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RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC: Form 990EZ, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC (EIN 04-3583648)
Tax period
2023-10-01 to 2024-09-30
Filed
2025-01-23
IRS object ID
202520239349200217
Schema version
2023v6.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-01-23T10:15:37-06:00ReturnTs
Tax Period End2024-09-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN042807416PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Koundakjian & Co PC CPA'sBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line19 Meriam St Suite 2AddressLine1Txt
CityLexingtonCityNm
State AbbreviationMAStateAbbreviationCd
ZIP024205312ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2023-10-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN043583648EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1RETT SYNDROME ASSOCIATION OFBusinessNameLine1Txt
Business Name Line2MASSACHUSETTS INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlRETTBusinessNameControlTxt
Phone5084809567PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1217 SOUTH STREETAddressLine1Txt
CityWALTHAMCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02453ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonIRENE GLADSTONEPersonNm
Person TitleCLERKPersonTitleTxt
Phone6177758164PhoneNum
Signature2025-01-23SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonDonald K KoundakjianPreparerPersonNm
PTINP00742653PTIN
Phone7818611170PhoneNum
Preparation2025-01-23PreparationDt
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2024-10-15 13:58:12ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Website AddressN/AWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$36,306GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$36,306ContributionsGiftsGrantsEtcAmt
Total Revenue$36,306TotalRevenueAmt
Grants And Similar Amounts Paid$29,000GrantsAndSimilarAmountsPaidAmt
Other Expenses Total$12,130OtherExpensesTotalAmt
Total Expenses$41,130TotalExpensesAmt
Excess Or Deficit For Year-$4,824ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$151,325NetAssetsOrFundBalancesBOYAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Net Assets Or Fund Balances EOY$146,501NetAssetsOrFundBalancesEOYAmt

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$151,325BOYAmt
EOY$146,501EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$151,325BOYAmt
EOY$146,501EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$151,325BOYAmt
EOY$146,501EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
Primary Exempt PurposeTO PROVIDE SUPPORT AND INFORMATION TO FAMILIES; TO RAISE FUNDS TO ACCELERATE BIOMEDICAL RESEARCH; TO RAISE PUBLIC AWARENESS AMONG MEDICAL AND EDUCATIONAL COMMUNITIESPrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp

FieldValueIRS element (for citing)
Description Program Srvc AccomOBJECTIVES AND ACHIEVEMENTS OF THE ASSOCIATION INCLUDE EDUCATIONAL RESEARCH, INCREASING PUBLIC AWARENESS, PROVIDING FAMILY SUPPORT, AND SUPPORTING MEDICAL RESEARCH.DescriptionProgramSrvcAccomTxt
Grants And Allocations$29,000GrantsAndAllocationsAmt
Program Service Expenses$38,835ProgramServiceExpensesAmt
FieldValueIRS element (for citing)
Total Program Service Expenses$38,835TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (11 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmtEmployee Benefit ProgramEmployeeBenefitProgramAmtExpense Account Other AllwncExpenseAccountOtherAllwncAmt
MAGGIE WURM
PRESIDENT5.00$0$0$0
KATHY SCHOENER
TREASURER5.00$0$0$0
LARRY FALLON
VICE PRESIDENT5.00$0$0$0
IRENE GLADSTONE
CLERK5.00$0$0$0
MICHELLE BOOM
DIRECTOR1.00$0$0$0
BONNIE BUDD
DIRECTOR1.00$0$0$0
TONYA CHEVER
DIRECTOR1.00$0$0$0
SHANON HILARIO
DIRECTOR1.00$0$0$0
BILL JOHNSON
DIRECTOR1.00$0$0$0
CORIANN STINSON
DIRECTOR1.00$0$0$0
JILL TWIGG
DIRECTOR1.00$0$0$0
FieldValueIRS element (for citing)
Info In Schedule O Part VYes (X)InfoInScheduleOPartVInd
Activities Not Previously Rpt0ActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not Rpt0ChgMadeToOrgnzngDocNotRptInd
Organization Had UBI0OrganizationHadUBIInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Organization Dissolved Etc0OrganizationDissolvedEtcInd
Direct Indirect Pltcl Expend$0DirectIndirectPltclExpendAmt
Made Loans To From Officers0MadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1KATHLEEN SCHOENERBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line128 CONSTITUTION DRIVEAddressLine1Txt
CitySOUTHBOROCityNm
State AbbreviationMAStateAbbreviationCd
ZIP02026ZIPCd
FieldValueIRS element (for citing)
Phone5084809667PhoneNum
FieldValueIRS element (for citing)
Foreign Financial Account0ForeignFinancialAccountInd
Foreign Office0ForeignOfficeInd
Donor Advised Fnds0DonorAdvisedFndsInd
Operate Hospital0OperateHospitalInd
Tanning Services Provided0TanningServicesProvidedInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
School Operating0SchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (1)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$32,848CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$38,747CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$78,871CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$76,688CurrentTaxYearMinus1YearAmt
Current Tax Year$36,306CurrentTaxYearAmt
Total$263,460TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$32,848CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$38,747CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$78,871CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$76,688CurrentTaxYearMinus1YearAmt
Current Tax Year$36,306CurrentTaxYearAmt
Total$263,460TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$263,460PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$32,848CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$38,747CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$78,871CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$76,688CurrentTaxYearMinus1YearAmt
Current Tax Year$36,306CurrentTaxYearAmt
Total$263,460TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091.00000PublicSupportCY509Pct
Public Support PY5091.00000PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts PaidActivity Classification: RETTS SYNDROME RESEARCH. Grantee Name: BOSTON CHILDREN'S HOSPITAL. Grantee Address: 300 LONGWOOD AVENUE BOSTON, MA 02115. Grantee Relationship: NONE. Property Description: CASH. Date of Gift: 05/30/24. Amount Given: 25000.
Form 990-EZ, Part I, Line 10 - Grants and Similar Amounts PaidActivity Classification: SIBLING SCHOLARSHIPS. Grantee Name: 4 RETTS PATIENT SIBLINGS FOR COLLEGE. Grantee Relationship: NONE. Property Description: CASH. Amount Given: 4000. Total included on Form 990-EZ, line 10: 29000.
Form 990-EZ, Part I, Line 16 - Other ExpensesDescription: EVENT EXPENSE. Amount: 6868. Description: WEBSITE MAINTENANCE. Amount: 1575. Description: BLUE SKY DAY. Amount: 895. Description: ANGEL FUND . Amount: 411. Description: RETT TOWELS. Amount: 461. Description: RETT FAMILY WELFARE FUND. Amount: 300. Description: ADMINISTRATION. Amount: 195. Description: CONFERENCE SCHOLARSHIP. Amount: 225. Description: EQUINE THERAPY. Amount: 1200. Total to Form 990-EZ, line 16: 12130.

Transfer Prsnl Bnft Contracts Decl TransferPrsnlBnftContractsDecl

FieldValueIRS element (for citing)
DeclarationThe organization did not, during the year, receive any funds, directly,or indirectly, to pay premiums on a personal benefit contract.The organization, did not, during the year, pay any premiums, directly,or indirectly, on a personal benefit contract.DeclarationDesc

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