FURP.ORG / PUBLIC DATA EXPLORER

ALPORT SYNDROME FOUNDATION INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
ALPORT SYNDROME FOUNDATION INC (EIN 20-8237159)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-10-05
IRS object ID
202512789349300801
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-10-05T02:52:34-00:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN822851604PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SECHLER MORGAN CPAS PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line12418 W BARROW DRIVEAddressLine1Txt
CityCHANDLERCityNm
State AbbreviationAZStateAbbreviationCd
ZIP85224ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN208237159EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ALPORT SYNDROME FOUNDATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlALPOBusinessNameControlTxt
Phone4808003510PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 4130AddressLine1Txt
CitySCOTTSDALECityNm
State AbbreviationAZStateAbbreviationCd
ZIP852614130ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonDANIEL KILPATRICKPersonNm
Person TitleTREASURERPersonTitleTxt
Phone4808003510PhoneNum
Signature2025-09-29SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKRISTINA MORGANPreparerPersonNm
PTINP01370742PTIN
Phone6022302700PhoneNum
Preparation2025-08-03PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDANIEL KILPATRICKPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 4130AddressLine1Txt
CitySCOTTSDALECityNm
State AbbreviationAZStateAbbreviationCd
ZIP85261ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,402,656GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressALPORTSYNDROME.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2007FormationYr
Legal Domicile StateAZLegalDomicileStateCd
Activity Or MissionTO IMPROVE THE LIVES OF THOSE AFFECTED BY ALPORT SYNDROME THROUGH EDUCATION, EMPOWERMENT, ADVOCACY, AND FUNDING RESEARCH. THE FOUNDATIONS VISION IS TO MAKE ALPORT SYNDROME A TREATABLE DISEASE AND FIND A CURE.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee5TotalEmployeeCnt
Total Volunteers95TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$953,036PYContributionsGrantsAmt
CY Contributions Grants$1,063,256CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$63,369PYInvestmentIncomeAmt
CY Investment Income$131,479CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$1,016,405PYTotalRevenueAmt
CY Total Revenue$1,194,735CYTotalRevenueAmt
PY Grants And Similar Paid$111,151PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$324,631CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$151,973PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$376,180CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$25,179CYTotalFundraisingExpenseAmt
PY Other Expenses$349,410PYOtherExpensesAmt
CY Other Expenses$303,137CYOtherExpensesAmt
PY Total Expenses$612,534PYTotalExpensesAmt
CY Total Expenses$1,003,948CYTotalExpensesAmt
PY Revenues Less Expenses$403,871PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$190,787CYRevenuesLessExpensesAmt
Total Assets BOY$2,669,586TotalAssetsBOYAmt
Total Assets EOY$2,817,931TotalAssetsEOYAmt
Total Liabilities BOY$31,167TotalLiabilitiesBOYAmt
Total Liabilities EOY$16,538TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,638,419NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,801,393NetAssetsOrFundBalancesEOYAmt
MissionTHE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$916,993ExpenseAmt
Grant$324,631GrantAmt
Desc570 NEW MEMBERS JOINED ASF. 527 PATIENTS ENROLLED IN THE ASF ALPORT PATIENT REGISTRY. 800 NEW MEMBERS JOINED THE ASF FACEBOOK SUPPORT GROUP. 89,000 WEBSITE VIEWS. 18,000 ASF YOUTUBE CHANNEL VIEWS. HOSTED A 2-DAY IN-PERSON MEETING FOR 123 PATIENT/FAMILY MEMBERS, WITH PARTIAL FINANCIAL ASSISTANCE PROVIDED TO 57 INDIVIDUALS FOR TRAVEL. 200 HOURS OF STAFF TIME SPENT MEETING VIRTUALLY WITH PATIENTS/CAREGIVERS. HIRED A PART-TIME RESEARCH DIRECTOR TO SUPPORT THE PHARMACEUTICAL AND BIOTECH PIPELINE. FACILITATED 974 PATIENT VOLUNTEER HOURS AND 114 CLINICIAN VOLUNTEER HOURS. PARTNERED WITH ENYO PHARMACEUTICALS TO PROVIDE PATIENT INSIGHTS INTO CLINICAL TRIAL DESIGN AND TO SHARE INFORMATION ABOUT THE PHASE-2 ALPESTRIA-1 STUDY, WHICH FULLY ENROLLED AHEAD OF SCHEDULE.Desc
Total Program Service Expenses$916,993TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee5EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1LAUREL FRISBYBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone4808003510PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 4130AddressLine1Txt
CitySCOTTSDALECityNm
State AbbreviationAZStateAbbreviationCd
ZIP85261ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LISA BONEBRAKE
EXECUTIVE DIRECTOR065.00Yes (X)$105,000$0$0
ANDREW KRONENBERG
BOARD CHAIR010.00Yes (X)$0$0$0Yes (X)
RYAN LINDER
SECRETARY002.50Yes (X)$0$0$0Yes (X)
DANIEL KILPATRICK
TREASURER005.00Yes (X)$0$0$0Yes (X)
SHARON LAGAS
CO-FOUNDER, DIRECTOR PAST CHAIR005.00Yes (X)$0$0$0Yes (X)
AMY RHODES
DIRECTOR005.00$0$0$0Yes (X)
DECEMBER WEST
DIRECTOR001.00$0$0$0Yes (X)
MARTY DUNLEAVY
DIRECTOR001.00$0$0$0Yes (X)
PHILLIP KUMNICK
DIRECTOR001.00$0$0$0Yes (X)
STEPHEN MALACH
DIRECTOR001.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$105,000TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$1,063,256AllOtherContributionsAmt
Noncash Contributions$44,162NoncashContributionsAmt
Total Contributions$1,063,256TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$95,456TotalRevenueColumnAmt
Exclusion$95,456ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$243,944SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$207,921SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$36,023SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$36,023TotalRevenueColumnAmt
Exclusion$36,023ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,194,735TotalRevenueColumnAmt
Exclusion$131,479ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$314,631TotalAmt
Program Services$314,631ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$10,000TotalAmt
Program Services$10,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$105,000TotalAmt
Program Services$93,362ProgramServicesAmt
Management And General$8,881ManagementAndGeneralAmt
Fundraising$2,757FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$242,828TotalAmt
Program Services$215,913ProgramServicesAmt
Management And General$20,540ManagementAndGeneralAmt
Fundraising$6,375FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$28,352TotalAmt
Program Services$25,210ProgramServicesAmt
Management And General$2,398ManagementAndGeneralAmt
Fundraising$744FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$22,371TotalAmt
Program Services$5,593ProgramServicesAmt
Management And General$15,659ManagementAndGeneralAmt
Fundraising$1,119FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Fees For Services Prof FundraisingFeesForServicesProfFundraising

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$3,455TotalAmt
Program Services$3,124ProgramServicesAmt
Management And General$253ManagementAndGeneralAmt
Fundraising$78FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$6,474TotalAmt
Fundraising$6,474FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$29,635TotalAmt
Program Services$15,155ProgramServicesAmt
Management And General$8,578ManagementAndGeneralAmt
Fundraising$5,902FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$99,589TotalAmt
Program Services$99,589ProgramServicesAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$48,358TotalAmt
Program Services$43,054ProgramServicesAmt
Management And General$4,048ManagementAndGeneralAmt
Fundraising$1,256FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$77,636TotalAmt
Program Services$77,474ProgramServicesAmt
Management And General$98ManagementAndGeneralAmt
Fundraising$64FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$11,198TotalAmt
Program Services$9,957ProgramServicesAmt
Management And General$947ManagementAndGeneralAmt
Fundraising$294FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$4,421TotalAmt
Program Services$3,931ProgramServicesAmt
Management And General$374ManagementAndGeneralAmt
Fundraising$116FundraisingAmt

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,003,948TotalAmt
Program Services$916,993ProgramServicesAmt
Management And General$61,776ManagementAndGeneralAmt
Fundraising$25,179FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$601,572BOYAmt
EOY$456,229EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$20,032BOYAmt
EOY$41,027EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$3,498EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$29,487BOYAmt
EOY$46,579EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,473LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$491LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$982EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$1,888,171BOYAmt
EOY$2,141,999EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$130,324BOYAmt
EOY$127,617EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,669,586BOYAmt
EOY$2,817,931EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$17,167BOYAmt
EOY$16,538EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$14,000BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$31,167BOYAmt
EOY$16,538EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,935,485BOYAmt
EOY$2,190,732EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$702,934BOYAmt
EOY$610,661EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,638,419BOYAmt
EOY$2,801,393EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,669,586BOYAmt
EOY$2,817,931EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$190,787ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$27,813NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$738,310CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$993,479CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$990,503CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$953,036CurrentTaxYearMinus1YearAmt
Current Tax Year$1,063,256CurrentTaxYearAmt
Total$4,738,584TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$738,310CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$993,479CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$990,503CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$953,036CurrentTaxYearMinus1YearAmt
Current Tax Year$1,063,256CurrentTaxYearAmt
Total$4,738,584TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$2,038,839SubstantialContributorsTotAmt
Public Support Total170$2,699,745PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$707CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$47CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$170CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$59,382CurrentTaxYearMinus1YearAmt
Current Tax Year$95,456CurrentTaxYearAmt
Total$155,762TotalAmt
FieldValueIRS element (for citing)
Total Support$4,894,346TotalSupportAmt
Gross Receipts Rltd Activities$1,157GrossReceiptsRltdActivitiesAmt
Public Support CY1700.55160PublicSupportCY170Pct
Public Support PY1700.51540PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$702,934BeginningYearBalanceAmt
Contributions$416,027ContributionsAmt
Grants Or Scholarships$314,631GrantsOrScholarshipsAmt
Other Expenditures$193,669OtherExpendituresAmt
End Year Balance$610,661EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$648,609BeginningYearBalanceAmt
Contributions$320,032ContributionsAmt
Grants Or Scholarships$97,151GrantsOrScholarshipsAmt
Other Expenditures$168,556OtherExpendituresAmt
End Year Balance$702,934EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$301,458BeginningYearBalanceAmt
Contributions$548,941ContributionsAmt
Grants Or Scholarships$180,644GrantsOrScholarshipsAmt
Other Expenditures$21,146OtherExpendituresAmt
End Year Balance$648,609EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$129,204BeginningYearBalanceAmt
Contributions$421,146ContributionsAmt
Grants Or Scholarships$230,568GrantsOrScholarshipsAmt
Other Expenditures$18,324OtherExpendituresAmt
End Year Balance$301,458EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$20,123BeginningYearBalanceAmt
Contributions$307,458ContributionsAmt
Grants Or Scholarships$178,254GrantsOrScholarshipsAmt
Other Expenditures$20,123OtherExpendituresAmt
End Year Balance$129,204EndYearBalanceAmt
FieldValueIRS element (for citing)
Term Endowment Balance EOY1.00000TermEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,473OtherCostOrOtherBasisAmt
Depreciation$491DepreciationAmt
Book Value$982BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$982TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (2 entries)

DescDesc
Financial derivatives and other financial products
Closely-held equity interests

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescFederal income taxesDesc
FieldValueIRS element (for citing)
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,172,908TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$27,813NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$5,986DonatedServicesAndUseFcltsAmt
Revenue Not Reported-$21,827RevenueNotReportedAmt
Revenue Subtotal$1,194,735RevenueSubtotalAmt
Total Revenue Per Form990$1,194,735TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,009,934TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$5,986DonatedServicesUseFcltsAmt
Expenses Not Reported$5,986ExpensesNotReportedAmt
Expenses Subtotal$1,003,948ExpensesSubtotalAmt
Total Expenses Per Form990$1,003,948TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
V 4THE ORGANIZATIONS DONOR-RESTRICTED NET ASSETS WERE RESTRICTED FOR THE FOLLOWING TIME RESTRICTIONS ON CONTRIBUTIONS RECEIVABLE AND RESEARCH GRANTS.
X 2MANAGEMENT BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY INCOME TAX POSITIONS TAKEN, AND, AS SUCH, DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. THE FOUNDATION WOULD RECOGNIZE FUTURE ACCRUED INTEREST AND PENALTIES RELATED TO UNRECOGNIZED TAX BENEFITS AND LIABILITIES IN INCOME TAX EXPENSE IF SUCH INTEREST AND PENALTIES ARE INCURRED.

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
University of Michigan
1000 Victors Way Suite 1AAnn ArborMI48104386006309501c3$170,733Alport Syn ancillary natural history study
Univ of Washington at St Louis
One Brookings DriveSt LouisMO63130430653611501c3$132,835School of Medicine Alport Study in mice
Others under threshold
501c3$11,063Alport Syndrome research
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypePaul Silver ScholarshipsGrantTypeTxt
Recipient5RecipientCnt
Cash Grant$10,000CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I Line 1FOR RESEARCH FUNDING, ASF USES AN APPLICATION PROCESS ALONG WITH A PANEL OF OUTSIDE REVIEWERS WHICH EVALUATE GRANT APPLICATIONS ON THE SPECIFIC AIMS OF THE PROJECT, THE PROJECTS BACKGROUND AND SIGNIFICANCE, AND THE PROJECTS RESEARCH DESIGN ANDMETHODS.
Part I Line 2REPORTING REQUIREMENTS - WITHIN 60 DAYS OF THE END OF THE FUNDING PERIOD, IT IS REQUIRED THAT A TYPEWRITTEN REPORT BY THE PRINCIPAL INVESTIGATOR ON THE RESEARCH THAT RESULTED FROM THE ASF FUNDING SUMMARY WHICH CAN BE PUBLISHED BY ASF AS IS OR IN EDITED FORM MUST BE SUBMITTED. IF THE FUNDING IS FOR MORE THAN ONE YEAR, THEN A TYPE-WRITTEN PROGRESS REPORT MUST BE ISSUED BY THE PRINCIPAL INVESTIGATOR AT THE END OF EACH YEAR ON THE FUNDING COMMENCEMENT DATE ANNIVERSARY AND SENT TO ASF.
Part I Line 2ACCOUNTING REQUIREMENTS - A FINAL DETAILED ACCOUNTING OF THE FUNDS SPENT IS REQUIRED TO BE SENT TO ASF WITHIN 60 DAYS OF THE END OF THE FUNDING PERIOD. IF THE FUNDING PERIOD IS LONGER THAN ONE YEAR, THEN ANNUAL FINANCIAL REPORTS MUST BE FILED WITH ASF ON THE FUNDING COMMENCEMENT DATE ANNIVERSARY. AT THE END OF THE FUNDING PERIOD, ANY UNUSED FUNDS MUST BE RETURNED TO ASF, UNLESS A LETTEREXPLAINING THE SITUATION AND REQUESTING AN EXTENSION OF THE FUNDING PERIOD WITHOUT ADDITIONAL FUNDS IS SUBMITTED AT LEAST 90 DAYS PRIOR TO THE END OF THE FUNDING PERIOD AND APPROVED BY ASF.
Part I Line 2THE PAUL SILVER ENRICHMENT AWARD PROGRAM WAS ESTABLISHED IN THE MEMORY OF AN ALPORT SYNDROME PATIENT. RECIPIENTS ARE SELECTED BY A COMMITTEE COMPRISED OF 1 BOARD MEMBER, 1 SILVER FAMILY MEMBER, AND 2 FRIENDS OF THE SILVER FAMILY. RECIPIENTS ARE SELECTED BASED ON ESSAYS AND WRITTEN APPLICATIONS. RECIPIENTS PROVIDE WRITTEN REPORTS AND A VIDEO OF HOW FUNDS WERE SPENT. FAMILY OF BOARD MEMBERS AND STAFF ARE NOT ELIGIBLE TO APPLY.
Part III Line 1, COL BTHE NUMBER OF RECIPIENTS REFLECTS THE NUMBER OF INDIVIDUALS ASSISTED WITH SCHOLARSHIPS DURING THE YEAR.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution4ContributionCnt
Noncash Contributions Rpt F990$44,162NoncashContributionsRptF990Amt
Method Of Determining RevenuesAVG DAY TRADE FMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I Line 9FormAndLineReferenceDesc
ExplanationCOLUMN B REPRESENTS THE TOTAL NUMBER OF DONORS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bTHE TREASURER OF THE ORGANIZATION DISTRIBUTES A PDF COPY OF 990 RETURN TO ALL BOARD MEMBERS FOR A REVIEW AND COMMENT PRIOR TO BEING FILED.
Form 990, Part VI, Section B, Line 12cAT EACH BOARD AND COMMITTEE MEETING, IF THERE IS A DISCUSSION OF SELECTING OR ENGAGING A VENDOR OR SERVICE PROVIDER, ALL IN ATTENDANCE ARE ASKED TO RECUSE THEMSELVES FROM THIS DISCUSSION IF THERE COULD BE A PERCEIVED CONFLICT. ANNUALLY, THE ORGANIZATION REVIEWS AND DISCUSSES THE CONFLICT OF INTEREST POLICY AND REQUESTS THAT EACH BOARD MEMBER LIST AND ACKNOWLEDGE ANY KNOWN CONFLICTS.
Form 990, Part VI, Section B, Line 15THE BOARD MAY HIRE AND COMPENSATE INDIVIDUALS FOR NECESSARY SERVICES RENDERED TO THE ORGANIZATION SO LONG AS SUCH COMPENSATION IS REASONABLE. THE BOARD SHALL DETERMINE REASONABLE COMPENSATION AMOUNTS BASED UPON COMPENSATION PAID BY SIMILARLY SITUATED NONPROFITS FOR LIKE SERVICES. THE BOARD MAY RELY UPON SALARY STUDIES, AS WELL AS DATA REGARDING COMPENSATION PAID BY AT LEAST THREE SPECIFIC PEER ORGANIZATIONS OF SIMILAR SIZE TO DETERMINE REASONABLE COMPENSATION. THE TERMS OF SUCH COMPENSATION, INFORMATION RELIED UPON TO DETERMINE THE TERMS OF ANY COMPENSATION, AND ITS SOURCE SHALL BE RECORDED IN WRITING. AN INDIVIDUAL WHO IS A VOTING MEMBER OF THE BOARD OR A COMMITTEE WITH THE BOARD DELEGATED POWERS AND WHO RECEIVES COMPENSATION, DIRECTLY OR INDIRECTLY, FROM THE FOUNDATION FOR SERVICES IS PRECLUDED FROM PARTICIPATING IN DISCUSSIONS OR VOTES PERTAINING TO THEIR OWN COMPENSATION.
Form 990, Part VI, Section C, Line 19THE ORGANIZATION WILL PROVIDE, IN A TIMELY MANNER, FINANCIAL STATEMENTS AND GOVERNING DOCUMENTS INCLUDING ITS CONFLICT OF INTEREST POLICY WHEN REQUESTED IN WRITING OR IN PERSON.