LOWE SYNDROME ASSOCIATION INC: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
LOWE SYNDROME ASSOCIATION INC (EIN 31-1160328)
Tax period
2020-01-01 to 2020-12-31
Filed
2021-11-14
IRS object ID
202133189349300538
Schema version
2020v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-11-14T17:20:19-06:00ReturnTs
Tax Period End2020-12-31TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2020-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN311160328EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Lowe Syndrome Association IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Cristen AlbertsInCareOfNm
Business Name ControlLOWEBusinessNameControlTxt
Phone9106224455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 417AddressLine1Txt
CityChicago RidgeCityNm
State AbbreviationILStateAbbreviationCd
ZIP60415ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCRISTEN ALBERTSPersonNm
Person TitleTreasurerPersonTitleTxt
Phone9106224455PhoneNum
Signature2021-11-14SignatureDt

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstCRISTENPersonFirstNm
Person LastALBERTSPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer0TrustedCustomerCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLISA WALDBAUMPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line134800 Bridle Trail LaneAddressLine1Txt
CitySolonCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44139ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$158,665GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.lowesyndrome.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateINLegalDomicileStateCd
Activity Or MissionImprove the lives of persons with Lowe syndrome and their families through communication education and supporting researchActivityOrMissionDesc
Voting Members Governing Body8VotingMembersGoverningBodyCnt
Voting Members Independent8VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Volunteers20TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
CY Contributions Grants$158,665CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$0CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
CY Total Revenue$158,665CYTotalRevenueAmt
CY Grants And Similar Paid$94,304CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$16,382CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
CY Other Expenses$14,803CYOtherExpensesAmt
CY Total Expenses$125,489CYTotalExpensesAmt
CY Revenues Less Expenses$33,176CYRevenuesLessExpensesAmt
Total Assets BOY$650,122TotalAssetsBOYAmt
Total Assets EOY$683,327TotalAssetsEOYAmt
Total Liabilities EOY$382TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$650,122NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$682,945NetAssetsOrFundBalancesEOYAmt
MissionImprove the lives of persons with Lowe syndrome and their families through communication, education, and supporting research so that they can reach their highest potential.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$94,304ExpenseAmt
Grant$94,304GrantAmt
DescResearch on Lowe syndrome to improve health outcomes and find a cure.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$6,119ExpenseAmt
DescFoster communication and education through website, electronic newsletters. The LSA maintained its website with current information on Lowe syndrome, operated a Facebook page with communication opportunities or families and nonmembers and published two newsletters in print and three electronically.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$15,217ExpenseAmt
DescComplete administrative duties through one part-time employee.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$115,640TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld CompliancefalseBackupWthldComplianceInd
Employee1EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members8GoverningBodyVotingMembersCnt
Independent Voting Member8IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyfalseConflictOfInterestPolicyInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonCRISTEN ALBERTSPersonNm
Phone9106224455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1192 Lake Walk DriveAddressLine1Txt
CityReidsvilleCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27320ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (8 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LISA WALDBAUM
President20.00Yes (X)$0$0$0
CRISTEN ALBERTS
Treasurer20.00Yes (X)$0$0$0
JERI KUBICKI
Vice President20.00$0$0$0Yes (X)
THERESA HAUGEN
Director10.00$0$0$0Yes (X)
CORI DEGORI
Director5.000$0$0$0Yes (X)
JENNA MADDOX
Director5.000$0$0$0Yes (X)
JOHN MACDONALD
Director5.000$0$0$0Yes (X)
BARRY RINEHART
Director5.000$0$0$0Yes (X)
FieldValueIRS element (for citing)
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

FieldValueIRS element (for citing)
PersonNPersonNm
FieldValueIRS element (for citing)
Membership Dues$21,085MembershipDuesAmt
Fundraising$54,118FundraisingAmt
All Other Contributions$83,462AllOtherContributionsAmt
Total Contributions$158,665TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
Desc0Desc

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$158,665TotalRevenueColumnAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$94,304TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$15,218TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$1,164TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$950TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$3,633TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$10,220TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$125,489TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$37,773BOYAmt
EOY$86,028EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$612,349BOYAmt
EOY$597,359EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY-$60EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$650,122BOYAmt
EOY$683,327EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
EOY$382EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$382EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$650,122BOYAmt
EOY$682,945EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$650,122BOYAmt
EOY$682,945EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$650,122BOYAmt
EOY$683,327EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$33,176ReconcilationRevenueExpnssAmt
Prior Period Adjustments$29PriorPeriodAdjustmentsAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$322,257CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$99,754CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$380,950CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$173,220CurrentTaxYearMinus1YearAmt
Current Tax Year$164,085CurrentTaxYearAmt
Total$1,140,266TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$322,257CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$99,754CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$380,950CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$173,220CurrentTaxYearMinus1YearAmt
Current Tax Year$164,085CurrentTaxYearAmt
Total$1,140,266TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$1,140,266PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$245CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$353CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$254CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$764CurrentTaxYearMinus1YearAmt
Total$1,616TotalAmt
FieldValueIRS element (for citing)
Total Support$1,141,882TotalSupportAmt
Public Support CY1700.99858PublicSupportCY170Pct
Public Support PY1700.86000PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Disclosed Org Leg CtrlfalseDisclosedOrgLegCtrlInd
Disclosed For Charitable PrpsfalseDisclosedForCharitablePrpsInd
Written Policy MonitoringfalseWrittenPolicyMonitoringInd
Section170h Rqr StsfdfalseSection170hRqrStsfdInd
Solicited Assets SalefalseSolicitedAssetsSaleInd
Agent Trustee EtcfalseAgentTrusteeEtcInd
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd
Federal Income Tax Liability$305FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescIL Income TaxDesc
Amt$77Amt
FieldValueIRS element (for citing)
Total Liability$382TotalLiabilityAmt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1FacebookEvent1Nm
Gross Receipts Event1$45,129GrossReceiptsEvent1Amt
Gross Revenue Event1$45,129GrossRevenueEvent1Amt
Event2Giving TuesEvent2Nm
Gross Receipts Event2$4,150GrossReceiptsEvent2Amt
Gross Revenue Event2$4,150GrossRevenueEvent2Amt
Gross Receipts Total$49,279GrossReceiptsTotalAmt
Gross Revenue Total Events$49,279GrossRevenueTotalEventsAmt
Net Income Summary$49,279NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable

Recipient Business Name RecipientBusinessName

FieldValueIRS element (for citing)
Business Name Line1Albert Einstein CollegeBusinessNameLine1Txt
FieldValueIRS element (for citing)
Cash Grant$94,304CashGrantAmt
Non Cash Assistance$0NonCashAssistanceAmt
Purpose Of GrantResearchPurposeOfGrantTxt
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part VI Line 11bSent to each member of the Board for approval.
Part VI Line 19No documents available to the public

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