NATIONAL BLEEDING DISORDERS FOUNDATION: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization
NATIONAL BLEEDING DISORDERS FOUNDATION (EIN 13-5641857)
Tax period
2013-01-01 to 2013-12-31
Filed
2014-08-14
IRS object ID
201412269349300916
Schema version
2013v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2014-08-14T08:14:20-05:00ReturnTs
Tax Period End2013-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN221732349PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1WISS & COMPANY LLPBusinessNameLine1

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1485C ROUTE 1 SOUTH SUITE 250AddressLine1
CityISELINCity
StateNJState
ZIP Code08830ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2013-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN135641857EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NATIONAL HEMOPHILIA FOUNDATIONBusinessNameLine1
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone2123283700PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1116 WEST 32ND STREET 11TH FLAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10001ZIPCode

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonVAL BIASPersonNm
Person TitleCHIEF EXECUTIVE OFFICERPersonTitleTxt
Phone2123283700PhoneNum
Signature2014-08-13SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMICHAEL ANDRIOLAPreparerPersonNm
PTINP00252682PTIN
Phone7322839300PhoneNum
FieldValueIRS element (for citing)
Tax2013TaxYr
Build TS2015-11-30 17:44:51ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerVAL BIASPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1116 WEST 32ND STREET 11TH FLAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10001ZIPCode
FieldValueIRS element (for citing)
Gross Receipts$17,413,718GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.HEMOPHILIA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1948FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionDEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDES AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body19VotingMembersGoverningBodyCnt
Voting Members Independent19VotingMembersIndependentCnt
Total Employee65TotalEmployeeCnt
Total Volunteers506TotalVolunteersCnt
Total Gross UBI$1,289,313TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$39,297NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$12,859,589PYContributionsGrantsAmt
CY Contributions Grants$14,116,476CYContributionsGrantsAmt
PY Program Service Revenue$1,693,672PYProgramServiceRevenueAmt
CY Program Service Revenue$1,716,117CYProgramServiceRevenueAmt
PY Investment Income$144,405PYInvestmentIncomeAmt
CY Investment Income$233,634CYInvestmentIncomeAmt
PY Other Revenue-$547,129PYOtherRevenueAmt
CY Other Revenue-$776,897CYOtherRevenueAmt
PY Total Revenue$14,150,537PYTotalRevenueAmt
CY Total Revenue$15,289,330CYTotalRevenueAmt
PY Grants And Similar Paid$552,068PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,051,280CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$5,145,949PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$5,691,936CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$12,375CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$836,383CYTotalFundraisingExpenseAmt
PY Other Expenses$6,326,908PYOtherExpensesAmt
CY Other Expenses$7,123,221CYOtherExpensesAmt
PY Total Expenses$12,024,925PYTotalExpensesAmt
CY Total Expenses$13,878,812CYTotalExpensesAmt
PY Revenues Less Expenses$2,125,612PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,410,518CYRevenuesLessExpensesAmt
Total Assets BOY$13,303,973TotalAssetsBOYAmt
Total Assets EOY$19,463,103TotalAssetsEOYAmt
Total Liabilities BOY$3,803,602TotalLiabilitiesBOYAmt
Total Liabilities EOY$8,196,542TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$9,500,371NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$11,266,561NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE NATIONAL HEMOPHILIA FOUNDATION IS DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDERS AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$5,606,029ExpenseAmt
Grant$88,100GrantAmt
Revenue$426,804RevenueAmt
DescHEALTH EDUCATION AND TRAINING - THROUGH HANDI, NHF'S INFORMATION RESOURCE CENTER, CLOSE TO 3,000 REQUESTS WERE ANSWERED IN 2013. THESE REQUESTS WERE RECEIVED FROM PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC ON SUCH TOPICS AS HEMOPHILIA, VON WILLEBRAND DISEASE, HEALTHCARE COVERAGE, HEPATITIS C, HIV, INHIBITOR FORMATION AND SCHOOL ISSUES. IN CONJUNCTION WITH CDC AND MACRO INTERNATIONAL, HANDI CREATED 2 VIDEOS, ONE ON DISCLOSURE AND THE OTHER ON PARTICIPATING IN SPORTS ACTIVITIES. THESE VIDEOS WERE PRESENTED AT THE CDC BLOOD DISORDERS CONFERENCE ON MARCH 13, 2013. NHF ORGANIZED 2 INHIBITOR EDUCATION SUMMITS IN ENGLISH FOR PATIENTS AND FAMILIES EXPERIENCING THE COMPLICATION OF AN INHIBITOR. THE FIRST WAS JULY 11-14, 2013, IN SEATTLE, WA, WITH 100 FAMILIES ATTENDING AND 336 TOTAL PARTICIPANTS. THE SECOND WAS JULY 25-28, 2013, IN NASHVILLE, TN, WITH 102 FAMILIES AND 365 TOTAL PARTICIPANTS. NHF ORGANIZED AN INHIBITOR EDUCATION SUMMIT IN SPANISH FOR PATIENTS AND FAMILIES IN MIAMI, FL, ON MAY 31 - JUNE 2, 2013, WITH 22 FAMILIES AND 106 TOTAL PARTICIPANTS. PHYSICIAN REPRESENTATIVES FROM NHF'S MEDICAL AND SCIENTIFIC ADVISORY COUNCIL (MASAC) AND REPRESENTATIVES FROM NHF'S NURSING, SOCIAL WORK AND PHYSICAL THERAPY WORKING GROUPS DEVELOPED MORE THAN 40 EDUCATIONAL SESSIONS FOR NHF'S 2013 ANNUAL MEETING IN ANAHEIM, CA, WHICH PROVIDED BOTH CME AND CEU ACCREDITATION. THE PRIMARY GOALS OF NHF'S VICTORY FOR WOMEN PROGRAM ARE: 1) TO INCREASE AWARENESS TO FACILITATE EARLY AND ACCURATE DIAGNOSES; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. 2013 HIGHLIGHTS INCLUDED: PROVIDING FUNDS TO CHAPTERS FOR EDUCATIONAL AND SUPPORT ACTIVITIES FOR GIRLS AND WOMEN WITH BLEEDING DISORDERS; DISSEMINATING A TOOLKIT FOR CHAPTER OUTREACH ACTIVITIES TO SYMPTOMATIC WOMEN AND HEALTHCARE PROVIDERS; EDUCATING COLLEGE HEALTHCARE PROFESSIONALS ON THE SIGNS AND SYMPTOMS OF BLEEDING DISORDERS IN WOMEN TO INCREASE IDENTIFICATION OF WOMEN WHO ARE SYMPTOMATIC; PROVIDED FIVE EDUCATIONAL SESSIONS FOR FEMALE CONSUMERS AT NHF'S 2013 ANNUAL MEETING; AND PROVIDED WORKSHOPS FOR CONSUMERS AT CHAPTER EDUCATION DAYS AND WOMEN'S RETREATS.STEPS FOR LIVING IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION SO THAT CHILDREN, TEENS, ADULTS AND FAMILIES CAN MANAGE THE DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. THIS ALSO INCLUDES ENSURING SUCCESSFUL LIFE TRANSITIONS AND PREVENTING SECONDARY COMPLICATIONS. THE FOLLOWING WERE ACCOMPLISHED IN 2013 ON THE STEPS FOR LIVING WEBSITE: REDESIGNED WEBSITE TO ENHANCE USABILITY AND FUNCTIONALITY; LAUNCHED A NEW BASICS OF BLEEDING DISORDER SECTION THAT WAS ALSO TRANSLATED INTO SPANISH; PRODUCED 3 NEW VIDEOS, INCLUDING A SPANISH AND ENGLISH VERSION OF MY HTC AND ME AND "GOT QUESTIONS: STEPS FOR LIVING HAS ANSWERS." NHF PROVIDED 3 STEPS FOR LIVING "TRAIN-THE-TRAINER" PROGRAMS FOR STAFF AND HEALTHCARE PROVIDERS FROM 24 CHAPTERS ACROSS THE COUNTRY. NHF CONTINUED TO PRINT AND DISTRIBUTE MORE THAN 1,000 EDUCATIONAL PRINT MATERIALS, INCLUDING GUIDELINES FOR GROWING BROCHURE SERIES, A WELCOME KIT FOR NEWLY DIAGNOSED FAMILIES AND THE COLORING BOOK "MY HTC AND ME" IN SPANISH AND ENGLISH.THE NATIONAL HEMOPHILIA FOUNDATION HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NHF ACHIEVES THESE OUTCOMES BY PROVIDING YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2013 NHF PROVIDED TWO TRAININGS TO THE 25 MEMBERS OF NYLI ON TOPICS INCLUDING PEER COACHING, PUBLIC SPEAKING, SOCIAL MEDIA AND CULTURAL COMPETENCE. NYLI MEMBERS WERE PROVIDED OPPORTUNITIES TO SERVE ON A VARIETY OF NHF ADVISORY GROUPS AND ONE MEMBER SERVED AS A NONVOTING MEMBER ON NHF'S BOARD OF DIRECTORS. NYLI MEMBERS PROVIDED 7 EDUCATIONAL SESSIONS, ADVOCATED ON BEHALF OF THEIR STATES IN WASHINGTON, DC, AT NHF'S WASHINGTON DAYS ADVOCACY EVENT, LED PEER EDUCATION PROGRAMS FOR TEENS AND FACILITATED 2 RAP SESSIONS AT NATIONAL MEETINGS. NHF ALSO LAUNCHED THE FUTURE ADVOCACY LEADERS PROGRAM AS PART OF NYLI, IN WHICH YOUNG ADULTS CAN STRENGTHEN THEIR LEADERSHIP SKILLS, LEARN THE KEYS TO SUCCESSFUL ADVOCACY AND PROVIDE YOUTH ADVOCACY WORKSHOPS AT LOCAL CHAPTER EVENTS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$2,759,469ExpenseAmt
Grant$158,732GrantAmt
DescCOMMUNITY SERVICES - NHF'S PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PEOPLE WITH BLEEDING DISORDERS BY EDUCATING FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY AREAS OF FOCUS ARE PAYER AND CONSUMER EDUCATION AND SELF-ADVOCACY. THE PUBLIC POLICY DEPARTMENT PROVIDES TRAINING, TOOLS AND HANDS-ON SUPPORT TO CONSUMERS TO HELP THEM BECOME EFFECTIVE SELF-ADVOCATES. CONSUMERS ARE ENCOURAGED TO PARTICIPATE IN NHF'S ANNUAL WASHINGTON DAYS ADVOCACY EVENT, WHICH IS A GRASSROOTS EVENT THAT BRINGS PATIENTS AND THEIR FAMILIES TO WASHINGTON, DC, TO MEET WITH MEMBERS OF CONGRESS. IN ADDITION, NHF PROVIDES A SERIES OF EDUCATIONAL OPPORTUNITIES FOR PAYERS TO HELP THEM BETTER UNDERSTAND THE UNIQUE HEALTHCARE NEEDS OF THOSE AFFECTED BY BLEEDING DISORDERSNHF MANAGES 6 DISTINCT WEBSITES: HEMOPHILIA.ORG,STEPSFORLIVING.HEMOPHILIA.ORG, HEMAWARE.ORG, AND WEBSITES FOR THE HEMOPHILIA WALK, VICTORY FOR WOMEN AND INHIBITOR SUMMITS. IN 2013 THERE WAS AN 18.5% INCREASE IN WEB TRAFFIC TO HEMOPHILIA.ORG, WITH MORE THAN 474,400 TOTAL UNIQUE VISITORS. MORE THAN 488,200 EMAIL COMMUNICATIONS HAVE BEEN SENT THROUGH SUCH AVENUES AS: ENOTES, HEMAWARE EXPRESS, MEDICAL ALERTS, ADVOCACY ALERTS, MEDIA ALERTS, CHAPTER UPDATES AND DEVELOPMENT PLEAS. NHF HAS MORE THAN 10,200 LIKES ON FACEBOOK (20% INCREASE FROM PREVIOUS YEAR) AND MORE THAN 9,700 TWITTER FOLLOWERS (362% INCREASE FROM PREVIOUS YEAR).Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,600,533ExpenseAmt
Grant$238,281GrantAmt
DescCHAPTER SERVICES - NHF'S CHAPTER SERVICES DEPARTMENT PROVIDES COMMUNITY SUPPORT BY HELPING ITS 52 MEMBER CHAPTERS OFFER EDUCATION, RESOURCES AND REFERRALS TO AFFECTED MEMBERS OF THE BLEEDING DISORDERS COMMUNITY IN THE AREAS THAT EACH CHAPTER SERVES. CHAPTER SERVICES OFFERS THE CHAPTERS FINANCIAL SUPPORT IN THE FORM OF GRANTS, SPONSORS TRAINING MEETINGS AND PROVIDES SOME HOTEL EXPENSE SUPPORT FOR ADVOCACY MEETINGS. DEPARTMENT STAFF MEMBERS MENTOR CHAPTER LEADERS ON HOW TO CREATE, EXECUTE AND EVALUATE EDUCATIONAL PROGRAMS DESIGNED FOR THEIR AFFECTED CONSTITUENTS. IN 2013 CHAPTER SERVICES HELD THREE REGIONAL LEADERSHIP SEMINARS OFFERING TRAINING ON ETHICAL ISSUES FOR NONPROFITS, HEALTHCARE FOR CHAPTERS, FUNDRAISING, AND ADVOCACY AND EDUCATIONAL INITIATIVES.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$1,024,200ExpenseAmt
Grant$516,167GrantAmt
DescRESEARCH - NHF AWARDED TWO NHF/BAXTER CLINICAL FELLOWSHIPS TO FELLOWS FROM THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL AND THE UNIVERSITY OF COLORADO DENVER. NHF AWARDED NHF/NOVO NORDISK CAREER DEVELOPMENT AWARD TO A RESEARCHER AT THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO. THE NHF NURSING EXCELLENCE FELLOWSHIP WAS AWARDED TO A NURSE AT THE CHILDREN'S HOSPITALS AND CLINICS OF MINNESOTA FOR HER PROJECT, "TELEHEALTH VIDEOCONFERENCING FOR CHILDREN WITH HEMOPHILIA AND THEIR FAMILIES: A CLINICAL PROJECT." THE NHF SOCIAL WORK EXCELLENCE FELLOWSHIP WAS AWARDED TO TWO SOCIAL WORKERS AT RUSH HEMOPHILIA & THROMBOPHILIA CENTER-RUSH UNIVERSITY MEDICAL CENTER IN CHICAGO FOR THEIR PROJECT, "UNDERSTANDING THE ROLE OF RELIGIOSITY AND SPIRITUALITY IN ADOLESCENT PATIENTS WITH INHERITED BLEEDING DISORDERS." THE NHF PHYSICAL THERAPY EXCELLENCE FELLOWSHIP WAS AWARDED TO A PHYSICAL THERAPIST AT THE HEMOPHILIA CARE PROGRAM, PUGET SOUND BLOOD CENTER IN SEATTLE FOR HER PROJECT, "IDENTIFYING FALL RISK IN PATIENTS WITH HEMOPHILIA".Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$1,024,200TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$516,167TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$10,990,231TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent EndowmentsYes (1)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document103IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee65EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members19GoverningBodyVotingMembersCnt
Independent Voting Member19IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or StockholdersYes (1)MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJORDANA ZEGERPersonNm
Phone2123283700PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1116 WEST 32ND STREET 11TH FLAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10001ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (27 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
JORGE DE LA RIVA
CHAIR10.00Yes (X)Yes (X)$0$0$0
KENNETH TRADER
VICE-CHAIR10.00Yes (X)Yes (X)$0$0$0
CAROL SIMONETTI
SECRETARY10.00Yes (X)Yes (X)$0$0$0
BRIAN ANDREW
TREASURER10.00Yes (X)Yes (X)$0$0$0
JEFF ALEXIS MD
DIRECTOR10.00Yes (X)$0$0$0
JORDAN BLACK
DIRECTOR10.00Yes (X)$0$0$0
MARK BORRELIZ
DIRECTOR10.00Yes (X)$0$0$0
DAVID COHENOUR
DIRECTOR10.00Yes (X)$0$0$0
BARBARA GORDON
DIRECTOR10.00Yes (X)$0$0$0
JAMES F HAMMEL MD
DIRECTOR10.00Yes (X)$0$0$0
KRISTIE KAY OSTASH MD
DIRECTOR10.00Yes (X)$0$0$0
JAMES A HEER
DIRECTOR10.00Yes (X)$0$0$0
MATT RHODES
DIRECTOR10.00Yes (X)$0$0$0
DUTTA SATADIP
DIRECTOR10.00Yes (X)$0$0$0
GILBERT C WHITE II MD
DIRECTOR10.00Yes (X)$0$0$0
LYNN WILMARTH
DIRECTOR10.00Yes (X)$0$0$0
STEVE HELM
DIRECTOR10.00Yes (X)$0$0$0
KENNETH MOORE
DIRECTOR10.00Yes (X)$0$0$0
DAVID STERNBERG
DIRECTOR10.00Yes (X)$0$0$0
VAL BIAS
CHIEF EXECUTIVE OFFICER40.00Yes (X)$282,644$0$71,908
JORDANA ZEGER
CHIEF OPERATING OFFICER40.00Yes (X)$192,840$0$33,872
JOSEPH KLEIBER
SENIOR V.P. OF CHAPTER SERVICES40.00$184,149$0$43,792Yes (X)
MARY ANN LUDWIG
V.P. OF DEVELOPMENT40.00$216,098$0$29,949Yes (X)
NEIL FRICK
V.P. OF RESEARCH & MEDICAL EDUCATION40.00$138,237$0$21,910Yes (X)
JOHN INDENCE
V.P. OF MARKETING AND COMMUNICATION40.00$137,031$0$21,866Yes (X)
CHRISTA DARDAGANIAN
DIRECTOR OF EDUCATION STRATEGY40.00$131,196$0$8,288Yes (X)
SANDRA ROTELLINI
DIRECTOR OF CHAPTER SERVICE40.00$120,092$0$19,533Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,402,287TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$251,118TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K10IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1CityContractorAddress/USAddress/CityStateContractorAddress/USAddress/StateZIP CodeContractorAddress/USAddress/ZIPCodeServicesServicesDescCompensationCompensationAmt
PAM AM EQUITIES INC
18 EAST 50TH STREET 10TH FLNEW YORKNY10022RENT OF NYC OFFICE$447,247
THE MAGAZINE GROUP
1707 L STREET NW 3RD FLOORWASHINGTONDC20036PRODUCTION OF HEMAWARE$422,288
SCHERER CLINICAL COMMUNICATIONS LLC
17 WEST PROSPECT STREETHONEYWELLNJ08525PROFESSIONAL SERVICES: ENDURING SYMPOSIU$222,328
STRATEGIC MARKETING & MAILING INC
3002 N APOLLO DRIVECHAMPAIGNIL61822DESIGN, LETTERSHOP AND PRINTING SERVICES$217,792
CAVAROCCHI RUSCIO DENNIS ASSOCIATES L
600 MARYLAND AVE SW STE 835WWASHINGTONDC20024CONSULTANT-STRATEGIC SERVICES AND PUBLIC$185,734
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K6CntrctRcvdGreaterThan100KCnt
Federated Campaigns$28,248FederatedCampaignsAmt
Fundraising$1,551,464FundraisingAmt
Government Grants$863,450GovernmentGrantsAmt
All Other Contributions$11,673,314AllOtherContributionsAmt
Total Contributions$14,116,476TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
ADVERTISING541800$1,289,313$1,289,313
EDUCATIONAL SEMINARS611710$416,957$416,957
PUBLICATIONS900099$9,847$9,847
FieldValueIRS element (for citing)
Total Program Service Revenue$1,716,117TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$157,447TotalRevenueColumnAmt
Exclusion$157,447ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,384,973SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,308,786SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$76,187SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$76,187TotalRevenueColumnAmt
Exclusion$76,187ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$29,913FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,551,464ContriRptFundraisingEventAmt
Fundraising Direct Expenses$815,602FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$785,689TotalRevenueColumnAmt
Exclusion-$785,689ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescMISCELLANEOUSDesc
Business611710BusinessCd
Total Revenue Column$8,792TotalRevenueColumnAmt
Related Or Exempt Func Income$8,792RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$8,792OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$15,289,330TotalRevenueColumnAmt
Related Or Exempt Func Income$435,596RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$1,289,313UnrelatedBusinessRevenueAmt
Exclusion-$552,055ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$942,136TotalAmt
Program Services$942,136ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$59,144TotalAmt
Program Services$59,144ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$50,000TotalAmt
Program Services$50,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$809,206TotalAmt
Program Services$607,210ProgramServicesAmt
Management And General$147,611ManagementAndGeneralAmt
Fundraising$54,385FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,763,120TotalAmt
Program Services$2,727,779ProgramServicesAmt
Management And General$780,713ManagementAndGeneralAmt
Fundraising$254,628FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$212,422TotalAmt
Program Services$179,538ProgramServicesAmt
Management And General$16,399ManagementAndGeneralAmt
Fundraising$16,485FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$553,368TotalAmt
Program Services$486,849ProgramServicesAmt
Management And General$37,021ManagementAndGeneralAmt
Fundraising$29,498FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$353,820TotalAmt
Program Services$311,288ProgramServicesAmt
Management And General$23,671ManagementAndGeneralAmt
Fundraising$18,861FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$190,337TotalAmt
Program Services$5,187ProgramServicesAmt
Management And General$185,150ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$13,076TotalAmt
Management And General$12,503ManagementAndGeneralAmt
Fundraising$573FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$183,941TotalAmt
Program Services$183,941ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$12,375TotalAmt
Fundraising$12,375FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$27,590TotalAmt
Management And General$27,590ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,205,840TotalAmt
Program Services$777,772ProgramServicesAmt
Management And General$385,717ManagementAndGeneralAmt
Fundraising$42,351FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$161,964TotalAmt
Program Services$130,144ProgramServicesAmt
Management And General$25,152ManagementAndGeneralAmt
Fundraising$6,668FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$480,280TotalAmt
Program Services$310,414ProgramServicesAmt
Management And General$148,907ManagementAndGeneralAmt
Fundraising$20,959FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$3,081,953TotalAmt
Program Services$2,958,647ProgramServicesAmt
Management And General$56,737ManagementAndGeneralAmt
Fundraising$66,569FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$11,150TotalAmt
Program Services$8,034ProgramServicesAmt
Management And General$2,340ManagementAndGeneralAmt
Fundraising$776FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$35,301TotalAmt
Management And General$35,201ManagementAndGeneralAmt
Fundraising$100FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
UNRELATED BUSINESS INCO$10,365$10,365
STATIONERY AND PRINTING$855,863$653,358$13,748$188,757
EQUIPMENT RENTAL$537,015$465,282$60,398$11,335
POSTAGE AND SHIPPING$177,305$80,483$3,003$93,819

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$151,241TotalAmt
Program Services$42,660ProgramServicesAmt
Management And General$90,337ManagementAndGeneralAmt
Fundraising$18,244FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$13,878,812TotalAmt
Program Services$10,990,231ProgramServicesAmt
Management And General$2,052,198ManagementAndGeneralAmt
Fundraising$836,383FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$6,417,771BOYAmt
EOY$8,616,494EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$798,526BOYAmt
EOY$1,680,631EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$599,427BOYAmt
EOY$860,550EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$124,358BOYAmt
EOY$132,967EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,379,040LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,352,611LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$24,596BOYAmt
EOY$26,429EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$5,191,616BOYAmt
EOY$7,951,982EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$147,679BOYAmt
EOY$194,050EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$13,303,973BOYAmt
EOY$19,463,103EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,367,682BOYAmt
EOY$1,862,773EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$2,280,759BOYAmt
EOY$6,152,418EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$155,161BOYAmt
EOY$181,351EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$3,803,602BOYAmt
EOY$8,196,542EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$6,481,952BOYAmt
EOY$7,966,957EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,768,419BOYAmt
EOY$3,049,604EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$250,000BOYAmt
EOY$250,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,500,371BOYAmt
EOY$11,266,561EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$13,303,973BOYAmt
EOY$19,463,103EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,410,518ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$355,147NetUnrlzdGainsLossesInvstAmt
Donated Services And Use Fclts$525DonatedServicesAndUseFcltsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit RequiredYes (1)FederalGrantAuditRequiredInd
Federal Grant Audit PerformedYes (1)FederalGrantAuditPerformedInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,994,445CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$8,197,715CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,705,585CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$12,859,589CurrentTaxYearMinus1YearAmt
Current Tax Year$14,116,476CurrentTaxYearAmt
Total$49,873,810TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,994,445CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$8,197,715CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,705,585CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$12,859,589CurrentTaxYearMinus1YearAmt
Current Tax Year$14,116,476CurrentTaxYearAmt
Total$49,873,810TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$29,439,064SubstantialContributorsTotAmt
Public Support Total170$20,434,746PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$83,065CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$162,097CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$157,760CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$151,910CurrentTaxYearMinus1YearAmt
Current Tax Year$157,447CurrentTaxYearAmt
Total$712,279TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$147,971CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$86,234CurrentTaxYearMinus1YearAmt
Current Tax Year$40,297CurrentTaxYearAmt
Total$274,502TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$650,680CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$319,600CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$343,205CurrentTaxYearMinus2YearsAmt
Current Tax Year$8,792CurrentTaxYearAmt
Total$1,322,277TotalAmt
FieldValueIRS element (for citing)
Total Support$52,182,868TotalSupportAmt
Gross Receipts Rltd Activities$3,397,614GrossReceiptsRltdActivitiesAmt
Public Support CY1700.39160PublicSupportCY170Pct
Public Support PY1700.44640PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings MembersYes (1)MailingsMembersInd
Mailings Members$26,208MailingsMembersAmt
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$229,181DirectContactLegislatorsAmt
Rallies DemonstrationsYes (1)RalliesDemonstrationsInd
Rallies Demonstrations$27,725RalliesDemonstrationsAmt
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$283,114TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationTHE PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS BY WORKING WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY INITIATIVES OF THE DEPARTMENT ARE THE NATIONAL ADVOCACY EMPOWERMENT PROGRAM (NAEP) AND WASHINGTON DAYS. THE NAEP PROVIDES TRAINING, TOOLS AND SUPPORT TO ASSIST CONSUMERS IN BECOMING EFFECTIVE ADVOCATES. WASHINGTON DAYS IS NHF'S ANNUAL GRASSROOTS EVENT WHICH BROUGHT PATIENTS TO WASHINGTON D.C. TO MEET WITH MEMBERS OF CONGRESS.ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$287,878BeginningYearBalanceAmt
Investment Earnings Or Losses$26,933InvestmentEarningsOrLossesAmt
End Year Balance$314,811EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$271,335BeginningYearBalanceAmt
Investment Earnings Or Losses$16,543InvestmentEarningsOrLossesAmt
End Year Balance$287,878EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$268,750BeginningYearBalanceAmt
Investment Earnings Or Losses$2,585InvestmentEarningsOrLossesAmt
End Year Balance$271,335EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$261,250BeginningYearBalanceAmt
Investment Earnings Or Losses$7,500InvestmentEarningsOrLossesAmt
End Year Balance$268,750EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$257,500BeginningYearBalanceAmt
Investment Earnings Or Losses$3,750InvestmentEarningsOrLossesAmt
End Year Balance$261,250EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY0.79410PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.20590TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$175,302OtherCostOrOtherBasisAmt
Depreciation$168,149DepreciationAmt
Book Value$7,153BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$187,759OtherCostOrOtherBasisAmt
Depreciation$185,373DepreciationAmt
Book Value$2,386BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,015,979OtherCostOrOtherBasisAmt
Depreciation$999,089DepreciationAmt
Book Value$16,890BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$26,429TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (3 entries)

DescDescBook ValueBookValueAmtMethod ValuationMethodValuationCd
CORPORATE BONDS$4,343,959F
COMMON STOCKS$1,532,953F
EXCHANGE TRADED EQUITY FUNDS$2,075,070F
FieldValueIRS element (for citing)
Total Book Value Securities$7,951,982TotalBookValueSecuritiesAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
DEFERRED RENT$40,451
457B PLAN PAYABLE$140,900
FieldValueIRS element (for citing)
Total Liability$181,351TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$15,666,762TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$355,147NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$22,285DonatedServicesAndUseFcltsAmt
Revenue Not Reported$377,432RevenueNotReportedAmt
Revenue Subtotal$15,289,330RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$15,289,330TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$13,900,572TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$21,760DonatedServicesUseFcltsAmt
Expenses Not Reported$21,760ExpensesNotReportedAmt
Expenses Subtotal$13,878,812ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$13,878,812TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:THE FOUNDATION TEMPORARILY RESTRICTED $26,933 IN 2013 REPRESENTING INCOME FROM THE ENDOWMENT FUND TO BE USED FOR A RESEARCH GRANT. THE $64,811 UNDER TEMPORARILY RESTRICTED ASSETS REPRESENTS INCOME ACCUMULATION FROM INCEPTION JULY 1, 2008 TO DECEMBER 31, 2013.
PART X, LINE 2:THE FOUNDATION IS A NONPROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE AND HAS MADE NO PROVISION FOR FEDERAL OR STATE INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE (IRS) NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE. OTHER SIGNIFICANT TAX POSITIONS INCLUDE ITS DETERMINATION OF WHETHER ANY AMOUNTS ARE SUBJECT TO UNRELATED BUSINESS INCOME TAX (UBIT). THE FOUNDATION HAS ACTIVITIES SUBJECT TO UBIT IN THE YEARS ENDED 2013 AND 2012 AND HAS FILED FORM 990T. ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS BEEN DETERMINED THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. THE FOUNDATION IS REQUIRED TO FILE FORM 990 (RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX), WHICH IS SUBJECT TO EXAMINATION BY THE IRS UP TO THREE YEARS FROM THE EXTENDED DUE DATE OF THE TAX RETURN. THE FORMS 990 FOR 2010 THROUGH 2012 ARE OPEN TO EXAMINATION BY THE IRS AS OF DECEMBER 31, 2013. UNRELATED BUSINESS INCOME TAX FOR THE YEARS ENDED DECEMBER 31, 2013 AND 2012 AMOUNTED TO $10,365 AND $27,244, RESPECTIVELY.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICARegionTxt
Purpose Of GrantDONATION TO "CLOSE THE GAP CAMPAIGN" TO MAKE POSITIVE STRIDES FOR SUSTAINABLE CARE AND TREATMENT FOR ALL, INTERNATIONALLY.PurposeOfGrantTxt
Cash Grant$50,000CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Name Of Event1WALK-A-THONNameOfEvent1Amt
Gross Receipts Event1$1,061,736GrossReceiptsEvent1Amt
Charitable Contri Event1$1,061,736CharitableContriEvent1Amt
Non Cash Prizes Event1$1,455NonCashPrizesEvent1Amt
Rent Facility Costs Event1$42,229RentFacilityCostsEvent1Amt
Food And Beverage Event1$8,212FoodAndBeverageEvent1Amt
Entertainment Event1$2,800EntertainmentEvent1Amt
Other Direct Expenses Event1$522,907OtherDirectExpensesEvent1Amt
Name Of Event2SOIREENameOfEvent2Amt
Gross Receipts Event2$392,329GrossReceiptsEvent2Amt
Charitable Contri Event2$377,981CharitableContriEvent2Amt
Gross Revenue Event2$14,348GrossRevenueEvent2Amt
Non Cash Prizes Event2$2,500NonCashPrizesEvent2Amt
Rent Facility Costs Event2$52,285RentFacilityCostsEvent2Amt
Food And Beverage Event2$0FoodAndBeverageEvent2Amt
Entertainment Event2$0EntertainmentEvent2Amt
Other Direct Expenses Event2$83,980OtherDirectExpensesEvent2Amt
Other Events Total6OtherEventsTotalCnt
Gross Receipts Other Events$127,312GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$111,747CharitableContriOtherEventsAmt
Gross Revenue Other Events$15,565GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events$1,624NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events$44,344RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$8,781FoodAndBeverageOtherEventsAmt
Entertainment Other Events$1,040EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events$43,445OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,581,377GrossReceiptsTotalAmt
Charitable Contributions Tot$1,551,464CharitableContributionsTotAmt
Gross Revenue Total Events$29,913GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$5,579NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$138,858RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$16,993FoodAndBeverageTotalEventsAmt
Entertainment Total Events$3,840EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$650,332OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$815,602DirectExpenseSummaryEventsAmt
Net Income Summary-$785,689NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (37 entries)

Address Line1USAddress/AddressLine1CityUSAddress/CityStateUSAddress/StateZIP CodeUSAddress/ZIPCodeRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR STE 2200 CB 1350CHAPEL HILLNC27599566001393501(C)(3)$64,921CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS FOR 2 INDIVIDUALS
UNIVERSITY OF TEXAS- HOUSTON HEALTH SCIENCE
POBOX 203382HOUSTONTX77216741761309$14,063INSURANCE, CAREER FOCUSED PROGRAMS, PATIENCE ASSISTANCE FOR CAREER/EDUCATIONAL NEEDS
BLOOD CENTER OF WISCONSIN INC
PO BOX 78961MILWAUKEEWI53278390807235501(C)(3)$21,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION AND RESEARCH IN BLEEDING AND CLOTTING DISORDERS
DMC EDUCATION & RESEARCH
4201 ST ANTTOINE 9C/UHCDETROITMI48201382562709501(C)(3)$47,367CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
BLEEDING DISORDERS ASSN OF NE NEW YORK
PO BOX 947 172B COLUMBIA TURNPIKERENSSELAERNY12144222519156501(C)(3)$24,250ADVOCACY CAPACITY BUILDING AND STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA COUNCIL OF CALIFORNIA
1507 21ST STREET STE 103SACRAMENTOCA95811680182998501(C)(3)$52,000SUPPORT AN EXPANSION IN HCC'S ADVOCACY INFRASTRUCTURE TO ASSIST THE COUNCIL IN ITS EFFORTS TO ACCESS CARE TO THOSE AFFECTED BY BLEEDING DISORDERS IN THE STATE OF CALIFORNIA.
HAWAII HEMOPHILIA FOUNDATION
45-103B WAILELE RDKANEOHEHI96744271851936501(C)(3)$25,500STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA ASSN OF CAPITAL AREA
10560 MAIN STREET STE 419FAIRFAXVA22030541702561501(C)(3)$10,920CHAPTER-VICTORY FOR WOMAN PROGRAM AND STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA OF IOWA INC
58N 5TH STREET PO BOX 415CENTRAL CITYIA52214421334948501(C)(3)$16,231STAFFING ASSISTANCE FOR CHAPTER
ROCKY MTN HEMOPHILIA & BLEEDING DISORDERS
2100 FAIRWAY DR STE 107BOZEMANMT59715810533720501(C)(3)$19,250CHAPTER-VICTORY FOR WOMAN PROGRAM AND STAFFING ASSISTANCE FOR CHAPTER
TEXAS CENTRAL HEMOPHILIA ASSN
12700 HILLCREST RD STE 191DALLASTX75230751187148501(C)(3)$57,500ADVOCACY CAPACITY BUILDING AND STAFFING ASSISTANCE FOR CHAPTER
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD PO BOXMILWAUKEEWI53226390806261501(C)(3)$100,000CLINICAL RESEARCH FELLOWSHIP PROMOTIN INNOVATION IN BLEEDING AND CLOTTING DISORDERS26509
VANDERBILT UNIVERSITY MEDICAL CTR
2301 VANDERBILT PLACENASHVILLETN37235620476822501(C)(3)$24,800EXPAND CLINICAL HOURS AND GEOGRAPHIC AREA FOR WOMAN WITH BLEEDING DISORDERS
ST LUKE'S HEMOPHILIA CENTER
100 E IDAHO STREETBOISEID83712820161600501(C)(3)$15,000THERAPY FOR ALL LIFE STAGES, INCLUDING THE AGING POPULATION
N DAKOTA HEMOSTASIS TROMBOSIS TREATMENT
520 MAIN STREET SUITE 700FARGOND58102450398104501(C)(3)$10,595SURVEY OF PATIENT KNOWLEDGE AND ATTITUDES; COORDINATE CARE WITH EDUCATORS, SCHOOL NURSES, DENTISTS, ETC
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980461RICHMONDVA23292546001758501(C)(3)$10,476GENETIC COUNSELING
HEMOPHILIA THROMBOSIS TREATMENT CTR HAWAII
55 MERCHANT STREET 26TH FLOORHONOLULUHI96813990246364501(C)(3)$7,850PATIENT OUTREACH TO REMOTE AREAS
UNIVERSITY HOSPITALS CASE MEDICAL CTR
11100 EUCLID AVE MAILSTOP 6054CLEVELANDOH44106340714775501(C)(3)$7,800IMPLEMENT SHARED MEDICAL APPOINTMENTS PROGRAM FOR PEDIATRIC POPULATION AND PATIENT ASSISTANCE FOR TRANSPORTATION
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVEWASHINGTONDC20010521640403501(C)(3)$7,500ADOLESCENT TRANSITION CLINIC
SANGRE DE ORO INC
1601 VALDEZ DRIVE NEALBUQUERQUENM87112850378433501(C)(3)$7,024STAFFING ASSISTANCE FOR CHAPTER
BLEEDING DISORDER OF WASHINGTON
9639 FIRDALE AVE STE AEDMONDSWA98020916068857501(C)(3)$9,249STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA FOUNDATION OF OREGON
10940 SW BARNES RD 129PORTLANDOR97225930551733501(C)(3)$8,840STAFFING ASSISTANCE FOR CHAPTER
ALASKA HEMOPHILIA ASSOCIATION
3340 PROVIDENCE DRIVE STE A352ANCHORAGEAK99508943143226501(C)(3)$11,250STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA CTR AT OREGON HEALTH & SCIENCE
707 SW GAINES STREETPORTLANDOR97239237083114501(C)(3)$5,000FUNDING FOR PSYCHOLOGY FELLOWSHIPS AND SURVEYS
SOUTHWEST OHIO HEMOPHILIA FOUNDATION
3131 SOUTH DIXIE DRIVE SUITE 103MORAINEOH45439311527065501(C)(3)$22,000ADVOCACY CAPACITY BUILDING
FLORIDA HEMOPHILIA ASSOCIATION
915 MIDDLE RIVER DR STE 421FT LAURDERDALEFL33304592072352501(C)(3)$5,700ADVOCACY STRATEGIC PLANNING INITIATIVE
VIRGINIA HEMOPHILIA FOUNDATION
PO BOX 188MIDLOTHIANVA23113541183181501(C)(3)$11,055CHAPTER-VICTORY FOR WOMAN PROGRAM
NORTHERN OHIO HEMOPHILIA FOUNDATION
C/O LYNN CAPRETTO 5000 ROCKSIDE RDINDEPENDENCEOH44131341018501501(C)(3)$10,879CHAPTER-VICTORY FOR WOMAN PROGRAM AND STAFFING ASSISTANCESUITE 230
HEMOPHILIA FOUNDATION OF MICHIGAN
1921 W MICHIGAN AVEYPSILANTIMI48197381905673501(C)(3)$10,350CHAPTER-VICTORY FOR WOMAN PROGRAM
TULANE UNIV SCHOOL OF MEDICINE
1430 TULANE AVE CAMPUS MAILBOX TB -NEW ORLEANSLA70112720423889501(C)(3)$96,535CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS31
DRDA-UNIVERSITY OF MICHIGAN
3003 SOUTH STATE ROOM 1054ANN ARBORMI48109386006309501(C)(3)$70,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
UNIVERSITY OF COLORADO DENVER
2199 S UNIVERSITY BLVDDENVERCO80210840404231501(C)(3)$37,986CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVELA JOLLACA92093956006144501(C)(3)$35,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION AND RESEARCH IN BLEEDING AND CLOTTING DISORDERS
CHILDREN'S HOSPITAL AND CLINICS OF MINNESOTA
2525 CHICAGO AVEMINNEAPOLISMN55404411814223501(C)(3)$13,211SOOZIE COURTER NURSING EXCELLENCE SCHOLARSHIP
PUGET SOUND BLOOD CENTER
ATTN CASH RECEIPTS 921 TERRY AVESEATTLEWA98104911019655501(C)(3)$10,000PHYSICAL THERAPIST EXCELLENCE FELLOWSHIP
RUSH UNIVERSITY MEDICAL CTR
1653 W CONGRESS PARKWAYCHICAGOIL60612362174823501(C)(3)$10,000SOCIAL WORKERS' EXCELLENCE FELLOWSHIP
UNIVERSITY OF SOUTHERN CALIFORNIA
191 MONTOUR RUN ROADCORAOPOLISPA15108951642394501(C)(3)$10,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
FieldValueIRS element (for citing)
Total501c3 Org37Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (5 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
TRAVEL ASSISTANCE TO FAMILIES INVITED TO ANNUAL MEETING.81$34,400
KEVIN CHILDS SCHOLARSHIP AWARD2$1,500
DOREEN MCMULLAN MCCARTHY MEMORIAL ACADEMIC AWARD1$2,500
ACADEMIC SCHOLARSHIP1$2,500
EMERGENCY FINANCIAL ASSISTANCE PROVIDED TO INDIVIDUALS WITH HEMOPHILIA OR OTHER BLOOD-RELATED DISEASES.56$18,244

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationBASED ON THE NHF REQUIREMENTS ALL CHAPTERS THAT WERE AWARDED GRANTS PROVIDE QUARTERLY PROGRAM AND FINANCIAL REPORTS REGARDING THEIR GRANTS WITH US. ONLY AFTER SUBMISSION OF A QUARTERLY PROGRAM REPORT DESCRIBING THEIR PROGRESS IN COMPLETING DELINEATED TASKS AND COMPLETE FINANICIAL REPORTING WILL NHF RELEASE THE NEXT QUARTERLY PAYMENT FOR THE GRANT RECIPIENTS. THE FINAL PAYMENT IS HELD UNTIL A FULL FINAL SUMMARY REPORT IS HANDED IN, ALL TASKS HAVE BEEN ADDRESSED AND FINANCIAL STATEMENTS RECONCILED (GRANTS TO CHAPTERS). ALL GRANTEES FOR THE RESEARCH PROGRAMS MUST SUBMIT FINANCIAL REPORTS FROM THEIR INSTITUTION STATING THE PAYMENTS HAVE BEEN RECEIVED AND APPROPRIATE EXPENSES INCURRED. DEPENDING UPON THE AWARD, THESE REPORTS ARE EITHER DUE ON A SEMI-ANNUAL OR ANNUAL BASIS. SUBSEQUENT PAYMENTS AND DECISIONS REGARDING CONTINUATION OF MULTI-YEAR GRANTS ARE DEPENDENT UPON ANNUAL RECEIPT, REVIEW AND APPROVAL OF BUDGETS, FINANCIAL REPORTS, CONTINUATION APPLICATIONS AND SCIENTIFIC PROGRESS REPORTS. AS A CONDITION OF THEIR AWARD, ALL GRANTEES SIGN AN AGREEMENT WITH NHF TO ABIDE BY OUR ORGANIZATION'S GRANT POLICIES AND PROCEDURES, WHICH ALSO INCLUDES A DESCRIPTION OF AUTHORIZED AND UNAUTHORIZED EXPENSES.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr PlanYes (1)SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
VAL BIAS
CHIEF EXECUTIVE OFFICER$276,484$0$5,000$0$1,160$0$46,381$0$26,925$0$355,950$0$0$0
JORDANA ZEGER
CHIEF OPERATING OFFICER$189,197$0$1,000$0$2,643$0$8,446$0$26,803$0$228,089$0$0$0
JOSEPH KLEIBER
SENIOR V.P. OF CHAPTER SERVICES$180,654$0$1,000$0$2,495$0$18,367$0$26,750$0$229,266$0$0$0
MARY ANN LUDWIG
V.P. OF DEVELOPMENT$212,326$0$1,000$0$2,772$0$21,691$0$9,656$0$247,445$0$0$0
NEIL FRICK
V.P. OF RESEARCH & MEDICAL EDUCATION$133,857$0$4,000$0$380$0$13,679$0$9,273$0$161,189$0$0$0
JOHN INDENCE
V.P. OF MARKETING AND COMMUNICATION$135,591$0$1,000$0$440$0$13,650$0$9,258$0$159,939$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 3THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE WITH INPUT FROM HUMAN RESOURCES/COO AS WELL AS USING SALARY SURVEYS.
PART I, LINE 4BPART I, LINE 4B: THE ORGANIZATION MAINTAINS A 457(B) PLAN.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 6THE ORGANIZATION HAS CHAPTER MEMBERS WHO ARE VOTING MEMBERS OF THE ORGANIZATION. AN ORGANIZATION WHOSE MISSION AND PURPOSE IS CONSISTENT WITH THE MISSION OF NHF MAY APPLY TO BE A CHAPTER MEMBER. THE CEO IS AUTHORIZED TO ACCEPT OR DENY CHAPTER MEMBER STATUS.
FORM 990, PART VI, SECTION A, LINE 7ACHAPTER MEMBERS ARE ENTITLED TO VOTE FOR DIRECTORS FOR EACH OF THE VACANCIES TO BE FILLED DURING ELECTIONS.
FORM 990, PART VI, SECTION B, LINE 11A COPY OF FORM 990 IS CIRCULATED ELECTRONICALLY TO THE ORGANIZATION'S BOARD MEMBERS. THE FULL BOARD WILL HAVE THE OPPORTUNITY TO HAVE THE FORM 990 PRESENTED TO THEM BY THE AUDITOR BY CONFERENCE CALL PRIOR TO BEING SUBMITTED. THE CEO, COO AND CONTROLLER ARE ALSO PRESENT ON THE CALL.
FORM 990, PART VI, SECTION B, LINE 12CBOARD MEMBERS DISCLOSE IN WRITING ANNUALLY AND VERBALLY AT THE BEGINNING OF EACH MEETING. EMPLOYEES DISCLOSE AT HIRE AND ANNUALLY. CEO/COO MANAGE CONFLICTS FOR EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE WITH INPUT FROM HUMAN RESOURCES/COO AS WELL AS USING SALARY SURVEYS.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICTS OF INTEREST AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS WEBSITE.
FORM 990, PART X, LINE 9 AND LINE 15CERTAIN AMOUNTS PREVIOUSLY REPORTED HAVE BEEN RECLASSIFIED TO CONFORM TO CURRENT YEAR PRESENTATION PER THE AUDITED FINANCIAL STATEMENTS. THE BEGINNING BALANCE FOR PREPAID EXPENSES HAS BEEN RESTATED TO REFLECT A RECLASSIFICATION OF BOTH 457B PLAN ASSETS OF $95,041 AND SECURITY DEPOSITS OF $52,638 TO "OTHER ASSETS". THIS RESULTS IN A DECREASE IN PREPAID EXPENSES OF $147,679 ON LINE 9 AND A CORRESPONDING INCREASE TO LINE 15, "OTHER ASSETS".
FORM 990, PART X, LINE 25CERTAIN AMOUNTS PREVIOUSLY REPORTED HAVE BEEN RECLASSIFIED TO CONFORM TO CURRENT YEAR PRESENTATION PER THE AUDITED FINANCIAL STATEMENTS. SUCH CHANGES WERE LIMITED TO REFLECTING THE ASSET AND LIABILITY PERTAINING TO 457(B) PLAN AT GROSS AMOUNTS ON THE STATEMENTS OF FINANCIAL POSITION. SUCH RECLASSIFICATION HAD NO IMPACT ON THE RESULTS OF OPERATIONS ON EITHER YEAR PRESENTED. THE BEGINNING BALANCE ON LINE 25, OTHER LIABILITIES, WAS INCREASED BY $95,041 WHICH REPRESEENTS THE 457(B) LIABILITY.

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