AMYOTROPHIC LATERAL SCLEROSIS MN: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
AMYOTROPHIC LATERAL SCLEROSIS MN (EIN 41-1756085)
Tax period
2020-02-01 to 2021-01-31
Filed
2021-07-26
IRS object ID
202142079349301414
Schema version
2020v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-07-26T14:50:27-05:00ReturnTs
Tax Period End2021-01-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN410887288PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BOULAY PLLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17500 FLYING CLOUD DR-STE 800AddressLine1Txt
CityMINNEAPOLISCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55344ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2020-02-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN411756085EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ALS ASSOCIATION MINNESOTABusinessNameLine1Txt
Business Name Line2NORTH DAKOTA SOUTH DAKOTA CHAPTERBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlAMYOBusinessNameControlTxt
Phone6126720484PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11919 UNIVERSITY AVENUE WEST NO 17AddressLine1Txt
CityST PAULCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55104ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJENNIFER HJELLEPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone6126720484PhoneNum
Signature2021-07-15SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstJENNIFERPersonFirstNm
Person LastHJELLEPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonTARA M SCHINIPreparerPersonNm
PTINP01714186PTIN
Phone9528939320PhoneNum
Preparation2021-07-15PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1ALS ASSOCIATION MNNDSD CHAPTERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerJENNIFER HJELLEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11919 UNIVERSITY AVENUE WEST NO 175AddressLine1Txt
CityST PAULCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55104ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,717,950GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Group Exemption4119GroupExemptionNum
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ALSMN.ORGWebsiteAddressTxt
Type Of Organization AssocYes (X)TypeOfOrganizationAssocInd
Formation1993FormationYr
Legal Domicile StateMNLegalDomicileStateCd
Activity Or MissionTO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.ActivityOrMissionDesc
Voting Members Governing Body21VotingMembersGoverningBodyCnt
Voting Members Independent21VotingMembersIndependentCnt
Total Employee24TotalEmployeeCnt
Total Volunteers85TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,700,879PYContributionsGrantsAmt
CY Contributions Grants$4,155,841CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$73,255PYInvestmentIncomeAmt
CY Investment Income-$16,131CYInvestmentIncomeAmt
PY Other Revenue-$94,345PYOtherRevenueAmt
CY Other Revenue-$78,095CYOtherRevenueAmt
PY Total Revenue$3,679,789PYTotalRevenueAmt
CY Total Revenue$4,061,615CYTotalRevenueAmt
PY Grants And Similar Paid$0PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$0CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,828,062PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,527,163CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$414,277CYTotalFundraisingExpenseAmt
PY Other Expenses$2,421,728PYOtherExpensesAmt
CY Other Expenses$2,207,567CYOtherExpensesAmt
PY Total Expenses$4,249,790PYTotalExpensesAmt
CY Total Expenses$3,734,730CYTotalExpensesAmt
PY Revenues Less Expenses-$570,001PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$326,885CYRevenuesLessExpensesAmt
Total Assets BOY$5,114,131TotalAssetsBOYAmt
Total Assets EOY$5,545,484TotalAssetsEOYAmt
Total Liabilities BOY$810,790TotalLiabilitiesBOYAmt
Total Liabilities EOY$784,053TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,303,341NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,761,431NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant ChangeYes (1)SignificantChangeInd
Expense$2,157,723ExpenseAmt
DescCARE SERVICES - HELPING PEOPLE WITH ALS AND THEIR FAMILIES LIVE AS FULL A LIFE AS POSSIBLE THROUGH DIRECT PROGRAMS FOR PEOPLE LIVING WITH ALS (SEE SCHEDULE 0 FOR DETAIL), SUPPORT GROUPS, PHONE SUPPORT, AND REFERRALS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$266,974ExpenseAmt
DescRESEARCH - THE ALS ASSOCIATION, MINNESOTA/ NORTH DAKOTA/SOUTH DAKOTA CHAPTER IS AN AFFILIATE OF THE NATIONAL ALS ASSOCIATION. EACH YEAR SINCE ITS FOUNDING IN 1985, THE NATIONAL ALS ASSOCIATION HAS INCREASED ITS INVESTMENT IN RESEARCH GRANTS. THE ALS ASSOCIATION HAS INVESTED $147 MILLION IN THE QUEST TO UNLOCK THE MYSTERIES OF ALS. IN THE PAST 25 YEARS THE MINNESOTA /NORTH DAKOTA /SOUTH DAKOTA CHAPTER HAS HELPED RAISE MORE THAN $5.0 MILLION FOR ALS RESEARCH.THE ALS ASSOCIATION FUNDS MORE ALS RESEARCH THAN ANY OTHER ORGANIZATION AND ITS RESEARCH ENTERPRISE IS RECOGNIZED IN THE ALS COMMUNITY FOR ITS SCOPE AND DIVERSITY. CURRENTLY, THE ASSOCIATION IS FUNDING 162 ACTIVE PROJECTS GLOBALLY. PROJECTS ARE MILESTONE DRIVEN, WHICH ENABLES THE ASSOCIATION TO REDIRECT DOLLARS WHEN THE SCIENCE DEMONSTRATES THAT ONE APPROACH IS NOT FEASIBLE, AND ANOTHER IS MORE PROMISING.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$407,426ExpenseAmt
DescPUBLIC AWARENESS - EDUCATE AND INFORM THE PUBLIC ABOUT THE NATURE OF ALS THROUGH ADVOCACY, NEWSLETTERS, SOCIAL MEDIA AND EVENTS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$2,832,123TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To Organizations0GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document5IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee24EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible ContributionsYes (1)NondeductibleContributionsInd
Nondeductible Contri DisclYes (1)NondeductibleContriDisclInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members21GoverningBodyVotingMembersCnt
Independent Voting Member21IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJENNIFER HJELLEPersonNm
Phone6126720484PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11919 UNIVERSITY AVENUE WEST SUITEAddressLine1Txt
CityST PAULCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55104ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
PHILIP ALBERT
PRESIDENT2.00Yes (X)Yes (X)$0$0$0
CLAY AHRENS
VICE PRESIDENT2.00Yes (X)Yes (X)$0$0$0
JORDAN SING
SECRETARY2.00Yes (X)Yes (X)$0$0$0
JOHN ORNER
TREASURER2.00Yes (X)Yes (X)$0$0$0
MARY JONES
BOARD MEMBER1.00Yes (X)$0$0$0
PETE KLINKHAMMER
BOARD MEMBER1.00Yes (X)$0$0$0
STEVE KRAUS
BOARD MEMBER1.00Yes (X)$0$0$0
DAVID LAMM
BOARD MEMBER2.00Yes (X)$0$0$0
GRANT LANDER
BOARD MEMBER1.00Yes (X)$0$0$0
MARY ELLEN LEARY
BOARD MEMBER1.00Yes (X)$0$0$0
TINA LINNE
BOARD MEMBER1.00Yes (X)$0$0$0
BILL MCCARTHY
BOARD MEMBER1.00Yes (X)$0$0$0
JAN NELSON
BOARD MEMBER1.00Yes (X)$0$0$0
BRENDA OLSON
BOARD MEMBER1.00Yes (X)$0$0$0
JEREMY RICE
BOARD MEMBER1.00Yes (X)$0$0$0
SUSAN SCHUSTER
BOARD MEMBER1.00Yes (X)$0$0$0
NATHAN STAFF
BOARD MEMBER1.00Yes (X)$0$0$0
EZGI TIRYAKI
BOARD MEMBER1.00Yes (X)$0$0$0
KRISTI WAITE
BOARD MEMBER2.00Yes (X)$0$0$0
DAVID WALK
BOARD MEMBER1.00Yes (X)$0$0$0
RYAN TOFTELAND
DECEASED0.00Yes (X)$0$0$0
JENNIFER HJELLE
EXECUTIVE DIRECTOR40.00Yes (X)$142,516$0$0
MARRIANNE KEUHN
VICE PRESIDENT CARE SERVIC40.00$115,739$0$0Yes (X)
RYAN STAUFF
VICE PRESIDENT DEVELOPMENT40.00$115,659$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$373,914TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$1,057,830FundraisingAmt
Government Grants$326,616GovernmentGrantsAmt
All Other Contributions$2,771,395AllOtherContributionsAmt
Noncash Contributions$624,385NoncashContributionsAmt
Total Contributions$4,155,841TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$55,564TotalRevenueColumnAmt
Exclusion$55,564ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$489,083SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$477,293SecuritiesAmt
Other$83,485OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$11,790SecuritiesAmt
Other-$83,485OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$71,695TotalRevenueColumnAmt
Exclusion-$71,695ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$9,882FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,057,830ContriRptFundraisingEventAmt
Fundraising Direct Expenses$95,557FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$85,675TotalRevenueColumnAmt
Exclusion-$85,675ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$7,580GamingGrossIncomeAmt
Gaming Direct Expenses$0GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$7,580TotalRevenueColumnAmt
Exclusion$7,580ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,061,615TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$94,226ExclusionAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$142,517TotalAmt
Program Services$78,384ProgramServicesAmt
Management And General$49,881ManagementAndGeneralAmt
Fundraising$14,252FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,124,442TotalAmt
Program Services$701,068ProgramServicesAmt
Management And General$289,488ManagementAndGeneralAmt
Fundraising$133,886FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$33,999TotalAmt
Program Services$20,917ProgramServicesAmt
Management And General$3,975ManagementAndGeneralAmt
Fundraising$9,107FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$120,851TotalAmt
Program Services$74,349ProgramServicesAmt
Management And General$14,131ManagementAndGeneralAmt
Fundraising$32,371FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$105,354TotalAmt
Program Services$64,815ProgramServicesAmt
Management And General$12,319ManagementAndGeneralAmt
Fundraising$28,220FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$102,417TotalAmt
Program Services$65,318ProgramServicesAmt
Management And General$10,077ManagementAndGeneralAmt
Fundraising$27,022FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$17,840TotalAmt
Management And General$17,840ManagementAndGeneralAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$702TotalAmt
Program Services$351ProgramServicesAmt
Fundraising$351FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$281,939TotalAmt
Program Services$190,624ProgramServicesAmt
Management And General$27,748ManagementAndGeneralAmt
Fundraising$63,567FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$5,402TotalAmt
Program Services$4,616ProgramServicesAmt
Management And General$187ManagementAndGeneralAmt
Fundraising$599FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$344,518TotalAmt
Program Services$252,874ProgramServicesAmt
Management And General$27,219ManagementAndGeneralAmt
Fundraising$64,425FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$657,086TotalAmt
Program Services$629,055ProgramServicesAmt
Management And General$8,519ManagementAndGeneralAmt
Fundraising$19,512FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmt
RESPITE CARE$207,068$207,068
RESEARCH$154,524$154,524
LOAN CLOSET EQUIPMENT$109,499$109,499
HRBEK SING PROGRAM$102,789$102,789

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$223,783TotalAmt
Program Services$175,872ProgramServicesAmt
Management And General$26,946ManagementAndGeneralAmt
Fundraising$20,965FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,734,730TotalAmt
Program Services$2,832,123ProgramServicesAmt
Management And General$488,330ManagementAndGeneralAmt
Fundraising$414,277FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$143,079BOYAmt
EOY$161,435EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$745,776BOYAmt
EOY$1,326,490EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$3,080BOYAmt
EOY$1,080EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$759BOYAmt
EOY$100EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$35,260BOYAmt
EOY$39,952EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$3,386,332LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,861,937LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,560,485BOYAmt
EOY$1,524,395EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$1,983,518BOYAmt
EOY$2,055,603EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$622,656BOYAmt
EOY$416,911EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$19,518BOYAmt
EOY$19,518EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$5,114,131BOYAmt
EOY$5,545,484EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$127,090BOYAmt
EOY$181,807EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$683,700BOYAmt
EOY$602,246EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$810,790BOYAmt
EOY$784,053EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,040,196BOYAmt
EOY$4,399,361EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$263,145BOYAmt
EOY$362,070EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,303,341BOYAmt
EOY$4,761,431EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,114,131BOYAmt
EOY$5,545,484EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$326,885ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$131,205NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,746,141CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,222,546CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$5,916,970CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,700,879CurrentTaxYearMinus1YearAmt
Current Tax Year$4,155,841CurrentTaxYearAmt
Total$21,742,377TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,746,141CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,222,546CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$5,916,970CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,700,879CurrentTaxYearMinus1YearAmt
Current Tax Year$4,155,841CurrentTaxYearAmt
Total$21,742,377TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$617,228SubstantialContributorsTotAmt
Public Support Total170$21,125,149PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$15,522CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$20,334CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$34,315CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$51,565CurrentTaxYearMinus1YearAmt
Current Tax Year$55,564CurrentTaxYearAmt
Total$177,300TotalAmt
FieldValueIRS element (for citing)
Total Support$21,919,677TotalSupportAmt
Gross Receipts Rltd Activities$2,183,200GrossReceiptsRltdActivitiesAmt
Public Support CY1700.96380PublicSupportCY170Pct
Public Support PY1700.96440PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$291FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$291FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,807,088FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,807,379FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$340,369FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$85,092FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$337,956CurrentYearMinus3Amt
Current Year Minus2$360,826CurrentYearMinus2Amt
Current Year Minus1$362,378CurrentYearMinus1Amt
Current Year$340,369CurrentYearAmt
Total$1,401,529TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$2,102,294LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$17,582CurrentYearMinus3Amt
Current Year Minus2$13,380CurrentYearMinus2Amt
Current Year Minus1$6,476CurrentYearMinus1Amt
Current Year$291CurrentYearAmt
Total$37,729TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$84,489CurrentYearMinus3Amt
Current Year Minus2$90,207CurrentYearMinus2Amt
Current Year Minus1$90,595CurrentYearMinus1Amt
Current Year$85,092CurrentYearAmt
Total$350,383TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$525,575GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,386,332OtherCostOrOtherBasisAmt
Depreciation$1,861,937DepreciationAmt
Book Value$1,524,395BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,524,395TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp

FieldValueIRS element (for citing)
DescLONG-TERM CERTIFICATES OF DEPOSITDesc
Book Value$416,911BookValueAmt
Method ValuationCMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Securities$416,911TotalBookValueSecuritiesAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDescAmtAmt
DUE TO NATIONAL ASSOCIATION$106,014
DEFERRED RENT$492,603
CAPITAL LEASE OBLIGATION$3,629
FieldValueIRS element (for citing)
Total Liability$602,246TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,346,643TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$131,205NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$4,489DonatedServicesAndUseFcltsAmt
Other Revenue$167,174OtherRevenueAmt
Revenue Not Reported$302,868RevenueNotReportedAmt
Revenue Subtotal$4,043,775RevenueSubtotalAmt
Investment Expenses Not Incld$17,840InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$17,840RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$4,061,615TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,888,553TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$4,489DonatedServicesUseFcltsAmt
Other Expenses Included$167,174OtherExpensesIncludedAmt
Expenses Not Reported$171,663ExpensesNotReportedAmt
Expenses Subtotal$3,716,890ExpensesSubtotalAmt
Investment Expenses Not Incld2$17,840InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$17,840ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,734,730TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE ASSOCIATION FOLLOWS GUIDANCE FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND HAS EVALUATED WHETHER THEY HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE. PRIMARILY DUE TO THE EXEMPT STATUS, THE ASSOCIATION DOES NOT HAVE ANY SIGNIFICANT TAX UNCERTAINTIES THAT WOULD REQUIRE RECOGNITION OR DISCLOSURE.
PART XI, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSES 83,689. LOSS ON ASSET DISPOSAL 83,485.
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSES 83,689. LOSS ON ASSET DISPOSAL 83,485.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1WALK TO DEFEAT ALSEvent1Nm
Gross Receipts Event1$768,506GrossReceiptsEvent1Amt
Charitable Contri Event1$766,211CharitableContriEvent1Amt
Gross Revenue Event1$2,295GrossRevenueEvent1Amt
Other Direct Expenses Event1$45,711OtherDirectExpensesEvent1Amt
Event2GALAEvent2Nm
Gross Receipts Event2$112,848GrossReceiptsEvent2Amt
Charitable Contri Event2$110,348CharitableContriEvent2Amt
Gross Revenue Event2$2,500GrossRevenueEvent2Amt
Other Direct Expenses Event2$18,795OtherDirectExpensesEvent2Amt
Other Events Total6OtherEventsTotalCnt
Gross Receipts Other Events$186,358GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$181,271CharitableContriOtherEventsAmt
Gross Revenue Other Events$5,087GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$31,051OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,067,712GrossReceiptsTotalAmt
Charitable Contributions Tot$1,057,830CharitableContributionsTotAmt
Gross Revenue Total Events$9,882GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$95,557OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$95,557DirectExpenseSummaryEventsAmt
Net Income Summary-$85,675NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$7,580GrossRevenueOtherGamingAmt
Volunteer Labor Other Gaming0VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming$7,580GrossRevenueTotalGamingAmt
Net Gaming Income Summary$7,580NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedMNStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With Nonmembers0GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksJENNIFER HJELLEIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line11919 UNIVERSITY AVENUE WEST SUITE 1AddressLine1Txt
CityST PAULCityNm
State AbbreviationMNStateAbbreviationCd
ZIP55104ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonJENNIFER HJELLEGamingManagerPersonNm
Gaming Manager Services ProvRECORD KEEPING, MONEY COUNTING, AND BANK DEPOSITS FOR RAFFLES USED FOR FUNDRAISING PURPOSESGamingManagerServicesProvTxt
Charitable Distribution Rqr0CharitableDistributionRqrInd

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMEDICAL EQUIPMENTDesc
Contribution50ContributionCnt
Noncash Contributions Rpt F990$624,385NoncashContributionsRptF990Amt
Method Of Determining RevenuesVALUATIONMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART III, LINE 3DUE TO THE COVID-19 PANDEMIC, WE MOVED ALL OF OUR SUPPORT GROUPS TO A VIRTUAL FORMAT. WE PROVIDED PEOPLE THE TECHNOLOGY THEY NEEDED IN ORDER TO JOIN THE GROUPS AS PART OF OUR HRBEK SING COMMUNICATION PROGRAM.
FORM 990, PART III, LINE 4AAMYOTROPHIC LATERAL SCLEROSIS (ALS), MORE COMMONLY REFERRED TO AS LOU GEHRIG'S DISEASE, IS A DEGENERATIVE DISEASE OF THE CENTRAL NERVOUS SYSTEM, CHARACTERIZED BY THE DEATH OF THE MOTOR NEURONS (SPECIFIC NERVE CELLS). ALS RESULTS IN GRADUAL, PROGRESSIVE WEAKNESS AND WASTING AWAY OF VOLUNTARY MUSCLES, OFTEN LEADING TO TOTAL PARALYSIS. THE LIFE EXPECTANCY OF A PERSON WITH ALS AVERAGES TWO TO FIVE YEARS FROM TIME OF DIAGNOSIS. WITH RECENT ADVANCES IN RESEARCH AND IMPROVED MEDICAL CARE, MANY PEOPLE WITH ALS ARE LIVING LONGER AND MORE PRODUCTIVE LIVES. HALF OF ALL THOSE AFFECTED MAY LIVE AT LEAST THREE YEARS OR MORE AFTER DIAGNOSIS. ABOUT 20 PERCENT LIVE FIVE YEARS OR MORE, AND UP TO TEN PERCENT WILL SURVIVE MORE THAN TEN YEARS. ALS OCCURS THROUGHOUT THE WORLD WITH NO RACIAL, ETHNIC, OR SOCIOECONOMIC BOUNDARIES. MOST PEOPLE WHO DEVELOP ALS ARE BETWEEN THE AGES OF 40 AND 70, WITH AN AVERAGE AGE OF 55 AT THE TIME OF DIAGNOSIS. HOWEVER, PEOPLE AS YOUNG AS 17 AND PEOPLE IN THEIR 90'S HAVE BEEN DIAGNOSED WITH ALS. EVERY WEEK AN AVERAGE OF TWO MINNESOTANS ARE DIAGNOSED WITH ALS AND TWO SUCCUMB TO THE DISEASE. ON AVERAGE IN NORTH DAKOTA, ONE PERSON IS DIAGNOSED AND ONE PERSON DIES FROM ALS EACH MONTH. ON AVERAGE IN SOUTH DAKOTA, ONE TO TWO PEOPLE ARE DIAGNOSED AND DIE OF ALS EACH MONTH. AT ANY GIVEN TIME, THERE ARE APPROXIMATELY 450 PEOPLE LIVING WITH ALS IN MINNESOTA, NORTH DAKOTA AND SOUTH DAKOTA. CHAPTER PROGRAMS INCLUDE: 1. HRBEK-SING COMMUNICATION AND ASSISTIVE DEVICE PROGRAM: THIS PROGRAM ASSISTS INDIVIDUALS WITH ALS WHO HAVE LOST THEIR ABILITY TO VERBALLY COMMUNICATE AND/OR WHO ARE HAVING DIFFICULTY USING A COMPUTER AND OTHER ELECTRONIC DEVICES IN THEIR HOME. THE PROGRAM LOANS DEVICES AND EQUIPMENT THAT ARE NOT COVERED BY MEDICAL INSURANCE AND ARE AVAILABLE IN THE INVENTORY. LAST FISCAL YEAR 302 PEOPLE USED THIS PROGRAM AND OVER 1,448 PIECES OF EQUIPMENT WENT IN AND OUT OF THE LOAN CLOSET. 2. JACK NORTON FAMILY RESPITE PROGRAM: THIS PROGRAM PROVIDES MUCH NEEDED RESPITE TO A FULL-TIME FAMILY CAREGIVER OF A PERSON WITH ALS. SKILLED HOMECARE PERSONNEL COME INTO THE HOME TO CARE FOR THE PERSON WITH ALS ALLOWING THE FAMILY CAREGIVER TIME TO RELAX, DO ERRANDS, KEEP APPOINTMENTS OR VISIT WITH FRIENDS. THE CHAPTER PROVIDES UP TO 18 HOURS OF RESPITE EACH MONTH TO FAMILIES THAT QUALIFY FOR THIS PROGRAM. LAST YEAR THE CHAPTER PAID FOR 8,752 RESPITE HOURS FOR 94 FAMILIES. 3. DURABLE MEDICAL EQUIPMENT LOAN POOL: THE EQUIPMENT LOAN POOL PROVIDES DURABLE MEDICAL EQUIPMENT TO PERSONS WITH ALS TO HELP THEM MAINTAIN THEIR INDEPENDENCE AND PHYSICAL SAFETY. THE LOAN POOL HAS EQUIPMENT DONATED BY INDIVIDUALS AND THEIR FAMILIES, AND IS HOUSED IN MULTIPLE LOCATIONS THROUGHOUT THE CHAPTER'S SERVICE AREA. EXAMPLES OF EQUIPMENT ARE: HOSPITAL BEDS, WHEELCHAIRS, WALKERS, BATHROOM EQUIPMENT, MATTRESSES, ETC. LAST YEAR 393 PEOPLE UTILIZED THIS PROGRAM. 3,052 PIECES OF EQUIPMENT WENT IN AND OUT OF THE CLOSET DURING THIS TIME. 4. HOME SAFETY PROGRAM: THIS PROGRAM PROVIDES INDIVIDUALS WITH ALS THE SERVICES OF ALS-EXPERIENCED OT/PT'S FOR HOME EVALUATIONS, EQUIPMENT ASSESSMENT, PROPER TRANSFER TECHNIQUES, AND TRAINING IN RANGE-OF-MOTION AND STRETCHING EXERCISES TO CARE PROVIDERS OF PERSONS WITH ALS. LAST YEAR 39 PEOPLE RECEIVED HOME VISITS THROUGH THIS PROGRAM. 5. SUPPORT GROUPS: THIS YEAR, ALL OF OUR SUPPORT GROUPS FOR BOTH INDIVIDUALS LIVING WITH ALS AND CAREGIVERS WERE MOVED TO A VIRTUAL FORMAT ALLOWING FOLKS TO JOIN NO MATTER THEIR GEOGRAPHY. SOME OF THE SUPPORT GROUPS HAVE EDUCATIONAL SPEAKERS AND SOME BREAK INTO SMALLER GROUPS, ENSURING THE NEEDS OF ALL THOSE WHO ATTEND CAN BE ADDRESSED. 6. FAMILY ASSISTANCE PROGRAM: DUE TO THE COVID-19 PANDEMIC, WE HAD TO PAUSE MUCH OF THIS PROGRAM. FOR THE SECOND HALF OF THE YEAR, WE OPENED UP OUTDOOR OPTIONS, WHERE VOLUNTEERS COULD HELP FAMILIES WITH TASKS SUCH AS YARD WORK, SNOW REMOVAL OF GARDENING. 7. ADVOCACY: THE CHAPTER WORKS, ON A NATIONAL AND STATE LEVEL, TO IMPROVE VARIOUS SITUATIONS WHICH PEOPLE WITH ALS AND THEIR FAMILIES FACE IN THEIR DAILY STRUGGLE WITH THE DISEASE. THESE ADVOCACY EFFORTS INCLUDE IDENTIFYING AND ADDRESSING CHALLENGES AND OPPORTUNITIES ON LEGISLATIVE AND ADMINISTRATIVE LEVELS, AND SHAPING POLICIES AND ACTIONS IN THE INTEREST OF ALL CONSTITUENTS. 8. OTHER SERVICES: THE CHAPTER'S CARE SERVICES STAFF PROVIDES EDUCATION AND INFORMATION ABOUT ALS TO PERSONS WITH THE DISEASE, THEIR FAMILY, FRIENDS AND HEALTH CARE PROFESSIONALS. THE CARE SERVICES STAFF CONSISTS OF PROFESSIONALS FROM NURSING, SOCIAL WORK, OCCUPATIONAL THERAPY AND CHAPLAINCY. THE CARE SERVICES STAFF ARE AVAILABLE TO INDIVIDUALS WITH ALS AND THEIR FAMILY FOR CONSULTATION AND SUPPORT, ADVANCE CARE DIRECTIVES, AND TO PROVIDE RESOURCE INFORMATION. IN ADDITION, THE CHAPTER PUBLISHES A MONTHLY ELECTRONIC NEWSLETTER AND PRODUCES A MONTHLY PODCAST, CONNECTING ALS.
FORM 990, PART VI, SECTION B, LINE 11BTHE FINANCE COMMITTEE REVIEWED THE 990 WITH THE TAX PREPARER. ANY QUESTIONS OR DISCREPANCIES ARE ADDRESSED WITH THE PREPARER BEFORE PRESENTING THE 990 TO THE GOVERNING BOARD. THE 990 IS THEN PRESENTED TO THE BOARD FOR FULL APPROVAL.
FORM 990, PART VI, SECTION B, LINE 12CALL BOARD MEMBERS ARE REQUIRED TO SIGN THIS FORM ON AN ANNUAL BASIS, AND THE EXECUTIVE DIRECTOR OVERSEES ANY CONFLICT OF INTERESTS.
FORM 990, PART VI, SECTION B, LINE 15A SELF-EVALUATION FORM IS FILLED OUT BY THE EXECUTIVE DIRECTOR. THE HUMAN RESOURCES COMMITTEE OR BOARD PRESIDENT OBTAINS FEEDBACK FROM THE STAFF AND THE BOARD AND THEN FILLS OUT A RESPONSE EVALUATION FORM. THE EVALUATIONS ARE THEN REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR OF THE ORGANIZATION. THIS OCCURS ANNUALLY. ANY RAISES ARE DECIDED ON BY THE BOARD OF DIRECTORS AT THIS TIME (WITH INPUT FROM THE FINANCE COMMITTEE). FOR OTHER KEY OFFICERS AND EMPLOYEES, THE EXECUTIVE DIRECTOR REVIEWS THE VP OF CARE SERVICES, THE VP OF DEVELOPMENT, THE DIRECTOR OF MARKETING & COMMUNICATIONS, AND THE DIRECTOR OF ADMINISTRATION & FINANCE ANNUALLY WITH INPUT FROM THE STAFF AND BOARD OF DIRECTORS. RAISES ARE REVIEWED ANNUALLY IN CONJUNCTION WITH THE PREPARATION OF THE BUDGET NEAR THE CALENDAR YEAR END.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS INCLUDING CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE UPON REQUEST.
FORM 990, PART XII, LINE 2C:THE PROCESS HAS NOT CHANGED FROM PRIOR YEARS.

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