainsInvstAmt
Other Revenue$64,390OtherRevenueAmt
Revenue Not Reported$63,167RevenueNotReportedAmt
Revenue Subtotal$719,351RevenueSubtotalAmt
Investment Expenses Not Incld$1,179InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$1,179RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$720,530TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$663,149TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$64,390OtherExpensesIncludedAmt
Expenses Not Reported$64,390ExpensesNotReportedAmt
Expenses Subtotal$598,759ExpensesSubtotalAmt
Investment Expenses Not Incld2$1,179InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$1,179ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$599,938TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ASSOCIATION HAS EVALUATED TAX POSITIONS TAKEN IN THE TAX RETURNS FILED AND HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS AS DEFINED BY GENERALLY ACCEPTED ACCOUNTING STANDARDS. UNDER A THREE-YEAR STATUTE OF LIMITATIONS, THE ASSOCIATION REMAINS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE FOR THE YEARS ENDED JANUARY 31, 2011 THROUGH JANUARY 31, 2013.
PART XI, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING EVENT EXPENSES 64,390.
PART XII, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING EVENT EXPENSES 64,390.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Name Of Event1WALKS AND OTHER EVENTSNameOfEvent1Amt
Gross Receipts Event1$574,794GrossReceiptsEvent1Amt
Charitable Contri Event1$574,794CharitableContriEvent1Amt
Rent Facility Costs Event1$12,680RentFacilityCostsEvent1Amt
Food And Beverage Event1$16,995FoodAndBeverageEvent1Amt
Entertainment Event1$7,799EntertainmentEvent1Amt
Other Direct Expenses Event1$26,916OtherDirectExpensesEvent1Amt
Gross Receipts Total$574,794GrossReceiptsTotalAmt
Charitable Contributions Tot$574,794CharitableContributionsTotAmt
Rent Fclty Costs Total Events$12,680RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$16,995FoodAndBeverageTotalEventsAmt
Entertainment Total Events$7,799EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$26,916OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$64,390DirectExpenseSummaryEventsAmt
Net Income Summary-$64,390NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1CityUSAddress/CityStateUSAddress/StateZIP CodeUSAddress/ZIPCodeRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
IU ALS CENTER OF EXCELLENCE AT WISHARD HEALTH SERVICES
1050 WISHARD BLVDINDIANAPOLISIN46202264529479501(C)(3)$13,100SUPPORT FOR CLINIC
AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
1275 K STREET NW NO 1050WASHINGTONDC20005133271855501(C)(3)$10,550RESEARCH GRANT SHARE WITH NATIONAL AFFILIATED ORGANIZATION
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org2TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationCONTRIBUTIONS TO SUPPORT CLINIC AND RESEARCH GRANT SHARE PAID TO NATIONAL ALS ASSOCIATION. THE CHAPTER'S DIRECTOR OF PATIENT SERVICES IS A MEMBER OF THE CLINIC'S MULT-DISCIPLINARY TEAM AND MONITORS HOW THE FUNDS ARE SPENT.ExplanationTxt

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxIndDescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)MEDICAL EQUIP135$49,624FAIR VALUE
Yes (X)PROMOTIONAL I12$7,700FAIR VALUE
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART III, LINE 2THE ASSOCIATION DID NOT CHANGE ANY OF THE SPECIFIC PROGRAMS OFFERED FROM THE PRIOR YEAR PROGRAMMING. HOWEVER, MANY CHANGES WERE MADE IN THE GROUPING AND DESCRIPTION OF THE 3 LARGEST PROGRAMS OF THE ASSOCIATION. CLINIC DUTIES AND PATIENT SERVICES WERE COMBINED AND REPORTED AS THE LARGEST PROGRAM OFFERED BY THE ASSOCIATION AS PATIENT AND CAREGIVER SERVICES. ADDITIONALLY, THE REVENUE SHARE PROGRAM WITH THE AFFILIATED NATIONAL ALS ASSOCIATION PREVIOUSLY INCLUDED WITH THE PUBLIC AND PROFESSIONAL EDUCATION PROGRAM WAS BROKEN OUT AS A SEPARATE PROGRAM.
FORM 990, PART VI, SECTION B, LINE 11A DRAFT COPY OF THE FORM 990 WILL BE PROVIDED TO ALL BOARD MEMBERS FOR REVIEW PRIOR TO FILING IT WITH THE INTERNAL REVENUE SERVICE.
FORM 990, PART VI, SECTION B, LINE 12CENFORCEMENT OF THE CONFLICT OF INTERST POLICY IS MONITORED REGULARLY. ALL EXEMPT AND NON-EXEMPT EMPLOYEES ARE COVERED AS ARE MEMBERS OF THE BOARD OF TRUSTEES. ALL NEW EMPLOYEES AND BOARD MEMBERS MUST SIGN A CONFLICT OF INTEREST POLICY. BOARD MEMBERS ARE REQUIRED TO SIGN A NEW CONFLICT OF INTERST POLICY EVERY YEAR. THE EXECUTIVE DIRECTOR DETERMINES AND REVIEWS ALL CONFLICTS WITH STAFF THAT HAVE THE POTENTIAL TO NEGATIVELY AFFECT PERFORMANCE OR DECISION MAKING. THE BOARD PRESIDENT DETERMINES AND REVIEWS ANY CONFLICTS WITH BOARD MEMBERS. BOARD MEMBERS MUST RECUSE THEMSELVES FROM ANY DISCUSSION OR VOTE THAT INVOLVES A CONFLICT OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15AGOALS ARE ESTABLISHED AND APPROVED BY THE EXECUTIVE COMMITTEE. THEN IN THE FOLLOWING YEAR, A REVIEW IS DONE BY THE EXECUTIVE COMMITTEE TO DETERMINE IF GOALS WERE MET. SALARY AND BONUSES IF ANY ARE DETERMINED BASED ON THIS ANNUAL REVIEW.
FORM 990, PART VI, SECTION C, LINE 18THE CHAPTER MAKES ITS FORM 1023 AND FORM 990 AVAILABLE FOR PUBLIC INSPECTION UPON REQUEST. ANNUAL FORM 990S CAN ALSO BE ATTAINED THROUGH THIRD PARTY WEBSITES SUCH AS WWW.GUIDESTAR.COM.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC IN THE CHAPTER OFFICE UPON REQUEST.
FORM 990, PART XII, LINE 2CTHE TREASURER AND BOARD OF DIRECTORS ASSUME RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT AND ITS FINANCIAL STATEMENTS AS WELL AS THE SELECTION OF AN INDEPENDENT ACCOUNTANT.

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