AMYOTROPHIC LATERAL SCLEROSIS MN: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS MN (EIN 41-1756085)
Tax period: 2019-02-01 to 2020-01-31
Filed: 2020-09-04
IRS object ID: 202032489349301148
Schema version: 2019v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule G
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2020-09-04T16:08:35-05:00	ReturnTs
Tax Period End	2020-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410887288	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	BOULAY PLLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	7500 FLYING CLOUD DR-STE 800	AddressLine1Txt
City	MINNEAPOLIS	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55344	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2019-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	411756085	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION MINNESOTA	BusinessNameLine1Txt
Business Name Line2	NORTH DAKOTA SOUTH DAKOTA CHAPTER	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	6126720484	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1919 UNIVERSITY AVENUE WEST NO 17	AddressLine1Txt
City	ST PAUL	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55104	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	JENNIFER HJELLE	PersonNm
Person Title	EXECUTIVE DIRECTOR	PersonTitleTxt
Phone	6126720484	PhoneNum
Signature	2020-07-16	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	TARA M SCHINI	PreparerPersonNm
PTIN	P01714186	PTIN
Phone	9528939320	PhoneNum
Preparation	2020-07-16	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	65.128.46.227	IPv4AddressTxt

Field	Value	IRS element (for citing)
IP	2020-07-16	IPDt
IP Tm	12:18:07	IPTm
IP Timezone	CD	IPTimezoneCd
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	DA39A3EE5E6B4B0D3255BFEF95601890AFD80709	AtSubmissionCreationDeviceId
At Submission Filing Device Id	5A2DAD759A2AEFDD46A69C1ADBEBCD549546DFA4	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2019	TaxYr
Build TS	2020-11-19 02:30:22Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	ALS ASSOCIATION MNNDSD CHAPTER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	JENNIFER HJELLE	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1919 UNIVERSITY AVENUE WEST NO 175	AddressLine1Txt
City	ST PAUL	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55104	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$4,718,368	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSMN.ORG	WebsiteAddressTxt
Type Of Organization Assoc	Yes (X)	TypeOfOrganizationAssocInd
Formation	1993	FormationYr
Legal Domicile State	MN	LegalDomicileStateCd
Activity Or Mission	TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.	ActivityOrMissionDesc
Voting Members Governing Body	20	VotingMembersGoverningBodyCnt
Voting Members Independent	20	VotingMembersIndependentCnt
Total Employee	26	TotalEmployeeCnt
Total Volunteers	589	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$5,916,970	PYContributionsGrantsAmt
CY Contributions Grants	$3,700,879	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$39,400	PYInvestmentIncomeAmt
CY Investment Income	$73,255	CYInvestmentIncomeAmt
PY Other Revenue	$115,364	PYOtherRevenueAmt
CY Other Revenue	-$94,345	CYOtherRevenueAmt
PY Total Revenue	$6,071,734	PYTotalRevenueAmt
CY Total Revenue	$3,679,789	CYTotalRevenueAmt
PY Grants And Similar Paid	$0	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$0	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$1,750,297	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,828,062	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$633,759	CYTotalFundraisingExpenseAmt
PY Other Expenses	$2,986,183	PYOtherExpensesAmt
CY Other Expenses	$2,421,728	CYOtherExpensesAmt
PY Total Expenses	$4,736,480	PYTotalExpensesAmt
CY Total Expenses	$4,249,790	CYTotalExpensesAmt
PY Revenues Less Expenses	$1,335,254	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$570,001	CYRevenuesLessExpensesAmt
Total Assets BOY	$5,822,964	TotalAssetsBOYAmt
Total Assets EOY	$5,114,131	TotalAssetsEOYAmt
Total Liabilities BOY	$1,049,886	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$810,790	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$4,773,078	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$4,303,341	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$2,406,103	ExpenseAmt
Desc	CARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$375,179	ExpenseAmt
Desc	RESEARCH - THE ALS ASSOCIATION, MINNESOTA/ NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. THE ALS ASSOCIATION HAS INVESTED $147 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 25 YEARS THE MINNESOTA /NORTH DAKOTA /SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $5.0 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING 108 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$434,582	ExpenseAmt
Desc	PUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA AND EVENTS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$3,215,864	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	0	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	0	ForeignActivitiesInd
More Than5000 K To Org	0	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	Yes (1)	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	0	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	0	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	13	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	26	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	Yes (1)	NondeductibleContributionsInd
Nondeductible Contri Discl	Yes (1)	NondeductibleContriDisclInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	20	GoverningBodyVotingMembersCnt
Independent Voting Member	20	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	JENNIFER HJELLE	PersonNm
Phone	6126720484	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1919 UNIVERSITY AVENUE WEST SUITE	AddressLine1Txt
City	ST PAUL	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55104	ZIPCd

Field	Value	IRS element (for citing)
No Listed Persons Compensated	Yes (X)	NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
SUSAN SCHUSTER
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
JORDAN SING
SECRETARY	2.00	Yes (X)	$0	$0	$0	Yes (X)
PHILIP ALBERT
PRESIDENT	2.00	Yes (X)	$0	$0	$0	Yes (X)
JEREMY RICE
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
BILL MCCARTHY
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
CLAY AHRENS
VICE PRESIDENT	2.00	Yes (X)	$0	$0	$0	Yes (X)
MARY JONES
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
PETE KLINKHAMMER
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
STEVE KRAUS
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
DAVID LAMM
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
GRANT LANDER
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
MARY ELLEN LEARY
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
TINA LINNE
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
JAN NELSON
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
BRENDA OLSON
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
JOHN ORNER
TREASURER	2.00	Yes (X)	$0	$0	$0	Yes (X)
NATHAN STAFF
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
EZGI TIRYAKI
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
KRISTI WAITE
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
DAVID WALK
BOARD MEMBER	1.00	Yes (X)	$0	$0	$0
JENNIFER HJELLE
EXECUTIVE DIRECTOR	40.00		$144,099	$0	$0		Yes (X)
MARRIANNE KEUHN
VICE PRESIDENT CARE SERVIC	40.00		$116,375	$0	$0		Yes (X)
RYAN STAUFF
VICE PRESIDENT DEVELOPMENT	40.00		$113,737	$0	$0		Yes (X)
LISA KRONK
RN CARE SERVICES COORDINAT	40.00		$103,522	$0	$0		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$477,733	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$0	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	4	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	0	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K	0	CntrctRcvdGreaterThan100KCnt
Fundraising	$1,590,407	FundraisingAmt
All Other Contributions	$2,110,472	AllOtherContributionsAmt
Noncash Contributions	$727,992	NoncashContributionsAmt
Total Contributions	$3,700,879	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$51,565	TotalRevenueColumnAmt
Exclusion	$51,565	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$596,680	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$574,990	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$21,690	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$21,690	TotalRevenueColumnAmt
Exclusion	$21,690	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$266,115	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$1,590,407	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$450,799	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$184,684	TotalRevenueColumnAmt
Exclusion	-$184,684	ExclusionAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$103,129	GamingGrossIncomeAmt
Gaming Direct Expenses	$12,790	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$90,339	TotalRevenueColumnAmt
Exclusion	$90,339	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,679,789	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	-$21,090	ExclusionAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$1,558,106	TotalAmt
Program Services	$967,810	ProgramServicesAmt
Management And General	$216,032	ManagementAndGeneralAmt
Fundraising	$374,264	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$36,178	TotalAmt
Program Services	$22,472	ProgramServicesAmt
Management And General	$5,016	ManagementAndGeneralAmt
Fundraising	$8,690	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$97,244	TotalAmt
Program Services	$60,403	ProgramServicesAmt
Management And General	$13,483	ManagementAndGeneralAmt
Fundraising	$23,358	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$136,534	TotalAmt
Program Services	$84,807	ProgramServicesAmt
Management And General	$18,931	ManagementAndGeneralAmt
Fundraising	$32,796	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$16,863	TotalAmt
Management And General	$16,863	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$35,405	TotalAmt
Program Services	$34,676	ProgramServicesAmt
Management And General	$729	ManagementAndGeneralAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$2,988	TotalAmt
Program Services	$1,494	ProgramServicesAmt
Fundraising	$1,494	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$366,369	TotalAmt
Program Services	$236,939	ProgramServicesAmt
Management And General	$47,368	ManagementAndGeneralAmt
Fundraising	$82,062	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$81,958	TotalAmt
Program Services	$49,419	ProgramServicesAmt
Management And General	$5,502	ManagementAndGeneralAmt
Fundraising	$27,037	FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$293,203	TotalAmt
Program Services	$231,630	ProgramServicesAmt
Management And General	$19,645	ManagementAndGeneralAmt
Fundraising	$41,928	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$597,626	TotalAmt
Program Services	$569,709	ProgramServicesAmt
Management And General	$10,217	ManagementAndGeneralAmt
Fundraising	$17,700	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt
RESPITE CARE	$281,392	$281,392
RESEARCH	$245,877	$245,877
LOAN CLOSET EQUIPMENT	$189,216	$189,216
ALS CLINIC EXPENSE	$87,234	$87,234

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$223,597	TotalAmt
Program Services	$152,786	ProgramServicesAmt
Management And General	$46,381	ManagementAndGeneralAmt
Fundraising	$24,430	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$4,249,790	TotalAmt
Program Services	$3,215,864	ProgramServicesAmt
Management And General	$400,167	ManagementAndGeneralAmt
Fundraising	$633,759	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$431,117	BOYAmt
EOY	$143,079	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$3,779,756	BOYAmt
EOY	$3,351,950	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$68,091	BOYAmt
EOY	$3,080	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
EOY	$759	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$56,033	BOYAmt
EOY	$35,260	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$3,070,375	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,509,890	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,465,439	BOYAmt
EOY	$1,560,485	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$22,528	BOYAmt
EOY	$19,518	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$5,822,964	BOYAmt
EOY	$5,114,131	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$371,275	BOYAmt
EOY	$127,090	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$678,611	BOYAmt
EOY	$683,700	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$1,049,886	BOYAmt
EOY	$810,790	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,219,884	BOYAmt
EOY	$4,040,196	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$553,194	BOYAmt
EOY	$263,145	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$4,773,078	BOYAmt
EOY	$4,303,341	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$5,822,964	BOYAmt
EOY	$5,114,131	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$570,001	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$100,264	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,391,233	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,746,141	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,222,546	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$5,916,970	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,700,879	CurrentTaxYearAmt
Total	$20,977,769	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,391,233	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,746,141	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,222,546	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$5,916,970	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,700,879	CurrentTaxYearAmt
Total	$20,977,769	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$623,162	SubstantialContributorsTotAmt
Public Support Total170	$20,354,607	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$6,683	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$15,522	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$20,334	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$34,315	CurrentTaxYearMinus1YearAmt
Current Tax Year	$51,565	CurrentTaxYearAmt
Total	$128,419	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$21,106,188	TotalSupportAmt
Gross Receipts Rltd Activities	$2,511,805	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.96440	PublicSupportCY170Pct
Public Support PY170	0.97100	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$6,476	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$6,476	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$4,241,081	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$4,247,557	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$362,378	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$90,595	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$332,736	CurrentYearMinus3Amt
Current Year Minus2	$337,956	CurrentYearMinus2Amt
Current Year Minus1	$360,826	CurrentYearMinus1Amt
Current Year	$362,378	CurrentYearAmt
Total	$1,393,896	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$2,090,844	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$12,713	CurrentYearMinus3Amt
Current Year Minus2	$17,582	CurrentYearMinus2Amt
Current Year Minus1	$13,380	CurrentYearMinus1Amt
Current Year	$6,476	CurrentYearAmt
Total	$50,151	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$83,184	CurrentYearMinus3Amt
Current Year Minus2	$84,489	CurrentYearMinus2Amt
Current Year Minus1	$90,207	CurrentYearMinus1Amt
Current Year	$90,595	CurrentYearAmt
Total	$348,475	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$522,713	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$3,070,375	OtherCostOrOtherBasisAmt
Depreciation	$1,509,890	DepreciationAmt
Book Value	$1,560,485	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$1,560,485	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDesc	AmtAmt
DUE TO NATIONAL ASSOCIATION	$145,586
DEFERRED RENT	$532,712
CAPITAL LEASE OBLIGATION	$5,402

Field	Value	IRS element (for citing)
Total Liability	$683,700	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$4,003,151	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$100,264	NetUnrealizedGainsInvstAmt
Other Revenue	$223,098	OtherRevenueAmt
Revenue Not Reported	$323,362	RevenueNotReportedAmt
Revenue Subtotal	$3,679,789	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$3,679,789	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$4,472,888	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$223,098	OtherExpensesIncludedAmt
Expenses Not Reported	$223,098	ExpensesNotReportedAmt
Expenses Subtotal	$4,249,790	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$4,249,790	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART X, LINE 2:	THE ASSOCIATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ASSOCIATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENTS EXPENSES 223,098. IN-KIND DONATIONS
PART XII, LINE 2D - OTHER ADJUSTMENTS:	SPECIAL EVENTS EXPENSES 223,098. IN-KIND DONATIONS

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	WALK TO DEFEAT ALS	Event1Nm
Gross Receipts Event1	$656,285	GrossReceiptsEvent1Amt
Charitable Contri Event1	$704,133	CharitableContriEvent1Amt
Gross Revenue Event1	-$47,848	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$98,145	OtherDirectExpensesEvent1Amt
Event2	BLACK WOODS BLIZZARD	Event2Nm
Gross Receipts Event2	$250,175	GrossReceiptsEvent2Amt
Charitable Contri Event2	$125,169	CharitableContriEvent2Amt
Gross Revenue Event2	$125,006	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$198,830	OtherDirectExpensesEvent2Amt
Other Events Total	6	OtherEventsTotalCnt
Gross Receipts Other Events	$950,062	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$761,105	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$188,957	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$153,824	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$1,856,522	GrossReceiptsTotalAmt
Charitable Contributions Tot	$1,590,407	CharitableContributionsTotAmt
Gross Revenue Total Events	$266,115	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$450,799	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$450,799	DirectExpenseSummaryEventsAmt
Net Income Summary	-$184,684	NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$103,129	GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming	$12,790	OthDirectExpnssOtherGamingAmt
Volunteer Labor Other Gaming	0	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$103,129	GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming	$12,790	OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming	$12,790	DirectExpenseSummaryGamingAmt
Net Gaming Income Summary	$90,339	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	MN	StatesWhereGamingConductedCd
Licensed	Yes (1)	LicensedInd
License Suspended Etc	0	LicenseSuspendedEtcInd
Gaming With Nonmembers	0	GamingWithNonmembersInd
Member Of Other Entity	0	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct
Individual With Books	JENNIFER HJELLE	IndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	1919 UNIVERSITY AVENUE WEST SUITE 1	AddressLine1Txt
City	ST PAUL	CityNm
State Abbreviation	MN	StateAbbreviationCd
ZIP	55104	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	0	CntrctWith3rdPrtyForGameRevInd
Gaming Manager Person	JENNIFER HJELLE	GamingManagerPersonNm
Gaming Manager Services Prov	RECORD KEEPING, MONEY COUNTING, AND BANK DEPOSITS FOR RAFFLES USED FOR FUNDRAISING PURPOSES	GamingManagerServicesProvTxt
Charitable Distribution Rqr	0	CharitableDistributionRqrInd

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	MEDICAL EQUIPMENT	Desc
Contribution	283	ContributionCnt
Noncash Contributions Rpt F990	$727,992	NoncashContributionsRptF990Amt
Method Of Determining Revenues	VALUATION	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART III, LINE 4A	AMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIG'S DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS AVERAGES TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PEOPLE WITH ALS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT 20 PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS ARE DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. ON AVERAGE IN NORTH DAKOTA, ONE PERSON IS DIAGNOSED AND ONE PERSON DIES FROM ALS EACH MONTH. ON AVERAGE IN SOUTH DAKOTA, ONE TO TWO PEOPLE ARE DIAGNOSED AND DIE OF ALS EACH MONTH. AT ANY GIVEN TIME, THERE ARE APPROXIMATELY 450 PEOPLE LIVING WITH ALS IN MINNESOTA, NORTH DAKOTA AND SOUTH DAKOTA. CHAPTER PROGRAMS INCLUDE: 1. HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ASSISTS INDIVIDUALS WITH ALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE AND/OR WHO ARE HAVING DIFFICULTY USING A COMPUTER AND OTHER ELECTRONIC DEVICES IN THEIR HOME. THE PROGRAM LOANS DEVICES AND EQUIPMENT THAT ARE NOT COVERED BY MEDICAL INSURANCE AND ARE AVAILABLE IN THE INVENTORY. LAST FISCAL YEAR 334 PEOPLE USED THIS PROGRAM AND OVER 1,499 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2. JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES MUCH NEEDED RESPITE TO A FULL-TIME FAMILY CAREGIVER OF A PERSON WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS ALLOWING THE FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR 8,874 RESPITE HOURS FOR 105 FAMILIES. 3. DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY INDIVIDUALS AND THEIR FAMILIES, AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER'S SERVICE AREA. EXAMPLES OF EQUIPMENT ARE: HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 445 PEOPLE UTILIZED THIS PROGRAM. MORE THAN 3,079 PIECES OF EQUIPMENT WENT IN AND OUT OF THE CLOSET DURING THIS TIME. 4. HOME SAFETY PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PT'S FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, AND TRAINING IN RANGE-OF-MOTION AND STRETCHING EXERCISES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 28 PEOPLE RECEIVED HOME VISITS THROUGH THIS PROGRAM. 5. SUPPORT GROUPS: THERE ARE MONTHLY ALS-SPECIFIC SUPPORT GROUPS LOCATED THROUGHOUT OUR SERVICE AREA; INCLUDING AN ONLINE GROUP FOR INDIVIDUALS WITH ALS WHO ARE UNABLE TO TRAVEL TO A MEETING. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, ENSURING THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. 6. FAMILY ASSISTANCE PROGRAM: THE PURPOSE OF THIS PROGRAM IS TO INCREASE THE QUALITY OF LIFE FOR THOSE WITH ALS BY FREEING UP THEIR TIME AND ENERGY FOR MORE ENJOYABLE THINGS. VOLUNTEERS HUMBLY PERFORM DAILY TASKS OF LIVING LIKE CLEANING, RUNNING ERRANDS, MAKING MEALS, AND MUCH MORE. LAST YEAR, 83 VOLUNTEERS LIFTED BURDENS IN THE LIVES OF 67 PEOPLE WITH ALS AND THEIR FAMILIES. 7. ADVOCACY: THE CHAPTER WORKS, ON A NATIONAL AND STATE LEVEL, TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH THE DISEASE. THESE ADVOCACY EFFORTS INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS, AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8. OTHER SERVICES: THE CHAPTER'S CARE SERVICES STAFF PROVIDES EDUCATION AND INFORMATION ABOUT ALS TO PERSONS WITH THE DISEASE, THEIR FAMILY, FRIENDS AND HEALTH CARE PROFESSIONALS. THE CARE SERVICES STAFF CONSISTS OF PROFESSIONALS FROM NURSING, SOCIAL WORK, OCCUPATIONAL THERAPY AND CHAPLAINCY. THE CARE SERVICES STAFF ARE AVAILABLE TO INDIVIDUALS WITH ALS AND THEIR FAMILY FOR CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND TO PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER PUBLISHES A MONTHLY ELECTRONIC NEWSLETTER AND PRODUCES A MONTHLY PODCAST, CONNECTING ALS.
FORM 990, PART VI, SECTION B, LINE 11B	THE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL.
FORM 990, PART VI, SECTION B, LINE 12C	ALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS.
FORM 990, PART VI, SECTION B, LINE 15	A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE HUMAN RESOURCES COMMITTEE OR BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME (WITH INPUT FROM THE FINANCE COMMITTEE). FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEWS THE VP OF CARE SERVICES, THE VP OF DEVELOPMENT, THE DIRECTOR OF MARKETING & COMMUNICATIONS, AND THE DIRECTOR OF ADMINISTRATION & FINANCE ANNUALLY WITH INPUT FROM THE STAFF AND BOARD OF DIRECTORS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS INCLUDING CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST.
FORM 990, PART XII, LINE 2C:	THE PROCESS HAS NOT CHANGED FROM PRIOR YEARS.