LuMind IDSC Foundation: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization: LuMind IDSC Foundation (EIN 37-1483975)
Tax period: 2015-10-01 to 2016-09-30
Filed: 2017-06-26
IRS object ID: 201711779349300231
Schema version: 2015v3.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2017-06-26T11:51:31-05:00	ReturnTs
Tax Period End	2016-09-30	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	042578039	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	R A HALL & CO LLC CPA'S	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	183 STATE STREET	AddressLine1Txt
City	BOSTON	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	02109	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2015-10-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	371483975	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUMIND RESEARCH DOWN SYNDROME	BusinessNameLine1Txt
Business Name Line2	FOUNDATION	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	LUMI	BusinessNameControlTxt
Phone	5086302177	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	225 CEDAR HILL STREET NO 200	AddressLine1Txt
City	MARLBOROUGH	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	01752	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MARLA MURASKO	PersonNm
Person Title	INTERIM EXECUTIVE DIRECTOR	PersonTitleTxt
Phone	5086302177	PhoneNum
Signature	2017-05-05	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	ERIC J HALL	PreparerPersonNm
PTIN	P00303080	PTIN
Phone	6177233333	PhoneNum
Preparation	2017-05-24	PreparationDt

Field	Value	IRS element (for citing)
Tax	2015	TaxYr
Build TS	2021-01-29 14:40:06Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	MARLA MURASKO	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	225 CEDAR HILL STREET NO 200	AddressLine1Txt
City	MARLBOROUGH	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	01752	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$2,834,904	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUMINDRDS.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	2003	FormationYr
Legal Domicile State	CA	LegalDomicileStateCd
Activity Or Mission	TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME.	ActivityOrMissionDesc
Voting Members Governing Body	11	VotingMembersGoverningBodyCnt
Voting Members Independent	11	VotingMembersIndependentCnt
Total Employee	8	TotalEmployeeCnt
Total Volunteers	0	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$1,423,052	PYContributionsGrantsAmt
CY Contributions Grants	$1,576,150	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$306	PYInvestmentIncomeAmt
CY Investment Income	$153	CYInvestmentIncomeAmt
PY Other Revenue	$1,052,126	PYOtherRevenueAmt
CY Other Revenue	$933,373	CYOtherRevenueAmt
PY Total Revenue	$2,475,484	PYTotalRevenueAmt
CY Total Revenue	$2,509,676	CYTotalRevenueAmt
PY Grants And Similar Paid	$1,427,500	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$1,615,000	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$544,743	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$611,677	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$256,431	CYTotalFundraisingExpenseAmt
PY Other Expenses	$374,730	PYOtherExpensesAmt
CY Other Expenses	$358,209	CYOtherExpensesAmt
PY Total Expenses	$2,346,973	PYTotalExpensesAmt
CY Total Expenses	$2,584,886	CYTotalExpensesAmt
PY Revenues Less Expenses	$128,511	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$75,210	CYRevenuesLessExpensesAmt
Total Assets BOY	$2,287,753	TotalAssetsBOYAmt
Total Assets EOY	$2,247,784	TotalAssetsEOYAmt
Total Liabilities BOY	$1,435,635	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$1,470,876	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$852,118	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$776,908	NetAssetsOrFundBalancesEOYAmt
Mission	TO STIMULATE BIOMEDICAL RESEARCH THAT WILL ACCELERATE THE DEVELOPMENT OF TREATMENTS TO SIGNIFICANTLY IMPROVE COGNITION FOR INDIVIDUALS WITH DOWN SYNDROME.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$275,000	ExpenseAmt
Grant	$275,000	GrantAmt
Desc	EMORY UNIVERITY SCHOOL OF MEDICINE -- CONTINUATION AND EXPANSION OF THE DOWN SYNDROME COGNITION PROJECT (DSCP) WILL SIGNIFICANTLY INCREASE RECRUITMENT OF INDIVIDUALS WITH DS TO DETERMINE AND DOCUMENT VARIABILITY OF COGNITIVE FUNCTION IN DS ASSOCIATED WITH DEVELOPMENTAL ID AS WELL AS CORRELATIONS WITH CO]OCCURRING MEDICAL CONDITIONS AND IDENTIFY GENETIC FACTORS ASSOCIATED WITH THE VARIABILITY AND CORRELATIONS CRITICAL FOR NEW THERAPEUTIC DEVELOPMENT.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$325,000	ExpenseAmt
Grant	$325,000	GrantAmt
Desc	UNIVERSITY OF CALIFORNIA, SAN DIEGO - THE GRANT IS ENTITLED "DEFINING THE GENES AND MECHANISMS AND TREATMENTS FOR NEURODEVELOPMENTAL AND NEURODEGENERATIVE CAUSES OF COGNITIVE DYSFUNCTION IN DOWN SYNDROME".	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$250,000	ExpenseAmt
Grant	$250,000	GrantAmt
Desc	UNIVERSITY OF ARIZONA - THE GRANT IS ENTITLED "THE NEUROPSYCHOLOGY OF DOWN SYNDROME".	Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

Field	Value	IRS element (for citing)
Expense	$1,433,536	ExpenseAmt
Grant	$765,000	GrantAmt

Field	Value	IRS element (for citing)
Total Other Prog Srvc Expense	$1,433,536	TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant	$765,000	TotalOtherProgSrvcGrantAmt
Total Program Service Expenses	$2,283,536	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	0	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	0	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	0	ForeignActivitiesInd
More Than5000 K To Org	0	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	0	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	5	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	8	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	0	QuidProQuoContributionsInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	11	GoverningBodyVotingMembersCnt
Independent Voting Member	11	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	MARLA MURASKO INTERIM EXECUTIVE DI	PersonNm
Phone	5086302177	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	225 CEDAR HILL STREET SUITE 200	AddressLine1Txt
City	MARLBOROUGH	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	01752	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Highest Compensated EmployeeHighestCompensatedEmployeeInd
RYAN M HARTMAN
BOARD CHAIR AND PRESIDENT	5.00	Yes (X)	Yes (X)	$0	$0	$0
PATRICK KANNAN
BOARD TREASURER AND FINANC	1.00	Yes (X)	Yes (X)	$0	$0	$0
MICHAEL J MANNOR PHD
BOARD SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
TERRY W ANCEL
BOARD FUNDRAISING CHAIR	1.00	Yes (X)		$0	$0	$0
AMY ALLISON
AUDIT COMMITTEE	1.00	Yes (X)		$0	$0	$0
HAMPUS HILLERSTROM
BOARD VICE CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
DEBBIE MORRIS
MEMBER	1.00	Yes (X)		$0	$0	$0
MARGIE DOYLE
MEMBER AT LARGE	1.00	Yes (X)		$0	$0	$0
VIRGINIA BENNETT FLYNN
AUDIT CHAIR	1.00	Yes (X)		$0	$0	$0
CHRISTOPHER LIS
MEMBER	1.00	Yes (X)		$0	$0	$0
KAREN SHEA
MEMBER	1.00	Yes (X)		$0	$0	$0
CAROLYN CRONIN
EXECUTIVE DIRECTOR	40.00			$177,274	$0	$0	Yes (X)
MICHAEL M HARPOLD PHD
CHIEF SCIENTIFIC OFFICER	50.00			$155,058	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$332,332	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$0	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	3	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$1,576,150	FederatedCampaignsAmt
Total Contributions	$1,576,150	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$420	TotalRevenueColumnAmt
Exclusion	$420	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$251	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$518	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$267	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$267	TotalRevenueColumnAmt
Exclusion	-$267	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$1,258,083	FundraisingGrossIncomeAmt
Fundraising Direct Expenses	$324,710	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$933,373	TotalRevenueColumnAmt
Exclusion	$933,373	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,509,676	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$933,526	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$1,615,000	TotalAmt
Program Services	$1,615,000	ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$566,560	TotalAmt
Program Services	$447,177	ProgramServicesAmt
Management And General	$33,554	ManagementAndGeneralAmt
Fundraising	$85,829	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$45,117	TotalAmt
Program Services	$35,743	ProgramServicesAmt
Management And General	$2,514	ManagementAndGeneralAmt
Fundraising	$6,860	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$74,003	TotalAmt
Program Services	$799	ProgramServicesAmt
Fundraising	$73,204	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$7,794	TotalAmt
Program Services	$1,207	ProgramServicesAmt
Management And General	$85	ManagementAndGeneralAmt
Fundraising	$6,502	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$24,677	TotalAmt
Program Services	$19,618	ProgramServicesAmt
Management And General	$1,357	ManagementAndGeneralAmt
Fundraising	$3,702	FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$16,786	TotalAmt
Program Services	$12,323	ProgramServicesAmt
Management And General	$867	ManagementAndGeneralAmt
Fundraising	$3,596	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$60,372	TotalAmt
Program Services	$18,815	ProgramServicesAmt
Management And General	$771	ManagementAndGeneralAmt
Fundraising	$40,786	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$11,894	TotalAmt
Program Services	$7,572	ProgramServicesAmt
Management And General	$700	ManagementAndGeneralAmt
Fundraising	$3,622	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$7,721	TotalAmt
Program Services	$1,174	ProgramServicesAmt
Management And General	$430	ManagementAndGeneralAmt
Fundraising	$6,117	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$25,867	TotalAmt
Program Services	$19,890	ProgramServicesAmt
Management And General	$2,081	ManagementAndGeneralAmt
Fundraising	$3,896	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$43,749	TotalAmt
Program Services	$34,934	ProgramServicesAmt
Fundraising	$8,815	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$36,753	TotalAmt
Program Services	$30,733	ProgramServicesAmt
Management And General	$174	ManagementAndGeneralAmt
Fundraising	$5,846	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$14,324	TotalAmt
Program Services	$11,043	ProgramServicesAmt
Management And General	$1,118	ManagementAndGeneralAmt
Fundraising	$2,163	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
BANK FEES AND CREDIT CA	$21,019	$20,192	$754	$73
POSTAGE AND SHIPPING	$7,334	$2,676	$188	$4,470
STATE FILING FEES	$5,718	$4,483	$315	$920
TELEPHONE	$198	$157	$11	$30

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$2,584,886	TotalAmt
Program Services	$2,283,536	ProgramServicesAmt
Management And General	$44,919	ManagementAndGeneralAmt
Fundraising	$256,431	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$73,687	BOYAmt
EOY	$249,122	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,837,856	BOYAmt
EOY	$1,601,397	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$301,500	BOYAmt
EOY	$298,855	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$21,409	BOYAmt
EOY	$32,762	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$51,069	BOYAmt
EOY	$56,845	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$9,936	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$9,936	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$888	BOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,344	BOYAmt
EOY	$8,803	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$2,287,753	BOYAmt
EOY	$2,247,784	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$45,416	BOYAmt
EOY	$48,092	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$1,261,250	BOYAmt
EOY	$1,323,750	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$63,186	BOYAmt
EOY	$42,554	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$65,783	BOYAmt
EOY	$56,480	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$1,435,635	BOYAmt
EOY	$1,470,876	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$802,118	BOYAmt
EOY	$751,908	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$50,000	BOYAmt
EOY	$25,000	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$852,118	BOYAmt
EOY	$776,908	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$2,287,753	BOYAmt
EOY	$2,247,784	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$75,210	ReconcilationRevenueExpnssAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,400,378	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,539,394	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,510,791	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,426,436	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,451,150	CurrentTaxYearAmt
Total	$7,328,149	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,400,378	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,539,394	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,510,791	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,426,436	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,451,150	CurrentTaxYearAmt
Total	$7,328,149	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$7,328,149	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,633	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,293	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,793	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$306	CurrentTaxYearMinus1YearAmt
Current Tax Year	$152	CurrentTaxYearAmt
Total	$5,177	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$568	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,036	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus1 Year	$976	CurrentTaxYearMinus1YearAmt
Total	$2,580	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$7,335,906	TotalSupportAmt
Public Support CY170	0.99890	PublicSupportCY170Pct
Public Support PY170	0.99860	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$9,936	OtherCostOrOtherBasisAmt
Depreciation	$9,936	DepreciationAmt
Book Value	$0	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$0	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
WAGES AND TAXES PAYABLE	$47,204
CREDIT CARD	$9,276

Field	Value	IRS element (for citing)
Total Liability	$56,480	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$2,509,676	TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported	$0	RevenueNotReportedAmt
Revenue Subtotal	$2,509,676	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$2,509,676	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$2,584,886	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$2,584,886	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$2,584,886	TotalExpensesPerForm990Amt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	HAYES MECHANICAL GOLF	Event1Nm
Gross Receipts Event1	$306,950	GrossReceiptsEvent1Amt
Gross Revenue Event1	$306,950	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$87,223	OtherDirectExpensesEvent1Amt
Event2	TRIBUTE 21	Event2Nm
Gross Receipts Event2	$186,656	GrossReceiptsEvent2Amt
Gross Revenue Event2	$186,656	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$124,209	OtherDirectExpensesEvent2Amt
Other Events Total	27	OtherEventsTotalCnt
Gross Receipts Other Events	$764,477	GrossReceiptsOtherEventsAmt
Gross Revenue Other Events	$764,477	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$113,278	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$1,258,083	GrossReceiptsTotalAmt
Gross Revenue Total Events	$1,258,083	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$324,710	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$324,710	DirectExpenseSummaryEventsAmt
Net Income Summary	$933,373	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt	Address Line1ForeignAddress/AddressLine1Txt	CityForeignAddress/CityNm	CountryForeignAddress/CountryCd	Foreign PostalForeignAddress/ForeignPostalCd
JOHNS HOPKINS UNIVERSITY
725 N WOLFE STREET	BALTIMORE	MD	21205	520595110	$250,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH
UNIVERSITY OF CALIFORNIA AT SAN DIEGO
9500 GILMAN DRIVE IMG BLDG 1 RM 110	LA JOLLA	CA	92037	956006144	$325,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH	110
UNIVERSITY OF ARIZONA
1503 E UNIVERSITY BLVD	TUSCON	AZ	85721	742652689	$250,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH
STANFORD UNIVERSITY
GILBERT RM 420A	STANFORD	CA	94305	941156365	$200,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH
VA PALO ALTO HEALTH CARE SYSTEM (PAIRE)
3801 MIRANDA AVENUE 151Y	PALO ALTO	CA	94304	770207331	$115,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH
AC IMMUNE
					$200,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH		EPFL INNOVATION PARK	LAUSANNE	SZ	1015
EMORY UNIVERSITY
				580566256	$275,000	TO SUPPORT DOWN SYNDROME COGNITION MEDICAL RESEARCH		201 DOWMAN DRIVE	ATLANTA	GA	30322

Field	Value	IRS element (for citing)
Total501c3 Org	5	Total501c3OrgCnt
Total Other Org	7	TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
CAROLYN CRONIN
EXECUTIVE DIRECTOR	$177,274	$0	$0	$0	$0	$0	$0	$0	$0	$0	$177,274	$0	$0	$0
MICHAEL M HARPOLD PHD
CHIEF SCIENTIFIC OFFICER	$155,058	$0	$0	$0	$0	$0	$0	$0	$0	$0	$155,058	$0	$0	$0

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11	THE ORGANIZATION'S PROCESS TO REVIEW THE FINAL FORM 990 IS TO HAVE THE BOARD AND FINANCE COMMITTEE REVIEW THE FINAL RETURN PRIOR TO SUBMISSION AND THEN THE RETURN IS SIGNED BY AN AUTHORIZED OFFICER.
FORM 990, PART VI, SECTION B, LINE 12C	THE PROCESS FOR MONITORING THIS IS BY ADDRESSING ACTIVITY IN MONTHLY BOARD MEETINGS.
FORM 990, PART VI, SECTION B, LINE 15	COMPENSATION FOR KEY EMPLOYEES ARE APPROVED BY THE BOARD OF DIRECTORS AND INCREASES ARE APPROVED IN THE BUDGET.
FORM 990, PART VI, SECTION C, LINE 18	FORM 1023 AND FORM 990 ARE AVAILABLE UPON REQUEST AND AVAILABLE ONLINE THROUGH PUBLIC NON PROFIT WEBSITES.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS DISCLOSURE, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XII, LINE 2C:	THE ORGANIZATION HAS AN AUDIT COMMITTEE TO OVERSEE AND REVIEW THE AUDIT AND FORM 990 PRIOR TO SUBMISSION. THE PROCESS HAS NOT BEEN CHANGED IN CURRENT YEAR.