AMYOTROPHIC LATERAL SCLEROSIS MN: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS MN (EIN 41-1756085)
Tax period: 2016-02-01 to 2017-01-31
Filed: 2017-06-26
IRS object ID: 201731779349301218
Schema version: 2016v3.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule G
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2017-06-26T16:03:52-05:00	ReturnTs
Tax Period End	2017-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410887288	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	BOULAY PLLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	7500 FLYING CLOUD DRIVE 800	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55344	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2016-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	411756085	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION MINNESOTA	BusinessNameLine1Txt
Business Name Line2	NORTH DAKOTA SOUTH DAKOTA CHAPTER	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	6126720484	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	333 NORTH WASHINGTON AVE NO 105	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55401	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	JENNIFER HJELLE	PersonNm
Person Title	EXECUTIVE DIRECTOR	PersonTitleTxt
Phone	6126720484	PhoneNum
Signature	2017-06-21	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	TARA M SCHINI	PreparerPersonNm
PTIN	P01714186	PTIN
Phone	9528939320	PhoneNum
Preparation	2017-06-21	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	69.147.203.77	IPv4AddressTxt

Field	Value	IRS element (for citing)
IP	2017-06-21	IPDt
IP Tm	10:15:42	IPTm
IP Timezone	CD	IPTimezoneCd
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	675EC834F0ABECFF0F7F2D151E168F0B592BA27E	AtSubmissionCreationDeviceId
At Submission Filing Device Id	F797005542F0DDA9EB323164880DA0ED078984F7	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2016	TaxYr
Build TS	2021-01-29 14:40:06Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	ALS ASSOCIATION MNNDSD CHAPTER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	JENNIFER HJELLE	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	333 NORTH WASHINGTON AVE NO 105	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55401	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$4,653,545	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSMN.ORG	WebsiteAddressTxt
Type Of Organization Assoc	Yes (X)	TypeOfOrganizationAssocInd
Formation	1993	FormationYr
Legal Domicile State	MN	LegalDomicileStateCd
Activity Or Mission	TO PROVIDE INFORMATION AND ASSISTANCE TO PEOPLE WITH ALS AND THEIR FAMILIES.	ActivityOrMissionDesc
Voting Members Governing Body	21	VotingMembersGoverningBodyCnt
Voting Members Independent	21	VotingMembersIndependentCnt
Total Employee	23	TotalEmployeeCnt
Total Volunteers	656	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$3,391,233	PYContributionsGrantsAmt
CY Contributions Grants	$3,746,141	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$6,574	PYInvestmentIncomeAmt
CY Investment Income	$24,349	CYInvestmentIncomeAmt
PY Other Revenue	-$27,122	PYOtherRevenueAmt
CY Other Revenue	$202,392	CYOtherRevenueAmt
PY Total Revenue	$3,370,685	PYTotalRevenueAmt
CY Total Revenue	$3,972,882	CYTotalRevenueAmt
PY Grants And Similar Paid	$0	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$0	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$1,357,321	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,513,093	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$553,003	CYTotalFundraisingExpenseAmt
PY Other Expenses	$2,387,927	PYOtherExpensesAmt
CY Other Expenses	$2,358,071	CYOtherExpensesAmt
PY Total Expenses	$3,745,248	PYTotalExpensesAmt
CY Total Expenses	$3,871,164	CYTotalExpensesAmt
PY Revenues Less Expenses	-$374,563	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$101,718	CYRevenuesLessExpensesAmt
Total Assets BOY	$3,204,809	TotalAssetsBOYAmt
Total Assets EOY	$3,345,424	TotalAssetsEOYAmt
Total Liabilities BOY	$330,887	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$345,738	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$2,873,922	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$2,999,686	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	UNTIL THERE IS A CURE, EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT, WHILE CONTRIBUTING TO THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND ADVOCACY.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$1,936,387	ExpenseAmt
Desc	CARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$719,487	ExpenseAmt
Desc	RESEARCH - THE ALS ASSOCIATION, MINNESOTA/ NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. THE ALS ASSOCIATION HAS INVESTED $139 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST TWENTY YEARS THE MINNESOTA /NORTH DAKOTA /SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $3.8 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING APPROXIMATELY 140 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$315,120	ExpenseAmt
Desc	PUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA AND EVENTS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$2,970,994	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	0	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	0	ForeignActivitiesInd
More Than5000 K To Org	0	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	Yes (1)	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	0	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	0	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	17	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	23	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	Yes (1)	NondeductibleContributionsInd
Nondeductible Contri Discl	Yes (1)	NondeductibleContriDisclInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	21	GoverningBodyVotingMembersCnt
Independent Voting Member	21	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	JENNIFER HJELLE	PersonNm
Phone	6126720484	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	333 WASHINGTON AVE N STE 105	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55401	ZIPCd

Field	Value	IRS element (for citing)
No Listed Persons Compensated	Yes (X)	NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Highest Compensated EmployeeHighestCompensatedEmployeeInd
BILL MCCARTHY
PRESIDENT	2.00	Yes (X)	Yes (X)	$0	$0	$0
GRANT LANDER
TREASURER	2.00	Yes (X)	Yes (X)	$0	$0	$0
CLAY AHRENS
SECRETARY	2.00	Yes (X)	Yes (X)	$0	$0	$0
JORDAN SING
VICE PRESIDENT	2.00	Yes (X)	Yes (X)	$0	$0	$0
STEVE KRAUS
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
MARY ELLEN LEARY
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
DAVID LAMM
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
BRENDA OLSON
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
ALLEN GERTEN
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
KRISTI WAITE
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
PHILIP ALBERT
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
BLAKE HASTINGS
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
JAN NELSON
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
ANN STOCKMAN
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
EZGI TIRYAKI
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
GREG CARR
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
KERRI GORDON
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
TINA LINNE
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
JEREMY RICE
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
DAVID WALK
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
MARYBETH WOLLAK
BOARD MEMBER	1.00	Yes (X)		$0	$0	$0
JENNIFER HJELLE
EXECUTIVE DIRECTOR	40.00			$127,781	$0	$0	Yes (X)
LISA KRONK
RN CARE SERVICES COORDINAT	40.00			$104,222	$0	$0	Yes (X)
MARRIANNE KEUHN
VICE PRESIDENT CARE SERVICES	40.00			$105,978	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$337,981	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$0	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	3	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	0	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
Fundraising	$2,062,223	FundraisingAmt
All Other Contributions	$1,683,918	AllOtherContributionsAmt
Noncash Contributions	$385,119	NoncashContributionsAmt
Total Contributions	$3,746,141	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$15,522	TotalRevenueColumnAmt
Exclusion	$15,522	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$398,019	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$389,192	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$8,827	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$8,827	TotalRevenueColumnAmt
Exclusion	$8,827	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$318,600	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$2,062,223	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$285,757	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$32,843	TotalRevenueColumnAmt
Exclusion	$32,843	ExclusionAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$175,263	GamingGrossIncomeAmt
Gaming Direct Expenses	$5,714	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$169,549	TotalRevenueColumnAmt
Exclusion	$169,549	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,972,882	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$226,741	ExclusionAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$1,262,714	TotalAmt
Program Services	$743,538	ProgramServicesAmt
Management And General	$176,388	ManagementAndGeneralAmt
Fundraising	$342,788	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$35,894	TotalAmt
Program Services	$21,136	ProgramServicesAmt
Management And General	$5,014	ManagementAndGeneralAmt
Fundraising	$9,744	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$95,404	TotalAmt
Program Services	$56,177	ProgramServicesAmt
Management And General	$13,328	ManagementAndGeneralAmt
Fundraising	$25,899	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$119,081	TotalAmt
Program Services	$70,120	ProgramServicesAmt
Management And General	$16,634	ManagementAndGeneralAmt
Fundraising	$32,327	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$16,890	TotalAmt
Management And General	$16,890	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$45,453	TotalAmt
Program Services	$5,797	ProgramServicesAmt
Management And General	$37,378	ManagementAndGeneralAmt
Fundraising	$2,278	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$2,230	TotalAmt
Program Services	$1,115	ProgramServicesAmt
Fundraising	$1,115	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$125,826	TotalAmt
Program Services	$74,091	ProgramServicesAmt
Management And General	$17,577	ManagementAndGeneralAmt
Fundraising	$34,158	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$58,871	TotalAmt
Program Services	$32,070	ProgramServicesAmt
Management And General	$3,874	ManagementAndGeneralAmt
Fundraising	$22,927	FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$216,438	TotalAmt
Program Services	$176,614	ProgramServicesAmt
Management And General	$11,038	ManagementAndGeneralAmt
Fundraising	$28,786	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$532,711	TotalAmt
Program Services	$528,285	ProgramServicesAmt
Management And General	$2,213	ManagementAndGeneralAmt
Fundraising	$2,213	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt
RESEARCH	$615,596	$615,596
LOAN CLOSET EQUIPMENT	$222,735	$222,735
RESPITE CARE	$206,648	$206,648
ALS CLINIC EXPENSE	$90,000	$90,000

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$224,673	TotalAmt
Program Services	$127,072	ProgramServicesAmt
Management And General	$46,833	ManagementAndGeneralAmt
Fundraising	$50,768	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,871,164	TotalAmt
Program Services	$2,970,994	ProgramServicesAmt
Management And General	$347,167	ManagementAndGeneralAmt
Fundraising	$553,003	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$207,912	BOYAmt
EOY	$221,267	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,825,976	BOYAmt
EOY	$2,255,668	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$34,215	BOYAmt
EOY	$24,547	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$8,974	BOYAmt
EOY	$25,714	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$2,513,079	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,697,861	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$937,688	BOYAmt
EOY	$815,218	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$187,034	BOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$3,010	BOYAmt
EOY	$3,010	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,204,809	BOYAmt
EOY	$3,345,424	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$130,031	BOYAmt
EOY	$160,440	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$200,856	BOYAmt
EOY	$185,298	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$330,887	BOYAmt
EOY	$345,738	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$2,839,707	BOYAmt
EOY	$2,975,139	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$34,215	BOYAmt
EOY	$24,547	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$2,873,922	BOYAmt
EOY	$2,999,686	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,204,809	BOYAmt
EOY	$3,345,424	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$101,718	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$24,046	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,541,596	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,010,655	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$5,020,296	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$3,391,233	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,746,141	CurrentTaxYearAmt
Total	$18,709,921	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,541,596	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,010,655	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$5,020,296	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$3,391,233	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,746,141	CurrentTaxYearAmt
Total	$18,709,921	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$63,904	SubstantialContributorsTotAmt
Public Support Total170	$18,646,017	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,288	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,748	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,994	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$6,683	CurrentTaxYearMinus1YearAmt
Current Tax Year	$15,522	CurrentTaxYearAmt
Total	$29,235	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$18,739,156	TotalSupportAmt
Gross Receipts Rltd Activities	$1,379,236	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.99500	PublicSupportCY170Pct
Public Support PY170	0.99420	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$12,713	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$12,713	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$3,642,013	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$3,654,726	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$332,736	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$83,184	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$290,778	CurrentYearMinus3Amt
Current Year Minus2	$311,216	CurrentYearMinus2Amt
Current Year Minus1	$329,485	CurrentYearMinus1Amt
Current Year	$332,736	CurrentYearAmt
Total	$1,264,215	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$1,896,323	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$4,874	CurrentYearMinus3Amt
Current Year Minus2	$9,666	CurrentYearMinus2Amt
Current Year Minus1	$12,051	CurrentYearMinus1Amt
Current Year	$12,713	CurrentYearAmt
Total	$39,304	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$72,695	CurrentYearMinus3Amt
Current Year Minus2	$77,804	CurrentYearMinus2Amt
Current Year Minus1	$82,371	CurrentYearMinus1Amt
Current Year	$83,184	CurrentYearAmt
Total	$316,054	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$474,081	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$2,513,079	OtherCostOrOtherBasisAmt
Depreciation	$1,697,861	DepreciationAmt
Book Value	$815,218	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$815,218	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDesc	AmtAmt
DUE TO NATIONAL ASSOCIATION	$173,264
DEFERRED RENT	$10,009
CAPITAL LEASE OBLIGATION	$2,025

Field	Value	IRS element (for citing)
Total Liability	$185,298	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$4,202,503	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$24,046	NetUnrealizedGainsInvstAmt
Other Revenue	$205,575	OtherRevenueAmt
Revenue Not Reported	$229,621	RevenueNotReportedAmt
Revenue Subtotal	$3,972,882	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$3,972,882	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$4,076,739	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$205,575	OtherExpensesIncludedAmt
Expenses Not Reported	$205,575	ExpensesNotReportedAmt
Expenses Subtotal	$3,871,164	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$3,871,164	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART X, LINE 2:	THE ASSOCIATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ASSOICIATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENTS EXPENSES 205,575.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENTS EXPENSES 205,575.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	WALK TO DEFEAT ALS	Event1Nm
Gross Receipts Event1	$903,957	GrossReceiptsEvent1Amt
Charitable Contri Event1	$891,342	CharitableContriEvent1Amt
Gross Revenue Event1	$12,615	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$72,475	OtherDirectExpensesEvent1Amt
Event2	BLACK WOODS BLIZZARD	Event2Nm
Gross Receipts Event2	$838,968	GrossReceiptsEvent2Amt
Charitable Contri Event2	$742,120	CharitableContriEvent2Amt
Gross Revenue Event2	$96,848	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$138,172	OtherDirectExpensesEvent2Amt
Other Events Total	6	OtherEventsTotalCnt
Gross Receipts Other Events	$637,898	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$428,761	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$209,137	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$75,110	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$2,380,823	GrossReceiptsTotalAmt
Charitable Contributions Tot	$2,062,223	CharitableContributionsTotAmt
Gross Revenue Total Events	$318,600	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$285,757	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$285,757	DirectExpenseSummaryEventsAmt
Net Income Summary	$32,843	NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$175,263	GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming	$5,714	OthDirectExpnssOtherGamingAmt
Volunteer Labor Other Gaming	0	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$175,263	GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming	$5,714	OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming	$5,714	DirectExpenseSummaryGamingAmt
Net Gaming Income Summary	$169,549	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	MN	StatesWhereGamingConductedCd
Licensed	Yes (1)	LicensedInd
License Suspended Etc	0	LicenseSuspendedEtcInd
Gaming With Nonmembers	0	GamingWithNonmembersInd
Member Of Other Entity	0	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct
Individual With Books	JENNIFER HJELLE	IndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	333 NORTH WASHINGTON AVENUE SUITE 1	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55401	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	0	CntrctWith3rdPrtyForGameRevInd
Gaming Manager Person	JENNIFER HJELLE	GamingManagerPersonNm
Gaming Manager Services Prov	RECORD KEEPING, MONEY COUNTING, AND BANK DEPOSITS FOR RAFFLES USED FOR FUNDRAISING PURPOSES	GamingManagerServicesProvTxt
Charitable Distribution Rqr	0	CharitableDistributionRqrInd

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	MEDICAL EQUIPMENT	Desc
Contribution	178	ContributionCnt
Noncash Contributions Rpt F990	$385,119	NoncashContributionsRptF990Amt
Method Of Determining Revenues	VALUATION	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART III, LINE 4A	AMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIG'S DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS IS USUALLY TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PATIENTS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT 20 PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS ARE DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. ON AVERAGE IN NORTH DAKOTA, ONE PERSON IS DIAGNOSED EACH MONTH AND ONE PERSON DIES FROM ALS. ON AVERAGE IN SOUTH DAKOTA, ONE TO TWO PEOPLE ARE DIAGNOSED EACH MONTH AND ONE TO TWO PEOPLE DIE OF ALS EACH MONTH. AT ANY GIVEN TIME, THERE ARE APPROXIMATELY 400-450 PEOPLE LIVING WITH ALS IN MINNESOTA, NORTH DAKOTA AND SOUTH DAKOTA. CHAPTER PROGRAMS INCLUDE: 1. HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ASSISTS INDIVIDUALS WITH ALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE AND/OR WHO ARE HAVING DIFFICULTY USING A COMPUTER AND OTHER ELECTRONIC DEVICES IN THEIR HOME. THE PROGRAM LOANS DEVICES AND EQUIPMENT THAT ARE NOT COVERED BY MEDICAL INSURANCE AND ARE AVAILABLE IN THE INVENTORY. LAST FISCAL YEAR 246 PEOPLE USED THIS PROGRAM AND OVER 450 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2. JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES MUCH NEEDED RESPITE TO A LIVE-IN FAMILY CAREGIVER OF A PERSON WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS ALLOWING THE FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR 7,043 RESPITE HOURS FOR 74 FAMILIES. 3. DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY INDIVIDUALS AND THEIR FAMILIES, AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER'S SERVICE AREA. EXAMPLES OF EQUIPMENT ARE: HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 401 PEOPLE UTILIZED THIS PROGRAM. MORE THAN 1,420 PIECES OF EQUIPMENT WENT IN AND OUT OF THE CLOSET DURING THIS TIME. 4. OCCUPATIONAL THERAPY(OT)/PHYSICAL THERAPY (PT) PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PT'S FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, AND TRAINING IN RANGE-OF-MOTION AND STRETCHING EXERCISES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 36 PEOPLE RECEIVED HOME VISITS THROUGH THIS PROGRAM. 5. SUPPORT GROUPS: THERE ARE MONTHLY ALS-SPECIFIC SUPPORT GROUPS LOCATED THROUGHOUT OUR SERVICE AREA, INCLUDING AN ONLINE GROUP FOR INDIVIDUALS WITH ALS WHO ARE UNABLE TO TRAVEL TO A MEETING. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, SO THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. 6. FAMILY ASSISTANCE PROGRAM: THE PURPOSE OF THIS PROGRAM IS TO INCREASE THE QUALITY OF LIFE FOR THOSE WITH ALS BY FREEING UP THEIR TIME AND ENERGY FOR MORE ENJOYABLE THINGS. VOLUNTEERS HUMBLY PERFORM DAILY TASKS OF LIVING LIKE CLEANING, RUNNING ERRANDS, MAKING MEALS, AND MUCH MORE. LAST YEAR, 59 VOLUNTEERS (GIVING 1,938.75 HOURS OF THEIR TIME) DECREASED THE STRESS OF 48 PEOPLE WITH ALS AND THEIR FAMILIES. 7. ADVOCACY: THE CHAPTER WORKS, ON A NATIONAL AND STATE LEVEL, TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH THE DISEASE. THESE ADVOCACY EFFORTS INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS, AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8. OTHER SERVICES: THE CHAPTER'S CARE SERVICES STAFF PROVIDES EDUCATION AND INFORMATION ABOUT ALS TO PERSONS WITH THE DISEASE, THEIR FAMILY, FRIENDS AND HEALTH CARE PROFESSIONALS. THE CARE SERVICES STAFF CONSISTS OF PROFESSIONALS FROM NURSING, SOCIAL WORK, OCCUPATIONAL THERAPY AND CHAPLAINCY. THE CARE SERVICES STAFF ARE AVAILABLE TO INDIVIDUALS WITH ALS AND THEIR FAMILY FOR CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND TO PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER HOUSES A LENDING LIBRARY AND PUBLISHES A MONTHLY ELECTRONIC NEWSLETTER.
FORM 990, PART VI, SECTION B, LINE 11B	THE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL.
FORM 990, PART VI, SECTION B, LINE 12C	ALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS.
FORM 990, PART VI, SECTION B, LINE 15	A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE HUMAN RESOURCES COMMITTEE OR BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME (WITH INPUT FROM THE FINANCE COMMITTEE). FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEWS THE VP OF CARE SERVICES AND THE VP OF DEVELOPMENT ANNUALLY WITH INPUT FROM THE STAFF AND BOARD OF DIRECTORS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS INCLUDING CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST.
FORM 990, PART XII, LINE 2C:	THE PROCESS HAS NOT CHANGED FROM PRIOR YEARS.