FURP.ORG / PUBLIC DATA EXPLORER

DYSAUTONOMIA INTERNATIONAL INC: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
DYSAUTONOMIA INTERNATIONAL INC (EIN 45-5437249)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-11-16
IRS object ID
202013219349303871
Schema version
2019v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-11-16T07:23:38-08:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN112883699PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SABEL & OPLINGER CPA PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 1307AddressLine1Txt
CitySOUTHAMPTONCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11969ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN455437249EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DYSAUTONOMIA INTERNATIONAL INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlDYSABusinessNameControlTxt
Phone6312021720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 596AddressLine1Txt
CityEAST MORICHESCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11940ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSHANNON KOPLITZPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2020-11-16SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMARY ANN MENDEL CPAPreparerPersonNm
PTINP00551302PTIN
Phone6312832370PhoneNum
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSHANNON KOPLITZPrincipalOfficerNm
Gross Receipts$1,331,465GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.DYSAUTONOMIAINTERNATIONAL.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2012FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTo increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.ActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee6TotalEmployeeCnt
Total Volunteers425TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,208,581PYContributionsGrantsAmt
CY Contributions Grants$1,082,127CYContributionsGrantsAmt
PY Program Service Revenue$193,039PYProgramServiceRevenueAmt
CY Program Service Revenue$172,735CYProgramServiceRevenueAmt
PY Investment Income$1,446PYInvestmentIncomeAmt
CY Investment Income$1,597CYInvestmentIncomeAmt
PY Other Revenue$77,763PYOtherRevenueAmt
CY Other Revenue$29,924CYOtherRevenueAmt
PY Total Revenue$1,480,829PYTotalRevenueAmt
CY Total Revenue$1,286,383CYTotalRevenueAmt
PY Grants And Similar Paid$393,645PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$808,670CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$150,291PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$358,431CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$70,707CYTotalFundraisingExpenseAmt
PY Other Expenses$394,542PYOtherExpensesAmt
CY Other Expenses$473,514CYOtherExpensesAmt
PY Total Expenses$938,478PYTotalExpensesAmt
CY Total Expenses$1,640,615CYTotalExpensesAmt
PY Revenues Less Expenses$542,351PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$354,232CYRevenuesLessExpensesAmt
Total Assets BOY$1,787,780TotalAssetsBOYAmt
Total Assets EOY$1,902,775TotalAssetsEOYAmt
Total Liabilities BOY$239,955TotalLiabilitiesBOYAmt
Total Liabilities EOY$709,182TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,547,825NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,193,593NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTo increase awareness of Dysautonomia within the medical community and the generalpublic and raise funds for dysautonomia research.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$853,114ExpenseAmt
Grant$808,670GrantAmt
DescProviding research funding for projects at major University Research Centers.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$382,664ExpenseAmt
Revenue$233,505RevenueAmt
DescConferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$126,944ExpenseAmt
Revenue$22,553RevenueAmt
DescClinician education.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$77,717TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Revenue$57,945TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$1,440,439TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document4IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee6EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersYes (true)ElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTXStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSHANNON KOPLITZPersonNm
Phone6312021720PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 596AddressLine1Txt
CityEAST MORICHESCityNm
State AbbreviationNYStateAbbreviationCd
ZIP11940ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (4 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
LAUREN STILES JD
President60.000.00Yes (X)$115,385$0$0
JODI PARKER
Vice President1.000.00Yes (X)$0$0$0
JACQUELINE RUTTER GULLY
Secretary25.000.00Yes (X)$0$0$0
CHRISTINE JAGDFELD
Treasurer25.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$115,385TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$71,726FundraisingAmt
All Other Contributions$1,010,401AllOtherContributionsAmt
Noncash Contributions$67,342NoncashContributionsAmt
Total Contributions$1,082,127TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescCONFERENCESDesc
Business541700BusinessCd
Total Revenue Column$172,735TotalRevenueColumnAmt
Related Or Exempt Func Income$172,735RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$172,735TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,597TotalRevenueColumnAmt
Related Or Exempt Func Income$1,597RelatedOrExemptFuncIncomeAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$10,110FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$71,726ContriRptFundraisingEventAmt
Fundraising Direct Expenses$30,362FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$20,252TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$20,596GrossSalesOfInventoryAmt
Cost Of Goods Sold$14,720CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,876TotalRevenueColumnAmt
Related Or Exempt Func Income$5,876RelatedOrExemptFuncIncomeAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescGRANTS RETURNEDDesc
Business900099BusinessCd
Total Revenue Column$44,300TotalRevenueColumnAmt
Related Or Exempt Func Income$44,300RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$44,300OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,286,383TotalRevenueColumnAmt
Related Or Exempt Func Income$224,508RelatedOrExemptFuncIncomeAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$191,502TotalAmt
Program Services$191,502ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$617,168TotalAmt
Program Services$617,168ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$115,385TotalAmt
Program Services$108,462ProgramServicesAmt
Management And General$5,769ManagementAndGeneralAmt
Fundraising$1,154FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$208,747TotalAmt
Program Services$113,783ProgramServicesAmt
Management And General$68,321ManagementAndGeneralAmt
Fundraising$26,643FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$9,684TotalAmt
Program Services$6,487ProgramServicesAmt
Management And General$2,422ManagementAndGeneralAmt
Fundraising$775FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$24,615TotalAmt
Program Services$17,813ProgramServicesAmt
Management And General$4,360ManagementAndGeneralAmt
Fundraising$2,442FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$500TotalAmt
Management And General$500ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$10,550TotalAmt
Management And General$10,550ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$67,867TotalAmt
Program Services$54,078ProgramServicesAmt
Management And General$12,685ManagementAndGeneralAmt
Fundraising$1,104FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$36,339TotalAmt
Program Services$34,355ProgramServicesAmt
Management And General$94ManagementAndGeneralAmt
Fundraising$1,890FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$4,741TotalAmt
Management And General$4,741ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$15,901TotalAmt
Program Services$8,070ProgramServicesAmt
Management And General$1,897ManagementAndGeneralAmt
Fundraising$5,934FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$6,432TotalAmt
Program Services$4,309ProgramServicesAmt
Management And General$1,608ManagementAndGeneralAmt
Fundraising$515FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$54,286TotalAmt
Program Services$53,124ProgramServicesAmt
Management And General$210ManagementAndGeneralAmt
Fundraising$952FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$2,560TotalAmt
Program Services$1,715ProgramServicesAmt
Management And General$640ManagementAndGeneralAmt
Fundraising$205FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$5,541TotalAmt
Program Services$3,712ProgramServicesAmt
Management And General$1,386ManagementAndGeneralAmt
Fundraising$443FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
conferences$174,226$174,226
SUPPLIES$32,545$26,159$6,304$82
BANK FEES$16,786$1,934$793$14,059
Postage and Shipping$16,001$3,228$558$12,215

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$29,239TotalAmt
Program Services$20,314ProgramServicesAmt
Management And General$6,631ManagementAndGeneralAmt
Fundraising$2,294FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,640,615TotalAmt
Program Services$1,440,439ProgramServicesAmt
Management And General$129,469ManagementAndGeneralAmt
Fundraising$70,707FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,685,733BOYAmt
EOY$1,819,291EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,372BOYAmt
EOY$69,934EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$6,392EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$96,655BOYAmt
EOY$644EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$8,743LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$3,729LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$4,020BOYAmt
EOY$5,014EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$1,500EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,787,780BOYAmt
EOY$1,902,775EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$113,183BOYAmt
EOY$194,849EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$126,047BOYAmt
EOY$514,333EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$725BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$239,955BOYAmt
EOY$709,182EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,547,825BOYAmt
EOY$1,193,593EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,547,825BOYAmt
EOY$1,193,593EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,787,780BOYAmt
EOY$1,902,775EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$354,232ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$389,645CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$474,437CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$801,282CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,208,581CurrentTaxYearMinus1YearAmt
Current Tax Year$1,082,127CurrentTaxYearAmt
Total$3,956,072TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$126,827CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$124,842CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$191,139CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$193,039CurrentTaxYearMinus1YearAmt
Current Tax Year$172,735CurrentTaxYearAmt
Total$808,582TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$516,472CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$599,279CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$992,421CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,401,620CurrentTaxYearMinus1YearAmt
Current Tax Year$1,254,862CurrentTaxYearAmt
Total$4,764,654TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$277,696CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$100,000CurrentTaxYearMinus1YearAmt
Current Tax Year$13,683CurrentTaxYearAmt
Total$391,379TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$55,304CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$619,616CurrentTaxYearMinus1YearAmt
Current Tax Year$239,183CurrentTaxYearAmt
Total$914,103TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$333,000CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$719,616CurrentTaxYearMinus1YearAmt
Current Tax Year$252,866CurrentTaxYearAmt
Total$1,305,482TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$3,459,172PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$516,472CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$599,279CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$992,421CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,401,620CurrentTaxYearMinus1YearAmt
Current Tax Year$1,254,862CurrentTaxYearAmt
Total$4,764,654TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.72600PublicSupportCY509Pct
Public Support PY5090.72160PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$8,743OtherCostOrOtherBasisAmt
Depreciation$3,729DepreciationAmt
Book Value$5,014BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$5,014TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,272,445TotalRevEtcAuditedFinclStmtAmt
Recoveries Prior Year Grants-$44,300RecoveriesPriorYearGrantsAmt
Other Revenue$30,362OtherRevenueAmt
Revenue Not Reported-$13,938RevenueNotReportedAmt
Revenue Subtotal$1,286,383RevenueSubtotalAmt
Total Revenue Per Form990$1,286,383TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,626,677TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included-$13,938OtherExpensesIncludedAmt
Expenses Not Reported-$13,938ExpensesNotReportedAmt
Expenses Subtotal$1,640,615ExpensesSubtotalAmt
Total Expenses Per Form990$1,640,615TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part X : FIN48 FootnoteThe Organization has been classified by the Internal Revenue Service as a publicly supported tax-exempt charity pursuant to IRC Section 501(c)(3) and as a not-for-profit corporation under the laws of New York State. Accordingly, no provision for federal or state income taxes is required. As of December 31, 2019, no amounts have been recognized for uncertain income tax positions.
Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990DIRECT FUNDRAISING EXPENSES $30362

Schedule F IRS990ScheduleF

Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPEPOTS RESEARCH$65,000WIRE
EUROPEPOTS RESEARCH$75,000WIRE
EUROPEPOTS RESEARCH$90,000WIRE
NORTH AMERICAPOTS RESEARCH$187,181WIRE
NORTH AMERICAPOTS RESEARCH$199,987WIRE
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd
Licensed StatesNYLicensedStatesCd
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1FUNDRAISING EVENTSEvent1Nm
Gross Receipts Event1$81,836GrossReceiptsEvent1Amt
Charitable Contri Event1$71,726CharitableContriEvent1Amt
Gross Revenue Event1$10,110GrossRevenueEvent1Amt
Rent Facility Costs Event1$3,610RentFacilityCostsEvent1Amt
Other Direct Expenses Event1$26,752OtherDirectExpensesEvent1Amt
Gross Receipts Total$81,836GrossReceiptsTotalAmt
Charitable Contributions Tot$71,726CharitableContributionsTotAmt
Gross Revenue Total Events$10,110GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$3,610RentFcltyCostsTotalEventsAmt
Oth Direct Expnss Total Events$26,752OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$30,362DirectExpenseSummaryEventsAmt
Net Income Summary-$20,252NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROADMILWAUKEEWI53226390806261501(C)(3)$125,353$0OPTIMIZING VAGAL EFFICIENCY
UNIVERSITY OF UTAH
30 N Medical Drive Rm 4C104Salt Lake CityUT84132876000525501(c)(3)$66,026$0altered nitric oxide metabolism
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationDysautonomia International (DI) requires that all investigators, collaborators and sub-contractors who receive funding through the DI's Grants Program comply with our Policies Governing the Award of Research Grants (Policies). Investigators will be provided a copy of current Policies when invited to apply for funding. Acceptance of grant funding from Dysautonomia International acknowledges consent and agreement to comply with these Policies by the Principal Investigator.SEMI-ANNUAL AND POST GRANT REPORTS ARE REQUIRED.ExplanationTxt

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

DescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Auction Items284$41,753fmv
Supplement Samp2$25,589fmv
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 4d: Other Program Services DescriptionOTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education.
Form 990, Part VI, Line 11b: Form 990 Review ProcessTHE BOARD WILL REVIEW AND APPROVE THE TAX RETURNS PRIOR TO SUBMISSION.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsALL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementTHE CEO SALARY IS DETERMINED BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS.
Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key EmployeesTHE CEO AND OTHER STAFF SALARIES WERE SET BY INDEPENDENT NON-EMPLOYEE MEMBERS OF THE BOARD OF DIRECTORS AFTER A CAREFUL COMPARATIVE REVIEW OF SALARIES FOR SIMILARLY QUALIFIED INDIVIDUALS IN SIMILAR POSITIONS.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableDOCUMENTS ARE AVAILABLE UPON REQUEST.