2013-11-15T13:48:47-06:00 2012-12-31 341945695 SS&G INC 301 SPRINGSIDE DRIVE AKRON OH 443332434 990 2012-01-01 650404623 CREUTZFELDT-JAKOB DISEASE FOUNDATION INC CREU 2127195900 341 W 38TH STREET SUITE 501 NEW YORK NY 10018 FLORENCE KRANITZ 2127195900 2013-11-14 1 THOMAS KOTICK P00235542 3306689696 2013-11-12 2012 2016-03-07 17:11:31Z X FLORENCE KRANITZ 341 W 38TH STREET SUITE 501 NEW YORK NY 10018 606233 0 X WWW.CJDFOUNDATION.ORG X 1993 OH TO PROMOTE RESEARCH, EDUCATION, AWARENESS, PATIENT AND FAMILY SUPPORT SERVICES, AND OTHER CHARITABLE PROGRAMS REGARDING CREUTZFELDT-JAKOB DISEASE. 21 20 5 60 0 0 285398 364010 30645 59470 12347 11763 83208 115703 411598 550946 120000 0 0 0 221713 233140 0 0 65597 206196 241801 547909 474941 -136311 76005 703140 806446 14824 16667 688316 789779 THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. 0 0 296853 59470 ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. 296853 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 5 1 0 0 0 0 0 1 1 0 0 0 0 X 21 20 1 0 0 0 0 0 0 1 1 0 0 1 0 0 1 1 0 0 OH FL X RUTHIE R GEORGE TREASURER 3306655590 3632 WEST MARKET STREET 105N AKRON OH 44333 FLORENCE KRANITZ 40.00 X X 78750 0 0 SYBIL WILLEN 2.00 X X 0 0 0 RUTHIE R GEORGE 15.00 X X 0 0 0 DR PIERLUIGI GAMBETTI 2.00 X X 0 0 0 ANA BETRO 2.00 X X 0 0 0 MARK GOLDFARB 2.00 X X 0 0 0 NICHOLAS GEORGE UNTIL 101412 2.00 X X 0 0 0 TOM HAUGHT 2.00 X 0 0 0 MAYRA LICHTER 2.00 X 0 0 0 SCOTT PATERNOSTER 2.00 X 0 0 0 TOM SAWYER 2.00 X 0 0 0 JAMES SIMON UNTIL 101412 2.00 X 0 0 0 STUART YAFFA 2.00 X 0 0 0 DEANA SIMPSON 2.00 X 0 0 0 VERONICA OBERDORF 2.00 X 0 0 0 PAUL PATERNOSTER 2.00 X 0 0 0 BRIAN APPLEBY 2.00 X 0 0 0 BOB KASSAI 2.00 X 0 0 0 MARIE KASSAI 2.00 X 0 0 0 AMANDA BAXLEY KALINSKY AS OF 71312 2.00 X 0 0 0 CHARLES CASH AS OF 71312 2.00 X 0 0 0 MICHAEL VITANZA AS OF 71312 2.00 X 0 0 0 DEBBIE YOBS AS OF 121012 2.00 X 0 0 0 78750 0 0 0 0 0 0 0 110689 253321 364010 CONFERENCE INCOME 541900 59470 59470 59470 11763 11763 164330 110689 53155 111175 111175 6660 2132 4528 4528 550946 59470 0 127466 78750 55125 15750 7875 138386 77484 24179 36723 16004 11781 2244 1979 273 273 7695 7695 25490 25490 25011 12959 6163 5889 29257 7607 20480 1170 7698 7698 5516 5516 999 999 PROGRAM EXPENSES 117515 117515 ANNUAL FUND EXPENSE 8547 8547 WEBSITE & DATABASE 5977 5977 MISCELLANEOUS 3103 279 1955 869 4720 428 1747 2545 474941 296853 112491 65597 168027 238256 25000 45000 2205 2205 3520 0 32820 23862 8224 8958 494470 510333 1694 1694 703140 806446 11252 16667 3572 14824 16667 X 688316 789779 688316 789779 703140 806446 76005 4455 21003 0 X X 0 1 X 1 0 X 428856 334262 336883 285398 364010 1749409 428856 334262 336883 285398 364010 1749409 18644 1730765 14627 14652 14344 12347 11763 67733 86662 73040 156996 151237 223801 691736 2508878 15489 0.68990 0.74550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 32820 23862 8958 8958 X 631533 4455 21003 55129 80587 550946 0 550946 530070 55129 55129 474941 0 474941 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE FOUNDATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A)(2). THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION ARE RECORDED IN OPERATING EXPENSE. PART XII LINE 2D: STORE EXPENSES OF $2,132 AND FUNDRAISING EXPENSES OF $52,997 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. PART XIII LINE 2D: STORE EXPENSES OF $2,132 AND FUNDRAISING EXPENSES OF $52,997 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. GOLF OUTING 86095 21610 64485 2668 18584 12865 18258 AUCTION 58354 29177 29177 622 4 119804 59902 59902 264253 110689 153564 2668 18584 12865 18880 52997 100567 FORM 990, PART VI, SECTION A, LINE 2 NICK GEORGE AND RUTHIE GEORGE HAVE A FAMILY RELATIONSHIP. AS WELL AS, PAUL AND SCOTT PATERNOSTER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 CREUTZELDT-JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. FORM 990, PART VI, SECTION B, LINE 15A THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEO'S WORKING FOR OTHER NON-PROFIT ORGANIZATION'S OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C THE ORGANIZATION'S FINANCE COMMITTEE ASSUMES THE RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS AND THE SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM PRIOR YEAR.