CURE SANFILIPPO FOUNDATION
Cite this
Plain text CURE SANFILIPPO FOUNDATION. furp.org, nonprofit organization profile, tax years 2013–2024. https://furp.org/org/cure-sanfilippo-foundation-464322131. Retrieved 2026-10-30.
APA furp.org. (n.d.). CURE SANFILIPPO FOUNDATION [Nonprofit organization profile; tax years 2013–2024]. Retrieved October 30, 2026, from https://furp.org/org/cure-sanfilippo-foundation-464322131
MLA “CURE SANFILIPPO FOUNDATION.” furp.org, tax years 2013–2024, https://furp.org/org/cure-sanfilippo-foundation-464322131. Accessed 30 Oct. 2026.
Retrieved 2026-10-30; covers tax years 2013–2024. Data: furp.org, CC BY 4.0.
2024 · Form 990 · revenue $2.8M · expenses $1.6M · assets $13.9M
- EIN
- 46-4322131
- Address
- 6048 CEDAR RIDGE RD, COLUMBIA, SC 29206-4302
- Website
- www.CureSanfilippoFoundation.org
- NTEE code
- H80
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- March 2014 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
4 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 2013-2024 | $161,106 | $1,167,024 | 1 |
| Cara O'Neill | Chief Science | 2013-2024 | $146,196 | $676,757 | 1 |
| Katie Walton | Vice President | 2014-2024 | $122,727 | $645,421 | 1 |
| Ben Von Wong | Director | 2018-2024 | $0 | $7,500 | 1 |
Officers and directors, no compensation reported
10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Daniel Fraley | Board Chair | 2013-2024 | 2 | $0 reported | 1 |
| Jessica Haywood | Director | 2023-2024 | 2 | $0 reported | 1 |
| Faith McAngus | Director | 2014-2024 | 2 | $0 reported | 1 |
| Shelby Leonardi | Secretary | 2015-2024 | 2 | $0 reported | 1 |
| Mike Lykes | Director | 2024 | 2 | $0 reported | 1 |
| Adam Shaywitz | Director | 2019-2024 | 2 | $0 reported | 1 |
| Valerie Byers (former) | Director | 2015-2023 | 2 | $0 reported | 1 |
| Rachel Best (former) | Director | 2013-2020 | 1 | $0 reported | 1 |
| Rachael Best (former) | Director | 2014-2018 | 5 | $0 reported | 1 |
| Shelby Leonardy (former) | Secretary | 2018 | 5 | $0 reported | 1 |
People by year
2024 · 10 people listed · 3 paid, $430K · 5 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $139,049 | $0 | $22,057 | $161,106 | 1 |
| Cara O'Neill | Chief Science | 40 | $124,759 | $0 | $21,437 | $146,196 | 1 |
| Katie Walton | Vice President | 40 | $118,051 | $0 | $4,676 | $122,727 | 1 |
| Daniel Fraley | Board Chair | 2 | $0 | $0 | $0 | $0 | 1 |
| Jessica Haywood | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Lykes | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 10 people listed · 3 paid, $403K · 4 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $136,354 | $0 | $26,285 | $162,639 | 1 |
| Cara O'Neill | Chief Science | 40 | $121,170 | $0 | $1,212 | $122,382 | 1 |
| Katie Walton | Vice President | 40 | $116,592 | $0 | $1,166 | $117,758 | 1 |
| Daniel Fraley | Board Chair | 2 | $0 | $0 | $0 | $0 | 1 |
| Jessica Haywood | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 2 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 9 people listed · 4 paid, $365K · 4 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $135,200 | $0 | $24,548 | $159,748 | 1 |
| Katie Walton | Vice President | 40 | $108,150 | $0 | $1,081 | $109,231 | 1 |
| Cara O'Neill | Chief Science | 40 | $87,500 | $0 | $875 | $88,375 | 1 |
| Ben Von Wong | Director | 2 | $7,500 | $0 | $0 | $7,500 | 1 |
| Daniel Fraley | Board Chair | 2 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 2 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 9 people listed · 3 paid, $362K · 4 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Exe Dir/Pres | 50 | $136,170 | $0 | $24,150 | $160,320 | 1 |
| Katie Walton | Vice President | 40 | $110,012 | $0 | $0 | $110,012 | 1 |
| Cara O'Neill | Chief Science | 40 | $91,574 | $0 | $0 | $91,574 | 1 |
| Daniel Fraley | Board Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 10 people listed · 3 paid, $318K · 4 employees · 120 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Executive Dir. | 50 | $133,211 | $0 | $0 | $133,211 | 1 |
| Katie Walton | Vice President | 40 | $106,847 | $0 | $0 | $106,847 | 1 |
| Cara O'Neill | Chief Science | 25 | $78,230 | $0 | $0 | $78,230 | 1 |
| Daniel Fraley | Board Chair | 1 | $0 | $0 | $0 | $0 | 1 |
| Rachel Best | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 1 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 10 people listed · 3 paid, $284K · 4 employees · 100 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Executive Dir. | 50 | $122,000 | $0 | $8,000 | $130,000 | 1 |
| Katie Walton | Vice President | 40 | $78,846 | $0 | $0 | $78,846 | 1 |
| Cara O'Neill | Chief Science | 25 | $75,000 | $0 | $0 | $75,000 | 1 |
| Daniel Fraley | Board Chair | 5 | $0 | $0 | $0 | $0 | 1 |
| Rachel Best | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 5 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Adam Shaywitz | Director | 5 | $0 | $0 | $0 | $0 | 1 |
2018 · 9 people listed · 2 paid, $205K · 3 employees · 80 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Executive Dir. | 50 | $122,000 | $0 | $8,000 | $130,000 | 1 |
| Cara O'Neill | Chief Science | 30 | $75,000 | $0 | $0 | $75,000 | 1 |
| Rachael Best | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Katie Walton | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Ben Von Wong | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Daniel Fraley | Board Chair | 5 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardy | Secretary | 5 | $0 | $0 | $0 | $0 | 1 |
2017 · 8 people listed · 1 paid, $130K · 1 employee · 75 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Executive Dir. | 50 | $122,000 | $0 | $8,000 | $130,000 | 1 |
| Rachael Best | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Katie Walton | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Cara O'Neill | Scientific Dir | 30 | $0 | $0 | $0 | $0 | 1 |
| Daniel Fraley | Treasurer | 5 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Secretary | 5 | $0 | $0 | $0 | $0 | 1 |
2015 · 8 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Cara O'Neill | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Rachael Best | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Daniel Fraley | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Shelby Leonardi | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Valerie Byers | Director | 5 | $0 | $0 | $0 | $0 | 1 |
| Katie Walton | Director | 5 | $0 | $0 | $0 | $0 | 1 |
2014 · 6 people listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Glenn O'Neill | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Cara O'Neill | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Rachael Best | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Daniel Fraley | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Faith McAngus | Director | 25 | $0 | $0 | $0 | $0 | 1 |
| Katie Walton | Director | 25 | $0 | $0 | $0 | $0 | 1 |
2013 · 4 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| GLENN ONEILL | DIRECTOR | 25 | $0 | - | $0 | $0 | 1 |
| CARA ONEILL | DIRECTOR | 25 | $0 | - | $0 | $0 | 1 |
| RACHEL BEST | BOARD MEMBER | 25 | $0 | - | $0 | $0 | 1 |
| DANIEL FRALEY | BOARD MEMBER | 25 | $0 | - | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 4 grants to organizations · $256K
Listed grants add up to $255,541; the return's “grants paid” expense line says $643,960. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 7 grants to organizations · $456K
Listed grants add up to $456,067; the return's “grants paid” expense line says $570,714. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 7 grants to organizations · $1.2M
Listed grants add up to $1,239,902; the return's “grants paid” expense line says $1,633,999. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 10 grants to organizations · $1.6M
Listed grants add up to $1,583,407; the return's “grants paid” expense line says $1,963,579. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 8 grants to organizations · $2.5M
Listed grants add up to $2,520,506; the return's “grants paid” expense line says $2,546,156. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 6 grants to organizations · $572K
Listed grants add up to $571,956; the return's “grants paid” expense line says $676,206. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 6 grants to organizations · $407K
Listed grants add up to $407,050; the return's “grants paid” expense line says $636,976. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 4 grants to organizations · $166K
Listed grants add up to $166,395; the return's “grants paid” expense line says $312,878. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 2 grants to organizations · $279K
Listed grants add up to $279,446; the return's “grants paid” expense line says $282,812. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $2,781,149 | $1,572,959 | $13,871,255 | $13,736,183 | $2,221,552 | $0 | $381,859 | 5 | - |
| 2023 · Form 990 | ||||||||
| $2,106,392 | $1,292,685 | $11,198,610 | $11,174,074 | $1,746,032 | $0 | $402,778 | 4 | - |
| 2022 · Form 990 | ||||||||
| $2,707,445 | $2,287,097 | $9,625,770 | $9,604,578 | $2,238,613 | $0 | $330,850 | 4 | - |
| 2021 · Form 990 | ||||||||
| $2,229,880 | $2,586,338 | $10,337,575 | $10,337,575 | $2,078,776 | $0 | $361,906 | 4 | - |
| 2020 · Form 990 | ||||||||
| $2,083,251 | $3,140,290 | $10,163,332 | $10,099,881 | $1,840,504 | $0 | $318,288 | 4 | 120 |
| 2020 · Form 990 | ||||||||
| $2,083,251 | $3,140,290 | $10,163,332 | $10,099,881 | $1,840,504 | $0 | $318,288 | 4 | 120 |
| 2019 · Form 990 | ||||||||
| $1,345,798 | $1,263,898 | $10,749,584 | $10,722,031 | $1,211,874 | $0 | $283,846 | 4 | 100 |
| 2018 · Form 990 | ||||||||
| $2,058,979 | $1,153,410 | $10,817,840 | $10,817,840 | $1,748,376 | $0 | $205,000 | 3 | 80 |
| 2017 · Form 990 | ||||||||
| $4,433,546 | $599,120 | $11,442,880 | $11,442,880 | $1,377,712 | $0 | $130,000 | 1 | 75 |
| 2015 · Form 990 | ||||||||
| $438,943 | $339,313 | $3,213,561 | $3,213,561 | $541,573 | $0 | $0 | 0 | - |
| 2014 · Form 990 | ||||||||
| $2,348,262 | $179,860 | $2,208,202 | $2,208,202 | $2,330,092 | $0 | $0 | 0 | - |
| 2013 · Form 990EZ | ||||||||
| $42,449 | $2,949 | $39,500 | $39,500 | $42,449 | - | - | - | - |
Funders of this organization
86 grantors reported grants to this organization, $2,600,040 in all, tax years 2013 to 2025; the 25 largest shown (all 86). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2017-2020, 2022-2024 | 7 | $799,605 | 2024 | $309,731 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $275,752 | 2025 | $85,036 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $265,920 | 2024 | $47,125 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2021, 2024 | 2 | $114,500 | 2024 | $13,500 | show |
| FORGOOD INC | DAF sponsor | Exact | 2015-2017 | 3 | $112,736 | 2017 | $26,882 | show |
| HAZEN B HINMAN SR FOUNDATION INC | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2020-2025 | 6 | $86,000 | 2025 | $15,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2017, 2020-2022, 2024 | 5 | $70,477 | 2024 | $19,277 | show |
| CHESTERFIELD BASBALL-SOFTBALL ASSOCIATION | Public charity | Exact | 2018, 2020, 2022-2024 | 5 | $61,067 | 2024 | $9,900 | show |
| AMERICAN GIFT FUND | DAF sponsor | Exact | 2020, 2022 | 2 | $55,000 | 2022 | $30,000 | show |
| JERRY J CHICONE FOUNDATION | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2018-2020 | 3 | $55,000 | 2020 | $15,000 | show |
| ENPRO FOUNDATION | Private foundation | Fuzzy filed as “Cure Sanfilippo Foundation” | 2023-2025 | 3 | $52,000 | 2025 | $14,000 | show |
| PARAGANO FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “Cure Sanfilippo Foundation” | 2022-2023 | 2 | $50,000 | 2023 | $25,000 | show |
| PINKERTON FOUNDATION | Private foundation | Fuzzy filed as “Cure Sanfilippo Foundation”, “CURE SANFILIPPO FOUNDATION” | 2020-2024 | 5 | $44,000 | 2024 | $7,500 | show |
| CENTRAL CAROLINA COMMUNITY FOUNDATION | DAF sponsor | Exact | 2015, 2018, 2022-2023 | 4 | $43,879 | 2023 | $22,419 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2014, 2022-2024 | 4 | $37,800 | 2024 | $7,250 | show |
| JAMES & TINA HSI FOUNDATION | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2025 | 1 | $34,000 | 2025 | $34,000 | show |
| FIFTH STATION FOUNDATION INC | Private foundation | Fuzzy filed as “Cure SanFilippo Foundation” | 2025 | 1 | $30,000 | 2025 | $30,000 | show |
| GRIFFIN CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2021-2023 | 3 | $28,000 | 2023 | $13,000 | show |
| COMMUNITY FOUNDATION FOR PALM BEACH & MARTIN COUNTIES INC | DAF sponsor | Exact | 2020, 2022 | 2 | $25,000 | 2022 | $10,000 | show |
| SANFILIPPO RESEARCH FOUNDATION INC | Public charity | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2018 | 1 | $25,000 | 2018 | $25,000 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2023, 2025 | 2 | $23,184 | 2025 | $17,106 | show |
| UNITED WAY WORLDWIDE | DAF sponsor | Exact | 2017-2019 | 3 | $21,589 | 2019 | $7,270 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2020-2023 | 4 | $21,104 | 2023 | $6,265 | show |
| CSP FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2024-2025 | 2 | $20,000 | 2025 | $10,000 | show |
| COOPER FAMILY FOUNDATION | Private foundation | Fuzzy filed as “CURE SANFILIPPO FOUNDATION” | 2022-2025 | 4 | $20,000 | 2025 | $5,000 | show |
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| ERASE PTSD NOW | IL | H80 | $1,540,954 | $1,534,965 | EXECUTIVE DIRECTOR | $100,000 | Same NTEE code H80, revenue within 2x |
| SPRING POINT PROJECT | MN | H80 | $4,041,047 | $3,929,944 | EXECUTIVE DIRECTOR | $261,819 | Same NTEE code H80, revenue within 2x |
| CENTER FOR DISEASE DYNAMICS ECONOMICS & POLICY INC | MD | H80 | $3,712,319 | $3,582,607 | President | $331,418 | Same NTEE code H80, revenue within 2x |
| PREECLAMPSIA FOUNDATION | FL | H80 | $5,663,361 | $2,627,991 | CEO | $130,175 | Same NTEE code H80, revenue within 5x |
| SENECA DIABETES FOUNDATION | NY | H80 | $657,184 | $245,467 | VICE CHAIRMA | $51,820 | Same NTEE code H80, revenue within 5x |
| THE FOCUS FOUNDATION INC | MD | H80 | $795,002 | $613,517 | EXECUTIVE DIRECTOR | $120,528 | Same NTEE code H80, revenue within 5x |
| MILAS MIRACLE FOUNDATION INC | CO | H80 | $706,872 | $493,007 | PRESIDENT | $113,470 | Same NTEE code H80, revenue within 5x |
| DION FOUNDATION FOR CHILDREN WITH RARE DISEASES INC | MA | H80 | $776,008 | $937,344 | Dion | $0 | Same NTEE code H80, revenue within 5x |
| PHELAN MCDERMID SYNDROME FOUNDATION | FL | H80 | $1,245,861 | $1,082,374 | Chief Operating Officer/Co-interim CEO | $120,416 | Same NTEE code H80, revenue within 5x |
| CDG CARE | CO | H80 | $706,435 | $642,412 | Executive Director | $70,000 | Same NTEE code H80, revenue within 5x, similar mission |
| FOUNDATION TO ERADICATE DUCHENNE INC | VA | H80 | $1,068,787 | $856,659 | PRESIDENT | $0 | Same NTEE code H80, revenue within 5x |
| MONOAMINE OXIDASE DEFICIENCY FOUNDATION | TX | H80 | $845,166 | $840,523 | PRESIDENT | $0 | Same NTEE code H80, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $1,572,959 spent · pay $630,558 · grants $643,960 · events $97,575
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants outside the US | $388,420 | $388,420 | - | - | 24.7% | |
| Pay: officers, directors, trustees, key employees | $381,859 | $248,209 | $57,278 | $76,372 | 24.3% | |
| Grants to US organizations and governments | $255,540 | $255,540 | - | - | 16.2% | |
| Other salaries and wages | $144,918 | $94,196 | $21,739 | $28,983 | 9.2% | |
| Fees: legal | $124,719 | $93,539 | $31,180 | - | 7.9% | |
| Other employee benefits | $47,908 | $31,140 | $7,186 | $9,582 | 3.0% | |
| Payroll taxes | $37,906 | $24,639 | $5,686 | $7,581 | 2.4% | |
| Advertising and promotion | $32,349 | $22,644 | - | $9,705 | 2.1% | |
| Travel | $31,597 | $23,697 | $7,900 | - | 2.0% | |
| Other (as described) | Contractors | $18,599 | $12,089 | $2,790 | $3,720 | 1.2% |
| All other expenses | $18,398 | $10,835 | $7,119 | $444 | 1.2% | |
| Pension plan contributions | $17,967 | $11,679 | $2,695 | $3,593 | 1.1% | |
| Other (as described) | Program Expense | $14,554 | $14,554 | - | - | 0.9% |
| Other (as described) | Rent/Lease | $12,675 | $8,238 | $1,902 | $2,535 | 0.8% |
| Fees: accounting | $10,935 | - | $10,935 | - | 0.7% | |
| Other (as described) | Web Service | $10,765 | $8,074 | $2,691 | - | 0.7% |
| Office expenses | $9,795 | $6,366 | $1,469 | $1,960 | 0.6% | |
| Conferences, conventions and meetings | $9,249 | $6,012 | $1,387 | $1,850 | 0.6% | |
| Insurance | $4,806 | - | $4,806 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $52,962 | $88,326 | reported apart | |||
| Total | $1,572,959 | 100% |
2023 · Form 990 · $1,292,685 spent · pay $525,974 · grants $570,714 · events $47,351
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $459,167 | $459,167 | - | - | 35.5% | |
| Pay: officers, directors, trustees, key employees | $402,778 | $261,806 | $60,417 | $80,555 | 31.2% | |
| Grants outside the US | $111,547 | $111,547 | - | - | 8.6% | |
| Other salaries and wages | $56,143 | $36,493 | $8,421 | $11,229 | 4.3% | |
| Payroll taxes | $33,010 | $21,457 | $4,951 | $6,602 | 2.6% | |
| Advertising and promotion | $31,639 | $22,147 | - | $9,492 | 2.4% | |
| Other (as described) | Program Expense | $26,559 | $26,559 | - | - | 2.1% |
| Fees: legal | $21,788 | $16,341 | $5,447 | - | 1.7% | |
| All other expenses | $21,362 | $9,082 | $6,025 | $6,255 | 1.7% | |
| Other (as described) | Web Service | $20,923 | $15,692 | $5,231 | - | 1.6% |
| Other employee benefits | $20,883 | $11,623 | $5,083 | $4,177 | 1.6% | |
| Travel | $18,282 | $13,711 | $4,571 | - | 1.4% | |
| Pension plan contributions | $13,160 | $10,504 | $24 | $2,632 | 1.0% | |
| Other (as described) | Supplies | $12,405 | $8,063 | $1,861 | $2,481 | 1.0% |
| Other (as described) | Merchandise | $12,268 | - | - | $12,268 | 0.9% |
| Fees: accounting | $11,224 | - | $11,224 | - | 0.9% | |
| Conferences, conventions and meetings | $8,899 | $5,784 | $1,335 | $1,780 | 0.7% | |
| Office expenses | $8,477 | $5,510 | $1,272 | $1,695 | 0.7% | |
| Insurance | $2,171 | - | $2,171 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $103,753 | $38,452 | reported apart | |||
| Total | $1,292,685 | 100% |
2022 · Form 990 · $2,287,097 spent · pay $460,741 · grants $1,633,999 · events $56,061
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,243,718 | $1,243,718 | - | - | 54.4% | |
| Grants outside the US | $390,281 | $390,281 | - | - | 17.1% | |
| Pay: officers, directors, trustees, key employees | $330,850 | $215,052 | $49,628 | $66,170 | 14.5% | |
| Other salaries and wages | $52,101 | $33,866 | $7,815 | $10,420 | 2.3% | |
| Other employee benefits | $49,141 | $31,942 | $7,371 | $9,828 | 2.1% | |
| Advertising and promotion | $42,276 | $29,593 | - | $12,683 | 1.8% | |
| Payroll taxes | $28,649 | $18,622 | $4,297 | $5,730 | 1.3% | |
| Other (as described) | Program Expense | $23,906 | $23,906 | - | - | 1.0% |
| Other (as described) | Web Service | $20,520 | $15,390 | $5,130 | - | 0.9% |
| All other expenses | $18,270 | $7,629 | $6,206 | $4,435 | 0.8% | |
| Fees: legal | $18,048 | $13,536 | $4,512 | - | 0.8% | |
| Fees: accounting | $17,680 | - | $17,680 | - | 0.8% | |
| Other (as described) | Rent/Lease | $10,509 | $6,830 | $1,577 | $2,102 | 0.5% |
| Office expenses | $10,237 | $6,654 | $1,536 | $2,047 | 0.4% | |
| Conferences, conventions and meetings | $9,976 | $6,485 | $1,496 | $1,995 | 0.4% | |
| Travel | $9,822 | $7,367 | $2,455 | - | 0.4% | |
| Other (as described) | Merchandise | $8,941 | - | - | $8,941 | 0.4% |
| Insurance | $2,172 | - | $2,172 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $29,537 | $46,085 | reported apart | |||
| Total | $2,287,097 | 100% |
2021 · Form 990 · $2,586,338 spent · pay $445,653 · grants $1,963,579 · events $105,487
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,588,407 | $1,588,407 | - | - | 61.4% | |
| Grants outside the US | $375,172 | $375,172 | - | - | 14.5% | |
| Pay: officers, directors, trustees, key employees | $361,906 | $235,238 | $54,285 | $72,383 | 14.0% | |
| Other salaries and wages | $44,704 | $29,058 | $6,706 | $8,940 | 1.7% | |
| Advertising and promotion | $36,957 | $25,870 | - | $11,087 | 1.4% | |
| Fees: legal | $30,197 | $22,648 | $7,549 | - | 1.2% | |
| Payroll taxes | $25,634 | $16,662 | $3,845 | $5,127 | 1.0% | |
| All other expenses | $19,015 | $9,839 | $6,859 | $2,317 | 0.7% | |
| Office expenses | $15,450 | $10,042 | $2,318 | $3,090 | 0.6% | |
| Other (as described) | Merchandise | $15,286 | - | - | $15,286 | 0.6% |
| Fees: accounting | $14,000 | - | $14,000 | - | 0.5% | |
| Other employee benefits | $13,409 | $8,716 | $2,012 | $2,681 | 0.5% | |
| Other (as described) | Program Expense | $11,157 | $11,157 | - | - | 0.4% |
| Other (as described) Event | Events | $10,911 | - | - | $10,911 | 0.4% |
| Other (as described) | Rent/Lease | $10,500 | $6,825 | $1,575 | $2,100 | 0.4% |
| Travel | $10,428 | $7,821 | $2,607 | - | 0.4% | |
| Insurance | $2,172 | - | $2,172 | - | 0.1% | |
| Conferences, conventions and meetings | $1,033 | $672 | $155 | $206 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $56,347 | $93,543 | reported apart | |||
| Total | $2,586,338 | 100% |
2020 · Form 990 · $3,140,290 spent · pay $432,175 · grants $2,546,156 · events $39,623
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,520,506 | $2,520,506 | - | - | 80.3% | |
| Pay: officers, directors, trustees, key employees | $318,288 | $206,887 | $47,743 | $63,658 | 10.1% | |
| Other salaries and wages | $51,147 | $33,246 | $7,672 | $10,229 | 1.6% | |
| Advertising and promotion | $36,951 | $25,866 | - | $11,085 | 1.2% | |
| Other employee benefits | $36,291 | $23,589 | $5,444 | $7,258 | 1.2% | |
| Payroll taxes | $26,449 | $17,192 | $3,967 | $5,290 | 0.8% | |
| Grants outside the US | $25,650 | $25,650 | - | - | 0.8% | |
| All other expenses | $22,297 | $9,860 | $4,330 | $8,107 | 0.7% | |
| Fees: legal | $19,981 | $14,986 | $4,995 | - | 0.6% | |
| Other (as described) Event | Events | $19,247 | - | - | $19,247 | 0.6% |
| Fees: accounting | $13,025 | - | $13,025 | - | 0.4% | |
| Travel | $11,149 | $8,362 | $2,787 | - | 0.4% | |
| Other (as described) | Rent/Lease | $10,500 | $6,825 | $1,575 | $2,100 | 0.3% |
| Other (as described) | Supplies | $10,291 | $6,689 | $1,544 | $2,058 | 0.3% |
| Office expenses | $8,060 | $5,239 | $1,209 | $1,612 | 0.3% | |
| Other (as described) | Web Service | $7,139 | $5,354 | $1,785 | - | 0.2% |
| Insurance | $2,172 | - | $2,172 | - | 0.1% | |
| Fees: other services | $1,147 | - | $1,147 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $21,981 | $20,376 | reported apart | |||
| Total | $3,140,290 | 100% |
2019 · Form 990 · $1,263,898 spent · pay $401,485 · grants $676,206 · events $85,288
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $571,956 | $571,956 | - | - | 45.3% | |
| Pay: officers, directors, trustees, key employees | $283,846 | $184,500 | $42,577 | $56,769 | 22.5% | |
| Grants outside the US | $104,250 | $104,250 | - | - | 8.2% | |
| Other salaries and wages | $54,337 | $35,319 | $8,151 | $10,867 | 4.3% | |
| Other employee benefits | $32,479 | $21,111 | $4,872 | $6,496 | 2.6% | |
| Other (as described) Event | Events | $31,424 | - | - | $31,424 | 2.5% |
| Advertising and promotion | $29,822 | $20,861 | - | $8,961 | 2.4% | |
| Payroll taxes | $28,416 | $18,471 | $4,262 | $5,683 | 2.2% | |
| Travel | $23,183 | $18,518 | $4,665 | - | 1.8% | |
| Fees: legal | $22,995 | $22,995 | - | - | 1.8% | |
| Fees: accounting | $15,275 | - | $15,275 | - | 1.2% | |
| Other (as described) | Web Service | $11,379 | $11,379 | - | - | 0.9% |
| Occupancy | $11,375 | $11,375 | - | - | 0.9% | |
| All other expenses | $10,706 | $6,730 | $3,976 | - | 0.8% | |
| Office expenses | $9,075 | $9,075 | - | - | 0.7% | |
| Other (as described) | Printing and Publications | $8,294 | - | $8,294 | - | 0.7% |
| Conferences, conventions and meetings | $5,165 | $2,532 | $2,633 | - | 0.4% | |
| Other (as described) | Taxes | $4,429 | $4,429 | - | - | 0.4% |
| Insurance | $2,944 | - | $2,944 | - | 0.2% | |
| Pension plan contributions | $2,407 | $1,389 | $279 | $739 | 0.2% | |
| Information technology | $141 | $141 | - | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $44,750 | $48,699 | reported apart | |||
| Total | $1,263,898 | 100% |
2018 · Form 990 · $1,153,410 spent · pay $286,619 · grants $636,976 · events $102,093
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $407,050 | $407,050 | - | - | 35.3% | |
| Grants outside the US | $229,926 | $229,926 | - | - | 19.9% | |
| Pay: officers, directors, trustees, key employees | $205,000 | $133,250 | $30,750 | $41,000 | 17.8% | |
| Other (as described) Event | Events | $69,554 | - | - | $69,554 | 6.0% |
| Other salaries and wages | $36,888 | $21,282 | $4,256 | $11,350 | 3.2% | |
| Advertising and promotion | $30,788 | $21,537 | - | $9,251 | 2.7% | |
| Other employee benefits | $28,436 | $18,484 | $4,265 | $5,687 | 2.5% | |
| Fees: legal | $26,880 | $26,880 | - | - | 2.3% | |
| Travel | $23,508 | $18,777 | $4,731 | - | 2.0% | |
| Other (as described) | Program Expense | $21,624 | $21,624 | - | - | 1.9% |
| Office expenses | $15,649 | $15,649 | - | - | 1.4% | |
| Payroll taxes | $14,721 | $9,569 | $2,208 | $2,944 | 1.3% | |
| All other expenses | $11,011 | $6,850 | $4,161 | - | 1.0% | |
| Conferences, conventions and meetings | $7,836 | $3,842 | $3,994 | - | 0.7% | |
| Other (as described) | Printing and Publications | $7,788 | - | $7,788 | - | 0.7% |
| Other (as described) | Taxes | $5,132 | $5,132 | - | - | 0.4% |
| Fees: accounting | $3,300 | $3,300 | - | - | 0.3% | |
| Insurance | $3,134 | - | $3,134 | - | 0.3% | |
| Occupancy | $2,898 | $2,898 | - | - | 0.3% | |
| Pension plan contributions | $1,574 | $908 | $182 | $484 | 0.1% | |
| Information technology | $713 | $713 | - | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $303,678 | $24,703 | reported apart | |||
| Total | $1,153,410 | 100% |
2017 · Form 990 · $599,120 spent · pay $167,925 · grants $312,878 · events $26,793
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $170,452 | $170,452 | - | - | 28.5% | |
| Grants outside the US | $142,426 | $142,426 | - | - | 23.8% | |
| Pay: officers, directors, trustees, key employees | $130,000 | $75,000 | $15,000 | $40,000 | 21.7% | |
| Fees: professional fundraisers | $26,115 | - | - | $26,115 | 4.4% | |
| Advertising and promotion | $25,732 | $18,000 | - | $7,732 | 4.3% | |
| Other employee benefits | $25,470 | $14,694 | $2,939 | $7,837 | 4.3% | |
| Travel | $18,780 | $15,000 | $3,780 | - | 3.1% | |
| Fees: legal | $12,669 | $12,669 | - | - | 2.1% | |
| Other (as described) | Printing and Publications | $10,770 | $6,000 | - | $4,770 | 1.8% |
| Payroll taxes | $9,771 | - | $9,771 | - | 1.6% | |
| Other (as described) | Web Service | $9,558 | $9,558 | - | - | 1.6% |
| Information technology | $5,847 | $5,847 | - | - | 1.0% | |
| Insurance | $3,005 | - | $3,005 | - | 0.5% | |
| Pension plan contributions | $2,684 | $1,548 | $310 | $826 | 0.4% | |
| Other (as described) | Bank Fees | $1,752 | - | $1,752 | - | 0.3% |
| All other expenses | $1,270 | - | $1,270 | - | 0.2% | |
| Conferences, conventions and meetings | $1,224 | $600 | $624 | - | 0.2% | |
| Fees: management | $901 | - | $901 | - | 0.2% | |
| Other (as described) | Membership Dues | $694 | $694 | - | - | 0.1% |
| Fundraising events Event | direct expenses; gross income $137,700 | $25,569 | reported apart | |||
| Total | $599,120 | 100% |
2015 · Form 990 · $339,313 spent · pay $0 · grants $282,812 · events $23,105
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $282,812 | $282,812 | - | - | 83.3% | |
| Advertising and promotion | $17,163 | - | - | $17,163 | 5.1% | |
| Fees: professional fundraisers | $15,038 | - | - | $15,038 | 4.4% | |
| Other (as described) | Printing and Publications | $6,710 | - | $6,710 | - | 2.0% |
| Other (as described) | Paypal Fees | $6,389 | - | $6,389 | - | 1.9% |
| Fees: legal | $6,248 | - | $6,248 | - | 1.8% | |
| Fees: accounting | $2,500 | - | $2,500 | - | 0.7% | |
| Other (as described) | Software | $1,980 | - | $1,980 | - | 0.6% |
| All other expenses | $297 | - | $297 | - | 0.1% | |
| Other (as described) | Postage and Shipping | $176 | - | $176 | - | 0.1% |
| Fundraising events Event | direct expenses; gross income $40,935 | $23,105 | reported apart | |||
| Total | $339,313 | 100% |
2014 · Form 990 · $179,860 spent · pay $0 · grants $0 · events $32,043
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: professional fundraisers | $86,069 | - | - | $86,069 | 47.9% | |
| Other (as described) | Paypal Fees | $64,992 | - | - | $64,992 | 36.1% |
| Other (as described) | Grant Expenses | $12,000 | $12,000 | - | - | 6.7% |
| Other (as described) | Printing and Publications | $8,506 | $1,634 | $1,634 | $5,238 | 4.7% |
| Other (as described) | Supplies | $3,610 | - | $413 | $3,197 | 2.0% |
| All other expenses | $3,183 | $1,799 | $837 | $547 | 1.8% | |
| Advertising and promotion | $1,500 | - | - | $1,500 | 0.8% | |
| Fundraising events Event | direct expenses; gross income $49,396 | $32,043 | reported apart | |||
| Total | $179,860 | 100% |
2013 · Form 990EZ · $2,949 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Share |
|---|---|---|---|
| Other expenses (detail on Schedule O) | $2,949 | 100.0% | |
| Total | $2,949 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2020 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
Comments