AMYOTROPHIC LATERAL SCLEROSIS: Form 990, tax year 2016
View the entire original 990 at ProPublica ↗
- Organization
- AMYOTROPHIC LATERAL SCLEROSIS (EIN 94-3124732)
- Tax period
- 2016-02-01 to 2017-01-31
- Filed
- 2017-06-13
- IRS object ID
- 201711649349300901
- Schema version
- 2016v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule I
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2017-06-13T14:13:40-05:00 | ReturnTs |
| Tax Period End | 2017-01-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 273605969 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CBIZ MHM LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 13577 FEATHER SOUND DR STE 400 | AddressLine1Txt |
| City | CLEARWATER | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33762 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2016-02-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 943124732 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AMYOTROPHIC LATERAL SCLEROSIS | BusinessNameLine1Txt |
| Business Name Line2 | ASSOCIATION | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | AMYO | BusinessNameControlTxt |
| Phone | 8136379000 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3242 PARKSIDE CENTER CIRCLE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33619 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KIMBERLEY HANNA | PersonNm |
| Person Title | PRESIDENT/CEO | PersonTitleTxt |
| Phone | 8136379000 | PhoneNum |
| Signature | 2017-06-11 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | BETTY ISLER CPA | PreparerPersonNm |
| PTIN | P00541979 | PTIN |
| Phone | 7275721400 | PhoneNum |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 12.221.96.220 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2017-06-11 | IPDt |
| IP Tm | 12:52:01 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 1FB0DC6CCBB62E013CE01F3A769F965C875BF8A7 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 885D0E4AA4EF2F8F4B45274365C6E2B3440D7873 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2016 | TaxYr |
| Build TS | 2021-01-29 14:40:06Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ALS ASSOCIATION FLORIDA CHAPTER INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KIMBERLEY HANNA | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3242 PARKSIDE CENTER CIRCLE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33619 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,544,108 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Group Exemption | 4119 | GroupExemptionNum |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | ALSAFL.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1987 | FormationYr |
| Legal Domicile State | FL | LegalDomicileStateCd |
| Activity Or Mission | IMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING RESEARCH FUNDS & PARTICIPATING IN ADVOCACY. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 30 | TotalEmployeeCnt |
| Total Volunteers | 1886 | TotalVolunteersCnt |
| Total Gross UBI | $3,173 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $2,173 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,857,690 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,516,946 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,034 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,467 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$48,021 | PYOtherRevenueAmt |
| CY Other Revenue | -$29,229 | CYOtherRevenueAmt |
| PY Total Revenue | $2,811,703 | PYTotalRevenueAmt |
| CY Total Revenue | $2,489,184 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $552,201 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $464,955 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,172,752 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,287,101 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $257,098 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,319,196 | PYOtherExpensesAmt |
| CY Other Expenses | $1,068,289 | CYOtherExpensesAmt |
| PY Total Expenses | $3,044,149 | PYTotalExpensesAmt |
| CY Total Expenses | $2,820,345 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$232,446 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$331,161 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,379,043 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,997,871 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $583,999 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $533,988 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,795,044 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,463,883 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,413,808 | ExpenseAmt |
| Grant | $133,519 | GrantAmt |
| Desc | PATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,363 PATIENTS. PROGRAMS INCLUDED: 1) SPONSORSHIP OF 5 ALS MULTIDISCIPLINARY CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDED BOTH FINANCIAL SUPPORT AND IN-KIND STAFFING SUPPORT; 2) A NETWORK OF NINE CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY BY PROVIDING 40,696 PATIENT INTERACTIONS, 36 HOME VISITS, AND 96 PHONE ASSESSMENTS TO PATIENTS AND FAMILIES; 3) SUPPORT/RESOURCE GROUPS IN 19 STATEWIDE LOCATIONS; 4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 226 PIECES OF DURABLE MEDICAL EQUIPMENT AND 29 ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) SURVIVING SPOUSES SOCIAL RENEWAL PROGRAMS; 6) ALS SPECIALTY HOME HEALTH COORDINATION; 7) A KIDS CARE PROGRAM, PROVIDING 14 PACKETS AND RESOURCES FOR CHILDREN WITH FAMILY MEMBERS WHO ARE SUFFERING FROM THE DISEASE; 8) FUNDING FOR 124 MONETARY GRANTS TO PATIENTS THAT PROVIDED 2,797 HOURS OF RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 9) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 3 STUDENTS; AND 10) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE EXPERTS, AND AN AMBASSADOR OF HOPE AWARDS LUNCHEON ATTENDED BY 233 CONSTITUENTS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $636,769 | ExpenseAmt |
| Desc | AWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND ALS ACCESS, OUR NEWSMAGAZINE, PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES. E-COMMUNICATION CAMPAIGNS SUCH AS OUR MONTHLY EMAIL NEWSLETTERS, END OF YEAR GIVING CAMPAIGN, ALS AWARENESS MONTH CAMPAIGN, AND OTHER FUNDRAISING CAMPAIGNS WERE DEVELOPED TO FURTHER OUR PUBLIC POLICY, CARE SERVICES AND GLOBAL RESEARCH GOALS. STATEWIDE AWARENESS EVENTS SUCH AS OUR PARTNERSHIP WITH BOTH MAJOR LEAGUE BASEBALL TEAMS IN FLORIDA, AS WELL AS NUMEROUS MINOR LEAGUE TEAMS, FILM FESTIVALS AND THEATRICAL EVENTS SPOTLIGHTING ALS, AND HEALTH FAIRS PROVIDED OPPORTUNITIES TO BRING THE ALS COMMUNITY TOGETHER THROUGHOUT THE STATE. MEDIA RELATIONS AND ONGOING COMMUNICATION WITH VARIOUS MEDIA OUTLETS AROUND THE STATE PROVIDED THE LATEST NEWS AND MANY PATIENT STORIES, SPOTLIGHTING THE NEED FOR MORE FUNDING AND CARE AND SUPPORT OF THE ALS COMMUNITY IN FLORIDA. SOCIAL MEDIA CHANNELS INCLUDING FACEBOOK, TWITTER, AND INSTAGRAM, PROVIDED THE CHAPTER THE CHANCE TO SPREAD AWARENESS OF THE LATEST RESEARCH UPDATES, CHAPTER AND STATEWIDE EVENTS, AND BUILD AN ONLINE COMMUNITY WITH THOSE LIVING WITH ALS AND THOSE SUPPORTING THE ALS COMMUNITY STATEWIDE. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $331,436 | ExpenseAmt |
| Grant | $331,436 | GrantAmt |
| Desc | RESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, CONTRIBUTES TO RESEARCH AND PARTICIPATES IN THE GLOBAL NETWORK. THE ALS ASSOCIATION FUNDS OVER 180 ACTIVE RESEARCH PROJECTS IN 11 COUNTRIES IN A DIVERSE RESEARCH PORTFOLIO. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF DIFFERENT TYPES OF STUDIES: GENETICS - THE NUMBER OF GENES IDENTIFIED TO CAUSE FAMILIAL ALS HAS MULTIPLIED SINCE THE DISCOVERY OF SOD1. EFFORTS SUCH AS WHOLE GENOME SEQUENCING ARE UNDERWAY WITH THE AIM TO IDENTIFY MORE ALS GENES AND TARGET THEM FOR THERAPY. DRUG DEVELOPMENT - THE DRUG DEVELOPMENT PROCESS TAKES YEARS TO COMPLETE ITS MANY STEPS AND IS COSTLY $1-3 BILLION DOLLARS TO MOVE A BASIC RESEARCH IDEA ALL THE WAY THROUGH CLINICAL TRIALS AND FDA APPROVAL. COLLABORATION IS ESSENTIAL. RESEARCHERS FROM ALL OVER THE WORLD IN ACADEMIA, GOVERNMENT, NON-PROFIT AND INDUSTRY WORK TOGETHER TO MOVE ALONG THE PATHWAY OF DRUG DEVELOPMENT AS RAPIDLY AND EFFICIENTLY AS POSSIBLE. DISEASE MECHANISM - UNDERSTANDING HOW ALS DISEASE WORKS ON MANY BIOLOGICAL LEVELS IS NECESSARY TO IDENTIFY POTENTIAL THERAPEUTIC TARGETS. NANOTECHNOLOGY - STUDIES CONDUCTED AT A VERY SMALL SCALE INCLUDING AT AN ATOMIC AND MOLECULAR LEVEL WILL PROVIDE NEW WAYS TO EVALUATE ALS DISEASE. ANIMAL MODELS - ANIMALS, FROM WORMS TO MICE, THAT MIMIC ALS DISEASE GIVE AN IMPORTANT AVENUE TO EXPLORE BOTH DISEASE MECHANISMS AND TO INVESTIGATE OUTCOME MEASURES OF POTENTIAL THERAPEUTICS FROM A CELLULAR TO A BEHAVIORAL LEVEL BEFORE TESTING IN HUMANS. CLINICAL STUDIES - ESTABLISHING AND ADVANCING STANDARDS IN CARE FOR BOTH PEOPLE LIVING WITH ALS AND THEIR CAREGIVERS IS NECESSARY TO IMPROVE AND ENRICH THEIR LIVES NOW. STUDIES IN THIS CATEGORY INCLUDE TOPICS IN CLINICAL MANAGEMENT GRANTS AND CLINICAL TRIALS. COGNITIVE STUDIES - THERE IS A LARGE BODY OF EVIDENCE DEMONSTRATING THAT COGNITIVE IMPAIRMENT CAN BE INVOLVED IN ALS, INCLUDING EVIDENCE OF OVERLAP WITH OTHER DISORDERS LIKE FRONTOTEMPORAL DEMENTIA (FTD). ASSISTIVE TECHNOLOGY - IMPROVING COMMUNICATION SYSTEMS THROUGH DEVELOPING ACCESSIBLE, PORTABLE DEVICES FOR PEOPLE LIVING WITH ALS IS PARAMOUNT TO MAINTAINING A HIGH QUALITY OF LIFE. BIOMARKERS - A MEASURABLE SUBSTANCE, LIKE CHEMICAL CHANGES IN THE BLOOD OR STRUCTURAL CHANGES IN THE BRAIN, ARE DESPERATELY NEEDED TO IMPROVE DIAGNOSIS, FOLLOW DISEASE PROGRESSION AND TRACK RESPONSE TO THERAPY. ENVIRONMENTAL FACTORS - FEATURES IN A PERSON'S ENVIRONMENT ALONE OR IN COMBINATION WITH GENETIC PREDISPOSITION CAN CONTRIBUTE TO THE DEVELOPMENT OF ALS. PRECISION MEDICINE - EFFECTIVE TREATMENTS WILL TARGET AN INDIVIDUAL PATIENT'S DISEASE PROCESS AND TAKE INTO ACCOUNT INDIVIDUAL VARIABILITY IN GENES, ENVIRONMENT AND LIFESTYLE FOR EACH PERSON. NATURAL HISTORY STUDIES - PROJECTS THAT FOLLOWS PEOPLE LIVING WITH ALS OVER TIME TO TRACK DISEASE WILL HELP IDENTIFY DEMOGRAPHIC, GENETIC AND ENVIRONMENTAL FACTORS THAT CORRELATE WITH DISEASE, ALONG WITH INFORMING DRUG DEVELOPMENT AND PATIENT CARE, AMONG OTHER FACTORS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $55,863 | ExpenseAmt |
| Desc | ADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS. APPROPRIATIONS: PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE NATIONAL ALS REGISTRY AT THE CENTERS FOR DISEASE CONTROL AND PREVENTION - CONGRESS AND THE ADMINISTRATION MADE ESTABLISHMENT OF THE NATIONAL ALS REGISTRY A TOP PRIORITY THROUGH THE ENACTMENT AND IMPLEMENTATION OF THE ALS REGISTRY ACT IN 2008 (P.L. 110-373). USING A VARIETY OF ENROLLMENT STRATEGIES, INCLUDING ONLINE SELF-ENROLLMENT, THE REGISTRY IDENTIFIES THE NUMBER OF CASES OF ALS IN THE U.S. AND COLLECTS DATA THAT MAY HELP SCIENTISTS LEARN MORE ABOUT WHAT CAUSES THE DISEASE AND HOW IT CAN BE PREVENTED, TREATED, AND, ULTIMATELY, CURED. CONTINUED FUNDING IS NECESSARY TO MOVE THE REGISTRY FORWARD, SUPPORT RELATED ALS RESEARCH, HELP PEOPLE WITH ALS ENROLL IN THE REGISTRY, CONDUCT OUTREACH ACTIVITIES TO IDENTIFY ALS CASES, ESTABLISH AN ALS BIO-REPOSITORY THAT COLLECTS BLOOD AND TISSUE SAMPLES, AND ENABLE THE REGISTRY TO SUPPORT RECRUITMENT FOR CLINICAL TRIALS TO DEVELOP NEW TREATMENTS FOR THE DISEASE. APPROPRIATIONS: PROVIDE $10 MILLION APPROPRIATION TO CONTINUE THE ALS RESEARCH PROGRAM (ALSRP) AT THE DEPARTMENT OF DEFENSE (DOD) - STUDIES SUPPORTED BY THE DOD, DEPARTMENT OF VETERANS AFFAIRS, NATIONAL INSTITUTES OF HEALTH, HARVARD UNIVERSITY AND THE INSTITUTE OF MEDICINE, AMONG OTHERS, REPEATEDLY HAVE FOUND THAT MILITARY VETERANS --REGARDLESS OF BRANCH OR ERA OF SERVICE-- ARE APPROXIMATELY TWICE AS LIKELY TO DIE FROM LOU GEHRIG'S DISEASE AS THOSE WHO HAVE NOT SERVED IN THE MILITARY. TO SUPPORT MILITARY VETERANS IN THE FIGHT AGAINST ALS, CONGRESS AND THE DOD ESTABLISHED THE ALS RESEARCH PROGRAM (ALSRP) IN FY 2007. THE ALSRP FOCUSES ON PEER-REVIEWED TRANSLATIONAL RESEARCH. LEGISLATION: WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - LEGISLATION HAS BEEN INTRODUCED IN THE HOUSE AND SENATE TO WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI). AFTER A DISABILITY CLAIMANT HAS BEEN APPROVED TO RECEIVE SSDI BENEFITS, THE INDIVIDUAL IS SUBJECT TO A FIVE-MONTH WAITING PERIOD BEFORE THE INDIVIDUAL WILL RECEIVE THE DISABILITY BENEFIT AND ACCESS TO MEDICARE. DURING THIS DEEPLY CHALLENGING TIME, MANY FAMILIES WHO HAVE PAID INTO SOCIAL SECURITY ARE LEFT WITH NO FORM OF INCOME CREATING HARDSHIPS. LEGISLATION: PRESERVE ACCESS TO COMPLEX REHAB TECHNOLOGIES (CRT) - THE ASSOCIATION IS WORKING WITH CONGRESS AND COALITION PARTNERS ON LEGISLATION TO HELP PRESERVE ACCESS TO POWER WHEELCHAIR ACCESSORIES SUCH AS CUSTOM HEAD SUPPORT AND SEATING SYSTEMS, MOUNTING HARDWARE, ADJUSTABLE LEG RESTS, AND SPECIALTY DRIVE CONTROLS AMONG OTHER WHEELCHAIR ACCESSORIES UPON WHICH PEOPLE WITH ALS DEPEND. REGULATORY AFFAIRS: ACCESS TO HOME HEALTH SERVICES - ACCESS TO HOME HEALTH SERVICES IS A FUNDAMENTAL PRIORITY FOR PEOPLE LIVING WITH ALS, THEIR CAREGIVERS AND THE ALS ASSOCIATION. THE ASSOCIATION PLANS TO WORK WITH NEW ADMINISTRATION AND CONGRESSIONAL LEADERS TO ENSURE ACCESS TO HOME HEALTH SERVICES WHICH ENABLE THOSE WITH ALS TO LIVE IN THEIR HOMES AND COMMUNITIES. THIS INCLUDES, BUT IS NOT LIMITED TO, EDUCATING AND ADVOCATING WITH POLICY MAKERS TO ENSURE THAT ANY BARRIERS TO APPROPRIATE ACCESS TO CARE ARE REDUCED OR REMOVED. IT ALSO INCLUDES ADDRESSING PROBLEMS SUCH AS PATIENT AVOIDANCE, DROPPING PATIENTS AND ILLEGALLY LIMITING THE NUMBER OF HOURS SERVICES ARE PROVIDED. ADVOCACY ACTIVITIES:MARCH 2016 - PARTICIPATED IN ""FLY-IN"" ADVOCACY TOP ROOTS EVENT IN WASHINGTON, DC AND VISITED TARGETED FLORIDA REPRESENTATIVES. MAY 2016 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE IN WASHINGTON, DC. ADVOCATES MET WITH FLORIDA'S TWO (2) SENATORS AND 27 REPRESENTATIVES IN THEIR WASHINGTON OFFICES. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $55,863 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $2,437,876 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 5 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 30 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | KIMBERLEY HANNA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8136379000 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3242 PARKSIDE CENTER CIRCLE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33619 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|
| TIM CUMMINGS | ||||||
| CHAIRMAN | 2.00 | Yes (X) | $0 | $0 | $0 | |
| SANDRA TORRES | ||||||
| VICE CHAIRMAN | 2.00 | Yes (X) | $0 | $0 | $0 | |
| GLENN STAMBAUGH | ||||||
| TREASURER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JAN BERGER | ||||||
| SECRETARY | 2.00 | Yes (X) | $0 | $0 | $0 | |
| HIRAM GREEN | ||||||
| IMMEDIATE PAST CHAIRMAN | 2.00 | Yes (X) | $0 | $0 | $0 | |
| WARREN NELSON | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| ROBERT MILLER | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KEVIN CONN | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| WENDY BITNER | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN CANNISTRA | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DEWAYNE STANDIFER | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| RENATE ARMITAGE | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KEN GRIFFIN | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| HAMPTON GRAHAM | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| JO-ANN CLYNCH | ||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |
| KIMBERLEY HANNA | ||||||
| PRESIDENT/CEO | 40.00 | $105,011 | $0 | $9,680 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $105,011 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $9,680 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 1 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| MAYO CLINIC IN FLORIDA | |||||
| 4500 SAN PABLO RD S | JACKSONVILLE | FL | 322241865 | CLINICAL SERVICES | $234,636 |
| UNIVERSITY OF MIAMI | |||||
| 1120 NW 14TH ST STE 1315 | MIAMI | FL | 33136 | CLINICAL SERVICES | $212,057 |
| UNIVERSITY MEDICAL SERVICES ASSOCIATION | |||||
| 12901 BRUCE B DOWNS BLVD MDC 55 | TAMPA | FL | 33612 | CLINICAL SERVICES | $184,636 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,489,552 | FundraisingAmt |
| Government Grants | $450,000 | GovernmentGrantsAmt |
| All Other Contributions | $577,394 | AllOtherContributionsAmt |
| Noncash Contributions | $54,276 | NoncashContributionsAmt |
| Total Contributions | $2,516,946 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,467 | TotalRevenueColumnAmt |
| Exclusion | $1,467 | ExclusionAmt |
Gross Rents GrossRentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $16,320 | RealAmt |
Less Rental Expenses LessRentalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $13,204 | RealAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $3,116 | RealAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,116 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $473 | UnrelatedBusinessRevenueAmt |
| Exclusion | $2,643 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $5,845 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,489,552 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $41,720 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$35,875 | TotalRevenueColumnAmt |
| Exclusion | -$35,875 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | ADVERTISING | Desc |
| Business | 541800 | BusinessCd |
| Total Revenue Column | $2,700 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $2,700 | UnrelatedBusinessRevenueAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $830 | TotalRevenueColumnAmt |
| Exclusion | $830 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $3,530 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,489,184 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $3,173 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$30,935 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $390,736 | TotalAmt |
| Program Services | $390,736 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $74,219 | TotalAmt |
| Program Services | $74,219 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $115,778 | TotalAmt |
| Program Services | $92,622 | ProgramServicesAmt |
| Management And General | $11,578 | ManagementAndGeneralAmt |
| Fundraising | $11,578 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $978,242 | TotalAmt |
| Program Services | $773,325 | ProgramServicesAmt |
| Management And General | $38,056 | ManagementAndGeneralAmt |
| Fundraising | $166,861 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $99,082 | TotalAmt |
| Program Services | $79,580 | ProgramServicesAmt |
| Management And General | $3,391 | ManagementAndGeneralAmt |
| Fundraising | $16,111 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,999 | TotalAmt |
| Program Services | $74,338 | ProgramServicesAmt |
| Management And General | $4,213 | ManagementAndGeneralAmt |
| Fundraising | $15,448 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $700 | TotalAmt |
| Program Services | $140 | ProgramServicesAmt |
| Management And General | $560 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,505 | TotalAmt |
| Program Services | $8,301 | ProgramServicesAmt |
| Management And General | $33,204 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $461,567 | TotalAmt |
| Program Services | $452,732 | ProgramServicesAmt |
| Management And General | $966 | ManagementAndGeneralAmt |
| Fundraising | $7,869 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $308,537 | TotalAmt |
| Program Services | $282,988 | ProgramServicesAmt |
| Management And General | $12,131 | ManagementAndGeneralAmt |
| Fundraising | $13,418 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,392 | TotalAmt |
| Program Services | $37,533 | ProgramServicesAmt |
| Management And General | $4,691 | ManagementAndGeneralAmt |
| Fundraising | $5,168 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,387 | TotalAmt |
| Program Services | $17,105 | ProgramServicesAmt |
| Management And General | $2,141 | ManagementAndGeneralAmt |
| Fundraising | $2,141 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,759 | TotalAmt |
| Program Services | $63,040 | ProgramServicesAmt |
| Management And General | $283 | ManagementAndGeneralAmt |
| Fundraising | $2,436 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,299 | TotalAmt |
| Program Services | $32,493 | ProgramServicesAmt |
| Management And General | $8,852 | ManagementAndGeneralAmt |
| Fundraising | $8,954 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $64,277 | TotalAmt |
| Program Services | $53,229 | ProgramServicesAmt |
| Management And General | $4,620 | ManagementAndGeneralAmt |
| Fundraising | $6,428 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,824 | TotalAmt |
| Program Services | $4,660 | ProgramServicesAmt |
| Management And General | $582 | ManagementAndGeneralAmt |
| Fundraising | $582 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | EXCISE TAX | Desc |
| Total | $766 | TotalAmt |
| Program Services | $612 | ProgramServicesAmt |
| Management And General | $77 | ManagementAndGeneralAmt |
| Fundraising | $77 | FundraisingAmt |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $276 | TotalAmt |
| Program Services | $223 | ProgramServicesAmt |
| Management And General | $26 | ManagementAndGeneralAmt |
| Fundraising | $27 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,820,345 | TotalAmt |
| Program Services | $2,437,876 | ProgramServicesAmt |
| Management And General | $125,371 | ManagementAndGeneralAmt |
| Fundraising | $257,098 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,186 | TotalAmt |
| Program Services | $2,037 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $8,149 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $127,130 | BOYAmt |
| EOY | $80,271 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,381,410 | BOYAmt |
| EOY | $1,098,236 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $214,315 | BOYAmt |
| EOY | $213,969 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $2,040 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,015 | BOYAmt |
| EOY | $4,055 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $1,139,247 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $545,422 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $653,510 | BOYAmt |
| EOY | $593,825 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $4,876 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $663 | BOYAmt |
| EOY | $599 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,379,043 | BOYAmt |
| EOY | $1,997,871 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $93,988 | BOYAmt |
| EOY | $72,927 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $133,128 | BOYAmt |
| EOY | $133,128 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,700 | BOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $269,873 | BOYAmt |
| EOY | $244,259 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $84,310 | BOYAmt |
| EOY | $83,674 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $583,999 | BOYAmt |
| EOY | $533,988 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,605,590 | BOYAmt |
| EOY | $1,369,280 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $189,454 | BOYAmt |
| EOY | $94,603 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,795,044 | BOYAmt |
| EOY | $1,463,883 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,379,043 | BOYAmt |
| EOY | $1,997,871 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$331,161 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,791,120 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,501,243 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,410,747 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,857,690 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,516,946 | CurrentTaxYearAmt |
| Total | $14,077,746 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,709 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,460 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,440 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,355 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,845 | CurrentTaxYearAmt |
| Total | $32,809 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,796,829 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,508,703 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,419,187 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,863,045 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,522,791 | CurrentTaxYearAmt |
| Total | $14,110,555 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $21,732 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $28,592 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $23,485 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $48,360 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $28,675 | CurrentTaxYearAmt |
| Total | $150,844 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $21,732 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $28,592 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $23,485 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $48,360 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $28,675 | CurrentTaxYearAmt |
| Total | $150,844 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $13,959,711 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $875 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $393 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,675 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,034 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,467 | CurrentTaxYearAmt |
| Total | $6,444 | TotalAmt |
Post1975 UBTI Post1975UBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,526 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,258 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,655 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $63 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,847 | CurrentTaxYearAmt |
| Total | $19,349 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,401 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,651 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $9,330 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,097 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,314 | CurrentTaxYearAmt |
| Total | $25,793 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus3 Years | $3,374 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,731 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,952 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $830 | CurrentTaxYearAmt |
| Total | $15,887 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,800,230 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,518,728 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $4,437,248 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,868,094 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,527,935 | CurrentTaxYearAmt |
| Total | $14,152,235 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.98640 | PublicSupportCY509Pct |
| Public Support PY509 | 0.98520 | PublicSupportPY509Pct |
| Investment Income CY | 0.00180 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00180 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $0 | MailingsMembersAmt |
| Publications Or Broadcast | Yes (1) | PublicationsOrBroadcastInd |
| Publications Or Broadcast | $0 | PublicationsOrBroadcastAmt |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $2,605 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | Yes (1) | RalliesDemonstrationsInd |
| Rallies Demonstrations | $0 | RalliesDemonstrationsAmt |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $2,605 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II-B, LINE 1: | FormAndLineReferenceDesc |
| Explanation | THE CHAPTER'S ADVOCACY EFFORTS INCLUDE BOTH GRASSROOTS AND DIRECT LOBBYING ACTIVITIES. GRASSROOTS ACTIVITY IS CONDUCTED BY VOLUNTEERS, CLIENTS AND/OR OTHER CONSTITUENTS. THE CHAPTER ASKS OTHERS TO MEET WITH LEGISLATORS OR PUSH INFORMATION FOR THEM TO DO SO. THE MAJORITY OF THE ADVOCACY EFFORTS IS GRASSROOTS ON BOTH A STATE AND FEDERAL LEVEL. DIRECT LOBBYING IS CONDUCTED THROUGH DIRECT MEETINGS WITH LEGISLATORS. FOR THE FISCAL YEAR ENDED JANUARY 31, 2017, THE PRESIDENT/CEO, TWO STAFF MEMBERS, AND VOLUNTEERS SPENT ONE DAY IN TALLAHASSEE (1 - 3 HOURS OF DIRECT MEETING TIME) AND TWO DAYS IN WASHINGTON, D.C. (APPROXIMATELY 3 HOURS OF DIRECT MEETING TIME EACH DAY). | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $189,454 | BeginningYearBalanceAmt |
| Contributions | $22,958 | ContributionsAmt |
| Administrative Expenses | $117,809 | AdministrativeExpensesAmt |
| End Year Balance | $94,603 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $276,068 | BeginningYearBalanceAmt |
| Contributions | $105,560 | ContributionsAmt |
| Administrative Expenses | $192,174 | AdministrativeExpensesAmt |
| End Year Balance | $189,454 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $195,908 | BeginningYearBalanceAmt |
| Contributions | $212,777 | ContributionsAmt |
| Administrative Expenses | $132,617 | AdministrativeExpensesAmt |
| End Year Balance | $276,068 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $105,422 | BeginningYearBalanceAmt |
| Contributions | $204,090 | ContributionsAmt |
| Administrative Expenses | $113,604 | AdministrativeExpensesAmt |
| End Year Balance | $195,908 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $92,841 | BeginningYearBalanceAmt |
| Contributions | $159,402 | ContributionsAmt |
| Administrative Expenses | $146,821 | AdministrativeExpensesAmt |
| End Year Balance | $105,422 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Term Endowment Balance EOY | 1.00000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Land LandGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $225,000 | OtherCostOrOtherBasisAmt |
| Book Value | $225,000 | BookValueAmt |
Buildings BuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $485,609 | OtherCostOrOtherBasisAmt |
| Depreciation | $131,087 | DepreciationAmt |
| Book Value | $354,522 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $428,638 | OtherCostOrOtherBasisAmt |
| Depreciation | $414,335 | DepreciationAmt |
| Book Value | $14,303 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $593,825 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DUE TO NATIONAL ALS | Desc |
| Amt | $83,674 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $83,674 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,544,108 | TotalRevEtcAuditedFinclStmtAmt |
| Other Revenue | $54,924 | OtherRevenueAmt |
| Revenue Not Reported | $54,924 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,489,184 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,489,184 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,875,269 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $54,924 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $54,924 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,820,345 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,820,345 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE CHAPTER'S TEMPORARILY RESTRICTED ENDOWMENTS CONSIST OF NET ASSETS SUBJECT TO DONOR IMPOSED STIPULATIONS THAT MAY OR WILL BE MET, EITHER BY ACTIONS OF THE ASSOCIATION AND/OR PASSAGE OF TIME. |
| PART X, LINE 2: | THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AND ITS AFFILIATED CHAPTERS, INCLUDING THE ASSOCIATION, HAVE BEEN RECOGNIZED COLLECTIVELY BY THE INTERNAL REVENUE SERVICE AS A TAX-EXEMPT ORGANIZATION DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE OF 1986. INCOME EARNED IN FURTHERANCE OF THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION, THROUGH THE COLLECTIVE EXEMPTION DESCRIBED PREVIOUSLY, IS TREATED AS A PUBLICLY SUPPORTED ORGANIZATION, AND NOT AS A PRIVATE FOUNDATION. THE ASSOCIATION HAS ADOPTED THE PROVISIONS OF ASC TOPIC 740 RELATING TO ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND DOES NOT BELIEVE IT HAS ANY MATERIAL INCOME TAX EXPOSURE RELATING TO UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S INCOME TAX FILINGS FOR PERIODS AFTER THE FISCAL YEAR ENDED JANUARY 31, 2013 REMAIN SUBJECT TO EXAMINATION. BEGINNING WITH THE YEAR ENDED JANUARY 31, 2009, THE ASSOCIATION RECEIVED RENT FROM A TENANT, WHICH IS CONSIDERED UNRELATED TAXABLE BUSINESS INCOME. FOR THE YEAR ENDED JANUARY 31, 2017, THIS ACTIVITY GENERATED INCOME TAX EXPENSE OF $848. FOR THE YEAR ENDED JANUARY 31, 2016, THIS ACTIVITY DID NOT GENERATE AN INCOME TAX LIABILITY. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 41,720. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 13,204. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | NONCASH CONTRIBUTIONS |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 41,720. RENTAL EXPENSES DEDUCTED ON PART VIII, LINE 6B 13,204. |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | WALK TO DEFEAT ALS EVENTS | Event1Nm |
| Gross Receipts Event1 | $1,332,514 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,332,514 | CharitableContriEvent1Amt |
| Rent Facility Costs Event1 | $1,808 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $10,685 | OtherDirectExpensesEvent1Amt |
| Event2 | RIDE TO DEFEAT ALS EVENTS | Event2Nm |
| Gross Receipts Event2 | $162,883 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $157,038 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $5,845 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $6,683 | RentFacilityCostsEvent2Amt |
| Other Direct Expenses Event2 | $22,544 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Total | $1,495,397 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,489,552 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $5,845 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $8,491 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $33,229 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $41,720 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$35,875 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|---|---|
| USF FOUNDATION INC | ||||||||||
| 4202 E FOWLER AVE ALC 100 | TAMPA | FL | 33620 | 590879015 | 501(C)(3) | $33,100 | $0 | N/A | N/A | CENTER SUPPORT |
| THE ALS ASSOCIATION | ||||||||||
| 1275 K STREET NW 250 | WASHINGTON | DC | 20005 | 133271855 | 501(C)(3) | $331,436 | $0 | N/A | N/A | RESEARCH |
| UNIVERSITY OF MIAMI | ||||||||||
| 1252 MEMORIAL DR | CORAL GABLES | FL | 33146 | 590624458 | 501(C)(3) | $13,100 | $0 | N/A | N/A | CENTER SUPPORT |
| MAYO CLINIC | ||||||||||
| 4500 SAN PABLO RD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)(3) | $13,100 | $0 | N/A | N/A | CENTER SUPPORT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (4 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc |
|---|---|---|---|---|---|
| MEDICAL FUTURES SCHOLARSHIPS | 3 | $4,997 | $0 | N/A | N/A |
| TRANSPORTATION | 20 | $9,261 | $0 | N/A | N/A |
| EQUIPMENT LOAN PROGRAM | 181 | $0 | $0 | EQUIPMENT IS NOT VALUED | 255 PIECES OF DURABLE MEDICAL EQUIPMENT AND COMMUNICATION DEVICES LOANED. |
| CARE ASSIST GRANTS (SEE PART IV) | 121 | $59,961 | $0 | N/A | N/A |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | APPLICANTS APPLY FOR GRANTS ONLINE. THE APPLICATION IS REVIEWED FOR A VARIETY OF FACTORS, INCLUDING BUT NOT LIMITED TO VALIDITY OF NEED, FINANCIAL NEED, OTHER POTENTIAL FUNDING SOURCES, ETC. GRANTS ARE SUBSTANTIATED THROUGH RESPITE CALENDARS, EQUIPMENT INVOICES, AND RECEIPTS. |
| PART III - GRANTS AND OTHER ASSISTANCE TO DOMESTIC INDIVIDUALS: | FINANCIAL ASSISTANCE PROGRAMS AID FINANCIALLY STRESSED PEOPLE LIVING WITH ALS AND THEIR FAMILIES WITH EQUIPMENT AND SERVICES. ASSISTANCE IS AVAILABLE FOR RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS OR VAN PURCHASE ASSISTANCE, MEDICAL EQUIPMENT, ASSISTIVE TECHNOLOGY, AND TRANSPORTATION TO AN ALS CERTIFIED CENTER OF EXCELLENCE OR CLINIC AFFILIATED WITH THE ALS ASSOCIATION FLORIDA CHAPTER. WE ALSO OFFER TEMPORARY LOANER EQUIPMENT, INCLUDING SPEECH GENERATING DEVICES, TO FLORIDA RESIDENTS WITH A VERIFIED DIAGNOSIS OF ALS WHO ARE UNINSURED, UNDERINSURED, WHO CANNOT ACCESS THEIR INSURANCE (WHILE IN A NURSING HOME OR HOSPICE) OR WHO ARE WAITING FOR INSURANCE APPROVAL. WE COLLABORATE WITH DURABLE MEDICAL EQUIPMENT (DME) COMPANIES, ACCESSIBLE VAN DEALERS AND MODIFICATION BUSINESSES THAT PROVIDE SERVICES TO PEOPLE WITH ALS AND HAVE SPECIALISTS KNOWLEDGEABLE ABOUT THE PROGRESSIVE EQUIPMENT NEEDS OF PERSONS WITH ALS. |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 1 | ContributionCnt |
| Noncash Contributions Rpt F990 | $4,876 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | STOCK QUOTE | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | MEDICAL EQUIP | Desc |
| Contribution | 53 | ContributionCnt |
| Noncash Contributions Rpt F990 | $49,400 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR MARKET VALUE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE CHAPTER USED A THIRD PARTY TO OVERSEE THE RIDE TO DEFEAT ALS EVENTS AND HANDLE LOGISTICS, ON A NON-CONTINGENCY BASIS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS REVIEWED BY THE FINANCE COMMITTEE OF THE BOARD PRIOR TO FILING WITH THE IRS. THE FINANCE COMMITTEE PRESENTS THE 990 TO THE FULL BOARD. THE 990 IS THEN PROVIDED TO THE FULL BOARD PRIOR TO FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | BOARD MEMBERS ARE ASKED TO SIGN A CONFLICT OF INTEREST POLICY ANNUALLY. BOARD MEMBERS WITH A CONFLICT ON ANY VOTING MATTERS RECUSE THEMSELVES FROM THE VOTE. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE PROCESS FOR DETERMINING THE EXECUTIVE DIRECTOR'S SALARY IS AS FOLLOWS: (1) THE ED'S PERFORMANCE IS REVIEWED BY THE CHAIRMAN AND A WRITTEN EVALUATION IS PROVIDED TO THE ED AND TO THE EXECUTIVE COMMITTEE; (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION, INCLUDING SISTER ALS CHAPTERS, WITH ALLOWANCES MADE FOR DIFFERENCES IN SIZE AND LOCATION; (3) THE EXECUTIVE COMMITTEE MAKES A RECOMMENDATION TO THE BOARD FOR APPROVAL; AND (4) THE BOARD'S CONSIDERATION AND APPROVAL OF THE COMPENSATION IS DOCUMENTED IN THE BOARDS MINUTES. THE PROCESS FOR DETERMINING KEY EMPLOYEE'S SALARY IS AS FOLLOWS: (1) THE EMPLOYEE'S PERFORMANCE IS REVIEWED BY THE EXECUTIVE DIRECTOR; AND (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE CHAPTER MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FORM 990, PART IX, LINE 11G | CLINICAL SERVICES: PROGRAM SERVICE EXPENSES 407,499. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 647. TOTAL EXPENSES 408,146. PAYROLL ADMINISTRATION: PROGRAM SERVICE EXPENSES 3,722. MANAGEMENT AND GENERAL EXPENSES 212. FUNDRAISING EXPENSES 768. TOTAL EXPENSES 4,702. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 41,511. MANAGEMENT AND GENERAL EXPENSES 754. FUNDRAISING EXPENSES 6,454. TOTAL EXPENSES 48,719. |
| FORM 990, PART XII, LINE 2C: | THE FINANCIAL STATEMENT AUDIT AND SELECTION OF THE INDEPENDENT CPA FIRM IS MANAGED BY THE EXECUTIVE DIRECTOR AND OVERSEEN BY THE FINANCE COMMITTEE OF THE BOARD. THE CPA FIRM PRESENTS THE AUDIT AND 990 TO THE FINANCE COMMITTEE. THE EXECUTIVE DIRECTOR IS EXCUSED FROM PART OF THE MEETING TO ALLOW THE PROCESS TO BE FULLY INDEPENDENT. THE FINANCE COMITTEE THEN PRESENTS THE AUDIT AND 990 TO THE FULL BOARD. THE CPA FIRM IS CHOSEN FROM THREE (3) INDEPENDENT PROPOSALS WHEN A CHANGE IN FIRM IS MADE. |