CREUTZFELDT-JAKOB DISEASE FOUNDATION INC
Cite this
Plain text CREUTZFELDT-JAKOB DISEASE FOUNDATION INC. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/creutzfeldt-jakob-disease-foundation-inc-650404623. Retrieved 2026-11-01.
APA furp.org. (n.d.). CREUTZFELDT-JAKOB DISEASE FOUNDATION INC [Nonprofit organization profile; tax years 2010–2024]. Retrieved November 1, 2026, from https://furp.org/org/creutzfeldt-jakob-disease-foundation-inc-650404623
MLA “CREUTZFELDT-JAKOB DISEASE FOUNDATION INC.” furp.org, tax years 2010–2024, https://furp.org/org/creutzfeldt-jakob-disease-foundation-inc-650404623. Accessed 1 Nov. 2026.
Retrieved 2026-11-01; covers tax years 2010–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $2.9M · expenses $1.9M · assets $9.2M
- EIN
- 65-0404623
- Address
- 3634 W MARKET ST STE 110 # S, FAIRLAWN, OH 44333-4539
- Website
- WWW.CJDFOUNDATION.ORG
- NTEE code
- -
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- September 1994 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. (CONTINUED ON SCHEDULE O)
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
3 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Deborah Yobs | PRESIDENT/EXECUTIVE DIRECTOR | 2014-2024 | $111,457 | $1,121,371 | 1 |
| Florence Kranitz (former) | PRESIDENT EM | 2010-2015 | $0 | $313,077 | 1 |
| Veronica Oberdorf (former) | BOARD MEMBER | 2010-2021 | $0 | $20,000 | 1 |
Officers and directors, no compensation reported
62 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Brian Appleby | BOARD MEMBER | 2012-2024 | 2 | $0 reported | 1 |
| Trevor Baierl | BOARD MEMBER (THROUGH 2/28/24) | 2018-2024 | 2 | $0 reported | 1 |
| Matt Collins | BOARD MEMBER | 2024 | 2 | $0 reported | 1 |
| Pamela Fear | BOARD MEMBER | 2016-2024 | 2 | $0 reported | 1 |
| Lavonne Hall | BOARD MEMBER (THROUGH 2/7/24) | 2019-2024 | 2 | $0 reported | 1 |
| Clarence Hunter | BOARD MEMBER | 2020-2024 | 2 | $0 reported | 1 |
| Amanda Baxley Kalinsky | BOARD MEMBER | 2013-2024 | 2 | $0 reported | 1 |
| Janine Kock | BOARD MEMBER | 2015-2024 | 2 | $0 reported | 1 |
| Patricia Mcgill | TREASURER | 2018-2024 | 2 | $0 reported | 1 |
| Kirsten Mcginnis | SECRETARY | 2024 | 2 | $0 reported | 1 |
| Brenda Meaney | BOARD MEMBER | 2024 | 2 | $0 reported | 1 |
| Dave Morris | BOARD MEMBER | 2020-2024 | 2 | $0 reported | 1 |
| Frank Myers | BOARD MEMBER | 2023-2024 | 2 | $0 reported | 1 |
| Molly Nocerino | BOARD MEMBER (THROUGH 4/30/24) | 2015-2024 | 2 | $0 reported | 1 |
| Joe Pohl | BOARD MEMBER | 2021-2024 | 2 | $0 reported | 1 |
| Mark Roberts | BOARD MEMBER | 2024 | 2 | $0 reported | 1 |
| Jacob Schwister | BOARD MEMBER | 2024 | 2 | $0 reported | 1 |
| Tim Schwister | BOARD MEMBER | 2018-2024 | 2 | $0 reported | 1 |
| Nancy Sweely | BOARD MEMBER | 2024 | 2 | $0 reported | 1 |
| Maria Thacker-Goethe | BOARD MEMBER | 2015-2024 | 2 | $0 reported | 1 |
| Michael Vitanza | BOARD MEMBER (THROUGH 7/10/24) | 2013-2024 | 2 | $0 reported | 1 |
| Stuart Yaffa | CHAIR | 2010-2024 | 2 | $0 reported | 1 |
| Jay Levy (former) | BOARD MEMBER | 2015-2023 | 2 | $0 reported | 1 |
| Mayra Lichter (former) | CHAIRMAN, RE | 2010-2023 | 2 | $0 reported | 1 |
| Kristen Mcginnis (former) | BOARD MEMBER | 2023 | 2 | $0 reported | 1 |
| Breanda Meaney (former) | BOARD MEMBER | 2022-2023 | 2 | $0 reported | 1 |
| Deana Simpson (former) | BOARD MEMBER | 2010-2023 | 2 | $0 reported | 1 |
| Jeffrey Yaffa (former) | BOARD MEMBER | 2015-2023 | 2 | $0 reported | 1 |
| Charles Cash Resigned (former) | BOARD MEMBER | 2021 | 2 | $0 reported | 1 |
| Charles Cash (former) | BOARD MEMBER | 2013-2020 | 2 | $0 reported | 1 |
| Bob Kassai (former) | BOARD MEMBER | 2012-2019 | 2 | $0 reported | 1 |
| Marie Kassai (former) | BOARD MEMBER | 2012-2019 | 2 | $0 reported | 1 |
| Jiri Safar (former) | BOARD MEMBER | 2015-2018 | 2 | $0 reported | 1 |
| Carol Mitts (former) | BOARD MEMBER | 2015-2018 | 2 | $0 reported | 1 |
| Corby W Foster (former) | BOARD MEMBER | 2016-2018 | 2 | $0 reported | 1 |
| Hatte Blejer (former) | BOARD MEMBER | 2016-2018 | 2 | $0 reported | 1 |
| Mark Goldfarb (former) | BOARD MEMBER | 2010-2015 | 2 | $0 reported | 1 |
| Ruthie George (former) | BOARD MEMBER | 2010-2015 | 2 | $0 reported | 1 |
| Dr Pierluigi Gambetti (former) | MEDICAL DIRE | 2010-2014 | 2 | $0 reported | 1 |
| Ana Betro (former) | VP OF FUNDRA | 2010-2014 | 2 | $0 reported | 1 |
| Tom Haught (former) | BOARD MEMBER | 2010-2014 | 2 | $0 reported | 1 |
| Myra Lichter (former) | VICE CHAIRMA | 2014 | 2 | $0 reported | 1 |
| Scott Paternoster (former) | BOARD MEMBER | 2010-2014 | 2 | $0 reported | 1 |
| Tom Sawyer (former) | BOARD MEMBER | 2010-2014 | 2 | $0 reported | 1 |
| Paul Paternoster (former) | BOARD MEMBER | 2010-2014 | 2 | $0 reported | 1 |
| Sybil Willen (former) | SECRETARY | 2010-2013 | 2 | $0 reported | 1 |
| Debbie Yobs (former) | BOARD MEMBER | 2013 | 2 | $0 reported | 1 |
| Nicholas George Until 101412 (former) | VICE CHAIRPERSON | 2012 | 2 | $0 reported | 1 |
| James Simon Until 101412 (former) | BOARD MEMBER | 2012 | 2 | $0 reported | 1 |
| Amanda Baxley Kalinsky As Of 71312 (former) | BOARD MEMBER | 2012 | 2 | $0 reported | 1 |
| Charles Cash As Of 71312 (former) | BOARD MEMBER | 2012 | 2 | $0 reported | 1 |
| Michael Vitanza As Of 71312 (former) | BOARD MEMBER | 2012 | 2 | $0 reported | 1 |
| Debbie Yobs As Of 121012 (former) | DIRECTOR OF MARKETING | 2012 | 2 | $0 reported | 1 |
| Nick George (former) | VICE CHAIRPERSON | 2010-2011 | 2 | $0 reported | 1 |
| Jim Simon (former) | BOARD MEMBER | 2010-2011 | 2 | $0 reported | 1 |
| Chris Szuch Until 92711 (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Brian Appleby As Of 7811 (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Bob Kassai As Of 121410 (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Marie Kassai As Of 121410 (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Carole Laderman Until 5511 (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Chris Szuch (former) | BOARD MEMBER | 2010 | 1 | $0 reported | 1 |
| Carole Laderman (former) | BOARD MEMBER | 2010 | 1 | $0 reported | 1 |
People by year
2024 · 23 people listed · 1 paid, $111K · 6 employees · 350 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EXECUTIVE DIRECTOR | 40 | $111,457 | $0 | $0 | $111,457 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER (THROUGH 2/28/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT COLLINS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER (THROUGH 2/7/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| CLARENCE HUNTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KIRSTEN MCGINNIS | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| BRENDA MEANEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVE MORRIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANK MYERS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER (THROUGH 4/30/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE POHL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK ROBERTS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JACOB SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| NANCY SWEELY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER (THROUGH 7/10/24) | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 23 people listed · 1 paid, $111K · 6 employees · 350 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,457 | $0 | $0 | $111,457 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CLARENCE HUNTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN, RE | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTEN MCGINNIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BREANDA MEANEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVE MORRIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANK MYERS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE POHL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 21 people listed · 1 paid, $111K · 6 employees · 340 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,457 | $0 | $0 | $111,457 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CLARENCE HUNTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| BREANDA MEANEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVE MORRIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE POHL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 22 people listed · 1 paid, $112K · 5 employees · 330 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,457 | $0 | $984 | $112,441 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CLARENCE HUNTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| DAVE MORRIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE POHL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH RESIGNED | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 21 people listed · 1 paid, $112K · 5 employees · 150 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,457 | $0 | $918 | $112,375 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CLARENCE HUNTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| DAVE MORRIS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
2019 · 21 people listed · 1 paid, $112K · 5 employees · 319 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,457 | $0 | $918 | $112,375 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAVONNE HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | SECRETARY | 3 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
2018 · 24 people listed · 1 paid, $112K · 5 employees · 160 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT/EX | 40 | $111,227 | $0 | $689 | $111,916 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIRI SAFAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CAROL MITTS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CORBY W FOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HATTE BLEJER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PATRICIA MCGILL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIM SCHWISTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TREVOR BAIERL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2017 · 21 people listed · 1 paid, $111K · 6 employees · 160 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT | 40 | $111,457 | $0 | $0 | $111,457 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIRI SAFAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CAROL MITTS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CORBY W FOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HATTE BLEJER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 21 people listed · 1 paid, $111K · 5 employees · 105 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT | 40 | $111,457 | $0 | $0 | $111,457 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIRI SAFAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CAROL MITTS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA FEAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CORBY W FOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HATTE BLEJER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 21 people listed · 1 paid, $115K · 5 employees · 69 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| DEBORAH YOBS | PRESIDENT | 40 | $114,979 | $0 | $0 | $114,979 | 1 |
| STUART YAFFA | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| JEFFREY YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIA THACKER-GOETHE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIRI SAFAR | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RUTHIE GEORGE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JANINE KOCK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAY LEVY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CAROL MITTS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MOLLY NOCERINO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| FLORENCE KRANITZ | PRESIDENT EM | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 20 people listed · 1 paid, $80K · 4 employees · 19 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| FLORENCE KRANITZ | PRESIDENT | 40 | $79,966 | $0 | $0 | $79,966 | 1 |
| RUTHIE R GEORGE | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| DR PIERLUIGI GAMBETTI | MEDICAL DIRE | 2 | $0 | $0 | $0 | $0 | 1 |
| ANA BETRO | VP OF FUNDRA | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | VICE CHAIRMA | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM HAUGHT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MYRA LICHTER | VICE CHAIRMA | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM SAWYER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBORAH R YOBS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 21 people listed · 1 paid, $79K · 6 employees · 20 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| FLORENCE KRANITZ | PRESIDENT | 40 | $78,750 | $0 | $0 | $78,750 | 1 |
| SYBIL WILLEN | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| RUTHIE R GEORGE | TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| DR PIERLUIGI GAMBETTI | MEDICAL DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANA BETRO | VP OF FUNDRAISING | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | VICE CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM HAUGHT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | BOARD MEMBER & CO-FOUNDER | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM SAWYER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE YOBS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2012 · 23 people listed · 1 paid, $79K · 5 employees · 60 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| FLORENCE KRANITZ | PRESIDENT | 40 | $78,750 | $0 | $0 | $78,750 | 1 |
| SYBIL WILLEN | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| RUTHIE R GEORGE | TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| DR PIERLUIGI GAMBETTI | MEDICAL DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANA BETRO | VP OF FUNDRAISING | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| NICHOLAS GEORGE UNTIL 101412 | VICE CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM HAUGHT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | BOARD MEMBER & CO-FOUNDER | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM SAWYER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JAMES SIMON UNTIL 101412 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VERONICA OBERDORF | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| AMANDA BAXLEY KALINSKY AS OF 71312 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES CASH AS OF 71312 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL VITANZA AS OF 71312 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBBIE YOBS AS OF 121012 | DIRECTOR OF MARKETING | 2 | $0 | $0 | $0 | $0 | 1 |
2011 · 21 people listed · 2 paid, $92K · 5 employees · 30 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| FLORENCE KRANITZ | PRESIDENT | 40 | $75,611 | $0 | $0 | $75,611 | 1 |
| VERONICA OBERDORF RN | BOARD MEMBER | 2 | $16,000 | $0 | $0 | $16,000 | 1 |
| SYBIL WILLEN | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| RUTHIE R GEORGE | TREASURER | 15 | $0 | $0 | $0 | $0 | 1 |
| DR PIERLUIGI GAMBETTI | MEDICAL DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANA BETRO | VP OF FUNDRAISING | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM HAUGHT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| NICK GEORGE | VICE CHAIRPERSON | 2 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | BOARD MEMBER & FOUNDER | 2 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM SAWYER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM SIMON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHRIS SZUCH UNTIL 92711 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON RN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL PATERNOSTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRIAN APPLEBY AS OF 7811 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BOB KASSAI AS OF 121410 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARIE KASSAI AS OF 121410 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CAROLE LADERMAN UNTIL 5511 | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2010 · 18 people listed · 1 paid, $4K · 4 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| VERONICA OBERDORF RN | BOARD MEMBER | 1 | $4,000 | $0 | $0 | $4,000 | 1 |
| FLORENCE KRANITZ | PRESIDENT | 40 | $0 | $0 | $0 | $0 | 1 |
| SYBIL WILLEN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| RUTHIE R GEORGE | TREASURER | 10 | $0 | $0 | $0 | $0 | 1 |
| DR PIERLUIGI GAMBETTI | MEDICAL DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANA BETRO | VP OF FUNDRAISING | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK GOLDFARB | CHAIRPERSON | 1 | $0 | $0 | $0 | $0 | 1 |
| TOM HAUGHT | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| NICK GEORGE | VICE CHAIRPERSON | 1 | $0 | $0 | $0 | $0 | 1 |
| MAYRA LICHTER | BOARD MEMBER & FOUNDER | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT PATERNOSTER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| TOM SAWYER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JIM SIMON | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| CHRIS SZUCH | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| STUART YAFFA | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROLE LADERMAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DEANA SIMPSON RN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL PATERNOSTER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 2 grants to organizations · $200K
Listed grants add up to $200,000; the return's “grants paid” expense line says $702,920. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 3 grants to organizations · $350K
Listed grants add up to $350,000; the return's “grants paid” expense line says $718,205. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 3 grants to organizations · $247K
Listed grants add up to $247,115; the return's “grants paid” expense line says $651,433. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 1 grant to organizations · $130K
Listed grants add up to $130,000; the return's “grants paid” expense line says $630,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 6 grants to organizations · $430K
Listed grants add up to $430,328; the return's “grants paid” expense line says $539,966. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 4 grants to organizations · $195K
Listed grants add up to $194,854; the return's “grants paid” expense line says $348,685. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 3 grants to organizations · $150K
Listed grants add up to $150,000; the return's “grants paid” expense line says $287,300. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 2 grants to organizations · $100K
Listed grants add up to $100,000; the return's “grants paid” expense line says $195,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 2 grants to organizations · $100K
Listed grants add up to $100,000; the return's “grants paid” expense line says $204,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 3 grants to organizations · $150K
Listed grants add up to $150,000; the return's “grants paid” expense line says $250,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 2 grants to organizations · $80K
Listed grants add up to $80,000; the return's “grants paid” expense line says $120,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 2 grants to organizations · $30K
Listed grants add up to $30,000; the return's “grants paid” expense line says $70,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $2,870,657 | $1,865,950 | $9,188,820 | $9,141,102 | $2,463,713 | $101,200 | $111,457 | 6 | 350 |
| 2023 · Form 990 | ||||||||
| $2,943,480 | $1,541,598 | $8,137,536 | $8,009,579 | $2,770,443 | $41,100 | $111,457 | 6 | 350 |
| 2022 · Form 990 | ||||||||
| $2,861,917 | $1,274,442 | $6,412,924 | $6,346,362 | $2,735,803 | $0 | $111,457 | 6 | 340 |
| 2021 · Form 990 | ||||||||
| $2,551,633 | $1,152,582 | $5,032,702 | $4,951,977 | $2,482,682 | $10,508 | $112,441 | 5 | 330 |
| 2020 · Form 990 | ||||||||
| $1,767,307 | $1,021,636 | $3,622,436 | $3,546,248 | $1,732,905 | $13,290 | $112,375 | 5 | 150 |
| 2019 · Form 990 | ||||||||
| $1,669,970 | $963,069 | $2,749,540 | $2,737,666 | $1,552,666 | $56,825 | $112,375 | 5 | 319 |
| 2018 · Form 990 | ||||||||
| $1,598,240 | $874,748 | $2,020,582 | $2,009,032 | $1,511,893 | $30,535 | $111,916 | 5 | 160 |
| 2017 · Form 990 | ||||||||
| $1,032,773 | $762,761 | $1,312,484 | $1,289,739 | $844,528 | $53,859 | $111,457 | 6 | 160 |
| 2016 · Form 990 | ||||||||
| $1,042,363 | $816,085 | $1,045,907 | $1,016,534 | $910,074 | $48,101 | $111,457 | 5 | 105 |
| 2015 · Form 990 | ||||||||
| $727,856 | $819,217 | $807,485 | $791,323 | $625,651 | $56,912 | $114,979 | 5 | 69 |
| 2014 · Form 990 | ||||||||
| $684,311 | $587,158 | $891,868 | $882,684 | $626,556 | $46,464 | $79,966 | 4 | 19 |
| 2013 · Form 990 | ||||||||
| $680,630 | $666,029 | $798,230 | $781,065 | $619,472 | $41,567 | $78,750 | 6 | 20 |
| 2012 · Form 990 | ||||||||
| $550,946 | $474,941 | $806,446 | $789,779 | $364,010 | $59,470 | $78,750 | 5 | 60 |
| 2011 · Form 990 | ||||||||
| $411,598 | $547,909 | $703,140 | $688,316 | $285,398 | $30,645 | $91,611 | 5 | 30 |
| 2010 · Form 990 | ||||||||
| $469,859 | $321,401 | $797,419 | $785,713 | $336,883 | $30,988 | $4,000 | 4 | 50 |
Funders of this organization
55 grantors reported grants to this organization, $1,981,471 in all, tax years 2010 to 2025; the 25 largest shown (all 55). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| THRIVENT CHARITABLE IMPACT & INVESTING | DAF sponsor | Exact | 2020, 2022 | 2 | $274,753 | 2022 | $74,753 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $231,850 | 2025 | $35,354 | show |
| JEWISH COMMUNITY FDN OF THE JEWISH FEDERATION COUNCIL OF GREATER LA | DAF sponsor | Exact | 2023-2024 | 2 | $200,000 | 2024 | $100,000 | show |
| CAPE COD FOUNDATION INC | DAF sponsor | Exact | 2013-2025 | 13 | $175,645 | 2025 | $20,000 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2018-2019, 2022-2024 | 5 | $156,207 | 2024 | $58,310 | show |
| FORGOOD INC | DAF sponsor | Exact | 2013, 2015-2019 | 6 | $153,564 | 2019 | $15,871 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2017-2024 | 8 | $153,347 | 2024 | $60,307 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2014-2022, 2024 | 10 | $120,000 | 2024 | $16,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2017-2024 | 8 | $113,015 | 2024 | $12,975 | show |
| THOMAS LORD CHARITABLE TRUST | Private foundation | Fuzzy filed as “CREUTZFELDT-JAKOB DISEASE FOUNDATION INC” | 2020-2021 | 2 | $75,000 | 2021 | $25,000 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022-2023, 2025 | 3 | $58,099 | 2025 | $10,936 | show |
| COLUMBUS FOUNDATION | DAF sponsor | Exact | 2015-2017 | 3 | $52,000 | 2017 | $7,000 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2021-2024 | 4 | $39,500 | 2024 | $11,000 | show |
| DAYTON FOUNDATION | DAF sponsor | Exact | 2016 | 1 | $26,556 | 2016 | $26,556 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “CREUTZFELDT-JAKOB DISEASE FOUNDATION INC” | 2020-2023 | 4 | $21,229 | 2023 | $4,806 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2023-2024 | 2 | $18,061 | 2024 | $12,738 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016 | 1 | $16,199 | 2016 | $16,199 | show |
| PLEDGELING FOUNDATION | DAF sponsor | Exact | 2023-2024 | 2 | $12,429 | 2024 | $5,666 | show |
| THE GREATER OXFORD COMMUNITY FOUNDATION | DAF sponsor | Exact | 2017 | 1 | $10,608 | 2017 | $10,608 | show |
| REXEL FOUNDATION INC | Public charity | Exact | 2024 | 1 | $10,000 | 2024 | $10,000 | show |
| THE AYCO CHARITABLE FOUNDATION | DAF sponsor | Exact | 2022 | 1 | $10,000 | 2022 | $10,000 | show |
| DEMENTIA SOCIETY INC | Public charity | Exact | 2022 | 1 | $10,000 | 2022 | $10,000 | show |
| THE COMMUNITY FOUNDATION FOR NORTHEAST FLORIDA INC | DAF sponsor | Exact | 2022 | 1 | $10,000 | 2022 | $10,000 | show |
| BARRA FOUNDATION INC | Private foundation | Fuzzy filed as “CREUTZFELDT-JAKOB DISEASE FOUNDATION INC” | 2021 | 1 | $6,000 | 2021 | $6,000 | show |
| THRIVENT FINANCIAL FOR LUTHERANS | Public charity | Fuzzy filed as “CREUTZFELDT-JAKOB DISEASE FOUNDATION INC” | 2023 | 1 | $5,050 | 2023 | $5,050 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
No similar organizations found.
Who funds organizations like this
Not reported: none of these organizations has foundation or DAF-sponsor grants in the filings we have.
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $1,865,950 spent · pay $397,492 · grants $702,920 · events $251,403
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $502,920 | $502,920 | - | - | 27.0% | |
| Other (as described) | PROGRAM EXPENSE | $297,431 | $297,431 | - | - | 15.9% |
| Other salaries and wages | $252,770 | $197,594 | $34,702 | $20,474 | 13.5% | |
| Grants to US organizations and governments | $200,000 | $200,000 | - | - | 10.7% | |
| Conferences, conventions and meetings | $198,620 | $198,620 | - | - | 10.6% | |
| Pay: officers, directors, trustees, key employees | $111,457 | $87,128 | $15,302 | $9,027 | 6.0% | |
| Fees: other services | $109,052 | $62,415 | $31,122 | $15,515 | 5.8% | |
| Payroll taxes | $30,035 | $23,479 | $4,123 | $2,433 | 1.6% | |
| Occupancy | $25,759 | $17,898 | $6,007 | $1,854 | 1.4% | |
| Office expenses | $22,632 | $12,638 | $9,583 | $411 | 1.2% | |
| All other expenses | $19,026 | - | $12,850 | $6,176 | 1.0% | |
| Depreciation and depletion | $18,918 | - | $18,918 | - | 1.0% | |
| Fees: accounting | $16,105 | - | $16,105 | - | 0.9% | |
| Other (as described) | DONATION COLLECTION FEE | $16,005 | - | $3,043 | $12,962 | 0.9% |
| Fees: investment management | $12,927 | - | $12,927 | - | 0.7% | |
| Other (as described) | FAMILY FUNDRAISING | $11,332 | - | - | $11,332 | 0.6% |
| Insurance | $8,914 | - | $8,914 | - | 0.5% | |
| Other (as described) | ANNUAL FUND EXPENSE | $8,817 | - | - | $8,817 | 0.5% |
| Other employee benefits | $3,230 | - | $3,230 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $14,359 | $52,783 | reported apart | |||
| Total | $1,865,950 | 100% |
2023 · Form 990 · $1,541,598 spent · pay $396,748 · grants $718,205 · events $63,519
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $368,205 | $368,205 | - | - | 23.9% | |
| Grants to US organizations and governments | $350,000 | $350,000 | - | - | 22.7% | |
| Other salaries and wages | $285,291 | $226,240 | $34,896 | $24,155 | 18.5% | |
| Other (as described) | FAMILY CONFERENCE | $184,883 | $184,883 | - | - | 12.0% |
| Pay: officers, directors, trustees, key employees | $111,457 | $88,387 | $13,633 | $9,437 | 7.2% | |
| Fees: other services | $57,871 | $38,287 | $8,082 | $11,502 | 3.8% | |
| All other expenses | $43,246 | $7,807 | $17,530 | $17,909 | 2.8% | |
| Other (as described) | TELENEUROLOGY STUDY | $28,000 | $28,000 | - | - | 1.8% |
| Occupancy | $22,663 | $18,099 | $2,632 | $1,932 | 1.5% | |
| Other (as described) | PROGRAM EXPENSE | $21,810 | $15,302 | - | $6,508 | 1.4% |
| Office expenses | $19,385 | $6,639 | $11,399 | $1,347 | 1.3% | |
| Fees: accounting | $17,594 | - | $17,594 | - | 1.1% | |
| Other (as described) | DONATION COLLECTION FEES | $13,689 | $2,186 | - | $11,503 | 0.9% |
| Depreciation and depletion | $10,211 | - | $10,211 | - | 0.7% | |
| Insurance | $7,099 | - | $7,099 | - | 0.5% | |
| Interest | $194 | - | $194 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $100,514 | $63,519 | reported apart | |||
| Total | $1,541,598 | 100% |
2022 · Form 990 · $1,274,442 spent · pay $370,895 · grants $651,433 · events $61,575
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $404,318 | $404,318 | - | - | 31.7% | |
| Grants to US organizations and governments | $247,115 | $247,115 | - | - | 19.4% | |
| Other salaries and wages | $231,744 | $181,225 | $29,612 | $20,907 | 18.2% | |
| Pay: officers, directors, trustees, key employees | $111,457 | $84,875 | $16,785 | $9,797 | 8.7% | |
| Fees: other services | $55,657 | $43,413 | $7,236 | $5,008 | 4.4% | |
| All other expenses | $46,020 | $7,469 | $18,914 | $19,637 | 3.6% | |
| Other (as described) | FAMILY CONFERENCE | $35,000 | $35,000 | - | - | 2.7% |
| Payroll taxes | $27,694 | $21,601 | $3,600 | $2,493 | 2.2% | |
| Other (as described) | PROGRAM EXPENSE | $25,926 | $25,926 | - | - | 2.0% |
| Occupancy | $23,415 | $18,264 | $3,044 | $2,107 | 1.8% | |
| Office expenses | $21,852 | $6,596 | $14,909 | $347 | 1.7% | |
| Fees: accounting | $12,508 | - | $12,508 | - | 1.0% | |
| Other (as described) | BANK SERVICE CHARGES | $11,926 | - | $11,926 | - | 0.9% |
| Other (as described) | DONATION COLLECTION FEES | $10,499 | $10,499 | - | - | 0.8% |
| Insurance | $6,903 | - | $6,903 | - | 0.5% | |
| Depreciation and depletion | $1,575 | - | $1,575 | - | 0.1% | |
| Travel | $712 | - | $712 | - | 0.1% | |
| Interest | $121 | - | $121 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $132,404 | $61,575 | reported apart | |||
| Total | $1,274,442 | 100% |
2021 · Form 990 · $1,152,582 spent · pay $299,517 · grants $630,000 · events $67,189
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $500,000 | $500,000 | - | - | 43.4% | |
| Other salaries and wages | $165,793 | $122,687 | $26,527 | $16,579 | 14.4% | |
| Grants to US organizations and governments | $130,000 | $130,000 | - | - | 11.3% | |
| Pay: officers, directors, trustees, key employees | $112,441 | $82,478 | $18,817 | $11,146 | 9.8% | |
| Fees: other services | $36,157 | $26,756 | $5,785 | $3,616 | 3.1% | |
| All other expenses | $35,160 | $5,425 | $17,912 | $11,823 | 3.1% | |
| Other (as described) | FAMILY CONFERENCE | $35,019 | $35,019 | - | - | 3.0% |
| Occupancy | $23,803 | $17,614 | $3,809 | $2,380 | 2.1% | |
| Other (as described) | PROGRAM EXPENSE | $22,256 | $22,256 | - | - | 1.9% |
| Payroll taxes | $21,283 | $15,750 | $3,405 | $2,128 | 1.8% | |
| Office expenses | $20,150 | $4,470 | $15,373 | $307 | 1.7% | |
| Other (as described) | DONATION COLLECTION FEES | $17,954 | $17,954 | - | - | 1.6% |
| Fees: accounting | $13,447 | - | $13,447 | - | 1.2% | |
| Other (as described) | ANNUAL FUND | $9,865 | - | - | $9,865 | 0.9% |
| Insurance | $7,484 | - | $7,484 | - | 0.6% | |
| Depreciation and depletion | $1,711 | - | $1,711 | - | 0.1% | |
| Travel | $59 | - | $59 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $76,268 | $67,189 | reported apart | |||
| Total | $1,152,582 | 100% |
2020 · Form 990 · $1,021,636 spent · pay $310,522 · grants $539,966 · events $49,514
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $430,328 | $430,328 | - | - | 42.1% | |
| Other salaries and wages | $175,016 | $126,012 | $32,683 | $16,321 | 17.1% | |
| Pay: officers, directors, trustees, key employees | $112,375 | $80,910 | $21,351 | $10,114 | 11.0% | |
| Grants outside the US | $109,638 | $109,638 | - | - | 10.7% | |
| All other expenses | $35,140 | $10,637 | $14,117 | $10,386 | 3.4% | |
| Other (as described) | PROGRAM EXPENSE | $32,379 | $32,379 | - | - | 3.2% |
| Other (as described) | FAMILY CONFERENCE | $28,463 | $28,463 | - | - | 2.8% |
| Payroll taxes | $23,131 | $16,654 | $4,395 | $2,082 | 2.3% | |
| Occupancy | $20,336 | $14,642 | $3,864 | $1,830 | 2.0% | |
| Fees: accounting | $12,420 | - | $12,420 | - | 1.2% | |
| Office expenses | $11,853 | $5,376 | $6,167 | $310 | 1.2% | |
| Other (as described) | ANNUAL FUND | $10,866 | - | - | $10,866 | 1.1% |
| Other (as described) | CONTRACT LABOR | $9,352 | $6,733 | $1,777 | $842 | 0.9% |
| Insurance | $7,903 | - | $7,903 | - | 0.8% | |
| Depreciation and depletion | $2,393 | - | $2,393 | - | 0.2% | |
| Travel | $43 | - | $43 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $49,104 | $49,514 | reported apart | |||
| Total | $1,021,636 | 100% |
2019 · Form 990 · $963,069 spent · pay $279,390 · grants $348,685 · events $56,023
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $194,854 | $194,854 | - | - | 20.2% | |
| Grants outside the US | $153,831 | $153,831 | - | - | 16.0% | |
| Other salaries and wages | $134,941 | $89,627 | $29,182 | $16,132 | 14.0% | |
| Other (as described) | FAMILY CONFERENCE | $131,016 | $131,016 | - | - | 13.6% |
| Pay: officers, directors, trustees, key employees | $112,375 | $73,580 | $24,302 | $14,493 | 11.7% | |
| All other expenses | $38,304 | $12,653 | $10,333 | $15,318 | 4.0% | |
| Other (as described) | PROGRAM EXPENSE | $37,457 | $37,457 | - | - | 3.9% |
| Payroll taxes | $32,074 | $19,730 | $6,936 | $5,408 | 3.3% | |
| Other (as described) | CONTRACT LABOR | $27,100 | $17,886 | $5,691 | $3,523 | 2.8% |
| Office expenses | $20,330 | $12,479 | $6,842 | $1,009 | 2.1% | |
| Information technology | $19,097 | $19,097 | - | - | 2.0% | |
| Occupancy | $18,749 | $12,375 | $3,937 | $2,437 | 1.9% | |
| Other (as described) | FAMILY FUNDRAISING | $13,225 | - | - | $13,225 | 1.4% |
| Fees: accounting | $11,934 | - | $11,934 | - | 1.2% | |
| Fees: other services | $6,073 | $4,007 | $1,277 | $789 | 0.6% | |
| Travel | $4,099 | - | $4,099 | - | 0.4% | |
| Insurance | $3,672 | - | $3,672 | - | 0.4% | |
| Depreciation and depletion | $2,552 | - | $2,552 | - | 0.3% | |
| Fees: legal | $1,347 | - | $1,347 | - | 0.1% | |
| Interest | $39 | - | $39 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $96,485 | $56,023 | reported apart | |||
| Total | $963,069 | 100% |
2018 · Form 990 · $874,748 spent · pay $301,849 · grants $287,300 · events $45,484
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $164,577 | $112,884 | $30,423 | $21,270 | 18.8% | |
| Grants to US organizations and governments | $150,000 | $150,000 | - | - | 17.1% | |
| Grants outside the US | $137,300 | $137,300 | - | - | 15.7% | |
| Other (as described) | FAMILY CONFERENCE | $135,729 | $135,729 | - | - | 15.5% |
| Pay: officers, directors, trustees, key employees | $111,916 | $76,764 | $20,693 | $14,459 | 12.8% | |
| All other expenses | $47,512 | $10,064 | $15,032 | $22,416 | 5.4% | |
| Other (as described) | PROGRAM EXPENSE | $34,195 | $32,865 | $1,330 | - | 3.9% |
| Payroll taxes | $25,356 | $17,392 | $4,686 | $3,278 | 2.9% | |
| Occupancy | $18,921 | $13,055 | $3,406 | $2,460 | 2.2% | |
| Other (as described) | WEBSITE & DATABASE | $13,698 | $13,698 | - | - | 1.6% |
| Other (as described) | DONATION COLLECTION FEES | $12,299 | $6,150 | $6,149 | - | 1.4% |
| Fees: accounting | $11,531 | - | $11,531 | - | 1.3% | |
| Insurance | $3,690 | - | $3,690 | - | 0.4% | |
| Depreciation and depletion | $2,552 | - | $2,552 | - | 0.3% | |
| Information technology | $2,357 | - | $2,357 | - | 0.3% | |
| Travel | $1,584 | - | $1,584 | - | 0.2% | |
| Office expenses | $1,510 | - | $1,510 | - | 0.2% | |
| Interest | $21 | - | $21 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $78,985 | $45,484 | reported apart | |||
| Total | $874,748 | 100% |
2017 · Form 990 · $762,761 spent · pay $255,221 · grants $195,000 · events $31,225
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $125,577 | $91,556 | $20,580 | $13,441 | 16.5% | |
| Other (as described) | FAMILY CONFERENCE | $123,307 | $123,307 | - | - | 16.2% |
| Pay: officers, directors, trustees, key employees | $111,457 | $80,249 | $18,948 | $12,260 | 14.6% | |
| Grants to US organizations and governments | $100,000 | $100,000 | - | - | 13.1% | |
| Grants outside the US | $95,000 | $95,000 | - | - | 12.5% | |
| All other expenses | $54,381 | $21,069 | $13,746 | $19,566 | 7.1% | |
| Other (as described) | CONTRACT LABOR | $51,083 | $27,182 | $15,782 | $8,119 | 6.7% |
| Other (as described) | PROGRAM EXPENSE | $27,107 | $25,379 | $1,728 | - | 3.6% |
| Payroll taxes | $18,187 | $12,224 | $3,743 | $2,220 | 2.4% | |
| Occupancy | $13,441 | $7,968 | $3,457 | $2,016 | 1.8% | |
| Office expenses | $12,814 | $7,159 | $4,302 | $1,353 | 1.7% | |
| Fees: accounting | $12,144 | - | $12,144 | - | 1.6% | |
| Other (as described) | FAMILY FUNDRAISING | $7,817 | - | - | $7,817 | 1.0% |
| Travel | $5,444 | - | $5,444 | - | 0.7% | |
| Insurance | $2,629 | $1,559 | $676 | $394 | 0.3% | |
| Depreciation and depletion | $2,373 | $1,407 | $610 | $356 | 0.3% | |
| Fundraising events Event | direct expenses; gross income $150,268 | $31,225 | reported apart | |||
| Total | $762,761 | 100% |
2016 · Form 990 · $816,085 spent · pay $271,261 · grants $204,000 · events $15,746
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $159,804 | $113,229 | $27,712 | $18,863 | 19.6% | |
| Pay: officers, directors, trustees, key employees | $111,457 | $79,134 | $18,948 | $13,375 | 13.7% | |
| Grants outside the US | $104,000 | $104,000 | - | - | 12.7% | |
| Other (as described) | FAMILY CONFERENCE | $100,483 | $100,483 | - | - | 12.3% |
| Grants to US organizations and governments | $100,000 | $100,000 | - | - | 12.3% | |
| Other (as described) | PROGRAM EXPENSE | $58,986 | $57,206 | $1,780 | - | 7.2% |
| Occupancy | $57,354 | $40,676 | $9,865 | $6,813 | 7.0% | |
| Office expenses | $39,211 | $29,911 | $8,353 | $947 | 4.8% | |
| All other expenses | $24,614 | - | $14,803 | $9,811 | 3.0% | |
| Other (as described) | CONTRACT LABOR | $17,611 | $7,319 | $7,562 | $2,730 | 2.2% |
| Other (as described) | BANK SERVICE CHARGES | $14,457 | $349 | $7,108 | $7,000 | 1.8% |
| Fees: accounting | $9,928 | - | $9,928 | - | 1.2% | |
| Insurance | $6,108 | $4,331 | $1,051 | $726 | 0.7% | |
| Travel | $5,538 | $3,016 | $2,376 | $146 | 0.7% | |
| Information technology | $5,122 | $5,122 | - | - | 0.6% | |
| Depreciation and depletion | $1,412 | $1,001 | $243 | $168 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $56,934 | $15,746 | reported apart | |||
| Total | $816,085 | 100% |
2015 · Form 990 · $819,217 spent · pay $269,635 · grants $250,000 · events $14,627
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $150,000 | $150,000 | - | - | 18.3% | |
| Other salaries and wages | $132,320 | $76,745 | $30,434 | $25,141 | 16.2% | |
| Other (as described) | EDUCATION & SEMINARS | $128,484 | $128,484 | - | - | 15.7% |
| Pay: officers, directors, trustees, key employees | $114,979 | $66,219 | $26,744 | $22,016 | 14.0% | |
| Grants outside the US | $100,000 | $100,000 | - | - | 12.2% | |
| Occupancy | $80,601 | $4,070 | $75,905 | $626 | 9.8% | |
| Office expenses | $31,204 | $14,791 | $10,510 | $5,903 | 3.8% | |
| Payroll taxes | $22,336 | $12,955 | $5,137 | $4,244 | 2.7% | |
| Other (as described) | WEBSITE & DATABASE | $16,905 | $13,365 | - | $3,540 | 2.1% |
| All other expenses | $10,054 | $75 | $4,628 | $5,351 | 1.2% | |
| Other (as described) | BANK SERVICE CHARGES | $9,226 | $984 | $492 | $7,750 | 1.1% |
| Fees: accounting | $8,950 | - | $8,950 | - | 1.1% | |
| Other (as described) | ANNUAL FUND | $5,419 | - | - | $5,419 | 0.7% |
| Travel | $4,146 | $1,909 | $1,283 | $954 | 0.5% | |
| Insurance | $2,192 | - | $2,192 | - | 0.3% | |
| Depreciation and depletion | $2,151 | - | $2,151 | - | 0.3% | |
| Fees: other services | $225 | - | $225 | - | 0.0% | |
| Fees: investment management | $25 | - | $25 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $43,358 | $14,627 | reported apart | |||
| Total | $819,217 | 100% |
2014 · Form 990 · $587,158 spent · pay $254,733 · grants $0 · events $35,634
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $156,081 | $103,591 | $27,252 | $25,238 | 26.6% | |
| Other (as described) | EDUCATION & SEMINARS | $137,030 | $137,030 | - | - | 23.3% |
| Occupancy | $102,198 | $3,005 | $98,731 | $462 | 17.4% | |
| Pay: officers, directors, trustees, key employees | $79,966 | $52,555 | $13,955 | $13,456 | 13.6% | |
| Office expenses | $25,499 | $12,393 | $9,969 | $3,137 | 4.3% | |
| Payroll taxes | $17,143 | $11,892 | $2,993 | $2,258 | 2.9% | |
| All other expenses | $14,272 | $420 | $8,718 | $5,134 | 2.4% | |
| Other (as described) | ANNUAL FUND | $11,256 | - | - | $11,256 | 1.9% |
| Travel | $10,755 | $5,022 | $3,222 | $2,511 | 1.8% | |
| Other (as described) | WEBSITE & DATABASE | $9,249 | $9,249 | - | - | 1.6% |
| Fees: accounting | $7,760 | - | $7,760 | - | 1.3% | |
| Other (as described) | BANK SERVICE CHARGES | $7,638 | $3,079 | $1,519 | $3,040 | 1.3% |
| Insurance | $3,576 | - | $3,576 | - | 0.6% | |
| Depreciation and depletion | $2,846 | - | $2,846 | - | 0.5% | |
| Other employee benefits | $1,543 | $1,024 | $269 | $250 | 0.3% | |
| Fees: legal | $346 | - | $346 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $22,000 | $35,634 | reported apart | |||
| Total | $587,158 | 100% |
2013 · Form 990 · $666,029 spent · pay $201,438 · grants $130,000 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | EDUCATION & SEMINARS | $131,306 | $131,306 | - | - | 19.7% |
| Other salaries and wages | $106,276 | $60,683 | $16,954 | $28,639 | 16.0% | |
| Grants to US individuals | $90,000 | $90,000 | - | - | 13.5% | |
| Occupancy | $88,006 | $3,286 | $84,214 | $506 | 13.2% | |
| Pay: officers, directors, trustees, key employees | $78,750 | $55,125 | $15,750 | $7,875 | 11.8% | |
| Grants outside the US | $40,000 | $40,000 | - | - | 6.0% | |
| Office expenses | $39,279 | $16,646 | $13,497 | $9,136 | 5.9% | |
| Fees: accounting | $20,616 | - | $20,616 | - | 3.1% | |
| Payroll taxes | $14,013 | $10,388 | $1,775 | $1,850 | 2.1% | |
| All other expenses | $11,050 | $2,202 | $2,626 | $6,222 | 1.7% | |
| Other (as described) | ANNUAL FUND EXPENSE | $10,670 | - | - | $10,670 | 1.6% |
| Travel | $7,836 | - | $7,836 | - | 1.2% | |
| Fees: other services | $6,805 | - | $6,805 | - | 1.0% | |
| Other (as described) | MOVING EXPENSE | $6,692 | - | $6,692 | - | 1.0% |
| Other (as described) | WEBSITE & DATABASE | $5,926 | $5,926 | - | - | 0.9% |
| Depreciation and depletion | $4,576 | - | $4,576 | - | 0.7% | |
| Other employee benefits | $2,399 | - | $2,399 | - | 0.4% | |
| Insurance | $1,684 | - | $1,684 | - | 0.3% | |
| Fees: legal | $145 | - | $145 | - | 0.0% | |
| Total | $666,029 | 100% |
2012 · Form 990 · $474,941 spent · pay $233,140 · grants $0 · events $53,155
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $138,386 | $77,484 | $24,179 | $36,723 | 29.1% | |
| Other (as described) | PROGRAM EXPENSES | $117,515 | $117,515 | - | - | 24.7% |
| Pay: officers, directors, trustees, key employees | $78,750 | $55,125 | $15,750 | $7,875 | 16.6% | |
| Occupancy | $29,257 | $7,607 | $20,480 | $1,170 | 6.2% | |
| Fees: other services | $25,490 | - | $25,490 | - | 5.4% | |
| Office expenses | $25,011 | $12,959 | $6,163 | $5,889 | 5.3% | |
| Payroll taxes | $16,004 | $11,781 | $2,244 | $1,979 | 3.4% | |
| Other (as described) | ANNUAL FUND EXPENSE | $8,547 | - | - | $8,547 | 1.8% |
| Travel | $7,698 | $7,698 | - | - | 1.6% | |
| Fees: accounting | $7,695 | - | $7,695 | - | 1.6% | |
| Other (as described) | WEBSITE & DATABASE | $5,977 | $5,977 | - | - | 1.3% |
| Depreciation and depletion | $5,516 | - | $5,516 | - | 1.2% | |
| All other expenses | $4,720 | $428 | $1,747 | $2,545 | 1.0% | |
| Other (as described) | MISCELLANEOUS | $3,103 | $279 | $1,955 | $869 | 0.7% |
| Insurance | $999 | - | $999 | - | 0.2% | |
| Fees: legal | $273 | - | $273 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $53,155 | reported apart | |||
| Total | $474,941 | 100% |
2011 · Form 990 · $547,909 spent · pay $221,713 · grants $120,000 · events $38,713
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PROGRAM EXPENSES | $118,120 | $118,120 | - | - | 21.6% |
| Other salaries and wages | $116,420 | $60,683 | $21,524 | $34,213 | 21.2% | |
| Pay: officers, directors, trustees, key employees | $91,611 | $68,928 | $15,122 | $7,561 | 16.7% | |
| Grants to US organizations and governments | $80,000 | $80,000 | - | - | 14.6% | |
| Grants outside the US | $40,000 | $40,000 | - | - | 7.3% | |
| Office expenses | $25,952 | $12,004 | $7,921 | $6,027 | 4.7% | |
| Occupancy | $25,090 | $974 | $23,966 | $150 | 4.6% | |
| Payroll taxes | $13,682 | $8,723 | $2,662 | $2,297 | 2.5% | |
| Other (as described) | ANNUAL FUND EXPENSE | $7,933 | - | - | $7,933 | 1.4% |
| Fees: accounting | $6,200 | - | $6,200 | - | 1.1% | |
| Travel | $6,019 | - | $6,019 | - | 1.1% | |
| Depreciation and depletion | $4,908 | - | $4,908 | - | 0.9% | |
| Other (as described) | WEBSITE & DATABASE | $4,785 | $4,785 | - | - | 0.9% |
| All other expenses | $3,953 | $621 | $2,732 | $600 | 0.7% | |
| Other (as described) | SPRING APPEAL EXPENSE | $2,228 | - | - | $2,228 | 0.4% |
| Insurance | $1,008 | - | $1,008 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $38,713 | reported apart | |||
| Total | $547,909 | 100% |
2010 · Form 990 · $321,401 spent · pay $99,656 · grants $70,000 · events $38,333
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $86,335 | $46,500 | $17,726 | $22,109 | 26.9% | |
| Other (as described) | PROGRAM EXPENSES | $62,540 | $62,540 | - | - | 19.5% |
| Grants outside the US | $40,000 | $40,000 | - | - | 12.4% | |
| Grants to US organizations and governments | $30,000 | $30,000 | - | - | 9.3% | |
| Occupancy | $23,739 | $643 | $22,997 | $99 | 7.4% | |
| Office expenses | $17,317 | $8,275 | $5,069 | $3,973 | 5.4% | |
| Fees: accounting | $12,120 | - | $12,120 | - | 3.8% | |
| Fees: other services | $9,550 | $4,000 | $5,550 | - | 3.0% | |
| Payroll taxes | $9,309 | $5,660 | $1,711 | $1,938 | 2.9% | |
| Other (as described) | ANNUAL FUND EXPENSE | $8,440 | - | - | $8,440 | 2.6% |
| Pay: officers, directors, trustees, key employees | $4,000 | $4,000 | - | - | 1.2% | |
| Depreciation and depletion | $3,772 | - | $3,772 | - | 1.2% | |
| Other (as described) | WEBSITE & DATABASE | $3,604 | $3,604 | - | - | 1.1% |
| Travel | $3,502 | - | $3,502 | - | 1.1% | |
| Other (as described) | MISCELLANEOUS | $2,139 | - | $2,139 | - | 0.7% |
| All other expenses | $2,130 | $525 | $1,605 | - | 0.7% | |
| Other (as described) | SPRING APPEAL EXPENSE | $1,727 | - | - | $1,727 | 0.5% |
| Insurance | $1,146 | - | $1,146 | - | 0.4% | |
| Interest | $19 | - | $19 | - | 0.0% | |
| Other employee benefits | $12 | - | $12 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $38,333 | reported apart | |||
| Total | $321,401 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
State business registration
- CREUTZFELDT-JAKOB DISEASE FOUNDATION, INC. FL, Domestic nonprofit corporation (DOMNP), Active, formed 1993-04-07
The same business name in the same state, from the state’s official registry data.
Comments