LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2019-01-01 to 2019-12-31
Filed: 2020-11-12
IRS object ID: 202023179349301882
Schema version: 2019v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2020-11-12T08:56:10-06:00	ReturnTs
Tax Period End	2019-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2019-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	2122182840	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	CHIEF FIN. AND ADMIN. OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2020-11-11	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LAUREN CRESCI	PreparerPersonNm
PTIN	P01268493	PTIN
Phone	2126972299	PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	38.142.140.186	IPv4AddressTxt

Field	Value	IRS element (for citing)
IP	2020-11-11	IPDt
IP Tm	16:18:36	IPTm
IP Timezone	ES	IPTimezoneCd
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	C6B84DD1F518B96753207BD5099AA33ACBC10C80	AtSubmissionCreationDeviceId
At Submission Filing Device Id	A75ECF90F4EA679C298DF903E96775B34A8C9CB0	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2019	TaxYr
Build TS	2021-01-29 14:40:06Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	KENNETH M FARBER	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$30,394,667	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	TO SUPPORT RESEARCH TO PREVENT, TREAT AND CURE LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	21	VotingMembersGoverningBodyCnt
Voting Members Independent	21	VotingMembersIndependentCnt
Total Employee	52	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$15,396,535	PYContributionsGrantsAmt
CY Contributions Grants	$17,673,622	CYContributionsGrantsAmt
PY Program Service Revenue	$1,334,475	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,236,449	CYProgramServiceRevenueAmt
PY Investment Income	$2,296,486	PYInvestmentIncomeAmt
CY Investment Income	$2,148,621	CYInvestmentIncomeAmt
PY Other Revenue	$0	PYOtherRevenueAmt
CY Other Revenue	$0	CYOtherRevenueAmt
PY Total Revenue	$19,027,496	PYTotalRevenueAmt
CY Total Revenue	$21,058,692	CYTotalRevenueAmt
PY Grants And Similar Paid	$11,290,811	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$15,505,548	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$4,888,001	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$5,172,935	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$49,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$49,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$3,029,588	CYTotalFundraisingExpenseAmt
PY Other Expenses	$6,635,816	PYOtherExpensesAmt
CY Other Expenses	$6,083,559	CYOtherExpensesAmt
PY Total Expenses	$22,863,628	PYTotalExpensesAmt
CY Total Expenses	$26,811,042	CYTotalExpensesAmt
PY Revenues Less Expenses	-$3,836,132	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$5,752,350	CYRevenuesLessExpensesAmt
Total Assets BOY	$65,079,955	TotalAssetsBOYAmt
Total Assets EOY	$71,431,718	TotalAssetsEOYAmt
Total Liabilities BOY	$23,818,659	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$26,661,517	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$41,261,296	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$44,770,201	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE LUPUS RESEARCH ALLIANCE LEADS THE WORLD IN TRANSFORMING THE LIVES OF PEOPLE AFFECTED WITH LUPUS BY USING THE POWER OF SCIENCE TO DRIVE NEW TREATMENTS, PREVENT DISEASE PROGRESSION, AND FIND A CURE.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$11,776,654	ExpenseAmt
Grant	$10,878,438	GrantAmt
Desc	RESEARCH:THE LUPUS RESEARCH ALLIANCE IS THE LARGEST NON-GOVERNMENTAL, NON-PROFIT FUNDER OF LUPUS RESEARCH WORLDWIDE. THE ORGANIZATION AIMS TO TRANSFORM TREATMENT WHILE ADVANCING TOWARD A CURE BY FUNDING THE MOST INNOVATIVE LUPUS RESEARCH, FOSTERING DIVERSE SCIENTIFIC TALENT, AND DRIVING DISCOVERY TOWARD BETTER DIAGNOSTICS, IMPROVED TREATMENTS AND ULTIMATELY A CURE FOR LUPUS. THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD ARE COMPRISED OF TOP SCIENTIFIC EXPERTS WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA. SINCE ITS INCEPTION, THE LUPUS RESEARCH ALLIANCE HAS COMMITTED OVER $202 MILLION TO FUND LUPUS RESEARCH PROJECTS. IN 2019 ALONE, NEARLY $11 MILLION WAS AWARDED IN GRANTS FOR HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS THAT CAN LEAD TO A CURE: 1) A NEW INVESTIGATOR INITIATED CLINICAL TRIAL AWARD WAS MADE IN 2019 FOR OVER $2.5 MILLION OVER THREE YEARS THAT WILL EVALUATE THE EFFICACY OF ACE INHIBITORS IN COGNITIVE IMPAIRMENT ASSOCIATED WITH SLE. 2) 6 TARGET IDENTIFICATION IN LUPUS (TIL) THREE-YEAR GRANTS WITH A FOCUS OF IDENTIFYING NEW DRUG TARGETS AND HELPING FACILITATE EXPLORATION OF DRUG DEVELOPMENT WITH A TOTAL NEARLY $3.6 MILLION OVER THREE YEARS; 3) 6 NOVEL RESEARCH PROGRAM GRANTS THAT FOCUS ON INNOVATIVE EARLY-STAGE FUNDAMENTAL RESEARCH THAT ILLUMINATE THE DISEASE MECHANISM; AWARDED $1.8 MILLION OVER THREE YEARS;4) 2 DISTINGUISHED INNOVATOR AWARDS (DIA) FOCUS ON UNCOVERING THE UNDERLYING CAUSES OF LUPUS THAT CAN LEAD TO A CURE FOR $1 MILLION OVER TWO YEARS5) JOINT LUPUS RESEARCH ALLIANCE/PFIZER'S CENTERS FOR THERAPEUTIC INNOVATION (CTI) GRANTS WERE AWARDED FOR OVER $250,000 FOR ONE YEAR6) THE LUPUS INSIGHT PRIZE WAS AWARDED FOR $100,000. THIS AWARD RECOGNIZES AND FURTHERS WORK BY A LEADING RESEARCHER WHO HAS MADE A MAJOR CONTRIBUTION TO THE FIELD.7) THE LUPUS RESEARCH ALLIANCE SUPPORTED THE WORK OF THE LUPUS NEPHRITIS TRIALS NETWORK WITH A $200,000 AWARD - SUPPORTING COLLABORATIONS TO IDENTIFY AND VALIDATE THERAPEUTIC TARGETS FOR LUPUS NEPHRITIS.8) IN ADDITION, NEARLY $400,000 WAS FUNDED ON A STRATEGICALLY FOCUSED NON-PEER REVIEWED EFFORT TO HELP IDENTIFY WHERE LUPUS PATIENTS ARE IN THE US.THE LUPUS RESEARCH ALLIANCE'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LUPUS RESEARCH ALLIANCE AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LUPUS RESEARCH ALLIANCE'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$8,906,496	ExpenseAmt
Grant	$4,625,282	GrantAmt
Revenue	$1,236,449	RevenueAmt
Desc	SCIENTIFIC PROGRAMS:2019 WAS A YEAR OF CONSIDERABLE ACTIVITY WITHIN LUPUS RESEARCH ALLIANCE'S (LRA) SCIENTIFIC PROGRAM WITH THE IMPLEMENTATION OF LRA'S SCIENTIFIC STRATEGIC PLAN FOCUSING ON HETEROGENEITY. THE LUPUS RESEARCH ALLIANCE ENCOURAGES CROSS-SECTOR AND CROSS-DISCIPLINE PARTNERSHIPS TO FOSTER THE MOST INNOVATIVE AND PRODUCTIVE RESEARCH ENVIRONMENT. IN 2019, COLLABORATIVE MEETINGS WERE FUNDED BY THE LUPUS RESEARCH ALLIANCE WHERE RESEARCHERS WERE ENCOURAGED TO EXCHANGE IDEAS AND HELP THE LUPUS RESEARCH ALLIANCE TARGET NEW RESEARCH OPPORTUNITIES. THIS INCLUDED THE: ANNUAL FORUM FOR DISCOVERY WHERE FUNDED SCIENTISTS AND GUESTS SHARE THEIR PROGRESS; RESEARCH COMMITTEE MEETINGS WHERE MEMBERS OF OUR BOARD OF DIRECTORS AS WELL AS TOP-LEVEL RESEARCHERS DISCUSSED OUR PORTFOLIO AND UPCOMING STRATEGIC STEPS; SCIENTIFIC ADVISORY BOARD MEETINGS WHERE OUR ADVISORS REVIEW GRANT APPLICATION SUBMISSIONS AND DISCUSS FUTURE OVERALL RESEARCH STRATEGY FOR THE ORGANIZATION; LUPUS INDUSTRY COUNCIL MEETINGS WHERE INDUSTRY FOCUSES ON SOLVING SHARED OBSTACLES TO CLINICAL TRIALS; PATIENT RESEARCH AND ADVOCACY MEETINGS THAT ENGAGE THE LUPUS COMMUNITY IN UNDERSTANDING, PARTICIPATING IN AND ADVOCATING FOR RESEARCH FUNDING; AND LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN) MEETINGS WHERE TOP RESEARCHERS DISCUSS THE DESIGN AND PROGRESS FOR LUPUS CLINICAL TRIALS. THE LUPUS RESEARCH ALLIANCE FOUNDED LUPUS THERAPEUTICS, LLC AS AN AFFILIATE OF THE LRA IN 2018 TO RUN LUCIN TO ADVANCE CLINICAL TRIALS AND FACILITATE THE DEVELOPMENT OF MUCH NEEDED NEW LUPUS TREATMENTS. THE LUPUS RESEARCH ALLIANCE PROVIDED NEARLY $4.5 MILLION IN GRANTS TO TOP ACADEMIC CENTERS TO FOSTER CLINICAL TRIAL PARTICIPATION IN LUCIN. LUPUS THERAPEUTICS (LT) CONTINUES TO HAVE A DIVERSE PORTFOLIO OF ONGOING CLINICAL TRIALS WITHIN LUCIN AND HAS COMPLETED ENROLLMENT MILESTONES FOR FIVE CLINICAL TRIALS AND REPORTED RESULTS FOR ONE TRIAL. MOREOVER, LT HAS A HEALTHY PIPELINE OF NEW BUSINESS DEVELOPMENT DISCUSSIONS WITH INDUSTRY RELATED TO PERFORMING ADVISORY SERVICES AND/OR CONDUCTING PROSPECTIVE CLINICAL TRIALS WITHIN THE NETWORK. IN 2019, THERE WERE ELEVEN ACTIVE STUDIES MANAGED VIA LUPUS THERAPEUTICS IN CONJUNCTION WITH THE LUCIN NETWORK WITH OBJECTIVES RANGING FROM;- EVALUATING THE SAFETY AND EFFICACY OF BRAND-NEW THERAPEUTICS FROM 6 DIFFERENT INDUSTRY PARTNERS- EVALUATING THE BENEFITS OF USING TIMED-RELEASED PREDNISONE - USING MRI TECHNOLOGY TO ASSESS LUPUS NEPHRITIS - TESTING THE BENEFITS OF KRILL OIL AS A MEDICAL FOOD- TESTING A SMARTPHONE APP THAT ALLOWS LUPUS PATIENTS TO REPORT SYMPTOMS IN REAL TIME AND PROVIDE MORE INFORMATION TO THEIR DOCTORS MORE EASILY. THE LUPUS RESEARCH ALLIANCE'S FORUM FOR DISCOVERY WAS A THREE DAY MEETING WITH OVER 120 DEDICATED RESEARCH SCIENTISTS, PHARMACEUTICAL INDUSTRY REPRESENTATIVES, AND LUPUS RESEARCH ALLIANCE ADVOCATES AND PARTNERS FOCUSED ENTIRELY ON LUPUS RESEARCH FOR THE THREE DAYS AT THIS ANNUAL SCIENTIFIC CONFERENCE. ALL LRA- FUNDED RESEARCHERS WERE GIVEN THE OPPORTUNITY TO PRESENT BY POSTER OR PRESENTATION THEIR MOST UP-TO-DATE RESEARCH, WHILE THE RICH DISCUSSIONS SERVED AS AN INCUBATOR TO SPARK IDEAS FOR NEW RESEARCH DIRECTIONS. IN ADDITION TO THE MANY EXCITING ADVANCES SHARED, ATTENDEES RETURNED TO THEIR LABS INSPIRED BY CRITICAL INSIGHTS FROM THE DISTINGUISHED KEYNOTE SPEAKERS.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$846,235	ExpenseAmt
Grant	$1,828	GrantAmt
Desc	PUBLIC POLICY:THE MAIN GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM ARE TO: EDUCATE MEMBERS OF CONGRESS ABOUT ISSUES OF PRIORITY TO THE LUPUS COMMUNITY; INCREASE FEDERAL FUNDING FOR LUPUS RESEARCH BY INCREASING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS, AND SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE VETERANS ADMINISTRATION AND DEPARTMENT OF DEFENSE (DOD). VOLUNTEERS ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LUPUS RESEARCH ALLIANCE ONGOING PUBLIC POLICY PROGRAM EFFORTS, SIGNIFICANT FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) OPERATED BY THE ARMY MEDICAL RESEARCH AND MATERIEL COMMAND. FIRST, THE LUPUS RESEARCH ALLIANCE WAS RESPONSIBLE FOR PERSUADING CONGRESS TO INCLUDE LUPUS IN ITS LIST OF DESIGNATED DISEASES ELIGIBLE FOR FUNDING OVER THE PAST TEN YEARS IN THE PEER REVIEWED MEDICAL PROGRAM. MOST RECENTLY, LUPUS RESEARCH ALLIANCE ADVOCACY SUCCEEDED IN THE ESTABLISHMENT IN 2017 OF THE LUPUS RESEARCH PROGRAM UNDER THE CDMRP. OVER THE PROGRAM'S FIRST THREE YEARS, $5 MILLION WAS EARMARKED EACH YEAR SPECIFICALLY FOR LUPUS; THROUGH THE LUPUS RESEARCH ALLIANCE'S CONTINUED EFFORTS THIS AMOUNT WAS INCREASED TO $10M IN THE DEFENSE HEALTH PROGRAM IN THE FY 2020 DEFENSE APPROPRIATIONS BILL AND IS AT $10M IN THE HOUSE DEFENSE APPROPRIATIONS BILL.IN 2017, THE LUPUS PATIENT-FOCUSED DRUG DEVELOPMENT (PFDD) INITIATIVE WAS LAUNCHED TO BRING THE VOICE OF THE PATIENT TO DRUG DEVELOPMENT. THIS COLLABORATIVE EFFORT WITH THE LUPUS AND ALLIED DISEASES ASSOCIATION (LADA) AND LUPUS FOUNDATION OF AMERICA (LFA) WAS DESIGNED TO PROVIDE THE FOOD AND DRUG ADMINISTRATION (FDA) WITH PERSPECTIVES FROM PEOPLE WITH LUPUS, ADVOCATES AND CAREGIVERS TO HELP INFORM THE FDA'S DECISIONS AND OVERSIGHT DURING THE DRUG DEVELOPMENT AND REVIEW PROCESSES. A REPORT WAS SENT TO THE FDA IN SPRING 2018. THE LRA CONTINUES TO WORK TO BRING THE VOICE OF THE PATIENT TO THE DRUG REVIEW PROCESS BY RESPONDING TO RELEVANT CALLS FROM THE FDA FOR COMMENTS. ONGOING ADVOCACY FOCUSES ON ENSURING LEGISLATION THAT SECURES THE FEDERAL FUNDING SUPPORT NECESSARY TO AFFORD INVESTIGATORS THE RESOURCES TO FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE TREATMENT OF LUPUS. EVERY YEAR, THE LRA BRINGS ADVOCATES FROM ACROSS THE COUNTRY TO WASHINGTON DC FOR A DAY OF ADVOCACY TRAINING AND PRE-SCHEDULED MEETINGS WITH LEGISLATORS. THE GOAL IS TO INCREASE AWARENESS OF LUPUS AND THE IMPACT IT HAS ON PEOPLES' DAILY LIVES TO MEMBERS OF CONGRESS AND TO REQUEST THEIR SUPPORT FOR INCREASED FUNDING FOR LUPUS RESEARCH FROM FEDERAL PROGRAMS. TOMORROW'S ADVANCES DEPEND ON TODAY'S INVESTMENTS IN NIH RESEARCH.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$21,529,385	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	62	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	52	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	21	GoverningBodyVotingMembersCnt
Independent Voting Member	21	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10 FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (34 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
IRA AKSELRAD
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
RICHARD K DESCHERER
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
BRENDA BLACKMON
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
NEIL J BURMEISTER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JEROME CHAZEN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
THOMAS O DANIEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATIE DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SIR MARC FELDMANN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOTI FERDER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
LOUIS LUCIDO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOLLY MCCABE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
CAROL WEISMAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KENNETH M FARBER
CEO AND PRESIDENT	40.00		Yes (X)	$416,526	$0	$72,766
DEBRA ROSE
CHIEF FINANCE OFFICER	40.00		Yes (X)	$195,821	$0	$42,642
ANDREA O'NEILL
EXECUTIVE DIRECTOR	40.00			$246,253	$0	$47,078	Yes (X)
ALBERT ROY
EXECUTIVE DIRECTOR, LUCIN	40.00			$261,724	$0	$62,741	Yes (X)
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	40.00			$285,631	$0	$57,047	Yes (X)
DIANE GROSS
NATIONAL DIRECTOR OF ADVOC	40.00			$130,289	$0	$35,290		Yes (X)
MARGY MEISLIN
EDITORIAL & PR DIRECTOR	40.00			$127,882	$0	$37,177		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	40.00			$165,082	$0	$34,323		Yes (X)
DENISE PRIOR
DIRECTOR OF COMMUNICATIONS	40.00			$136,357	$0	$19,731		Yes (X)
JONATHAN MARKS
DIRECTOR OF CORPORATE	40.00			$139,123	$0	$62,475		Yes (X)
MARGARET P DOWD
FORMER CO-CEO AND CO-PRESIDENT	40.00			$203,823	$0	$0			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,308,511	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$471,270	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	11	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (4 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
AMPEL BIOSOLUTIONS LLC
250 WEST MAIN STREET SUITE 300	CHARLOTTESVILLE	VA	22902	LUCIN CLINICAL TRIALS	$325,051
KIM KAISER & ASSOCIATES LLC
151 CENTRE AVE 1A	NEW ROCHELLE	NY	10805	PHARMA RELATIONS CONSULTANT	$265,585
KDH RESEACH AND COMMUNICATION INC
1175 PEACH TREE STREET NE	ATLANTA	GA	30361	PATIENT ENGAGEMENT CONSULTANTS	$140,479
CAVAROCCHI RUSCIA DENNIS & ASSOCIATES LL
600 MARLAND AVE SW SUITE 835 W	WASHINGTON	DC	20024	PUBLIC POLICY CONSULTANTS	$102,027

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	4	CntrctRcvdGreaterThan100KCnt
Fundraising	$5,355,038	FundraisingAmt
All Other Contributions	$12,318,584	AllOtherContributionsAmt
Noncash Contributions	$607,005	NoncashContributionsAmt
Total Contributions	$17,673,622	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$1,236,449	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,236,449	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,236,449	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,445,946	TotalRevenueColumnAmt
Exclusion	$1,445,946	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$9,522,480	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$8,819,805	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$702,675	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$702,675	TotalRevenueColumnAmt
Exclusion	$702,675	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$516,170	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$5,355,038	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$516,170	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$21,058,692	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,236,449	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$2,148,621	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$13,609,455	TotalAmt
Program Services	$13,609,455	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$1,828	TotalAmt
Program Services	$1,828	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,894,265	TotalAmt
Program Services	$1,894,265	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,612,177	TotalAmt
Program Services	$778,927	ProgramServicesAmt
Management And General	$361,217	ManagementAndGeneralAmt
Fundraising	$472,033	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$2,615,038	TotalAmt
Program Services	$1,114,639	ProgramServicesAmt
Management And General	$603,948	ManagementAndGeneralAmt
Fundraising	$896,451	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$177,941	TotalAmt
Program Services	$75,962	ProgramServicesAmt
Management And General	$38,809	ManagementAndGeneralAmt
Fundraising	$63,170	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$502,236	TotalAmt
Program Services	$217,956	ProgramServicesAmt
Management And General	$115,605	ManagementAndGeneralAmt
Fundraising	$168,675	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$265,543	TotalAmt
Program Services	$118,367	ProgramServicesAmt
Management And General	$60,581	ManagementAndGeneralAmt
Fundraising	$86,595	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$150,000	TotalAmt
Program Services	$150,000	ProgramServicesAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$79,683	TotalAmt
Program Services	$73,312	ProgramServicesAmt
Management And General	$5,396	ManagementAndGeneralAmt
Fundraising	$975	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$65,399	TotalAmt
Management And General	$65,399	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$104,186	TotalAmt
Program Services	$104,186	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$49,000	TotalAmt
Fundraising	$49,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$122,792	TotalAmt
Management And General	$122,792	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,041,750	TotalAmt
Program Services	$705,958	ProgramServicesAmt
Management And General	$156,176	ManagementAndGeneralAmt
Fundraising	$179,616	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$115,567	TotalAmt
Program Services	$43,339	ProgramServicesAmt
Management And General	$54,124	ManagementAndGeneralAmt
Fundraising	$18,104	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$514,570	TotalAmt
Program Services	$255,833	ProgramServicesAmt
Management And General	$198,927	ManagementAndGeneralAmt
Fundraising	$59,810	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,087,395	TotalAmt
Program Services	$549,844	ProgramServicesAmt
Management And General	$221,269	ManagementAndGeneralAmt
Fundraising	$316,282	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$440,447	TotalAmt
Program Services	$292,646	ProgramServicesAmt
Management And General	$47,496	ManagementAndGeneralAmt
Fundraising	$100,305	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$829,731	TotalAmt
Program Services	$751,222	ProgramServicesAmt
Management And General	$62,651	ManagementAndGeneralAmt
Fundraising	$15,858	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$172,125	TotalAmt
Program Services	$76,726	ProgramServicesAmt
Management And General	$39,269	ManagementAndGeneralAmt
Fundraising	$56,130	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$63,877	TotalAmt
Program Services	$39,018	ProgramServicesAmt
Management And General	$10,233	ManagementAndGeneralAmt
Fundraising	$14,626	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CLINICAL STUDIES	$512,086	$512,086
PRINTING & PUBLICATIONS	$229,776	$48,773	$27,194	$153,809
WALKATHON PROMOTIONAL E	$216,339			$216,339
DATA PROCESSING	$106,851	$27,331	$18,926	$60,594

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$230,985	TotalAmt
Program Services	$87,712	ProgramServicesAmt
Management And General	$42,057	ManagementAndGeneralAmt
Fundraising	$101,216	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$26,811,042	TotalAmt
Program Services	$21,529,385	ProgramServicesAmt
Management And General	$2,252,069	ManagementAndGeneralAmt
Fundraising	$3,029,588	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,086,022	BOYAmt
EOY	$3,724,504	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,120,958	BOYAmt
EOY	$873,961	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,778,785	BOYAmt
EOY	$2,579,649	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$157,680	BOYAmt
EOY	$373,770	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$168,860	BOYAmt
EOY	$162,892	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,097,598	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$603,119	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$573,771	BOYAmt
EOY	$494,479	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$52,069,569	BOYAmt
EOY	$61,719,649	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,514,965	BOYAmt
EOY	$398,731	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$609,345	BOYAmt
EOY	$1,104,083	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$65,079,955	BOYAmt
EOY	$71,431,718	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$465,895	BOYAmt
EOY	$438,885	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$22,572,203	BOYAmt
EOY	$25,422,502	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$780,561	BOYAmt
EOY	$800,130	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$23,818,659	BOYAmt
EOY	$26,661,517	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$36,803,806	BOYAmt
EOY	$39,293,680	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,457,490	BOYAmt
EOY	$5,476,521	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$41,261,296	BOYAmt
EOY	$44,770,201	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$65,079,955	BOYAmt
EOY	$71,431,718	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$5,752,350	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$7,845,756	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$1,415,499	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$15,274,909	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$19,101,537	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,693,133	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,396,535	CurrentTaxYearMinus1YearAmt
Current Tax Year	$17,673,622	CurrentTaxYearAmt
Total	$91,139,736	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$15,274,909	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$19,101,537	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,693,133	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,396,535	CurrentTaxYearMinus1YearAmt
Current Tax Year	$17,673,622	CurrentTaxYearAmt
Total	$91,139,736	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$33,190,250	SubstantialContributorsTotAmt
Public Support Total170	$57,949,486	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,817,934	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,227,336	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,314,981	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,336,303	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,445,946	CurrentTaxYearAmt
Total	$7,142,500	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$118	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	-$440	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$204	CurrentTaxYearMinus2YearsAmt
Total	-$118	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$98,282,118	TotalSupportAmt
Gross Receipts Rltd Activities	$2,815,330	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.58960	PublicSupportCY170Pct
Public Support PY170	0.56890	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$846,235	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$846,235	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$25,964,807	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$26,811,042	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$541,256	CurrentYearMinus3Amt
Current Year Minus2	$776,350	CurrentYearMinus2Amt
Current Year Minus1	$788,377	CurrentYearMinus1Amt
Current Year	$846,235	CurrentYearAmt
Total	$2,952,218	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$46,122,925	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,404,231	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,713,456	OtherExpendituresAmt
End Year Balance	$51,813,456	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,742,397	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$2,936,193	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,683,279	OtherExpendituresAmt
End Year Balance	$46,122,925	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$45,863,827	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,478,913	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,600,343	OtherExpendituresAmt
End Year Balance	$51,742,397	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$44,173,045	BeginningYearBalanceAmt
Investment Earnings Or Losses	$4,257,605	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,566,823	OtherExpendituresAmt
End Year Balance	$45,863,827	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$48,100,254	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$1,498,278	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,428,931	OtherExpendituresAmt
End Year Balance	$44,173,045	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$424,912	OtherCostOrOtherBasisAmt
Depreciation	$141,550	DepreciationAmt
Book Value	$283,362	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$672,686	OtherCostOrOtherBasisAmt
Depreciation	$461,569	DepreciationAmt
Book Value	$211,117	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$494,479	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	DEFERRED RENT	Desc
Amt	$800,130	Amt

Field	Value	IRS element (for citing)
Total Liability	$800,130	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$30,031,656	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$7,845,756	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$1,250,000	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	$9,095,756	RevenueNotReportedAmt
Revenue Subtotal	$20,935,900	RevenueSubtotalAmt
Investment Expenses Not Incld	$122,792	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$122,792	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$21,058,692	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$26,522,751	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$26,522,751	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$122,792	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$165,499	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$288,291	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$26,811,042	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR RESEARCH PROGRAM GRANTS. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	RETURN OF GRANTS & ADJUSTMENTS 165,499.
PART PART XII, LINE 4B	UNUSED PORTIONS OF GRANTS RETURNED TO LRA THAT WERE PAID IN PREVIOUS YEARS IN THE AMOUNT OF $5,499. THESE AMOUNTS ARE RECONCILING ITEMS BETWEEN THE REVENUE AND EXPENSES FROM THE AUDITED FINANCIAL STATEMENTS AND THOSE REPORTED ON FORM 990.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxt	OfficesOfficesCnt	EmployeeEmployeeCnt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	0	0	GRANTS TO RECIPIENTS	$1,254,265
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	0	0	GRANTS TO RECIPIENTS	$640,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,894,265	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,894,265	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (10 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Valuation Method UsedValuationMethodUsedDesc
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$80,000	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$307,535	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$946,730	CHECK	BOOK

Field	Value	IRS element (for citing)
Total501c3 Org	5	Total501c3OrgCnt
Total Other Org	5	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, THE SPONSORING INSTITUTION (SI) MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: -CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. -AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THOUGHT OUT THE PROJECT PERIOD. -AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. -AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. -AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. -TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING FORUM FOR DISCOVERY. -CONFIRMATION THAT THERE IS NO OTHER ACTIVE OF PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." -IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. -AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. -ALL SIS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: O PERIODIC PROGRESS REPORTS O PERIODIC BUDGET RECONCILIATIONS -ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA -THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND VERBAL OR POSTER PRESENTATIONS -THE SI MUST SUBMIT A COPY OF THE IRS OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	845 THIRD AVENUE 6TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10022	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$2,982,628	GrossReceiptsAmt
Retained By Contractor	$49,000	RetainedByContractorAmt
Net To Organization	$2,982,628	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$2,982,628	TotalGrossReceiptsAmt
Total Retained By Contractors	$49,000	TotalRetainedByContractorsAmt
Total Net To Organization	$2,982,628	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$2,982,628	GrossReceiptsEvent1Amt
Charitable Contri Event1	$2,654,211	CharitableContriEvent1Amt
Gross Revenue Event1	$328,417	GrossRevenueEvent1Amt
Food And Beverage Event1	$181,157	FoodAndBeverageEvent1Amt
Other Direct Expenses Event1	$147,260	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$1,361,711	GrossReceiptsEvent2Amt
Charitable Contri Event2	$1,331,735	CharitableContriEvent2Amt
Gross Revenue Event2	$29,976	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$29,976	OtherDirectExpensesEvent2Amt
Other Events Total	2	OtherEventsTotalCnt
Gross Receipts Other Events	$1,526,869	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$1,369,092	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$157,777	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$157,777	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$5,871,208	GrossReceiptsTotalAmt
Charitable Contributions Tot	$5,355,038	CharitableContributionsTotAmt
Gross Revenue Total Events	$516,170	GrossRevenueTotalEventsAmt
Food And Beverage Total Events	$181,157	FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events	$335,013	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$516,170	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED ALR'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/19 - 12/31/19 WAS $49,000 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (55 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE	BRONX	NY	10461	472209056	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	02215	042103881	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL
77 AVENUE LOUIS PASTEUR	BOSTON	MA	02115	042312909	501(C)(3)	$777,449	BOOK	LUPUS RESEARCH
BROAD INSTITUTE INC
SEVEN CAMBRIDGE CENTER	CAMBRIDGE	MA	02142	263428781	501(C)(3)	$13,470	BOOK	LUPUS RESEARCH
CHILDREN'S HOSPITAL BOSTON
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$195,640	BOOK	LUPUS RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
154 HAVEN AVE 2ND FL	NEW YORK	NY	10032	133598093	501(C)(3)	$122,514	BOOK	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$246,000	BOOK	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$104,952	BOOK	LUPUS RESEARCH
LOYOLA UNIVERSITY OF CHICAGO
820 N MICHIGAN AVE	CHICAGO	IL	60611	361408475	501(C)(3)	$300,000	BOOK	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985	SECTION 115 - SC STA	$90,381	BOOK	LUPUS RESEARCH
NATIONAL MINORITY QUALITY FORUM INC
1201 15TH STREET NW SUITE 340	WASHINGTON	DC	20005	311750942	501(C)(3)	$379,800	BOOK	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$100,183	BOOK	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL	WESTBURY	NY	11590	112673595	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK STREET	EVANSTON	IL	60208	362167818	501(C)(3)	$380,000	BOOK	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET	OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$380,000	BOOK	LUPUS RESEARCH
PENNSYLVANIA STATE UNIVERSITY
ONE OLD MAIN	UNIVERSITY PARK	PA	16802	246000376	501(C)(3)	$96,613	BOOK	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE
5171 CALIFORNIA AVENUE STE 150	IRVINE	CA	92697	952226406	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 WEST CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
ST JUDE CHILDREN'S HOSPITAL
262 DANNY THOMAS PL	MEMPHIS	TN	38105	620646012	501(C)(3)	$580,158	BOOK	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
TEMPLE UNIVERSITY
1801 N BROAD STREET	PHILADELPHIA	PA	19122	231365971	501(C)(3)	$90,616	BOOK	LUPUS RESEARCH
THE CENTER FOR INFORMATION & STUDY ON CLINICAL RESARCH PARTICPATION
56 COMMERCIAL WHARF EAST	BOSTON	MA	02110	200588190	501(C)(3)	$5,000	BOOK	LUPUS RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$3,107,722	BOOK	LUPUS RESEARCH
THE METROHEALTH SYSTEM
2500 METROHEALTH DRIVE	CLEVELAND	OH	44109	346004382	SECTION 115 - OH STA	$80,000	BOOK	LUPUS RESEARCH
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	311702164	SECTION 115 - OH STA	$80,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD STE 620	LOS ANGELES	CA	90024	956006143	501(C)(3)	$179,446	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$105,000	BOOK	LUPUS RESEARCH
THE RESEARCH FOUNDATION OF SUNY
35 STATE STREET	ALBANY	NY	12201	141368361	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501	CHICAGO	IL	60637	362177139	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$183,334	BOOK	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$637,993	BOOK	LUPUS RESEARCH
UNIVERISTY OF SOUTHERN CALIFORNIA
1640 MARENGO STREET 7TH FL	LOS ANGELES	CA	90033	951642394	501(C)(3)	$90,377	BOOK	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$672,197	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$88,932	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINESVILLE	FL	32611	596002052	FL STATE GOVERNMENT	$86,020	BOOK	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD	HOUSTON	TX	77004	746001399	501(C)(3)	$10,312	BOOK	LUPUS RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGON STREET 4TH FL	BALTIMORE	MD	21201	521830242	SECTION 115 - MD STA	$80,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167325	MA STATE GOVERNMENT	$96,742	BOOK	LUPUS RESEARCH
UNIVERSITY OF MIAMI
1320 S DIXIE HIGHWAY GABLES ONE	CORAL GABLES	FL	33146	590624458	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH	TOWER 650
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$972,198	BOOK	LUPUS RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	501(C)(3)	$90,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF NEBRASKA
987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	470049123	501(C)(3)	$8,932	BOOK	LUPUS RESEARCH
UNIVERSITY OF NORTH TEXAS HEALTH SCIENCE CENTER AT FORT WORTH
3500 CAMP BOWIE BLVD	FORT WORTH	TX	76107	710986983	501(C)(3)	$6,020	BOOK	LUPUS RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$97,864	BOOK	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
3917 UNIVERSITY WAY NE	SEATTLE	WA	98195	916001537	SECTION 115 - WA STA	$86,713	BOOK	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	746000203	TX STATE GOVERNMENT	$86,567	BOOK	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE	NASHVILLE	TN	37232	352528741	501(C)(3)	$1,026,730	BOOK	LUPUS RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
WALLACE RHEUMATIC STUDIES CENTER LLC
8737 BENVERLY BLVD STE 301	W HOLLYWOOD	CA	90048	455434561	501(C)(3)	$80,000	BOOK	LUPUS RESEARCH
YAEL UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$93,425	BOOK	LUPUS RESEARCH
UNIVERSITY OF TEXAS AT SAN ANTONIO
7703 FLOYS CURL DRIVE	SAN ANTONIO	TX	782293900	746000203	TX STATE GOVERNMENT	$580,155	BOOK	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	46	Total501c3OrgCnt
Total Other Org	9	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, THE SPONSORING INSTITUTION (SI) MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: -CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. -AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THOUGHT OUT THE PROJECT PERIOD. -AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. -AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. -AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. -TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING FORUM FOR DISCOVERY. -CONFIRMATION THAT THERE IS NO OTHER ACTIVE OF PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." -IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. -AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. -ALL SIS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: 1 PERIODIC PROGRESS REPORTS 2 PERIODIC BUDGET RECONCILIATIONS -ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA -THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND VERBAL OR POSTER PRESENTATIONS -THE SI MUST SUBMIT A COPY OF THE IRS OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (1)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (11 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
KENNETH M FARBER
CEO AND PRESIDENT	$360,000	$0	$50,000	$0	$6,526	$0	$28,000	$0	$44,766	$0	$489,292	$0	$0	$0
DEBRA ROSE
CHIEF FINANCE OFFICER	$178,605	$0	$15,000	$0	$2,216	$0	$21,047	$0	$21,595	$0	$238,463	$0	$0	$0
ANDREA O'NEILL
EXECUTIVE DIRECTOR	$204,750	$0	$40,000	$0	$1,503	$0	$26,733	$0	$20,345	$0	$293,331	$0	$0	$0
ALBERT ROY
EXECUTIVE DIRECTOR, LUCIN	$220,752	$0	$40,000	$0	$972	$0	$20,860	$0	$41,881	$0	$324,465	$0	$0	$0
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	$244,359	$0	$40,000	$0	$1,272	$0	$22,749	$0	$34,298	$0	$342,678	$0	$0	$0
DIANE GROSS
NATIONAL DIRECTOR OF ADVOC	$127,435	$0	$2,000	$0	$854	$0	$13,420	$0	$21,870	$0	$165,579	$0	$0	$0
MARGY MEISLIN
EDITORIAL & PR DIRECTOR	$125,000	$0	$1,000	$0	$1,882	$0	$12,600	$0	$24,577	$0	$165,059	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	$161,029	$0	$0	$0	$4,053	$0	$17,713	$0	$16,610	$0	$199,405	$0	$0	$0
DENISE PRIOR
DIRECTOR OF COMMUNICATIONS	$69,436	$0	$0	$0	$66,921	$0	$2,381	$0	$17,350	$0	$156,088	$0	$0	$0
JONATHAN MARKS
DIRECTOR OF CORPORATE	$135,403	$0	$3,000	$0	$720	$0	$15,224	$0	$47,251	$0	$201,598	$0	$0	$0
MARGARET P DOWD
FORMER CO-CEO AND CO-PRESIDENT	$203,823	$0	$0	$0	$0	$0	$0	$0	$0	$0	$203,823	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 4A	FormAndLineReferenceDesc
Explanation	DENISE PRIOR, HIGHLY COMPENSATED EMPLOYEE, RECIEVED $59,517 SEVERANCE PAYMENT IN 2019.	ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	7	ContributionCnt
Noncash Contributions Rpt F990	$113,505	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Real Estate Residential RealEstateResidentialGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	1	ContributionCnt
Noncash Contributions Rpt F990	$493,500	NoncashContributionsRptF990Amt
Method Of Determining Revenues	APPRAISED VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS. LRA HIRED AN AGENT TO SELL A PROPERTY THAT WAS DONATED TO LRA	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2	NEIL J. BURMEISTER (DIRECTOR) AND IRA AKSELRAD (DIRECTOR) HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION BY OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S SENIOR OFFICERS, THE CHIEF FINANCE OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE SEPTEMBER MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE GOVERNANCE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2018, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, ANNUAL MERIT ADJUSTMENTS AND BONUSES FOR ALL STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	REFUND OF GRANTS 165,499. CANCELLED GRANTS 1,250,000.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET AMBROSE, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY AMBROSE AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE AMBROSE EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET AMBROSE.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS THERAPEUTICS LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	2550 SOUTH CLARK SUITE 670	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22202	ZIPCd

Field	Value	IRS element (for citing)
EIN	823984908	EIN
Primary Activities	LRA'S SCIENTIFIC PROGRAMS	PrimaryActivitiesTxt
Legal Domicile State	VA	LegalDomicileStateCd
Total Income	$1,236,449	TotalIncomeAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	YES	BusinessNameLine1Txt