NATIONAL BLEEDING DISORDERS FOUNDATION: Form 990, tax year 2014
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL BLEEDING DISORDERS FOUNDATION (EIN 13-5641857)
- Tax period
- 2014-01-01 to 2014-12-31
- Filed
- 2015-08-07
- IRS object ID
- 201522199349301112
- Schema version
- 2014v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2015-08-07T14:36:57-05:00 | ReturnTs |
| Tax Period End | 2014-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 221732349 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | WISS & COMPANY LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 485C ROUTE 1 SOUTH SUITE 250 | AddressLine1Txt |
| City | ISELIN | CityNm |
| State Abbreviation | NJ | StateAbbreviationCd |
| ZIP | 08830 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2014-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 135641857 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL HEMOPHILIA FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 2123283700 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7 PENN PLAZA SUITE 1204 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10001 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | VAL BIAS | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 2123283700 | PhoneNum |
| Signature | 2015-08-07 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | MICHAEL ANDRIOLA | PreparerPersonNm |
| PTIN | P00252682 | PTIN |
| Phone | 7322839300 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2014 | TaxYr |
| Build TS | 2016-02-25 16:41:14Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | VAL BIAS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7 PENN PLAZA SUITE 1204 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10001 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $19,375,371 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.HEMOPHILIA.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1948 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDES AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH. | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 16 | VotingMembersIndependentCnt |
| Total Employee | 68 | TotalEmployeeCnt |
| Total Volunteers | 712 | TotalVolunteersCnt |
| Total Gross UBI | $1,581,730 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $129,207 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $14,116,476 | PYContributionsGrantsAmt |
| CY Contributions Grants | $15,252,599 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $1,716,117 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $2,052,483 | CYProgramServiceRevenueAmt |
| PY Investment Income | $233,634 | PYInvestmentIncomeAmt |
| CY Investment Income | $484,700 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$776,897 | PYOtherRevenueAmt |
| CY Other Revenue | -$940,068 | CYOtherRevenueAmt |
| PY Total Revenue | $15,289,330 | PYTotalRevenueAmt |
| CY Total Revenue | $16,849,714 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,051,280 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,384,553 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $5,691,936 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $6,087,678 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $12,375 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $24,300 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $812,268 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $7,123,221 | PYOtherExpensesAmt |
| CY Other Expenses | $7,928,120 | CYOtherExpensesAmt |
| PY Total Expenses | $13,878,812 | PYTotalExpensesAmt |
| CY Total Expenses | $15,424,651 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,410,518 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $1,425,063 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $19,463,103 | TotalAssetsBOYAmt |
| Total Assets EOY | $19,647,371 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $8,196,542 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $7,043,701 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $11,266,561 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $12,603,670 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE NATIONAL HEMOPHILIA FOUNDATION IS DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDERS AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $6,009,667 | ExpenseAmt |
| Grant | $93,989 | GrantAmt |
| Revenue | $470,753 | RevenueAmt |
| Desc | HEALTH EDUCATION AND TRAINING - THROUGH HANDI, NHF'S INFORMATION RESOURCE CENTER, MORE THAN 2,000 REQUESTS WERE ANSWERED IN 2014. THESE REQUESTS WERE RECEIVED FROM PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC ON SUCH TOPICS AS HEMOPHILIA, VON WILLEBRAND DISEASE, HEALTHCARE COVERAGE, HEPATITIS C, HIV, INHIBITOR FORMATION AND SCHOOL ISSUES. HANDI DEVELOPED A NEW PATIENT BROCHURE TITLED, "ROLE OF NEW PROLONGED HALF-LIFE CLOTTING FACTORS IN HEMOPHILIA: NEW CLOTTING FACTORS FOR DOSING SCHEDULE FLEXIBILITY." THIS PUBLICATION HAS BEEN DISTRIBUTED TO HEMOPHILIA TREATMENT CENTERS AND PATIENTS ACROSS THE UNITED STATES. NHF ORGANIZED 2 INHIBITOR EDUCATION SUMMITS IN ENGLISH FOR PATIENTS AND FAMILIES EXPERIENCING THE COMPLICATION OF AN INHIBITOR. THE FIRST WAS JULY 10-13, 2014, IN ALBUQUERQUE, NM, WITH 111 FAMILIES ATTENDING AND 388 TOTAL PARTICIPANTS. THE SECOND WAS JULY 24-27, 2014, IN BALTIMORE, MD, WITH 114 FAMILIES ATTENDING AND 410 TOTAL PARTICIPANTS. NHF ORGANIZED AN INHIBITOR EDUCATION SUMMIT IN SPANISH FOR PATIENTS AND FAMILIES IN PHOENIX, AZ, ON MAY 30 - JUNE 1, 2014, WITH 15 FAMILIES ATTENDING AND 60 TOTAL PARTICIPANTS. PHYSICIAN REPRESENTATIVES FROM NHF'S MEDICAL AND SCIENTIFIC ADVISORY COUNCIL (MASAC) AS WELL AS REPRESENTATIVES FROM THE NURSING, SOCIAL WORK AND PHYSICAL THERAPY WORKING GROUPS DEVELOPED MORE THAN 40 EDUCATIONAL SESSIONS FOR THE 2014 ANNUAL MEETING, WHICH PROVIDED BOTH CME AND CEU ACCREDITATION. THE PRIMARY GOALS OF THE NATIONAL HEMOPHILIA FOUNDATION'S (NHF'S) VICTORY FOR WOMEN PROGRAM ARE: 1) TO INCREASE AWARENESS TO FACILITATE EARLY AND ACCURATE DIAGNOSES; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. 2014 HIGHLIGHTS INCLUDED: 6-MONTH WEBINAR SERIES WITH KEY LEADERS AND GUEST SPEAKERS THAT TAUGHT CHAPTERS HOW TO CREATE A WOMAN'S EDUCATIONAL SUPPORT PROGRAM AND HOW TO EVALUATE SUCCESS; THIS PROGRAM INCLUDED FUNDS TO CHAPTERS FOR EDUCATIONAL AND SUPPORT ACTIVITIES FOR GIRLS AND WOMEN WITH BLEEDING DISORDERS; FUNDING FOR CHAPTERS TO SEND A WOMAN WITH A BLEEDING DISORDER TO THE NHF ANNUAL MEETING; PROVIDED SEVEN EDUCATIONAL SESSIONS FOR FEMALE CONSUMERS AT THE NHF 2014 ANNUAL MEETING; AND PROVIDED WORKSHOPS (TOPICS INCLUDED: TELLING YOUR STORY," "BE THE CHANGE YOU WANT TO SEE" - ADVOCACY, AND "COMMUNICATING WITH YOUR HEALTHCARE PROVIDER") FOR CONSUMERS AT CHAPTER EDUCATION DAYS AND WOMEN'S RETREATS.STEPS FOR LIVING IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION SO THAT CHILDREN, TEENS, ADULTS AND FAMILIES CAN MANAGE THE DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. THIS ALSO INCLUDES ENSURING SUCCESSFUL LIFE TRANSITIONS AND PREVENTING SECONDARY COMPLICATIONS. IN 2014, THE FOLLOWING ENHANCEMENTS WERE ADDED TO THE STEPS FOR LIVING WEBSITE: THE ENTIRE WEBSITE CAN NOW BE VIEWED IN ENGLISH OR SPANISH; THE NEXT STEP SECTION HAS A TOGGLE TO CHANGE THE TONE, APPEARANCE AND FEEL OF THE CONTENT TO DIRECTLY ADDRESS KIDS OR THEIR PARENTS AND ADULTS; THE ENTIRE WEBSITE IS NOW MOBILE-FRIENDLY, AND A NEW VIDEO ON VON WILLEBRAND DISEASE WAS PRODUCED AND ADDED TO THE SITE. NHF PROVIDED 2 IN-PERSON STEPS FOR LIVING TRAIN THE TRAINER PROGRAMS FOR STAFF AND HEALTHCARE PROVIDERS FROM 27 CHAPTERS/HTCS ACROSS THE COUNTRY. NHF CONTINUED TO PRINT AND DISTRIBUTE MORE THAN 2,000 EDUCATIONAL PRINT MATERIALS INCLUDING GUIDELINES FOR GROWING BROCHURE SERIES, A WELCOME KIT FOR NEWLY DIAGNOSED FAMILIES AND MY HTC AND ME COLORING BOOKS IN ENGLISH AND SPANISH. NHF HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NHF ACHIEVES THESE OUTCOMES BY PROVIDING YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2014, NHF PROVIDED TRAININGS TO THE 25 MEMBERS OF NYLI ON TOPICS INCLUDING PUBLIC SPEAKING, ADVOCACY, NONPROFIT MANAGEMENT AND FUNDRAISING. 12 NYLI MEMBERS ASSUMED LEADERSHIP POSITIONS IN A VARIETY OF NHF PROGRAMS, INCLUDING SERVING AS A NON-VOTING MEMBER OF THE NHF BOARD; NHF ANNUAL MEETING PLANNING COMMITTEE; CDC CONTENT ADVISORY GROUPS FOR JOINT HEALTH AND WOMEN WITH BLEEDING DISORDERS; 1ST-YEAR NYLI LEADERSHIP TRAINING; WASHINGTON DAYS AND NHF ANNUAL MEETING NYLI TRAINING COMMITTEE; ANNUAL MEETING TEEN TRACK; HEMAWARE MAGAZINE EDITORIAL GROUP; AND SOCIAL MEDIA REPRESENTATIVE. NYLI MEMBERS PROVIDED 8 EDUCATIONAL SESSIONS, ADVOCATED ON BEHALF OF THEIR STATES IN WASHINGTON, DC, AT NHF'S WASHINGTON DAYS ADVOCACY EVENT ON THE HILL, DELIVERED PEER EDUCATION PROGRAMS FOR TEENS AND FACILITATED RAP SESSIONS AT NATIONAL MEETINGS. NHF ALSO INTRODUCED A NEW 3-YEAR STRUCTURE FOR NYLI, WHICH EMPHASIZES TRAINING IN HOW TO DELIVER IN-PERSON PROGRAMMING FOR LOCAL CHAPTERS AND HTCS. AREAS OF FOCUS ARE OUTREACH, ADVOCACY AND NONPROFIT DEVELOPMENT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,708,373 | ExpenseAmt |
| Grant | $209,819 | GrantAmt |
| Desc | COMMUNITY SERVICES- NHF'S PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PEOPLE WITH BLEEDING DISORDERS BY EDUCATING FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS , INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY AREAS OF FOCUS ARE PAYER AND CONSUMER EDUCATION, AND SELF-ADVOCACY. THE PUBLIC POLICY DEPARTMENT PROVIDES TRAINING, TOOLS AND HANDS-ON SUPPORT TO CONSUMERS TO HELP THEM BECOME EFFECTIVE SELF-ADVOCATES. CONSUMERS ARE ENCOURAGED TO PARTICIPATE IN NHF'S ANNUAL WASHINGTON DAYS PROGRAM, WHICH IS A GRASSROOTS EVENT THAT BRINGS PATIENTS AND THEIR FAMILIES TO THE HILL TO MEET WITH THEIR MEMBERS OF CONGRESS. IN ADDITION, NHF PROVIDES A SERIES OF EDUCATIONAL OPPORTUNITIES FOR PAYERS TO HELP THEM BETTER UNDERSTAND THE UNIQUE HEALTHCARE NEEDS OF THOSE AFFECTED BY BLEEDING DISORDERS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,540,240 | ExpenseAmt |
| Grant | $406,506 | GrantAmt |
| Desc | CHAPTER SERVICES -NHF'S CHAPTER SERVICES DEPARTMENT PROVIDES COMMUNITY SUPPORT BY HELPING ITS 51 MEMBER CHAPTERS OFFER EDUCATION, RESOURCES AND REFERRALS TO AFFECTED MEMBERS OF THE BLEEDING DISORDERS COMMUNITY IN THE AREAS THAT EACH CHAPTER SERVES. CHAPTER SERVICES OFFERS THE CHAPTERS FINANCIAL SUPPORT IN THE FORM OF GRANTS, SPONSORS TRAINING MEETINGS AND PROVIDES SOME HOTEL EXPENSE SUPPORT FOR ADVOCACY MEETINGS. DEPARTMENT STAFF MEMBERS MENTOR CHAPTER LEADERS ON HOW TO CREATE, EXECUTE AND EVALUATE EDUCATIONAL PROGRAMS DESIGNED FOR THEIR AFFECTED CONSTITUENTS. IN 2014 CHAPTER SERVICES HELD TWO REGIONAL LEADERSHIP SEMINARS OFFERING TRAINING ON ETHICAL ISSUES FOR NONPROFITS, HEALTHCARE FOR CHAPTERS, FUNDRAISING, ADVOCACY AND EDUCATIONAL INITIATIVES. A FULL "CHAPTER TRAINING TRACK" WAS ALSO OFFERED DURING NHF'S 2014 ANNUAL MEETING IN WASHINGTON, DC. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $999,115 | ExpenseAmt |
| Grant | $674,239 | GrantAmt |
| Desc | RESEARCH - NHF AWARDED THREE NHF/BAXTER CLINICAL FELLOWSHIPS TO FELLOWS FROM THE CHILDREN'S HOSPITAL OF PHILADELPHIA AND THE UNIVERSITY OF PENNSYLVANIA, TULANE UNIVERSITY MEDICAL CENTER- LOUISIANA CENTER FOR BLEEDING AND CLOTTING DISORDERS, AND THE DANA FARBER/BOSTON CHILDREN'S CANCER AND BLOOD DISORDERS CENTER. FIVE NHF JUDITH GRAHAM POOL POSTDOCTORAL RESEARCH FELLOWSHIPS WERE AWARDED AT THE FOLLOWING INSTITUTIONS: THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL, HARVARD MEDICAL SCHOOL/BOSTON CHILDREN'S HOSPITAL, THE CHILDREN'S HOSPITAL OF PHILADELPHIA AND THE UNIVERSITY OF MICHIGAN LIFE SCIENCES INSTITUTE. THE NHF NURSING EXCELLENCE FELLOWSHIP WAS AWARDED TO A NURSE AT THE NORTHERN REGIONAL BLEEDING DISORDERS CENTER IN TRAVERSE CITY, MI, FOR HER PROJECT, "BLEEDING DISORDERS PEDIATRIC PAIN INITIATIVE." THE NHF SOCIAL WORK EXCELLENCE FELLOWSHIP WAS AWARDED TO A SOCIAL WORKER AT THE CHILDREN'S MEDICAL CENTER OF CENTRAL TEXAS IN AUSTIN FOR HER PROJECT, "A STANDARDIZED APPROACH TO EMPOWERING FAMILIES WITH HEMOPHILIA." THE NHF PHYSICAL THERAPY EXCELLENCE FELLOWSHIP WAS AWARDED TO A PHYSICAL THERAPIST AT THE CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLEEDING DISORDERS IN ORANGE, CA, FOR HER PROJECT, "PREVALENCE OF GROSS MOTOR DELAYS IN CHILDREN WITH HEMOPHILIA." | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $999,115 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $674,239 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $12,257,395 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | Yes (1) | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 132 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 68 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 16 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JORDANA ZEGER | PersonNm |
| Phone | 2123283700 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7 PENN PLAZA SUITE 1204 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10001 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| JORGE DE LA RIVA | ||||||||
| CHAIR | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| KENNETH TRADER | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| CAROL SIMONETTI | ||||||||
| VICE-CHAIR | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| BRIAN ANDREW | ||||||||
| TREASURER | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| JEFF ALEXIS MD | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| JORDAN BLACK | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| MARK BORRELIZ | ||||||||
| SECRETARY | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| DAVID COHENOUR | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| BARBARA GORDON | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| JAMES F HAMMEL MD | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| KRISTIE KAY OSTASH MD | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| JAMES A HEER | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| MATT RHODES | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| DUTTA SATADIP | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| GILBERT C WHITE II MD | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| LYNN WILMARTH | ||||||||
| DIRECTOR | 10.00 | Yes (X) | $0 | $0 | $0 | |||
| VAL BIAS | ||||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | Yes (X) | $327,256 | $0 | $70,311 | |||
| JORDANA ZEGER | ||||||||
| CHIEF OPERATING OFFICER | 40.00 | Yes (X) | $194,461 | $0 | $40,660 | |||
| JOSEPH KLEIBER | ||||||||
| SENIOR V.P. OF CHAPTER SER | 40.00 | $189,732 | $0 | $38,883 | Yes (X) | |||
| MARY ANN LUDWIG | ||||||||
| V.P. OF DEVELOPMENT | 40.00 | $217,685 | $0 | $32,144 | Yes (X) | |||
| NEIL FRICK | ||||||||
| V.P. OF RESEARCH & MEDICAL | 40.00 | $148,402 | $0 | $23,710 | Yes (X) | |||
| JOHN INDENCE | ||||||||
| V.P. OF MARKETING AND COMM | 40.00 | $148,098 | $0 | $23,722 | Yes (X) | |||
| SANDRA ROTELLINI | ||||||||
| V.P. OF CHAPTER DEVELOPMENT & EDUCATION | 40.00 | $135,825 | $0 | $22,446 | Yes (X) | |||
| MICHELLE RICE | ||||||||
| V.P. OF PUBLIC POLICY & STAKEHOLD RELATION | 40.00 | $133,678 | $0 | $39,350 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,495,137 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $291,226 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 12 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| THE MAGAZINE GROUP | |||||
| 1129 20TH ST 10TH FLOOR | WASHINGTON | DC | 20036 | PRODUCTION OF HEMAWARE | $549,918 |
| INTEGRATED PUBLISHING SALES LLC | |||||
| 519 SPICEBUSH LANE | CHARGIN FALLS | OH | 44023 | ADVERTISING SALES | $221,374 |
| STRATEGIC MARKETING & MAILING INC | |||||
| 3002 N APOLLO DRIVE | CHAMPAIGN | IL | 61822 | DESIGN, LETTERSHOP AND PRINTING SERVICES | $204,886 |
| CAVAROCCHI RUSCIO DENNIS ASSOCIATES L | |||||
| 600 MARYLAND AVE SW STE 835W | WASHINGTON | DC | 20024 | CONSULTANT FOR STRATEGIC SERVICES AND PU | $204,000 |
| PLENTY CONSULTING INC | |||||
| 820 W JACKSON BLVD STE 800 | CHICAGO | IL | 60607 | NATIONAL WALK CONSULTANTS | $165,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 7 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $23,973 | FederatedCampaignsAmt |
| Fundraising | $1,801,293 | FundraisingAmt |
| Government Grants | $738,211 | GovernmentGrantsAmt |
| All Other Contributions | $12,689,122 | AllOtherContributionsAmt |
| Noncash Contributions | $13,712 | NoncashContributionsAmt |
| Total Contributions | $15,252,599 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|---|
| ADVERTISING | 541800 | $1,581,730 | $1,581,730 | |
| EDUCATIONAL SEMINARS | 611710 | $462,868 | $462,868 | |
| PUBLICATIONS | 900099 | $7,885 | $7,885 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $2,052,483 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $205,115 | TotalRevenueColumnAmt |
| Exclusion | $205,115 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,806,283 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,526,698 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $279,585 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $279,585 | TotalRevenueColumnAmt |
| Exclusion | $279,585 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $34,030 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,801,293 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $998,959 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$964,929 | TotalRevenueColumnAmt |
| Exclusion | -$964,929 | ExclusionAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $24,861 | TotalRevenueColumnAmt |
| Exclusion | $24,861 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $24,861 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $16,849,714 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $470,753 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $1,581,730 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$455,368 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,295,715 | TotalAmt |
| Program Services | $1,295,715 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,838 | TotalAmt |
| Program Services | $38,838 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,000 | TotalAmt |
| Program Services | $50,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $861,303 | TotalAmt |
| Program Services | $614,202 | ProgramServicesAmt |
| Management And General | $191,534 | ManagementAndGeneralAmt |
| Fundraising | $55,567 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,041,462 | TotalAmt |
| Program Services | $2,780,511 | ProgramServicesAmt |
| Management And General | $1,003,361 | ManagementAndGeneralAmt |
| Fundraising | $257,590 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $235,021 | TotalAmt |
| Program Services | $191,847 | ProgramServicesAmt |
| Management And General | $24,481 | ManagementAndGeneralAmt |
| Fundraising | $18,693 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $529,522 | TotalAmt |
| Program Services | $448,940 | ProgramServicesAmt |
| Management And General | $50,262 | ManagementAndGeneralAmt |
| Fundraising | $30,320 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $420,370 | TotalAmt |
| Program Services | $356,399 | ProgramServicesAmt |
| Management And General | $39,901 | ManagementAndGeneralAmt |
| Fundraising | $24,070 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,830 | TotalAmt |
| Program Services | $23,585 | ProgramServicesAmt |
| Management And General | $82,072 | ManagementAndGeneralAmt |
| Fundraising | $1,173 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,449 | TotalAmt |
| Management And General | $57,449 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $188,052 | TotalAmt |
| Program Services | $188,052 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,300 | TotalAmt |
| Fundraising | $24,300 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,432 | TotalAmt |
| Management And General | $38,432 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,288,668 | TotalAmt |
| Program Services | $995,415 | ProgramServicesAmt |
| Management And General | $276,697 | ManagementAndGeneralAmt |
| Fundraising | $16,556 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $175,610 | TotalAmt |
| Program Services | $131,826 | ProgramServicesAmt |
| Management And General | $32,798 | ManagementAndGeneralAmt |
| Fundraising | $10,986 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $484,994 | TotalAmt |
| Program Services | $306,645 | ProgramServicesAmt |
| Management And General | $156,103 | ManagementAndGeneralAmt |
| Fundraising | $22,246 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,437,153 | TotalAmt |
| Program Services | $3,279,539 | ProgramServicesAmt |
| Management And General | $130,305 | ManagementAndGeneralAmt |
| Fundraising | $27,309 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,379 | TotalAmt |
| Program Services | $7,031 | ProgramServicesAmt |
| Management And General | $2,672 | ManagementAndGeneralAmt |
| Fundraising | $676 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $42,755 | TotalAmt |
| Management And General | $42,755 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| UNRELATED BUS. INC. TAX | $51,937 | $51,937 | ||
| STATIONERY AND PRINTING | $982,746 | $729,176 | $57,819 | $195,751 |
| EQUIPMENT RENTAL | $630,079 | $559,477 | $56,688 | $13,914 |
| POSTAGE AND SHIPPING | $188,113 | $90,204 | $5,534 | $92,375 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $244,923 | TotalAmt |
| Program Services | $118,056 | ProgramServicesAmt |
| Management And General | $106,125 | ManagementAndGeneralAmt |
| Fundraising | $20,742 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,424,651 | TotalAmt |
| Program Services | $12,257,395 | ProgramServicesAmt |
| Management And General | $2,354,988 | ManagementAndGeneralAmt |
| Fundraising | $812,268 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,616,494 | BOYAmt |
| EOY | $8,259,231 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,680,631 | BOYAmt |
| EOY | $1,069,393 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $860,550 | BOYAmt |
| EOY | $925,301 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $132,967 | BOYAmt |
| EOY | $132,877 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $1,417,627 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $1,362,990 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,429 | BOYAmt |
| EOY | $54,637 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,951,982 | BOYAmt |
| EOY | $8,713,245 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $194,050 | BOYAmt |
| EOY | $492,687 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,463,103 | BOYAmt |
| EOY | $19,647,371 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,862,773 | BOYAmt |
| EOY | $1,766,481 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,152,418 | BOYAmt |
| EOY | $5,101,322 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $181,351 | BOYAmt |
| EOY | $175,898 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,196,542 | BOYAmt |
| EOY | $7,043,701 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,966,957 | BOYAmt |
| EOY | $9,118,296 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,049,604 | BOYAmt |
| EOY | $3,235,374 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $250,000 | BOYAmt |
| EOY | $250,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,266,561 | BOYAmt |
| EOY | $12,603,670 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,463,103 | BOYAmt |
| EOY | $19,647,371 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $1,425,063 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$298,380 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $210,426 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,197,715 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,705,585 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,859,589 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $14,116,476 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,252,599 | CurrentTaxYearAmt |
| Total | $60,131,964 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,197,715 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,705,585 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12,859,589 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $14,116,476 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,252,599 | CurrentTaxYearAmt |
| Total | $60,131,964 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $36,674,904 | SubstantialContributorsTotAmt |
| Public Support Total170 | $23,457,060 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $162,097 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $157,760 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $151,910 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $157,447 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $205,115 | CurrentTaxYearAmt |
| Total | $834,329 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $147,971 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $86,234 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,297 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $130,207 | CurrentTaxYearAmt |
| Total | $404,709 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $319,600 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $343,205 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus1 Year | $8,792 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $24,861 | CurrentTaxYearAmt |
| Total | $696,458 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $62,067,460 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $3,251,717 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.37790 | PublicSupportCY170Pct |
| Public Support PY170 | 0.39160 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $23,934 | MailingsMembersAmt |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $223,463 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | Yes (1) | RalliesDemonstrationsInd |
| Rallies Demonstrations | $27,725 | RalliesDemonstrationsAmt |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $275,122 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II-B, LINE 1: | FormAndLineReferenceDesc |
| Explanation | THE PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS BY WORKING WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY INITIATIVES OF THE DEPARTMENT ARE THE NATIONAL ADVOCACY EMPOWERMENT PROGRAM (NAEP) AND WASHINGTON DAYS. THE NAEP PROVIDES TRAINING, TOOLS AND SUPPORT TO ASSIST CONSUMERS IN BECOMING EFFECTIVE ADVOCATES. WASHINGTON DAYS IS NHF'S ANNUAL GRASSROOTS EVENT WHICH BROUGHT PATIENTS TO WASHINGTON D.C. TO MEET WITH MEMBERS OF CONGRESS. | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $314,811 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $13,250 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $328,061 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $287,878 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $26,933 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $314,811 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $271,335 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $16,543 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $287,878 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $268,750 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $2,585 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $271,335 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $261,250 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $7,500 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $268,750 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.76210 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.23800 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $175,302 | OtherCostOrOtherBasisAmt |
| Depreciation | $173,871 | DepreciationAmt |
| Book Value | $1,431 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $226,346 | OtherCostOrOtherBasisAmt |
| Depreciation | $186,566 | DepreciationAmt |
| Book Value | $39,780 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $1,015,979 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,002,553 | DepreciationAmt |
| Book Value | $13,426 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $54,637 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (3 entries)
| DescDesc | Book ValueBookValueAmt | Method ValuationMethodValuationCd |
|---|---|---|
| CORPORATE BONDS | $5,229,705 | F |
| COMMON STOCKS | $1,864,851 | F |
| EXCHANGE TRADED EQUITY FUNDS | $1,618,689 | F |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Securities | $8,713,245 | TotalBookValueSecuritiesAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| DEFERRED RENT | $8,699 |
| 457B PLAN PAYABLE | $167,199 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $175,898 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $16,826,055 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$298,380 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $64,295 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $210,426 | OtherRevenueAmt |
| Revenue Not Reported | -$23,659 | RevenueNotReportedAmt |
| Revenue Subtotal | $16,849,714 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $16,849,714 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $15,488,946 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $64,295 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $64,295 | ExpensesNotReportedAmt |
| Expenses Subtotal | $15,424,651 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $15,424,651 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE FOUNDATION TEMPORARILY RESTRICTED $13,250 IN 2014 REPRESENTS INCOME FROM THE ENDOWMENT FUND TO BE USED FOR A RESEARCH GRANT. TEMPORARILY RESTRICTED ASSETS OF $78,061 REPRESENTS INCOME ACCUMULATION FROM INCEPTION - JULY 1, 2008 TO DECEMBER 31, 2014. |
| PART X, LINE 2: | THE FOUNDATION IS A NONPROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE AND HAS MADE NO PROVISION FOR FEDERAL OR STATE INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE (IRS) NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE. OTHER SIGNIFICANT TAX POSITIONS INCLUDE ITS DETERMINATION OF WHETHER ANY AMOUNTS ARE SUBJECT TO UNRELATED BUSINESS INCOME TAX (UBIT). THE FOUNDATION HAS ACTIVITIES SUBJECT TO UBIT IN THE YEARS ENDED 2014 AND 2013 AND HAS FILED FORM 990T. ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS BEEN DETERMINED THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. THE FOUNDATION IS REQUIRED TO FILE FORM 990 (RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX), WHICH IS SUBJECT TO EXAMINATION BY THE IRS UP TO THREE YEARS FROM THE EXTENDED DUE DATE OF THE TAX RETURN. THE FORMS 990 AND CHAR500 FOR 2010 THROUGH 2013 ARE OPEN TO EXAMINATION BY THE IRS AS OF DECEMBER 31, 2014. UNRELATED BUSINESS INCOME TAX FOR THE YEARS ENDED DECEMBER 31, 2014 AND 2013 AMOUNTED TO $51,937 AND $10,365 RESPECTIVELY AND IS INCLUDED UNDER PRINTING AND OTHER (PRODUCTION OF THE HEMAWARE MAGAZINE, BOTH PRINTED AND ONLINE FORMATS) IN THE STATEMENTS OF FUNCTIONAL EXPENSES. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | ADJUSTMENT FOR EXCESS EXPENSE ACCRUAL IN CONNECTION W/ARBITRATION 210,426. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $0 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $0 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | NORTH AMERICA | RegionTxt |
| Purpose Of Grant | DONATION TO "CLOSE THE GAP CAMPAIGN" TO MAKE POSITIVE STRIDES FOR SUSTAINABLE CARE AND TREATMENT FOR ALL, INTERNATIONALLY. | PurposeOfGrantTxt |
| Cash Grant | $50,000 | CashGrantAmt |
| Manner Of Cash Disbursement | CHECK | MannerOfCashDisbursementTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| JOSEPH TUMULO - GIFT PLANNING DEVEL | ||||||||
| 100 CHESTNUT PLACE | NEW HARTFORD | NY | 13413 | STRATEGIC PLANNING & DEV., TRAINING ON GIFT GIVING | 0 | $0 | $5,000 | -$5,000 |
| MATTHEW HUGG - HUGGDOTNET LLC | ||||||||
| 807 EAST HANCOCK STREET | LANSDALE | PA | 19446 | INTERVIEWED DONORS & WROTE DONOR NEWLETTERS | 0 | $0 | $8,300 | -$8,300 |
| ANTHONY BUFFONE - STRATEGIC IDENTIT | ||||||||
| 2112 PARKDALE AVENUE | GLENSIDE | PA | 19038 | CONSULTANT/ NAT'L HEMOPHILIA WALK PROGRAM | 0 | $0 | $11,000 | -$11,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Retained By Contractors | $24,300 | TotalRetainedByContractorsAmt |
| Total Net To Organization | -$24,300 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | WALK-A-THON | Event1Nm |
| Gross Receipts Event1 | $1,221,305 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,221,305 | CharitableContriEvent1Amt |
| Cash Prizes Event1 | $15,000 | CashPrizesEvent1Amt |
| Non Cash Prizes Event1 | $3,844 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $40,599 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $32,441 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $3,535 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $621,618 | OtherDirectExpensesEvent1Amt |
| Event2 | SOIREE | Event2Nm |
| Gross Receipts Event2 | $437,404 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $419,928 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $17,476 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $6,137 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $54,589 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $97 | FoodAndBeverageEvent2Amt |
| Entertainment Event2 | $2,000 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $76,771 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 6 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $176,614 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $160,060 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $16,554 | GrossRevenueOtherEventsAmt |
| Non Cash Prizes Other Events | $9,219 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $41,331 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $10,187 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $8,995 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $72,596 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,835,323 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,801,293 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $34,030 | GrossRevenueTotalEventsAmt |
| Cash Prizes Total Events | $15,000 | CashPrizesTotalEventsAmt |
| Non Cash Prizes Total Events | $19,200 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $136,519 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $42,725 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $14,530 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $770,985 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $998,959 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$964,929 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (35 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| ALASKA HEMOPHILIA ASSOCIATION | ||||||||
| 3340 PROVIDENCE DRIVE STE A352 | ANCHORAGE | AK | 99508 | 943143226 | 501(C)(3) | $45,000 | STAFFING GRANT-TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE | |
| BLEEDING DISORDER FOUNDATION OF WASHINGTON | ||||||||
| 9639 FIRDALE AVE SUITE A | EDMONDS | WA | 98020 | 916068857 | 501(C)(3) | $15,751 | STAFFING GRANT-TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY & TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE | |
| BLEEDING DISORDER ASSN OF NE NEW YORK | ||||||||
| PO BOX 947 172B COLUMBIA TURNPIKE | RENSSELAER | NY | 12144 | 222519156 | 501(C)(3) | $30,955 | ADVOCACY CAPACITY BUILDING; V4W GRANT-WEBINAR SERIES PROG AND STAFFING ASSISTANCE FOR CHAPTER | |
| BOSTON CHILDREN'S HOSPITAL | ||||||||
| 300 LONGWOOD AVENUE | BOSTON | MA | 02115 | 042774441 | 501(C)(3) | $39,833 | JGP RESEARCH FELLOWSHIP-"MECHANOREGULATION OF VON WILLEBRAND FACTOR INHIBITION AND ACTIVATION" | |
| CHILDREN'S BLOOD & CANCER CENTER C TEXAS | ||||||||
| 1301 BARBARA JORDAN BLVD SUITE 401 | AUSTIN | TX | 78723 | 521640403 | 501(C)(3) | $10,000 | SOCIAL WORKERS' EXCELLENCE FELLOWSHIP | |
| CENTER OF INHERITED BLOOD DISORDERS | ||||||||
| 1310 W STEWART DRIVE SUITE 606 | ORANGE | CA | 92868 | 270179192 | 501(C)(3) | $10,000 | PHYSICAL THERAPIST EXCELLENCE FELLOWSHIP | |
| CHILDREN'S NATIONAL MEDICAL CENTER | ||||||||
| 111 MICHIGAN AVE | WASHINGTON | DC | 20010 | 521640403 | 501(C)(3) | $15,000 | HTC CAPACITY BUILDING GRANT FOR ADOLESCENT TRANSITION CLINICS | |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | ||||||||
| 3501 CIVIC CENTER BOULEVARD | PHILADELPHIA | PA | 19104 | 231352166 | 501(C)(3) | $50,000 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| DRDA-UNIVERSITY OF MICHIGAN | ||||||||
| 3003 SOUTH STATE ROOM 1054 | ANN ARBOR | MI | 48109 | 386006309 | 501(C)(3) | $35,000 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| GREAT LAKES HEMOPHILIA FOUNDATION | ||||||||
| 638 N 18TH ST STE 108 | MILWAUKEE | WI | 53233 | 237367636 | 501(C)(3) | $14,105 | STAFFING ASSISTANCE FOR CHAPTER | |
| HEMOPHILIA COUNCIL OF CALIFORNIA | ||||||||
| 1507 21ST STREET STE 103 | SACRAMENTO | CA | 95811 | 680182998 | 501(C)(3) | $75,000 | ADVOCACY CAPACITY BUILDING GRANT | |
| HEMOPHILIA CENTER AT OREGON HEALTH & SCIENCE | ||||||||
| 707 SW GAINES STREET | PORTLAND | OR | 97239 | 237083114 | 501(C)(3) | $15,000 | HTC CAPACITY BUILDING GRANT-FUNDING PSYCHOLOGY FELLOWSHIPS AND SURVEYS | |
| HEMOPHILIA FOUNDATION OF OREGON | ||||||||
| 10940 SW BARNES RD 129 | PORTLAND | OR | 97225 | 930551733 | 501(C)(3) | $17,260 | STAFFING ASSISTANCE FOR CHAPTER | |
| HEMOPHILIA OF IOWA | ||||||||
| 58N 5TH STREET PO BOX 415 | CENTRAL CITY | IA | 52214 | 421334948 | 501(C)(3) | $8,767 | STAFFING ASSISTANCE FOR CHAPTER | |
| HEMOPHILIA THROMBOSIS TREATMENT CTR HAWAII | ||||||||
| 55 MERCHANT STREET 26TH FLOOR | HONOLULU | HI | 96813 | 990246364 | 501(C)(3) | $23,550 | HTC CAPACITY BUILDING GRANT FOR PATIENT OUTREACH TO REMOTE AREAS | |
| HEMOPHILIA TREATMENT CENTER OF NEVADA | ||||||||
| 3121 SOUTH MARYLAND PARKWAY SUITE | LAS VEGAS | NV | 89109 | 260286469 | 501(C)(3) | $20,000 | HTC CAPACITY BUILDING GRANT | 206 |
| N DAKOTA HEMOSTASIS TROMBOSIS TREATMENT CENTER | ||||||||
| 520 MAIN STREET SUITE 700 | FARGO | ND | 58102 | 450398104 | 501(C)(3) | $21,191 | SURVEY OF PATIENT KNOWLEDGE AND ATTITUDES; COORDINATE CARE WITH EDUCATORS, SCHOOL NURSES, DENTISTS, ETC | |
| MUNSON MEDICAL CENTER (N REGION BLEEDING DISORDERS CENTER) | ||||||||
| 1105 SIXTH ST | TRAVERSE CITY | MI | 49684 | 381362830 | 501(C)(3) | $13,500 | NURSING EXCELLENCE FELLOWSHIP | |
| NEW ENGLAND HEMOPHIA CENTER | ||||||||
| 55 LAKE AVE NORTH | NORTH WORCESTER | MA | 01655 | 043167352 | 501(C)(3) | $7,303 | HTC CAPACITY BUILDING GRANT FOR GENETIC COUNSELING | |
| NORTHER OHIO HEMOPHILIA FOUNDATION | ||||||||
| 5000 ROCKSIDE RD SUITE 230 | INDEPENDENCE | OH | 44131 | 341018501 | 501(C)(3) | $6,596 | CHAPTER-VICTORY FOR WOMAN PROGRAM AND STAFFING ASSISTANCE | |
| REGENTS OF THE UNIVERSITY OF MICHIGAN | ||||||||
| 3003 S STATE ST 1ST FL | ANN ARBOR | MI | 48109 | 386006309 | 501(C)(3) | $31,500 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| SOUTHWEST OHIO HEMOPHILA FOUNDATION | ||||||||
| 3131 SOUTH DIXIE DRIVE SUITE 103 | MORAINE | OH | 45439 | 311527065 | 501(C)(3) | $22,500 | ADVOCACY CAPACITY BUILDING GRANT | |
| ST LUKE'S HEMOPHILIA CENTER | ||||||||
| 100E IDAHO STREET | BOISE | ID | 83712 | 820161600 | 501(C)(3) | $15,000 | HTC CAPACITY BUILDING GRANT | |
| TEXAS CENTRAL HEMOPHILIA ASSOCIATION | ||||||||
| 12700 HILLCREST ROAD STE 191 | DALLAS | TX | 75230 | 751187148 | 501(C)(3) | $47,500 | ADVOCACY CAPACITY BUILDING AND STAFFING ASSISTANCE FOR CHAPTER | |
| THE CHILDREN'S HOSPITAL OF PHILADELPHIA | ||||||||
| 34TH STREET CIVIC CENTER BOULEVARD | PHILADEPHIA | PA | 19104 | 231352166 | 501(C)(3) | $52,500 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND | ||||||||
| 6823 ST CHARLES AVENUE | NEW ORLEANS | LA | 70118 | 720423889 | 501(C)(3) | $100,000 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| THE MEDICAL COLLEGE OF WISCONSIN | ||||||||
| 8701 WATERTOWN PLANK RD PO BOX | MILWAUKEE | WI | 53226 | 390806261 | 501(C)(3) | $47,749 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | 26500 |
| THE OHIO STATE UNIVERSITY | ||||||||
| 1960 KENNY RD | COLUMBUS | OH | 43210 | 316025986 | 501(C)(3) | $45,000 | HTC CAPACITY BUILDING GRANT | |
| UNIVERSITY OF N CAROLINA AT CHAPEL HILL OFFICE OF SPONSORED RESEARCH | ||||||||
| PO BOX 402420 | ATLANTA | GA | 30384 | 566001393 | 501(C)(3) | $104,667 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| UNIV OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON | ||||||||
| PO BOX 301418 | DALLAS | TX | 75303 | 741761309 | 501(C)(3) | $28,125 | CAREER FOCUSED PROGRAMS, PATIENCE ASSISTANCE FOR CAREER/EDUCATIONAL NEEDS | |
| UNIV OF COLORADO DENVER | ||||||||
| 13199 EAST MONTVIEW BLVD | AURORA | CO | 80045 | 840404231 | 501(C)(3) | $92,986 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| UNIVERSITY HOSPITALS CASE MEDICAL CENTER | ||||||||
| 11100 EUCLID AVE | CLEVELAND | OH | 44106 | 340714775 | 501(C)(3) | $7,800 | HTC CAPACITY BUILDING GRANT | |
| UNIVERSITY OF CALIFORNIA SAN DIEGO | ||||||||
| 9500 GILMAN DRIVE | LA JOLLA | CA | 92093 | 956006144 | 501(C)(3) | $70,000 | CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS | |
| VANDERBILT UNIVERSITY MEDICAL CENTER | ||||||||
| PO BOX 121236 | DALLAS | TX | 75312 | 620476822 | 501(C)(3) | $49,600 | HTC CAPACITY BUILDING GRANT FOR WOMEN WITH BLEEDING DISORDERS | |
| VIRGINIA COMMONWEALTH UNIVERSITY | ||||||||
| PO BOX 980461 | RICHMOND | VA | 23298 | 546001758 | 501(C)(3) | $31,429 | HTC CAPACITY BUILDING GRANT FOR GENETIC COUNSELING | |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (5 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| TRAVEL ASSISTANCE TO FAMILIES INVITED TO ANNUAL MEETING. | 89 | $33,338 |
| KEVIN CHILD SCHOLARSHIP AWARD | 1 | $1,000 |
| DOREEN MCMULLAN MCCARTHY MEMORIAL ACADEMIC AWARD | 1 | $2,500 |
| JOSH GORDY H.O.P.E. FOUNDATION SCHOLARSHIP AWARD | 1 | $1,000 |
| JOSH GODY EDUCATIONAL SCHOLARSHIP AWARD | 1 | $1,000 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | BASED ON THE NHF REQUIREMENTS ALL CHAPTERS THAT WERE AWARDED GRANTS PROVIDE QUARTERLY PROGRAM AND FINANCIAL REPORTS REGARDING THEIR GRANTS WITH US. ONLY AFTER SUBMISSION OF A QUARTERLY PROGRAM REPORT DESCRIBING THEIR PROGRESS IN COMPLETING DELINEATED TASKS AND COMPLETE FINANICIAL REPORTING NHF WILL RELEASE THE NEXT QUARTERLY PAYMENT FOR THE GRANT RECIPIENTS. THE FINAL PAYMENT IS HELD UNTIL A FULL FINAL SUMMARY REPORT IS HANDED IN, ALL TASKS HAVE BEEN ADDRESSED AND FINANCIAL STATEMENTS RECONCILED (GRANTS TO CHAPTERS). ALL GRANTEES FOR THE RESEARCH PROGRAMS MUST SUBMIT FINANCIAL REPORTS FROM THEIR INSTITUTION STATING THE PAYMENTS HAVE BEEN RECEIVED AND APPROPRIATE EXPENSES INCURRED. DEPENDING UPON THE AWARD, THESE REPORTS ARE EITHER DUE ON A SEMI-ANNUAL OR ANNUAL BASIS. SUBSEQUENT PAYMENTS AND DECISIONS REGARDING CONTINUATION OF MULTI-YEAR GRANTS ARE DEPENDENT UPON ANNUAL RECEIPT, REVIEW AND APPROVAL OF BUDGETS, FINANCIAL REPORTS, CONTINUATION APPLICATIONS AND SCIENTIFIC PROGRESS REPORTS. AS A CONDITION OF THEIR AWARD, ALL GRANTEES SIGN AN AGREEMENT WITH NHF TO ABIDE BY OUR ORGANIZATION'S GRANT POLICIES AND PROCEDURES, WHICH ALSO INCLUDES A DESCRIPTION OF AUTHORIZED AND UNAUTHORIZED EXPENSES. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | Yes (1) | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| VAL BIAS | ||||||||||||||
| CHIEF EXECUTIVE OFFICER | $308,567 | $0 | $16,883 | $0 | $1,806 | $0 | $42,176 | $0 | $28,135 | $0 | $397,567 | $0 | $0 | $0 |
| JORDANA ZEGER | ||||||||||||||
| CHIEF OPERATING OFFICER | $191,748 | $0 | $0 | $0 | $2,713 | $0 | $12,557 | $0 | $28,103 | $0 | $235,121 | $0 | $0 | $0 |
| JOSEPH KLEIBER | ||||||||||||||
| SENIOR V.P. OF CHAPTER SER | $182,171 | $0 | $5,000 | $0 | $2,561 | $0 | $18,934 | $0 | $19,949 | $0 | $228,615 | $0 | $0 | $0 |
| MARY ANN LUDWIG | ||||||||||||||
| V.P. OF DEVELOPMENT | $214,913 | $0 | $0 | $0 | $2,772 | $0 | $22,026 | $0 | $10,118 | $0 | $249,829 | $0 | $0 | $0 |
| NEIL FRICK | ||||||||||||||
| V.P. OF RESEARCH & MEDICAL | $138,000 | $0 | $10,000 | $0 | $402 | $0 | $13,861 | $0 | $9,849 | $0 | $172,112 | $0 | $0 | $0 |
| JOHN INDENCE | ||||||||||||||
| V.P. OF MARKETING AND COMM | $137,482 | $0 | $10,000 | $0 | $616 | $0 | $13,861 | $0 | $9,861 | $0 | $171,820 | $0 | $0 | $0 |
| SANDRA ROTELLINI | ||||||||||||||
| V.P. OF CHAPTER DEVELOPMENT & EDUCAT | $125,301 | $0 | $10,000 | $0 | $524 | $0 | $12,715 | $0 | $9,731 | $0 | $158,271 | $0 | $0 | $0 |
| MICHELLE RICE | ||||||||||||||
| V.P. OF PUBLIC POLICY & STAKEHOLD RE | $123,336 | $0 | $10,000 | $0 | $342 | $0 | $11,967 | $0 | $27,383 | $0 | $173,028 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 3 | THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE WITH INPUT FROM HUMAN RESOURCES/COO AS WELL AS USING SALARY SURVEYS. |
| PART I, LINE 4B | PART I, LINE 4B: THE ORGANIZATION MAINTAINS A 457(B) PLAN. |
| PART I, LINE 7 | THE CEO SHALL BE ELIGIBLE TO RECEIVE AN ANNUAL BONUS OF UP TO 6% OF BASE SALARY BASED ON PERFORMANCE IN A CONTRACT YEAR. THE FORM AND AMOUNT OF ANY PERFORMANCE BONUS SHALL BE WITHIN THE BOARD'S DISCRETION. THE BONUS DETERMINATION WILL BE MADE PURSUANT TO A FORMALIZED REVIEW PROCESS CONDUCTED BY THE BOARD AND IS SPECIFIC TO MEETING GOALS. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 6 | THE ORGANIZATION HAS CHAPTER MEMBERS WHO ARE VOTING MEMBERS OF THE ORGANIZATION. AN ORGANIZATION WHOSE MISSION AND PURPOSE IS CONSISTENT WITH THE MISSION OF NHF MAY APPLY TO BE A CHAPTER MEMBER. THE CEO IS AUTHORIZED TO ACCEPT OR DENY CHAPTER MEMBER STATUS. |
| FORM 990, PART VI, SECTION A, LINE 7A | CHAPTER MEMBERS ARE ENTITLED TO VOTE FOR DIRECTORS FOR EACH OF THE VACANCIES TO BE FILLED DURING ELECTIONS. |
| FORM 990, PART VI, SECTION B, LINE 11 | A COPY OF FORM 990 IS CIRCULATED ELECTRONICALLY TO THE ORGANIZATION'S BOARD MEMBERS. THE FULL BOARD WILL HAVE THE OPPORTUNITY TO HAVE THE FORM 990 PRESENTED TO THEM BY THE AUDITOR BY CONFERENCE CALL PRIOR TO BEING SUBMITTED. THE CEO, COO AND CONTROLLER ARE ALSO PRESENT ON THE CALL. |
| FORM 990, PART VI, SECTION B, LINE 12C | BOARD MEMBERS DISCLOSE IN WRITING ANNUALLY AND VERBALLY AT THE BEGINNING OF EACH MEETING. EMPLOYEES DISCLOSE AT HIRE AND ANNUALLY. CEO/COO MANAGE CONFLICTS FOR EMPLOYEES. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE WITH INPUT FROM HUMAN RESOURCES/COO AS WELL AS USING SALARY SURVEYS. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICTS OF INTEREST AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS WEBSITE. |
| FORM 990, PART XI, LINE 9: | ADJUSTMENT FOR EXCESS EXPENSE ACCRUAL IN CONNECTION W/ARBITRATION 210,426. |
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