2015-11-13T15:06:55-06:00 2014-12-31 341897853 CRUM & COMPANY 525 N CLEVELAND MASSILLON RD STE 10 AKRON OH 443333332 990 2014-01-01 650404623 CREUTZFELDT-JAKOB DISEASE FOUNDATION INC CREU 2127195900 341 W 38TH STREET SUITE 501 NEW YORK NY 10018 DEBORAH R YOBS PRESIDENT 2127195900 2015-11-12 KEVIN K CRUM P00255436 3308671222 2015-11-13 2014 2016-04-25 22:37:26Z FLORENCE KRANITZ 341 W 38TH STREET SUITE 501 NEW YORK NY 10018 720302 false X WWW.CJDFOUNDATION.ORG X 1993 FL THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. 19 19 4 19 0 619472 626556 41567 46464 5722 8323 13869 2968 680630 684311 130000 0 0 201438 254733 0 66742 334591 332425 666029 587158 14601 97153 798230 891868 17165 9184 781065 882684 THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. false false 339260 51066 ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. 339260 true false false false false false false false false false true false false false false true true false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false true 4 0 4 true false false false false false false false false false false X 19 19 true false false false false false false true true false false true false false true true false false OH FL NY X DEBORAH R YOBS 2127195900 341 W 38TH ST STE 501 NEW YORK NY 10018 RUTHIE R GEORGE TREASURER 5.00 X X 0 0 0 DR PIERLUIGI GAMBETTI MEDICAL DIRE 2.00 X X 0 0 0 ANA BETRO VP OF FUNDRA 2.00 X X 0 0 0 MARK GOLDFARB CHAIRMAN 2.00 X X 0 0 0 BOB KASSAI VICE CHAIRMA 2.00 X X 0 0 0 TOM HAUGHT BOARD MEMBER 2.00 X 0 0 0 MYRA LICHTER VICE CHAIRMA 2.00 X X 0 0 0 SCOTT PATERNOSTER BOARD MEMBER 2.00 X 0 0 0 TOM SAWYER BOARD MEMBER 2.00 X 0 0 0 STUART YAFFA BOARD MEMBER 2.00 X 0 0 0 DEANA SIMPSON BOARD MEMBER 2.00 X 0 0 0 VERONICA OBERDORF BOARD MEMBER 2.00 X 0 0 0 PAUL PATERNOSTER BOARD MEMBER 2.00 X 0 0 0 BRIAN APPLEBY BOARD MEMBER 2.00 X 0 0 0 MARIE KASSAI SECRETARY 2.00 X X 0 0 0 AMANDA BAXLEY KALINSKY BOARD MEMBER 2.00 X 0 0 0 CHARLES CASH BOARD MEMBER 2.00 X 0 0 0 MICHAEL VITANZA BOARD MEMBER 2.00 X 0 0 0 DEBORAH R YOBS BOARD MEMBER 2.00 X 0 0 0 FLORENCE KRANITZ PRESIDENT 40.00 X 79966 0 0 79966 false false false 63096 563460 23344 626556 CONFERENCE INCOME 541900 46464 46464 46464 8323 8323 12000 12000 12000 12000 22000 63096 35634 -13634 -13634 4959 357 4602 4602 684311 51066 6689 79966 52555 13955 13456 156081 103591 27252 25238 1543 1024 269 250 17143 11892 2993 2258 346 346 7760 7760 25499 12393 9969 3137 102198 3005 98731 462 10755 5022 3222 2511 2846 2846 3576 3576 EDUCATION & SEMINARS 137030 137030 ANNUAL FUND 11256 11256 WEBSITE & DATABASE 9249 9249 BANK SERVICE CHARGES 7638 3079 1519 3040 14272 420 8718 5134 587158 339260 181156 66742 232208 187350 61212 118338 3981 2054 4157 1908 1576 27247 23815 6278 3432 441649 555431 48940 21584 798230 891868 17165 9184 17165 9184 X 781065 549667 333017 781065 882684 798230 891868 97153 4466 X false true X true false X 336883 285398 364010 619472 626556 2232319 336883 285398 364010 619472 626556 2232319 2232319 14344 12347 11763 5722 20323 64499 124358 120592 164330 1054 410334 2707152 51423 0.82460 0.77500 X PART II, LINE 10 410,334 27247 23815 3432 3432 X 701423 4466 12646 17112 684311 684311 599804 12646 12646 587158 587158 SCHEDULE D, PAGE 3, PART X THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION, OF WHICH THERE WERE NONE, ARE RECORDED IN ADMINISTRATIVE EXPENSES. SCHEDULE D, PAGE 4, PART XI, LINE 2D CONCERT EXPENSE 12,289 COST OF GOODS 357 SCHEDULE D, PAGE 4, PART XII, LINE 2D CONCERT EXPENSE 12,289 COST OF GOODS 357 VOH CONCERT 85096 63096 22000 35634 85096 63096 22000 35634 35634 -13634 FORM 990, PAGE 6, PART VI, LINE 2 BOB KASSAI MARIE KASSAI FAMILY PAUL PATERNOSTER SCOTT PATERNOSTER FAMILY FORM 990, PAGE 6, PART VI, LINE 11B THE CREUTZFELDT - JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. FORM 990, PAGE 6, PART VI, LINE 15A THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEOS WORKING FOR OTHER NON-PROFIT ORGANIZATIONS OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST.