ENDOMETRIOSIS FOUNDATION OF AMERICAINC: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
ENDOMETRIOSIS FOUNDATION OF AMERICAINC (EIN 20-4904437)
Tax period
2020-01-01 to 2020-12-31
Filed
2021-07-07
IRS object ID
202131889349300823
Schema version
2020v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-07-07T11:24:14-07:00ReturnTs
Tax Period End2020-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN134036703PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SCHALL & ASHENFARB CPASBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1307 5th Ave 15th FloorAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10016ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2020-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN204904437EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ENDOMETRIOSIS FOUNDATION OF AMERICA INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlENDOBusinessNameControlTxt
Phone2129881644PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1872 Fifth AvenueAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10065ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonElif SeckinPersonNm
Person TitleTreasurerPersonTitleTxt
Signature2021-07-07SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstElifPersonFirstNm
Person LastSeckinPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMichael SchallPreparerPersonNm
PTINP02024184PTIN
Phone2122682800PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer0TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerTamer Seckin MDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1872 Fifth AvenueAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10065ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,127,705GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.endofound.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2006FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionThe Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee6TotalEmployeeCnt
Total Volunteers20TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$553,342PYContributionsGrantsAmt
CY Contributions Grants$1,076,764CYContributionsGrantsAmt
PY Program Service Revenue$31,988PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$1,899PYInvestmentIncomeAmt
CY Investment Income$1,474CYInvestmentIncomeAmt
PY Other Revenue$42,238PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$629,467PYTotalRevenueAmt
CY Total Revenue$1,078,238CYTotalRevenueAmt
CY Grants And Similar Paid$75,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$290,290PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$370,153CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$244,453CYTotalFundraisingExpenseAmt
PY Other Expenses$891,132PYOtherExpensesAmt
CY Other Expenses$546,268CYOtherExpensesAmt
PY Total Expenses$1,181,422PYTotalExpensesAmt
CY Total Expenses$991,421CYTotalExpensesAmt
PY Revenues Less Expenses-$551,955PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$86,817CYRevenuesLessExpensesAmt
Total Assets BOY$1,001,384TotalAssetsBOYAmt
Total Assets EOY$1,381,269TotalAssetsEOYAmt
Total Liabilities EOY$154,891TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,001,384NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,226,378NetAssetsOrFundBalancesEOYAmt
MissionThe Endometriosis Foundation of America (EndoFound) strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$558,349ExpenseAmt
DescThe EndoFound Education program is a school and community-based education program designed to educate high school students and raise awareness about endometriosis through an interactive program which includes both education of the disease and to teach students how to advocate for themselves. To date, the program has educated 40,000 students in the US and abroad.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$75,000ExpenseAmt
Grant$75,000GrantAmt
DescResearch and Grants - EndoFound funds cutting-edge medical research at medical institutions and hospitals in the US predominantly, and in other countries. Research is conducted on the etiology of the disease, genetic implications, and organs affected by the disease, among others, all with the goal of developing better diagnostics and better treatments.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$28,938ExpenseAmt
DescConferences and webinars: Historically EndoFound runs two large annual conferences. The first is a medical conference which gathers physicians, surgeons, researchers, nurses, from all over the world to learn about current trends and best practices for the treatment of endometriosis. The second is a patient conference bringing patients and physicians together to learn in depth about endometriosis, management of the disease, support available and wellness training. Both conferences are held in March during Endometriosis Awareness Month. Due to COVID-19 restrictions which began days before the scheduled conferences, EndoFound successfully pivoted to on-line webinars and conferences throughout 2019 so that it could continue to bring both patients and medical professionals together, and deliver quality information that the groups have come to rely on.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$662,287TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document20IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee6EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesYes (true)DelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersYes (true)MembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMargaret CianciPersonNm
Phone2129881644PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1872 Fifth AvenueAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10065ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Margaret Cianci
Executive Dir.40.000.00Yes (X)$163,154$0$18,605
Tamer Seckin MD
President5.000.00Yes (X)$0$0$0Yes (X)
Elif Seckin
Treasurer10.000.00Yes (X)$0$0$0Yes (X)
Michael S Brodherson MD
Director2.000.00$0$0$0Yes (X)
Kristy Curry
Director2.000.00$0$0$0Yes (X)
Subrata De
Director2.000.00$0$0$0Yes (X)
Sandra Gelbard MD
Director2.000.00$0$0$0Yes (X)
Karli Goldstein DO
Director2.000.00$0$0$0Yes (X)
Tracey Haas DO MPH
Director2.000.00$0$0$0Yes (X)
Jody Grobman
Director2.000.00$0$0$0Yes (X)
Donna Kesselman MD
Director2.000.00$0$0$0Yes (X)
Lawrence Livornese
Director2.000.00$0$0$0Yes (X)
Harry Reich MD
Director2.000.00$0$0$0Yes (X)
Madeleine K Rudin
Director2.000.00$0$0$0Yes (X)
Piraye Yurttas Beim PHD
Director2.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$163,154TotalReportableCompFromOrgAmt
Total Other Compensation$18,605TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Rebillard Public RelationsBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line1464 Old Route 22AddressLine1Txt
CityAmeniaCityNm
State AbbreviationNYStateAbbreviationCd
ZIP12501ZIPCd
FieldValueIRS element (for citing)
ServicesPublic Relation ServicesServicesDesc
Compensation$131,418CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Fundraising$312,500FundraisingAmt
All Other Contributions$764,264AllOtherContributionsAmt
Total Contributions$1,076,764TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,706TotalRevenueColumnAmt
Exclusion$1,706ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$49,235SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$49,467SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$232SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$232TotalRevenueColumnAmt
Exclusion-$232ExclusionAmt
FieldValueIRS element (for citing)
Contri Rpt Fundraising Event$312,500ContriRptFundraisingEventAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,078,238TotalRevenueColumnAmt
Exclusion$1,474ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$50,000TotalAmt
Program Services$50,000ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$25,000TotalAmt
Program Services$25,000ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$188,604TotalAmt
Program Services$142,550ProgramServicesAmt
Management And General$26,957ManagementAndGeneralAmt
Fundraising$19,097FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$155,558TotalAmt
Program Services$135,870ProgramServicesAmt
Fundraising$19,688FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$3,486TotalAmt
Program Services$2,820ProgramServicesAmt
Management And General$273ManagementAndGeneralAmt
Fundraising$393FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$22,505TotalAmt
Program Services$18,206ProgramServicesAmt
Management And General$1,763ManagementAndGeneralAmt
Fundraising$2,536FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$19,707TotalAmt
Management And General$19,707ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$299,598TotalAmt
Program Services$215,753ProgramServicesAmt
Management And General$29,884ManagementAndGeneralAmt
Fundraising$53,961FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$26,440TotalAmt
Program Services$21,379ProgramServicesAmt
Fundraising$5,061FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$16,186TotalAmt
Program Services$11,697ProgramServicesAmt
Management And General$2,087ManagementAndGeneralAmt
Fundraising$2,402FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,524TotalAmt
Program Services$1,232ProgramServicesAmt
Management And General$120ManagementAndGeneralAmt
Fundraising$172FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$28,938TotalAmt
Program Services$28,938ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$1,701TotalAmt
Management And General$1,701ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$8,715TotalAmt
Program Services$5,464ProgramServicesAmt
Management And General$2,080ManagementAndGeneralAmt
Fundraising$1,171FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtFundraisingFundraisingAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
Special Event Expense$119,756$119,756
Other Expense$23,703$20,216$3,378$109

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$991,421TotalAmt
Program Services$662,287ProgramServicesAmt
Management And General$84,681ManagementAndGeneralAmt
Fundraising$244,453FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$980,033BOYAmt
EOY$1,115,913EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$17,823EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$144,670EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$5,487LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,701LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$3,786EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$21,351BOYAmt
EOY$99,077EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,001,384BOYAmt
EOY$1,381,269EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
EOY$45,649EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
EOY$109,242EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$154,891EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,001,384BOYAmt
EOY$1,151,378EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
EOY$75,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,001,384BOYAmt
EOY$1,226,378EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,001,384BOYAmt
EOY$1,381,269EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$86,817ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$7,239NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$130,938OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewYes (true)AccountantCompileOrReviewInd

Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$732,818CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$584,885CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,208,959CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$553,342CurrentTaxYearMinus1YearAmt
Current Tax Year$1,076,764CurrentTaxYearAmt
Total$4,156,768TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$239,755CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$61,749CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$139,050CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$31,988CurrentTaxYearMinus1YearAmt
Total$472,542TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$20,351CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$19,368CurrentTaxYearMinus3YearsAmt
Total$39,719TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$992,924CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$666,002CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,348,009CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$585,330CurrentTaxYearMinus1YearAmt
Current Tax Year$1,076,764CurrentTaxYearAmt
Total$4,669,029TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$257,000CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$365,000CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$625,000CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$175,000CurrentTaxYearMinus1YearAmt
Current Tax Year$160,201CurrentTaxYearAmt
Total$1,582,201TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$257,000CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$365,000CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$625,000CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$175,000CurrentTaxYearMinus1YearAmt
Current Tax Year$160,201CurrentTaxYearAmt
Total$1,582,201TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$3,086,828PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,117CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,437CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,224CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,899CurrentTaxYearMinus1YearAmt
Current Tax Year$1,706CurrentTaxYearAmt
Total$8,383TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,117CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,437CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,224CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,899CurrentTaxYearMinus1YearAmt
Current Tax Year$1,706CurrentTaxYearAmt
Total$8,383TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$994,041CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$667,439CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,350,233CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$587,229CurrentTaxYearMinus1YearAmt
Current Tax Year$1,078,470CurrentTaxYearAmt
Total$4,677,412TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.65990PublicSupportCY509Pct
Public Support PY5090.99830PublicSupportPY509Pct
Investment Income CY0.00180InvestmentIncomeCYPct
Investment Income PY0.00170InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$5,487OtherCostOrOtherBasisAmt
Depreciation$1,701DepreciationAmt
Book Value$3,786BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$3,786TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,085,477TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$7,239NetUnrealizedGainsInvstAmt
Revenue Not Reported$7,239RevenueNotReportedAmt
Revenue Subtotal$1,078,238RevenueSubtotalAmt
Total Revenue Per Form990$1,078,238TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$991,421TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$991,421ExpensesSubtotalAmt
Total Expenses Per Form990$991,421TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationThe Organization does not believe its financial statements include any material, uncertain tax positions. Tax filings for periods ending December 31, 2017 and later are subject to examination by applicable taxing authorities.ExplanationTxt

Schedule F IRS990ScheduleF

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionAustraliaRegionTxt
Offices0OfficesCnt
Employee0EmployeeCnt
Type Of Activities ConductedResearchTypeOfActivitiesConductedTxt
Region Total Expenditures$25,000RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Spent$25,000SubtotalSpentAmt
Total Spent$25,000TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionAustraliaRegionTxt
Purpose Of GrantResearchPurposeOfGrantTxt
Cash Grant$25,000CashGrantAmt
Manner Of Cash DisbursementWireMannerOfCashDisbursementTxt
Valuation Method UsedFMVValuationMethodUsedDesc
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyfalseAgrmtProfFundraisingActyInd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Blossom BallEvent1Nm
Gross Receipts Event1$312,500GrossReceiptsEvent1Amt
Charitable Contri Event1$312,500CharitableContriEvent1Amt
Gross Receipts Total$312,500GrossReceiptsTotalAmt
Charitable Contributions Tot$312,500CharitableContributionsTotAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Northwestern University
633 Clark StreetEvanstonIL60208362167817501(c)(3)$25,000$0Research
Yale School of Medicine
PO Box 208239New HavenCT06520060646973501(c)(3)$25,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonMargaret CianciPersonNm
TitleExecutive Dir.TitleTxt
Base Compensation Filing Org$163,154BaseCompensationFilingOrgAmt
Nontaxable Benefits Filing Org$18,605NontaxableBenefitsFilingOrgAmt
Total Compensation Filing Org$181,759TotalCompensationFilingOrgAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, EtThere is a family relationship among several board members.
Form 990, Part VI, Line 11b: Form 990 Review ProcessManagement reviewed a draft of the form 990 and provided edits to the ax preparer. After this process was performed, the form 990 was sent to the full board of directors prior to being filed with the IRS.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsThe organization has a board approved conflicts of interest policy. Each board member must fill out an annual declaration stating they had no conflicts or identifying the nature of their interested party transactions.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementExecutive compensation is approved by the Executive Committee.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableDocuments are available upon request.
Other Changes In Net Assets Or Fund Balances - Other IncreasesPrior Period Adjustment = $130938
Form 990, Part XII, Line 1: Change of Accounting MethodThe organization switched to the accrual method of accounting during 2020.

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