DOWN SYNDROME ASSOCIATION OF NORTHEAST INDIANA INC: Form 990EZ, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- DOWN SYNDROME ASSOCIATION OF NORTHEAST INDIANA INC (EIN 35-2096448)
- Tax period
- 2021-01-01 to 2021-12-31
- Filed
- 2022-06-01
- IRS object ID
- 202231529349200428
- Schema version
- 2021v4.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-06-01T15:25:37-05:00 | ReturnTs |
| Tax Period End | 2021-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 202400673 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PERKINS SCHAFFER CPAS INC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1208 LINCOLN HIGHWAY E | AddressLine1Txt |
| City | NEW HAVEN | CityNm |
| State Abbreviation | IN | StateAbbreviationCd |
| ZIP | 46774 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990EZ | ReturnTypeCd |
| Tax Period Begin | 2021-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 352096448 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DOWN SYNDROME ASSN OF NE INDIANA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | DOWN | BusinessNameControlTxt |
| Phone | 2604719964 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 13611 | AddressLine1Txt |
| City | FORT WAYNE | CityNm |
| State Abbreviation | IN | StateAbbreviationCd |
| ZIP | 46865 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANDREA HILL | PersonNm |
| Person Title | TREASURER | PersonTitleTxt |
| Phone | 2604719964 | PhoneNum |
| Signature | 2022-05-25 | SignatureDt |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | ANDREA | PersonFirstNm |
| Person Last | HILL | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | XXX-XX-XXXX | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ADAM W SCHAFFER CPA | PreparerPersonNm |
| PTIN | P01610252 | PTIN |
| Phone | 2604933929 | PhoneNum |
| Preparation | 2022-05-25 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990-EZ IRS990EZ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Schedule B Not Required | Yes (X) | ScheduleBNotRequiredInd |
| Website Address | WWW.DSANI.ORG | WebsiteAddressTxt |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Gross Receipts | $189,954 | GrossReceiptsAmt |
| Info In Schedule O Part I | Yes (X) | InfoInScheduleOPartIInd |
| Contributions Gifts Grants Etc | $175,133 | ContributionsGiftsGrantsEtcAmt |
| Investment Income | $312 | InvestmentIncomeAmt |
| Fundraising Gross Income | $14,509 | FundraisingGrossIncomeAmt |
| Special Events Direct Expenses | $8,514 | SpecialEventsDirectExpensesAmt |
| Special Events Net Income Loss | $5,995 | SpecialEventsNetIncomeLossAmt |
| Total Revenue | $181,440 | TotalRevenueAmt |
| Salaries Other Comp Empl Bnft | $60,105 | SalariesOtherCompEmplBnftAmt |
| Fees And Other Pymt To Ind Cntrct | $3,865 | FeesAndOtherPymtToIndCntrctAmt |
| Occupancy Rent Utlts And Maint | $3,480 | OccupancyRentUtltsAndMaintAmt |
| Printing Publications Postage | $644 | PrintingPublicationsPostageAmt |
| Other Expenses Total | $63,749 | OtherExpensesTotalAmt |
| Total Expenses | $131,843 | TotalExpensesAmt |
| Excess Or Deficit For Year | $49,597 | ExcessOrDeficitForYearAmt |
| Net Assets Or Fund Balances BOY | $200,287 | NetAssetsOrFundBalancesBOYAmt |
| Other Changes In Net Assets | $11,082 | OtherChangesInNetAssetsAmt |
| Net Assets Or Fund Balances EOY | $260,966 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part II | Yes (X) | InfoInScheduleOPartIIInd |
Cash Savings And Investments CashSavingsAndInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $212,459 | BOYAmt |
| EOY | $262,056 | EOYAmt |
Form990 Total Assets Form990TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $212,459 | BOYAmt |
| EOY | $262,056 | EOYAmt |
Sum Of Total Liabilities SumOfTotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,172 | BOYAmt |
| EOY | $1,090 | EOYAmt |
Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $200,287 | BOYAmt |
| EOY | $260,966 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Primary Exempt Purpose | TO ENHANCE THE LIVES OF PEOPLE LIVING WITH DOWN SYNDROME, TO ADVOCATE ON THEIR BEHALF, TO PROVIDE INFORMATION AND SUPPORT TO FAMILIES AND PROFESSIONALS, AND TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME IN NORTHEAST INDIANA. | PrimaryExemptPurposeTxt |
Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description Program Srvc Accom | AS YOU MAY IMAGINE, OUR ABILITY TO SERVE OUR FAMILIES IN THE "TRADITIONAL" SENSE WAS HAMPERED BY THE ONGOING COVID-19 PANDEMIC IN 2021. ALTHOUGH DSANI PROVIDED SUPPORT AND SERVICES TO OVER 250 MEMBER FAMILIES AND PROFESSIONALS IN THE FOLLOWING AREAS, MUCH OF THAT SUPPORT HAD TO HAPPEN VIRTUALLY IN 2021: INFANT-TODDLER PLAYGROUP - THE PLAYGROUP CREATES OPPORTUNITIES FOR INFANT AND YOUNGSTERS (AGES 0-4) TO PLAY AND SOCIALIZE WHILE THEIR PARENT AND SIBLINGS FIND SUPPORT IN A FUN ENVIRONMENT. THIS GROUP DID NOT MEET IN 2021, DUE TO ONGOING PANDEMIC CONCERNS, AND THE RISK TO BABIES WITH COMPLEX MEDICAL ISSUES. BUDDY CLUB - THIS GROUP OFFERS SOCIAL AND RECREATIONAL ACTIVITIES FOR CHILDREN AGES 5-12, TYPICALLY MEETING EVERY TWO TO THREE MONTHS. CURRENT AVERAGE ATTENDANCE IS 26 PEOPLE. FRIENDSHIP CLUB - AIMED AT TEENS AND YOUNG ADULTS, AGES 13 TO 21, THIS GROUP INCLUDES TEENS WITH DOWN SYNDROME AND OTHER LEARNING DISABILITIES, AS YOUTHS WITH DS DEVELOP FRIENDSHIPS IN SCHOOL AND IN THE COMMUNITY. AVERAGE ATTENDANCE FOR EVENTS: 15. SELF-ADVOCATES - INDIVIDUALS WITH DOWN SYNDROME WHO ARE 21 AND OLDER. AVERAGE ATTENDANCE FOR SOCIAL EVENTS (IN THE PAST): 23. GRANDPARENT'S GROUP - THIS GROUP OFFERS A WONDERFUL OPPORTUNITY FOR GRANDPARENTS TO SUPPORT FAMILY MEMBERS AND EACH OTHER IN A NURTURING, CARING ENVIRONMENT. THIS GROUP WAS UNABLE TO GATHER IN 2021. DADS GROUP - DADS APPRECIATING DOWN SYNDROME. THIS GROUP PROVIDES SPECIAL EVENTS TO BRING TOGETHER DADS IN SUPPORT OF EACH OTHER AND TO BUILD STRONG FAMILIES. AVERAGE ATTENDANCE: 5. MOMS GROUP - THIS GROUP WAS FORMED TO PROVIDE DSANI MOTHERS THE OPPORTUNITY TO NETWORK WITH OTHER MOTHERS, LISTEN TO GUEST SPEAKERS AND ENJOY TIME WITH OTHER MOMS. ATTENDANCE DURING FOUR 2021 DINNERS: 418. ACTIVITIES INCLUDED: DINNER MEETINGS - THE MOMS GROUP MET FOUR TIMES IN 2021, AT LOCATIONS THAT COULD PROVIDE SAFE SEATING (SOCIAL DISTANCING). OUTREACH - THE OUTREACH COMMITTEE IS UNDOUBTEDLY OUR MOST IMPORTANT, AS THIS IS THE COMMITTEE WHO WELCOMES FAMILIES NEW TO THE WORLD OF DOWN SYNDROME, INTO OUR ORGANIZATION. IN 2021, WE CONTINUED MEETING WITH NEW FAMILIES IN OUR 11 COUNTY SERVICE AREA. THIS WAS DONE TO INTRODUCE DSANI TO THEM AND PROVIDE INFORMATION. IN 2021, WE WELCOMED 11 NEW FAMILIES TO DSANI. PROGRAM EVENTS - IN ADDITION TO THE SPECIAL-INTEREST OR AGE-SPECIFIC ACTIVITIES THAT DSANI TYPICALLY SPONSORS IN ANY GIVEN YEAR, THE ONGOING PANDEMIC GREATLY AFFECTED OUR ABILITY TO PROVIDE THESE MUCH LOVED ACTIVITIES IN 2021. WE HELD A NUMBER OF ZOOM WORKSHOPS THROUGH THE YEAR. VARIOUS SPEAKERS PRESENTED TOPICS PERTINENT TO THE DOWN SYNDROME COMMUNITY. A TOTAL OF 62 PEOPLE ATTENDED THESE SESSIONS. WE HOSTED A 3-21 (WORLD DOWN SYNDROME DAY) VIRTUAL CELEBRATION IN 2021. A TOTAL OF 114 PARTICIPATED IN THIS ONLINE EVENT. DSANI HOSTED THE POPULAR ICAN BIKE CAMP IN JUNE 2021. THIS CAMP, WHICH TEACHES PEOPLE WITH DEVELOPMENTAL AND INTELLECTUAL DISABILITIES, AGES 8+, TO INDEPENDENTLY RIDE A TWO-WHEEL BIKE, IS ALWAYS POPULAR IN OUR COMMUNITY. WE HOSTED A TOTAL OF 37 RIDERS THROUGHOUT THIS ONE-WEEK CAMP. INCLUDING VOLUNTEERS & RIDERS, A TOTAL OF 62 PEOPLE PARTICIPATED IN THIS EVENT. WE HELD THE ANNUAL DSANI TINCAPS EVENT IN AUGUST, AS THIS WAS A TOTALLY OUTDOOR EVENT. THERE WERE 162 PEOPLE WHO ATTENDED. OUR ANNUAL BUDDY WALK, OUR BIGGEST FUNDRAISER OF THE YEAR, WAS ABLE TO BE HELD IN-PERSON, IN EARLY SEPTEMBER. WE SAW RECORD DONATIONS AND RECORD ATTENDANCE AT THIS EVENT, HELD ANNUALLY AT PARKVIEW FIELD. WE WERE ABLE TO HOLD OUR ANNUAL HOLIDAY PARTY IN EARLY DECEMBER. TYPICALLY ATTENDED BY 300 PEOPLE, MANY ACCOMMODATIONS AND CHANGES WERE NEEDED TO SAFELY HOLD THE EVENT IN 2021. INSTEAD OF ONE 3-HOUR SESSION, WE HELD THREE ONE-HOUR SESSIONS, WITH A MAXIMUM NUMBER OF ATTENDEES AT 100 AT EACH SESSION. ONLY PRE-PACKAGED FOOD WAS SERVED, AND ONLY A FEW GAMES WERE PLAYED BY CHILDREN IN ATTENDANCE. A TOTAL OF 201 PEOPLE ATTENDED. ALONG WITH OUR MANY GROUPS AND PROGRAMS, DSANI ALSO PROVIDES: -LIBRARY RESOURCES -INFORMATIONAL EMAILS TO MEMBERS -OUTREACH & EDUCATIONAL MATERIALS TO MEDICAL PROFESSIONALS & COMMUNITY GROUPS. -RESOURCE REFERRALS TO FAMILIES WHO REQUEST SUCH -WEBSITE -DIRECTORY DISTRIBUTED TO MEMBERS -A TREMENDOUS SUPPORT/MENTOR NETWORK FOR PARENTS IN 2021, WE CONTINUED TO OFFER EDUCATIONAL WORKSHOPS, ALBEIT THROUGH THE MEDIUM OF ZOOM. WE ALSO CONTINUED NURTURING RELATIONSHIPS WITH OTHER COMMUNITY GROUPS, PROFESSIONAL GROUPS, ETC. AS MUCH AS POSSIBLE. | DescriptionProgramSrvcAccomTxt |
| Program Service Expenses | $131,843 | ProgramServiceExpensesAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $131,843 | TotalProgramServiceExpensesAmt |
Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (10 entries)
| TitleTitleTxt | Average Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRt | CompensationCompensationAmt |
|---|---|---|
| DEREK HOWELL | ||
| PRESIDENT | 2.00 | $0 |
| MARCY ALBRIGHT | ||
| VICE PRESIDE | 2.00 | $0 |
| ANDREA HILL | ||
| TREASURER | 2.00 | $0 |
| BROOKE COLVIN | ||
| SECRETARY | 2.00 | $0 |
| ETHAN PICKETT | ||
| DIRECTOR | 1.00 | $0 |
| KAYLEY COLVIN | ||
| DIRECTOR | 1.00 | $0 |
| APRIL CONLEY | ||
| DIRECTOR | 1.00 | $0 |
| URIEL CASTILLO | ||
| DIRECTOR | 1.00 | $0 |
| BECCA ANDERSON | ||
| DIRECTOR | 1.00 | $0 |
| TOM O'NEILL | ||
| DIRECTOR EME | 1.00 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activities Not Previously Rpt | false | ActivitiesNotPreviouslyRptInd |
| Chg Made To Orgnzng Doc Not Rpt | false | ChgMadeToOrgnzngDocNotRptInd |
| Organization Had UBI | false | OrganizationHadUBIInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Organization Dissolved Etc | false | OrganizationDissolvedEtcInd |
| Form1120 Pol Filed | false | Form1120PolFiledInd |
| Made Loans To From Officers | false | MadeLoansToFromOfficersInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ANDREA HILL | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO BOX 13611 | AddressLine1Txt |
| City | FORT WAYNE | CityNm |
| State Abbreviation | IN | StateAbbreviationCd |
| ZIP | 46865 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2604719964 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Foreign Office | false | ForeignOfficeInd |
| Donor Advised Fnds | false | DonorAdvisedFndsInd |
| Operate Hospital | false | OperateHospitalInd |
| Tanning Services Provided | false | TanningServicesProvidedInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| School Operating | false | SchoolOperatingInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Part VI Of Comp Of Hghst Pd Empl | NONE | PartVIOfCompOfHghstPdEmplTxt |
| Part VI Hghst Pd Cntrct Prof Srvc | NONE | PartVIHghstPdCntrctProfSrvcTxt |
| Filed Schedule A | Yes (true) | FiledScheduleAInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $110,838 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $134,879 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $143,054 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $128,766 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $175,133 | CurrentTaxYearAmt |
| Total | $692,670 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $110,838 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $134,879 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $143,054 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $128,766 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $175,133 | CurrentTaxYearAmt |
| Total | $692,670 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $692,670 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $183 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $176 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $177 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $201 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $312 | CurrentTaxYearAmt |
| Total | $1,049 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year | $14,509 | CurrentTaxYearAmt |
| Total | $14,509 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $708,228 | TotalSupportAmt |
| Public Support CY170 | 0.97800 | PublicSupportCY170Pct |
| Public Support PY170 | 0.99850 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, LINE 10 | FormAndLineReferenceDesc |
| Explanation | FUNDRAISING EVENTS 14,509 | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | DADS GOLF OUTIN | Event1Nm |
| Gross Receipts Event1 | $19,085 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $4,576 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $14,509 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $64 | NonCashPrizesEvent1Amt |
| Food And Beverage Event1 | $1,424 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $7,026 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $19,085 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $4,576 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $14,509 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $64 | NonCashPrizesTotalEventsAmt |
| Food And Beverage Total Events | $1,424 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $7,026 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $8,514 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $5,995 | NetIncomeSummaryAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990-EZ, PART I, LINE 16 | EXPENSES OFFICE EXPENSES 8,883 PROGRAM EXPENSES 50,977 INSURANCE 3,889 TOTAL 63,749 |
| FORM 990-EZ, PART I, LINE 20 | PPP LOAN FORGIVENESS FROM 2020 11,082 |
| FORM 990-EZ, PART II, LINE 24 | OFFICE EQUIPMENT 9,103 9,103 LESS ACCUMULATED DEPRECIATION 9,103 9,103 TOTAL 0 0 |
| FORM 990-EZ, PART II, LINE 26 | PAYROLL LIABILITIES 1,090 1,090 PPP LOAN 11,082 0 |
| FORM 990-EZ, PART III | TO ENHANCE THE LIVES OF PEOPLE LIVING WITH DOWN SYNDROME, TO ADVOCATE ON THEIR BEHALF, TO PROVIDE INFORMATION AND SUPPORT TO FAMILIES AND PROFESSIONALS, AND TO PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME IN NORTHEAST INDIANA. |
| FORM 990-EZ, PART III, LINE 28 | AS YOU MAY IMAGINE, OUR ABILITY TO SERVE OUR FAMILIES IN THE "TRADITIONAL" SENSE WAS HAMPERED BY THE ONGOING COVID-19 PANDEMIC IN 2021. ALTHOUGH DSANI PROVIDED SUPPORT AND SERVICES TO OVER 250 MEMBER FAMILIES AND PROFESSIONALS IN THE FOLLOWING AREAS, MUCH OF THAT SUPPORT HAD TO HAPPEN VIRTUALLY IN 2021: INFANT-TODDLER PLAYGROUP - THE PLAYGROUP CREATES OPPORTUNITIES FOR INFANT AND YOUNGSTERS (AGES 0-4) TO PLAY AND SOCIALIZE WHILE THEIR PARENT AND SIBLINGS FIND SUPPORT IN A FUN ENVIRONMENT. THIS GROUP DID NOT MEET IN 2021, DUE TO ONGOING PANDEMIC CONCERNS, AND THE RISK TO BABIES WITH COMPLEX MEDICAL ISSUES. BUDDY CLUB - THIS GROUP OFFERS SOCIAL AND RECREATIONAL ACTIVITIES FOR CHILDREN AGES 5-12, TYPICALLY MEETING EVERY TWO TO THREE MONTHS. CURRENT AVERAGE ATTENDANCE IS 26 PEOPLE. FRIENDSHIP CLUB - AIMED AT TEENS AND YOUNG ADULTS, AGES 13 TO 21, THIS GROUP INCLUDES TEENS WITH DOWN SYNDROME AND OTHER LEARNING DISABILITIES, AS YOUTHS WITH DS DEVELOP FRIENDSHIPS IN SCHOOL AND IN THE COMMUNITY. AVERAGE ATTENDANCE FOR EVENTS: 15. SELF-ADVOCATES - INDIVIDUALS WITH DOWN SYNDROME WHO ARE 21 AND OLDER. AVERAGE ATTENDANCE FOR SOCIAL EVENTS (IN THE PAST): 23. GRANDPARENT'S GROUP - THIS GROUP OFFERS A WONDERFUL OPPORTUNITY FOR GRANDPARENTS TO SUPPORT FAMILY MEMBERS AND EACH OTHER IN A NURTURING, CARING ENVIRONMENT. THIS GROUP WAS UNABLE TO GATHER IN 2021. DADS GROUP - DADS APPRECIATING DOWN SYNDROME. THIS GROUP PROVIDES SPECIAL EVENTS TO BRING TOGETHER DADS IN SUPPORT OF EACH OTHER AND TO BUILD STRONG FAMILIES. AVERAGE ATTENDANCE: 5. MOMS GROUP - THIS GROUP WAS FORMED TO PROVIDE DSANI MOTHERS THE OPPORTUNITY TO NETWORK WITH OTHER MOTHERS, LISTEN TO GUEST SPEAKERS AND ENJOY TIME WITH OTHER MOMS. ATTENDANCE DURING FOUR 2021 DINNERS: 418. ACTIVITIES INCLUDED: DINNER MEETINGS - THE MOMS GROUP MET FOUR TIMES IN 2021, AT LOCATIONS THAT COULD PROVIDE SAFE SEATING (SOCIAL DISTANCING). OUTREACH - THE OUTREACH COMMITTEE IS UNDOUBTEDLY OUR MOST IMPORTANT, AS THIS IS THE COMMITTEE WHO WELCOMES FAMILIES NEW TO THE WORLD OF DOWN SYNDROME, INTO OUR ORGANIZATION. IN 2021, WE CONTINUED MEETING WITH NEW FAMILIES IN OUR 11 COUNTY SERVICE AREA. THIS WAS DONE TO INTRODUCE DSANI TO THEM AND PROVIDE INFORMATION. IN 2021, WE WELCOMED 11 NEW FAMILIES TO DSANI. PROGRAM EVENTS - IN ADDITION TO THE SPECIAL-INTEREST OR AGE-SPECIFIC ACTIVITIES THAT DSANI TYPICALLY SPONSORS IN ANY GIVEN YEAR, THE ONGOING PANDEMIC GREATLY AFFECTED OUR ABILITY TO PROVIDE THESE MUCH LOVED ACTIVITIES IN 2021. WE HELD A NUMBER OF ZOOM WORKSHOPS THROUGH THE YEAR. VARIOUS SPEAKERS PRESENTED TOPICS PERTINENT TO THE DOWN SYNDROME COMMUNITY. A TOTAL OF 62 PEOPLE ATTENDED THESE SESSIONS. WE HOSTED A 3-21 (WORLD DOWN SYNDROME DAY) VIRTUAL CELEBRATION IN 2021. A TOTAL OF 114 PARTICIPATED IN THIS ONLINE EVENT. DSANI HOSTED THE POPULAR ICAN BIKE CAMP IN JUNE 2021. THIS CAMP, WHICH TEACHES PEOPLE WITH DEVELOPMENTAL AND INTELLECTUAL DISABILITIES, AGES 8+, TO INDEPENDENTLY RIDE A TWO-WHEEL BIKE, IS ALWAYS POPULAR IN OUR COMMUNITY. WE HOSTED A TOTAL OF 37 RIDERS THROUGHOUT THIS ONE-WEEK CAMP. INCLUDING VOLUNTEERS & RIDERS, A TOTAL OF 62 PEOPLE PARTICIPATED IN THIS EVENT. WE HELD THE ANNUAL DSANI TINCAPS EVENT IN AUGUST, AS THIS WAS A TOTALLY OUTDOOR EVENT. THERE WERE 162 PEOPLE WHO ATTENDED. OUR ANNUAL BUDDY WALK, OUR BIGGEST FUNDRAISER OF THE YEAR, WAS ABLE TO BE HELD IN-PERSON, IN EARLY SEPTEMBER. WE SAW RECORD DONATIONS AND RECORD ATTENDANCE AT THIS EVENT, HELD ANNUALLY AT PARKVIEW FIELD. WE WERE ABLE TO HOLD OUR ANNUAL HOLIDAY PARTY IN EARLY DECEMBER. TYPICALLY ATTENDED BY 300 PEOPLE, MANY ACCOMMODATIONS AND CHANGES WERE NEEDED TO SAFELY HOLD THE EVENT IN 2021. INSTEAD OF ONE 3-HOUR SESSION, WE HELD THREE ONE-HOUR SESSIONS, WITH A MAXIMUM NUMBER OF ATTENDEES AT 100 AT EACH SESSION. ONLY PRE-PACKAGED FOOD WAS SERVED, AND ONLY A FEW GAMES WERE PLAYED BY CHILDREN IN ATTENDANCE. A TOTAL OF 201 PEOPLE ATTENDED. ALONG WITH OUR MANY GROUPS AND PROGRAMS, DSANI ALSO PROVIDES: -LIBRARY RESOURCES -INFORMATIONAL EMAILS TO MEMBERS -OUTREACH & EDUCATIONAL MATERIALS TO MEDICAL PROFESSIONALS & COMMUNITY GROUPS. -RESOURCE REFERRALS TO FAMILIES WHO REQUEST SUCH -WEBSITE -DIRECTORY DISTRIBUTED TO MEMBERS -A TREMENDOUS SUPPORT/MENTOR NETWORK FOR PARENTS IN 2021, WE CONTINUED TO OFFER EDUCATIONAL WORKSHOPS, ALBEIT THROUGH THE MEDIUM OF ZOOM. WE ALSO CONTINUED NURTURING RELATIONSHIPS WITH OTHER COMMUNITY GROUPS, PROFESSIONAL GROUPS, ETC. AS MUCH AS POSSIBLE. |
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