FURP.ORG / PUBLIC DATA EXPLORER

DYSAUTONOMIA INTERNATIONAL INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
DYSAUTONOMIA INTERNATIONAL INC (EIN 45-5437249)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-10-13
IRS object ID
202522879349300602
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-10-13T23:03:15-07:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN112883699PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SABEL & OPLINGER CPA PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1106 Prospect StAddressLine1Txt
CitySouthamptonCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11968ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN455437249EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DYSAUTONOMIA INTERNATIONAL INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlDYSABusinessNameControlTxt
Phone6312021720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 596AddressLine1Txt
CityEAST MORICHESCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11940ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSHANNON KOPLITZPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2025-10-14SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonROBERT J STREBEL CPAPreparerPersonNm
PTINP00435213PTIN
Phone6312832370PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSHANNON KOPLITZPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 596AddressLine1Txt
CityEAST MORICHESCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11940ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,130,047GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.DYSAUTONOMIAINTERNATIONAL.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2012FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTo increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.ActivityOrMissionDesc
Voting Members Governing Body7VotingMembersGoverningBodyCnt
Voting Members Independent6VotingMembersIndependentCnt
Total Employee10TotalEmployeeCnt
Total Volunteers300TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,118,815PYContributionsGrantsAmt
CY Contributions Grants$874,033CYContributionsGrantsAmt
PY Program Service Revenue$116,462PYProgramServiceRevenueAmt
CY Program Service Revenue$159,245CYProgramServiceRevenueAmt
PY Investment Income$552PYInvestmentIncomeAmt
CY Investment Income$96,769CYInvestmentIncomeAmt
PY Other Revenue-$14,486PYOtherRevenueAmt
CY Other Revenue-$18,979CYOtherRevenueAmt
PY Total Revenue$1,221,343PYTotalRevenueAmt
CY Total Revenue$1,111,068CYTotalRevenueAmt
PY Grants And Similar Paid$263,200PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$110,825CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$502,809PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$581,262CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$151,687CYTotalFundraisingExpenseAmt
PY Other Expenses$475,563PYOtherExpensesAmt
CY Other Expenses$523,169CYOtherExpensesAmt
PY Total Expenses$1,241,572PYTotalExpensesAmt
CY Total Expenses$1,215,256CYTotalExpensesAmt
PY Revenues Less Expenses-$20,229PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$104,188CYRevenuesLessExpensesAmt
Total Assets BOY$2,754,023TotalAssetsBOYAmt
Total Assets EOY$2,744,118TotalAssetsEOYAmt
Total Liabilities BOY$103,739TotalLiabilitiesBOYAmt
Total Liabilities EOY$141,718TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,650,284NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,602,400NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTo increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$273,241ExpenseAmt
Revenue$78,513RevenueAmt
DescConferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$254,384ExpenseAmt
DescAdvocacy Initiatives - Patient Support and Empowerment programs.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$214,012ExpenseAmt
Grant$110,825GrantAmt
DescProviding research funding for projects at major University Research Centers.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)

ExpenseExpenseAmtRevenueRevenueAmtDescDesc
$188,780$80,746Clinician education.
$121,848Dysautonomia Awareness promotion, hosting events in cities across the country and lighting monuments and landmarks.
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$310,628TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Revenue$80,746TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$1,052,265TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee10EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members7GoverningBodyVotingMembersCnt
Independent Voting Member6IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTXStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSHANNON KOPLITZPersonNm
Phone6312021720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 596AddressLine1Txt
CityEAST MORICHESCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11940ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (7 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
LAUREN STILES JD
President & CEO70.000.00Yes (X)Yes (X)$134,885$0$0
AMY KOHUT JD
Director2.000.00Yes (X)$0$0$0
LIZA FISHER MBA
Secretary2.000.00Yes (X)Yes (X)$0$0$0
JACQUELINE RUTTER GULLY
Vice President10.000.00Yes (X)Yes (X)$0$0$0
IRENE COLLINS
Director2.000.00Yes (X)$0$0$0
SHANNON KOPLITZ
Treasurer & CFO10.000.00Yes (X)Yes (X)$0$0$0
SALVATORE DESENA MD
Director2.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$134,885TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$172,245FundraisingAmt
All Other Contributions$701,788AllOtherContributionsAmt
Total Contributions$874,033TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescCONFERENCESDesc
Business541700BusinessCd
Total Revenue Column$159,245TotalRevenueColumnAmt
Related Or Exempt Func Income$159,245RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$159,245TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$96,769TotalRevenueColumnAmt
Exclusion$96,769ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$172,245ContriRptFundraisingEventAmt
Fundraising Direct Expenses$18,979FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$18,979TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,111,068TotalRevenueColumnAmt
Related Or Exempt Func Income$159,245RelatedOrExemptFuncIncomeAmt
Exclusion$96,769ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$81,582TotalAmt
Program Services$81,582ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$29,243TotalAmt
Program Services$29,243ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$134,885TotalAmt
Program Services$111,955ProgramServicesAmt
Management And General$1,349ManagementAndGeneralAmt
Fundraising$21,581FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$393,967TotalAmt
Program Services$328,568ProgramServicesAmt
Management And General$4,501ManagementAndGeneralAmt
Fundraising$60,898FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$5,457TotalAmt
Program Services$4,506ProgramServicesAmt
Management And General$61ManagementAndGeneralAmt
Fundraising$890FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$46,953TotalAmt
Program Services$38,685ProgramServicesAmt
Management And General$520ManagementAndGeneralAmt
Fundraising$7,748FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$5,442TotalAmt
Program Services$4,500ProgramServicesAmt
Management And General$60ManagementAndGeneralAmt
Fundraising$882FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$17,470TotalAmt
Program Services$11,992ProgramServicesAmt
Management And General$3,129ManagementAndGeneralAmt
Fundraising$2,349FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$346,444TotalAmt
Program Services$334,360ProgramServicesAmt
Management And General$60ManagementAndGeneralAmt
Fundraising$12,024FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$2,552TotalAmt
Program Services$2,168ProgramServicesAmt
Fundraising$384FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$1,425TotalAmt
Program Services$1,183ProgramServicesAmt
Management And General$15ManagementAndGeneralAmt
Fundraising$227FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$43,878TotalAmt
Program Services$33,436ProgramServicesAmt
Management And General$1,082ManagementAndGeneralAmt
Fundraising$9,360FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$20,239TotalAmt
Program Services$16,726ProgramServicesAmt
Management And General$223ManagementAndGeneralAmt
Fundraising$3,290FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$34,303TotalAmt
Program Services$33,077ProgramServicesAmt
Fundraising$1,226FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$2,060TotalAmt
Program Services$1,785ProgramServicesAmt
Fundraising$275FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$1,518TotalAmt
Program Services$1,154ProgramServicesAmt
Management And General$221ManagementAndGeneralAmt
Fundraising$143FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$4,908TotalAmt
Program Services$3,524ProgramServicesAmt
Management And General$47ManagementAndGeneralAmt
Fundraising$1,337FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
SUPPLIES$18,061$5,805$14$12,242
BANK and credit card FEES$16,956$5,997$10,959
Postage and Shipping$6,560$900$7$5,653
TELEPHONE$1,075$889$12$174

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$278TotalAmt
Program Services$230ProgramServicesAmt
Management And General$3ManagementAndGeneralAmt
Fundraising$45FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,215,256TotalAmt
Program Services$1,052,265ProgramServicesAmt
Management And General$11,304ManagementAndGeneralAmt
Fundraising$151,687FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$488,642BOYAmt
EOY$265,878EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$2,239,260BOYAmt
EOY$2,385,875EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$2,714BOYAmt
EOY$15,921EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$16,332LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$14,528LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$3,322BOYAmt
EOY$1,804EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$18,585BOYAmt
EOY$23,640EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,500BOYAmt
EOY$51,000EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,754,023BOYAmt
EOY$2,744,118EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$2,352BOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$101,387BOYAmt
EOY$92,218EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
EOY$49,500EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$103,739BOYAmt
EOY$141,718EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,253,484BOYAmt
EOY$2,108,122EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$396,800BOYAmt
EOY$494,278EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,650,284BOYAmt
EOY$2,602,400EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,754,023BOYAmt
EOY$2,744,118EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$104,188ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$4,904NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments$51,400PriorPeriodAdjustmentsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,236,905CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,123,830CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,481,630CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,118,815CurrentTaxYearMinus1YearAmt
Current Tax Year$874,033CurrentTaxYearAmt
Total$5,835,213TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,100CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$29,837CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,310CurrentTaxYearMinus2YearsAmt
Total$38,247TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,241,005CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,153,667CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,485,940CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,118,815CurrentTaxYearMinus1YearAmt
Current Tax Year$874,033CurrentTaxYearAmt
Total$5,873,460TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,565CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$8,108CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,366CurrentTaxYearMinus2YearsAmt
Total$24,039TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$293,238CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$33,828CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$60,452CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$22,624CurrentTaxYearMinus1YearAmt
Current Tax Year$35,876CurrentTaxYearAmt
Total$446,018TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$302,803CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$41,936CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$66,818CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$22,624CurrentTaxYearMinus1YearAmt
Current Tax Year$35,876CurrentTaxYearAmt
Total$470,057TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$5,403,403PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$818CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$642CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$456CurrentTaxYearMinus2YearsAmt
Current Tax Year$96,769CurrentTaxYearAmt
Total$98,685TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$818CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$642CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$456CurrentTaxYearMinus2YearsAmt
Current Tax Year$96,769CurrentTaxYearAmt
Total$98,685TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,241,823CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,154,309CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,486,396CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,118,815CurrentTaxYearMinus1YearAmt
Current Tax Year$970,802CurrentTaxYearAmt
Total$5,972,145TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.90480PublicSupportCY509Pct
Public Support PY5090.88970PublicSupportPY509Pct
Investment Income CY0.01650InvestmentIncomeCYPct
Investment Income PY0.00060InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$16,332OtherCostOrOtherBasisAmt
Depreciation$14,528DepreciationAmt
Book Value$1,804BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,804TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOPERATING LEASES PAYABLEDesc
Amt$49,500Amt
FieldValueIRS element (for citing)
Total Liability$49,500TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,134,951TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$4,904NetUnrealizedGainsInvstAmt
Other Revenue$18,979OtherRevenueAmt
Revenue Not Reported$23,883RevenueNotReportedAmt
Revenue Subtotal$1,111,068RevenueSubtotalAmt
Total Revenue Per Form990$1,111,068TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,234,235TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$18,979OtherExpensesIncludedAmt
Expenses Not Reported$18,979ExpensesNotReportedAmt
Expenses Subtotal$1,215,256ExpensesSubtotalAmt
Total Expenses Per Form990$1,215,256TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part X : FIN48 FootnoteThe Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2024, no amounts have been recognized for uncertain income tax positions.
Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990DIRECT FUNDRAISING EXPENSES $18979
Part XII, Line 2d: Other expenses and losses per audited F/SDIRECT FUNDRAISING EXPENSES $18979

Schedule F IRS990ScheduleF

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICARegionTxt
Purpose Of GrantPOTS RESEARCHPurposeOfGrantTxt
Cash Grant$29,243CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd
Licensed StatesNYLicensedStatesCd
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1FUNDRAISING EVENTSEvent1Nm
Gross Receipts Event1$172,245GrossReceiptsEvent1Amt
Charitable Contri Event1$172,245CharitableContriEvent1Amt
Other Direct Expenses Event1$18,979OtherDirectExpensesEvent1Amt
Gross Receipts Total$172,245GrossReceiptsTotalAmt
Charitable Contributions Tot$172,245CharitableContributionsTotAmt
Oth Direct Expnss Total Events$18,979OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$18,979DirectExpenseSummaryEventsAmt
Net Income Summary-$18,979NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Ann & Robert H Lurie Children
225 E Chicago AveCHICAGOIL60611362170833$29,362$0DOUBLE BLINDED PLACEBO CONTROLLED
JOHN HOPKIN UNIVERSTY
600 N Wolfe StBALTIMOREMD21287$27,220$0Novel Autoantibodies Patients w/POT
Regents of Univ of CALIFORNIA
9500 Gilman Drive 0678LaJollaCA92093956996144$25,000$0mitochondrial/immune function pots
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org2TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationDysautonomia International (DI) requires that all investigators, collaborators and sub-contractors who receive funding through the DI's Grants Program comply with our Policies Governing the Award of Research Grants (Policies). Investigators will be provided a copy of current Policies when invited to apply for funding. Acceptance of grant funding from Dysautonomia International acknowledges consent and agreement to comply with these Policies by the Principal Investigator.SEMI-ANNUAL AND POST GRANT REPORTS ARE REQUIRED.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bTHE BOARD WILL REVIEW AND APPROVE THE TAX RETURNS PRIOR TO SUBMISSION.
Form 990, Part VI, Section B, Line 12cALL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING.
Form 990, Part VI, Section B, Line 15aTHE CEO SALARY IS DETERMINED BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS.
Form 990, Part VI, Section B, Line 15bTHE CEO AND OTHER STAFF SALARIES WERE SET BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS.
Form 990, Part VI, Section C, Line 19DOCUMENTS ARE AVAILABLE UPON REQUEST.