SYNGAP RESEARCH FUND INCORPORATED: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- SYNGAP RESEARCH FUND INCORPORATED (EIN 83-1200789)
- Tax period
- 2023-01-01 to 2023-12-31
- Filed
- 2024-11-13
- IRS object ID
- 202443189349306464
- Schema version
- 2023v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-11-13T10:48:50-08:00 | ReturnTs |
| Tax Period End | 2023-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 260735604 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Mogg & Associates LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5601 S Broadway Ste 440 | AddressLine1Txt |
| City | Littleton | CityNm |
| State Abbreviation | CO | StateAbbreviationCd |
| ZIP | 80121 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 831200789 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SynGAP Research Fund Incorporated | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SYNG | BusinessNameControlTxt |
| Phone | 6504414191 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2856 Curie Pl | AddressLine1Txt |
| City | San Diego | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92122 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Stefanie Decker | PersonNm |
| Person Title | CFO | PersonTitleTxt |
| Signature | 2024-11-13 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Bryan D Mogg | PreparerPersonNm |
| PTIN | P00237137 | PTIN |
| Phone | 7209459100 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2024-10-15 13:58:12Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Stefanie Decker | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2856 Curie Pl | AddressLine1Txt |
| City | San Diego | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92122 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,008,670 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.syngapresearchfund.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2018 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems. | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 16 | VotingMembersIndependentCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Total Volunteers | 16 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $1,977,386 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,983,831 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $40,778 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $19,237 | CYProgramServiceRevenueAmt |
| PY Investment Income | $4,889 | PYInvestmentIncomeAmt |
| CY Investment Income | $5,602 | CYInvestmentIncomeAmt |
| PY Other Revenue | $166,842 | PYOtherRevenueAmt |
| CY Other Revenue | -$148,997 | CYOtherRevenueAmt |
| PY Total Revenue | $2,189,895 | PYTotalRevenueAmt |
| CY Total Revenue | $1,859,673 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $389,478 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,773,399 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $0 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $17,565 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $803,227 | PYOtherExpensesAmt |
| CY Other Expenses | $378,597 | CYOtherExpensesAmt |
| PY Total Expenses | $1,192,705 | PYTotalExpensesAmt |
| CY Total Expenses | $2,151,996 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $997,190 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$292,323 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,109,357 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,531,433 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $1,169,261 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,109,357 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,362,172 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $1,999,074 | ExpenseAmt |
| Grant | $1,769,101 | GrantAmt |
| Desc | Funding of new and continued research initiatives with leading institutions. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $22,597 | ExpenseAmt |
| Desc | Training service dogs. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $4,298 | ExpenseAmt |
| Grant | $4,298 | GrantAmt |
| Desc | Family assistance provided to two families. One domestic and one foreign. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $2,025,969 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 3 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 0 | EmployeeCnt |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 0 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 16 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | false | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | false | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | The Organization | PersonNm |
| Phone | 6504414191 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2856 Curie Pl | AddressLine1Txt |
| City | San Diego | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92122 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|---|
| J Mike Graglia | |||||||
| Managing Direct | 45.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Victoria Arteaga | |||||||
| Treasurer | 6.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Emily Barnes | |||||||
| Secretary | 6.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Peter Halliburton | |||||||
| Member | 15.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Aaron Harding | |||||||
| Member | 6.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Jess Fares | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Melissa Foster | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Marta Caceres Dahiya | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Pavel Gerovich | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Suzanne Jones | |||||||
| Chair Person | 20.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Michael Langen | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Sydney Stelmaszek | |||||||
| Member | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Nancy Leib Kessler | |||||||
| Member | 10.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Stella Tavilla | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Julie Miles | |||||||
| Member | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | |
| Stefanie Decker | |||||||
| CFO | 10.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $561,873 | FundraisingAmt |
| All Other Contributions | $1,421,958 | AllOtherContributionsAmt |
| Noncash Contributions | $35,351 | NoncashContributionsAmt |
| Total Contributions | $1,983,831 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Round Table | Desc |
| Total Revenue Column | $19,237 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $19,237 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $19,237 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $808 | TotalRevenueColumnAmt |
| Exclusion | $808 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,794 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,794 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,794 | TotalRevenueColumnAmt |
| Exclusion | $4,794 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contri Rpt Fundraising Event | $561,873 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $148,997 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$148,997 | TotalRevenueColumnAmt |
| Exclusion | -$148,997 | ExclusionAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $0 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,859,673 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $19,237 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | -$143,395 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,448,462 | TotalAmt |
| Program Services | $1,448,462 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,298 | TotalAmt |
| Program Services | $4,298 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $320,639 | TotalAmt |
| Program Services | $320,639 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $91,100 | TotalAmt |
| Program Services | $35,029 | ProgramServicesAmt |
| Management And General | $56,071 | ManagementAndGeneralAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,850 | TotalAmt |
| Management And General | $6,850 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,776 | TotalAmt |
| Program Services | $13,776 | ProgramServicesAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,565 | TotalAmt |
| Fundraising | $17,565 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,140 | TotalAmt |
| Program Services | $7,140 | ProgramServicesAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,082 | TotalAmt |
| Program Services | $40,082 | ProgramServicesAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $36,498 | TotalAmt |
| Program Services | $36,498 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|
| Other Expense | $129,487 | $83,946 | $45,541 |
| Service Dog Training | $22,597 | $22,597 | |
| Postage and Shipping | $8,990 | $8,990 | |
| Dues and Memberships | $4,512 | $4,512 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,151,996 | TotalAmt |
| Program Services | $2,025,969 | ProgramServicesAmt |
| Management And General | $108,462 | ManagementAndGeneralAmt |
| Fundraising | $17,565 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,766,231 | BOYAmt |
| EOY | $118,788 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $250,000 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $3,429 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $343,126 | BOYAmt |
| EOY | $2,159,216 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $0 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,109,357 | BOYAmt |
| EOY | $2,531,433 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $6,856 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $1,162,405 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $1,169,261 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,068,811 | BOYAmt |
| EOY | $1,362,172 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $40,546 | BOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,109,357 | BOYAmt |
| EOY | $1,362,172 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,109,357 | BOYAmt |
| EOY | $2,531,433 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$292,323 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $3,986 | NetUnrlzdGainsLossesInvstAmt |
| Prior Period Adjustments | -$458,848 | PriorPeriodAdjustmentsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | false | FSAuditedInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $382,888 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $590,087 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,364,391 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,144,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,983,831 | CurrentTaxYearAmt |
| Total | $6,465,425 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $382,888 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $590,087 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,364,391 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,144,228 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,983,831 | CurrentTaxYearAmt |
| Total | $6,465,425 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $6,465,425 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $13 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,889 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $808 | CurrentTaxYearAmt |
| Total | $5,710 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $650 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,913 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $19,327 | CurrentTaxYearAmt |
| Total | $26,890 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $6,498,025 | TotalSupportAmt |
| Public Support CY170 | 0.99500 | PublicSupportCY170Pct |
| Public Support PY170 | 0.99720 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $2,092,952 | TotalRevEtcAuditedFinclStmtAmt |
| Donated Services And Use Fclts | $85,000 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $148,997 | OtherRevenueAmt |
| Revenue Not Reported | $233,997 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,858,955 | RevenueSubtotalAmt |
| Other Revenues Not Included | $718 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $718 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $1,859,673 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,385,275 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $85,000 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $148,997 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $233,997 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,151,278 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $718 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $718 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,151,996 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 | Fundraising Expenditures $148997 |
| Part XI, Line 4b: Other revenue amounts included on 990 but not included in F/S | Discounts $718 |
| Part XII, Line 2d: Other expenses and losses per audited F/S | Fundraising Expenditures $148997 |
| Part XII, Line 4b: Other revenue amounts included on 990 but not included in F/S | Discounts $718 |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| Europe | Scientific Research | $133,449 | Check | Cash |
| Europe | Scientific Research | $65,000 | Check | Cash |
| Europe | Scientific Research | $78,190 | Check | Cash |
| North America | Scientific Research | $44,000 | Check | Cash |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Agrmt Prof Fundraising Acty | false | AgrmtProfFundraisingActyInd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Fundraising | Event1Nm |
| Gross Receipts Event1 | $561,873 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $561,873 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $148,997 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $561,873 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $561,873 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $148,997 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $148,997 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$148,997 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (15 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc |
|---|---|---|---|---|---|---|---|---|
| Axonis Therapeutics Inc | ||||||||
| 75 Kneeland St 14th Fl | Boston | MA | 02111 | $55,000 | $0 | Scientific Research | ||
| Baylor College of Medicine | ||||||||
| One Baylor Plaza | Houston | TX | 77030 | $36,575 | $0 | Scientific Research | 741613878 | 501(c)(3) |
| Childrens Hospital Colorado | ||||||||
| 13123 E 16th Ave | Aurora | CO | 80045 | $113,000 | $0 | Scientific Research | 501(c)(3) | |
| InVivo Biosystems | ||||||||
| 1505 Westec Dr | Eugene | OR | 97402 | $10,000 | $0 | Scientific Research | 501(c)(3) | |
| John Carroll University | ||||||||
| 1 John Carroll University | University Heig | OH | 44118 | $132,434 | $0 | Scientific Research | 340714681 | 501(c)(3) |
| Johns Hopkins University | ||||||||
| 725 N Wolfe St | Baltimore | MD | 21205 | $65,000 | $0 | Scientific Research | 520595110 | 501(c)(3) |
| New York University | ||||||||
| 50 W 4th St | New York | NY | 10012 | $105,819 | $0 | Scientific Research | 135562308 | 501(c)(3) |
| Rarebase PBC | ||||||||
| 1804 Embarcadero Rd Ste 201 | Palo Alto | CA | 94303 | $190,950 | $0 | Drug Screening | ||
| Stanford University | ||||||||
| 450 Jane Stanford Way | Stanford | CA | 94305 | $130,000 | $0 | Scientific Research | 941156365 | 501(c)(3) |
| The Jackson Laboratory | ||||||||
| 600 Main St | Bar Harbor | ME | 04609 | $236,850 | $0 | Scientific Research | 010211513 | 501(c)(3) |
| University of CA Davis | ||||||||
| One Shields Avenue | Davis | CA | 95616 | $80,000 | $0 | Scientific Research | 946036494 | State of California |
| University of Colorado | ||||||||
| 1800 Grant St Ste 800 | Denver | CO | 80203 | $65,000 | $0 | Scientific Research | 846000555 | 501(c)(3) |
| University of Southern Califo | ||||||||
| 1150 S Olive St Fl 25 | Los Angeles | CA | 90015 | $112,914 | $0 | Scientific Research | 951642394 | State of California |
| University of Utah | ||||||||
| 201 Presidents Cir | Salt Lake City | UT | 84112 | $65,377 | $0 | Scientific Research | 876000525 | State of Utah |
| Unravel Biosciences Inc | ||||||||
| 196 Boston Ave Ste 1000 | Medford | MA | 02155 | $45,250 | $0 | Scientific Research | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 12 | Total501c3OrgCnt |
| Total Other Org | 3 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Grantmaker's Description of How Grants are Used | FormAndLineReferenceDesc |
| Explanation | Progress reporting from grantees. | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 2 | ContributionCnt |
| Noncash Contributions Rpt F990 | $35,351 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Comparable Sales | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 4d | OTHER PROGRAM SERVICES 4: Training service dogs. |
| Form 990, Part VI, Section B, Line 11b | Board will have five business days to exercise questions or concerns before finalizing. |
| Form 990, Part VI, Section C, Line 19 | No documents available to the public. |
| Change in Accounting Method | For 2023 Form 990, nonprofit began having an audit prior to filing. To report consist with audit report, changing to accrual basis. |
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