LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2016-01-01 to 2016-12-31
Filed: 2017-09-11
IRS object ID: 201722549349300972
Schema version: 2016v3.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2017-09-11T12:18:08-05:00	ReturnTs
Tax Period End	2016-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2016-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt
Business Name Line2	F/K/A ALLIANCE FOR LUPUS RESEARCH INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	2122182840	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	CHIEF FIN. AND ADMIN. OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2017-09-08	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LAUREN CRESCI	PreparerPersonNm
PTIN	P01268493	PTIN
Phone	2126972299	PhoneNum

Field	Value	IRS element (for citing)
Tax	2016	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	KENNETH M FARBER	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$55,917,648	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE OTHE MISSION OF LUPUS RESEARCH ALLIANCE (LRA) IS TO SUPPORT BIO-MEDICAL RESEARCH TO PREVENT, TREAT AND CURE LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	17	VotingMembersIndependentCnt
Total Employee	35	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$15,274,909	PYContributionsGrantsAmt
CY Contributions Grants	$19,101,537	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$3,299,578	PYInvestmentIncomeAmt
CY Investment Income	-$850,998	CYInvestmentIncomeAmt
PY Other Revenue	$224,378	PYOtherRevenueAmt
CY Other Revenue	$19,588	CYOtherRevenueAmt
PY Total Revenue	$18,798,865	PYTotalRevenueAmt
CY Total Revenue	$18,270,127	CYTotalRevenueAmt
PY Grants And Similar Paid	$9,031,864	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$18,737,789	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$2,242,797	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$3,323,432	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$49,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$49,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$2,724,883	CYTotalFundraisingExpenseAmt
PY Other Expenses	$3,858,750	PYOtherExpensesAmt
CY Other Expenses	$4,991,682	CYOtherExpensesAmt
PY Total Expenses	$15,182,411	PYTotalExpensesAmt
CY Total Expenses	$27,101,903	CYTotalExpensesAmt
PY Revenues Less Expenses	$3,616,454	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$8,831,776	CYRevenuesLessExpensesAmt
Total Assets BOY	$63,114,028	TotalAssetsBOYAmt
Total Assets EOY	$67,639,535	TotalAssetsEOYAmt
Total Liabilities BOY	$14,893,239	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$22,480,616	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$48,220,789	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$45,158,919	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE LUPUS RESEARCH ALLIANCE UNITES THE GLOBAL LUPUS COMMUNITY IN BOLD DETERMINATION TO FREE THE WORLD OF LUPUS THROUGH THE POWER OF SCIENCE. WE WILL TRANSFORM THE LIVES OF PEOPLE AFFECTED BY LUPUS AS WE WELCOME AND EMBRACE A NEW SCIENTIFIC ERA, PIONEER INNOVATION, PUSH THE FRONTIERS OF KNOWLEDGE, ENLIST DIVERSE NEW SCIENTIFIC TALENT, AND LEAD THE DRIVE TO NEW TREATMENTS, PREVENTION AND CURE.	MissionDesc
Significant New Program Srvc	Yes (1)	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$17,760,597	ExpenseAmt
Grant	$17,097,789	GrantAmt
Desc	RESEARCH:THE LRA ENGAGES IN ACTIVE GRANT MAKING MANAGEMENT, WORKING HAND-IN-HAND WITH INVESTIGATORS TO GUIDE AND DRIVE THE RESEARCH PROCESS. SINCE ITS INCEPTION, THE LRA HAS COMMITTED OVER $173 MILLION TO FUND LUPUS RESEARCH PROJECTS. IN 2016, GRANTS TOTALING $17 MILLION WERE AWARDED UNDER FOUR MAIN GRANT MECHANISMS: 1) 7 NEW LEGACY ALR TARGET IDENTIFICATION IN LUPUS (TIL) THREE YEAR GRANT MECHANISM FOR OVER $4 MILLION; 2) 10 NEW NOVEL LEGACY LRI GRANTS FOR $3 MILLION OVER THREE YEARS;CONTINUES ON SCHEDULE O.3) 3 DISTINGUISHED INNOVATOR AWARDS (DIA) FOR $2 MILLION OVER 2 TO 4 YEARS4) JOINT LRA-CTI GRANTS WERE AWARDED FOR $1.1 MILLION OVER ONE YEAR5) DUE TO THE MERGER OF THE LUPUS RESEARCH INSTITUTE INTO THE ALR THERE WAS ALSO AN ACCRUAL FOR LEGACY DIA AND NOVEL LRI GRANTS FOR NEARLY $7 MILLION.LRA'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS AND AN INNOVATIVE VENTURE-CAPITALIST APPROACH, PROJECTS BY THE LRA AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LRA'S BOARD OF DIRECTORS FUNDS ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LRA'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$3,943,902	ExpenseAmt
Grant	$1,640,000	GrantAmt
Desc	SCIENTIFIC PROGRAMS:THE LRA ENCOURAGES CROSS-SECTOR AND CROSS-DISCIPLINE PARTNERSHIPS TO FOSTER AN INNOVATIVE RESEARCH ENVIRONMENT. IN 2016, THERE WERE COLLABORATIVE MEETINGS FUNDED BY THE LRA WHERE RESEARCHERS WERE ENCOURAGED TO EXCHANGE IDEAS AND HELP THE LRA TARGET NEW RESEARCH OPPORTUNITIES. THIS INCLUDED THE ANNUAL 2 DAY FORUM FOR DISCOVERY, SCIENTIFIC ADVISORY BOARD MEETINGS, LUPUS INDUSTRY COUNCIL MEETINGS, AND LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN) MEETINGS. CONTINUES ON SCHEDULE O.IN 2016, THE LRA FULLY FORMED LUCIN TO RUN "PROOF OF CONCEPT" CLINICAL TRIALS TO EVALUATE WHETHER NEW TREATMENTS WILL IMPROVE THE OUTCOME IN PATIENTS WITH LUPUS UNDER THE DRUG REPOSITIONING PROGRAM. WE WILL BE BUILDING ALLIANCES AND PARTNERSHIPS WITH COMPANIES, ORGANIZATIONS, AND INDIVIDUALS WHO ARE WILLING TO ASSIST LRA IN REALIZING THE GREAT POTENTIAL OF THIS PROGRAM. OVER THE NEXT 5 YEARS WE WILL RUN MULTIPLE CLINICAL TRIALS WITH MEDICINES THAT LOOK THE MOST PROMISING. IN 2016, 3 "PROOF OF CONCEPT" CLINICAL TRIALS WERE INITIATED IN APPROXIMATELY 60 TRIAL SITES THROUGHOUT THE UNITED STATES AND CANADA AND 2-3 MORE ARE EXPECTED IN 2017.A LUCIN GOVERNANCE STRUCTURE HAS BEEN DEVELOPED TO PROVIDE AN INITIAL FRAMEWORK TO OPERATIONALIZE NETWORK ACTIVITIES AND FACILITATE LUPUS COMMUNITY INVOLVEMENT. THE GOVERNANCE STRUCTURE IS COMPRISED OF LUCIN INVESTIGATORS AND PATIENTS, COVERING A DIVERSE RANGE OF INTEREST AND EXPERTISE, WITH THE SINGULAR FOCUS OF IDENTIFYING AND ACCELERATING THE DEVELOPMENT OF NEW AND SAFER TREATMENTS FOR LUPUS PATIENTS. UP TO 90% OF THE PEOPLE WITH LUPUS ARE WOMEN AND THE DISORDER IS THREE TIMES MORE PREVALENT IN AFRICAN AMERICAN WOMEN THAN ANY OTHER GROUP. PATIENT RECRUITMENT WILL BE THE MOST CRITICAL ELEMENT IN THE SUCCESS OF THIS PROGRAM. A PATIENT ADVOCATES IN LUPUS PROGRAM IS ALSO BEING CREATED AS AN ADJUNCT TO LUCIN TO ASSIST WITH PATIENT RECRUITMENT.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$541,256	ExpenseAmt
Desc	PUBLIC POLICY:THE MAIN GOALS OF THE LRA'S PUBLIC POLICY PROGRAM ARE TO EDUCATE MEMBERS OF CONGRESS AND THE ADMINISTRATION ABOUT THE IMPORTANCE OF FUNDING LUPUS RESEARCH, TO INCREASE FEDERAL FUNDING FOR LUPUS RESEARCH BY INCREASING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS, AND TO SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE VETERANS ADMINISTRATION AND DEPARTMENT OF DEFENSE. VOLUNTEERS ACROSS THE COUNTRY HELP US WITH THESE OUTREACH EFFORTS.CONTINUES ON SCHEDULE O.THROUGH THE LRA'S PUBLIC POLICY PROGRAM EFFORTS, FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE PEER REVIEWED MEDICAL RESEARCH PROGRAM. THIS IS A $50 MILLION COMPETITIVE RESEARCH GRANT PROGRAM. ONLY THOSE DISEASES LISTED IN THE DEFENSE APPROPRIATIONS COMMITTEE REPORT ARE ELIGIBLE TO RECEIVE FUNDING. LRA WAS RESPONSIBLE FOR PERSUADING CONGRESS TO INCLUDE LUPUS ON THIS VERY COMPETITIVE LIST THE PAST TEN YEARS. IN ADDITION, THERE IS NOW $5 MILLION EARMARKED SPECIFICALLY FOR LUPUS IN FY17 AND THROUGH THE LRA'S CONTINUED EFFORTS, THE APPROPRIATIONS BILL FOR FY18 PROVIDES AN ADDITIONAL $5 MILLION FOR THE LUPUS MEDICAL RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE (DOD), BRINGING THE TOTAL TO $10 MILLION OVER TWO YEARS.IN 2016, THE LUPUS PATIENT-FOCUSED DRUG DEVELOPMENT (PFDD) INITIATIVE - BRINGING THE VOICE OF THE PATIENT TO DRUG DEVELOPMENT WAS INITIATED. THIS COLLABORATIVE EFFORT WITH THE LUPUS AND ALLIED DISEASES ASSOCIATION (LADA) AND LUPUS FOUNDATION OF AMERICA (LFA) IS A GROUNDBREAKING INITIATIVE DESIGNED TO PROVIDE THE FOOD AND DRUG ADMINISTRATION (FDA) WITH PERSPECTIVES FROM PEOPLE WITH LUPUS, ADVOCATES AND CAREGIVERS TO HELP INFORM THE FDA'S DECISIONS AND OVERSIGHT DURING THE DRUG DEVELOPMENT AND REVIEW PROCESSES. A MAJOR LAUNCH TO THE LUPUS COMMUNITY IS PLANNED FOR MAY 2017 WITH THE MEETING IN FALL 2017. IN ADDITION, ADVOCACY FOR THE CONTINUED AVAILABILITY OF QUINACRINE WAS A PRIORITY IN 2016. THE FOOD AND DRUG ADMINISTRATION (FDA) IS ASSESSING ALL COMPOUNDED PHARMACEUTICALS THROUGH THEIR PHARMACY COMPOUNDING ADVISORY COMMITTEE (PCAC). IN THE SPRING, THE COMMITTEE VOTED TO RECOMMEND TAKING QUINACRINE OFF THE COMPOUNDING PHARMACY LIST. IN OCTOBER LRA MET WITH THE DR. JANET WOODCOCK, DIRECTOR, CENTER FOR DRUG EVALUATION AND RESEARCH, AND A LARGE TEAM AT FDA TO DISCUSS WAYS TO KEEP QUINACRINE AVAILABLE TO PEOPLE WITH LUPUS IN A WAY THAT IS ACCEPTABLE TO THE FDA. WE ARE LOOKING INTO THOSE OPTIONS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$22,245,755	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	Yes (1)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	54	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	35	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	17	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (1)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468848000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10 FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ROBERT WOOD JOHNSON IV
CHAIRMAN OF THE BOARD	1.00	Yes (X)	Yes (X)	$0	$0	$0
RICHARD K DESCHERER
VICE CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
ROBERT RAVITZ
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
IRA AKSELRAD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NEIL J BURMEISTER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JERMOME CHAZEN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SIR MARC FELDMANN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
LOUIS LUCIDO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT W PITTMAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
FERN TESSLER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KEITH C WOLD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
CAROL WIESMAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KENNETH M FARBER
CO-CEO AND CO-PRESIDENT	40.00		Yes (X)	$300,181	$0	$59,806
MARGARET P DOWD
CO-CEO AND CO-PRESIDENT	40.00		Yes (X)	$107,105	$0	$20,094
DEBRA ROSE
CHIEF FIN. AND ADMIN. OFFICER	40.00		Yes (X)	$150,534	$0	$32,662
ROBERT D HINNEN
SENIOR DIRECTOR OF PHILANTHROPY	40.00			$124,339	$0	$28,534	Yes (X)
DENISE PRIOR
NATIONAL COMMUNICATIONS DIRECTOR	40.00			$105,335	$0	$24,337	Yes (X)
JONATHAN MARKS
SENIOR REGIONAL DEVELOPMENT DIRECTOR	40.00			$100,376	$0	$52,012	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$887,870	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$217,445	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	6	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
AMPEL BIOSOLUTIONS LLC
1001 RESEARCH PARK BLVD SUITE 301	CHARLOTTESVILLE	VA	22911	SCIENTIFIC CONSULTANT	$471,825
KIM KAISER & ASSOCIATES LLC
151 CENTRE AVE 1A	NEW ROCHELLE	NY	10805	PHARMA RELATIONS CONSULTANT	$236,000
MARY CROW
17 EAST 89TH STREET APT3D	NEW YORK	NY	10128	SCIENTIFIC ADVISORY BOARD CHAIR	$110,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	3	CntrctRcvdGreaterThan100KCnt
Fundraising	$5,023,672	FundraisingAmt
All Other Contributions	$14,077,865	AllOtherContributionsAmt
Noncash Contributions	$206,337	NoncashContributionsAmt
Total Contributions	$19,101,537	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,132,214	TotalRevenueColumnAmt
Exclusion	$1,132,214	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$8,064	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$75,094	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	-$67,030	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$67,030	TotalRevenueColumnAmt
Exclusion	-$67,030	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$35,165,766	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$37,148,978	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$1,983,212	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$1,983,212	TotalRevenueColumnAmt
Exclusion	-$1,983,212	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$422,538	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$5,023,672	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$422,538	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$471	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$911	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$440	TotalRevenueColumnAmt
Exclusion	-$440	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	532000	BusinessCd
Total Revenue Column	$87,058	TotalRevenueColumnAmt
Exclusion	$87,058	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$87,058	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$18,270,127	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	-$831,410	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$16,831,344	TotalAmt
Program Services	$16,831,344	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,906,445	TotalAmt
Program Services	$1,906,445	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$724,203	TotalAmt
Program Services	$397,883	ProgramServicesAmt
Management And General	$127,808	ManagementAndGeneralAmt
Fundraising	$198,512	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$1,928,218	TotalAmt
Program Services	$403,461	ProgramServicesAmt
Management And General	$578,829	ManagementAndGeneralAmt
Fundraising	$945,928	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$161,863	TotalAmt
Program Services	$35,539	ProgramServicesAmt
Management And General	$46,961	ManagementAndGeneralAmt
Fundraising	$79,363	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$320,715	TotalAmt
Program Services	$76,933	ProgramServicesAmt
Management And General	$91,513	ManagementAndGeneralAmt
Fundraising	$152,269	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$188,433	TotalAmt
Program Services	$54,926	ProgramServicesAmt
Management And General	$50,796	ManagementAndGeneralAmt
Fundraising	$82,711	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$146,400	TotalAmt
Program Services	$54,890	ProgramServicesAmt
Management And General	$91,097	ManagementAndGeneralAmt
Fundraising	$413	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$91,722	TotalAmt
Management And General	$91,722	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$122,783	TotalAmt
Program Services	$122,783	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$49,000	TotalAmt
Fundraising	$49,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$60,060	TotalAmt
Management And General	$60,060	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,337,640	TotalAmt
Program Services	$935,507	ProgramServicesAmt
Management And General	$210,325	ManagementAndGeneralAmt
Fundraising	$191,808	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$127,358	TotalAmt
Program Services	$19,961	ProgramServicesAmt
Management And General	$60,255	ManagementAndGeneralAmt
Fundraising	$47,142	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$220,170	TotalAmt
Program Services	$119,183	ProgramServicesAmt
Management And General	$52,453	ManagementAndGeneralAmt
Fundraising	$48,534	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$911,213	TotalAmt
Program Services	$265,607	ProgramServicesAmt
Management And General	$245,640	ManagementAndGeneralAmt
Fundraising	$399,966	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$366,224	TotalAmt
Program Services	$237,960	ProgramServicesAmt
Management And General	$45,382	ManagementAndGeneralAmt
Fundraising	$82,882	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$699,894	TotalAmt
Program Services	$647,303	ProgramServicesAmt
Management And General	$43,669	ManagementAndGeneralAmt
Fundraising	$8,922	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$87,582	TotalAmt
Program Services	$25,529	ProgramServicesAmt
Management And General	$23,610	ManagementAndGeneralAmt
Fundraising	$38,443	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$37,664	TotalAmt
Program Services	$10,979	ProgramServicesAmt
Management And General	$10,153	ManagementAndGeneralAmt
Fundraising	$16,532	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
PRINTING & PUBLICATIONS	$211,533	$47,877	$62,226	$101,430
WALKATHON PROMOTIONAL E	$162,739			$162,739
BRANDING & DESIGN	$118,656	$11,365	$86,543	$20,748
POSTAGE, SHIPPING & DEL	$83,378	$6,834	$21,899	$54,645

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$206,666	TotalAmt
Program Services	$33,446	ProgramServicesAmt
Management And General	$130,324	ManagementAndGeneralAmt
Fundraising	$42,896	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$27,101,903	TotalAmt
Program Services	$22,245,755	ProgramServicesAmt
Management And General	$2,131,265	ManagementAndGeneralAmt
Fundraising	$2,724,883	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,528,244	BOYAmt
EOY	$1,175,462	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,636,753	BOYAmt
EOY	$3,030,324	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,660,067	BOYAmt
EOY	$7,780,945	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$122,948	BOYAmt
EOY	$255,040	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$2,575,769	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$178,912	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,645,544	BOYAmt
EOY	$2,396,857	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$45,226,366	BOYAmt
EOY	$50,404,753	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$5,199,398	BOYAmt
EOY	$1,892,101	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$94,708	BOYAmt
EOY	$704,053	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$63,114,028	BOYAmt
EOY	$67,639,535	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$251,632	BOYAmt
EOY	$485,285	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$14,628,932	BOYAmt
EOY	$21,604,469	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$12,675	BOYAmt
EOY	$390,862	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$14,893,239	BOYAmt
EOY	$22,480,616	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$47,674,034	BOYAmt
EOY	$41,267,063	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$546,755	BOYAmt
EOY	$3,891,856	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$48,220,789	BOYAmt
EOY	$45,158,919	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$63,114,028	BOYAmt
EOY	$67,639,535	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$8,831,776	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$5,768,030	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$1,876	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$8,871,788	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$8,223,868	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$12,504,683	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,274,909	CurrentTaxYearMinus1YearAmt
Current Tax Year	$19,101,537	CurrentTaxYearAmt
Total	$63,976,785	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$8,871,788	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$8,223,868	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$12,504,683	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,274,909	CurrentTaxYearMinus1YearAmt
Current Tax Year	$19,101,537	CurrentTaxYearAmt
Total	$63,976,785	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$23,850,903	SubstantialContributorsTotAmt
Public Support Total170	$40,125,882	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,474,151	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,942,593	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,763,120	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,817,934	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,227,336	CurrentTaxYearAmt
Total	$8,225,134	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$359	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$389	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$675	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$118	CurrentTaxYearMinus1YearAmt
Current Tax Year	-$440	CurrentTaxYearAmt
Total	$1,101	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$72,203,020	TotalSupportAmt
Public Support CY170	0.55570	PublicSupportCY170Pct
Public Support PY170	0.48730	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$541,256	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$541,256	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$26,560,647	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$27,101,903	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$754,288	CurrentYearMinus3Amt
Current Year Minus2	$835,249	CurrentYearMinus2Amt
Current Year Minus1	$909,121	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$3,498,658	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$5,247,987	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$111,717	CurrentYearMinus3Amt
Current Year Minus2	$123,897	CurrentYearMinus2Amt
Current Year Minus1	$152,897	CurrentYearMinus1Amt
Current Year	$541,256	CurrentYearAmt
Total	$929,767	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$188,572	CurrentYearMinus3Amt
Current Year Minus2	$208,812	CurrentYearMinus2Amt
Current Year Minus1	$227,280	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$874,664	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,311,996	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$44,173,045	BeginningYearBalanceAmt
Investment Earnings Or Losses	$4,257,605	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,566,823	OtherExpendituresAmt
End Year Balance	$45,863,827	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$48,100,254	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$1,498,278	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,428,931	OtherExpendituresAmt
End Year Balance	$44,173,045	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$46,953,037	BeginningYearBalanceAmt
Investment Earnings Or Losses	$3,340,405	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,193,188	OtherExpendituresAmt
End Year Balance	$48,100,254	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$31,218,383	BeginningYearBalanceAmt
Contributions	$10,000,000	ContributionsAmt
Investment Earnings Or Losses	$8,816,260	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,081,606	OtherExpendituresAmt
End Year Balance	$46,953,037	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$18,416,644	BeginningYearBalanceAmt
Contributions	$10,000,000	ContributionsAmt
Investment Earnings Or Losses	$4,761,791	InvestmentEarningsOrLossesAmt
Other Expenditures	$1,960,052	OtherExpendituresAmt
End Year Balance	$31,218,383	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Land LandGrp

Field	Value	IRS element (for citing)
Investment Cost Or Other Basis	$1,725,928	InvestmentCostOrOtherBasisAmt
Book Value	$1,725,928	BookValueAmt

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$384,902	OtherCostOrOtherBasisAmt
Depreciation	$19,246	DepreciationAmt
Book Value	$365,656	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$464,939	OtherCostOrOtherBasisAmt
Depreciation	$159,666	DepreciationAmt
Book Value	$305,273	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$2,396,857	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
SECURITY DEPOSIT PAYABLE	$28,355
DEFERRED RENT	$362,507

Field	Value	IRS element (for citing)
Total Liability	$390,862	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$23,978,097	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$5,768,030	NetUnrealizedGainsInvstAmt
Revenue Not Reported	$5,768,030	RevenueNotReportedAmt
Revenue Subtotal	$18,210,067	RevenueSubtotalAmt
Investment Expenses Not Incld	$60,060	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$60,060	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$18,270,127	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$27,039,967	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$27,039,967	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$60,060	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$1,876	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$61,936	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$27,101,903	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR RESEARCH PROGRAM GRANTS. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	RETURN OF GRANTS & ADJUSTMENTS 1,876.
PART XI, LINE 4B AND PART XII, LINE 4B	UNUSED PORTIONS OF GRANTS RETURNED TO ALR THAT WERE PAID IN PREVIOUS YEARS IN THE AMOUNT OF $1,876. THESE AMOUNTS ARE RECONCILING ITEMS BETWEEN THE REVENUE AND EXPENSES FROM THE AUDITED FINANCIAL STATEMENTS AND THOSE REPORTED ON FORM 990.
SCHEDULE D PART VI, LINE 1A - LAND HELD FOR RESALE	IN DECEMBER 2006, THE ORGANIZATION RECEIVED A DONATION OF LAND AND BUILDING CURRENTLY VALUED AT $1,725,928 WHICH IS BEING HELD FOR RESALE.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	PROGRAM SERVICES	GRANTS TO RECIPIENTS	$1,336,445
NORTH AMERICA	PROGRAM SERVICES	GRANTS TO RECIPIENTS	$320,000
EUROPE (INCLUDING ICELAND & GREENLAND)	PROGRAM SERVICES	GRANTS TO RECIPIENTS	$250,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continutation Total Office	0	ContinutationTotalOfficeCnt
Continutation Total Employee	0	ContinutationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,906,445	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,906,445	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (12 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Valuation Method UsedValuationMethodUsedDesc
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$336,445	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$250,000	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$750,000	CHECK	BOOK
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$250,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$40,000	CHECK	BOOK

Field	Value	IRS element (for citing)
Total501c3 Org	10	Total501c3OrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	BEFORE A GRANT IS AWARDED, THE INSTITUTION MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LRA'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: - CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE INSTITUTION THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. - AGREE THAT PI AND SPONSORING INSTITUTION ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. - AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. - AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. - AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL BUDGET RECONCILIATION IS REQUIRED. THE PI AND A REPRESENTATIVE FROM THE INSTITUTION MUST SUBMIT THE FOLLOWING: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." - IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. - AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. ALL INSTITUTIONS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: - PERIODIC PROGRESS REPORTS - PERIODIC BUDGET RECONCILIATIONS - ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	845 THIRD AVENUE 6TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10022	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$2,293,340	GrossReceiptsAmt
Retained By Contractor	$49,000	RetainedByContractorAmt
Net To Organization	$2,293,340	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$2,293,340	TotalGrossReceiptsAmt
Total Retained By Contractors	$49,000	TotalRetainedByContractorsAmt
Total Net To Organization	$2,293,340	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$3,015,898	GrossReceiptsEvent1Amt
Charitable Contri Event1	$2,614,673	CharitableContriEvent1Amt
Gross Revenue Event1	$401,225	GrossRevenueEvent1Amt
Food And Beverage Event1	$280,959	FoodAndBeverageEvent1Amt
Entertainment Event1	$8,000	EntertainmentEvent1Amt
Other Direct Expenses Event1	$112,266	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$2,058,564	GrossReceiptsEvent2Amt
Charitable Contri Event2	$2,037,251	CharitableContriEvent2Amt
Gross Revenue Event2	$21,313	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$21,313	OtherDirectExpensesEvent2Amt
Other Events Total	1	OtherEventsTotalCnt
Gross Receipts Other Events	$371,748	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$371,748	CharitableContriOtherEventsAmt
Gross Receipts Total	$5,446,210	GrossReceiptsTotalAmt
Charitable Contributions Tot	$5,023,672	CharitableContributionsTotAmt
Gross Revenue Total Events	$422,538	GrossRevenueTotalEventsAmt
Food And Beverage Total Events	$280,959	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$8,000	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$133,579	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$422,538	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED ALR'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/16 - 12/31/16 WAS $49,000 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (74 entries)

Address Line1USAddress/AddressLine1Txt	Address Line2USAddress/AddressLine2Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt
UNIVERISTY OF CALIFORNIA LOS ANGELES
BOX 951432 1125 MURPHY HALL 405	HILGARD AVENUE	LOS ANGELES	CA	90095	956006143	501(C)(3)	$8,095	BOOK	LUPUS RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
505 SOUTH HANCOCK ST ROOM 602A		LOUISVILLE	KY	40202	611029626	501(C)(3)	$8,242	BOOK	LUPUS RESEARCH
THE CENTER FOR INFORMATION & STUDY ON CLINICAL RESARCH PARTICPATION
56 COMMERCIAL WHARF EAST		BOSTON	MA	02110	200588190	501(C)(3)	$10,000	BOOK	LUPUS RESEARCH
ALLEGHENYSINGER RESEARCH INSTITUTE
320 E NORTH AVE		PITTSBURGH	PA	15212	251320493	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE		ATLANTA	GA	30322	580566256	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL		WESTBURY	NY	11590	112673595	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET		OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
PENNSYLVANIA STATE UNIVERSITYCOLLEGE OF MEDICINE
ONE OLD MAIN		UNIVERSITY PARK	PA	16802	246000376	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE
5171 CALIFORNIA AVENUE STE 150		IRVINE	CA	92697	952226406	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 WEST CONGRESS PARKWAY		CHICAGO	IL	60612	362174823	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
THE METROHEALTH SYSTEM
2500 METROHEALTH DRIVE		CLEVELAND	OH	44109	346004382	SECTION 115 - OH STA	$40,000	BOOK	LUPUS RESEARCH
THE RESEARCH FOUNDATION OF SUNY
35 STATE STREET		ALBANY	NY	12201	141368361	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501		CHICAGO	IL	60637	362177139	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD STE 620		LOS ANGELES	CA	90024	956006143	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL		BOULDER	CO	80309	846000555	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGON STREET 4TH FL		BALTIMORE	MD	21201	521830242	SECTION 115 - MD STA	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MIAMI
1320 S DIXIE HIGHWAY GABLES ONE	TOWER 650	CORAL GABLES	FL	33146	590624458	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET		JACKSON	MS	39216	646008520	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE		PITTSBURGH	PA	15213	250965591	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
WALLACE RHEUMATIC STUDIES CENTER LLC
8737 BENVERLY BLVD STE 301		W HOLLYWOOD	CA	90048	455434561	501(C)(3)	$40,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
1959 NE PACIFIC STREET		SEATTLE	WA	98195	916001537	501(C)(3)	$47,852	BOOK	LUPUS RESEARCH
STANFORD UNIVERSITY
269 CAMPUS DRIVE CCSR BUILDING ROOM	2215A	STANFORD	CA	94305	941156365	501(C)(3)	$48,089	BOOK	LUPUS RESEARCH
THE OHIO STATE UNIVERSITY
333 WEST TENTH AVENUE		COLUMBUS	OH	43210	316025986	SEC 115 UNIT OF OHIO	$48,127	BOOK	LUPUS RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
BROOKLINE AVENUE		BOSTON	MA	02215	042103881	501(C)(3)	$48,218	BOOK	LUPUS RESEARCH
UNIVERSITY OF VERMONT
85 SOUTH PROSPECT STREET		BURLINGTON	VT	05405	030179440	VT STATE GOVERNMENT	$50,000	BOOK	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET		NEW YORK	NY	10021	131624135	501(C)(3)	$50,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO
1600 BROADWAY		DENVER	CO	80202	846000555	501(C)(3)	$50,000	BOOK	LUPUS RESEARCH
BAYLOR RESEARCH INSTITUTE
1311 S 5TH STREET		WACO	TX	76706	751921898	501(C)(3)	$50,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
1149 SOUTH NEWELL DRIVE		GAINESVILLE	FL	32611	596002052	FLORIDA STATE GOV	$50,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934		LA JOLLA	CA	92093	956006144	501(C)(3)	$60,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM ST STE 425		SAN FRANCISCO	CA	94143	946036493	501(C)(3)	$60,000	BOOK	LUPUS RESEARCH
AMPEL BIOSOLUTIONS LLC
1001 RESEARCH PARK BLVD SUITE 301		CHARLOTTESVILLE	VA	22901	463230076		$85,412	BOOK	LUPUS RESEARCH
FOUNDATION FOR THE NATIONAL INSTITUTE FOR HEALTH INC
9650 ROCKVILLE PIKE		BETHESDA	MD	20814	521986675	501(C)(3)	$100,000	BOOK	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET		BOSTON	MA	02114	042697983	501(C)(3)	$100,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF NEBRASKA
S 42ND ST EMILE ST		OMAHA	NE	68198	470771713	501(C)(3)	$100,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER
920 COURT AVENUE		MEMPHIS	TN	38163	626001636	501(C)(3)	$100,000	BOOK	LUPUS RESEARCH
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE		NEW YORK	NY	10029	136171197	501(C)(3)	$100,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL		BERKELEY	CA	94720	946036493	501(C)(3)	$108,107	BOOK	LUPUS RESEARCH
FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
5 DAKOTA DRIVE		LAKE SUCCESS	NY	11042	112673595	501(C)(3)	$150,000	BOOK	LUPUS RESEARCH
CHILDREN'S HOSPITAL BOSTON
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501(C)(3)	$178,723	BOOK	LUPUS RESEARCH
THE HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET		NEW YORK	NY	10021	131624135	501(C)(3)	$187,406	BOOK	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE		NASHVILLE	TN	37232	352528741	501(C)(3)	$190,000	BOOK	LUPUS RESEARCH
UNIVERISTY OF SAN FRANCISCO
200 UNIVERSITY HALL		BERKELEY	CA	94720	946036493	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
TEMPLE UNIVERSITY
1801 N BROAD STREET		PHILADELPHIA	PA	19122	231365971	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF BUFFALO
12 CAPEN HALL		CAPEN HALL	NY	14260	160865182	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
LANKENAU MEDICAL CENTER
100 LANCASTER AVENUE		WYNNEWOOD	PA	19096	232176723	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
1000 N LINCOLN BLVD STE 2900		OKLAHOMA CITY	OK	73104	731192768	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF NORTH CAROLINA
910 RALEIGH ROAD		CHAPEL HILL	NC	27174	566001393	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD		CALHOUN ROAD	TX	77004	746001399	501(C)(3)	$200,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA
ZONAL AVEHMR 705		LOS ANGELES	CA	90089	951642394	501(C)(3)	$208,188	BOOK	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING		ROCHESTER	NY	14627	160743209	501(C)(3)	$210,648	BOOK	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL INC
4 BLACK FAN CIRCLE		BOSTON	MA	02115	042312909	501(C)(3)	$248,243	BOOK	LUPUS RESEARCH
SEATTLE CHILDREN'S RESEARCH INSTITUTE
1900 NINTH AVENUE		SEATTLE	WA	98101	910564748	501(C)(3)	$285,940	BOOK	LUPUS RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3535 MARKET STREET		PHILADELPHIA	PA	19104	231352166	501(C)(3)	$285,940	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE		LA JOLLA	CA	92093	956006144	501(C)(3)	$285,940	BOOK	LUPUS RESEARCH
FRED HUTCHINSON CANCER RESEARCH CENTER OFFICE OF SPONSORED RESEARCH
1100 FAIRVIEW AVENUE N		SEATTLE	WA	98109	237156071	501(C)(3)	$285,940	BOOK	LUPUS RESEARCH
THE METHODIST HOSPITAL RESEARCH INSTITUTE
6565 FANNIN MGJ4-024		HOUSTON	TX	77030	870721923	501(C)(3)	$285,941	BOOK	LUPUS RESEARCH
UNIVERSITY OF ALABAMA
1530 3RD AVENUE S		BIRMINGHAM	AL	35294	636005396	501(C)(3)	$300,000	BOOK	LUPUS RESEARCH
BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON
1201 NINTH AVE		SEATTLE	WA	98101	910653422	501(C)(3)	$325,941	BOOK	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	29425	576028985	SC STATE GOVERNMENT	$325,941	BOOK	LUPUS RESEARCH
PARTNERS HEALTHCARE SYSTEM INC
101 HUNTINGTON AVENUE		BOSTON	MA	02199	433230035	501(C)(3)	$325,941	BOOK	LUPUS RESEARCH
CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	45229	310833936	501(C)(3)	$400,000	BOOK	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW		ROCHESTER	MN	55905	416011702	501(C)(3)	$410,648	BOOK	LUPUS RESEARCH
DARTMOUTH MEDICAL SCHOOL
1 ROPE FERRY ROAD		HANOVER	NH	03755	020222111	501(C)(3)	$471,406	BOOK	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BOULEVARD		DALLAS	TX	75390	746000203	TX STATE GOVERNMENT	$508,357	BOOK	LUPUS RESEARCH
UNIVERSITY OF VIRGINIA
PO BOX 400126		CHARLOTTESVILLE	VA	22904	546001796	501(C)(3)	$522,089	BOOK	LUPUS RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE		MANHASSET	NY	11030	112673595	501(C)(3)	$598,570	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL		GAINESVILLE	FL	32611	596000205	FLORIDA STATE GOV	$610,219	BOOK	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
12455 COLLECTIONS DRIVE		CHICAGO	IL	11042	231365861	501(C)(3)	$621,882	BOOK	LUPUS RESEARCH
ST JUDE CHILDRENS RESEARCH HOSPITAL
333 MEADOWLANDS PARKWAY		SECAUCUS	NJ	07094	620646012	501(C)(3)	$800,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVE		WORCESTER	MA	01655	043167325	MA STATE GOVERNMENT	$892,274	BOOK	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE		NEW YORK	NY	10016	135562308	501(C)(3)	$942,812	BOOK	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET		PHILADELPHIA	PA	19104	231352685	501(C)(3)	$1,168,648	BOOK	LUPUS RESEARCH
YALE UNIVERSITY
PO BOX 208239		NEW HAVEN	CT	06520	060646973	501(C)(3)	$1,441,565	BOOK	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	50	Total501c3OrgCnt
Total Other Org	1	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	BEFORE A GRANT IS AWARDED, THE INSTITUTION MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LRA'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: - CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE INSTITUTION THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. - AGREE THAT PI AND SPONSORING INSTITUTION ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. - AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. - AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. - AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL BUDGET RECONCILIATION IS REQUIRED. THE PI AND A REPRESENTATIVE FROM THE INSTITUTION MUST SUBMIT THE FOLLOWING: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." - IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. - AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. ALL INSTITUTIONS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: - PERIODIC PROGRESS REPORTS - PERIODIC BUDGET RECONCILIATIONS - ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
KENNETH M FARBER
CO-CEO AND CO-PRESIDENT	$300,181	$0	$0	$0	$0	$0	$21,200	$0	$38,606	$0	$359,987	$0	$0	$0
DEBRA ROSE
CHIEF FIN. AND ADMIN. OFFICER	$150,534	$0	$0	$0	$0	$0	$13,864	$0	$18,798	$0	$183,196	$0	$0	$0
ROBERT D HINNEN
SENIOR DIRECTOR OF PHILANTHROPY	$124,339	$0	$0	$0	$0	$0	$12,259	$0	$16,275	$0	$152,873	$0	$0	$0
JONATHAN MARKS
SENIOR REGIONAL DEVELOPMENT DIRECTOR	$100,376	$0	$0	$0	$0	$0	$13,401	$0	$38,611	$0	$152,388	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	9	ContributionCnt
Noncash Contributions Rpt F990	$206,337	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART III, LINE 2	PAGE 2, PART III, LINE 2 A LUCIN GOVERNANCE STRUCTURE HAS BEEN DEVELOPED TO PROVIDE AN INITIAL FRAMEWORK TO OPERATIONALIZE NETWORK ACTIVITIES AND FACILITATE LUPUS COMMUNITY INVOLVEMENT. THE GOVERNANCE STRUCTURE IS COMPRISED OF LUCIN INVESTIGATORS AND PATIENTS, COVERING A DIVERSE RANGE OF INTEREST AND EXPERTISE, WITH THE SINGULAR FOCUS OF IDENTIFYING AND ACCELERATING THE DEVELOPMENT OF NEW AND SAFER TREATMENTS FOR LUPUS PATIENTS. UP TO 90% OF THE PEOPLE WITH LUPUS ARE WOMEN AND THE DISORDER IS THREE TIMES MORE PREVALENT IN AFRICAN AMERICAN WOMEN THAN ANY OTHER GROUP. PATIENT RECRUITMENT WILL BE THE MOST CRITICAL ELEMENT IN THE SUCCESS OF THIS PROGRAM. A PATIENT ADVOCATES IN LUPUS PROGRAM IS ALSO BEING CREATED AS AN ADJUNCT TO LUCIN TO ASSIST WITH PATIENT RECRUITMENT.
FORM 990, PART VI, SECTION A, LINE 2	1. NEIL J. BURMEISTER (DIRECTOR), IRA AKSELRAD (DIRECTOR) AND ROBERT WOOD JOHNSON, IV, (CHAIRMAN OF THE BOARD), HAVE A BUSINESS RELATIONSHIP. 2. ROBERT WOOD JOHNSON IV (CHAIRMAN OF THE BOARD) AND ROBERT PITTMAN (DIRECTOR) HAVE A BUSINESS RELATIONSHIP.
FORM 990, PART VI, SECTION A, LINE 4	ON JULY 1, 2016 TWO LUPUS ORGANIZATIONS; THE SLE LUPUS FOUNDATION AND THE LUPUS RESEARCH INSTITUTE MERGED WITH AND INTO THE ALLIANCE FOR LUPUS RESEARCH HENCEFORTH KNOWN AS LUPUS RESEARCH ALLIANCE. NEW ARTICLES OF INCORPORATION AND BYLAWS WENT INTO EFFECT WITH THE MERGER DATE OF JULY 1, 2016.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION BY OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S SENIOR OFFICERS, THE CHIEF FINANCE AND ADMINISTRATIVE OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE SEPTEMBER MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE GOVERNANCE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2016, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES AND ANNUAL MERIT ADJUSTMENTS FOR ALL STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	RETURN OF UNSPENT GRANT FUNDS 1,876.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET AMBROSE, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY AMBROSE AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE AMBROSE EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET AMBROSE.