CREUTZFELDT-JAKOB DISEASE FOUNDATION INC: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- CREUTZFELDT-JAKOB DISEASE FOUNDATION INC (EIN 65-0404623)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-11-15
- IRS object ID
- 201313199349307256
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-11-15T13:48:47-06:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 341945695 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SS&G INC | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 301 SPRINGSIDE DRIVE | AddressLine1 |
| City | AKRON | City |
| State | OH | State |
| ZIP Code | 443332434 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 650404623 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CREUTZFELDT-JAKOB DISEASE FOUNDATION INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | CREU | NameControl |
| Phone | 2127195900 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 341 W 38TH STREET SUITE 501 | AddressLine1 |
| City | NEW YORK | City |
| State | NY | State |
| ZIP Code | 10018 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | FLORENCE KRANITZ | Name |
| Title | PRESIDENT | Title |
| Phone | 2127195900 | Phone |
| Date Signed | 2013-11-14 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | THOMAS KOTICK | Name |
| PTIN | P00235542 | PTIN |
| Phone | 3306689696 | Phone |
| Date Prepared | 2013-11-12 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-03-07 17:11:31Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | X | AddressChange |
| Name Of Principal Officer Person | FLORENCE KRANITZ | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 341 W 38TH STREET SUITE 501 | AddressLine1 |
| City | NEW YORK | City |
| State | NY | State |
| ZIP Code | 10018 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 606233 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.CJDFOUNDATION.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1993 | YearFormation |
| State Legal Domicile | OH | StateLegalDomicile |
| Activity Or Mission Description | TO PROMOTE RESEARCH, EDUCATION, AWARENESS, PATIENT AND FAMILY SUPPORT SERVICES, AND OTHER CHARITABLE PROGRAMS REGARDING CREUTZFELDT-JAKOB DISEASE. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 21 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 20 | NbrIndependentVotingMembers |
| Total Nbr Employees | 5 | TotalNbrEmployees |
| Total Nbr Volunteers | 60 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 285398 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 364010 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 30645 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 59470 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 12347 | InvestmentIncomePriorYear |
| Investment Income Current Year | 11763 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 83208 | OtherRevenuePriorYear |
| Other Revenue Current Year | 115703 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 411598 | TotalRevenuePriorYear |
| Total Revenue Current Year | 550946 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 120000 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 0 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 221713 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 233140 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 65597 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 206196 | OtherExpensePriorYear |
| Other Expenses Current Year | 241801 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 547909 | TotalExpensesPriorYear |
| Total Expenses Current Year | 474941 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -136311 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 76005 | RevenuesLessExpensesCY |
| Total Assets BOY | 703140 | TotalAssetsBOY |
| Total Assets EOY | 806446 | TotalAssetsEOY |
| Total Liabilities BOY | 14824 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 16667 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 688316 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 789779 | NetAssetsOrFundBalancesEOY |
| Mission Description | THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 296853 | Expense |
| Revenue | 59470 | Revenue |
| Description | ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. | Description |
| Total Program Service Expense | 296853 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 0 | LobbyingActivities |
| Subject To Proxy Tax | 0 | SubjectToProxyTax |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 1 | ReportOtherLiabilities |
| Report Fin48 Footnote | 1 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 0 | ForeignActivities |
| More Than5000 K To Organizations | 0 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 0 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 0 | GrantsToOrganizations |
| Grants To Individuals | 0 | GrantsToIndividuals |
| Schedule J Required | 0 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 0 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 0 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 0 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 5 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 21 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 20 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 1 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 0 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 0 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 0 | ConflictOfInterestPolicy |
| Whistleblower Policy | 0 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 0 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | OH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | FL | StatesWhereCopyOfReturnIsFiled |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RUTHIE R GEORGE TREASURER | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 3306655590 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3632 WEST MARKET STREET 105N | AddressLine1 |
| City | AKRON | City |
| State | OH | State |
| ZIP Code | 44333 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (23 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| FLORENCE KRANITZ | ||||||
| PRESIDENT | 40.00 | X | X | 78750 | 0 | 0 |
| SYBIL WILLEN | ||||||
| SECRETARY | 2.00 | X | X | 0 | 0 | 0 |
| RUTHIE R GEORGE | ||||||
| TREASURER | 15.00 | X | X | 0 | 0 | 0 |
| DR PIERLUIGI GAMBETTI | ||||||
| MEDICAL DIRECTOR | 2.00 | X | X | 0 | 0 | 0 |
| ANA BETRO | ||||||
| VP OF FUNDRAISING | 2.00 | X | X | 0 | 0 | 0 |
| MARK GOLDFARB | ||||||
| CHAIRPERSON | 2.00 | X | X | 0 | 0 | 0 |
| NICHOLAS GEORGE UNTIL 101412 | ||||||
| VICE CHAIRPERSON | 2.00 | X | X | 0 | 0 | 0 |
| TOM HAUGHT | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| MAYRA LICHTER | ||||||
| BOARD MEMBER & CO-FOUNDER | 2.00 | X | 0 | 0 | 0 | |
| SCOTT PATERNOSTER | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| TOM SAWYER | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| JAMES SIMON UNTIL 101412 | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| STUART YAFFA | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| DEANA SIMPSON | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| VERONICA OBERDORF | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| PAUL PATERNOSTER | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| BRIAN APPLEBY | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| BOB KASSAI | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| MARIE KASSAI | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| AMANDA BAXLEY KALINSKY AS OF 71312 | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| CHARLES CASH AS OF 71312 | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| MICHAEL VITANZA AS OF 71312 | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| DEBBIE YOBS AS OF 121012 | ||||||
| DIRECTOR OF MARKETING | 2.00 | X | 0 | 0 | 0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 78750 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 0 | TotalOtherCompensation |
| Number Individuals GT100 K | 0 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 0 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
| Number Of Contractors GT100 K | 0 | NumberOfContractorsGT100K |
| Fundraising Events | 110689 | FundraisingEvents |
| All Other Contributions | 253321 | AllOtherContributions |
| Total Contributions | 364010 | TotalContributions |
Program Service Revenue ProgramServiceRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | CONFERENCE INCOME | Description |
| Business Code | 541900 | BusinessCode |
| Total Revenue Column | 59470 | TotalRevenueColumn |
| Related Or Exempt Function Income | 59470 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 59470 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 11763 | TotalRevenueColumn |
| Exclusion | $11,763 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 164330 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 110689 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 53155 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 111175 | TotalRevenueColumn |
| Exclusion | $111,175 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | 6660 | GrossSalesOfInventory |
| Cost Of Goods Sold | 2132 | CostOfGoodsSold |
Net Income Or Loss NetIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 4528 | TotalRevenueColumn |
| Exclusion | $4,528 | ExclusionAmount |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 550946 | TotalRevenueColumn |
| Related Or Exempt Function Income | 59470 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | $127,466 | ExclusionAmount |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 78750 | Total |
| Program Services | 55125 | ProgramServices |
| Management And General | 15750 | ManagementAndGeneral |
| Fundraising | 7875 | Fundraising |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 138386 | Total |
| Program Services | 77484 | ProgramServices |
| Management And General | 24179 | ManagementAndGeneral |
| Fundraising | 36723 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 16004 | Total |
| Program Services | 11781 | ProgramServices |
| Management And General | 2244 | ManagementAndGeneral |
| Fundraising | 1979 | Fundraising |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 273 | Total |
| Management And General | 273 | ManagementAndGeneral |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7695 | Total |
| Management And General | 7695 | ManagementAndGeneral |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25490 | Total |
| Management And General | 25490 | ManagementAndGeneral |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 25011 | Total |
| Program Services | 12959 | ProgramServices |
| Management And General | 6163 | ManagementAndGeneral |
| Fundraising | 5889 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 29257 | Total |
| Program Services | 7607 | ProgramServices |
| Management And General | 20480 | ManagementAndGeneral |
| Fundraising | 1170 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7698 | Total |
| Program Services | 7698 | ProgramServices |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5516 | Total |
| Management And General | 5516 | ManagementAndGeneral |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 999 | Total |
| Management And General | 999 | ManagementAndGeneral |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | FundraisingFundraising | Management And GeneralManagementAndGeneral |
|---|---|---|---|---|
| PROGRAM EXPENSES | 117515 | 117515 | ||
| ANNUAL FUND EXPENSE | 8547 | 8547 | ||
| WEBSITE & DATABASE | 5977 | 5977 | ||
| MISCELLANEOUS | 3103 | 279 | 869 | 1955 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4720 | Total |
| Program Services | 428 | ProgramServices |
| Management And General | 1747 | ManagementAndGeneral |
| Fundraising | 2545 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 474941 | Total |
| Program Services | 296853 | ProgramServices |
| Management And General | 112491 | ManagementAndGeneral |
| Fundraising | 65597 | Fundraising |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 168027 | BOY |
| EOY | 238256 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 25000 | BOY |
| EOY | 45000 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2205 | BOY |
| EOY | 2205 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3520 | BOY |
| EOY | 0 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 32820 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 23862 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 8224 | BOY |
| EOY | 8958 | EOY |
Investments Pub Traded Securities InvestmentsPubTradedSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 494470 | BOY |
| EOY | 510333 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1694 | BOY |
| EOY | 1694 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 703140 | BOY |
| EOY | 806446 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 11252 | BOY |
| EOY | 16667 | EOY |
Other Liabilities OtherLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 3572 | BOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 14824 | BOY |
| EOY | 16667 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 688316 | BOY |
| EOY | 789779 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 688316 | BOY |
| EOY | 789779 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 703140 | BOY |
| EOY | 806446 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 76005 | ReconcilationRevenueExpenses |
| Reconciliation Unrealized Invest | 4455 | ReconciliationUnrealizedInvest |
| Reconcilation Donated Services | 21003 | ReconcilationDonatedServices |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Info In Schedule O Part XII | X | InfoInScheduleOPartXII |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Separate | X | FinancialStatementSeparate |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 1 | AuditCommittee |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 428856 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 334262 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 336883 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 285398 | CurrentTaxYearMinus1Year |
| Current Tax Year | 364010 | CurrentTaxYear |
| Total | 1749409 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 428856 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 334262 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 336883 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 285398 | CurrentTaxYearMinus1Year |
| Current Tax Year | 364010 | CurrentTaxYear |
| Total | 1749409 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 18644 | AmountsSubstContributorsTotal |
| Public Support Total170 | 1730765 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 14627 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 14652 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 14344 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 12347 | CurrentTaxYearMinus1Year |
| Current Tax Year | 11763 | CurrentTaxYear |
| Total | 67733 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 86662 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 73040 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 156996 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 151237 | CurrentTaxYearMinus1Year |
| Current Tax Year | 223801 | CurrentTaxYear |
| Total | 691736 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 2508878 | TotalSupport |
| Gross Receipts From Admissions Etc | 15489 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.68990 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.74550 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule D IRS990ScheduleD
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 32820 | OtherCostOrOtherBasis |
| Depreciation | 23862 | Depreciation |
| Book Value | 8958 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 8958 | TotalOfBookValueLandBuildings |
| Footnote In Part XIII | X | FootnoteInPartXIII |
| Tot Revenue Etc Audited Fincl Stmt | 631533 | TotRevenueEtcAuditedFinclStmt |
| Net Unrealized Gains Investments | 4455 | NetUnrealizedGainsInvestments |
| Donated Srvc And Use Of Facilities | 21003 | DonatedSrvcAndUseOfFacilities |
| Other Revenues | 55129 | OtherRevenues |
| Revenue Not Rptd F990 | 80587 | RevenueNotRptdF990 |
| Revenue Subtotal | 550946 | RevenueSubtotal |
| Revenue Not Rptd On Fin Stmt | 0 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 550946 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 530070 | TotExpensesEtcAuditedFinclStmt |
| Other Expenses Included | 55129 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 55129 | ExpensesNotRptdF990 |
| Expenses Subtotal | 474941 | ExpensesSubtotal |
| Expenses Not Rptd On Fin Stmt | 0 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 474941 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIII Form990ScheduleDPartXIII (2 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: | PART X, LINE 2: | THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE FOUNDATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A)(2). THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION ARE RECORDED IN OPERATING EXPENSE. |
| PART XII LINE 2D: STORE EXPENSES OF $2,132 AND FUNDRAISING EXPENSES OF $52,997 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. PART XIII LINE 2D: STORE EXPENSES OF $2,132 AND FUNDRAISING EXPENSES OF $52,997 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. |
Schedule G IRS990ScheduleG
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | GOLF OUTING | NameOfEvent1 |
| Gross Receipts Event1 | 86095 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 21610 | CharitableContributionsEvent1 |
| Gross Revenue Event1 | 64485 | GrossRevenueEvent1 |
| Non Cash Prizes Event1 | 2668 | NonCashPrizesEvent1 |
| Rent Facility Costs Event1 | 18584 | RentFacilityCostsEvent1 |
| Food And Beverage Event1 | 12865 | FoodAndBeverageEvent1 |
| Other Direct Expenses Event1 | 18258 | OtherDirectExpensesEvent1 |
| Name Of Event2 | AUCTION | NameOfEvent2 |
| Gross Receipts Event2 | 58354 | GrossReceiptsEvent2 |
| Charitable Contributions Event2 | 29177 | CharitableContributionsEvent2 |
| Gross Revenue Event2 | 29177 | GrossRevenueEvent2 |
| Other Direct Expenses Event2 | 622 | OtherDirectExpensesEvent2 |
| Total Number Of Other Events | 4 | TotalNumberOfOtherEvents |
| Gross Receipts Other Events | 119804 | GrossReceiptsOtherEvents |
| Charitable Contrib Other Events | 59902 | CharitableContribOtherEvents |
| Gross Revenue Other Events | 59902 | GrossRevenueOtherEvents |
| Gross Receipts Total | 264253 | GrossReceiptsTotal |
| Charitable Contributions Total | 110689 | CharitableContributionsTotal |
| Gross Revenue Total Events | 153564 | GrossRevenueTotalEvents |
| Non Cash Prizes Total Events | 2668 | NonCashPrizesTotalEvents |
| Rent Facility Costs Total Events | 18584 | RentFacilityCostsTotalEvents |
| Food And Beverage Total Events | 12865 | FoodAndBeverageTotalEvents |
| Other Direct Expenses Total Events | 18880 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 52997 | DirectExpenseSummaryEvents |
| Net Income Summary | 100567 | NetIncomeSummary |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (5 entries)
| Return ReferenceReturnReference | ExplanationExplanation |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | NICK GEORGE AND RUTHIE GEORGE HAVE A FAMILY RELATIONSHIP. AS WELL AS, PAUL AND SCOTT PATERNOSTER HAVE A FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION B, LINE 11 | CREUTZELDT-JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEO'S WORKING FOR OTHER NON-PROFIT ORGANIZATION'S OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S FINANCE COMMITTEE ASSUMES THE RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS AND THE SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |
Comments