CREUTZFELDT-JAKOB DISEASE FOUNDATION INC: Form 990, tax year 2014
View the entire original 990 at ProPublica ↗
- Organization
- CREUTZFELDT-JAKOB DISEASE FOUNDATION INC (EIN 65-0404623)
- Tax period
- 2014-01-01 to 2014-12-31
- Filed
- 2015-11-13
- IRS object ID
- 201543179349307239
- Schema version
- 2014v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2015-11-13T15:06:55-06:00 | ReturnTs |
| Tax Period End | 2014-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 341897853 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CRUM & COMPANY | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 525 N CLEVELAND MASSILLON RD STE 10 | AddressLine1Txt |
| City | AKRON | CityNm |
| State Abbreviation | OH | StateAbbreviationCd |
| ZIP | 443333332 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2014-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 650404623 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CREUTZFELDT-JAKOB DISEASE | BusinessNameLine1Txt |
| Business Name Line2 | FOUNDATION INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CREU | BusinessNameControlTxt |
| Phone | 2127195900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 341 W 38TH STREET SUITE 501 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DEBORAH R YOBS | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 2127195900 | PhoneNum |
| Signature | 2015-11-12 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | KEVIN K CRUM | PreparerPersonNm |
| PTIN | P00255436 | PTIN |
| Phone | 3308671222 | PhoneNum |
| Preparation | 2015-11-13 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2014 | TaxYr |
| Build TS | 2016-04-25 22:37:26Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | FLORENCE KRANITZ | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 341 W 38TH STREET SUITE 501 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $720,302 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CJDFOUNDATION.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1993 | FormationYr |
| Legal Domicile State | FL | LegalDomicileStateCd |
| Activity Or Mission | THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. | ActivityOrMissionDesc |
| Voting Members Governing Body | 19 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 19 | VotingMembersIndependentCnt |
| Total Employee | 4 | TotalEmployeeCnt |
| Total Volunteers | 19 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $619,472 | PYContributionsGrantsAmt |
| CY Contributions Grants | $626,556 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $41,567 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $46,464 | CYProgramServiceRevenueAmt |
| PY Investment Income | $5,722 | PYInvestmentIncomeAmt |
| CY Investment Income | $8,323 | CYInvestmentIncomeAmt |
| PY Other Revenue | $13,869 | PYOtherRevenueAmt |
| CY Other Revenue | $2,968 | CYOtherRevenueAmt |
| PY Total Revenue | $680,630 | PYTotalRevenueAmt |
| CY Total Revenue | $684,311 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $130,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $0 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $201,438 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $254,733 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $66,742 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $334,591 | PYOtherExpensesAmt |
| CY Other Expenses | $332,425 | CYOtherExpensesAmt |
| PY Total Expenses | $666,029 | PYTotalExpensesAmt |
| CY Total Expenses | $587,158 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $14,601 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $97,153 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $798,230 | TotalAssetsBOYAmt |
| Total Assets EOY | $891,868 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $17,165 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $9,184 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $781,065 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $882,684 | NetAssetsOrFundBalancesEOYAmt |
| Mission | THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $339,260 | ExpenseAmt |
| Revenue | $51,066 | RevenueAmt |
| Desc | ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. | Desc |
| Total Program Service Expenses | $339,260 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | false | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | false | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | false | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 4 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 4 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 19 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 19 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DEBORAH R YOBS | PersonNm |
| Phone | 2127195900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 341 W 38TH ST | AddressLine1Txt |
| Address Line2 | STE 501 | AddressLine2Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| RUTHIE R GEORGE | ||||||
| TREASURER | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| DR PIERLUIGI GAMBETTI | ||||||
| MEDICAL DIRE | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| ANA BETRO | ||||||
| VP OF FUNDRA | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| MARK GOLDFARB | ||||||
| CHAIRMAN | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| BOB KASSAI | ||||||
| VICE CHAIRMA | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| TOM HAUGHT | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MYRA LICHTER | ||||||
| VICE CHAIRMA | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| SCOTT PATERNOSTER | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| TOM SAWYER | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| STUART YAFFA | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DEANA SIMPSON | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| VERONICA OBERDORF | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| PAUL PATERNOSTER | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| BRIAN APPLEBY | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MARIE KASSAI | ||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| AMANDA BAXLEY KALINSKY | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| CHARLES CASH | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL VITANZA | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| DEBORAH R YOBS | ||||||
| BOARD MEMBER | 2.00 | Yes (X) | $0 | $0 | $0 | |
| FLORENCE KRANITZ | ||||||
| PRESIDENT | 40.00 | Yes (X) | $79,966 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $79,966 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $63,096 | FundraisingAmt |
| All Other Contributions | $563,460 | AllOtherContributionsAmt |
| Noncash Contributions | $23,344 | NoncashContributionsAmt |
| Total Contributions | $626,556 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE INCOME | Desc |
| Business | 541900 | BusinessCd |
| Total Revenue Column | $46,464 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $46,464 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $46,464 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,323 | TotalRevenueColumnAmt |
| Exclusion | $8,323 | ExclusionAmt |
Gross Rents GrossRentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $12,000 | RealAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $12,000 | RealAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $12,000 | TotalRevenueColumnAmt |
| Exclusion | $12,000 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $22,000 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $63,096 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $35,634 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$13,634 | TotalRevenueColumnAmt |
| Exclusion | -$13,634 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $4,959 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $357 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,602 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $4,602 | RelatedOrExemptFuncIncomeAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $684,311 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $51,066 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $6,689 | ExclusionAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $79,966 | TotalAmt |
| Program Services | $52,555 | ProgramServicesAmt |
| Management And General | $13,955 | ManagementAndGeneralAmt |
| Fundraising | $13,456 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $156,081 | TotalAmt |
| Program Services | $103,591 | ProgramServicesAmt |
| Management And General | $27,252 | ManagementAndGeneralAmt |
| Fundraising | $25,238 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,543 | TotalAmt |
| Program Services | $1,024 | ProgramServicesAmt |
| Management And General | $269 | ManagementAndGeneralAmt |
| Fundraising | $250 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,143 | TotalAmt |
| Program Services | $11,892 | ProgramServicesAmt |
| Management And General | $2,993 | ManagementAndGeneralAmt |
| Fundraising | $2,258 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $346 | TotalAmt |
| Management And General | $346 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,760 | TotalAmt |
| Management And General | $7,760 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,499 | TotalAmt |
| Program Services | $12,393 | ProgramServicesAmt |
| Management And General | $9,969 | ManagementAndGeneralAmt |
| Fundraising | $3,137 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $102,198 | TotalAmt |
| Program Services | $3,005 | ProgramServicesAmt |
| Management And General | $98,731 | ManagementAndGeneralAmt |
| Fundraising | $462 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,755 | TotalAmt |
| Program Services | $5,022 | ProgramServicesAmt |
| Management And General | $3,222 | ManagementAndGeneralAmt |
| Fundraising | $2,511 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,846 | TotalAmt |
| Management And General | $2,846 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,576 | TotalAmt |
| Management And General | $3,576 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| EDUCATION & SEMINARS | $137,030 | $137,030 | ||
| ANNUAL FUND | $11,256 | $11,256 | ||
| WEBSITE & DATABASE | $9,249 | $9,249 | ||
| BANK SERVICE CHARGES | $7,638 | $3,079 | $3,040 | $1,519 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,272 | TotalAmt |
| Program Services | $420 | ProgramServicesAmt |
| Management And General | $8,718 | ManagementAndGeneralAmt |
| Fundraising | $5,134 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $587,158 | TotalAmt |
| Program Services | $339,260 | ProgramServicesAmt |
| Management And General | $181,156 | ManagementAndGeneralAmt |
| Fundraising | $66,742 | FundraisingAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $232,208 | BOYAmt |
| EOY | $187,350 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $61,212 | BOYAmt |
| EOY | $118,338 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,981 | BOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,054 | BOYAmt |
| EOY | $4,157 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,908 | BOYAmt |
| EOY | $1,576 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $27,247 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $23,815 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,278 | BOYAmt |
| EOY | $3,432 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $441,649 | BOYAmt |
| EOY | $555,431 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $48,940 | BOYAmt |
| EOY | $21,584 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $798,230 | BOYAmt |
| EOY | $891,868 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $17,165 | BOYAmt |
| EOY | $9,184 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $17,165 | BOYAmt |
| EOY | $9,184 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $781,065 | BOYAmt |
| EOY | $549,667 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $333,017 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $781,065 | BOYAmt |
| EOY | $882,684 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $798,230 | BOYAmt |
| EOY | $891,868 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $97,153 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $4,466 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $336,883 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $285,398 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $364,010 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $619,472 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $626,556 | CurrentTaxYearAmt |
| Total | $2,232,319 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $336,883 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $285,398 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $364,010 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $619,472 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $626,556 | CurrentTaxYearAmt |
| Total | $2,232,319 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $2,232,319 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $14,344 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $12,347 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $11,763 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,722 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $20,323 | CurrentTaxYearAmt |
| Total | $64,499 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $124,358 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $120,592 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $164,330 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,054 | CurrentTaxYearMinus1YearAmt |
| Total | $410,334 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $2,707,152 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $51,423 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.82460 | PublicSupportCY170Pct |
| Public Support PY170 | 0.77500 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II, LINE 10 | FormAndLineReferenceDesc |
| Explanation | 410,334 | ExplanationTxt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $27,247 | OtherCostOrOtherBasisAmt |
| Depreciation | $23,815 | DepreciationAmt |
| Book Value | $3,432 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $3,432 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $701,423 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $4,466 | NetUnrealizedGainsInvstAmt |
| Other Revenue | $12,646 | OtherRevenueAmt |
| Revenue Not Reported | $17,112 | RevenueNotReportedAmt |
| Revenue Subtotal | $684,311 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $684,311 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $599,804 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $12,646 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $12,646 | ExpensesNotReportedAmt |
| Expenses Subtotal | $587,158 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $587,158 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| SCHEDULE D, PAGE 3, PART X | THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION, OF WHICH THERE WERE NONE, ARE RECORDED IN ADMINISTRATIVE EXPENSES. |
| SCHEDULE D, PAGE 4, PART XI, LINE 2D | CONCERT EXPENSE 12,289 COST OF GOODS 357 |
| SCHEDULE D, PAGE 4, PART XII, LINE 2D | CONCERT EXPENSE 12,289 COST OF GOODS 357 |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | VOH CONCERT | Event1Nm |
| Gross Receipts Event1 | $85,096 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $63,096 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $22,000 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $35,634 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $85,096 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $63,096 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $22,000 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $35,634 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $35,634 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$13,634 | NetIncomeSummaryAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PAGE 6, PART VI, LINE 2 | BOB KASSAI MARIE KASSAI FAMILY PAUL PATERNOSTER SCOTT PATERNOSTER FAMILY |
| FORM 990, PAGE 6, PART VI, LINE 11B | THE CREUTZFELDT - JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. |
| FORM 990, PAGE 6, PART VI, LINE 15A | THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEOS WORKING FOR OTHER NON-PROFIT ORGANIZATIONS OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. |
| FORM 990, PAGE 6, PART VI, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. |
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