BETA

NATIONAL FABRY DISEASE FOUNDATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
NATIONAL FABRY DISEASE FOUNDATION (EIN 20-2944028)
Tax period
2017-06-01 to 2018-05-31
Filed
2019-09-19
IRS object ID
201922629349300207
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-09-19T08:16:06-05:00ReturnTs
Tax Period End2018-05-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN561304727PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BLACKMAN & SLOOP CPAS PABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11414 RALEIGH RD SUITE 300AddressLine1Txt
CityCHAPEL HILLCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27517ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-06-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN202944028EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NATIONAL FABRY DISEASE FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone8006519131PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14301 CONNECTICUT AVE NW NO 404AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20008ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonGERALD WALTERPersonNm
Person TitleBOARD CHAIRPersonTitleTxt
Phone8006519131PhoneNum
Signature2019-09-16SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonROBIN MCDUFFIEPreparerPersonNm
PTINP00098611PTIN
Phone9199428700PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address45.20.211.129IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-09-16IPDt
IP Tm08:46:56IPTm
IP TimezoneEDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id0D49E847F3114583DAD4C942B4F602A16906BFDEAtSubmissionCreationDeviceId
At Submission Filing Device Id0D49E847F3114583DAD4C942B4F602A16906BFDEAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerGERALD WALTERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1318 FOX HILL FARM DRIVEAddressLine1Txt
CityHILLSBOROUGHCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27278ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$508,472GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressHTTP://WWW.FABRYDISEASE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2005FormationYr
Legal Domicile StateVALegalDomicileStateCd
Activity Or MissionTO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND TREATED IN TIME TO AVOID A DIMINISHED QUALITY OF LIFE AND LIFE THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS; AND TO PROMOTE RESEARCH TO IMPROVE TREATMENT FOR FABRY DISEASE.ActivityOrMissionDesc
Voting Members Governing Body8VotingMembersGoverningBodyCnt
Voting Members Independent7VotingMembersIndependentCnt
Total Employee2TotalEmployeeCnt
Total Volunteers57TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$320,480PYContributionsGrantsAmt
CY Contributions Grants$508,472CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$0PYInvestmentIncomeAmt
CY Investment Income$0CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$320,480PYTotalRevenueAmt
CY Total Revenue$508,472CYTotalRevenueAmt
PY Grants And Similar Paid$111,670PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$112,532CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$130,300PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$131,948CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$7,007CYTotalFundraisingExpenseAmt
PY Other Expenses$178,251PYOtherExpensesAmt
CY Other Expenses$139,665CYOtherExpensesAmt
PY Total Expenses$420,221PYTotalExpensesAmt
CY Total Expenses$384,145CYTotalExpensesAmt
PY Revenues Less Expenses-$99,741PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$124,327CYRevenuesLessExpensesAmt
Total Assets BOY$133,009TotalAssetsBOYAmt
Total Assets EOY$258,930TotalAssetsEOYAmt
Total Liabilities BOY$0TotalLiabilitiesBOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$133,009NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$258,930NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$126,815ExpenseAmt
Grant$210GrantAmt
DescEDUCATION AND AWARENESS: EARLY INTERVENTION IMPROVES MANY ADVERSE QUALITY-OF-LIFE SYMPTOMS AND EXTENDS PATIENTS' LIFE EXPECTANCY. OUR FAMILY AND PHYSICIAN EDUCATION PROGRAMS HELP TO ENSURE CHILDREN AND ADULTS WITH FABRY DISEASE ARE RECOGNIZED AND DIAGNOSED AT THE EARLIEST AGE POSSIBLE TO RECEIVE APPROPRIATE MANAGEMENT AND TREATMENT OF THEIR DISEASE. OUR PUBLIC EDUCATION PROGRAM IS DESIGNED TO REACH UNDIAGNOSED INDIVIDUALS BY RAISING AWARENESS OF THE SYMPTOMS OF FABRY DISEASE. WE PROVIDED EDUCATION AND AWARENESS ABOUT FABRY DISEASE IN VARIOUS FORMS SUCH AS OUR ROBUST EDUCATIONAL WEBSITE AT WWW.FABRYDISEASE.ORG; OUR ANNUAL FAMILY EDUCATION CONFERENCE; VARIOUS MATERIALS SUCH AS AN EDUCATIONAL FABRY SYMPTOMS PRESENTATION, HAND-OUT AND CALENDAR, A FABRY COMMUNITY LANDSCAPE DOCUMENT, FREQUENT (OFTEN DAILY) EDUCATIONAL POSTS ON OUR FACE BOOK PAGE OF OVER 2,000 FOLLOWERS, PERIODIC TWEETS ON OUR TWITTER PAGE, AND DAILY ASSISTANCE VIA EMAIL AND PHONE. WE ARE IN CONTACT WITH OVER 1,200 ADULTS WITH FABRY DISEASE BY EMAIL. OUR PATIENT-REPORTED-OUTCOMES SURVEY PROGRAM YIELDED 200 TO 400 HUNDRED PARTICIPANTS PER SURVEY. WE FACILITATED OBTAINING ABOUT 40 OF 50 STATE GOVERNOR'S PROCLAMATIONS FOR APRIL FABRY DISEASE AWARENESS MONTH; EVIDENCE INDICATES THAT 10-20 TIMES AS MANY PEOPLE HAVE FABRY DISEASE AS ARE CURRENTLY DIAGNOSED AND UNDERGOING TREATMENT.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$231,648ExpenseAmt
Grant$112,322GrantAmt
DescCOMMUNITY SUPPORT: PROVIDE SUPPORT AND ASSISTANCE TO INDIVIDUALS WITH FABRY DISEASE AND THEIR FAMILIES. OUR COMMUNITY SUPPORT PROGRAM IS DIRECTED TO PEOPLE LIVING WITH FABRY DISEASE AND THEIR FAMILIES. WE PROVIDED DAILY PHONE CALLS, EMAIL AND WRITTEN CORRESPONDENCE TO SUPPORT INDIVIDUALS AND FAMILIES WITH FABRY DISEASE. WE PROVIDED PATIENTS AND FAMILIES A FREE 24/7 HOTLINE FOR COUNSELING AND REFERRALS, PURCHASED MANY JOURNAL ARTICLES TO SHARE WITH THE COMMUNITY, PROVIDED TRANSPORTATION AND OTHER ASSISTANCE TO ATTEND FABRY EDUCATIONAL MEETINGS, PROVIDED FINANCIAL ASSISTANCE FOR ONE-TIME OR SHORT TERM NEEDS NOT COVERED BY OTHER PROGRAMS, AND PROVIDED MY-HEALTH-HANDBOOK-KITS FOR EMERGENCY SITUATIONS. WE FACILITATED TESTING FOR DIAGNOSES AND ACCESS TO TREATMENT. WE PROVIDED A FIND-A-FABRY-SPECIALIST SEARCHABLE DATABASE ON OUR WEBSITE. WE CONDUCTED AN ANNUAL CAMP FOR CHILDREN AND FAMILIES TO CONNECT AND SHARE EXPERIENCES. WE PROVIDED ASSISTANCE TO BRING 32 FAMILIES TO CAMP FROM ACROSS THE COUNTRY. BECAUSE THE DISEASE IS RARE, MANY PATIENTS AND THEIR FAMILIES DO NOT KNOW ANYONE ELSE LIVING WITH FABRY DISEASE. THE MUTUAL SUPPORT CONNECTIONS MADE THROUGH OUR CAMP PROGRAM ARE INVALUABLE WITHIN THE COMMUNITY.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$358,463TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To Organizations0GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee2EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members8GoverningBodyVotingMembersCnt
Independent Voting Member7IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of Committees0MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1GERALD WALTERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8006519131PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 1325AddressLine1Txt
CityCARRBOROCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27510ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (8 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
DOUGLAS WARNOCK
DIRECTOR1.00Yes (X)$0$0$0
STEVEN ROTHMAN
DIRECTOR1.00Yes (X)$0$0$0
ELIZABETH GAFFIN
DIRECTOR1.00Yes (X)$0$0$0
TRACEY KRASNOW
DIRECTOR1.00Yes (X)$0$0$0
GERALD WALTER
CHAIR40.00$109,200$0$0Yes (X)
DEREK HALBERG
VICE CHAIR1.00$0$0$0Yes (X)
TRACY MYATT
SECRETARY1.00$0$0$0Yes (X)
MELANIE WILSON
TREASURER1.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$109,200TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$508,472AllOtherContributionsAmt
Total Contributions$508,472TotalContributionsAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$508,472TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$112,532TotalAmt
Program Services$112,532ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$109,200TotalAmt
Program Services$103,740ProgramServicesAmt
Management And General$3,276ManagementAndGeneralAmt
Fundraising$2,184FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$13,368TotalAmt
Program Services$12,700ProgramServicesAmt
Management And General$401ManagementAndGeneralAmt
Fundraising$267FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$9,380TotalAmt
Program Services$8,911ProgramServicesAmt
Management And General$281ManagementAndGeneralAmt
Fundraising$188FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$22,705TotalAmt
Program Services$22,465ProgramServicesAmt
Management And General$240ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$16,358TotalAmt
Program Services$2,842ProgramServicesAmt
Management And General$9,568ManagementAndGeneralAmt
Fundraising$3,948FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$15,718TotalAmt
Program Services$14,172ProgramServicesAmt
Management And General$1,546ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$82,760TotalAmt
Program Services$81,101ProgramServicesAmt
Management And General$1,659ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$471TotalAmt
Management And General$471ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
PAYROLL SERVICE FEE$1,167$1,167
BANK FEES$420$420
OTHER EXPENSES$66$66

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$384,145TotalAmt
Program Services$358,463ProgramServicesAmt
Management And General$18,675ManagementAndGeneralAmt
Fundraising$7,007FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$133,009BOYAmt
EOY$257,808EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$5,899LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$5,199LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$700EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$422EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$133,009BOYAmt
EOY$258,930EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$133,009BOYAmt
EOY$258,930EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$133,009BOYAmt
EOY$258,930EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$133,009BOYAmt
EOY$258,930EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$124,327ReconcilationRevenueExpnssAmt
Prior Period Adjustments$1,594PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS Audited0FSAuditedInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$414,862CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$396,935CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$470,127CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$320,480CurrentTaxYearMinus1YearAmt
Current Tax Year$508,472CurrentTaxYearAmt
Total$2,110,876TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$414,862CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$396,935CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$470,127CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$320,480CurrentTaxYearMinus1YearAmt
Current Tax Year$508,472CurrentTaxYearAmt
Total$2,110,876TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$1,748,116SubstantialContributorsTotAmt
Public Support Total170$362,760PublicSupportTotal170Amt
Total Support$2,110,876TotalSupportAmt
Public Support CY1700.17190PublicSupportCY170Pct
Public Support PY1700.44290PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests PY170Yes (X)ThirtyThrPctSuprtTestsPY170Ind

Schedule B IRS990ScheduleB

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$5,899OtherCostOrOtherBasisAmt
Depreciation$5,199DepreciationAmt
Book Value$700BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$700TotalBookValueLandBuildingsAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeINDIVIDUALGrantTypeTxt
Recipient165RecipientCnt
Non Cash Assistance$112,532NonCashAssistanceAmt
Valuation Method UsedPURCHASE PRICEValuationMethodUsedDesc
Non Cash AssistancePROVIDED GRANTS TO INDIVIDUALS FOR TRAVEL, LODGING AND MEAL ASSISTANCE TO PARTICIPATE IN EDUCATIONAL MEETINGS, MEDICAL VISITS AND OUR ANNUAL CONFERENCE AND CAMP AS WELL AS PROVIDED GRANTS TO INDIVIDUALS FOR URGENT AND UNMET MEDICAL AND LIVING EXPENSE NEEDS.NonCashAssistanceDesc

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 8BTHE ORGANIZATION DOES NOT HAVE ANY COMMITTEES.
FORM 990, PART VI, SECTION B, LINE 11BPRIOR TO FILING, FORM 990 WILL BE REVIEWED BY THE CHAIRMAN AND TREASURER AND THEN DISTRIBUTED TO THE FULL BOARD FOR REVIEW.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS REVIEWED AND SIGNED BY EACH BOARD MEMBER ANNUALLY.
FORM 990, PART VI, SECTION B, LINE 15ATHE SALARY LEVEL AND BENEFITS PACKAGE OF THE CHAIRMAN WAS INDEPENDENTLY REVIEWED AND DOCUMENTED BY THE BOARD OF DIRECTORS, TO ENSURE IT DOES NOT EXCEED COMPARABLE LEVELS OF COMPENSATION FOR NON-PROFIT DIRECTORS WITH SIMILAR EXPERIENCE AT COMPARABLE ORGANIZATIONS.
FORM 990, PART VI, SECTION C, LINE 19THE THREE MOST RECENT FORM 990S, THE BYLAWS, ARTICLES OF INCORPORATION, EXEMPT STATUS INFORMATION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST.

Reasonable Cause Explanation ReasonableCauseExplanation

FieldValueIRS element (for citing)
ExplanationREASONABLE CAUSE STATEMENT FOR LATE FILING 2017 FORM 990:SECTION 6651(A)(1) INDICATES THE LATE FILING PENALTY WILL NOT BE IMPOSED IF THE ORGANIZATION CAN SHOW REASONABLE CAUSE FOR FAILURE TO FILE A COMPLETE OR TIMELY RETURN. IN LATE 2018 THE CHAIR WHO ACTS AS THE EXECUTIVE DIRECTOR OF THE ORGANIZATION HAD A SERIOUS HEALTH SITUATION REQUIRING LENGTHY HOSPITALIZATION AND MANY WEEKS OF DAILY REHABILITATION LEAVING THE CHAIR TOO ILL TO COMPILE THE DATA NECESSARY TO MEET THE APRIL 15, 2019 EXTENDED FILING DEADLINE. WE ALSO ASK THAT YOU CONSIDER THE CHAIR IS THE ONLY FULL-TIME EMPLOYEE OF THE ORGANIZATION. THE OTHER EMPLOYEE, WHO WORKS LESS THAN 10 HOURS PER WEEK, DID NOT HAVE ACCESS TO ALL OF THE DATA NECESSARY TO COMPLETE THE TAX RETURN.GOING FORWARD THE ORGANIZATION HAS THE ORGANIZATION HAS ENGAGED AN OUTSIDE ACCOUNTING FIRM TO TRACK DUE DATES AND ASSIST THE ORGANIZATION WITH MEETING IT'S FILING OBLIGATIONS.ExplanationTxt

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