AMYOTROPHIC LATERAL SCLEROSIS MN: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
AMYOTROPHIC LATERAL SCLEROSIS MN (EIN 41-1756085)
Tax period
2017-02-01 to 2018-01-31
Filed
2018-06-15
IRS object ID
201841669349301704
Schema version
2017v2.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-06-15T16:59:00-05:00ReturnTs
Tax Period End2018-01-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN410887288PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BOULAY PLLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17500 FLYING CLOUD DRIVE 800AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55344ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-02-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN411756085EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ALS ASSOCIATION MINNESOTABusinessNameLine1Txt
Business Name Line2NORTH DAKOTA SOUTH DAKOTA CHAPTERBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlAMYOBusinessNameControlTxt
Phone6126720484PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1333 NORTH WASHINGTON AVE NO 105AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55401ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJENNIFER HJELLEPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone6126720484PhoneNum
Signature2018-06-12SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonTARA M SCHINIPreparerPersonNm
PTINP01714186PTIN
Phone9528939320PhoneNum
Preparation2018-06-12PreparationDt
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1ALS ASSOCIATION MNNDSD CHAPTERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerJENNIFER HJELLEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1333 NORTH WASHINGTON AVE NO 105AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55401ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$5,172,561GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Group Exemption4119GroupExemptionNum
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ALSMN.ORGWebsiteAddressTxt
Type Of Organization AssocYes (X)TypeOfOrganizationAssocInd
Formation1993FormationYr
Legal Domicile StateMNLegalDomicileStateCd
Activity Or MissionTO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.ActivityOrMissionDesc
Voting Members Governing Body21VotingMembersGoverningBodyCnt
Voting Members Independent21VotingMembersIndependentCnt
Total Employee27TotalEmployeeCnt
Total Volunteers710TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,746,141PYContributionsGrantsAmt
CY Contributions Grants$4,222,546CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$24,349PYInvestmentIncomeAmt
CY Investment Income$31,955CYInvestmentIncomeAmt
PY Other Revenue$202,392PYOtherRevenueAmt
CY Other Revenue$157,298CYOtherRevenueAmt
PY Total Revenue$3,972,882PYTotalRevenueAmt
CY Total Revenue$4,411,799CYTotalRevenueAmt
PY Grants And Similar Paid$0PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$0CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,513,093PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,600,498CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$575,218CYTotalFundraisingExpenseAmt
PY Other Expenses$2,358,071PYOtherExpensesAmt
CY Other Expenses$2,387,230CYOtherExpensesAmt
PY Total Expenses$3,871,164PYTotalExpensesAmt
CY Total Expenses$3,987,728CYTotalExpensesAmt
PY Revenues Less Expenses$101,718PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$424,071CYRevenuesLessExpensesAmt
Total Assets BOY$3,345,424TotalAssetsBOYAmt
Total Assets EOY$3,808,457TotalAssetsEOYAmt
Total Liabilities BOY$345,738TotalLiabilitiesBOYAmt
Total Liabilities EOY$346,577TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,999,686NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$3,461,880NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$2,019,344ExpenseAmt
DescCARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$769,093ExpenseAmt
DescRESEARCH - THE ALS ASSOCIATION, MINNESOTA/ NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. THE ALS ASSOCIATION HAS INVESTED $128 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 25 YEARS THE MINNESOTA /NORTH DAKOTA /SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $4.5 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING 113 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$323,051ExpenseAmt
DescPUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA AND EVENTS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$3,111,488TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To Organizations0GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document15IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee27EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible ContributionsYes (1)NondeductibleContributionsInd
Nondeductible Contri DisclYes (1)NondeductibleContriDisclInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members21GoverningBodyVotingMembersCnt
Independent Voting Member21IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJENNIFER HJELLEPersonNm
Phone6126720484PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1333 WASHINGTON AVE N STE 105AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55401ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (25 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
BILL MCCARTHY
PRESIDENT2.00Yes (X)Yes (X)$0$0$0
GRANT LANDER
TREASURER2.00Yes (X)Yes (X)$0$0$0
CLAY AHRENS
SECRETARY2.00Yes (X)Yes (X)$0$0$0
JORDAN SING
VICE PRESIDENT2.00Yes (X)Yes (X)$0$0$0
STEVE KRAUS
BOARD MEMBER1.00Yes (X)$0$0$0
MARY ELLEN LEARY
BOARD MEMBER1.00Yes (X)$0$0$0
DAVID LAMM
BOARD MEMBER1.00Yes (X)$0$0$0
BRENDA OLSON
BOARD MEMBER1.00Yes (X)$0$0$0
ALLEN GERTEN
BOARD MEMBER1.00Yes (X)$0$0$0
KRISTI WAITE
BOARD MEMBER1.00Yes (X)$0$0$0
PHILIP ALBERT
BOARD MEMBER1.00Yes (X)$0$0$0
BLAKE HASTINGS
BOARD MEMBER1.00Yes (X)$0$0$0
JAN NELSON
BOARD MEMBER1.00Yes (X)$0$0$0
ANN STOCKMAN
BOARD MEMBER1.00Yes (X)$0$0$0
EZGI TIRYAKI
BOARD MEMBER1.00Yes (X)$0$0$0
GREG CARR
BOARD MEMBER1.00Yes (X)$0$0$0
KERRI GORDON
BOARD MEMBER1.00Yes (X)$0$0$0
TINA LINNE
BOARD MEMBER1.00Yes (X)$0$0$0
JEREMY RICE
BOARD MEMBER1.00Yes (X)$0$0$0
DAVID WALK
BOARD MEMBER1.00Yes (X)$0$0$0
MARYBETH WOLLAK
BOARD MEMBER1.00Yes (X)$0$0$0
JENNIFER HJELLE
EXECUTIVE DIRECTOR40.00$134,655$0$0Yes (X)
LISA KRONK
RN CARE SERVICES COORDINAT40.00$106,819$0$0Yes (X)
MARRIANNE KEUHN
VICE PRESIDENT CARE SERVICES40.00$108,758$0$0Yes (X)
RYAN STAUFF
VICE PRESIDENT DEVELOPMENT40.00$104,127$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$454,359TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K4IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$2,149,391FundraisingAmt
All Other Contributions$2,073,155AllOtherContributionsAmt
Noncash Contributions$766,354NoncashContributionsAmt
Total Contributions$4,222,546TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$20,334TotalRevenueColumnAmt
Exclusion$20,334ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$284,843SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$273,222SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$11,621SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,621TotalRevenueColumnAmt
Exclusion$11,621ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$402,889FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$2,149,391ContriRptFundraisingEventAmt
Fundraising Direct Expenses$484,981FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$82,092TotalRevenueColumnAmt
Exclusion-$82,092ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$241,949GamingGrossIncomeAmt
Gaming Direct Expenses$2,559GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$239,390TotalRevenueColumnAmt
Exclusion$239,390ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,411,799TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$189,253ExclusionAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,336,720TotalAmt
Program Services$789,775ProgramServicesAmt
Management And General$177,689ManagementAndGeneralAmt
Fundraising$369,256FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$35,853TotalAmt
Program Services$21,183ProgramServicesAmt
Management And General$4,766ManagementAndGeneralAmt
Fundraising$9,904FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$97,617TotalAmt
Program Services$57,675ProgramServicesAmt
Management And General$12,976ManagementAndGeneralAmt
Fundraising$26,966FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$130,308TotalAmt
Program Services$76,990ProgramServicesAmt
Management And General$17,322ManagementAndGeneralAmt
Fundraising$35,996FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$15,857TotalAmt
Fundraising$15,857FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$49,861TotalAmt
Program Services$38,774ProgramServicesAmt
Management And General$8,543ManagementAndGeneralAmt
Fundraising$2,544FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$1,440TotalAmt
Program Services$720ProgramServicesAmt
Fundraising$720FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$125,954TotalAmt
Program Services$74,186ProgramServicesAmt
Management And General$16,190ManagementAndGeneralAmt
Fundraising$35,578FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$68,506TotalAmt
Program Services$33,259ProgramServicesAmt
Management And General$3,041ManagementAndGeneralAmt
Fundraising$32,206FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$228,607TotalAmt
Program Services$190,659ProgramServicesAmt
Management And General$12,115ManagementAndGeneralAmt
Fundraising$25,833FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$551,246TotalAmt
Program Services$545,974ProgramServicesAmt
Management And General$2,636ManagementAndGeneralAmt
Fundraising$2,636FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmt
RESEARCH$652,960$652,960
RESPITE CARE$223,585$223,585
LOAN CLOSET EQUIPMENT$188,835$188,835
ALS CLINIC EXPENSE$95,681$95,681

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$184,698TotalAmt
Program Services$121,232ProgramServicesAmt
Management And General$45,744ManagementAndGeneralAmt
Fundraising$17,722FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,987,728TotalAmt
Program Services$3,111,488ProgramServicesAmt
Management And General$301,022ManagementAndGeneralAmt
Fundraising$575,218FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$221,267BOYAmt
EOY$361,579EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$2,255,668BOYAmt
EOY$2,327,396EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$24,547BOYAmt
EOY$14,560EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$25,714BOYAmt
EOY$14,344EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$2,690,328LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,602,760LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$815,218BOYAmt
EOY$1,087,568EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$3,010BOYAmt
EOY$3,010EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$3,345,424BOYAmt
EOY$3,808,457EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$160,440BOYAmt
EOY$148,328EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$185,298BOYAmt
EOY$198,249EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$345,738BOYAmt
EOY$346,577EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,975,139BOYAmt
EOY$3,447,320EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$24,547BOYAmt
EOY$14,560EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,999,686BOYAmt
EOY$3,461,880EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,345,424BOYAmt
EOY$3,808,457EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$424,071ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$38,123NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,010,655CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,020,296CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,391,233CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,746,141CurrentTaxYearMinus1YearAmt
Current Tax Year$4,222,546CurrentTaxYearAmt
Total$19,390,871TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,010,655CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,020,296CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,391,233CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,746,141CurrentTaxYearMinus1YearAmt
Current Tax Year$4,222,546CurrentTaxYearAmt
Total$19,390,871TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$49,924SubstantialContributorsTotAmt
Public Support Total170$19,340,947PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,748CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,994CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,683CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$15,522CurrentTaxYearMinus1YearAmt
Current Tax Year$20,334CurrentTaxYearAmt
Total$47,281TotalAmt
FieldValueIRS element (for citing)
Total Support$19,438,152TotalSupportAmt
Gross Receipts Rltd Activities$2,341,648GrossReceiptsRltdActivitiesAmt
Public Support CY1700.99500PublicSupportCY170Pct
Public Support PY1700.99500PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$17,582FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$17,582FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,741,539FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,759,121FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$337,956FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$84,489FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$311,216CurrentYearMinus3Amt
Current Year Minus2$329,485CurrentYearMinus2Amt
Current Year Minus1$332,736CurrentYearMinus1Amt
Current Year$337,956CurrentYearAmt
Total$1,311,393TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$1,967,090LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$9,666CurrentYearMinus3Amt
Current Year Minus2$12,051CurrentYearMinus2Amt
Current Year Minus1$12,713CurrentYearMinus1Amt
Current Year$17,582CurrentYearAmt
Total$52,012TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$77,804CurrentYearMinus3Amt
Current Year Minus2$82,371CurrentYearMinus2Amt
Current Year Minus1$83,184CurrentYearMinus1Amt
Current Year$84,489CurrentYearAmt
Total$327,848TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$491,772GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$2,690,328OtherCostOrOtherBasisAmt
Depreciation$1,602,760DepreciationAmt
Book Value$1,087,568BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,087,568TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDescAmtAmt
DUE TO NATIONAL ASSOCIATION$179,715
DEFERRED RENT$9,815
CAPITAL LEASE OBLIGATION$8,719
FieldValueIRS element (for citing)
Total Liability$198,249TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,775,247TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$38,123NetUnrealizedGainsInvstAmt
Other Revenue$325,325OtherRevenueAmt
Revenue Not Reported$363,448RevenueNotReportedAmt
Revenue Subtotal$4,411,799RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$4,411,799TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$4,313,053TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$325,325OtherExpensesIncludedAmt
Expenses Not Reported$325,325ExpensesNotReportedAmt
Expenses Subtotal$3,987,728ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,987,728TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ASSOCIATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ASSOCIATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE.
PART XI, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSES 325,325.
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSES 325,325.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1WALK TO DEFEAT ALSEvent1Nm
Gross Receipts Event1$942,784GrossReceiptsEvent1Amt
Charitable Contri Event1$931,104CharitableContriEvent1Amt
Gross Revenue Event1$11,680GrossRevenueEvent1Amt
Other Direct Expenses Event1$88,149OtherDirectExpensesEvent1Amt
Event2BLACK WOODS BLIZZARDEvent2Nm
Gross Receipts Event2$942,509GrossReceiptsEvent2Amt
Charitable Contri Event2$821,562CharitableContriEvent2Amt
Gross Revenue Event2$120,947GrossRevenueEvent2Amt
Other Direct Expenses Event2$246,308OtherDirectExpensesEvent2Amt
Other Events Total6OtherEventsTotalCnt
Gross Receipts Other Events$666,987GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$396,725CharitableContriOtherEventsAmt
Gross Revenue Other Events$270,262GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$150,524OthDirectExpnssOtherEventsAmt
Gross Receipts Total$2,552,280GrossReceiptsTotalAmt
Charitable Contributions Tot$2,149,391CharitableContributionsTotAmt
Gross Revenue Total Events$402,889GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$484,981OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$484,981DirectExpenseSummaryEventsAmt
Net Income Summary-$82,092NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$241,949GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming$2,559OthDirectExpnssOtherGamingAmt
Volunteer Labor Other Gaming0VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming$241,949GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming$2,559OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$2,559DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$239,390NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedMNStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With Nonmembers0GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksJENNIFER HJELLEIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1333 NORTH WASHINGTON AVENUE SUITE 1AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55401ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonJENNIFER HJELLEGamingManagerPersonNm
Gaming Manager Services ProvRECORD KEEPING, MONEY COUNTING, AND BANK DEPOSITS FOR RAFFLES USED FOR FUNDRAISING PURPOSESGamingManagerServicesProvTxt
Charitable Distribution Rqr0CharitableDistributionRqrInd

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMEDICAL EQUIPMENTDesc
Contribution310ContributionCnt
Noncash Contributions Rpt F990$766,354NoncashContributionsRptF990Amt
Method Of Determining RevenuesVALUATIONMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART III, LINE 4AAMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIG'S DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS IS USUALLY TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PATIENTS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT 20 PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS ARE DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. ON AVERAGE IN NORTH DAKOTA, ONE PERSON IS DIAGNOSED AND ONE PERSON DIES FROM ALS EACH MONTH. ON AVERAGE IN SOUTH DAKOTA, ONE TO TWO PEOPLE ARE DIAGNOSED AND DIE OF ALS EACH MONTH. AT ANY GIVEN TIME, THERE ARE APPROXIMATELY 450 PEOPLE LIVING WITH ALS IN MINNESOTA, NORTH DAKOTA AND SOUTH DAKOTA. CHAPTER PROGRAMS INCLUDE: 1. HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ASSISTS INDIVIDUALS WITH ALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE AND/OR WHO ARE HAVING DIFFICULTY USING A COMPUTER AND OTHER ELECTRONIC DEVICES IN THEIR HOME. THE PROGRAM LOANS DEVICES AND EQUIPMENT THAT ARE NOT COVERED BY MEDICAL INSURANCE AND ARE AVAILABLE IN THE INVENTORY. LAST FISCAL YEAR 294 PEOPLE USED THIS PROGRAM AND OVER 520 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2. JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES MUCH NEEDED RESPITE TO A FULL-TIME FAMILY CAREGIVER OF A PERSON WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS ALLOWING THE FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR 7,124 RESPITE HOURS FOR 104 FAMILIES. 3. DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY INDIVIDUALS AND THEIR FAMILIES, AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER'S SERVICE AREA. EXAMPLES OF EQUIPMENT ARE: HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 414 PEOPLE UTILIZED THIS PROGRAM. MORE THAN 1,543 PIECES OF EQUIPMENT WENT IN AND OUT OF THE CLOSET DURING THIS TIME. 4. OCCUPATIONAL THERAPY(OT)/PHYSICAL THERAPY(PT) PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PT'S FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, AND TRAINING IN RANGE-OF-MOTION AND STRETCHING EXERCISES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 36 PEOPLE RECEIVED HOME VISITS THROUGH THIS PROGRAM. 5. SUPPORT GROUPS: THERE ARE MONTHLY ALS-SPECIFIC SUPPORT GROUPS LOCATED THROUGHOUT OUR SERVICE AREA; INCLUDING AN ONLINE GROUP FOR INDIVIDUALS WITH ALS WHO ARE UNABLE TO TRAVEL TO A MEETING. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, ENSURING THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. 6. FAMILY ASSISTANCE PROGRAM: THE PURPOSE OF THIS PROGRAM IS TO INCREASE THE QUALITY OF LIFE FOR THOSE WITH ALS BY FREEING UP THEIR TIME AND ENERGY FOR MORE ENJOYABLE THINGS. VOLUNTEERS HUMBLY PERFORM DAILY TASKS OF LIVING LIKE CLEANING, RUNNING ERRANDS, MAKING MEALS, AND MUCH MORE. LAST YEAR, 81 VOLUNTEERS (GIVING 2,289 HOURS OF THEIR TIME) LIFTED BURDENS IN THE LIVES OF 63 PEOPLE WITH ALS AND THEIR FAMILIES. 7. ADVOCACY: THE CHAPTER WORKS, ON A NATIONAL AND STATE LEVEL, TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH THE DISEASE. THESE ADVOCACY EFFORTS INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS, AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8. OTHER SERVICES: THE CHAPTER'S CARE SERVICES STAFF PROVIDES EDUCATION AND INFORMATION ABOUT ALS TO PERSONS WITH THE DISEASE, THEIR FAMILY, FRIENDS AND HEALTH CARE PROFESSIONALS. THE CARE SERVICES STAFF CONSISTS OF PROFESSIONALS FROM NURSING, SOCIAL WORK, OCCUPATIONAL THERAPY AND CHAPLAINCY. THE CARE SERVICES STAFF ARE AVAILABLE TO INDIVIDUALS WITH ALS AND THEIR FAMILY FOR CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND TO PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER HOUSES A LENDING LIBRARY AND PUBLISHES A MONTHLY ELECTRONIC NEWSLETTER.
FORM 990, PART VI, SECTION B, LINE 11BTHE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL.
FORM 990, PART VI, SECTION B, LINE 12CALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS.
FORM 990, PART VI, SECTION B, LINE 15A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE HUMAN RESOURCES COMMITTEE OR BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME (WITH INPUT FROM THE FINANCE COMMITTEE). FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEWS THE VP OF CARE SERVICES AND THE VP OF DEVELOPMENT ANNUALLY WITH INPUT FROM THE STAFF AND BOARD OF DIRECTORS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS INCLUDING CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST.
FORM 990, PART XII, LINE 2C:THE PROCESS HAS NOT CHANGED FROM PRIOR YEARS.

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