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LI FRAUMENI SYNDROME ASSOCIATION: Form 990EZ, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
LI FRAUMENI SYNDROME ASSOCIATION (EIN 45-2284811)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-11-17
IRS object ID
202023229349201312
Schema version
2019v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-11-17T09:59:01-06:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN042523269PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1DeJordy Dugre Croteau & Co PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1727 Grattan StreetAddressLine1Txt
CityChicopeeCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01020ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN452284811EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Li Fraumeni Syndrome Association IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlLIFRBusinessNameControlTxt
Phone7742660503PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 6458AddressLine1Txt
CityHollistonCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01746ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJennifer PerryPersonNm
Person TitlePresidentPersonTitleTxt
Phone7742660503PhoneNum
Signature2020-11-13SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJoseph Croteau Jr CPAPreparerPersonNm
PTINP00001558PTIN
Phone4135360666PhoneNum
Preparation2020-11-13PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address66.189.135.178IPv4AddressTxt
FieldValueIRS element (for citing)
IP2020-11-13IPDt
IP Tm11:22:00IPTm
IP TimezoneESIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id61C1619D0D58C96C048E85DB421857CEF4C534BAAtSubmissionCreationDeviceId
At Submission Filing Device Id61C1619D0D58C96C048E85DB421857CEF4C534BAAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Website Addresshttp://www.lfsassociation.orgWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$173,988GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$173,760ContributionsGiftsGrantsEtcAmt
Fundraising Gross Income$228FundraisingGrossIncomeAmt
Special Events Direct Expenses$312SpecialEventsDirectExpensesAmt
Special Events Net Income Loss-$84SpecialEventsNetIncomeLossAmt
Total Revenue$173,676TotalRevenueAmt
Printing Publications Postage$1,099PrintingPublicationsPostageAmt
Other Expenses Total$183,986OtherExpensesTotalAmt
Total Expenses$185,085TotalExpensesAmt
Excess Or Deficit For Year-$11,409ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$28,541NetAssetsOrFundBalancesBOYAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Net Assets Or Fund Balances EOY$17,132NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$28,192BOYAmt
EOY$17,563EOYAmt

Land And Buildings LandAndBuildingsGrp

FieldValueIRS element (for citing)
BOY$349BOYAmt
EOY$226EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$28,541BOYAmt
EOY$17,789EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$657EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$28,541BOYAmt
EOY$17,132EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
Primary Exempt PurposeLi-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (3 entries)

Description Program Srvc AccomDescriptionProgramSrvcAccomTxtGrants And AllocationsGrantsAndAllocationsAmtProgram Service ExpensesProgramServiceExpensesAmt
In 2019, the LFSA held their annual International LFS Association Symposium in Toronto, Canada. LFSA is the operator and financially responsible for the symposiums.$32,000$31,375
The Annual Giving Program is LFSA's annual fundraiser. It is a direct mail fundraiser sent out the first week of December. We include our annual Impact Report to donors so they are aware of the programs, events and the scientific, educational symposiums and workshops they are financially supporting.$22,022$6,056
The Cow Pie Contest was a fundraiser held in Westfield, MA in order to support Youth Program events for the LFSA. The fundraiser entailed a large, gridded field being divided and available for "purchase and the release of a cow into the field, with the winning square being determined by wherever the cow defecates. The winner is entitled to a portion of the event's proceeds, with all other proceeds being marked for use for the Youth Workshop and other youth events.$1,717$398
FieldValueIRS element (for citing)
Total Program Service Expenses$37,829TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (4 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmtEmployee Benefit ProgramEmployeeBenefitProgramAmtExpense Account Other AllwncExpenseAccountOtherAllwncAmt
Jennifer Perry
President/Co-Founder20.00$0$0$0
Holly Fraumeni
Vice President20.00$0$0$0
Sandi Barrett
Secretary4.00$0$0$0
Michelle Giovenelli
Treasurer10.00$0$0$0
FieldValueIRS element (for citing)
Info In Schedule O Part VYes (X)InfoInScheduleOPartVInd
Activities Not Previously Rpt0ActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not Rpt0ChgMadeToOrgnzngDocNotRptInd
Organization Had UBI0OrganizationHadUBIInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Organization Dissolved Etc0OrganizationDissolvedEtcInd
Direct Indirect Pltcl Expend$0DirectIndirectPltclExpendAmt
Made Loans To From Officers0MadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMichele GiovenelliPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11789 Great Pond RdAddressLine1Txt
CityNorth AndoverCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01845ZIPCd
FieldValueIRS element (for citing)
Phone6176337188PhoneNum
FieldValueIRS element (for citing)
Foreign Financial Account0ForeignFinancialAccountInd
Foreign Office0ForeignOfficeInd
Donor Advised Fnds0DonorAdvisedFndsInd
Operate Hospital0OperateHospitalInd
Tanning Services Provided0TanningServicesProvidedInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
School Operating0SchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (1)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$54,857CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$704,623CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$202,514CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$270,106CurrentTaxYearMinus1YearAmt
Current Tax Year$173,989CurrentTaxYearAmt
Total$1,406,089TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$54,857CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$704,623CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$202,514CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$270,106CurrentTaxYearMinus1YearAmt
Current Tax Year$173,989CurrentTaxYearAmt
Total$1,406,089TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$1,406,089PublicSupportTotal170Amt
Total Support$1,406,089TotalSupportAmt
Gross Receipts Rltd Activities$59,972GrossReceiptsRltdActivitiesAmt
Public Support CY1701.00000PublicSupportCY170Pct
Public Support PY1701.00000PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990-EZ, Part I, Line 16 - Other ExpensesDescription: Program Service Expenses. Amount: 75,534. Description: Office Expense. Amount: 53,658. Description: Bank Charges. Amount: 985. Description: Dues & Subscriptions. Amount: 300. Description: Credit Card Proceessing Fees/Bank Charges. Amount: 1,434. Description: Marketing. Amount: 1,400. Description: Marketing. Amount: 5,966. Description: Professional Fees - Accounting. Amount: 4,793. Description: Travel Expense. Amount: 12,956. Description: Meals . Amount: 887. Description: Stationary & Printing. Amount: 28. Description: Interest Expense. Amount: 20. Description: Taxes & Licenses. Amount: 482. Description: Conference Materials. Amount: 132. Description: Consulting - Medical Writing - Grants. Amount: 25,288. Description: Depreciation Expense. Amount: 123. Total to Form 990-EZ, line 16: 183,986.
Form 990-EZ, Part II, Line 26 - Other LiabilitiesDescription: Credit Card Activity. Beg. of Year Amount: 0. End of Year Amount: 657.

Transfer Prsnl Bnft Contracts Decl TransferPrsnlBnftContractsDecl

FieldValueIRS element (for citing)
DeclarationThe organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.DeclarationDesc

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