FURP.ORG / PUBLIC DATA EXPLORER

IMMUNE DEFICIENCY FOUNDATION: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
IMMUNE DEFICIENCY FOUNDATION (EIN 52-1214782)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-06-27
IRS object ID
202401799349300940
Schema version
2023v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-06-27T15:27:10-04:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN251644159PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BROWN PLUSBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17420 HAYWARD ROAD SUITE 101AddressLine1Txt
CityFREDERICKCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21702ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521214782EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1IMMUNE DEFICIENCY FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlIMMUBusinessNameControlTxt
Phone4103216647PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE ROAD SUITE 220AddressLine1Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21706ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOREY BERRYPersonNm
Person TitlePRESIDENT & CEOPersonTitleTxt
Phone4103216647PhoneNum
Signature2024-06-24SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstJOREYPersonFirstNm
Person LastBERRYPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonWANDA K LYNN CPAPreparerPersonNm
PTINP00726749PTIN
Phone3016969449PhoneNum
Preparation2024-06-24PreparationDt
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJOREY BERRYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE ROADAddressLine1Txt
Address Line2SUITE 220AddressLine2Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21076ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$19,531,404GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.PRIMARYIMMUNE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1980FormationYr
Legal Domicile StateDELegalDomicileStateCd
Activity Or MissionTHE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee45TotalEmployeeCnt
Total Volunteers602TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$8,654,145PYContributionsGrantsAmt
CY Contributions Grants$8,657,179CYContributionsGrantsAmt
PY Program Service Revenue$68,746PYProgramServiceRevenueAmt
CY Program Service Revenue$13,090CYProgramServiceRevenueAmt
PY Investment Income$129,557PYInvestmentIncomeAmt
CY Investment Income$315,588CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$8,852,448PYTotalRevenueAmt
CY Total Revenue$8,985,857CYTotalRevenueAmt
PY Grants And Similar Paid$158,570PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$244,104CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$4,283,731PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$4,417,931CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,144,802CYTotalFundraisingExpenseAmt
PY Other Expenses$3,494,170PYOtherExpensesAmt
CY Other Expenses$2,740,219CYOtherExpensesAmt
PY Total Expenses$7,936,471PYTotalExpensesAmt
CY Total Expenses$7,402,254CYTotalExpensesAmt
PY Revenues Less Expenses$915,977PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,583,603CYRevenuesLessExpensesAmt
Total Assets BOY$14,567,941TotalAssetsBOYAmt
Total Assets EOY$17,355,217TotalAssetsEOYAmt
Total Liabilities BOY$1,525,931TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,438,468TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$13,042,010NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$15,916,749NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE IMMUNE DEFICIENCY FOUNDATION (IDF) IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH. IDF SEEKS TO ENSURE THAT EVERYONE IN THE U.S. AFFECTED BY PI HAS A FULLY INFORMED UNDERSTANDING OF THE PI DIAGNOSIS THAT AFFECTS THEM, ALL AVAILABLE TREATMENT OPTIONS, THE EXPECTED STANDARD OF CARE, AND ALL OF THEIR OPPORTUNITIES FOR CONNECTION AND SUPPORT WITHIN THE PI COMMUNITY.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$3,050,669ExpenseAmt
Grant$15,704GrantAmt
DescIMMUNE DEFICIENCY FOUNDATION (IDF) PROVIDED EDUCATIONAL PROGRAMS FOR PATIENTS AND FAMILIES LIVING WITH PRIMARY IMMUNODEFICIENCIES (PI). IN 2023, APPROXIMATELY 30,320 INDIVIDUALS WERE SUPPORTED AND HELPED BY ATTENDING OR LISTENING TO MORE THAN 360 PRESENTATIONS AT NO ADDITIONAL COST TO THEM. THESE INCLUDED EDUCATION SESSIONS, IDF GET CONNECTED GROUP MEETINGS, TEEN AND YOUNG ADULT ACTIVITIES, THE IDF PI CONFERENCE, AND PODCAST EPISODES. MORE THAN 822,000 USERS ACCESSED THE IDF WEBSITE FOR INFORMATION AND SUPPORT.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$956,777ExpenseAmt
Grant$500GrantAmt
DescTHE PI COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE INCLUDING BUT NOT LIMITED TO ANSWERING INSURANCE QUESTIONS, LOCATING A SPECIALIST IN THEIR AREA, FINDING TREATMENT INFORMATION, AND LEARNING MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS FULFILLED INFORMATION REQUESTS FROM MORE THAN 1,665 INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE. IDF WORKS THROUGHOUT THE YEAR AT THE FEDERAL AND STATE LEVELS TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THE PI COMMUNITY. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK WORKS TO INFORM POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2023, WITH SUPPORT FROM IDF, LEGISLATION WAS REINTRODUCED TO BAN COPAY ACCUMULATORS FEDERALLY BY A BILL IN THE U.S. HOUSE OF REPRESENTATIVES. AT IDF ADVOCACY DAY, 243 INDIVIDUALS MET WITH AND SENT MESSAGES TO MEMBERS OF CONGRESS TO ENSURE THAT PEOPLE WITH PI CAN LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,075,835ExpenseAmt
Grant$227,900GrantAmt
Revenue$12,100RevenueAmt
DescTO IMPROVE THE DIAGNOSIS, TREATMENT, AND CARE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT NINE MEDICAL CONFERENCES, PROVIDING INFORMATION AND RESOURCES TO OVER 3,195 HEALTHCARE PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS PHYSICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCIES. IN 2023, OVER 2,000 INDIVIDUALS PARTICIPATED IN TWO IDF PATIENT SURVEYS TO GATHER DATA ON THE PI EXPERIENCE SINCE NO FEDERALLY FUNDED HEALTH SURVEYS IN THE U.S. COLLECT INFORMATION ON PI. THERE WERE THREE ABSTRACTS AND FOUR PUBLISHED MANUSCRIPTS ALL USING USIDNET DATA. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED FIVE RESEARCH GRANTS IN 2023 TOTALING OVER 192,000.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Revenue$990RevenueAmt
FieldValueIRS element (for citing)
Total Other Prog Srvc Revenue$990TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$5,083,281TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document26IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee45EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSARAH ROSEPersonNm
Phone4103216647PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17550 TEAGUE ROADAddressLine1Txt
CityHANOVERCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21076ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
JOREY BERRY
PRESIDENT &40.00Yes (X)Yes (X)$268,604$0$31,984
SARAH ROSE
CFO40.00Yes (X)$140,396$0$29,011
BRIAN LLOYD
CTO40.00$136,376$0$31,592Yes (X)
AIMEE SIMPSON
VP INSTITUTI40.00$145,327$0$17,779Yes (X)
TAMMY BLACK
VP COMMUNICA40.00$142,074$0$18,603Yes (X)
LYNN ALBIZO
VP PUBLIC PO40.00$127,911$0$27,103Yes (X)
CHRISTOPHER DUCKETT
DIRECTOR OF40.00$113,790$0$34,050Yes (X)
JASON ANGELOS
FINANCE CHAI1.00Yes (X)$0$0$0
PETE ATHERTON
FUTURES CHAI1.00Yes (X)$0$0$0
COLLEEN DANSEREAU
TRUSTEE1.00Yes (X)$0$0$0
CHARLENE GRABOWSKI
TRUSTEE1.00Yes (X)$0$0$0
SETH KAUFMAN
BOARD VICE C1.00Yes (X)Yes (X)$0$0$0
KATE SULLIVAN MD
MAC CHAIR1.00Yes (X)$0$0$0
ADRIAN MOLLO
TRUSTEE1.00Yes (X)$0$0$0
ANDY ROBINS
TRUSTEE1.00Yes (X)$0$0$0
STELLA SAFO
TRUSTEE1.00Yes (X)$0$0$0
TRACY A SHAW
BOARD CHAIR1.00Yes (X)Yes (X)$0$0$0
HARPER SPERO
DEVELOPMENT1.00Yes (X)$0$0$0
SONIA VOHNOUT
BOARD SECRET1.00Yes (X)Yes (X)$0$0$0
PETER WANG
TRUSTEE1.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,074,478TotalReportableCompFromOrgAmt
Total Other Compensation$190,122TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K8IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Business Name Line2ContractorName/BusinessName/BusinessNameLine2TxtAddress Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmtAddress Line2ContractorAddress/USAddress/AddressLine2Txt
THE REGENTS OF THE UNIVERSITY
OF CALIFORNIA SAN FRANCISCO555 MISSION BLVD SOUTHSAN FRANCISCOCA94158CONSULTING$301,116
FAEGRE DRINKER BIDDLE & REATH LLP
PO BOX 536777PITTSBURGHPA15253PUBLIC POLICY$166,051
JPL
471 JPL WICK DRIVEHARRISBURGPA17111CONSULTING$149,264
THE MT ROYAL PRINTING COMPANY
6310 BLAIR HILL LNBALTIMOREMD21209CONSULTING$130,271
NEVINS & ASSOCIATES
215 WASHINGTON AVENUETOWSONMD21204CONSULTING$108,000SUITE 100
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K5CntrctRcvdGreaterThan100KCnt
Government Grants$322,570GovernmentGrantsAmt
All Other Contributions$8,334,609AllOtherContributionsAmt
Noncash Contributions$43,157NoncashContributionsAmt
Total Contributions$8,657,179TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SURVEY INCOME541700$12,100$12,100
OTHER INCOME541900$990$990
FieldValueIRS element (for citing)
Total Program Service Revenue$13,090TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$398,737TotalRevenueColumnAmt
Exclusion$398,737ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$10,462,398SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$10,545,547SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$83,149SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$83,149TotalRevenueColumnAmt
Exclusion-$83,149ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,985,857TotalRevenueColumnAmt
Related Or Exempt Func Income$13,090RelatedOrExemptFuncIncomeAmt
Exclusion$315,588ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$217,750TotalAmt
Program Services$217,750ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$26,354TotalAmt
Program Services$26,354ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$469,994TotalAmt
Program Services$199,092ProgramServicesAmt
Management And General$218,273ManagementAndGeneralAmt
Fundraising$52,629FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,193,169TotalAmt
Program Services$2,115,135ProgramServicesAmt
Management And General$603,461ManagementAndGeneralAmt
Fundraising$474,573FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$115,337TotalAmt
Program Services$74,135ProgramServicesAmt
Management And General$25,552ManagementAndGeneralAmt
Fundraising$15,650FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$365,402TotalAmt
Program Services$231,927ProgramServicesAmt
Management And General$84,043ManagementAndGeneralAmt
Fundraising$49,432FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$274,029TotalAmt
Program Services$173,901ProgramServicesAmt
Management And General$59,537ManagementAndGeneralAmt
Fundraising$40,591FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$34,623TotalAmt
Program Services$32,148ProgramServicesAmt
Management And General$713ManagementAndGeneralAmt
Fundraising$1,762FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$29,158TotalAmt
Program Services$27,073ProgramServicesAmt
Management And General$601ManagementAndGeneralAmt
Fundraising$1,484FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$199,969TotalAmt
Program Services$199,969ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$63,532TotalAmt
Program Services$44,772ProgramServicesAmt
Management And General$8,424ManagementAndGeneralAmt
Fundraising$10,336FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$675,274TotalAmt
Program Services$612,705ProgramServicesAmt
Management And General$17,999ManagementAndGeneralAmt
Fundraising$44,570FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$27,398TotalAmt
Program Services$9,894ProgramServicesAmt
Fundraising$17,504FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$118,817TotalAmt
Program Services$77,784ProgramServicesAmt
Management And General$24,934ManagementAndGeneralAmt
Fundraising$16,099FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$155,607TotalAmt
Program Services$144,481ProgramServicesAmt
Management And General$3,206ManagementAndGeneralAmt
Fundraising$7,920FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$102,983TotalAmt
Program Services$66,208ProgramServicesAmt
Management And General$21,461ManagementAndGeneralAmt
Fundraising$15,314FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$109,661TotalAmt
Program Services$78,976ProgramServicesAmt
Management And General$7,467ManagementAndGeneralAmt
Fundraising$23,218FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$455,521TotalAmt
Program Services$317,498ProgramServicesAmt
Management And General$20,506ManagementAndGeneralAmt
Fundraising$117,517FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$64TotalAmt
Management And General$64ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$168,728TotalAmt
Program Services$110,002ProgramServicesAmt
Management And General$34,272ManagementAndGeneralAmt
Fundraising$24,454FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$37,680TotalAmt
Program Services$26,429ProgramServicesAmt
Management And General$6,264ManagementAndGeneralAmt
Fundraising$4,987FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
DUES & SUBSCRIPTIONS$186,981$132,447$21,723$32,811
PRINTING & COPYING$115,770$73,731$447$41,592
BANK FEES$114,839$8,739$8,821$97,279
POSTAGE & SHIPPING$90,796$55,390$35,406

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$52,818TotalAmt
Program Services$26,741ProgramServicesAmt
Management And General$6,403ManagementAndGeneralAmt
Fundraising$19,674FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$7,402,254TotalAmt
Program Services$5,083,281ProgramServicesAmt
Management And General$1,174,171ManagementAndGeneralAmt
Fundraising$1,144,802FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,250,364BOYAmt
EOY$1,346,127EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,536,582BOYAmt
EOY$2,374,122EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$58,271BOYAmt
EOY$79,899EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$8,920BOYAmt
EOY$18,506EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$188,115BOYAmt
EOY$281,164EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$249,760LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$45,236LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$210,537BOYAmt
EOY$204,524EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$10,175,769BOYAmt
EOY$11,924,537EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$196,186BOYAmt
EOY$214,663EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$943,197BOYAmt
EOY$911,675EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$14,567,941BOYAmt
EOY$17,355,217EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$306,894BOYAmt
EOY$308,172EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$63,962BOYAmt
EOY$26,695EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,155,075BOYAmt
EOY$1,103,601EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,525,931BOYAmt
EOY$1,438,468EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$11,721,888BOYAmt
EOY$14,001,757EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,320,122BOYAmt
EOY$1,914,992EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$13,042,010BOYAmt
EOY$15,916,749EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$14,567,941BOYAmt
EOY$17,355,217EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,583,603ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$1,291,136NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,943,841CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,486,028CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,152,968CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,654,145CurrentTaxYearMinus1YearAmt
Current Tax Year$8,657,179CurrentTaxYearAmt
Total$41,894,161TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,943,841CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,486,028CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,152,968CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,654,145CurrentTaxYearMinus1YearAmt
Current Tax Year$8,657,179CurrentTaxYearAmt
Total$41,894,161TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$18,644,804SubstantialContributorsTotAmt
Public Support Total170$23,249,357PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$329,215CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$194,897CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$286,433CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$299,863CurrentTaxYearMinus1YearAmt
Current Tax Year$398,737CurrentTaxYearAmt
Total$1,509,145TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$37,061CurrentTaxYearMinus4YearsAmt
Total$37,061TotalAmt
FieldValueIRS element (for citing)
Total Support$43,440,367TotalSupportAmt
Gross Receipts Rltd Activities$275,407GrossReceiptsRltdActivitiesAmt
Public Support CY1700.53520PublicSupportCY170Pct
Public Support PY1700.54110PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferencePART II, LINE 10FormAndLineReferenceDesc
ExplanationOTHER INCOME 37,061ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$104,284FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$253,726FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$358,010FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,044,244FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,402,254FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$520,113FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$130,028FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$476,627CurrentYearMinus3Amt
Current Year Minus2$551,181CurrentYearMinus2Amt
Current Year Minus1$546,808CurrentYearMinus1Amt
Current Year$520,113CurrentYearAmt
Total$2,094,729TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$3,142,094LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$182,043CurrentYearMinus3Amt
Current Year Minus2$225,131CurrentYearMinus2Amt
Current Year Minus1$364,371CurrentYearMinus1Amt
Current Year$358,010CurrentYearAmt
Total$1,129,555TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$119,157CurrentYearMinus3Amt
Current Year Minus2$137,795CurrentYearMinus2Amt
Current Year Minus1$136,702CurrentYearMinus1Amt
Current Year$130,028CurrentYearAmt
Total$523,682TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$785,523GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$74,996CurrentYearMinus3Amt
Current Year Minus2$58,108CurrentYearMinus2Amt
Current Year Minus1$174,631CurrentYearMinus1Amt
Current Year$104,284CurrentYearAmt
Total$412,019TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$6,198,759BeginningYearBalanceAmt
Investment Earnings Or Losses$975,048InvestmentEarningsOrLossesAmt
End Year Balance$7,173,807EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$6,183,528BeginningYearBalanceAmt
Contributions$1,114,253ContributionsAmt
Investment Earnings Or Losses-$1,099,022InvestmentEarningsOrLossesAmt
End Year Balance$6,198,759EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$5,483,828BeginningYearBalanceAmt
Investment Earnings Or Losses$699,700InvestmentEarningsOrLossesAmt
End Year Balance$6,183,528EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,962,050BeginningYearBalanceAmt
Investment Earnings Or Losses$521,778InvestmentEarningsOrLossesAmt
End Year Balance$5,483,828EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,140,560BeginningYearBalanceAmt
Investment Earnings Or Losses$821,490InvestmentEarningsOrLossesAmt
End Year Balance$4,962,050EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY1.00000BoardDesignatedBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$213,957OtherCostOrOtherBasisAmt
Depreciation$17,426DepreciationAmt
Book Value$196,531BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$35,803OtherCostOrOtherBasisAmt
Depreciation$27,810DepreciationAmt
Book Value$7,993BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$204,524TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
RIGHT OF USE ASSET$867,045
SECURITY DEPOSIT$44,630
FieldValueIRS element (for citing)
Total Book Value Other Assets$911,675TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOPERATING LEASESDesc
Amt$1,103,601Amt
FieldValueIRS element (for citing)
Total Liability$1,103,601TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt$10,213,461TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$1,291,136NetUnrealizedGainsInvstAmt
Revenue Not Reported$1,291,136RevenueNotReportedAmt
Revenue Subtotal$8,922,325RevenueSubtotalAmt
Investment Expenses Not Incld$63,532InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$63,532RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,985,857TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$7,338,722TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$7,338,722ExpensesSubtotalAmt
Investment Expenses Not Incld2$63,532InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$63,532ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$7,402,254TotalExpensesPerForm990Amt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Business Name Line2RecipientBusinessName/BusinessNameLine2TxtAddress Line1USAddress/AddressLine1TxtAddress Line2USAddress/AddressLine2TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
THE REGENTS OF THE UNIVERSITY OF
CALIFORNIA LOS ANGELES10920 WILSHIRE BLVDSUITE 620LOS ANGELESCA90094956006143501C3$50,000RESEARCH
JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROADSTE N4327BBALTIMOREMD21211520595110501C3$50,000RESEARCH
STANFORD UNIVERSITY
450 JANE STANFORD WAYSTANFORDCA94305941156365501C3$45,000RESEARCH
YALE UNIVERSITY
333 CEDAR STREET100 SHMNEW HAVENCT06510060646973501C3$30,000RESEARCH
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVE NWWASHINGTONDC20010521640403501C3$17,500RESEARCH
CLINICAL IMMUNOLOGY SOCIETY
555 EAST WELLS STREETSUITE 1100MILWAUKEEWI532023823521469030501C3$15,000MEETING PARTICIPATIO
BAYLOR COLLEGE OF MEDICINE
1 BAYLOR PLAZAHOUSTONTX77030741613878501C3$10,000RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org7Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
HONORARIA81$23,954
RESEARCH STIPEND15$2,400

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationEACH GRANT APPLICATION IS REVIEWED BY A COMMITTEE USING NIH SCORING CRITERIA. ONCE THE GRANT IS AWARDED, A 6-MONTH FINANCIAL AND PROGRESS REPORT IS DUE AS IS A 12-MONTH FINAL REPORT, WITH FINAL DELIVERABLES/ABSTRACT OR PUBLICATION DUE WITHIN 2 YEARS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
JOREY BERRY
PRESIDENT & CEO$223,104$45,500$9,575$22,409$300,588
SARAH ROSE
CFO$140,396$5,809$23,202$169,407
BRIAN LLOYD
CTO$136,376$5,590$26,002$167,968
AIMEE SIMPSON
VP INSTITUTIONAL ADV$145,327$5,809$11,970$163,106
TAMMY BLACK
VP COMMUNICATIONS$142,074$5,665$12,938$160,677
LYNN ALBIZO
VP PUBLIC POLICY$127,911$5,201$21,902$155,014

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution4ContributionCnt
Noncash Contributions Rpt F990$43,157NoncashContributionsRptF990Amt
Method Of Determining RevenuesQUOTED MARKET PRICEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990 - ORGANIZATION'S MISSIONTHE IMMUNE DEFICIENCY FOUNDATION (IDF) IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH. IDF SEEKS TO ENSURE THAT EVERYONE IN THE U.S. AFFECTED BY PI HAS A FULLY INFORMED UNDERSTANDING OF THE PI DIAGNOSIS THAT AFFECTS THEM, ALL AVAILABLE TREATMENT OPTIONS, THE EXPECTED STANDARD OF CARE, AND ALL OF THEIR OPPORTUNITIES FOR CONNECTION AND SUPPORT WITHIN THE PI COMMUNITY.
FORM 990, PAGE 2, PART III, LINE 4BTHE PI COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE INCLUDING BUT NOT LIMITED TO ANSWERING INSURANCE QUESTIONS, LOCATING A SPECIALIST IN THEIR AREA, FINDING TREATMENT INFORMATION, AND LEARNING MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS FULFILLED INFORMATION REQUESTS FROM MORE THAN 1,665 INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE. IDF WORKS THROUGHOUT THE YEAR AT THE FEDERAL AND STATE LEVELS TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THE PI COMMUNITY. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK WORKS TO INFORM POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2023, WITH SUPPORT FROM IDF, LEGISLATION WAS REINTRODUCED TO BAN COPAY ACCUMULATORS FEDERALLY BY A BILL IN THE U.S. HOUSE OF REPRESENTATIVES. AT IDF ADVOCACY DAY, 243 INDIVIDUALS MET WITH AND SENT MESSAGES TO MEMBERS OF CONGRESS TO ENSURE THAT PEOPLE WITH PI CAN LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.
FORM 990, PAGE 2, PART III, LINE 4CTO IMPROVE THE DIAGNOSIS, TREATMENT, AND CARE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT NINE MEDICAL CONFERENCES, PROVIDING INFORMATION AND RESOURCES TO OVER 3,195 HEALTHCARE PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS PHYSICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCIES. IN 2023, OVER 2,000 INDIVIDUALS PARTICIPATED IN TWO IDF PATIENT SURVEYS TO GATHER DATA ON THE PI EXPERIENCE SINCE NO FEDERALLY FUNDED HEALTH SURVEYS IN THE U.S. COLLECT INFORMATION ON PI. THERE WERE THREE ABSTRACTS AND FOUR PUBLISHED MANUSCRIPTS ALL USING USIDNET DATA. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED FIVE RESEARCH GRANTS IN 2023 TOTALING OVER 192,000.
FORM 990, PAGE 6, PART VI, LINE 11BTHE 990 IS REVIEWED BY THE CHIEF FINANCIAL OFFICER ONCE COMPLETED BY THE OUTSIDE CPA FIRM. ONCE THE CHIEF FINANCIAL OFFICER IS SATISFIED WITH THE ACCURACY, THE 990 IS THEN PASSED ON TO THE PRESIDENT & CEO FOR REVIEW. AFTER THAT LEVEL OF REVIEW IS COMPLETE, IT IS THEN PASSED ON TO THE FINANCE COMMITTEE FOR APPROVAL. ONCE THAT HAPPENS IT IS REVIEWED AND ONCE ACCURATE, APPROVED BY THE BOARD OF TRUSTEES.
FORM 990, PAGE 6, PART VI, LINE 12CEACH YEAR IDF REQUESTS THAT ALL BOARD OF TRUSTEE MEMBERS AND STAFF COMPLETE A CONFLICT OF INTEREST STATEMENT DISCLOSING ANY POTENTIAL CONFLICT THAT MAY EXIST. THESE ARE KEPT ON FILE IN THE IDF OFFICE. THE BOARD LIAISON/HR DISTRIBUTES THE STATEMENT ANNUALLY FOR SIGNATURES TO THE BOARD. THE BOARD LIAISON/HR, WOULD DISTRIBUTE TO ANY STAFF NECESSARY. THE BOARD LIAISON/HR WOULD REVIEW AND WOULD BRING IT TO THE PRESIDENT & CEO'S ATTENTION IS THERE ARE CONFLICTS. ANY RESTRICTIONS, IF NECESSARY, WOULD BE MADE AT HIS LEVEL OR ABOVE, DEPENDING ON WHO/WHAT THE CONFLICT IS.
FORM 990, PAGE 6, PART VI, LINE 15ATHE PRESIDENT & CEO'S COMPENSATION IS REVIEWED AND DOCUMENTED BY THE EXECUTIVE COMMITTEE. THE COMMITTEE REVIEWS WEBSITES SUCH AS SALARY.COM AND/OR REVIEWS OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK TO DETERMINE THE CORRECT SALARY FOR THE POSITION. THE COMPENSATION IS PRESENTED AND APPROVED BY THE FULL BOARD. THE EXECUTIVE COMMITTEE INFORMS THE PRESIDENT & CEO, HUMAN RESOURCES, AND ACCOUNTING.
FORM 990, PAGE 6, PART VI, LINE 15BFOR ALL KEY EMPLOYEES, AN ANNUAL REVIEW IS CONDUCTED BY THE EMPLOYEE'S SUPERVISOR. BASED ON THIS REVIEW, IT IS DETERMINED IF THE PERSON GETS AN ANNUAL INCREASE BEYOND THE COST OF LIVING. REVIEW OF WEBSITES SUCH AS SALARY.COM AND/OR REVIEW OF MATERIALS SUCH AS ASAE'S COMPENSATION AND BENEFITS STUDY BOOK HELPS DETERMINE THE CORRECT SALARY FOR THE POSITION. IF THE SUPERVISOR APPROVES AN INCREASE, PAPERWORK IS DRAWN UP AND SUBMITTED TO THE PRESIDENT & CEO FOR APPROVAL. ONCE APPROVAL IS COMPLETE, HUMAN RESOURCES AND ACCOUNTING ARE INFORMED OF THE INCREASE. THE EMPLOYEE IS NOTIFIED AS WELL.
FORM 990, PAGE 6, PART VI, LINE 17KENTUCKY, MAINE, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSISSIPPI, NEVADA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, NORTH CAROLINA, NORTH DAKOTA, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, VIRGINIA, WASHINGTON, WEST VIRGINIA, WISCONSIN
FORM 990, PAGE 6, PART VI, LINE 19THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. IN ADDITION, THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE WEBSITE.