NATIONAL BLEEDING DISORDERS FOUNDATION: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization
NATIONAL BLEEDING DISORDERS FOUNDATION (EIN 13-5641857)
Tax period
2015-01-01 to 2015-12-31
Filed
2016-08-12
IRS object ID
201642259349301499
Schema version
2015v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2016-08-12T13:14:22-05:00ReturnTs
Tax Period End2015-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN221732349PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1WISS & COMPANY LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1354 EISENHOWER PARKWAYAddressLine1Txt
CityLIVINGSTONCityNm
State AbbreviationNJStateAbbreviationCd
ZIP07039ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2015-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN135641857EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NATIONAL HEMOPHILIA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone2123283700PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17 PENN PLAZA SUITE 1204AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonVAL BIASPersonNm
Person TitleCHIEF EXECUTIVE OFFICERPersonTitleTxt
Phone2123283700PhoneNum
Signature2016-08-11SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMICHAEL ANDRIOLAPreparerPersonNm
PTINP00252682PTIN
Phone9739949400PhoneNum
FieldValueIRS element (for citing)
Tax2015TaxYr
Build TS2016-12-15 16:53:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerVAL BIASPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line17 PENN PLAZA SUITE 1204AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$31,279,555GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.HEMOPHILIA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1948FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionDEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDES AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body16VotingMembersGoverningBodyCnt
Voting Members Independent16VotingMembersIndependentCnt
Total Employee84TotalEmployeeCnt
Total Volunteers1050TotalVolunteersCnt
Total Gross UBI$1,679,135TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$300,824NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$15,252,599PYContributionsGrantsAmt
CY Contributions Grants$19,114,046CYContributionsGrantsAmt
PY Program Service Revenue$2,052,483PYProgramServiceRevenueAmt
CY Program Service Revenue$2,100,521CYProgramServiceRevenueAmt
PY Investment Income$484,700PYInvestmentIncomeAmt
CY Investment Income$343,358CYInvestmentIncomeAmt
PY Other Revenue-$940,068PYOtherRevenueAmt
CY Other Revenue-$1,130,271CYOtherRevenueAmt
PY Total Revenue$16,849,714PYTotalRevenueAmt
CY Total Revenue$20,427,654CYTotalRevenueAmt
PY Grants And Similar Paid$1,384,553PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,582,355CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$6,087,678PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$6,250,396CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$24,300PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$22,645CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,070,830CYTotalFundraisingExpenseAmt
PY Other Expenses$7,928,120PYOtherExpensesAmt
CY Other Expenses$10,427,142CYOtherExpensesAmt
PY Total Expenses$15,424,651PYTotalExpensesAmt
CY Total Expenses$18,282,538CYTotalExpensesAmt
PY Revenues Less Expenses$1,425,063PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$2,145,116CYRevenuesLessExpensesAmt
Total Assets BOY$19,647,371TotalAssetsBOYAmt
Total Assets EOY$22,146,226TotalAssetsEOYAmt
Total Liabilities BOY$7,043,701TotalLiabilitiesBOYAmt
Total Liabilities EOY$7,887,628TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$12,603,670NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$14,258,598NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE NATIONAL HEMOPHILIA FOUNDATION IS DEDICATED TO FINDING BETTER TREATMENTS AND CURES FOR INHERITABLE BLEEDING DISORDERS AND TO PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH EDUCATION, ADVOCACY AND RESEARCH.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$7,603,626ExpenseAmt
Grant$119,771GrantAmt
Revenue$421,386RevenueAmt
DescHEALTH EDUCATION AND TRAINING - THROUGH HANDI, NHF'S INFORMATION RESOURCE CENTER, MORE THAN 2,000 REQUESTS WERE ANSWERED IN 2015. THESE REQUESTS WERE RECEIVED FROM PATIENTS, FAMILIES, HEALTHCARE PROVIDERS AND THE GENERAL PUBLIC ON SUCH TOPICS AS HEMOPHILIA, VON WILLEBRAND DISEASE, HEALTHCARE COVERAGE, HEPATITIS C, HIV, INHIBITOR FORMATION AND SCHOOL ISSUES. IN COLLABORATION WITH MEDSCAPE EDUCATION, NHF OFFERED 11 EDUCATIONAL PROGRAMS FOR HEALTHCARE PROVIDERS REACHING OVER 101,000 LEARNERS. NHF PROVIDED LIVE HEALTHCARE PROVIDER EDUCATION TO 450 INDIVIDUALS AT NHF'S 2015 ANNUAL MEETING AS WELL AS PROVIDING A SEPARATE SYMPOSIUM "ONE IN A MILLION: MANAGING RARE BLEEDING DISORDERS" FOR 110 NURSES. NHF PROVIDED FUNDING AND CREATED EDUCATIONAL CONTENT FOR THE LARGEST GATHERING OF FACTOR XIII DEFICIENT PATIENTS AND THEIR FAMILIES TO ATTEND NHF'S 2015 ANNUAL MEETING WITH A TOTAL OF 27 ATTENDEES. NHF DEVELOPED 4 PSYCHOSOCIAL EDUCATIONAL MODULES THAT WERE OFFERED TO NHF CHAPTERS AND HEMOPHILIA TREATMENT CENTERS FOR USE AT THEIR LIVE MEETINGS THROUGH OUR COLLABORATING IN CARE PROGRAM. 21 CHAPTERS ACROSS THE UNITED STATES TOOK ADVANTAGE OF THIS RESOURCE WITH A TOTAL OF 786 ATTENDEES. NHF ALSO DEVELOPED AND WROTE 61 NEWS STORIES ON UPDATES IN HEMATOLOGY BOTH SCIENTIFIC AND INDUSTRY PRODUCED THAT WERE POSTED ON THE NHF WEB SITE.NHF ORGANIZED 2 NATIONAL INHIBITOR EDUCATION SUMMITS IN ENGLISH FOR PATIENTS AND FAMILIES EXPERIENCING THE COMPLICATION OF AN INHIBITOR. THE FIRST WAS JULY 9-12, 2015, IN WESTMINSTER, CO, WITH 397 TOTAL PARTICIPANTS. THE SECOND WAS JULY 16-19, 2015, IN ATLANTA, GA, WITH 456 TOTAL PARTICIPANTS. NHF SUCCESSFULLY OFFERED FOUR REGIONAL INHIBITOR EDUCATION SUMMITS IN GREENVILLE, SC WITH 67 ATTENDEES, MINNEAPOLIS, MN WITH 71 ATTENDEES, SAN DIEGO, CA WITH 55 ATTENDEES AND SAN ANTONIO, TX WITH 72 ATTENDEES. NHF ALSO PRODUCED 4 WEBINARS SPECIFICALLY FOR INHIBITOR PATIENTS ON PSYCHOSOCIAL ISSUES THAT ARE NOW AVAILABLE FOR VIEWING ON NHF'S WEB SITE. THE PRIMARY GOALS OF THE NATIONAL HEMOPHILIA FOUNDATION'S (NHF'S) VICTORY FOR WOMEN PROGRAM ARE: 1) TO INCREASE AWARENESS TO FACILITATE EARLY AND ACCURATE DIAGNOSES; AND 2) TO PROVIDE AFFECTED WOMEN WITH EDUCATION AND SUPPORT. 2015 HIGHLIGHTS INCLUDED: A WEBINAR SERIES WITH KEY LEADERS AND GUEST SPEAKERS THAT TEACHES CHAPTERS HOW TO CREATE A WOMEN'S EDUCATIONAL SUPPORT PROGRAM AND HOW TO EVALUATE SUCCESS; THIS PROGRAM INCLUDED FUNDS TO CHAPTERS FOR EDUCATIONAL AND SUPPORT ACTIVITIES FOR GIRLS AND WOMEN WITH BLEEDING DISORDERS; FUNDING FOR CHAPTERS TO SEND A WOMAN WITH A BLEEDING DISORDER TO THE NHF ANNUAL MEETING; PROVIDED SEVEN EDUCATIONAL SESSIONS FOR FEMALE CONSUMERS AT THE NHF 2015 ANNUAL MEETING; AND PROVIDED WORKSHOPS (TOPICS INCLUDE: FROM MY STRUGGLE COMES MY STRENGTH, WORK-LIFE BALANCE AND ADVOCATING FOR YOURSELF AS A WOMAN) FOR CONSUMERS AT CHAPTER EDUCATION DAYS AND WOMEN'S RETREATS. NHF DISTRIBUTED OVER 3000 EDUCATIONAL PRINT MATERIALS TARGETING WOMEN OR THOSE WITH VON WILLEBRAND DISEASE.STEPS FOR LIVING IS A MULTIMEDIA EDUCATIONAL PROGRAM DESIGNED TO INCREASE ACCESS TO AGE AND CULTURALLY APPROPRIATE INFORMATION SO THAT CHILDREN, TEENS, ADULTS, AND FAMILIES CAN MANAGE THE DAILY CHALLENGES OF LIVING WITH A BLEEDING DISORDER. THIS ALSO INCLUDES ENSURING SUCCESSFUL LIFE TRANSITIONS AND PREVENTING SECONDARY COMPLICATIONS. IN 2015, STEPSFORLIVING.HEMOPHILIA.ORG HAD 99,000 USERS AND NEW VIDEOS, LIKE MAKING YOUR CLOTTING FACTOR WORK FOR YOU AND BLEEDING DISORDERS IN THE WORKPLACE: WHAT EMPLOYEES SHOULD KNOW ABOUT RIGHTS AND ACCOMMODATIONS. NHF PROVIDED 2 IN-PERSON STEPS FOR LIVING TRAIN THE TRAINER PROGRAMS FOR STAFF AND HEALTHCARE PROVIDERS FROM 33 CHAPTERS/HTCS ACROSS THE COUNTRY AND FACILITATED WORKSHOPS FOR CONSUMERS AT 17 LOCAL CHAPTER EVENTS. NHF CONTINUED TO PRINT AND DISTRIBUTE OVER 2700 EDUCATIONAL PRINT MATERIALS INCLUDING GUIDELINES FOR GROWING BROCHURE SERIES, A WELCOME KIT FOR NEWLY DIAGNOSED FAMILIES, AND MY HTC AND ME COLORING BOOKS IN ENGLISH AND SPANISH.NHF HAS DESIGNED THE NATIONAL YOUTH LEADERSHIP INSTITUTE (NYLI) TO ASSIST YOUNG PEOPLE FROM THE BLEEDING DISORDERS COMMUNITY TO BECOME WELL-TRAINED, RECOGNIZED LEADERS. NHF ACHIEVES THESE OUTCOMES BY PROVIDING YOUNG ADULTS WITH TRAINING, SUPPORT AND OPPORTUNITIES TO PROVIDE EDUCATION TO THE BLEEDING DISORDERS COMMUNITY. IN 2015, NHF PROVIDED TRAININGS TO THE 21 MEMBERS OF NYLI ON TOPICS INCLUDING PUBLIC SPEAKING, ADVOCACY, NON-PROFIT MANAGEMENT AND FUNDRAISING. NINE NYLI MEMBERS ASSUMED LEADERSHIP POSITIONS IN A VARIETY OF NHF PROGRAMS, INCLUDING SERVING AS A NON-VOTING MEMBER OF THE NHF BOARD; NHF ANNUAL MEETING PLANNING COMMITTEE; CDC CONTENT ADVISORY GROUPS FOR JOINT HEALTH AND WOMEN WITH BLEEDING DISORDERS; 1ST-YEAR NYLI LEADERSHIP TRAINING; WASHINGTON DAYS AND NHF ANNUAL MEETING NYLI TRAINING COMMITTEE; ANNUAL MEETING TEEN TRACK; HEMAWARE MAGAZINE EDITORIAL GROUP; AND SOCIAL MEDIA REPRESENTATIVE. NYLI MEMBERS PROVIDED EDUCATIONAL SESSIONS, ADVOCATED ON BEHALF THEIR STATES IN WASHINGTON DC, LED PEER EDUCATION PROGRAMS FOR TEENS, AND FACILITATED RAP SESSIONS AT NATIONAL MEETINGS. NHF IMPLEMENTED ITS NEW 3-YEAR STRUCTURE, WHICH PLACES STRONG EMPHASIS ON TRAINING IN HOW TO DELIVER IN-PERSON PROGRAMMING FOR LOCAL CHAPTERS AND HTCS. AREAS OF FOCUS ARE OUTREACH, ADVOCACY, AND NON-PROFIT DEVELOPMENT.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$3,914,357ExpenseAmt
Grant$239,762GrantAmt
DescCOMMUNITY SERVICES - NHF'S PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PEOPLE WITH BLEEDING DISORDERS BY EDUCATING FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS , INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY AREAS OF FOCUS ARE PAYER AND CONSUMER EDUCATION, AND SELF-ADVOCACY. THE PUBLIC POLICY DEPARTMENT PROVIDES TRAINING, TOOLS AND HANDS-ON SUPPORT TO CONSUMERS TO HELP THEM BECOME EFFECTIVE SELF-ADVOCATES. CONSUMERS ARE ENCOURAGED TO PARTICIPATE IN NHF'S ANNUAL WASHINGTON DAYS PROGRAM, WHICH IS A GRASSROOTS EVENT THAT BRINGS PATIENTS AND THEIR FAMILIES TO THE HILL TO MEET WITH THEIR MEMBERS OF CONGRESS. IN ADDITION, NHF PROVIDES A SERIES OF EDUCATIONAL OPPORTUNITIES FOR PAYERS TO HELP THEM BETTER UNDERSTAND THE UNIQUE HEALTHCARE NEEDS OF THOSE AFFECTED BY BLEEDING DISORDERS.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,811,044ExpenseAmt
Grant$391,359GrantAmt
DescCHAPTER SERVICES - NHF'S CHAPTER SERVICES DEPARTMENT PROVIDES COMMUNITY SUPPORT BY HELPING ITS 51 MEMBER CHAPTERS OFFER EDUCATION, RESOURCES AND REFERRALS TO AFFECTED MEMBERS OF THE BLEEDING DISORDERS COMMUNITY IN THE AREAS THAT EACH CHAPTER SERVES. CHAPTER SERVICES OFFERS THE CHAPTERS FINANCIAL SUPPORT IN THE FORM OF GRANTS, SPONSORS TRAINING MEETINGS AND PROVIDES SOME HOTEL EXPENSE SUPPORT FOR ADVOCACY MEETINGS. DEPARTMENT STAFF MEMBERS MENTOR CHAPTER LEADERS ON HOW TO CREATE, EXECUTE AND EVALUATE EDUCATIONAL PROGRAMS DESIGNED FOR THEIR AFFECTED CONSTITUENTS. IN 2015 CHAPTER SERVICES HELD TWO REGIONAL LEADERSHIP SEMINARS OFFERING TRAINING ON ETHICAL ISSUES FOR NONPROFITS, HEALTHCARE FOR CHAPTERS, FUNDRAISING, ADVOCACY AND EDUCATIONAL INITIATIVES. A FULL "CHAPTER TRAINING TRACK" WAS ALSO OFFERED DURING NHF'S 2015 ANNUAL MEETING IN DALLAS, TX.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$1,307,692ExpenseAmt
Grant$831,463GrantAmt
DescRESEARCH - NHF AWARDED TWO (2) NHF/BAXTALTA CLINICAL FELLOWSHIPS TO FELLOWS AT BOSTON CHILDREN'S HOSPITAL AND THE UNIVERSITY OF MICHIGAN. TWO (2) NHF JUDITH GRAHAM POOL POSTDOCTORAL RESEARCH FELLOWSHIPS WERE AWARDED AT THE FOLLOWING INSTITUTIONS: THE UNIVERSITY OF COLORADO AT DENVER FOR THE PROJECT "A MULTI-SYSTEM EVALUATION OF VWF FUNCTION IN TYPE 1 VWD MUTATIONS AND DUKE UNIVERSITY FOR THE PROJECT "UNDERSTANDING THE LOSS OF PERIVASCULAR TISSUE FACTOR DURING ANGIOGENESIS IN HEMOPHILIA." THE NHF NURSING EXCELLENCE FELLOWSHIP WAS AWARDED TO A NURSE AT THE UNIVERSITY OF CALIFORNIA IN SAN FRANCISCO FOR HER PROJECT, "THE USE OF HIGH RESOLUTION POWER DOPPLER MUSCULOSKELETAL ULTRASOUND IN BLEEDING DISORDERS." THE NHF SOCIAL WORK EXCELLENCE FELLOWSHIP WAS AWARDED TO A SOCIAL WORKER AT THE HENRY FORD HEALTH SYSTEMS FOR HER PROJECT, "THE ROLE OF THE HEMOPHILIA TREATMENT CENTER SOCIAL WORKER: A NATIONAL SURVEY." THE NHF PHYSICAL THERAPY EXCELLENCE FELLOWSHIP TO A PHYSICAL THERAPIST AT THE OREGON HEALTH & SCIENCE UNIVERSITY FOR HIS PROJECT, "EFFECT OF EXERCISE ON BONE MINERAL DENSITY AND STRENGTH IN FACTOR VIII DEFICIENT MICE."Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$1,307,692TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$831,463TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$14,636,719TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent EndowmentsYes (1)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document153IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee84EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members16GoverningBodyVotingMembersCnt
Independent Voting Member16IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or StockholdersYes (1)MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJORDANA ZEGERPersonNm
Phone2123283700PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17 PENN PLAZA SUITE 1204AddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10001ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (25 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
JORGE DE LA RIVA
CHAIR10.00Yes (X)Yes (X)$0$0$0
CAROL SIMONETTI
VICE-CHAIR10.00Yes (X)Yes (X)$0$0$0
BRIAN ANDREW
TREASURER10.00Yes (X)Yes (X)$0$0$0
MARK BORRELIZ
SECRETARY10.00Yes (X)Yes (X)$0$0$0
JEFF ALEXIS MD
DIRECTOR10.00Yes (X)$0$0$0
JORDAN BLACK
DIRECTOR10.00Yes (X)$0$0$0
DAVID COHENOUR
DIRECTOR10.00Yes (X)$0$0$0
BARBARA GORDON
DIRECTOR10.00Yes (X)$0$0$0
JAMES F HAMMEL MD
DIRECTOR10.00Yes (X)$0$0$0
KRISTIE KAY OSTASH MD
DIRECTOR10.00Yes (X)$0$0$0
JAMES A HEER
DIRECTOR10.00Yes (X)$0$0$0
MATT RHODES
DIRECTOR10.00Yes (X)$0$0$0
DUTTA SATADIP
DIRECTOR10.00Yes (X)$0$0$0
GILBERT C WHITE II MD
DIRECTOR10.00Yes (X)$0$0$0
LYNN WILMARTH
DIRECTOR10.00Yes (X)$0$0$0
MARTIN SCOTT
DIRECTOR10.00Yes (X)$0$0$0
KENNETH TRADER TO 22015
DIRECTOR10.00Yes (X)$0$0$0
VAL BIAS
CHIEF EXECUTIVE OFFICER40.00Yes (X)$321,504$0$82,875
JORDANA ZEGER
CHIEF OPERATING OFFICER40.00Yes (X)$213,150$0$49,399
JOSEPH KLEIBER
SENIOR V.P. OF CHAPTER SER40.00$195,705$0$41,476Yes (X)
MARY ANN LUDWIG
V.P. OF DEVELOPMENT40.00$232,896$0$34,078Yes (X)
NEIL FRICK
V.P. OF RESEARCH & MEDICAL40.00$139,293$0$25,717Yes (X)
JOHN INDENCE
V.P. OF MARKETING AND COMM40.00$141,034$0$25,665Yes (X)
SANDRA ROTELLINI
V.P. OF CHAPTER DEVELOPMEN40.00$136,422$0$24,699Yes (X)
MICHELLE RICE
V.P. OF PUBLIC POLICY & ST40.00$131,733$0$44,933Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,511,737TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$328,842TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K11IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
IMPACT EDUCATION LLC
589 SKIPPACK PIKE SUITE 200BLUE BELLPA19422CONTINUING EDUCATION$862,334
MANIFEST LLC
4110 N SCOTTSDALE ROAD SUITE 315SCOTTSDALEAZ85251PRODUCTION OF HEMAWARE$565,527
INTEGRATED PUBLISHING SALES LLC
519 SPICEBUSH LANECHARGIN FALLSOH44023SALES OF ADVERTISING SPACE$248,280
SCHERER CLINICAL COMMUNICATIONS
117 WEST PROSPECT STREETHOPEWELLNJ08525EDUCATIONAL PROGRAMMING SVC$232,030
CAVAROCCHI RUSCIO DENNIS ASSOCIATES L
600 MARYLAND AVE SW STE 835WWASHINGTONDC20024CONSULTANT FOR STRATEGIC SERVICES AND PU$204,000
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K13CntrctRcvdGreaterThan100KCnt
Federated Campaigns$17,479FederatedCampaignsAmt
Fundraising$2,232,686FundraisingAmt
Government Grants$401,996GovernmentGrantsAmt
All Other Contributions$16,461,885AllOtherContributionsAmt
Noncash Contributions$8,132NoncashContributionsAmt
Total Contributions$19,114,046TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
ADVERTISING541800$1,679,135$1,679,135
EDUCATIONAL SEMINARS611710$413,846$413,846
PUBLICATIONS900099$7,540$7,540
FieldValueIRS element (for citing)
Total Program Service Revenue$2,100,521TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$364,496TotalRevenueColumnAmt
Exclusion$364,496ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$9,628,359SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$9,649,497SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$21,138SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$21,138TotalRevenueColumnAmt
Exclusion-$21,138ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$37,210FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$2,232,686ContriRptFundraisingEventAmt
Fundraising Direct Expenses$1,202,404FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$1,165,194TotalRevenueColumnAmt
Exclusion-$1,165,194ExclusionAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$34,923TotalRevenueColumnAmt
Exclusion$34,923ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$34,923OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$20,427,654TotalRevenueColumnAmt
Related Or Exempt Func Income$421,386RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$1,679,135UnrelatedBusinessRevenueAmt
Exclusion-$786,913ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,460,469TotalAmt
Program Services$1,460,469ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$71,886TotalAmt
Program Services$71,886ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$50,000TotalAmt
Program Services$50,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$904,109TotalAmt
Program Services$606,618ProgramServicesAmt
Management And General$202,098ManagementAndGeneralAmt
Fundraising$95,393FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$4,066,795TotalAmt
Program Services$2,606,166ProgramServicesAmt
Management And General$1,047,036ManagementAndGeneralAmt
Fundraising$413,593FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$231,006TotalAmt
Program Services$177,289ProgramServicesAmt
Management And General$20,322ManagementAndGeneralAmt
Fundraising$33,395FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$672,815TotalAmt
Program Services$556,608ProgramServicesAmt
Management And General$49,758ManagementAndGeneralAmt
Fundraising$66,449FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$375,671TotalAmt
Program Services$310,786ProgramServicesAmt
Management And General$27,783ManagementAndGeneralAmt
Fundraising$37,102FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$33,546TotalAmt
Program Services$13,929ProgramServicesAmt
Management And General$19,452ManagementAndGeneralAmt
Fundraising$165FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$56,017TotalAmt
Management And General$56,017ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$207,808TotalAmt
Program Services$207,808ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$22,645TotalAmt
Fundraising$22,645FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$29,140TotalAmt
Management And General$29,140ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$2,931,030TotalAmt
Program Services$2,568,001ProgramServicesAmt
Management And General$349,617ManagementAndGeneralAmt
Fundraising$13,412FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$159,759TotalAmt
Program Services$106,012ProgramServicesAmt
Management And General$36,115ManagementAndGeneralAmt
Fundraising$17,632FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$595,182TotalAmt
Program Services$395,075ProgramServicesAmt
Management And General$159,821ManagementAndGeneralAmt
Fundraising$40,286FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$3,923,814TotalAmt
Program Services$3,805,850ProgramServicesAmt
Management And General$83,442ManagementAndGeneralAmt
Fundraising$34,522FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$38,065TotalAmt
Management And General$34,022ManagementAndGeneralAmt
Fundraising$4,043FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$40,110TotalAmt
Management And General$40,010ManagementAndGeneralAmt
Fundraising$100FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
UNRELATED BUS. INC. TAX$128,808$128,808
STATIONERY AND PRINTING$1,009,893$709,163$135,197$165,533
EQUIPMENT RENTAL$815,631$654,552$141,193$19,886
POSTAGE AND SHIPPING$192,718$106,195$5,378$81,145

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$265,621TotalAmt
Program Services$101,504ProgramServicesAmt
Management And General$138,588ManagementAndGeneralAmt
Fundraising$25,529FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$18,282,538TotalAmt
Program Services$14,636,719ProgramServicesAmt
Management And General$2,574,989ManagementAndGeneralAmt
Fundraising$1,070,830FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$8,259,231BOYAmt
EOY$9,507,956EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,069,393BOYAmt
EOY$258,192EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$925,301BOYAmt
EOY$1,008,760EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$132,877BOYAmt
EOY$382,321EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$343,592LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$41,866LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$54,637BOYAmt
EOY$301,726EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$8,713,245BOYAmt
EOY$10,225,338EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$492,687BOYAmt
EOY$461,933EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$19,647,371BOYAmt
EOY$22,146,226EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,766,481BOYAmt
EOY$1,724,918EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$5,101,322BOYAmt
EOY$5,744,565EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$175,898BOYAmt
EOY$418,145EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$7,043,701BOYAmt
EOY$7,887,628EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$9,118,296BOYAmt
EOY$11,094,190EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,235,374BOYAmt
EOY$2,914,408EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$250,000BOYAmt
EOY$250,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$12,603,670BOYAmt
EOY$14,258,598EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$19,647,371BOYAmt
EOY$22,146,226EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$2,145,116ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$521,160NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$30,972OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,705,585CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$12,859,589CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$14,116,476CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$15,252,599CurrentTaxYearMinus1YearAmt
Current Tax Year$19,114,046CurrentTaxYearAmt
Total$71,048,295TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,705,585CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$12,859,589CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$14,116,476CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$15,252,599CurrentTaxYearMinus1YearAmt
Current Tax Year$19,114,046CurrentTaxYearAmt
Total$71,048,295TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$43,858,948SubstantialContributorsTotAmt
Public Support Total170$27,189,347PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$157,760CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$151,910CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$157,447CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$205,115CurrentTaxYearMinus1YearAmt
Current Tax Year$364,496CurrentTaxYearAmt
Total$1,036,728TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$147,971CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$86,234CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$40,297CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$130,207CurrentTaxYearMinus1YearAmt
Current Tax Year$301,824CurrentTaxYearAmt
Total$706,533TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$343,205CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus2 Years$8,792CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$24,861CurrentTaxYearMinus1YearAmt
Current Tax Year$34,923CurrentTaxYearAmt
Total$411,781TotalAmt
FieldValueIRS element (for citing)
Total Support$73,203,337TotalSupportAmt
Gross Receipts Rltd Activities$3,014,594GrossReceiptsRltdActivitiesAmt
Public Support CY1700.37140PublicSupportCY170Pct
Public Support PY1700.37790PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings MembersYes (1)MailingsMembersInd
Mailings Members$21,384MailingsMembersAmt
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$242,593DirectContactLegislatorsAmt
Rallies DemonstrationsYes (1)RalliesDemonstrationsInd
Rallies Demonstrations$24,314RalliesDemonstrationsAmt
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$288,291TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationTHE PUBLIC POLICY DEPARTMENT WORKS TO ESTABLISH AND ADVOCATE FOR POLICIES THAT PROMOTE THE HEALTH, SAFETY, RIGHTS AND ACCESS TO CARE FOR PERSONS WITH BLEEDING DISORDERS BY WORKING WITH FEDERAL AND STATE LAWMAKERS, OTHER GOVERNMENT AGENCIES AND OFFICIALS, THE MEDIA, INDUSTRY AND ALLIED ORGANIZATIONS. TWO KEY INITIATIVES OF THE DEPARTMENT ARE THE NATIONAL ADVOCACY EMPOWERMENT PROGRAM (NAEP) AND WASHINGTON DAYS. THE NAEP PROVIDES TRAINING, TOOLS AND SUPPORT TO ASSIST CONSUMERS IN BECOMING EFFECTIVE ADVOCATES. WASHINGTON DAYS IS NHF'S ANNUAL GRASSROOTS EVENT WHICH BROUGHT PATIENTS TO WASHINGTON D.C. TO MEET WITH MEMBERS OF CONGRESS.ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$328,061BeginningYearBalanceAmt
Investment Earnings Or Losses-$5,826InvestmentEarningsOrLossesAmt
End Year Balance$322,235EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$314,811BeginningYearBalanceAmt
Investment Earnings Or Losses$13,250InvestmentEarningsOrLossesAmt
End Year Balance$328,061EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$287,878BeginningYearBalanceAmt
Investment Earnings Or Losses$26,933InvestmentEarningsOrLossesAmt
End Year Balance$314,811EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$271,335BeginningYearBalanceAmt
Investment Earnings Or Losses$16,543InvestmentEarningsOrLossesAmt
End Year Balance$287,878EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$268,750BeginningYearBalanceAmt
Investment Earnings Or Losses$2,585InvestmentEarningsOrLossesAmt
End Year Balance$271,335EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY0.77580PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.22420TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$51,576OtherCostOrOtherBasisAmt
Depreciation$3,521DepreciationAmt
Book Value$48,055BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$267,820OtherCostOrOtherBasisAmt
Depreciation$28,222DepreciationAmt
Book Value$239,598BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$24,196OtherCostOrOtherBasisAmt
Depreciation$10,123DepreciationAmt
Book Value$14,073BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$301,726TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (3 entries)

DescDescBook ValueBookValueAmtMethod ValuationMethodValuationCd
MUTUAL FUNDS-FIXED INCOME$4,208,458F
MUTUAL FUNDS-EQUITY-U.S.$3,671,693F
MUTUAL FUNDS-EQUITY-INTERNATIONAL$2,345,187F
FieldValueIRS element (for citing)
Total Book Value Securities$10,225,338TotalBookValueSecuritiesAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
DEFERRED RENT$229,457
457B PLAN PAYABLE$188,688
FieldValueIRS element (for citing)
Total Liability$418,145TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$19,937,466TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$521,160NetUnrealizedGainsInvstAmt
Other Revenue$30,972OtherRevenueAmt
Revenue Not Reported-$490,188RevenueNotReportedAmt
Revenue Subtotal$20,427,654RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$20,427,654TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$18,282,538TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$18,282,538ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$18,282,538TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:TO PROVIDE FUNDING FOR RESEARCH FELLOWSHIP GRANTS. THE FOUNDATION TEMPORARILY RESTRICTED $5,826 IN 2015 REPRESENTS LOSS FROM THE ENDOWMENT FUND. TEMPORARILY RESTRICTED ASSETS OF $72,235 REPRESENTS INCOME ACCUMULATION FROM INCEPTION - JULY 1, 2008 TO DECEMBER 31, 2015.
PART X, LINE 2:THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501 (C)(3) OF THE INTERNAL REVENUE CODE AND HAS MADE NO PROVISION FOR FEDERAL OR STATE INCOME TAXES IN THE ACCOMPANYING FINANCIAL STATEMENTS. IN ADDITION, THE FOUNDATION HAS BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE (IRS) NOT TO BE A "PRIVATE FOUNDATION" WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE. OTHER SIGNIFICANT TAX POSITIONS INCLUDE ITS DETERMINATION OF WHETHER ANY AMOUNTS ARE SUBJECT TO UNRELATED BUSINESS INCOME TAX (UBIT). THE FOUNDATION HAS ACTIVITIES SUBJECT TO UBIT IN THE YEARS ENDED 2015 AND 2014 AND HAS FILED FORM 990T. ALL SIGNIFICANT TAX POSITIONS HAVE BEEN CONSIDERED BY MANAGEMENT AND IT HAS BEEN DETERMINED THAT ALL TAX POSITIONS WOULD BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. THE FOUNDATION IS REQUIRED TO FILE FORM 990 (RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX) AND THE CHAR500 (ANNUAL FILING FOR CHARITABLE ORGANIZATIONS), WHICH ARE SUBJECT TO EXAMINATION BY THE IRS UP TO THREE YEARS FROM THE EXTENDED DUE DATE OF THE TAX RETURN. THE FORMS 990 AND CHAR500 FOR 2012 THROUGH 2014 ARE OPEN TO EXAMINATION BY THE IRS AS OF DECEMBER 31, 2015. UNRELATED BUSINESS INCOME TAX FOR THE YEARS ENDED DECEMBER 31, 2015 AND 2014 AMOUNTED TO $128,808 AND $51,937, RESPECTIVELY, AND IS INCLUDED UNDER PRINTING AND OTHER (PRODUCTION OF THE HEMAWARE MAGAZINE, BOTH PRINTED AND ONLINE FORMATS) IN THE STATEMENTS OF FUNCTIONAL EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:ADJUSTMENT FOR PRIOR YEAR RECOVERY 30,972.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionNORTH AMERICARegionTxt
Purpose Of GrantDONATION TO "CLOSE THE GAP CAMPAIGN" TO MAKE POSITIVE STRIDES FOR SUSTAINABLE CARE AND TREATMENT FOR ALL, INTERNATIONALLY.PurposeOfGrantTxt
Cash Grant$50,000CashGrantAmt
Manner Of Cash DisbursementCHECKMannerOfCashDisbursementTxt
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
JOSEPH TUMULO - GIFT PLANNING DEVEL
100 CHESTNUT PLACENEW HARTFORDNY13413STRATEGIC PLANNING & DEV., TRAINING ON GIFT GIVING0$0$2,500$0
MATTHEW HUGG - HUGGDOTNET LLC
807 EAST HANCOCK STREETLANSDALEPA19446INTERVIEWED DONORS & WROTE DONOR NEWLETTERS0$0$10,245$0
ANTHONY BUFFONE - STRATEGIC IDENTIT
2112 PARKDALE AVENUEGLENSIDEPA19038CONSULTANT/ NAT'L HEMOPHILIA WALK PROGRAM0$0$9,900$0
FieldValueIRS element (for citing)
Total Retained By Contractors$22,645TotalRetainedByContractorsAmt

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1WALK-A-THONEvent1Nm
Gross Receipts Event1$1,664,502GrossReceiptsEvent1Amt
Charitable Contri Event1$1,664,502CharitableContriEvent1Amt
Cash Prizes Event1$30,000CashPrizesEvent1Amt
Non Cash Prizes Event1$11,338NonCashPrizesEvent1Amt
Rent Facility Costs Event1$122,012RentFacilityCostsEvent1Amt
Food And Beverage Event1$42,313FoodAndBeverageEvent1Amt
Entertainment Event1$2,600EntertainmentEvent1Amt
Other Direct Expenses Event1$630,096OtherDirectExpensesEvent1Amt
Event2SOIREEEvent2Nm
Gross Receipts Event2$391,657GrossReceiptsEvent2Amt
Charitable Contri Event2$378,465CharitableContriEvent2Amt
Gross Revenue Event2$13,192GrossRevenueEvent2Amt
Non Cash Prizes Event2$7,925NonCashPrizesEvent2Amt
Rent Facility Costs Event2$19,070RentFacilityCostsEvent2Amt
Food And Beverage Event2$43,486FoodAndBeverageEvent2Amt
Entertainment Event2$2,500EntertainmentEvent2Amt
Other Direct Expenses Event2$138,300OtherDirectExpensesEvent2Amt
Other Events Total9OtherEventsTotalCnt
Gross Receipts Other Events$213,737GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$189,719CharitableContriOtherEventsAmt
Gross Revenue Other Events$24,018GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events$2,145NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events$22,396RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$2,536FoodAndBeverageOtherEventsAmt
Entertainment Other Events$7,650EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events$118,037OthDirectExpnssOtherEventsAmt
Gross Receipts Total$2,269,896GrossReceiptsTotalAmt
Charitable Contributions Tot$2,232,686CharitableContributionsTotAmt
Gross Revenue Total Events$37,210GrossRevenueTotalEventsAmt
Cash Prizes Total Events$30,000CashPrizesTotalEventsAmt
Non Cash Prizes Total Events$21,408NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$163,478RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$88,335FoodAndBeverageTotalEventsAmt
Entertainment Total Events$12,750EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$886,433OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$1,202,404DirectExpenseSummaryEventsAmt
Net Income Summary-$1,165,194NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (37 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
ALASKA HEMOPHILIA ASSOCIATION
3851 PIPER AVENUE SUITE U-239ANCHORAGEAK99508943143226501(C)(3)$11,250STAFFING GRANT-TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
BLEEDING DISORDER ASSN OF NE NEW YORK
PO BOX 947 172B COLUMBIA TURNPIKERENSSELAERNY12144222519156501(C)(3)$32,500ADVOCACY CAPACITY BUILDING; VICTORY FOR WOMEN GRANT-WEBINAR SERIES PROG., AND STAFFING ASSISTANCE FOR CHAPTER.
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVENUEBOSTONMA02115042774441501(C)(3)$203,6671 JGP AND 2 CLINICAL RESEARCH FELLOWSHIPS PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
CHILDREN'S HOSPITAL OF PHILADELPHIA
3501 CIVIC CENTER BOULEVARDPHILADELPHIAPA19104231352166501(C)(3)$100,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVEWASHINGTONDC20010521640403501(C)(3)$22,500HTC CAPACITY BUILDING GRANT
DUKE UNIVERSITY
PO BOX 602651CHARLOTTENC282622651560532129501(C)(3)$21,000POSTDOCTORAL RESEARCH FELLOWSHIP AWARD JGP
HEMOPHILIA ALLIANCE OF MAINE
1014 WESTERN AVENUEHAMPDENME04444275057729501(C)(3)$17,500STAFFING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
HEMOPHILIA ASSN OF THE CAPITAL AREA
10560 MAIN ST SUITE 419FAIRFAXVA22030541702561501(C)(3)$5,625STAFFING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
HEMOPHILIA COUNCIL OF CALIFORNIA
1507 21ST STREET STE 103SACRAMENTOCA95811680182998501(C)(3)$33,750ADVOCACY CAPACITY BUILDING GRANT
HEMOPHILIA CENTER AT OREGON HEALTH & SCIENCE
707 SW GAINES STREETPORTLANDOR97239237083114501(C)(3)$10,000HTC CAPACITY BUILDING GRANT-FUNDING PSYCHOLOGY FELLOWSHIPS AND SURVEYS
HEMOPHILIA FOUNDATION OF GREATER FLORIDA
1350 NORANGE AVE SUITE 227WINTER PARKFL32789593418827501(C)(3)$10,000STAFFING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
HEMOPHILIA FOUNDATION OF MICHIGAN
1921 W MICHIGAN AVEYPSILANTIMI48197381905673501(C)(3)$70,625STAFFING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
HEMOPHILIA FOUNDATION OF N CALIFORNIA
6400 HOLLIS ST SUITE 6EMERYVILLECA94608941638703501(C)(3)$10,000STAFFING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
HEMOPHILIA FOUNDATION OF OREGON
10940 SW BARNES RD 129PORTLANDOR97225930551733501(C)(3)$5,045STAFFING ASSISTANCE FOR CHAPTER
HEMOPHILIA TREATMENT CENTER OF NEVADA
3121 SOUTH MARYLAND PARKWAY SUITELAS VEGASNV89109260286469501(C)(3)$10,000HTC CAPACITY BUILDING GRANT206
HENRY FORD HEALTH SYSTEMS
ONE FORD PLACE - 5FDETROITMI48202381357020501(C)(3)$10,000SOCIAL WORKERS' EXCELLENCE FELLOWSHIP
KAPIOLANI HEALTH FOUNDATION
1319 PUNAHOU STHONOLULUHI96826990246364501(C)(3)$11,775HTC CAPACITY BUILDING GRANT FOR PATIENT OUTREACH TO REMOTE AREAS
LONE STAR CHAPTER OF NHF
5600 NORTHWEST CENTRAL RD SUITE 140HOUSTONTX77092760661966501(C)(3)$6,250CHAPTER CAPACITY BUILDING TO DEVELOP EDUCATIONAL WEBSITE AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.140
LUCILE PACKARD CHILDREN'S HOSP STANFORD
1000 WELCH RD SUITE 300PALO ALTOCA94304770440090501(C)(3)$6,417HTC CAPACITY BUILDING GRANT FOR EDUCATING SCHOOL PERSONNEL AND EMPHASIZING IMPORTANCE OF PHYSICAL ACTIVITY FOR STUDENTS WITH BLEEDING DISORDERS
N DAKOTA HEMOSTASIS THROMBOSIS TREATMENT CENTER
520 MAIN STREET SUITE 700FARGOND58102450398104501(C)(3)$31,786SURVEY OF PATIENT KNOWLEDGE AND ATTITUDES; COORDINATE CARE WITH EDUCATORS, SCHOOL NURSES, DENTISTS, ETC.
NORTWEST OHIO HEMOPHILIA FOUNDATION
2121 HUGHES DRIVE HARRIS MACINTOSHTOLEDOOH43606340965673501(C)(3)$20,000ADVOCACY CAPACITY BUILDINGTOWER SUITE 940
PORTLAND VA RESEARCH FOUNDATION
PO BOX 69539PORTLANDOR97239943090170501(C)(3)$10,000PHYSICAL THERAPY EXCELLENCE FELLOWSHIP
REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE ST 1ST FL WOLVERINEANN ARBORMI48109386006309501(C)(3)$102,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERSTOWER
ROCKY MTN HEMOPHILIA & BLEEDING DISORDERS
167 W MAIN ST SUITE 142BOZEMANMT59715810533720501(C)(3)$9,500ADVOCACY AND CHAPTER CAPACITY BUILDING GRANT FOR OUTREACH TO RURAL AREAS SERVED
SANGRE DE ORO INC
PO BOX 51494ABUQUERQUENM87181850378433501(C)(3)$32,525STAFFING ASSISTANCE FOR CHAPTER
ST LUKE'S HEMOPHILIA CENTER
100E IDAHO STREETBOISEID83712820161600501(C)(3)$60,000HTC CAPACITY BUILDING GRANT
TEXAS CENTRAL HEMOPHILIA ASSOCIATION
12700 HILLCREST ROAD STE 191DALLASTX75230751187148501(C)(3)$40,000ADVOCACY AND CHAPTER CAPACITY BUILDING GRANTS
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3501 CIVIC CENTER BOULEVARDPHILADEPHIAPA19104231352166501(C)(3)$63,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
1855 FOLSOM ST STE 425SAN FRANCISCOCA141430812946036493501(C)(3)$13,500NURSING EXCELLENCE FELLOWSHIP AWARD FOR MEDICAL RESEARCH
ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUENEW ORLEANSLA70118720423889501(C)(3)$102,945CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
UNIVERSITY OF N CAROLINA AT CHAPEL HILL
PO BOX 402420ATLANTAGA303842420566001393501(C)(3)$81,500CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVELA JOLLACA92093956006144501(C)(3)$70,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
UNIVERSITY OF COLORADO DENVER
13199 EAST MONTVIEW BLVDAURORACO80045840404231501(C)(3)$66,000CLINICAL RESEARCH FELLOWSHIP PROMOTING INNOVATION IN BLEEDING AND CLOTTING DISORDERS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236DALLASTX75312620476822501(C)(3)$19,730HTC CAPACITY BUILDING GRANT FOR WOMEN WITH BLEEDING DISORDERS
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980461RICHMONDVA23298546001758501(C)(3)$20,953HTC CAPACITY BUILDING GRANT FOR GENETIC COUNSELING
VIRGINIA HEMOPHILIA FOUNDATION
PO BOX 188MIDLOTHIANVA23113541183181501(C)(3)$14,000CHAPTER CAPACITY BUILDING GRANT- TO SUPPORT THE LOCAL BLEEDING DISORDER COMMUNITY AND TO MEET METRICS ESTABLISHED WITHIN NHF'S ACT INITIATIVE.
WASHINGTON UNIVERSITY SCHOOL OF MEDICINE
SPONSORED PROJECTS DEPARTMENTST LOUISMO631121408430653611501(C)(3)$21,351JGP POSTDOCTORAL RESEARCH GRANT ON BLOOD COAGULATIONCAMPUS BOX 1034 700 ROSEDALE AVENUE
FieldValueIRS element (for citing)
Total501c3 Org37Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (3 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
TRAVEL ASSISTANCE TO FAMILIES INVITED TO ANNUAL MEETING.111$68,886
KEVIN CHILD SCHOLARSHIP AWARD1$1,000
JOSH GORDY EDUCATIONAL SCHOLARSHIP AWARD2$2,000

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationBASED ON THE NHF REQUIREMENTS ALL CHAPTERS THAT WERE AWARDED GRANTS PROVIDE QUARTERLY PROGRAM AND FINANCIAL REPORTS REGARDING THEIR GRANTS WITH NHF. ONLY AFTER SUBMISSION OF A QUARTERLY PROGRAM REPORT DESCRIBING THEIR PROGRESS IN COMPLETING DELINEATED TASKS AND COMPLETE FINANCIAL REPORTING NHF WILL RELEASE THE NEXT QUARTERLY PAYMENT FOR THE GRANT RECIPIENTS. THE FINAL PAYMENT IS HELD UNTIL A FULL FINAL SUMMARY REPORT IS HANDED IN, ALL TASKS HAVE BEEN ADDRESSED AND FINANCIAL STATEMENTS RECONCILED (GRANTS TO CHAPTERS). ALL GRANTEES FOR THE RESEARCH PROGRAMS MUST SUBMIT FINANCIAL REPORTS FROM THEIR INSTITUTION STATING THE PAYMENTS HAVE BEEN RECEIVED AND APPROPRIATE EXPENSES INCURRED. DEPENDING UPON THE AWARD, THESE REPORTS ARE EITHER DUE ON A SEMI-ANNUAL OR ANNUAL BASIS. SUBSEQUENT PAYMENTS AND DECISIONS REGARDING CONTINUATION OF MULTI-YEAR GRANTS ARE DEPENDENT UPON ANNUAL RECEIPT, REVIEW AND APPROVAL OF BUDGETS, FINANCIAL REPORTS, CONTINUATION APPLICATIONS AND SCIENTIFIC PROGRESS REPORTS. AS A CONDITION OF THEIR AWARD, ALL GRANTEES SIGN AN AGREEMENT WITH NHF TO ABIDE BY OUR ORGANIZATION'S GRANT POLICIES AND PROCEDURES, WHICH ALSO INCLUDES A DESCRIPTION OF AUTHORIZED AND UNAUTHORIZED EXPENSES.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr PlanYes (1)SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
VAL BIAS
CHIEF EXECUTIVE OFFICER$301,438$0$18,260$0$1,806$0$50,263$0$32,612$0$404,379$0$0$0
JORDANA ZEGER
CHIEF OPERATING OFFICER$199,401$0$11,000$0$2,749$0$16,848$0$32,551$0$262,549$0$0$0
JOSEPH KLEIBER
SENIOR V.P. OF CHAPTER SER$185,575$0$6,000$0$4,130$0$19,253$0$22,223$0$237,181$0$0$0
MARY ANN LUDWIG
V.P. OF DEVELOPMENT$217,547$0$11,000$0$4,349$0$22,397$0$11,681$0$266,974$0$0$0
NEIL FRICK
V.P. OF RESEARCH & MEDICAL$137,881$0$1,000$0$412$0$14,094$0$11,623$0$165,010$0$0$0
JOHN INDENCE
V.P. OF MARKETING AND COMM$139,403$0$1,000$0$631$0$14,094$0$11,571$0$166,699$0$0$0
SANDRA ROTELLINI
V.P. OF CHAPTER DEVELOPMEN$129,855$0$6,000$0$567$0$13,154$0$11,545$0$161,121$0$0$0
MICHELLE RICE
V.P. OF PUBLIC POLICY & ST$125,217$0$6,000$0$516$0$13,154$0$31,779$0$176,666$0$0$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 3THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE IN ALIGNMENT WITH A STRUCTURE THAT INCORPORATES A COMPREHENSIVE SALARY ANALYSIS PROVIDED BY A COMPENSATION CONSULTING COMPANY AS WELL AS INPUT FROM COO/HR.
PART I, LINE 4BPART I, LINE 4B: THE ORGANIZATION MAINTAINS A 457(B) PLAN.
PART I, LINE 7THE CEO SHALL BE ELIGIBLE TO RECEIVE AN ANNUAL BONUS OF UP TO 10% OF BASE SALARY BASED ON PERFORMANCE IN A CONTRACT YEAR. THE FORM AND AMOUNT OF ANY PERFORMANCE BONUS SHALL BE WITHIN THE BOARD'S DISCRETION. THE BONUS DETERMINATION WILL BE MADE PURSUANT TO A FORMALIZED REVIEW PROCESS CONDUCTED BY THE BOARD OF DIRECTORS.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 6THE ORGANIZATION HAS CHAPTER MEMBERS WHO ARE VOTING MEMBERS OF THE ORGANIZATION. AN ORGANIZATION WHOSE MISSION AND PURPOSE IS CONSISTENT WITH THE MISSION OF NHF MAY APPLY TO BE A CHAPTER MEMBER. THE ORGANIZATION MUST MEET CERTAIN STANDARDS IN ORDER TO BE APPROVED AS A CHAPTER. THE CEO IS AUTHORIZED TO ACCEPT OR DENY CHAPTER MEMBER STATUS.
FORM 990, PART VI, SECTION A, LINE 7ACHAPTER MEMBERS ARE ENTITLED TO VOTE FOR DIRECTORS FOR EACH OF THE VACANCIES TO BE FILLED DURING ELECTIONS.
FORM 990, PART VI, SECTION B, LINE 11A COPY OF FORM 990 IS CIRCULATED ELECTRONICALLY TO THE ORGANIZATION'S BOARD MEMBERS. THE FULL BOARD WILL HAVE THE OPPORTUNITY TO HAVE THE FORM 990 PRESENTED TO THEM BY THE AUDITOR BY CONFERENCE CALL PRIOR TO BEING SUBMITTED. THE CEO, COO AND CONTROLLER ARE ALSO PRESENT ON THE CALL.
FORM 990, PART VI, SECTION B, LINE 12CBOARD MEMBERS DISCLOSE IN WRITING ANNUALLY. EMPLOYEES DISCLOSE AT HIRE AND ANNUALLY. CEO/COO MANAGE CONFLICTS FOR EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15THE BOARD OF DIRECTORS SETS THE COMPENSATION OF CEO AT HIRE AND THEREAFTER USES AN INDEPENDENT CONSULTANT'S ANALYSIS OF COMPARABLE SALARY SURVEYS(BIANNUALLY). THE CEO SETS COMPENSATION FOR KEY EMPLOYEES WITHIN A DESIGNATED SALARY RANGE IN ALIGNMENT WITH A STRUCTURE THAT INCORPORATES A COMPREHENSIVE SALARY ANALYSIS PROVIDED BY A COMPENSATION CONSULTING COMPANY AS WELL AS INPUT FROM COO/HR.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND CONFLICTS OF INTEREST AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION MAKES ITS FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS WEBSITE.
FORM 990, PART IX, LINE 11GCONSULTING AND PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 2,568,001. MANAGEMENT AND GENERAL EXPENSES 334,572. FUNDRAISING EXPENSES 10,864. TOTAL EXPENSES 2,913,437. BANK FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 15,045. FUNDRAISING EXPENSES 2,548. TOTAL EXPENSES 17,593.
FORM 990, PART XI, LINE 9:ADJUSTMENT FOR PRIOR YEAR RECOVERY 30,972.
FORM 990, PART XII, LINE 2CTHE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS. FOR FISCAL YEAR 2015, THE ORGANIZATION DID NOT CHANGE ITS SELECTION OF AN INDEPENDENT ACCOUNTANT.

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