BETA

ANSWER ALS: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
ANSWER ALS (EIN 47-1643994)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-11-14
IRS object ID
202503189349305525
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-11-14T10:46:35-06:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN721473527PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1HIENZ & MACALUSO LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1110 VETERANS BLVD SUITE 170AddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70005ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN471643994EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ANSWER ALSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlANSWBusinessNameControlTxt
Phone8004902375PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line12021 LAKESHORE DRIVE SUITE 304AddressLine1Txt
CityNEW ORLEANSCityNm
State AbbreviationLAStateAbbreviationCd
ZIP70122ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCLARE DURRETTPersonNm
Person TitleMANAGING COORDINATORPersonTitleTxt
Phone8004902375PhoneNum
Signature2025-11-10SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonREBECCA K BOUCHONPreparerPersonNm
PTINP00964863PTIN
Phone5048375434PhoneNum
Preparation2025-11-10PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerCLARE DURRETTPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line12021 LAKESHORE DRIVE SUITE 304AddressLine1Txt
CityNEW ORLEANSCityNm
State AbbreviationLAStateAbbreviationCd
ZIP70122ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,817,907GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ANSWERALS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2014FormationYr
Legal Domicile StateLALegalDomicileStateCd
Activity Or MissionTO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Volunteers20TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,485,831PYContributionsGrantsAmt
CY Contributions Grants$2,666,669CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$132,036PYInvestmentIncomeAmt
CY Investment Income$151,238CYInvestmentIncomeAmt
PY Other Revenue$33,449PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$3,651,316PYTotalRevenueAmt
CY Total Revenue$2,817,907CYTotalRevenueAmt
PY Grants And Similar Paid$2,036,876PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,621,161CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$65,832PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$66,803CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$38,384CYTotalFundraisingExpenseAmt
PY Other Expenses$787,743PYOtherExpensesAmt
CY Other Expenses$557,920CYOtherExpensesAmt
PY Total Expenses$2,890,451PYTotalExpensesAmt
CY Total Expenses$3,245,884CYTotalExpensesAmt
PY Revenues Less Expenses$760,865PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$427,977CYRevenuesLessExpensesAmt
Total Assets BOY$7,363,198TotalAssetsBOYAmt
Total Assets EOY$7,362,169TotalAssetsEOYAmt
Total Liabilities BOY$37,716TotalLiabilitiesBOYAmt
Total Liabilities EOY$464,664TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,325,482NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$6,897,505NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO FIND SOLUTIONS FOR PEOPLE LIVING WITH ALS NOW AND FOR THE FUTURE BY UTILIZING KNOWLEDGE OF PATIENTS, LEADING RESEARCHERS AND TECHNOLOGY TO SEEK IMMEDIATE SOLUTIONS TO IMPROVE THE LIVES OF THOSE LIVING WITH ALS UNTIL A TREATMENT OR CURE IS FOUND; DISCOVER WHAT CAUSES ALS; DEVELOP MODELS TO UNDERSTAND ALS AND SCREEN FOR DRUG AND CELLULAR THERAPY; DISCOVER THERAPIES THAT COULD SUBSTANTIALLY SLOW OR HALT THE PROGRESS OF ALS AND ULTIMATELY CURE THE DISEASE; PROVIDE ALL GATHERED INFORMATION FREE FOR WORLDWIDE USE BY CLINICIANS, SCIENTISTS AND PHARMA TO RAPIDLY ADVANCE THERAPEUTICS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$3,140,619ExpenseAmt
Grant$2,621,161GrantAmt
DescCREATING THE LARGEST AND MOST COMPREHENSIVE FOUNDATION OF ALS DATA EVER AMASSED, ENCOMPANSING CLINICAL, CHEMICAL, GENETIC, PROTEIN, HISTORICAL AND BIOLOGICAL DATA FROM AN ENORMOUS SAMPLING OF ALS PATIENTS IN THE UNITED STATES. IN COLLABORATION WITH MACHINE LEARNING AND BIG DATA TECHNOLOGY, THE DATA WILL BE MINED TO UNCOVER ALS CAUSES, SUBTYPES, PATHWAYS GONE AWRY AND DRUG TARGETS. THIS WILL ESTABLISH A LARGE AND CRITICAL FOUNDATION FOR NEW CLINICAL TRIALS, DEVELOP NEW WAYS TO CATEGORIZE PATIENTS TO IDENTIFY SPECIFIC DRUGGABLE PATHWAYS AND SUBTYPE BIOMARKERS AND DISEASE PATHOPHYSIOLOGY TO AID NOT ONLY IN EARLY DIAGNOSIS OF THE DISEASE, BUT ALSO TO MONITOR THE EFFICACY OF NEWLY DEVELOPED TREATMENTS.Desc
Total Program Service Expenses$3,140,619TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document2IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee1EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLIZ HATCH ACCOUNTINGPersonNm
Phone5043096393PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1190 E OAKRIDGE PARKAddressLine1Txt
CityMETAIRIECityNm
State AbbreviationLAStateAbbreviationCd
ZIP70005ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
BEVERLY GOULET
BOARD CHAIR1.00Yes (X)Yes (X)$0$0$0
CLARE DURRETT
MANAGING DIRECTOR20.00Yes (X)Yes (X)$0$0$0
PAUL VARISCO
BOARD MEMBER5.00Yes (X)Yes (X)$0$0$0
STEVE GLEASON
BOARD MEMBER1.00Yes (X)$0$0$0
WILLIAM J QUINLAN JR
BOARD MEMBER1.00Yes (X)$0$0$0
STEVE FINKBEINER
BOARD MEMBER1.00Yes (X)$0$0$0
PAT QUINN
BOARD MEMBER EMERITUS1.00Yes (X)$0$0$0
S MICHELLE FARR
BOARD MEMBER1.00Yes (X)$0$0$0
ELIZABETH BRUCE
BOARD MEMBER1.00Yes (X)$0$0$0
JOHN COSTELLO
BOARD MEMBER1.00Yes (X)$0$0$0
COLLEEN STEPHENS
CHIEF OF STAFF40.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$2,666,669AllOtherContributionsAmt
Total Contributions$2,666,669TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$151,238TotalRevenueColumnAmt
Related Or Exempt Func Income$151,238RelatedOrExemptFuncIncomeAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,817,907TotalRevenueColumnAmt
Related Or Exempt Func Income$151,238RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$2,621,161TotalAmt
Program Services$2,621,161ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$62,000TotalAmt
Program Services$62,000ProgramServicesAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$4,803TotalAmt
Program Services$4,803ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$21,965TotalAmt
Management And General$21,965ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$57,478TotalAmt
Program Services$32,737ProgramServicesAmt
Management And General$8,329ManagementAndGeneralAmt
Fundraising$16,412FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$6,832TotalAmt
Program Services$5,986ProgramServicesAmt
Management And General$66ManagementAndGeneralAmt
Fundraising$780FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$7,085TotalAmt
Program Services$425ProgramServicesAmt
Management And General$6,613ManagementAndGeneralAmt
Fundraising$47FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$58,791TotalAmt
Program Services$54,026ProgramServicesAmt
Management And General$4,018ManagementAndGeneralAmt
Fundraising$747FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$110,136TotalAmt
Program Services$106,168ProgramServicesAmt
Management And General$12ManagementAndGeneralAmt
Fundraising$3,956FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$1,708TotalAmt
Program Services$1,196ProgramServicesAmt
Fundraising$512FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$9,085TotalAmt
Management And General$9,085ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
PROGRAM DEVELOPMENT$242,430$241,382$1,048
OTHER FUNDRAISING EXPEN$13,289$13,289
LEASE EXPENSE$12,298$12,298
WEBSITE MAINTENANCE$7,192$7,192

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$9,631TotalAmt
Program Services$3,543ProgramServicesAmt
Management And General$3,447ManagementAndGeneralAmt
Fundraising$2,641FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,245,884TotalAmt
Program Services$3,140,619ProgramServicesAmt
Management And General$66,881ManagementAndGeneralAmt
Fundraising$38,384FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$6,451,283BOYAmt
EOY$6,485,165EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$868,235BOYAmt
EOY$780,952EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$21,971BOYAmt
EOY$6,971EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$5,732BOYAmt
EOY$62,522EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$559,694LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$556,420LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$4,982BOYAmt
EOY$3,274EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$10,995BOYAmt
EOY$23,285EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$7,363,198BOYAmt
EOY$7,362,169EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$27,361BOYAmt
EOY$57,375EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
EOY$385,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$10,355BOYAmt
EOY$22,289EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$37,716BOYAmt
EOY$464,664EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,841,412BOYAmt
EOY$5,916,553EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,484,070BOYAmt
EOY$980,952EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,325,482BOYAmt
EOY$6,897,505EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,363,198BOYAmt
EOY$7,362,169EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$427,977ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,276,502CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,800,662CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,985,330CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,485,831CurrentTaxYearMinus1YearAmt
Current Tax Year$2,666,669CurrentTaxYearAmt
Total$12,214,994TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,276,502CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,800,662CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,985,330CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,485,831CurrentTaxYearMinus1YearAmt
Current Tax Year$2,666,669CurrentTaxYearAmt
Total$12,214,994TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,482,992SubstantialContributorsTotAmt
Public Support Total170$7,732,002PublicSupportTotal170Amt
Total Support$12,214,994TotalSupportAmt
Public Support CY1700.63300PublicSupportCY170Pct
Public Support PY1700.63310PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$559,694OtherCostOrOtherBasisAmt
Depreciation$556,420DepreciationAmt
Book Value$3,274BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$3,274TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescLEASE LIABILITYDesc
Amt$22,289Amt
FieldValueIRS element (for citing)
Total Liability$22,289TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,943,289TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$125,382DonatedServicesAndUseFcltsAmt
Revenue Not Reported$125,382RevenueNotReportedAmt
Revenue Subtotal$2,817,907RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,817,907TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,371,266TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$125,382DonatedServicesUseFcltsAmt
Expenses Not Reported$125,382ExpensesNotReportedAmt
Expenses Subtotal$3,245,884ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,245,884TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationACCOUNTING STANDARDS PROVIDE DETAILED GUIDANCE FOR FINANCIAL STATEMENT RECOGNITION, MEASUREMENT AND DISCLOSURE OF UNCERTAIN TAX POSITIONS RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS.AS OF DECEMBER 31, 2018, MANAGEMENT OF THE ORGANIZATION BELIEVES THAT IT HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (11 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE
855 NORTH WOLFE STREET RM 270BALTIMOREMD21205$1,029,803$0GRANT TO FUND ALS RESEARCH.
ALMAGU
477 MADISON AVE FLOOR 6NEW YORKNY10022$14,900$0GRANT TO FUND ALS RESEARCH.
CEDARS SINAI HOSPITAL
8700 BEVERLY BLVDLOS ANGELESCA90048$523,889$0GRANT TO FUND ALS RESEARCH.
DIAGENODE LLC
400 MORRIS AVE SUITE 101DENVILLENJ07834$229,531$0GRANT TO FUND ALS RESEARCH.
LOUISIANA STATE UNIVERSITY
5429 AIRLINE HIGHWAYBATON ROUGELA70805$41,973$0GRANT TO FUND ALS RESEARCH.
ON POINT SCIENTIFIC
442 ROUTE 206MONTAGUENJ07827$487,346$0GRANT TO FUND ALS RESEARCH.
ANTARES FORMERLY CONTINGASOFT
2045 LAKESHORE DRIVE SUITE 349NEW ORLEANSLA70122$60,678$0GRANT TO FUND ALS RESEARCH.
FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH
1100 ROCKVILLE PIKE SUITE 600BETHESDAMD20852$10,000$0GRANT TO FUND ALS RESEARCH.
PENNINGTON BIOMEDICAL RESEARCH CENTER
6400 PERKINS ROADBATON ROUGELA70808$41,947$0GRANT TO FUND ALS RESEARCH.
UNIVERSITY OF NEW ORLEANS OFFICE OF RESEARCH
1005 ADMINISTRATION ANNEX BUILDINGNEW ORLEANSLA70148$6,995$0GRANT TO FUND ALS RESEARCH.2000 LAKESHORE DRIVE
MICROSOFT
ONE MICROSOFT WAYREDMONDWA98052$174,099$0GRANT TO FUND ALS RESEARCH.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BA COPY OF THE ORGANIZATION'S FORM 990 WILL BE PROVIDED TO THE ORGANIZATION'S GOVERNING BODY FOR REVIEW PRIOR TO IT BEING FILED.
FORM 990, PART VI, SECTION B, LINE 12CTHE BOARD REVIEWS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY.
FORM 990, PART VI, SECTION C, LINE 18FORM 1023 IS AVAILABLE UPON REQUEST.
FORM 990, PART VI, SECTION C, LINE 19NO DOCUMENTS ARE PROVIDED TO THE GENERAL PUBLIC.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1GLEASON INITIATIVE FOUNDATIONBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 24493AddressLine1Txt
CityNEW ORLEANSCityNm
State AbbreviationLAStateAbbreviationCd
ZIP70124ZIPCd
FieldValueIRS element (for citing)
EIN453689316EIN
Primary ActivitiesSEE PART VII EXPLANATIONPrimaryActivitiesTxt
Legal Domicile StateLALegalDomicileStateCd
Exempt Code Section501(C)(3)ExemptCodeSectionTxt
Public Charity StatusLINE 7PublicCharityStatusTxt
Direct Controlling NAN/ADirectControllingNACd
Controlled Organization0ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgYes (1)GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp

Other Organization Name OtherOrganizationName

FieldValueIRS element (for citing)
Business Name Line1GLEASON INITIATIVE FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Transaction TypeCTransactionTypeTxt
Method Of Amount DeterminationFMVMethodOfAmountDeterminationTxt

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